Trust and Confidence at the Interfaces of the Life Sciences and Society

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Publisher : National Academies Press
ISBN 13 : 0309377951
Total Pages : 66 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Trust and Confidence at the Interfaces of the Life Sciences and Society by : National Academies of Sciences, Engineering, and Medicine

Download or read book Trust and Confidence at the Interfaces of the Life Sciences and Society written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2015-09-23 with total page 66 pages. Available in PDF, EPUB and Kindle. Book excerpt: Does the public trust science? Scientists? Scientific organizations? What roles do trust and the lack of trust play in public debates about how science can be used to address such societal concerns as childhood vaccination, cancer screening, and a warming planet? What could happen if social trust in science or scientists faded? These types of questions led the Roundtable on Public Interfaces of the Life Sciences of the National Academies of Sciences, Engineering, and Medicine to convene a 2-day workshop on May 5-6, 2015 on public trust in science. This report explores empirical evidence on public opinion and attitudes toward life sciences as they relate to societal issues, whether and how contentious debate about select life science topics mediates trust, and the roles that scientists, business, media, community groups, and other stakeholders play in creating and maintaining public confidence in life sciences. Does the Public Trust Science? Trust and Confidence at the Interfaces of the Life Sciences and Society highlights research on the elements of trust and how to build, mend, or maintain trust; and examine best practices in the context of scientist engagement with lay audiences around social issues.

Conflict of Interest in Medical Research, Education, and Practice

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Publisher : National Academies Press
ISBN 13 : 0309145449
Total Pages : 436 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Conflict of Interest in Medical Research, Education, and Practice by : Institute of Medicine

Download or read book Conflict of Interest in Medical Research, Education, and Practice written by Institute of Medicine and published by National Academies Press. This book was released on 2009-09-16 with total page 436 pages. Available in PDF, EPUB and Kindle. Book excerpt: Collaborations of physicians and researchers with industry can provide valuable benefits to society, particularly in the translation of basic scientific discoveries to new therapies and products. Recent reports and news stories have, however, documented disturbing examples of relationships and practices that put at risk the integrity of medical research, the objectivity of professional education, the quality of patient care, the soundness of clinical practice guidelines, and the public's trust in medicine. Conflict of Interest in Medical Research, Education, and Practice provides a comprehensive look at conflict of interest in medicine. It offers principles to inform the design of policies to identify, limit, and manage conflicts of interest without damaging constructive collaboration with industry. It calls for both short-term actions and long-term commitments by institutions and individuals, including leaders of academic medical centers, professional societies, patient advocacy groups, government agencies, and drug, device, and pharmaceutical companies. Failure of the medical community to take convincing action on conflicts of interest invites additional legislative or regulatory measures that may be overly broad or unduly burdensome. Conflict of Interest in Medical Research, Education, and Practice makes several recommendations for strengthening conflict of interest policies and curbing relationships that create risks with little benefit. The book will serve as an invaluable resource for individuals and organizations committed to high ethical standards in all realms of medicine.

Public Trust in Medical Research?

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Publisher : Radcliffe Publishing
ISBN 13 : 1846191793
Total Pages : 168 pages
Book Rating : 4.8/5 (461 download)

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Book Synopsis Public Trust in Medical Research? by : Philip Cheung

Download or read book Public Trust in Medical Research? written by Philip Cheung and published by Radcliffe Publishing. This book was released on 2007 with total page 168 pages. Available in PDF, EPUB and Kindle. Book excerpt: It has been claimed by fertility experts that embryos can be screened for 6,000 diseases, thereby the risk of x-linked diseases can be minimised by 'cherry-picking' male embryos that do not carry the abnormal gene. If medical scientists continue to strive for cures, genetic aberrance in human could be a phenomenon of the past...This challenging book explores issues of professional integrity and ethics underpinning medical research. It includes real-life case studies where public trust in medical research has been misplaced and encourages medical professionals to adhere to professional codes of conduct and be informed about their decision making process. It is vital reading for undergraduate and postgraduate students of medicine, law, sociology and social policy, philosophy, health related research and ethics. Practising researchers in medicine and the pharmaceutical industry, and their managers will find it invaluable. The text provides motivation for academics and educators with an interest in research and governance. Healthcare policy makers and shapers, patient rights groups, campaigners and the general media will find the information enlightening. "Over the last four decades, medicine has given hope to many people and saved many lives as a result of the ability of the physicians and surgeons to develop new treatments and innovative surgical techniques. While we can celebrate the success of medical science, we should also critically examine some of these developments against principles and in the light of public opinion." - Philip Cheung.

