Sharing Clinical Trial Data

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Author :
Publisher : National Academies Press
ISBN 13 : 0309316324
Total Pages : 236 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Sharing Clinical Trial Data by : Institute of Medicine

Download or read book Sharing Clinical Trial Data written by Institute of Medicine and published by National Academies Press. This book was released on 2015-04-20 with total page 236 pages. Available in PDF, EPUB and Kindle. Book excerpt: Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine trust in clinical trials or otherwise harm public health. Sharing Clinical Trial Data presents activities and strategies for the responsible sharing of clinical trial data. With the goal of increasing scientific knowledge to lead to better therapies for patients, this book identifies guiding principles and makes recommendations to maximize the benefits and minimize risks. This report offers guidance on the types of clinical trial data available at different points in the process, the points in the process at which each type of data should be shared, methods for sharing data, what groups should have access to data, and future knowledge and infrastructure needs. Responsible sharing of clinical trial data will allow other investigators to replicate published findings and carry out additional analyses, strengthen the evidence base for regulatory and clinical decisions, and increase the scientific knowledge gained from investments by the funders of clinical trials. The recommendations of Sharing Clinical Trial Data will be useful both now and well into the future as improved sharing of data leads to a stronger evidence base for treatment. This book will be of interest to stakeholders across the spectrum of research-from funders, to researchers, to journals, to physicians, and ultimately, to patients.

Sharing Big Data Safely

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Publisher : "O'Reilly Media, Inc."
ISBN 13 : 1491953640
Total Pages : 97 pages
Book Rating : 4.4/5 (919 download)

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Book Synopsis Sharing Big Data Safely by : Ted Dunning

Download or read book Sharing Big Data Safely written by Ted Dunning and published by "O'Reilly Media, Inc.". This book was released on 2015-09-15 with total page 97 pages. Available in PDF, EPUB and Kindle. Book excerpt: Many big data-driven companies today are moving to protect certain types of data against intrusion, leaks, or unauthorized eyes. But how do you lock down data while granting access to people who need to see it? In this practical book, authors Ted Dunning and Ellen Friedman offer two novel and practical solutions that you can implement right away. Ideal for both technical and non-technical decision makers, group leaders, developers, and data scientists, this book shows you how to: Share original data in a controlled way so that different groups within your organization only see part of the whole. You’ll learn how to do this with the new open source SQL query engine Apache Drill. Provide synthetic data that emulates the behavior of sensitive data. This approach enables external advisors to work with you on projects involving data that you can't show them. If you’re intrigued by the synthetic data solution, explore the log-synth program that Ted Dunning developed as open source code (available on GitHub), along with how-to instructions and tips for best practice. You’ll also get a collection of use cases. Providing lock-down security while safely sharing data is a significant challenge for a growing number of organizations. With this book, you’ll discover new options to share data safely without sacrificing security.

Progress and Challenges in Precision Medicine

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Publisher : Academic Press
ISBN 13 : 0128095024
Total Pages : 346 pages
Book Rating : 4.1/5 (28 download)

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Book Synopsis Progress and Challenges in Precision Medicine by : Mukesh Verma

Download or read book Progress and Challenges in Precision Medicine written by Mukesh Verma and published by Academic Press. This book was released on 2016-12-22 with total page 346 pages. Available in PDF, EPUB and Kindle. Book excerpt: Progress and Challenges in Precision Medicine presents an insightful overview to the myriad factors of personalized and precision medicine. The availability of the human genome, large amounts of data on individual genetic variations, environmental interactions, influence of lifestyle, and cutting-edge tools and technologies for big-data analysis have led to the age of personalized and precision medicine. Bringing together a global range of experts on precision medicine, this book collects previously scattered information into one concise volume which covers the most important developments so far in precision medicine and also suggests the most likely avenues for future development. The book includes clinical information, informatics, public policy implications, and information on case studies. It is a useful reference and background work for students, researchers, and clinicians working in the biomedical and medical fields, as well as policymakers in the health sciences. - Provides an overview of the growing field of precision medicine - Contains chapters from geographically diverse experts in their field - Explores important aspects of precision medicine, including applications, ethics, and development

Imagining the Internet

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Publisher : Rowman & Littlefield Publishers
ISBN 13 : 0742568660
Total Pages : 319 pages
Book Rating : 4.7/5 (425 download)

