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Author :
Publisher :
ISBN 13 : 9789491602498
Total Pages : 157 pages
Book Rating : 4.6/5 (24 download)
Download or read book Self-management Supporting Rehabilitation in Head and Neck Cancer Patients written by and published by . This book was released on 2016 with total page 157 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Anne Söderlund Schaller
Publisher : Linköping University Electronic Press
ISBN 13 : 9176853314
Total Pages : 102 pages
Book Rating : 4.1/5 (768 download)
Download or read book Impact of Pain and Evaluation of Education and Self-Care in Patients with Head and Neck Cancer written by Anne Söderlund Schaller and published by Linköping University Electronic Press. This book was released on 2018-04-13 with total page 102 pages. Available in PDF, EPUB and Kindle. Book excerpt: It is not unusual for patients with head and neck cancer (HNC) to suffer from both tumor and treatment-related pain that is difficult to alleviate despite individualized pharmacological treatment. The presence of concomitant various dimensions of pain in patients during the often difficult period following radiotherapy (RT) has not been elucidated. Several aspects concerning the importance of relatives for HNC patients have been addressed. However, little attention has been given to how relatives perceive patients with HNC pain and it is important to further elucidate this sparsely studied topic. Knowledge about health-related quality of life (HR-QoL) in this patient group during early RT is limited and needs to be assessed in relation to diagnosis and treatment. Self-care (SC) refers to what patients do on their own to achieve, maintain, and promote optimal health and may help reduce pain for several pain conditions. The impact of patient education and SC on pain and other common HNC symptoms need further clarification. The aims of this thesis were: to describe experiences and perceptions of pain in patients with HNC shortly after RTto describe how relatives perceived the patient’s situation, especially concerning pain, and how they experienced their own situationto identify factors that impact HR-QoL during early RTto develop effective pain management strategies, maintain activities of daily living, and promote HR-QoL in patients with HNC undergoing RT using patient education and SC instruction. In paper I patients with HNC described existential pain – expressed as fear of death, meaninglessness and guilt – already during and shortly after RT. Physical pain, psychological distress and social withdrawal played a significant role. Patients with HNC who were treated with RT should also proactively be offered treatment for the various dimensions of pain. In paper II relatives described their mental stress in response to a challenging situation that required their active support to help ease the patient's difficult condition. The interviews with relatives also revealed a lack of personal knowledge and frustration over the inability to participate in patient care, as well as inadequate support from the healthcare system. Early interventions from the healthcare system on behalf of the relatives may be necessary to meet these needs. In Paper III regression models revealed that pain intensity and symptoms of depression adversely affected HR-QoL in patients with HNC during early RT. Customized prehabilitation programs aimed at preventing pain and symptoms of depression could help preserve good HR-QoL. Paper IV assessed individual patient education and SC initiatives that resulted in a tendency for lower pain intensity during a portion of RT. One way to potentially enhance the benefits of education and SC could be to improve for example patient motivation and self-efficacy, as well as to optimize supportive efforts from caregivers. In conclusion, by identifying factors that can impact HR-QoL and evaluating the effect of patient education and SC, this thesis contributes to knowledge on perceived pain and the patient’s situation during and shortly after RT in patients with HNC and their relatives. This thesis points to the need for evaluation and further development of patient education and effective SC strategies for pain in patients with HNC undergoing RT, as well as for development and evaluation of support strategies for patients with pain and their families during and after RT.
