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The Psychosocial Experience Of Cystic Fibrosis
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Book Synopsis Cystic Fibrosis by : Stephanie Duggins Davis
Download or read book Cystic Fibrosis written by Stephanie Duggins Davis and published by Springer Nature. This book was released on 2020-05-21 with total page 525 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides a comprehensive overview of the multisystem disease, cystic fibrosis, for both pediatric and adult patients. Written by experts in the field, the text outlines the progressive nature of CF as well as the impact of this autosomal recessive disease on the respiratory, gastrointestinal, endocrine, rheumatologic, and renal systems, as well as the patient’s mental health. The book begins with a chapter describing the history of cystic fibrosis and how the face of this life-shortening disease has changed over the past several decades. The following chapters elucidate the pathophysiology of how cystic fibrosis impacts each organ system. Current management and therapeutics are detailed with step-by-step guidelines for clinicians. This book is unique in that it highlights the entire person, not just the respiratory system, with detailed inclusion of the patient perspectives throughout, informing practice standards and considerations. This is an ideal guide for pediatric and adult physicians who care for patients with cystic fibrosis, as well as respiratory therapists, physical therapists, nurses, nutritionists, and pharmacists who care for these patients.
Book Synopsis Integrated Palliative Care of Respiratory Disease by : Stephen Bourke
Download or read book Integrated Palliative Care of Respiratory Disease written by Stephen Bourke and published by Springer Science & Business Media. This book was released on 2012-12-03 with total page 244 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book brings together the knowledge, skills and attitudes of specialists in both Respiratory Medicine and Palliative Medicine to focus on the palliative care of patients with respiratory diseases. It deals not only with end of life care but also with symptom control and supportive care to improve the quality of life of those living their lives with advanced progressive lung disease.
Book Synopsis A Parent's Guide to Cystic Fibrosis by : Burton L. Shapiro
Download or read book A Parent's Guide to Cystic Fibrosis written by Burton L. Shapiro and published by U of Minnesota Press. This book was released on 1991 with total page 156 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Promoting Adherence to Medical Treatment in Chronic Childhood Illness by : Dennis Drotar
Download or read book Promoting Adherence to Medical Treatment in Chronic Childhood Illness written by Dennis Drotar and published by Psychology Press. This book was released on 2000-08 with total page 515 pages. Available in PDF, EPUB and Kindle. Book excerpt: This interdisciplinary edited volume addresses critical gaps in scientific understanding of adherence/compliance to treatment regimens in chronic health conditions for children & Ados.
Author :Chevaillier, Jean Publisher :Servei de Publicacions de la Universitat Autònoma de Barcelona ISBN 13 :8449043905 Total Pages :148 pages Book Rating :4.4/5 (49 download)
Book Synopsis Autogenic Drainage by : Chevaillier, Jean
Download or read book Autogenic Drainage written by Chevaillier, Jean and published by Servei de Publicacions de la Universitat Autònoma de Barcelona. This book was released on 2016-11-30 with total page 148 pages. Available in PDF, EPUB and Kindle. Book excerpt: This work does not provide "recipes" or standardized solutions for the treatment of patients affected hypersecretion. The reader will find the book necessary ingredients to adapt to drain bronchial disease and the patient's condition, their needs and possibilities. Find relevant information ontology, anatomy, physiology and pulmonary ventilatory mechanics in order to facilitate understanding of the mechanisms involved in bronchial drainage techniques. It also delves into measurements of lung function and its implications. Explains the problems with obstruction and pulmonary physiotherapy assessment, as well as the bases of the bronchial drainage techniques. Not to mention the care of the upper airways. Acquire special mention specific principles of autogenic drainage, showing through performance curves partial expiratory flow-volume, the ability to modulate the flow and volume in the bronchial tree and selectively localize functional bronchial generations drain. Series of tips to standardize ventilation during inspiratory phase as well as the importance of correcting the shape of the rib cage. Explains the use of autogenic drainage in patients collaborators and collaborators, with a section dedicated to autogenic drainage in infants. The last chapters are devoted to explaining the specific physiology of cough with practical implications, special attention is given to inhalation therapy and finally being mentioned techniques as accessory respiratory reeducation and functional analysis, the importance of exercise and positioning, flexible gymnastics, relaxation, the use of oxygen and the rehabilitation effort through sport.
Book Synopsis Cystic Fibrosis in the Light of New Research by : Dennis Wat
Download or read book Cystic Fibrosis in the Light of New Research written by Dennis Wat and published by BoD – Books on Demand. This book was released on 2015-08-24 with total page 394 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cystic Fibrosis in the Light of New Research provides the latest research and clinical evidence that will be useful for clinicians, scientists and researchers to further their knowledge around this fascinating condition. The authors have brought along their expertise and wealth of knowledge to produce this book, including the basic science that underlies the disease, the burden of bacterial and viral infections, immunologic aspects of CF, a variety of clinical measurements to predict prognosis and novel therapies including gene therapy. This book will be invaluable and entertaining for anyone who is involved in the care of patients with cystic fibrosis.
