Pediatric Palliative Care

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Textbook of Interdisciplinary Pediatric Palliative Care

Author : Joanne Wolfe
Publisher : Elsevier Health Sciences
ISBN 13 : 1437702627
Total Pages : 514 pages
Book Rating : 4.4/5 (377 download)

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Book Synopsis Textbook of Interdisciplinary Pediatric Palliative Care by : Joanne Wolfe

Download or read book Textbook of Interdisciplinary Pediatric Palliative Care written by Joanne Wolfe and published by Elsevier Health Sciences. This book was released on 2011-01-26 with total page 514 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Textbook of Interdisciplinary Pediatric Palliative Care, by Drs. Joanne Wolfe, Pamela Hinds, and Barbara Sourkes, aims to inform interdisciplinary teams about palliative care of children with life-threatening illness. It addresses critical domains such as language and communication, symptoms and quality of life, and the spectrum of life-threatening illnesses in great depth. This comprehensive product takes a first-of-its-kind team approach to the unique needs of critically ill children. It shows how a collaborative, interdisciplinary care strategy benefits patients and their families. If you deal with the complex care of critically ill children, this reference provides a uniquely integrated perspective on complete and effective care. Respect interdisciplinary perspectives, and provide the most comprehensive care. Use an integrated approach to address the physical, psychological, social, and spiritual needs of children and their families. Understand and heed your strengths and vulnerabilities in order to provide the best care for your patients. Recognize the necessity of linking hospital-based palliative care with community resources. Implement consistent terminology for use by the entire palliative care team. Access the full text online with regular updates and supplemental text and image resources.

Pediatric Palliative Care

Author : Betty R. Ferrell
Publisher : Hpna Palliative Nursing Manual
ISBN 13 : 0190244186
Total Pages : 161 pages
Book Rating : 4.1/5 (92 download)

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Book Synopsis Pediatric Palliative Care by : Betty R. Ferrell

Download or read book Pediatric Palliative Care written by Betty R. Ferrell and published by Hpna Palliative Nursing Manual. This book was released on 2015-08-31 with total page 161 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'Pediatric Palliative Care', the fourth volume in the 'HPNA Palliative Nursing Manuals' series, addresses paediatric hospice, symptom management, paediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in paediatric palliative care.

Pediatric Palliative Care

Author : Betty Davies
Publisher : Routledge
ISBN 13 : 1000512932
Total Pages : 219 pages
Book Rating : 4.0/5 (5 download)

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Book Synopsis Pediatric Palliative Care by : Betty Davies

Download or read book Pediatric Palliative Care written by Betty Davies and published by Routledge. This book was released on 2021-12-21 with total page 219 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric Palliative Care: A Model for Exemplary Practice lays out a road map for health-care providers interested in optimizing care for seriously ill children and their families. Grounded in clinical practice and the study of positive rather than problematic encounters between providers and parents, the book presents an evidence-based model of exemplary interaction. The chapters offer a clear understanding of the complex, holistic process of interaction between providers and parents, as well as the personal and professional knowledge and skills needed to interact in optimal ways. This is a one-of-a-kind guidebook for health-care providers interested in (re)discovering how to maximize positive outcomes for both families and providers. It is also a valuable source of inspiration for educators, supervisors, and hospital administrators who want to facilitate personal and professional development and create supportive environments for students, providers, seriously ill children, and their families.

Palliative Care for Infants, Children, and Adolescents

Author : Brian S. Carter
Publisher : JHU Press
ISBN 13 : 1421402130
Total Pages : 769 pages
Book Rating : 4.4/5 (214 download)

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Book Synopsis Palliative Care for Infants, Children, and Adolescents by : Brian S. Carter

Download or read book Palliative Care for Infants, Children, and Adolescents written by Brian S. Carter and published by JHU Press. This book was released on 2011-10-15 with total page 769 pages. Available in PDF, EPUB and Kindle. Book excerpt: There are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition. Written by leading researchers, clinicians from relevant disciplines, family members, and advocates, this practical guide provides professionals involved in pediatric palliative and end-of-life care with comprehensive information in a single volume. Thoroughly updated and expanded, this edition includes chapters addressing the unique challenges facing children with HIV/AIDS and their families, care in home and ICU settings, difficult decision-making processes, and the importance of communication with the child and family, as well as completely new chapters on spiritual dimensions of care and educational and advocacy initiatives. Intended for primary care physicians, pediatric practitioners and specialists, home care and hospice personnel, pastoral counselors, and affected families, the book includes useful resource and reference material and practical, hands-on tips. With contributions from an international group of expert educators, clinicians, and parents, this book takes a truly interdisciplinary approach to pediatric palliative care, presenting best practices, clear instruction, and the latest information and research for anyone involved in pediatric palliative and end-of-life care.