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Book Synopsis Imagining the Internet by : Janna Quitney Anderson

Download or read book Imagining the Internet written by Janna Quitney Anderson and published by Rowman & Littlefield Publishers. This book was released on 2005-07-21 with total page 319 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the early 1990s, people predicted the death of privacy, an end to the current concept of 'property,' a paperless society, 500 channels of high-definition interactive television, world peace, and the extinction of the human race after a takeover engineered by intelligent machines. Imagining the Internet zeroes in on predictions about the Internet's future and revisits past predictions—and how they turned out. It gives the history of communications in a nutshell, illustrating the serious impact of pervasive networks and how they will change our lives over the next century.

Big Data Analytics in Bioinformatics and Healthcare

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Publisher : IGI Global
ISBN 13 : 1466666129
Total Pages : 552 pages
Book Rating : 4.4/5 (666 download)

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Book Synopsis Big Data Analytics in Bioinformatics and Healthcare by : Wang, Baoying

Download or read book Big Data Analytics in Bioinformatics and Healthcare written by Wang, Baoying and published by IGI Global. This book was released on 2014-10-31 with total page 552 pages. Available in PDF, EPUB and Kindle. Book excerpt: As technology evolves and electronic data becomes more complex, digital medical record management and analysis becomes a challenge. In order to discover patterns and make relevant predictions based on large data sets, researchers and medical professionals must find new methods to analyze and extract relevant health information. Big Data Analytics in Bioinformatics and Healthcare merges the fields of biology, technology, and medicine in order to present a comprehensive study on the emerging information processing applications necessary in the field of electronic medical record management. Complete with interdisciplinary research resources, this publication is an essential reference source for researchers, practitioners, and students interested in the fields of biological computation, database management, and health information technology, with a special focus on the methodologies and tools to manage massive and complex electronic information.

Proceedings of Eighth International Congress on Information and Communication Technology

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Publisher : Springer Nature
ISBN 13 : 981993091X
Total Pages : 1110 pages
Book Rating : 4.8/5 (199 download)

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Book Synopsis Proceedings of Eighth International Congress on Information and Communication Technology by : Xin-She Yang

Download or read book Proceedings of Eighth International Congress on Information and Communication Technology written by Xin-She Yang and published by Springer Nature. This book was released on 2023-07-29 with total page 1110 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book gathers selected high-quality research papers presented at the Eighth International Congress on Information and Communication Technology, held at Brunel University, London, on 20–23 February 2023. It discusses emerging topics pertaining to information and communication technology (ICT) for managerial applications, e-governance, e-agriculture, e-education and computing technologies, the Internet of Things (IoT) and e-mining. Written by respected experts and researchers working on ICT, the book offers a valuable asset for young researchers involved in advanced studies. The work is presented in four volumes.

Family Caregiving in the New Normal

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Publisher : Academic Press
ISBN 13 : 012417129X
Total Pages : 404 pages
Book Rating : 4.1/5 (241 download)

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Book Synopsis Family Caregiving in the New Normal by : Joseph E. Gaugler

Download or read book Family Caregiving in the New Normal written by Joseph E. Gaugler and published by Academic Press. This book was released on 2015-05-08 with total page 404 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family Caregiving in the New Normal discusses how the drastic economic changes that have occurred over the past few years have precipitated a new conversation on how family care for older adults will evolve in the future. This text summarizes the challenges and potential solutions scientists, policy makers, and clinical providers must address as they grapple with these changes, with a primary focus given to the elements that may impact how family caregiving is organized and addressed in subsequent decades, including sociodemographic trends like divorce, increased participation of women in the workforce, geographic mobility, fewer children in post-baby boom families, chronic illness trends, economic stressors, and the current policy environment. A section on the support of caregivers includes technology-based solutions that examine existing models, personal health records, and mobile applications, big data issues, decision-making support, person-centered approaches, crowd-sourced caregiving such as blogs and personal websites that have galvanized caregivers, and new methods to combine paid and unpaid forms of care. - Provides a concise "roadmap" of the demographic, economic, health trends, and policy challenges facing family caregivers - Presents potential solutions to caregiving so that scientists, policymakers, and clinical providers can best meet the needs of families and communities in the upcoming decades - Includes in-depth, diverse stories of caregivers of persons with different diseases who share perspectives - Covers person-centered care approaches to family caregiving that summarize effective community-based services of psychosocial intervention models - Examines how existing efficacious models can more effectively reach and serve individual families

