Making Tough Decisions About End Of Life Care In Dementia

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Making Tough Decisions about End-of-Life Care in Dementia

Author : Anne Kenny
Publisher : JHU Press
ISBN 13 : 1421426676
Total Pages : 233 pages
Book Rating : 4.4/5 (214 download)

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Book Synopsis Making Tough Decisions about End-of-Life Care in Dementia by : Anne Kenny

Download or read book Making Tough Decisions about End-of-Life Care in Dementia written by Anne Kenny and published by JHU Press. This book was released on 2018-09-03 with total page 233 pages. Available in PDF, EPUB and Kindle. Book excerpt: Practical, essential advice about making tough decisions for people with end-stage dementia. Each year, more than 500,000 people are diagnosed with dementia in the United States. As stunning as that figure is, countless family members and caregivers are also affected by each diagnosis. Families are faced with the need to make vital end-of-life decisions about medical treatment, legal and financial matters, and living situations for those who no longer can; no one is prepared for this process. And many caregivers grapple with sadness, confusion, guilt, anger, and physical and mental exhaustion as dementia enters its final stage. In Making Tough Decisions about End-of-Life Care in Dementia, Dr. Anne Kenny, a skilled palliative care physician, describes how to navigate the difficult journey of late-stage dementia with sensitivity, compassion, and common sense. Combining her personal experience caring for a mother with dementia with her medical expertise in both dementia and end-of-life care, Dr. Kenny helps the reader prepare for a family member's death while managing their own emotional health. Drawing on stories of families that Dr. Kenny has worked with to illustrate common issues, concerns, and situations that occurs in late-stage dementia, this book includes practical advice about • making life-altering decisions while preparing for a loved one's inevitable death • medical care, pain, insomnia, medication, and eating • caring for the caregiver • having conversations about difficult topics with other family members and with health care, legal, and financial professionals Concrete to-do lists and lists of important points provide information at a glance for busy caregivers. Each chapter concludes with a list of additional resources for more information and help. Making Tough Decisions about End-of-Life Care in Dementia is a lifeline, an invaluable guide to assist in the late stage of dementia.

End of Life: Helping with Comfort and Care

Author : U.S. Department of Health and Human Services
Publisher : Lulu.com
ISBN 13 : 0359588239
Total Pages : 78 pages
Book Rating : 4.3/5 (595 download)

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Book Synopsis End of Life: Helping with Comfort and Care by : U.S. Department of Health and Human Services

Download or read book End of Life: Helping with Comfort and Care written by U.S. Department of Health and Human Services and published by Lulu.com. This book was released on 2019-04-13 with total page 78 pages. Available in PDF, EPUB and Kindle. Book excerpt: At the end of life, each story is different. Death comes suddenly, or a person lingers, gradually fading. For some older people, the body weakens while the mind stays alert. Others remain physically strong, but cognitive losses take a huge toll. Although everyone dies, each loss is personally felt by those close to the one who has died. End-of-life care is the term used to describe the support and medical care given during the time surrounding death. Such care does not happen only in the moments before breathing ceases and the heart stops beating. Older people often live with one or more chronic illnesses and need a lot of care for days, weeks, and even months before death. The goal of End of Life: Helping with Comfort and Care is to provide guidance and help in understanding the unfamiliar territory of death. This information is based on research, such as that supported by the National Institute on Aging (NIA), along with other parts of the National Institutes of Health.

Decision Making Near the End of Life

Author : James L. Werth Jr.
Publisher : Taylor & Francis
ISBN 13 : 1135918848
Total Pages : 417 pages
Book Rating : 4.1/5 (359 download)

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Book Synopsis Decision Making Near the End of Life by : James L. Werth Jr.

