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Author :
Publisher :
ISBN 13 :
Total Pages : 0 pages
Book Rating : 4.:/5 (137 download)
Download or read book Research Into the Cost Considerations of Data Sharing written by and published by . This book was released on 2022 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309316324
Total Pages : 236 pages
Book Rating : 4.3/5 (93 download)
Download or read book Sharing Clinical Trial Data written by Institute of Medicine and published by National Academies Press. This book was released on 2015-04-20 with total page 236 pages. Available in PDF, EPUB and Kindle. Book excerpt: Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine trust in clinical trials or otherwise harm public health. Sharing Clinical Trial Data presents activities and strategies for the responsible sharing of clinical trial data. With the goal of increasing scientific knowledge to lead to better therapies for patients, this book identifies guiding principles and makes recommendations to maximize the benefits and minimize risks. This report offers guidance on the types of clinical trial data available at different points in the process, the points in the process at which each type of data should be shared, methods for sharing data, what groups should have access to data, and future knowledge and infrastructure needs. Responsible sharing of clinical trial data will allow other investigators to replicate published findings and carry out additional analyses, strengthen the evidence base for regulatory and clinical decisions, and increase the scientific knowledge gained from investments by the funders of clinical trials. The recommendations of Sharing Clinical Trial Data will be useful both now and well into the future as improved sharing of data leads to a stronger evidence base for treatment. This book will be of interest to stakeholders across the spectrum of research-from funders, to researchers, to journals, to physicians, and ultimately, to patients.
Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 030937085X
Total Pages : 115 pages
Book Rating : 4.3/5 (93 download)
Download or read book Principles and Obstacles for Sharing Data from Environmental Health Research written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-05-29 with total page 115 pages. Available in PDF, EPUB and Kindle. Book excerpt: On March 19, 2014, the National Academies of Sciences, Engineering, and Medicine held a workshop on the topic of the sharing of data from environmental health research. Experts in the field of environmental health agree that there are benefits to sharing research data, but questions remain regarding how to effectively make these data available. The sharing of data derived from human subjects-making them both transparent and accessible to others-raises a host of ethical, scientific, and process questions that are not always present in other areas of science, such as physics, geology, or chemistry. The workshop participants explored key concerns, principles, and obstacles to the responsible sharing of data used in support of environmental health research and policy making while focusing on protecting the privacy of human subjects and addressing the concerns of the research community. Principles and Obstacles for Sharing Data from Environmental Health Research summarizes the presentations and discussions from the workshop.
Author : Shawn Cole
Publisher : Abdul Latif Jameel Poverty Action Lab
ISBN 13 : 9781736021606
Total Pages : 618 pages
Book Rating : 4.0/5 (216 download)
Download or read book Handbook on Using Administrative Data for Research and Evidence-based Policy written by Shawn Cole and published by Abdul Latif Jameel Poverty Action Lab. This book was released on 2021 with total page 618 pages. Available in PDF, EPUB and Kindle. Book excerpt: This Handbook intends to inform Data Providers and researchers on how to provide privacy-protected access to, handle, and analyze administrative data, and to link them with existing resources, such as a database of data use agreements (DUA) and templates. Available publicly, the Handbook will provide guidance on data access requirements and procedures, data privacy, data security, property rights, regulations for public data use, data architecture, data use and storage, cost structure and recovery, ethics and privacy-protection, making data accessible for research, and dissemination for restricted access use. The knowledge base will serve as a resource for all researchers looking to work with administrative data and for Data Providers looking to make such data available.
Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309268745
Total Pages : 157 pages
Book Rating : 4.3/5 (92 download)
Download or read book Sharing Clinical Research Data written by Institute of Medicine and published by National Academies Press. This book was released on 2013-06-07 with total page 157 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pharmaceutical companies, academic researchers, and government agencies such as the Food and Drug Administration and the National Institutes of Health all possess large quantities of clinical research data. If these data were shared more widely within and across sectors, the resulting research advances derived from data pooling and analysis could improve public health, enhance patient safety, and spur drug development. Data sharing can also increase public trust in clinical trials and conclusions derived from them by lending transparency to the clinical research process. Much of this information, however, is never shared. Retention of clinical research data by investigators and within organizations may represent lost opportunities in biomedical research. Despite the potential benefits that could be accrued from pooling and analysis of shared data, barriers to data sharing faced by researchers in industry include concerns about data mining, erroneous secondary analyses of data, and unwarranted litigation, as well as a desire to protect confidential commercial information. Academic partners face significant cultural barriers to sharing data and participating in longer term collaborative efforts that stem from a desire to protect intellectual autonomy and a career advancement system built on priority of publication and citation requirements. Some barriers, like the need to protect patient privacy, pre- sent challenges for both sectors. Looking ahead, there are also a number of technical challenges to be faced in analyzing potentially large and heterogeneous datasets. This public workshop focused on strategies to facilitate sharing of clinical research data in order to advance scientific knowledge and public health. While the workshop focused on sharing of data from preplanned interventional studies of human subjects, models and projects involving sharing of other clinical data types were considered to the extent that they provided lessons learned and best practices. The workshop objectives were to examine the benefits of sharing of clinical research data from all sectors and among these sectors, including, for example: benefits to the research and development enterprise and benefits to the analysis of safety and efficacy. Sharing Clinical Research Data: Workshop Summary identifies barriers and challenges to sharing clinical research data, explores strategies to address these barriers and challenges, including identifying priority actions and "low-hanging fruit" opportunities, and discusses strategies for using these potentially large datasets to facilitate scientific and public health advances.
Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 030967915X
Total Pages : 163 pages
Book Rating : 4.3/5 (96 download)
Download or read book Reflections on Sharing Clinical Trial Data written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2020-11-20 with total page 163 pages. Available in PDF, EPUB and Kindle. Book excerpt: On November 18 and 19, 2019, the National Academies of Sciences, Engineering, and Medicine hosted a public workshop in Washington, DC, titled Sharing Clinical Trial Data: Challenges and a Way Forward. The workshop followed the release of the 2015 Institute of Medicine (IOM) consensus study report Sharing Clinical Trial Data: Maximizing Benefits, Minimizing Risk, and was designed to examine the current state of clinical trial data sharing and reuse and to consider ways in which policy, technology, incentives, and governance could be leveraged to further encourage and enhance data sharing. This publication summarizes the presentations and discussions from the workshop.
Author : Feng Liu
Publisher : Springer Nature
ISBN 13 : 3031430751
Total Pages : 484 pages
Book Rating : 4.0/5 (314 download)
Download or read book Brain Informatics written by Feng Liu and published by Springer Nature. This book was released on 2023-09-12 with total page 484 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book constitutes the proceedings of the 16th International Conference on Brain Informatics, BI 2023, which was held in Hoboken, NJ, USA, during August 1–3, 2023. The 40 full papers presented in this book were carefully reviewed and selected from 101 submissions. The papers are divided into the following topical sections: cognitive and computational foundations of brain science; investigations of human Information processing systems; brain big data analytics, curation and management; informatics paradigms for brain and mental health research; brain-machine intelligence and brain-inspired computing; and the 5th international workshop on cognitive neuroscience of thinking and reasoning.
Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309672759
Total Pages : 93 pages
Book Rating : 4.3/5 (96 download)
Download or read book Planning for Long-Term Use of Biomedical Data written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2020-07-09 with total page 93 pages. Available in PDF, EPUB and Kindle. Book excerpt: Biomedical research data sets are becoming larger and more complex, and computing capabilities are expanding to enable transformative scientific results. The National Institutes of Health's (NIH's) National Library of Medicine (NLM) has the unique role of ensuring that biomedical research data are findable, accessible, interoperable, and reusable in an ethical manner. Tools that forecast the costs of long-term data preservation could be useful as the cost to curate and manage these data in meaningful ways continues to increase, as could stewardship to assess and maintain data that have future value. The National Academies of Sciences, Engineering, and Medicine convened a workshop on July 11-12, 2019 to gather insight and information in order to develop and demonstrate a framework for forecasting long-term costs for preserving, archiving, and accessing biomedical data. Presenters and attendees discussed tools and practices that NLM could use to help researchers and funders better integrate risk management practices and considerations into data preservation, archiving, and accessing decisions; methods to encourage NIH-funded researchers to consider, update, and track lifetime data; and burdens on the academic researchers and industry staff to implement these tools, methods, and practices. This publication summarizes the presentations and discussion of the workshop.