Routledge Handbook of Technological Advances in Researching Language Learning

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Author :
Publisher : Taylor & Francis
ISBN 13 : 1040165443
Total Pages : 697 pages
Book Rating : 4.0/5 (41 download)

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Book Synopsis Routledge Handbook of Technological Advances in Researching Language Learning by : Karim Sadeghi

Download or read book Routledge Handbook of Technological Advances in Researching Language Learning written by Karim Sadeghi and published by Taylor & Francis. This book was released on 2024-11-29 with total page 697 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Routledge Handbook of Technological Advances in Researching Language Learning is the first volume to bring together the extant scholarship on the nature and role of digital technology in conducting second language research. The Handbook showcases technological advances, including issues and considerations, affecting research conduction in second language education. The contributions focus on the role of digital technology in researching second language education, second language acquisition, and applied linguistics. Contributions by both seasoned and junior scholars feature empirical studies and methodological and/or theoretical discussions of technological tools used (or tools that can be used) for conducting research into various aspects of second language learning and acquisition. This book will primarily appeal to academic specialists, practitioners, and professionals in the field of applied linguistics and second language education. The book will also be informative for scholars and professionals in disciplines such as educational technology and TESOL.

Handbook of Methods in Cultural Anthropology

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Publisher : Rowman & Littlefield
ISBN 13 : 0759120722
Total Pages : 785 pages
Book Rating : 4.7/5 (591 download)

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Book Synopsis Handbook of Methods in Cultural Anthropology by : H. Russell Bernard

Download or read book Handbook of Methods in Cultural Anthropology written by H. Russell Bernard and published by Rowman & Littlefield. This book was released on 2014-07-08 with total page 785 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Handbook of Methods in Cultural Anthropology, now in its second edition, maintains a strong benchmark for understanding the scope of contemporary anthropological field methods. Avoiding divisive debates over science and humanism, the contributors draw upon both traditions to explore fieldwork in practice. The second edition also reflects major developments of the past decade, including: the rising prominence of mixed methods, the emergence of new technologies, and evolving views on ethnographic writing. Spanning the chain of research, from designing a project through methods of data collection and interpretive analysis, the Handbook features new chapters on ethnography of online communities, social survey research, and network and geospatial analysis. Considered discussion of ethics, epistemology, and the presentation of research results to diverse audiences round out the volume. The result is an essential guide for all scholars, professionals, and advanced students who employ fieldwork.

Rita Cheminais' Handbook for New SENCOs

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Author :
Publisher : SAGE
ISBN 13 : 1446244873
Total Pages : 161 pages
Book Rating : 4.4/5 (462 download)

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Book Synopsis Rita Cheminais' Handbook for New SENCOs by : Rita Cheminais

Download or read book Rita Cheminais' Handbook for New SENCOs written by Rita Cheminais and published by SAGE. This book was released on 2010-09-13 with total page 161 pages. Available in PDF, EPUB and Kindle. Book excerpt: With downloadable electronic resources Are you a new or trainee SENCO (Special Educational Needs Co-ordinator) looking for guidance? Do you have responsibility for your school's special educational needs (SEN) provision? Leading and co-ordinating SEN provision within a whole school is a mammoth task, and this book is your ultimate guide to getting it right. By breaking down the detailed information into manageable chunks, this book sets out the responsibilities of the SENCO and helps you make sure you are meeting the requirements of the SENCO Regulations. It is an invaluable guide for those working with children and young people from Birth to 19 in any setting. Chapters cover: - SEN, disability and Every Child Matters (ECM) legislation and policy - key elements of the National Award for SEN Coordination - coordinating SEN provision - planning and deploying the SEN budget - working in partnership with young people, parents and other professionals - leading, developing and supporting colleagues - record keeping and information management - provision mapping and management. Visit www.sagepub.co.uk/ritacheminais for downloadable materials to support the chapters in this book, which include templates, activities, a PowerPoint presentation, staff surveys and training plans. Suitable for new SENCOs and anyone responsible for SEN provision in their setting, this handbook will also be of interest to everyone involved with delivering the national SENCO training.