Author : Elizabeth C. Ward
Publisher : Plural Publishing
ISBN 13 : 1635504627
Total Pages : 675 pages
Book Rating : 4.6/5 (355 download)
Download or read book Head and Neck Cancer written by Elizabeth C. Ward and published by Plural Publishing. This book was released on 2024-06-18 with total page 675 pages. Available in PDF, EPUB and Kindle. Book excerpt: The past decade has seen the continued advancement of head and neck cancer care. This third edition of Head and Neck Cancer: Treatment, Rehabilitation, and Outcomes, continues in the tradition of the prior editions, providing the reader with the most up-to-date evidence relating to head and neck cancer, its management, and its rehabilitation from a multidisciplinary perspective. As in the prior editions, the content is enriched by the contributions of a large team of internationally recognized experts from both the medical and allied health communities. Beginning with an update of what is known about cancer of the head and neck, the reader is then introduced to the multidisciplinary team and the importance of the multidisciplinary approach in head and neck cancer management. Chapters then cover nonsurgical and surgical management, and the communication and swallowing management of cancers of the oral/oropharynx and larynx/hypopharynx. Other chapters guide the reader through current best practice management of lymphedema, tracheostomy, nutrition, neuromuscular disorders, as well as psychological supports and survivorship. A further six chapters are dedicated specifically to supporting the laryngectomy patient population and their complex rehabilitation needs. The final chapter presents the ever-expanding world of technology and its use in the management and delivery of head and neck cancer care. Together these chapters provide the core theoretical and clinical knowledge for healthcare professionals managing patients with head and neck cancer. The content has also been presented at a level suitable for both undergraduate and graduate students. New to the Third Edition * All chapters have been revised and updated with relevant research and clinical insights to reflect the current state of practice. * New chapters have been created to cover in more depth specific content relating to neuromuscular management, lymphedema management, and psychological supports. * New collaborators have joined the author groups bringing new insights and learnings. * All chapters are illuminated with clinical images, illustrations, and/or case studies.
Author : Philip C. Doyle
Publisher : Springer
ISBN 13 : 3030047024
Total Pages : 513 pages
Book Rating : 4.0/5 (3 download)
Download or read book Clinical Care and Rehabilitation in Head and Neck Cancer written by Philip C. Doyle and published by Springer. This book was released on 2019-03-21 with total page 513 pages. Available in PDF, EPUB and Kindle. Book excerpt: Malignancies involving structures of the head and neck frequently impact the most fundamental aspects of human existence, namely, those functions related to voice and speech production, eating, and swallowing. Abnormalities in voice production, and in some instances its complete loss, are common following treatment for laryngeal (voice box) cancer. Similarly, speech, eating, and swallowing may be dramatically disrupted in those where oral structures (e.g., the tongue, jaw, hard palate, pharynx, etc.) are surgically ablated to eliminate the cancer. Consequently, the range and degree of deficits that may be experienced secondary to the treatment of head and neck cancer (HNCa) are often substantial. This need is further reinforced by the Centers for Disease Control and Prevention who have estimated that the number of individuals who will be newly diagnosed with HNCa will now double every 10 years. This estimate becomes even more critical given that an increasing number of those who are newly diagnosed will be younger and will experience the possibility of long-term survival post-treatment. Contemporary rehabilitation efforts for those treated for HNCa increasingly demand that clinicians actively consider and address multiple issues. Beyond the obvious concerns specific to any type of cancer (i.e., the desire for curative treatment), clinical efforts that address physical, psychological, communicative, and social consequences secondary to HNCa treatment are essential components of all effective rehabilitation programs. Comprehensive HNCa rehabilitation ultimately seeks to restore multiple areas of functioning in the context of the disabling effects of treatment. In this regard, rehabilitation often focuses on restoration of function while reducing the impact of residual treatment-related deficits on the individual’s overall functioning, well-being, quality of life (QOL), and ultimately, optimize survivorship. Regardless of the treatment method(s) pursued for HNCa (e.g., surgery, radiotherapy, chemoradiation, or combined methods), additional problems beyond those associated with voice, speech, eating and swallowing frequently exist. For example, post-treatment changes in areas such as breathing, maintaining nutrition, limitations in physical capacity because surgical reconstruction such as deficits in shoulder functioning, concerns specific to cosmetic alterations and associated disfigurement, and deficits in body image are common. Those treated for HNCa also may experience significant pain, depression, stigma and subsequent social isolation. Concerns of this type have led clinicians and researchers to describe HNCa as the most emotionally traumatic