Book Synopsis Cystic Fibrosis by : Melanie Ann Apel
Download or read book Cystic Fibrosis written by Melanie Ann Apel and published by Scarecrow Press. This book was released on 2006 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: Describes the challenges of living with cystic fibrosis, as well as a description of the illness, and an explanation of procedures for diagnosis and therapy.
Book Synopsis Counselling Children by : Kathryn Geldard
Download or read book Counselling Children written by Kathryn Geldard and published by SAGE. This book was released on 2002 with total page 292 pages. Available in PDF, EPUB and Kindle. Book excerpt: Counseling Children is a highly acclaimed, introductory guide to counseling children and to the practical issues of communicating with children in a counselling context. In this Second Edition, Kathryn Geldard and David Geldard relate the theory and practice of counseling children in a highly accessible, practical, and jargon-free style.
Book Synopsis In the Shadow of Illness by : Myra Bluebond-Langner
Download or read book In the Shadow of Illness written by Myra Bluebond-Langner and published by Princeton University Press. This book was released on 2020-06-30 with total page 321 pages. Available in PDF, EPUB and Kindle. Book excerpt: A revealing account of how families adapt to living with a chronically ill child What is it like to live with a child who has a chronic, life-threatening disease? What impact does the illness have on well siblings in the family? Myra Bluebond-Langner suggests that understanding the impact of the illness lies not in identifying deficiencies in the lives of those affected, but in appreciating how family members carry on with their lives in the face of the disease's intrusion. The Private Worlds of Dying Children, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, she turns her attention to the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis. Through a series of narrative portraits, she draws us into the daily lives of nine families of children at different points in the natural history of the illness—from diagnosis through the terminal phase. In these portraits, as family members talk about their experiences in their own words, we see how parents, well siblings, and the ill children themselves struggle, in different ways, to contain the intrusion of the disease into their lives. Bluebond-Langner looks at how parents adjust their priorities and their idea of what constitutes a normal life, how they try to balance the needs of other family members while caring for the ill child, and how they see the future. This context helps us understand how well siblings view the illness and how they relate to their ill sibling and parents. Since the issues raised are not unique to cystic fibrosis but are common to other chronic and life-threatening illnesses, this book will be of interest to all who study, care for, or live with the seriously ill.
Book Synopsis Lung Epithelial Biology in the Pathogenesis of Pulmonary Disease by : Venkataramana K Sidhaye
Download or read book Lung Epithelial Biology in the Pathogenesis of Pulmonary Disease written by Venkataramana K Sidhaye and published by Academic Press. This book was released on 2017-03-09 with total page 277 pages. Available in PDF, EPUB and Kindle. Book excerpt: Lung Epithelial Biology in the Pathogenesis of Pulmonary Disease provides a one-stop resource capturing developments in lung epithelial biology related to basic physiology, pathophysiology, and links to human disease. The book provides access to knowledge of molecular and cellular aspects of lung homeostasis and repair, including the molecular basis of lung epithelial intercellular communication and lung epithelial channels and transporters. Also included is coverage of lung epithelial biology as it relates to fluid balance, basic ion/fluid molecular processes, and human disease. Useful to physician and clinical scientists, the contents of this book compile the important and most current findings about the role of epithelial cells in lung disease. Medical and graduate students, postdoctoral and clinical fellows, as well as clinicians interested in the mechanistic basis for lung disease will benefit from the books examination of principles of lung epithelium functions in physiological condition. - Provides a single source of information on lung epithelial junctions and transporters - Discusses of the role of the epithelium in lung homeostasis and disease - Includes capsule summaries of main conclusions as well as highlights of future directions in the field - Covers the mechanistic basis for lung disease for a range of audiences
Book Synopsis Cystic Fibrosis in Primary Care by : Douglas Lewis, MD, FAAFP
Download or read book Cystic Fibrosis in Primary Care written by Douglas Lewis, MD, FAAFP and published by Springer Nature. This book was released on 2020-01-28 with total page 184 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cystic fibrosis is a disease that affects the entire body. It tends to be thought of as primarily a pulmonary disease since pulmonary decline is the main factor in early mortality. Because of the multi-system nature of the disease, a better understanding of cystic fibrosis expands the family physician's understanding of subjects ranging from genetics to pulmonary function to nutrition to colon transport to hydration to electrolyte management. The primary care philosophy is unique in that it always considers how a narrow problem can affect an individual globally. Cystic Fibrosis care can often feel fractured to patients as they are sent to multiple specialists to deal with problems outside of the comfort level of a prior or current specialist. With a broad medical philosophy, care is more inclusive as clinicians can manage topics such as diabetes and preventive care without multiple referrals and additional appointments. Family physicians are well-positioned and well-qualified to competently meet many of the care needs of those with cystic fibrosis. This book is edited by a family medicine physician who has specialist level experience with the disease. It opens with a background on cystic fibrosis foundations and centers to familiarize the reader. The next chapter gives a basic overview of the disease. Each of the subsequent chapters provide a comprehensive look at how cystic fibrosis affects other areas of the body that the primary care physician should be familiar with. Major components of cystic fibrosis such as physiology, spirometry, inflammation, airway clearance, chronic infection, cystic fibrosis related diabetes and pancreatic insufficiency, among others, are thoroughly explained. Written by experts in the field, Cystic Fibrosis in Primary Care appeals to all family physicians as well as specialists, residents, medical students physician assistants and nurse practitioners alike.