Education Technology in the New Normal: Now and Beyond

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Author :
Publisher : Taylor & Francis
ISBN 13 : 1000931897
Total Pages : 360 pages
Book Rating : 4.0/5 (9 download)

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Book Synopsis Education Technology in the New Normal: Now and Beyond by : Paulina Pannen

Download or read book Education Technology in the New Normal: Now and Beyond written by Paulina Pannen and published by Taylor & Francis. This book was released on 2023-06-27 with total page 360 pages. Available in PDF, EPUB and Kindle. Book excerpt: The proceedings of the International Symposium on Open, Distance, and E-Learning (ISODEL 2021) share ideas, either research results or literature reviews, on distance education, media, and education in the digital era. Some recent issues consist of innovative education in the digital era, new media Industry 4.0, Digital Education Transformation, Character Building, Vocational Education 4.0, and Preserving Future Children Characters and Culture. It is expected that the proceedings will provide new insights to the knowledge and practice of education and education technology research. Therefore, such parties involved in education research such as academics, practitioners, business leaders, and others will benefit from the contents of the proceedings.

The New Normal of Working Lives

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Publisher : Springer
ISBN 13 : 3319660381
Total Pages : 350 pages
Book Rating : 4.3/5 (196 download)

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Book Synopsis The New Normal of Working Lives by : Stephanie Taylor

Download or read book The New Normal of Working Lives written by Stephanie Taylor and published by Springer. This book was released on 2017-12-06 with total page 350 pages. Available in PDF, EPUB and Kindle. Book excerpt: This critical, international and interdisciplinary edited collection investigates the new normal of work and employment, presenting research on the experience of the workers themselves. The collection explores the formation of contemporary worker subjects, and the privilege or disadvantage in play around gender, class, age and national location within the global workforce. Organised around the three areas of: creative working, digital working lives, and transitions and transformations, its fifteen chapters examine in detail the emerging norms of work and work activities in a range of occupations and locations. It also investigates the coping strategies adopted by workers to manage novel difficulties and life circumstances, and their understandings of the possibilities, trajectories, mobilities, identities and potential rewards of their work situations. This book will appeal to a wide range of audiences, including students and academics of the sociology of work and labor history, and those interested in understanding the implications of the ‘new normal’ of work and employment.

Medical Data Sharing, Harmonization and Analytics

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Publisher : Academic Press
ISBN 13 : 0128165596
Total Pages : 384 pages
Book Rating : 4.1/5 (281 download)

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Book Synopsis Medical Data Sharing, Harmonization and Analytics by : Vasileios Pezoulas

Download or read book Medical Data Sharing, Harmonization and Analytics written by Vasileios Pezoulas and published by Academic Press. This book was released on 2020-01-05 with total page 384 pages. Available in PDF, EPUB and Kindle. Book excerpt: Medical Data Sharing, Harmonization and Analytics serves as the basis for understanding the rapidly evolving field of medical data harmonization combined with the latest cloud infrastructures for storing the harmonized (shared) data. Chapters cover the latest research and applications on data sharing and protection in the medical domain, cohort integration through the recent advancements in data harmonization, cloud computing for storing and securing the patient data, and data analytics for effectively processing the harmonized data. - Examines the unmet needs in chronic diseases as a part of medical data sharing - Discusses ethical, legal and privacy issues as part of data protection - Combines data harmonization and big data analytics strategies in shared medical data, along with relevant case studies in chronic diseases

Diversity's Promise for Higher Education

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Publisher : JHU Press
ISBN 13 : 1421449242
Total Pages : 416 pages
Book Rating : 4.4/5 (214 download)

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Book Synopsis Diversity's Promise for Higher Education by : Daryl G. Smith