form of cancer. It is, therefore, essential that clinicians charged with the care and rehabilitation of those treated for HNCa actively seek to identify, acknowledge, and systematically address a range of physical, psychological, social, and communication problems. Efforts that systematically consider this range of post-treatment sequelae are seen as critical to any effort directed toward enhanced rehabilitation outcomes. Actively and purposefully addressing post-treatment challenges may increase the likelihood of both short- and long-term rehabilitation success in this challenging clinical population. Current information suggests that successful clinical outcomes for those with HNCa are more likely to be realized when highly structured, yet flexible interdisciplinary programs of care are pursued. Yet contemporary educational resources that focus not only on management of voice, speech, eating, and swallowing disorders, but also address issues such as shoulder dysfunction due to neck dissection, the significant potential for cosmetic alterations can offer a much broader perspective on rehabilitation. Contemporary surgical treatment frequently involves reconstruction with extensive procedures that require donor sites that include both soft tissue from a variety of locations (e.g., forearm, thigh, etc.), as well as bone (e.g., the scapula). Collectively, resources that address these issues and many other concerns and the resultant social implications of HNCa and its treatment can serve to establish a comprehensive framework for clinical care. Consequently, providing a highly specialized and comprehensive educational resource specific to HNCa rehabilitation is currently needed. The proposed edited book is designed to address this void in a single authoritative resource that is also accessible to the clinical readership. Integral to this proposed book is information that guides clinical approaches to HNCa rehabilitation, in addition to offering emphasis on the direct impact of changes in voice, speech, and swallowing and the impact of such losses on outcomes. Finally, while several other published sources currently exist (see attached list), the emphasis of these books is directed either toward the identification and diagnosis of malignant disease, clinical and surgical pathology, associated efforts directed toward biomedical aspects of cancer and its treatment, or those with a focus on a single clinical problem or approach to rehabilitation. Therefore, the content of the proposed multi-chapter text centers on delivering a systematically structured, comprehensive, and clinically-oriented presentation on a range of topics that will provide readers at a variety of levels with a strong, well-integrated, and empirically driven foundation to optimize the clinical care of those with HNCa. The primary audience for this textbook is undergraduate and graduate-level students in Speech-Language Pathology, as well as practitioners, especially hospital-based practitioners, in Speech-Language Pathology; other key audiences include junior and senior level otolaryngology residents and fellows, translational researchers in head and neck cancer, related medical specialists (e.g., radiation oncology), oncology nurses, and potentially other rehabilitation professionals such as occupational therapists, counseling psychologists, social workers, and rehabilitation counselors.
Author : Simon Dunne
Publisher :
ISBN 13 :
Total Pages : pages
Book Rating : 4.:/5 (125 download)
Download or read book Integrating Self-Management Into Daily Life Following Treatment For Head And Neck Cancer written by Simon Dunne and published by . This book was released on 2017 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Introduction: Self-management may help cancer survivors to better deal with challenges to their physical, functional, social, and psychological wellbeing presented by cancer and its treatment. Nonetheless, little is known about how people integrate cancer self-management practices into their daily lives. Objectives: The aim of this study was to describe and characterise the processes through which head and neck cancer (HNC) survivors attempt to integrate self-management into their daily lives following primary treatment.Methods: Using a purposeful critical case sampling method, 27 HNC survivors were identified through four designated cancer centres in Ireland and participated in face-to-face semi-structured interviews. Interviews were audio-recorded, transcribed and analysed using thematic analysis.Results: Six themes which describe HNC survivorsu2019 attempts to integrate self-management into their daily lives following primary treatment were identified: grappling with having to self-manage, trying out self-management strategies, becoming an expert self-manager, struggling to integrate self-management strategies into daily life, avoiding self-management and interpreting self-management.Conclusions: This is the first study to describe HNC survivorsu2019 attempts to integrate self-management into their daily lives following primary treatment. The findings indicate that HNC survivors exhibit highly individualised approaches to self-management and abandon self-management strategies that fail to meet their specific needs. Survivors may also need skills training and structured support to assist their transition between in-patient care and having to self-manage after primary treatment, and/or ongoing support deal with persistent and recurring challenges such as eating difficulties and fear of recurrence.