Interdisciplinary Pediatric Palliative Care

Author : Joanne Wolfe
Publisher : Oxford University Press
ISBN 13 : 0190090014
Total Pages : 625 pages
Book Rating : 4.1/5 (9 download)

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Book Synopsis Interdisciplinary Pediatric Palliative Care by : Joanne Wolfe

Download or read book Interdisciplinary Pediatric Palliative Care written by Joanne Wolfe and published by Oxford University Press. This book was released on 2022 with total page 625 pages. Available in PDF, EPUB and Kindle. Book excerpt: "We hope that the lives of all children will be filled with possibility, with open horizons and rainbows into the future. Children with serious illnesses, their families, and those who care for them, confront the realization that "not everything is possible," that despite dramatic scientific and medical advances, the lifespan of some children will be shortened. This threat of premature loss heightens the sense of time for children and families alike, and challenges clinicians to create new pathways of hope for them"--

When Children Die

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309084377
Total Pages : 713 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis When Children Die by : Institute of Medicine

Download or read book When Children Die written by Institute of Medicine and published by National Academies Press. This book was released on 2003-02-09 with total page 713 pages. Available in PDF, EPUB and Kindle. Book excerpt: The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.

Palliative Care Consultant

Author : Ohio Hospice and Palliative Care Organization Staff
Publisher :
ISBN 13 : 9780757561849
Total Pages : 0 pages
Book Rating : 4.5/5 (618 download)

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Book Synopsis Palliative Care Consultant by : Ohio Hospice and Palliative Care Organization Staff

Download or read book Palliative Care Consultant written by Ohio Hospice and Palliative Care Organization Staff and published by . This book was released on 2010-10-21 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Supporting the Child and the Family in Paediatric Palliative Care

Author : Erica Brown
Publisher : Jessica Kingsley Publishers
ISBN 13 : 9781846426599
Total Pages : 304 pages
Book Rating : 4.4/5 (265 download)

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Book Synopsis Supporting the Child and the Family in Paediatric Palliative Care by : Erica Brown

Download or read book Supporting the Child and the Family in Paediatric Palliative Care written by Erica Brown and published by Jessica Kingsley Publishers. This book was released on 2007-06-15 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: Supporting the Child and the Family in Paediatric Palliative Care provides a comprehensive overview of good practice in caring for terminally-ill children, young people and their families. Drawing from extensive personal experiences of working in paediatric palliative care, the author provides guidance on issues including symptom management and pain relief; cultural, religious and spiritual aspects of care; and the role of education for life-limited children. Addressing the importance of individual needs, the book looks at emotional, social and cognitive support at different stages of the illness, how parents and professionals can respond to children's own questions about death, and the impact of life-limiting illness on the whole family - including grandparents and siblings. The material offers helpful suggestions on how to support families in making informed choices during distressing periods, such as where their child will die and how to prepare for the funeral. This book is a practical and invaluable tool for nurses, paediatricians, hospice care staff, bereavement counsellors and all those caring for life-limited children.

Oxford Textbook of Palliative Care for Children

Author : Richard Hain
Publisher : Oxford University Press
ISBN 13 : 019882131X
Total Pages : 535 pages
Book Rating : 4.1/5 (988 download)

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Book Synopsis Oxford Textbook of Palliative Care for Children by : Richard Hain