Download or read book Diversity's Promise for Higher Education written by Daryl G. Smith and published by JHU Press. This book was released on 2024-08-06 with total page 416 pages. Available in PDF, EPUB and Kindle. Book excerpt: Building sustainable diversity in higher education isn't just the right thing to do—it is an imperative for institutional excellence and for a pluralistic society that works. In Diversity's Promise for Higher Education, author Daryl G. Smith proposes clear and realistic practices to help institutions identify diversity as a strategic imperative for excellence and pursue diversity efforts that are inclusive of the varied issues on campuses—without losing focus on the critical unfinished business of the past. To become more relevant while remaining true to their core missions, colleges and universities must continue to frame diversity as central to institutional excellence. Smith suggests that seeing diversity as an imperative for an institution's mission, and not just as a value, is the necessary lever for real institutional change. Furthermore, achieving excellence in a diverse society requires increasing institutional capacity for diversity—working to understand how diversity is tied to better leadership, positive change, research in virtually every field, student success, accountability, and more equitable hiring practices. In this edition, Smith emphasizes a transdisciplinary approach to the topic of diversity. Drawing on fifty years of diversity studies, this fourth edition engages with how the environment has transformed for diversity work since the third edition appeared in 2020. It • addresses the changed landscape in which DEI work has been politicized both on and off campus; • provides examples and language to suggest ways to articulate the centrality of diversity to mission and excellence; • emphasizes the link between healthy democracies and higher education's mission in light of the current global and domestic challenges to democracy; • highlights the need to focus on the conditions for developing healthy communities where dialogue, difference, and learning can take place; • examines the current climate of campus protests and the implications for free speech and academic freedom; and • reemphasizes the complexity of identity—and explains how to attend to the growing kinds of identities relevant to diversity, equity, and inclusion while not overshadowing the unfinished business of race, class, and gender.

The New Normal and Its Impact on Society

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Author :
Publisher : Springer Nature
ISBN 13 : 9819705274
Total Pages : 118 pages
Book Rating : 4.8/5 (197 download)

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Book Synopsis The New Normal and Its Impact on Society by : Nurliana Kamaruddin

Download or read book The New Normal and Its Impact on Society written by Nurliana Kamaruddin and published by Springer Nature. This book was released on with total page 118 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Enhancing Access to and Sharing of Data Reconciling Risks and Benefits for Data Re-use across Societies

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Author :
Publisher : OECD Publishing
ISBN 13 : 9264660658
Total Pages : 138 pages
Book Rating : 4.2/5 (646 download)

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Book Synopsis Enhancing Access to and Sharing of Data Reconciling Risks and Benefits for Data Re-use across Societies by : OECD

Download or read book Enhancing Access to and Sharing of Data Reconciling Risks and Benefits for Data Re-use across Societies written by OECD and published by OECD Publishing. This book was released on 2019-11-26 with total page 138 pages. Available in PDF, EPUB and Kindle. Book excerpt: This report examines the opportunities of enhancing access to and sharing of data (EASD) in the context of the growing importance of artificial intelligence and the Internet of Things. It discusses how EASD can maximise the social and economic value of data re-use and how the related risks and challenges can be addressed. It highlights the trade-offs, complementarities and possible unintended consequences of policy action – and inaction. It also provides examples of EASD approaches and policy initiatives in OECD countries and partner economies.

Plan S for Shock

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Author :
Publisher : Ubiquity Press
ISBN 13 : 1914481178
Total Pages : 226 pages
Book Rating : 4.9/5 (144 download)

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Book Synopsis Plan S for Shock by : Robert-Jan Smits

Download or read book Plan S for Shock written by Robert-Jan Smits and published by Ubiquity Press. This book was released on 2022-01-27 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: Plan S for shock: the open access initiative that changed the face of global research. This is the story of open access publishing – why it matters now, and for the future. In a world where information has never been so accessible, and answers are available at the touch of a fingertip, we are hungrier for the facts than ever before – something the Covid-19 crisis has brought to light. And yet, paywalls put in place by multi-billion dollar publishing houses are still preventing millions from accessing quality, scientific knowledge – and public trust in science is under threat. On 4 September 2018, a bold new initiative known as ‘Plan S’ was unveiled, kickstarting a world-wide shift in attitudes towards open access research. For the first time, funding agencies across continents joined forces to impose new rules on the publication of research, with the aim of one day making all research free and available to all. What followed was a debate of global proportions, as stakeholders asked: Who has the right to access publicly-funded research? Will it ever be possible to enforce change on a multi-billion dollar market dominated by five major players? Here, the scheme’s founder, Robert-Jan Smits, makes a compelling case for Open Access, and reveals for the first time how he set about turning his controversial plan into reality – as well as some of the challenges faced along the way. In telling his story, Smits argues that the Covid-19 crisis has exposed the traditional academic publishing system as unsustainable.