Download or read book Decision Making Near the End of Life written by James L. Werth Jr. and published by Taylor & Francis. This book was released on 2008-10-20 with total page 417 pages. Available in PDF, EPUB and Kindle. Book excerpt: Decision Making near the End of Life provides a comprehensive overview of the recent developments that have impacted decision-making processes within the field of end-of-life care. The most current developments in all aspects of major underlying issues such as public attitudes, the impact of media, bioethics, and legal precedent provide the background information for the text. The authors examine various aspects of end-of-life choices and decision-making, including communication (between and among family, medical personnel, the dying person), advance directives, and the emergence of hospice and palliative care institutions. The book also explores a variety of psychosocial considerations that arise in decision-making, including religion/spirituality, family caregiving, disenfranchised and diverse groups, and the psychological and psychiatric problems that can impact both the dying person and loved ones. Case studies and first-person stories about decision-making, written by professionals in the field, bring a uniquely personal touch to this valuable text.

Textbook of Palliative Care

Author : Rod MacLeod
Publisher :
ISBN 13 : 9783319317380
Total Pages : 0 pages
Book Rating : 4.3/5 (173 download)

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Book Synopsis Textbook of Palliative Care by : Rod MacLeod

Download or read book Textbook of Palliative Care written by Rod MacLeod and published by . This book was released on 2019 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Textbook of Palliative Care is a comprehensive, clinically relevant and state-of-the art book, aimed at advancing palliative care as a science, a clinical practice and as an art. Palliative care has been part of healthcare for over fifty years but we still find ourselves having to explain its nature and practice to colleagues and to the public in general. Healthcare education and training has been slow to recognize the vital importance of ensuring that all practitioners have a good understanding of what is involved in the care of people with serious or advanced illnesses and their families. However, the science of palliative care is advancing and our understanding concerning many aspects of palliative care is developing rapidly. The book is divided into separate sections for ease of use. Over 100 chapters written by experts in their given fields provide up-to-date information on a wide range of topics of relevance to those providing care towards the end of life no matter what the disease may be. We present a global perspective on contemporary and classic issues in palliative care with authors from a wide range of disciplines involved in this essential aspect of care. The Textbook includes sections addressing aspects such as symptom management and care provision, organization of care in different settings, care in specific disease groups, palliative care emergencies, ethics, public health approaches and research in palliative care. This Textbook will be of value to practitioners in all disciplines and professions where the care of people approaching death is important, specialists as well as non-specialists, in any setting where people with serious advanced illnesses are residing. It is also an important resource for researchers, policy-and decision-makers at national or regional levels. Neither the science nor the art of palliative care will stand still so we aim to keep this Textbook updated as the authors find new evidence and approaches to care. ." - Prové de l'editor.

Dying in America

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309303133
Total Pages : 638 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Dying in America by : Institute of Medicine

Download or read book Dying in America written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-19 with total page 638 pages. Available in PDF, EPUB and Kindle. Book excerpt: For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

Making Tough Decisions about End-of-Life Care in Dementia

Author : Anne Kenny
Publisher : JHU Press
ISBN 13 : 1421426684
Total Pages : 232 pages
Book Rating : 4.4/5 (214 download)

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Book Synopsis Making Tough Decisions about End-of-Life Care in Dementia by : Anne Kenny

Download or read book Making Tough Decisions about End-of-Life Care in Dementia written by Anne Kenny and published by JHU Press. This book was released on 2018-09-03 with total page 232 pages. Available in PDF, EPUB and Kindle. Book excerpt: Making Tough Decisions about End-of-Life Care in Dementia is a lifeline, an invaluable guide to assist in the late stage of dementia.