Author : Munir, Kashif
Publisher : IGI Global
ISBN 13 : 1466683880
Total Pages : 409 pages
Book Rating : 4.4/5 (666 download)
Download or read book Handbook of Research on Security Considerations in Cloud Computing written by Munir, Kashif and published by IGI Global. This book was released on 2015-07-28 with total page 409 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cloud computing has quickly become the next big step in security development for companies and institutions all over the world. With the technology changing so rapidly, it is important that businesses carefully consider the available advancements and opportunities before implementing cloud computing in their organizations. The Handbook of Research on Security Considerations in Cloud Computing brings together discussion on current approaches to cloud-based technologies and assesses the possibilities for future advancements in this field. Highlighting the need for consumers to understand the unique nature of cloud-delivered security and to evaluate the different aspects of this service to verify if it will meet their needs, this book is an essential reference source for researchers, scholars, postgraduate students, and developers of cloud security systems.
Author :
Publisher :
ISBN 13 :
Total Pages : 1562 pages
Book Rating : 4.3/5 (91 download)
Download or read book NBS Special Publication written by and published by . This book was released on 1973 with total page 1562 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : John D. Day
Publisher :
ISBN 13 :
Total Pages : 41 pages
Book Rating : 4.:/5 (227 download)
Download or read book Research in Network Data Management and Resource Sharing written by John D. Day and published by . This book was released on 1975 with total page 41 pages. Available in PDF, EPUB and Kindle. Book excerpt: A model is developed to study the costs of storing data at a remote site in a network. The model is basically that of a storage hierarchy in which data is stored at a remote site when inactive and staged to a local, rapid-access device for use. (Author).
Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309168503
Total Pages : 240 pages
Book Rating : 4.3/5 (91 download)
Download or read book Sharing Publication-Related Data and Materials written by National Research Council and published by National Academies Press. This book was released on 2003-04-17 with total page 240 pages. Available in PDF, EPUB and Kindle. Book excerpt: Biologists communicate to the research community and document their scientific accomplishments by publishing in scholarly journals. This report explores the responsibilities of authors to share data, software, and materials related to their publications. In addition to describing the principles that support community standards for sharing different kinds of data and materials, the report makes recommendations for ways to facilitate sharing in the future.
Author : Elisabetta Vaudano
Publisher : Frontiers Media SA
ISBN 13 : 2832538703
Total Pages : 123 pages
Book Rating : 4.8/5 (325 download)
Download or read book Impacts of Public-Private Collaborative Research on Alzheimer's Disease: The Case of the Innovative Medicines Initiative written by Elisabetta Vaudano and published by Frontiers Media SA. This book was released on 2023-11-08 with total page 123 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Victoria Stodden
Publisher : CRC Press
ISBN 13 : 131536039X
Total Pages : 450 pages
Book Rating : 4.3/5 (153 download)
Download or read book Implementing Reproducible Research written by Victoria Stodden and published by CRC Press. This book was released on 2018-12-14 with total page 450 pages. Available in PDF, EPUB and Kindle. Book excerpt: In computational science, reproducibility requires that researchers make code and data available to others so that the data can be analyzed in a similar manner as in the original publication. Code must be available to be distributed, data must be accessible in a readable format, and a platform must be available for widely distributing the data and code. In addition, both data and code need to be licensed permissively enough so that others can reproduce the work without a substantial legal burden. Implementing Reproducible Research covers many of the elements necessary for conducting and distributing reproducible research. It explains how to accurately reproduce a scientific result. Divided into three parts, the book discusses the tools, practices, and dissemination platforms for ensuring reproducibility in computational science. It describes: Computational tools, such as Sweave, knitr, VisTrails, Sumatra, CDE, and the Declaratron system Open source practices, good programming practices, trends in open science, and the role of cloud computing in reproducible research Software and methodological platforms, including open source software packages, RunMyCode platform, and open access journals Each part presents contributions from leaders who have developed software and other products that have advanced the field. Supplementary material is available at www.ImplementingRR.org.