The Price We Pay

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Publisher : Bloomsbury Publishing USA
ISBN 13 : 1635574129
Total Pages : 305 pages
Book Rating : 4.6/5 (355 download)

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Book Synopsis The Price We Pay by : Marty Makary

Download or read book The Price We Pay written by Marty Makary and published by Bloomsbury Publishing USA. This book was released on 2019-09-10 with total page 305 pages. Available in PDF, EPUB and Kindle. Book excerpt: New York Times bestseller Business Book of the Year--Association of Business Journalists From the New York Times bestselling author comes an eye-opening, urgent look at America's broken health care system--and the people who are saving it--now with a new Afterword by the author. "A must-read for every American." --Steve Forbes, editor-in-chief, FORBES One in five Americans now has medical debt in collections and rising health care costs today threaten every small business in America. Dr. Makary, one of the nation's leading health care experts, travels across America and details why health care has become a bubble. Drawing from on-the-ground stories, his research, and his own experience, The Price We Pay paints a vivid picture of the business of medicine and its elusive money games in need of a serious shake-up. Dr. Makary shows how so much of health care spending goes to things that have nothing to do with health and what you can do about it. Dr. Makary challenges the medical establishment to remember medicine's noble heritage of caring for people when they are vulnerable. The Price We Pay offers a road map for everyday Americans and business leaders to get a better deal on their health care, and profiles the disruptors who are innovating medical care. The movement to restore medicine to its mission, Makary argues, is alive and well--a mission that can rebuild the public trust and save our country from the crushing cost of health care.

Beyond the HIPAA Privacy Rule

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Publisher : National Academies Press
ISBN 13 : 0309124999
Total Pages : 334 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Beyond the HIPAA Privacy Rule by : Institute of Medicine

Download or read book Beyond the HIPAA Privacy Rule written by Institute of Medicine and published by National Academies Press. This book was released on 2009-03-24 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.

Sharing Clinical Trial Data

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Publisher : National Academies Press
ISBN 13 : 0309316324
Total Pages : 304 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Sharing Clinical Trial Data by : Institute of Medicine

Download or read book Sharing Clinical Trial Data written by Institute of Medicine and published by National Academies Press. This book was released on 2015-04-20 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine trust in clinical trials or otherwise harm public health. Sharing Clinical Trial Data presents activities and strategies for the responsible sharing of clinical trial data. With the goal of increasing scientific knowledge to lead to better therapies for patients, this book identifies guiding principles and makes recommendations to maximize the benefits and minimize risks. This report offers guidance on the types of clinical trial data available at different points in the process, the points in the process at which each type of data should be shared, methods for sharing data, what groups should have access to data, and future knowledge and infrastructure needs. Responsible sharing of clinical trial data will allow other investigators to replicate published findings and carry out additional analyses, strengthen the evidence base for regulatory and clinical decisions, and increase the scientific knowledge gained from investments by the funders of clinical trials. The recommendations of Sharing Clinical Trial Data will be useful both now and well into the future as improved sharing of data leads to a stronger evidence base for treatment. This book will be of interest to stakeholders across the spectrum of research--from funders, to researchers, to journals, to physicians, and ultimately, to patients.

Examining Trust in Healthcare

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Publisher : Bloomsbury Publishing
ISBN 13 : 1350310832
Total Pages : 384 pages
Book Rating : 4.3/5 (53 download)

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Book Synopsis Examining Trust in Healthcare by : David Pilgrim

Download or read book Examining Trust in Healthcare written by David Pilgrim and published by Bloomsbury Publishing. This book was released on 2010-11-03 with total page 384 pages. Available in PDF, EPUB and Kindle. Book excerpt: On the part of the patient, healthcare demands unconditional trust in the professional. But what is the nature of this trust, and to what extent is it justified? How significant is the fallout when it is abused? Incorporating sociological, psychological and philosophical approaches, this book examines notions of trust in the self, others and systems in the field of healthcare. The text explores: - Rational and emotional aspects of trust power balances between the patient and healthcare professional - Historical crises of trust in healthcare, considering the impacts and - The lessons learned means of strengthening public trust in the healthcare system and its workforce - Distinctive in its breadth and coverage, Examining Trust in Healthcare - Provides a multidisciplinary perspective of a key element of patient care. This makes the book fundamental reading for students, academics and professionals across all branches of healthcare, as well as an important resource for those with professional and academic interests in the psychology and sociology of health.