Download or read book Oxford Textbook of Palliative Care for Children written by Richard Hain and published by Oxford University Press. This book was released on 2021-03-24 with total page 535 pages. Available in PDF, EPUB and Kindle. Book excerpt: The importance of palliative care for children facing life threatening illness and their families is now widely acknowledged as an essential part of care, which should be available to all children and families, throughout the child's illness and at the end of life. The new edition of the Oxford Textbook of Palliative Care for Children brings together the most up to date information, current knowledge, evidence, and developments of clinical practice in the field. The book is structured into four sections. 'Foundations of Care' describes core issues, the foundations on which paediatric palliative care is based. 'Child and Family Care' looks at different aspects of psychological, social, and cultural care for the sick child or young person, and their family. These chapters cover the time course of the illness, around the time of death and support for the bereaved family. 'Symptom Care' focuses on the uses of medication, specific symptoms, and their management. Finally, 'Delivery of Care' examines practical approaches to care in different environments and the needs of clinicians. Two new editors join the team from Canada and South Africa, reflecting our aims to contribute towards the development of care for children across the world, and to be a resource for both experienced clinicians and those new to the field. Comprehensive in scope, exhaustive in detail, and definitive in authority, this third edition has been thoroughly updated to cover new practices, current epidemiological data, and the evolving models that support the delivery of palliative medicine to children. This includes two new chapters, looking in detail at 'Decision Making' and 'Perinatal Care', and a new section highlighting the emerging importance of 'Palliative Care for Children in Humanitarian Crises'. This book is an essential resource for anyone who works with children worldwide.

Pediatric Palliative Care

Author : Lindsay B. Ragsdale
Publisher : Oxford University Press
ISBN 13 : 0190051876
Total Pages : 230 pages
Book Rating : 4.1/5 (9 download)

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Book Synopsis Pediatric Palliative Care by : Lindsay B. Ragsdale

Download or read book Pediatric Palliative Care written by Lindsay B. Ragsdale and published by Oxford University Press. This book was released on 2020-02-03 with total page 230 pages. Available in PDF, EPUB and Kindle. Book excerpt: The first volume in the "What Do I Do Now?: Palliative Care" series, Pediatric Palliative Care uses a case-based palliative care approach to cover common and important topics in the examination, investigation, and management of children with serious illness. Each chapter provides a discussion of the diagnosis, key points to remember, and selected references for further reading. The book addresses a wide range of topics, including the goals of care, symptom management, care for neonatal and adolescent populations, and the emotional, social, cultural and spiritual needs of ill children and their families. Written by authors from a variety of fields such as nursing, chaplaincy, social work, and psychology, this book is suited for pediatricians, palliative care and hospice providers, nurses, and allied health practitioners. Pediatric Palliative Care is an engaging collection of thought-provoking cases which clinicians can utilize when they encounter difficult patients. The volume is also a self-assessment tool that tests the reader's ability to answer the question, "What do I do now?"

Children’s Palliative Care: An International Case-Based Manual

Author : Julia Downing
Publisher : Springer Nature
ISBN 13 : 303027375X
Total Pages : 290 pages
Book Rating : 4.0/5 (32 download)

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Book Synopsis Children’s Palliative Care: An International Case-Based Manual by : Julia Downing

Download or read book Children’s Palliative Care: An International Case-Based Manual written by Julia Downing and published by Springer Nature. This book was released on 2020-04-01 with total page 290 pages. Available in PDF, EPUB and Kindle. Book excerpt: This manual enables individuals working in children’s palliative care (CPC) globally to learn through engaging real-world cases. The aim is to provide a clinical case-based resource that is globally relevant and accessible to those working in CPC. Drawing on case histories from around the world that reflect key issues and elements of CPC, it provides a practical approach grounded in experience. It addresses multidisciplinary care in the management of children and their families; discusses cases from an international perspective, and shares examples from a variety of countries, utilising cases across a range of ages and conditions, demonstrating holistic care. It represents the first case-based manual on global CPC and is endorsed and promoted by the International Children’s Palliative Care Network (ICPCN). Children’s palliative care is a rapidly developing field, both in the UK and internationally. The provision of CPC varies considerably, with provision often being insufficient, and over 65% of countries having no recognised CPC service provision whatsoever. As such, while there are an estimated 21.6 million children who require palliative care, in many areas of the world, CPC is poor or non-existent, and children are treated like little adults without their distinctive needs being recognised or understood. There is also a dearth of literature on CPC, hence this clinical case-based manual fills a gap in the market, and is aimed at a global audience, making it a unique text in the field.