The 36-hour Day

Author :
Publisher :
ISBN 13 :
Total Pages : 0 pages
Book Rating : 4.:/5 (298 download)

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Book Synopsis The 36-hour Day by :

Download or read book The 36-hour Day written by and published by . This book was released on 1999 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Advance Care Planning in End of Life Care

Author : Keri Thomas
Publisher : Oxford University Press
ISBN 13 : 0198802137
Total Pages : 337 pages
Book Rating : 4.1/5 (988 download)

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Book Synopsis Advance Care Planning in End of Life Care by : Keri Thomas

Download or read book Advance Care Planning in End of Life Care written by Keri Thomas and published by Oxford University Press. This book was released on 2018 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: Advance Care Planning (ACP) is an essential part of end of life care in the UK and most developed countries. It enables more people to live well and die as they would choose, and has significant implications for the individual person, their family and carers, and our wider society. In the context of an ageing population and increasing possibilities for medical interventions, ACP is a particularly important aspect of quality care. Expanded and fully updated throughout, this new edition gives a comprehensive overview of ACP and explores a wide range of issues and practicalities in providing end of life care. Written by experts from around the world, the book takes a comprehensive look at the subject by exploring the wide range of issues and practicalities in providing ACP; framing the purpose, process, and outcomes of these plans; and providing an important update on national and international research, policy and practice. Chapters also discuss values, goals and priorities, and include detailed case examples to aid best practice. This book is an invaluable resource for all clinicians involved in the caring for people in their final stages of life. It is of particular value to GPs, palliative care specialists, geriatricians, social care teams, researchers and policy leads interested in improving end of life care.

Pediatric Palliative Care

Author : Betty R. Ferrell
Publisher : Hpna Palliative Nursing Manual
ISBN 13 : 0190244186
Total Pages : 161 pages
Book Rating : 4.1/5 (92 download)

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Book Synopsis Pediatric Palliative Care by : Betty R. Ferrell

Download or read book Pediatric Palliative Care written by Betty R. Ferrell and published by Hpna Palliative Nursing Manual. This book was released on 2015-08-31 with total page 161 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'Pediatric Palliative Care', the fourth volume in the 'HPNA Palliative Nursing Manuals' series, addresses paediatric hospice, symptom management, paediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in paediatric palliative care.

Tough Decisions in Care of Elderly Loved Ones

Author : Mahesh Moolani
Publisher :
ISBN 13 : 9781734407716
Total Pages : pages
Book Rating : 4.4/5 (77 download)

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Book Synopsis Tough Decisions in Care of Elderly Loved Ones by : Mahesh Moolani

Download or read book Tough Decisions in Care of Elderly Loved Ones written by Mahesh Moolani and published by . This book was released on 2020-01-15 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Being responsible for the needs and care of an elderly loved one can be a difficult role that many of us do willingly but it requires a lot - patience, time, energy, tenderness, and hard work. We often need to make decisions which are life altering for the other person and for ourselves and at times, are not pleasant or easy.How to have a conversation with your elderly loved one about changeDeal with deteriorating physical and mental health in loved ones What happens if they develop dementia? Making the decision on in-home care or a care facilityAdjusting to your role as caregiver while still caring for yourselfTough Decisions in the Care of Elderly Loved Ones is an invaluable, practical, and sympathetic guide to how to give your loved one the best possible care, while addressing the concerns that caretakers may have. After reading the book, you will feel as if someone is holding your hand while you make those tough decisions. In this book, Mahesh Moolani, MD objectively divides the tough situations into four categories and tackles each category in a straightforward way. He offers professional support and guidance on how to maintain a work/life/caring balance and better care for your elderly loved ones.Mahesh Moolani, MD is an Internist who is medical director of two nursing homes and cares for a huge geriatrics population. In his professional career, he has come across thousands of caregivers, who find it hard to provide optimum care to their loved ones, despite their best intentions and efforts.