Betrayal of Trust

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Publisher : Hachette Books
ISBN 13 : 1401303862
Total Pages : 1294 pages
Book Rating : 4.4/5 (13 download)

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Book Synopsis Betrayal of Trust by : Laurie Garrett

Download or read book Betrayal of Trust written by Laurie Garrett and published by Hachette Books. This book was released on 2011-05-10 with total page 1294 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this "meticulously researched" account (New York Times Book Review), a Pulitzer Prize-winning author examines the dangers of a failing public health system unequipped to handle large-scale global risks like a coronavirus pandemic. The New York Times bestselling author of The Coming Plague, Laurie Garrett takes on perhaps the most crucial global issue of our time in this eye-opening book. She asks: is our collective health in a state of decline? If so, how dire is this crisis and has the public health system itself contributed to it? Using riveting detail and finely-honed storytelling, exploring outbreaks around the world, Garrett exposes the underbelly of the world's globalization to find out if it can still be assumed that government can and will protect the people's health, or if that trust has been irrevocably broken. "A frightening vision of the future and a deeply unsettling one . . . a sober, scary book that not only limns the dangers posed by emerging diseases but also raises serious questions about two centuries' worth of Enlightenment beliefs in science and technology and progress." -- Michiko Kakutani, The New York Times

Trust

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Publisher : Icon Books
ISBN 13 : 9781840468175
Total Pages : 256 pages
Book Rating : 4.4/5 (681 download)

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Book Synopsis Trust by : Kieron O'Hara

Download or read book Trust written by Kieron O'Hara and published by Icon Books. This book was released on 2004-02-05 with total page 256 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book offers a popular, gripping account of the most vital political issue of the 21st century. From Aristotle to Francis Fukuyama, Machiavelli to Naomi Klein, the "Book of Job" to Blairite newspeak and from Enron to nanotechnology, Kieron O'Hara presents a lively exploration of trust. Essential for almost all social interaction, trust holds society together and makes co-operation possible. Ubiquitous, and yet deeply misunderstood, it can take years to build up, and after one false move can disappear overnight. Polls record levels of trust in politicians, businessmen, scientists and others that are at all time lows: a crisis in trust is currently gripping Western culture.O'Hara moves easily between the great philosophers and sociologists, and the impact of this crisis in our daily lives, animating theory with in-depth case studies, helping us make sense of the daily scares in our newspapers. Is trust declining? Should we be worried? What can we do about it? "Trust" gives few easy answers in this exhilarating ride through politics, literature, philosophy and history.

The New Celebrity Scientists

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Publisher : Rowman & Littlefield
ISBN 13 : 1442233435
Total Pages : 299 pages
Book Rating : 4.4/5 (422 download)

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Book Synopsis The New Celebrity Scientists by : Declan Fahy

Download or read book The New Celebrity Scientists written by Declan Fahy and published by Rowman & Littlefield. This book was released on 2015-03-06 with total page 299 pages. Available in PDF, EPUB and Kindle. Book excerpt: A new cultural icon strode the world stage at the turn of the twenty-first century: the celebrity scientist, as comfortable in Vanity Fair and Vogue as Smithsonian. Declan Fahy profiles eight of these eloquent, controversial, and compelling sellers of science to investigate how they achieved celebrity in the United States and internationally—and explores how their ideas influence our understanding of the world. Fahy traces the career trajectories of Richard Dawkins, Stephen Hawking, Steven Pinker, Neil deGrasse Tyson, Brian Greene, Stephen Jay Gould, Susan Greenfield, and James Lovelock. He demonstrates how each scientist embraced the power of promotion and popularization to stimulate thinking, impact policy, influence research, drive controversies, and mobilize social movements. He also considers critical claims that they speak beyond their expertise and for personal gain. The result is a fascinating look into how celebrity scientists help determine what it means to be human, the nature of reality, and how to prepare for society’s uncertain future.

Public Trust in Medical Research?

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Publisher :
ISBN 13 : 9781315383187
Total Pages : 168 pages
Book Rating : 4.3/5 (831 download)

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Book Synopsis Public Trust in Medical Research? by : Philip Cheung

Download or read book Public Trust in Medical Research? written by Philip Cheung and published by . This book was released on 2018 with total page 168 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Clinical Practice Guidelines We Can Trust

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Publisher : National Academies Press
ISBN 13 : 030921646X
Total Pages : 217 pages
Book Rating : 4.3/5 (92 download)

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Book Synopsis Clinical Practice Guidelines We Can Trust by : Institute of Medicine

Download or read book Clinical Practice Guidelines We Can Trust written by Institute of Medicine and published by National Academies Press. This book was released on 2011-06-16 with total page 217 pages. Available in PDF, EPUB and Kindle. Book excerpt: Advances in medical, biomedical and health services research have reduced the level of uncertainty in clinical practice. Clinical practice guidelines (CPGs) complement this progress by establishing standards of care backed by strong scientific evidence. CPGs are statements that include recommendations intended to optimize patient care. These statements are informed by a systematic review of evidence and an assessment of the benefits and costs of alternative care options. Clinical Practice Guidelines We Can Trust examines the current state of clinical practice guidelines and how they can be improved to enhance healthcare quality and patient outcomes. Clinical practice guidelines now are ubiquitous in our healthcare system. The Guidelines International Network (GIN) database currently lists more than 3,700 guidelines from 39 countries. Developing guidelines presents a number of challenges including lack of transparent methodological practices, difficulty reconciling conflicting guidelines, and conflicts of interest. Clinical Practice Guidelines We Can Trust explores questions surrounding the quality of CPG development processes and the establishment of standards. It proposes eight standards for developing trustworthy clinical practice guidelines emphasizing transparency; management of conflict of interest ; systematic review-guideline development intersection; establishing evidence foundations for and rating strength of guideline recommendations; articulation of recommendations; external review; and updating. Clinical Practice Guidelines We Can Trust shows how clinical practice guidelines can enhance clinician and patient decision-making by translating complex scientific research findings into recommendations for clinical practice that are relevant to the individual patient encounter, instead of implementing a one size fits all approach to patient care. This book contains information directly related to the work of the Agency for Healthcare Research and Quality (AHRQ), as well as various Congressional staff and policymakers. It is a vital resource for medical specialty societies, disease advocacy groups, health professionals, private and international organizations that develop or use clinical practice guidelines, consumers, clinicians, and payers.

EBOOK: Trust Matters in Health Care

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Publisher : McGraw-Hill Education (UK)
ISBN 13 : 0335236383
Total Pages : 224 pages
Book Rating : 4.3/5 (352 download)

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Book Synopsis EBOOK: Trust Matters in Health Care by : Michael Calnan

Download or read book EBOOK: Trust Matters in Health Care written by Michael Calnan and published by McGraw-Hill Education (UK). This book was released on 2008-08-16 with total page 224 pages. Available in PDF, EPUB and Kindle. Book excerpt: Does trust still matter in health care and who does it matter to? Have trust relations changed in the 'New' NHS? What does trust mean to patients, clinicians and managers? In the NHS trust has traditionally played an important part in the relationships between its three key actors: the state, health care practitioners and patients. However, in recent years the environments in which these relationships operate have been subject to considerable change as the NHS has been modernised. Patients are now expected to play a more active role, both in self-managing their illness and in choice of care provider and clinicians are expected to work in teams and in partnership with managers. This unique book explores the importance of trust, how it is lost and won and the extent to which trust relationships in health care may have changed. The book combines theoretical and empirical analysis, while also examining the role of policy. Calnan and Rowe analyse data collected from interviews with patients, health care professionals and managers in primary care and acute care settings. Among the issues covered are: The importance of trust to their relationships What constitutes high and low trust behaviour The changing nature of trust relations between patients, clinicians and managers How trust can be built and sustained How interpersonal trust affects institutional trust Trust Matters in Health Care is key reading for policy makers, health care professionals and managers in the public and private sector, and a useful resource for educators and students within health and social care and management studies.

Vaccine Hesitancy

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Publisher : University of Pittsburgh Press
ISBN 13 : 9780822966906
Total Pages : 264 pages
Book Rating : 4.9/5 (669 download)

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Book Synopsis Vaccine Hesitancy by : Maya J. Goldenberg

Download or read book Vaccine Hesitancy written by Maya J. Goldenberg and published by University of Pittsburgh Press. This book was released on 2021-09-28 with total page 264 pages. Available in PDF, EPUB and Kindle. Book excerpt: The public has voiced concern over the adverse effects of vaccines from the moment Dr. Edward Jenner introduced the first smallpox vaccine in 1796. The controversy over childhood immunization intensified in 1998, when Dr. Andrew Wakefield linked the MMR vaccine to autism. Although Wakefield’s findings were later discredited and retracted, and medical and scientific evidence suggests routine immunizations have significantly reduced life-threatening conditions like measles, whooping cough, and polio, vaccine refusal and vaccine-preventable outbreaks are on the rise. This book explores vaccine hesitancy and refusal among parents in the industrialized North. Although biomedical, public health, and popular science literature has focused on a scientifically ignorant public, the real problem, Maya J. Goldenberg argues, lies not in misunderstanding, but in mistrust. Public confidence in scientific institutions and government bodies has been shaken by fraud, research scandals, and misconduct. Her book reveals how vaccine studies sponsored by the pharmaceutical industry, compelling rhetorics from the anti-vaccine movement, and the spread of populist knowledge on social media have all contributed to a public mistrust of the scientific consensus. Importantly, it also emphasizes how historical and current discrimination in health care against marginalized communities continues to shape public perception of institutional trustworthiness. Goldenberg ultimately reframes vaccine hesitancy as a crisis of public trust rather than a war on science, arguing that having good scientific support of vaccine efficacy and safety is not enough. In a fraught communications landscape, Vaccine Hesitancy advocates for trust-building measures that focus on relationships, transparency, and justice.