Hospice Care for Children

Author : Ann Armstrong-Dailey
Publisher : Oxford University Press, USA
ISBN 13 : 9780195133301
Total Pages : 442 pages
Book Rating : 4.1/5 (333 download)

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Book Synopsis Hospice Care for Children by : Ann Armstrong-Dailey

Download or read book Hospice Care for Children written by Ann Armstrong-Dailey and published by Oxford University Press, USA. This book was released on 2001 with total page 442 pages. Available in PDF, EPUB and Kindle. Book excerpt: Children with life-threatening and terminal illnesses--and their families-- require a unique kind of care to meet a wide variety of needs. This book, the first edition of which won the 1993 Pediatric Nursing Book of the Year Award, provides an authoritative source for the many people involved in caring for dying children. It draws together contributions from leading authorities in a comprehensive, fully up-to-date resource, with an emphasis on practical topics that can be put to immediate use. The book covers the entire range of issues related to the hospice environment and is intended for all those who participate in the hospice-care process: physicians, nurses, social workers, teachers, clergy, family therapists, parents, and community service volunteers.

Oxford Textbook of Palliative Medicine

Author : Nathan I. Cherny
Publisher : Oxford University Press, USA
ISBN 13 : 0199656096
Total Pages : 1281 pages
Book Rating : 4.1/5 (996 download)

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Book Synopsis Oxford Textbook of Palliative Medicine by : Nathan I. Cherny

Download or read book Oxford Textbook of Palliative Medicine written by Nathan I. Cherny and published by Oxford University Press, USA. This book was released on 2015 with total page 1281 pages. Available in PDF, EPUB and Kindle. Book excerpt: Emphasising the multi-disciplinary nature of palliative care the fourth edition of this text also looks at the individual professional roles that contribute to the best-quality palliative care.

Dying in America

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309303133
Total Pages : 638 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Dying in America by : Institute of Medicine

Download or read book Dying in America written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-19 with total page 638 pages. Available in PDF, EPUB and Kindle. Book excerpt: For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

Pediatric Palliative Care

Author : Stefan J. Friedrichsdorf
Publisher : MDPI
ISBN 13 : 3038973505
Total Pages : 253 pages
Book Rating : 4.0/5 (389 download)

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Book Synopsis Pediatric Palliative Care by : Stefan J. Friedrichsdorf

Download or read book Pediatric Palliative Care written by Stefan J. Friedrichsdorf and published by MDPI. This book was released on 2019-02-08 with total page 253 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is a printed edition of the Special Issue "Pediatric Palliative Care" that was published in Children

Improving Palliative Care for Cancer

Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309074029
Total Pages : 344 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis Improving Palliative Care for Cancer by : National Research Council

Download or read book Improving Palliative Care for Cancer written by National Research Council and published by National Academies Press. This book was released on 2001-10-19 with total page 344 pages. Available in PDF, EPUB and Kindle. Book excerpt: In our society's aggressive pursuit of cures for cancer, we have neglected symptom control and comfort care. Less than one percent of the National Cancer Institute's budget is spent on any aspect of palliative care research or education, despite the half million people who die of cancer each year and the larger number living with cancer and its symptoms. Improving Palliative Care for Cancer examines the barriersâ€"scientific, policy, and socialâ€"that keep those in need from getting good palliative care. It goes on to recommend public- and private-sector actions that would lead to the development of more effective palliative interventions; better information about currently used interventions; and greater knowledge about, and access to, palliative care for all those with cancer who would benefit from it.

Palliative Care in Pediatric Oncology

Author : Joanne Wolfe
Publisher : Springer
ISBN 13 : 331961391X
Total Pages : 314 pages
Book Rating : 4.3/5 (196 download)

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Book Synopsis Palliative Care in Pediatric Oncology by : Joanne Wolfe

Download or read book Palliative Care in Pediatric Oncology written by Joanne Wolfe and published by Springer. This book was released on 2017-12-20 with total page 314 pages. Available in PDF, EPUB and Kindle. Book excerpt: This textbook is the first to focus on comprehensive interdisciplinary care approaches aimed at enhancing the wellbeing of children with cancer and their families throughout the illness experience. Among the topics addressed are the epidemiology of pediatric cancer distress, including physical, emotional, social, and spiritual dimensions; the role of the interdisciplinary team; communication and advance care planning; symptom prevention and management; care at the end of life; family bereavement care; and approaches to ease clinician distress. The contributing authors are true experts and provide guidance based on the highest available level of evidence in the field. The book has not only an interdisciplinary but also an international perspective; it will appeal globally to all clinicians caring for children with cancer, including physicians, nurses, psychosocial clinicians, and chaplains, among others.