Author : Adrian Cristian
Publisher : Elsevier Health Sciences
ISBN 13 : 0443118361
Total Pages : 342 pages
Book Rating : 4.4/5 (431 download)
Download or read book Head and Neck Cancer Rehabilitation - E-BOOK written by Adrian Cristian and published by Elsevier Health Sciences. This book was released on 2024-06-20 with total page 342 pages. Available in PDF, EPUB and Kindle. Book excerpt: Edited by cancer rehabilitation specialist Dr. Adrian Cristian, Head and Neck Cancer Rehabilitation provides clinicians with a concise and accessible resource covering the holistic rehabilitation of head and neck cancer patients. This book begins with the epidemiology, genetics and pathophysiology of cancer in this region and moves into clinical assessment and treatment options before providing comprehensive coverage of rehabilitation. Featuring practical information, best practices, and the latest advances and research, this book provides a valuable reference for physical medicine and rehabilitation physicians and residents, as well as occupational therapists, physical therapists, and ENT specialists. Provides a clear understanding of the current medical, surgical and radiation treatments for head and neck cancer. Covers the whole spectrum of head and neck cancer rehabilitation, including the role of physical and occupational therapy, the treatment of anxiety and depression, integrative care, nutritional rehabilitation, and more. Offers a timely and convenient resource written by leading experts in both head and neck cancer and rehabilitation. N/A
Author : Elizabeth C. Ward
Publisher :
ISBN 13 : 9781635506907
Total Pages : 0 pages
Book Rating : 4.5/5 (69 download)
Download or read book Head and Neck Cancer written by Elizabeth C. Ward and published by . This book was released on 2024 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Jennifer Baima
Publisher : Springer Nature
ISBN 13 : 3030444627
Total Pages : 196 pages
Book Rating : 4.0/5 (34 download)
Download or read book Cancer Rehabilitation written by Jennifer Baima and published by Springer Nature. This book was released on 2020-05-23 with total page 196 pages. Available in PDF, EPUB and Kindle. Book excerpt: Finally, a concise pocket guide designed as a quick reference for busy clinicians who seek to improve the care they provide to cancer patients and cancer survivors. It is a comprehensive text formatted for fast access to a wide range of clinical information. This compact compendium is conveniently organized by cancer type for rapid review. It describes the many issues that cancer patients may face throughout the chronologic spectrum of care, starting from cancer diagnosis, to treatment, and survivorship. Each chapter helpfully highlights common impairments and treatment options using succinct tables, helpful illustrations and clinical peals from experts in the field. In addition, each chapter contains a clinical case and questions on the material to enhance understanding. Evidence for exercise treatment, including pertinent exercise precautions, is included, as are innovative research topics and emerging treatments. This includes dedicated chapters covering cancers of the breast; digestive organs; brain, eye, and central nervous system; urinary tract and genital organs; lip, oral cavity, and pharynx; lymphoid, hematopoietic, and related tissues; bone, articular cartilage, and soft tissues; respiratory and intrathoracic organs; skin. Thankfully, advances in cancer care such as chemotherapy, radiation, and surgery mean that more people than ever before are surviving long after their cancer diagnosis. Unfortunately, a large fraction of them live with at least one serious impairment as a consequence of their treatments that seriously impacts their ability to function and quality of life. This concise and essential guide to cancer rehabilitation will help the clinician navigate the care of this often complex population.
Author : Philip C. Doyle
Publisher :
ISBN 13 : 9783030047030
Total Pages : 513 pages
Book Rating : 4.0/5 (47 download)
Download or read book Clinical Care and Rehabilitation in Head and Neck Cancer written by Philip C. Doyle and published by . This book was released on 2019 with total page 513 pages. Available in PDF, EPUB and Kindle. Book excerpt: This text provides a comprehensive grounding in the contemporary rehabilitation, management, and clinical care of patients following treatment of head and neck cancer (HNCa). It provides the diagnostic and clinical information necessary to successfully manage patients with HNCa, and aids clinical health trainees and professionals in identifying, acknowledging, and addressing a wide range of problems that may occur post treatment, such as abnormalities in voice and speech production, eating, and swallowing. In addition, the book explores the physical, psychological, communicative, and social aspects that form essential components of cancer rehabilitation programs that seek to restore multiple areas of functioning which are disrupted secondary to treatment. Post-treatment changes in breathing, nutrition, physical capabilities, disfigurement, mood, and body image are also covered.
Author : Rehan Kazi
Publisher : Byword Books Private Limited
ISBN 13 : 8181930762
Total Pages : 164 pages
Book Rating : 4.1/5 (819 download)
Download or read book Issues in Head and Neck Cancer written by Rehan Kazi and published by Byword Books Private Limited. This book was released on 2012-03-29 with total page 164 pages. Available in PDF, EPUB and Kindle. Book excerpt: Head and neck cancer (HNC) is a rapidly evolving field of medical science. Tremendous progress has been made over the past five decades in revealing the basic molecular biology involved in the disease process, developing and adopting more effective organ-preserving treatment protocols and refining surgical ablative and reconstructive approaches to facilitate functional restoration of patients without compromising survival. We now have a much clearer understanding of the disease, its management and the rehabilitation of patients. But there is still much to be done. This book aims to cover a range of exciting new findings in clinical sciences, basic sciences and allied specialties with an emphasis on their relevance to HNC. This work promises to improve preventive and therapeutic strategies and will hopefully culminate in improved outcomes of HNC. The contributions have been made by established leaders in the field and every effort has been made to address the issue in a comprehensive, yet concise, manner for the benefit of readers. We believe that this book will be of value to established/in-training clinicians, scientists, allied professionals, as well as medical students who have inquisitive minds and wish to further enhance their knowledge of HNC.
Author : Ellie Maghami
Publisher : Springer
ISBN 13 : 3319654217
Total Pages : 286 pages
Book Rating : 4.3/5 (196 download)
Download or read book Multidisciplinary Care of the Head and Neck Cancer Patient written by Ellie Maghami and published by Springer. This book was released on 2018-02-12 with total page 286 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book identifies key treatment challenges and unique care considerations in patients with head and neck cancers, providing a comprehensive guide to patient management that illustrates the critical importance of a multidisciplinary approach in achieving optimal oncological, functional, and survival outcomes. It covers all relevant specialties, including dental and oral medicine, medical oncology, radiation oncology, surgical oncology, and reconstructive surgery. It highlights the vital role played by ancillary head and neck cancer services, such as speech and swallowing therapy, occupational and physical therapy, and nutritional therapy in offering essential physical and psychological support from the time of diagnosis onward. The closing chapters address post-treatment issues, including those relating to survivorship, surveillance, and end-of-life care. Multidisciplinary care is perhaps even more important for patients with head and neck cancers than for other cancer patients, and in addressing all its aspects this book is invaluable for a wide range of practitioners.
Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309134161
Total Pages : 455 pages
Book Rating : 4.3/5 (91 download)
Download or read book Cancer Care for the Whole Patient written by Institute of Medicine and published by National Academies Press. This book was released on 2008-03-19 with total page 455 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cancer care today often provides state-of-the-science biomedical treatment, but fails to address the psychological and social (psychosocial) problems associated with the illness. This failure can compromise the effectiveness of health care and thereby adversely affect the health of cancer patients. Psychological and social problems created or exacerbated by cancer-including depression and other emotional problems; lack of information or skills needed to manage the illness; lack of transportation or other resources; and disruptions in work, school, and family life-cause additional suffering, weaken adherence to prescribed treatments, and threaten patients' return to health. Today, it is not possible to deliver high-quality cancer care without using existing approaches, tools, and resources to address patients' psychosocial health needs. All patients with cancer and their families should expect and receive cancer care that ensures the provision of appropriate psychosocial health services. Cancer Care for the Whole Patient recommends actions that oncology providers, health policy makers, educators, health insurers, health planners, researchers and research sponsors, and consumer advocates should undertake to ensure that this standard is met.