Ethical Issues in Dementia Care

Author : Clive Baldwin
Publisher : Jessica Kingsley Publishers
ISBN 13 : 9781846425585
Total Pages : 144 pages
Book Rating : 4.4/5 (255 download)

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Book Synopsis Ethical Issues in Dementia Care by : Clive Baldwin

Download or read book Ethical Issues in Dementia Care written by Clive Baldwin and published by Jessica Kingsley Publishers. This book was released on 2006-09-15 with total page 144 pages. Available in PDF, EPUB and Kindle. Book excerpt: Bradford Dementia Group Good Practice Guides There are always difficult day to day decisions to be faced when caring for a person with dementia - from knowing how to deal with wandering to end of life decisions. Many of these decisions are underpinned by value judgments about right and wrong and reflect a particular view of dementia. This book considers these ethical decisions in the context of relationships, treatment, safety and quality of life, offering practical guidance and advice. It draws on the experiences of family carers as well as on existing research and emphasizes the importance of empathy and the need to acknowledge different perspectives in order to reach the best decision for the person with dementia. In particular the authors discuss the way that decision makers are themselves changed by the decisions they make, and the impact of this on the decision-making process. This book should be read by all those who work caring for people with dementia.

Hospice Care for Patients with Advanced Progressive Dementia

Author : Ladislav Volicer, MD, PhD
Publisher : Springer Publishing Company
ISBN 13 : 0826117414
Total Pages : 320 pages
Book Rating : 4.8/5 (261 download)

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Book Synopsis Hospice Care for Patients with Advanced Progressive Dementia by : Ladislav Volicer, MD, PhD

Download or read book Hospice Care for Patients with Advanced Progressive Dementia written by Ladislav Volicer, MD, PhD and published by Springer Publishing Company. This book was released on 2004-01-01 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume demonstrates how hospice care leads to improved quality of life for patients with terminal dementia and their families. Much of the information is based on the successful 10-year experience of the E.N. Rogers Memorial Hospital, where the first palliative care program for the management of patients with advanced dementia was developed. The book discusses Alzheimer's and other progressive dementias and reviews the clinical problems encountered, including infections, eating difficulties, and behavioral problems. It further addresses how to implement hospice care programs for these patients and the ethical aspects involved. This volume will be of compelling importance to nurses, physicians, and social workers involved in hospice or home care of patients at the last stages of dementia.

Reducing the Impact of Dementia in America

Author : National Academies of Sciences Engineering and Medicine
Publisher :
ISBN 13 : 9780309495035
Total Pages : pages
Book Rating : 4.4/5 (95 download)

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Book Synopsis Reducing the Impact of Dementia in America by : National Academies of Sciences Engineering and Medicine

Download or read book Reducing the Impact of Dementia in America written by National Academies of Sciences Engineering and Medicine and published by . This book was released on 2022-04-26 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.

Dementia Reconsidered Revisited: The Person Still Comes First

Author : Tom Kitwood
Publisher : McGraw-Hill Education (UK)
ISBN 13 : 0335248039
Total Pages : 234 pages
Book Rating : 4.3/5 (352 download)

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Book Synopsis Dementia Reconsidered Revisited: The Person Still Comes First by : Tom Kitwood

Download or read book Dementia Reconsidered Revisited: The Person Still Comes First written by Tom Kitwood and published by McGraw-Hill Education (UK). This book was released on 2019-01-07 with total page 234 pages. Available in PDF, EPUB and Kindle. Book excerpt: The original Dementia Reconsidered: The Person Comes First by Tom Kitwood was published by Open University Press in 1997. It was a seminal text in the field of dementia studies and is still cited and referenced as core reading on person-centred dementia care. Tom died unexpectedly, just 12 months after the book was published. This book continues to inspire many people to challenge simplistic paradigms about dementia. Since the original book was written, however, there have been many changes in our understanding of dementia. The editor of this new edition, Dawn Brooker was mentored by Tom Kitwood. She has drawn together a remarkable group of writers to provide a commentary on Kitwood’s work. This new edition reproduces the original chapters but provides extra content from subject experts to update the book to a contemporary level. Dementia Reconsidered Re-visited is an ideal main text or supplementary text for all those studying or working in nursing, medicine, psychiatry, psychology, occupational therapy, social work, adult education, gerontology and health and social care more generally. “This important book does three things. It brings to a new generation the insight and vision of Tom Kitwood. It highlights the remarkable progress we have made in recent years. But most important of all it reminds us what still needs to be done if we are to fully respect the rights of people with dementia and their family care-givers. Kitwood inspired Alzheimer’s Society to knit together research, care, and societal change. We are now re-inspired to make sure all progress is evidenced and evaluated for its impact. We must realise the enormous opportunities the digital age offers people affected by dementia but in doing so constantly listen to and learn from their many and varied voices across nations and cultures.” Jeremy Hughes CBE, Chief Executive, Alzheimer's Society, UK