Author : Jordan H. Grafman
Publisher : Elsevier
ISBN 13 : 0444635343
Total Pages : 389 pages
Book Rating : 4.4/5 (446 download)
Download or read book Traumatic Brain Injury, Part II written by Jordan H. Grafman and published by Elsevier. This book was released on 2015-02-19 with total page 389 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Handbook of Clinical Neurology volumes on Traumatic Brain Injury (TBI) provide the reader with an updated review of emerging approaches to TBI research, clinical management and patient rehabilitation. Chapters in Part II offer coverage of clinical sequelae and long-term outcome, brain plasticity and long-term risks, and clinical trials. Contemporary investigations on blast injury and chronic traumatic encephalopathy are presented, making this state-of-the-art volume a must have for clinicians and researchers concerned with the clinical management, or investigation, of TBI. Internationally renowned scientists describe cutting edge research on the neurobiological response to traumatic brain injury, including complications to movement, mood, cognition and more Explores cellular/molecular and genetic factors contributing to plasticity Presents up-to-date expert recommendation for clinical trials and issues related to effective rehabilitation New findings are included on the long-term effects of traumatic brain injury that may impact aging and lead to dementia
Author : Mr.Yan Carriere-Swallow
Publisher : International Monetary Fund
ISBN 13 : 1513511432
Total Pages : 50 pages
Book Rating : 4.5/5 (135 download)
Download or read book The Economics and Implications of Data written by Mr.Yan Carriere-Swallow and published by International Monetary Fund. This book was released on 2019-09-23 with total page 50 pages. Available in PDF, EPUB and Kindle. Book excerpt: This SPR Departmental Paper will provide policymakers with a framework for studying changes to national data policy frameworks.
Author : Inge Graef
Publisher : Kluwer Law International B.V.
ISBN 13 : 9041183256
Total Pages : 442 pages
Book Rating : 4.0/5 (411 download)
Download or read book EU Competition Law, Data Protection and Online Platforms: Data as Essential Facility written by Inge Graef and published by Kluwer Law International B.V.. This book was released on 2016-10-17 with total page 442 pages. Available in PDF, EPUB and Kindle. Book excerpt: All are agreed that the digital economy contributes to a dynamic evolution of markets and competition. Nonetheless, concerns are increasingly raised about the market dominance of a few key players. Because these companies hold the power to drive rivals out of business, regulators have begun to seek scope for competition enforcement in cases where companies claim that withholding data is needed to satisfy customers and cut costs. This book is the first focus on how competition law enforcement tools can be applied to refusals of dominant firms to give access data on online platforms such as search engines, social networks, and e-commerce platforms – commonly referred to as the ‘gatekeepers’ of the Internet. The question arises whether the denial of a dominant firm to grant competitors access to its data could constitute a ‘refusal to deal’ and lead to competition law liability under the so-called ‘essential facilities doctrine', according to which firms need access to shared knowledge in order to be able to compete. A possible duty to share data with rivals also brings to the forefront the interaction of competition law with data protection legislation considering that the required information may include personal data of individuals. Building on the refusal to deal concept, and using a multidisciplinary approach, the analysis covers such issues and topics as the following: – data portability; – interoperability; – data as a competitive advantage or entry barrier in digital markets; – market definition and dominance with respect to data; – disruptive versus sustaining innovation; – role of intellectual property regimes; – economic trade-off in essential facilities cases; – relationship of competition enforcement with data protection law and – data-related competition concerns in merger cases. The author draws on a wealth of relevant material, including EU and US decision-making practice, case law, and policy documents, as well as economic and empirical literature on the link between competition and innovation. The book concludes with a proposed framework for the application of the essential facilities doctrine to potential forms of abuse of dominance relating to data. In addition, it makes suggestions as to how data protection interests can be integrated into competition policy. An invaluable contribution to ongoing academic and policy discussions about how data-related competition concerns should be addressed under competition law, the analysis clearly demonstrates how existing competition tools for market definition and assessment of dominance can be applied to online platforms. It will be of immeasurable value to the many jurists, business persons, and academics concerned with this very timely subject.