To Err Is Human

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Publisher : National Academies Press
ISBN 13 : 0309068371
Total Pages : 312 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis To Err Is Human by : Institute of Medicine

Download or read book To Err Is Human written by Institute of Medicine and published by National Academies Press. This book was released on 2000-03-01 with total page 312 pages. Available in PDF, EPUB and Kindle. Book excerpt: Experts estimate that as many as 98,000 people die in any given year from medical errors that occur in hospitals. That's more than die from motor vehicle accidents, breast cancer, or AIDSâ€"three causes that receive far more public attention. Indeed, more people die annually from medication errors than from workplace injuries. Add the financial cost to the human tragedy, and medical error easily rises to the top ranks of urgent, widespread public problems. To Err Is Human breaks the silence that has surrounded medical errors and their consequenceâ€"but not by pointing fingers at caring health care professionals who make honest mistakes. After all, to err is human. Instead, this book sets forth a national agendaâ€"with state and local implicationsâ€"for reducing medical errors and improving patient safety through the design of a safer health system. This volume reveals the often startling statistics of medical error and the disparity between the incidence of error and public perception of it, given many patients' expectations that the medical profession always performs perfectly. A careful examination is made of how the surrounding forces of legislation, regulation, and market activity influence the quality of care provided by health care organizations and then looks at their handling of medical mistakes. Using a detailed case study, the book reviews the current understanding of why these mistakes happen. A key theme is that legitimate liability concerns discourage reporting of errorsâ€"which begs the question, "How can we learn from our mistakes?" Balancing regulatory versus market-based initiatives and public versus private efforts, the Institute of Medicine presents wide-ranging recommendations for improving patient safety, in the areas of leadership, improved data collection and analysis, and development of effective systems at the level of direct patient care. To Err Is Human asserts that the problem is not bad people in health careâ€"it is that good people are working in bad systems that need to be made safer. Comprehensive and straightforward, this book offers a clear prescription for raising the level of patient safety in American health care. It also explains how patients themselves can influence the quality of care that they receive once they check into the hospital. This book will be vitally important to federal, state, and local health policy makers and regulators, health professional licensing officials, hospital administrators, medical educators and students, health caregivers, health journalists, patient advocatesâ€"as well as patients themselves. First in a series of publications from the Quality of Health Care in America, a project initiated by the Institute of Medicine

The Future of Public Health

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Publisher : National Academies Press
ISBN 13 : 0309581907
Total Pages : 208 pages
Book Rating : 4.3/5 (95 download)

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Book Synopsis The Future of Public Health by : Committee for the Study of the Future of Public Health

Download or read book The Future of Public Health written by Committee for the Study of the Future of Public Health and published by National Academies Press. This book was released on 1988-01-15 with total page 208 pages. Available in PDF, EPUB and Kindle. Book excerpt: "The Nation has lost sight of its public health goals and has allowed the system of public health to fall into 'disarray'," from The Future of Public Health. This startling book contains proposals for ensuring that public health service programs are efficient and effective enough to deal not only with the topics of today, but also with those of tomorrow. In addition, the authors make recommendations for core functions in public health assessment, policy development, and service assurances, and identify the level of government--federal, state, and local--at which these functions would best be handled.

Sharing Research Data to Improve Public Health in Africa

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Publisher : National Academies Press
ISBN 13 : 0309378125
Total Pages : 102 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Sharing Research Data to Improve Public Health in Africa by : National Academies of Sciences, Engineering, and Medicine

Download or read book Sharing Research Data to Improve Public Health in Africa written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2015-09-18 with total page 102 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sharing research data on public health issues can promote expanded scientific inquiry and has the potential to advance improvements in public health. Although sharing data is the norm in some research fields, sharing of data in public health is not as firmly established. In March 2015, the National Research Council organized an international conference in Stellenbosch, South Africa, to explore the benefits of and barriers to sharing research data within the African context. The workshop brought together public health researchers and epidemiologists primarily from the African continent, along with selected international experts, to talk about the benefits and challenges of sharing data to improve public health, and to discuss potential actions to guide future work related to public health research data sharing. Sharing Research Data to Improve Public Health in Africa summarizes the presentations and discussions from this workshop.