Finish Strong

Author : Barbara Coombs Lee
Publisher :
ISBN 13 : 9781732774452
Total Pages : 0 pages
Book Rating : 4.7/5 (744 download)

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Book Synopsis Finish Strong by : Barbara Coombs Lee

Download or read book Finish Strong written by Barbara Coombs Lee and published by . This book was released on 2022-08-26 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Finish Strong by Barbara Coombs Lee is for those of us who want an end-of-life experience to match the life we've enjoyed-defined by love, purpose, and agency. Written with candor and clarity by a former nurse, physician assistant and attorney, Finish Strong's stories, facts and dialogue will help prepare for latter days that reflect your values and priorities. The second edition of Finish Strong, published in September 2022, features valuable new material, including a new chapter called "Race and Culture Matter;" an Afterword by Kim Callinan, the President/CEO of Compassion & Choices; and a detailed index for the book.-----Praise for FINISH STRONG----- "Barbara Coombs Lee covers all the issues we must address. Read Finish Strong and use it as a guide to consider your own final decisions." - Diane Rehm, executive producer of The Diane Rehm Show and author of When My Time Comes. "Finish Strong will help people who want to pass the gift of life back into the hands of their God thankfully and with dignity. It is a blessing." - Archbishop Emeritus Desmond Tutu

When Someone You Know Is Living in a Dementia Care Community

Author : Rachael Wonderlin
Publisher : Johns Hopkins University Press
ISBN 13 : 1421420651
Total Pages : 220 pages
Book Rating : 4.4/5 (214 download)

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Book Synopsis When Someone You Know Is Living in a Dementia Care Community by : Rachael Wonderlin

Download or read book When Someone You Know Is Living in a Dementia Care Community written by Rachael Wonderlin and published by Johns Hopkins University Press. This book was released on 2016-11-01 with total page 220 pages. Available in PDF, EPUB and Kindle. Book excerpt: "When Someone You Know Is Living in a Dementia Care Community is an accessible guide offering answers to such questions as: How do I choose a place for my loved one to live? What can I find out by visiting a candidate memory-care community twice? What do I do if my loved one asks about going home? How can I improve the quality of my visits? What is the best way to handle conflict between residents, or between the resident and staff? How can I cope with my loved one's sundowning? What do I do if my loved one starts a romantic relationship with another resident?An indispensable book for family members and friends of people with dementia, When Someone You Know is Living in a Dementia Care Community touches the heart while explaining how to make a difficult situation better.

Oxford Textbook of Old Age Psychiatry

Author : Tom Dening
Publisher : Oxford University Press, USA
ISBN 13 : 0198807295
Total Pages : 961 pages
Book Rating : 4.1/5 (988 download)

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Book Synopsis Oxford Textbook of Old Age Psychiatry by : Tom Dening

Download or read book Oxford Textbook of Old Age Psychiatry written by Tom Dening and published by Oxford University Press, USA. This book was released on 2020-11-05 with total page 961 pages. Available in PDF, EPUB and Kindle. Book excerpt: Part of the authoritative Oxford Textbooks in Psychiatry series, Oxford Textbook of Old Age Psychiatry, Third Edition has been thoroughly updated to reflect the developments in old age psychiatry since publication of the Second Edition in 2013, and remains an essential reference for anyone interested in the mental health care of older people.