Author : Paul M. Harari
Publisher : Springer
ISBN 13 : 9783540732310
Total Pages : 329 pages
Book Rating : 4.7/5 (323 download)
Download or read book Functional Preservation and Quality of Life in Head and Neck Radiotherapy written by Paul M. Harari and published by Springer. This book was released on 2009-06-05 with total page 329 pages. Available in PDF, EPUB and Kindle. Book excerpt: The emphasis on cancer management in the past was based primarily on control rates from multidisciplinary input in management. There has always been a recognition that one would like to achieve the best result with the least complication, but never has there been any major emphasis on evidence-based outcome studies, nor on functional preservation and quality of life. The authors of this book have dealt very effectively with the various tumor types in head and neck cancer with the experts in the ? eld of management. The contents range from epidemiology and treatment outcome, treatment techniques with the potential impact on the quality of life such as dysphagia, to the various options relative to high technology radiation therapy programs for mana- ment. The potential for improving form and function through surgical care as an integrated part of the program is dealt with very effectively as well as the potentials for chemotherapy and the use of targeted agents have on quality of life issues. The volume also addresses toxicity, quality of life, and techniques for prevention of adverse effects, as well as the potentials for rehabilitation and supportive care. The authors have clearly done an extraordinarily good job in addressing the mul- plicity of problems that impact upon the functional preservation and quality of life in head and neck radiation therapy. Philadelphia Luther W.
Author : Christopher E. Fundakowski
Publisher : Springer Nature
ISBN 13 : 3030278816
Total Pages : 238 pages
Book Rating : 4.0/5 (32 download)
Download or read book Head and Neck Cancer written by Christopher E. Fundakowski and published by Springer Nature. This book was released on 2020-01-28 with total page 238 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume serves to help readers understand and address factors that contribute to the psychological distress and negative self-perception of patients with head and neck cancer to improve their quality of life. It explores many of these issues in depth, such as the trends in diagnosis of head and neck cancer, disfigurement, advances and outcomes associated with minimally invasive surgery, long-term quality of life and functional outcomes, issues related to cancer pain, importance and impact of nutrition, how reconstructive advances effect functional outcomes, the impact of cancer recurrence, and financial consequences of cancer diagnosis and treatment. Head and Neck Cancer: Psychological and Psychosocial Effects will help otolaryngologists, oncologists, surgeons, psychologists and healthcare professionals define the unique issues associated with the HNC patient population, discuss pertinent data, outline key aspects of high quality care in this population, and to draw attention to necessary future investigations and developments.
Author : Philip C. Doyle
Publisher :
ISBN 13 : 9780890799888
Total Pages : 0 pages
Book Rating : 4.7/5 (998 download)
Download or read book Contemporary Considerations in the Treatment and Rehabilitation of Head and Neck Cancer written by Philip C. Doyle and published by . This book was released on 2005 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book, while a new text, has its origins in three earlier editions of a previously published book, Laryngectome Rehabilitation, edited by Robert Keith and Frederic L. Darley. This new version of that book provides a broader vision related to concerns influencing rehabilitation in those with head and neck cancer. Numerous and complex issues regarding voice, speech, and swallowing in those diagnosed with and treated for head and neck cancer are addressed. The chapters of this book provide comprehensive coverage of the changes that individuals experience following treatment for malignancies of the head and neck. Such individuals are challenged physically, physiologically, emotionally, communicatively, and socially. These challenges also affect family members, friends, and co-workers. The inherent multidimensionality and complexity of problems faced by individuals is acknowledged throughout the book. Chapters contained within the book are also included as citations in all chapters in an effort to aid the reader in integrating information from multiple chapters relative to rehabilitation. The book is divided into four distinct sections, Parts I through IV. * Part I includes six chapters that provide a larger, overarching context for multiple and diverse issue that impact the individual treated for head and neck cancer, as well as the manner and comprehensiveness with which care and rehabilitation is provided. * Part II includes eight chapters that address a variety of topics that focus on medical treatment interventions and related topics, as well as the influence of treatment on voice, speech, and swallowing. * Part III is comprised of nine chapters that primarily focus on numerous issues and concerns secondary to medical management of head and neck cancer and the posttreatment process of voice and speech management and rehabilitation. * Part IV concludes the book with six chapters that address essential and critical issues
Author : Anne Söderlund Schaller
Publisher :
ISBN 13 :
Total Pages : pages
Book Rating : 4.:/5 (13 download)
Download or read book Impact of Pain and Evaluation of Education and Self-Care in Patients with Head and Neck Cancer written by Anne Söderlund Schaller and published by . This book was released on 2018 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: It is not unusual for patients with head and neck cancer (HNC) to suffer from both tumor and treatment-related pain that is difficult to alleviate despite individualized pharmacological treatment. The presence of concomitant various dimensions of pain in patients during the often difficult period following radiotherapy (RT) has not been elucidated. Several aspects concerning the importance of relatives for HNC patients have been addressed. However, little attention has been given to how relatives perceive patients with HNC pain and it is important to further elucidate this sparsely studied topic. Knowledge about health-related quality of life (HR-QoL) in this patient group during early RT is limited and needs to be assessed in relation to diagnosis and treatment. Self-care (SC) refers to what patients do on their own to achieve, maintain, and promote optimal health and may help reduce pain for several pain conditions. The impact of patient education and SC on pain and other common HNC symptoms need further clarification. The aims of this thesis were: to describe experiences and perceptions of pain in patients with HNC shortly after RT to describe how relatives perceived the patient’s situation, especially concerning pain, and how they experienced their own situation to identify factors that impact HR-QoL during early RT to develop effective pain management strategies, maintain activities of daily living, and promote HR-QoL in patients with HNC undergoing RT using patient education and SC instruction. In paper I patients with HNC described existential pain – expressed as fear of death, meaninglessness and guilt – already during and shortly after RT. Physical pain, psychological distress and social withdrawal played a significant role. Patients with HNC who were treated with RT should also proactively be offered treatment for the various dimensions of pain. In paper II relatives described their mental stress in response to a challenging situation that required their active support to help ease the patient's difficult condition. The interviews with relatives also revealed a lack of personal knowledge and frustration over the inability to participate in patient care, as well as inadequate support from the healthcare system. Early interventions from the healthcare system on behalf of the relatives may be necessary to meet these needs. In Paper III regression models revealed that pain intensity and symptoms of depression adversely affected HR-QoL in patients with HNC during early RT. Customized prehabilitation programs aimed at preventing pain and symptoms of depression could help preserve good HR-QoL. Paper IV assessed individual patient education and SC initiatives that resulted in a tendency for lower pain intensity during a portion of RT. One way to potentially enhance the benefits of education and SC could be to improve for example patient motivation and self-efficacy, as well as to optimize supportive efforts from caregivers. In conclusion, by identifying factors that can impact HR-QoL and evaluating the effect of patient education and SC, this thesis contributes to knowledge on perceived pain and the patient’s situation during and shortly after RT in patients with HNC and their relatives. This thesis points to the need for evaluation and further development of patient education and effective SC strategies for pain in patients with HNC undergoing RT, as well as for development and evaluation of support strategies for patients with pain and their families during and after RT.
Author : John Watkinson
Publisher : CRC Press
ISBN 13 : 1444128752
Total Pages : 1181 pages
Book Rating : 4.4/5 (441 download)
Download or read book Stell & Maran's Textbook of Head and Neck Surgery and Oncology written by John Watkinson and published by CRC Press. This book was released on 2011-12-30 with total page 1181 pages. Available in PDF, EPUB and Kindle. Book excerpt: First written by Philip Stell and Arnold Maran in 1972, Stell & Maran's Textbook of Head and Neck Surgery and Oncology has been revised in both content and approach over the years to reflect the enormous progress made in the area. Now in its fifth edition, the book remains a key textbook for trainees in otolaryngology and head and neck surgery.