Book Synopsis Palliative Care in Respiratory Disease by : Claudia Bausewein
Download or read book Palliative Care in Respiratory Disease written by Claudia Bausewein and published by European Respiratory Society. This book was released on 2016-09-01 with total page 267 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Psychosocial Aspects of Cystic Fibrosis by : Bryan Lask
Download or read book Psychosocial Aspects of Cystic Fibrosis written by Bryan Lask and published by CRC Press. This book was released on 2001-02-02 with total page 504 pages. Available in PDF, EPUB and Kindle. Book excerpt: The treatment and care of those with cystic fibrosis has developed rapidly over the last decade, with a resulting increase in the number of individuals living well into adolescence and early adulthood. This book deals with the profound psychological impact of these changes on sufferers, their friends and families, and those involved in patient care. It also considers new approaches to problems that continue to be of concern to clinicians and other health professionals working in the field, including adherence to therapy, communication within families, staff burnout, education and counselling. The six sections include an introduction to the aetiology, pathology, course and treatment of cystic fibrosis, a series of personal perspectives, developmental considerations, the illness network, therapeutic approaches, and major contemporary issues such as transplantation, genetic screening and new therapies. Where relevant, chapters include an update of current knowledge, discussions of the clinical implications of current an future research, and guidelines for clinical practice.
Download or read book Cystic Fibrosis written by Alex Horsley and published by Oxford Respiratory Medicine Li. This book was released on 2015 with total page 205 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cystic Fibrosis (CF) is a multi-system disorder, requiring not just respiratory expertise but also management of nutrition, and diabetes, as well psychosocial issues. This pocketbook will be a concise companion for all health care professionals in respiratory medicine, paediatrics, and primary care who manage, or come across, patients with CF. The book will cover all aspects of care, including both paediatric and adult-specific issues and summarize up-to-date literature in a concise and focussed style. There will be an emphasis on the practical aspects of management with the effects of CF in the lung, the microbiology of pulmonary CF, and management of exacerbations covered in separate chapters. The psychosocial aspects of CF care, end of life care and lung transplantation will also be addressed, and potential future therapies reviewed. This second edition will be updated to reflect the UK CF Trust Standards of Care; include emerging organisms, eg Pandorea, and treatment guidelines and Cochrane reviews; an expanded section on physiotherapy; and a new chapter on pharmacopeia.
Book Synopsis Psychological Treatment of Patients with Chronic Respiratory Disease by : Susan Labott
Download or read book Psychological Treatment of Patients with Chronic Respiratory Disease written by Susan Labott and published by Clinical Health Psychology. This book was released on 2020 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Series foreword -- Acknowledgments -- Introduction -- Understanding the respiratory system and chronic respiratory diseases -- Diagnosis and treatment of pulmonary disease -- Environmental, social, and genetic influences on chronic respiratory disease -- Psychological evaluation of pulmonary patients -- Adjustment -- Anxiety -- Depression -- Tobacco and other inhaled substances -- Family challenges and social support -- End of life -- Ethics and professional issues -- References -- Index -- About the author -- About the series editor.
Book Synopsis What Is the Evidence on the Role of the Arts in Improving Health and Well-Being by : Daisy Fancourt
Download or read book What Is the Evidence on the Role of the Arts in Improving Health and Well-Being written by Daisy Fancourt and published by . This book was released on 2019-06 with total page 142 pages. Available in PDF, EPUB and Kindle. Book excerpt: Over the past two decades, there has been a major increase in research into the effects of the arts on health and well-being, alongside developments in practice and policy activities in different countries across the WHO European Region and further afield. This report synthesizes the global evidence on the role of the arts in improving health and well-being, with a specific focus on the WHO European Region. Results from over 3000 studies identified a major role for the arts in the prevention of ill health, promotion of health, and management and treatment of illness across the lifespan. The reviewed evidence included study designs such as uncontrolled pilot studies, case studies, small-scale cross-sectional surveys, nationally representative longitudinal cohort studies, community-wide ethnographies and randomized controlled trials from diverse disciplines. The beneficial impact of the arts could be furthered through acknowledging and acting on the growing evidence base; promoting arts engagement at the individual, local and national levels; and supporting cross-sectoral collaboration.
Book Synopsis Cystic fibrosis by : National Institutes of Health (U.S.)
Download or read book Cystic fibrosis written by National Institutes of Health (U.S.) and published by . This book was released on 1978 with total page 522 pages. Available in PDF, EPUB and Kindle. Book excerpt:
