Experiences of Adolescents Living with Type 1 Diabetes Mellitus Whilst Negotiating with the Society

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Publisher : AuthorHouse
ISBN 13 : 1728383811
Total Pages : 64 pages
Book Rating : 4.7/5 (283 download)

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Book Synopsis Experiences of Adolescents Living with Type 1 Diabetes Mellitus Whilst Negotiating with the Society by : Gloria Tshabalala

Download or read book Experiences of Adolescents Living with Type 1 Diabetes Mellitus Whilst Negotiating with the Society written by Gloria Tshabalala and published by AuthorHouse. This book was released on 2019-01-25 with total page 64 pages. Available in PDF, EPUB and Kindle. Book excerpt: This qualitative study aimed to explore the experiences of adolescents living with type 1 diabetes mellitus (T1DM) and how society perceives them. T1DM is a chronic condition characterized by abnormally high blood glucose due to lack of insulin production by the cells in the pancreas. The treatment is insulin injections or infusions, as there is no medical cure at the moment. More specifically, the study examined how the adolescents manage the illness and cope with the perception and stigmatization related to this condition. Despite the existence of research into living and coping with some chronic conditions, research on TIDM, particularly using qualitative methodologies, is limited. A review in literature also indicated insufficient studies on stigma associated with chronic conditions that have no overt symptoms. In-depth interviews were conducted with nine diverse volunteers after obtaining informed consent (five females and four males). The volunteers were aged between sixteen to nineteen years with a duration of diabetes at a minimum of two years since diagnosis. An analysis of interview results was based on ground theory methodology whereby many categories were generated. From these two core categories, which are assimilation and accommodation, stigmatization emerged. These represent the adolescents’ attempt to cope with the experience of living with TIDM and the views of society on this condition with no visible physical abnormalities. Parts of the implications of these findings confirm that medical model management needs to consider psychosocial aspects in order to facilitate adjustment to the chronic condition. Further qualitative research using a bigger sample over a longer period was recommended. The DAWN study (attitudes, wishes, and needs in diabetes) has since been carried out.

Experiences of Adolescents Living with Type 1 Diabetes Mellitus Whilst Negotiating with the Society

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Publisher :
ISBN 13 : 9781956001211
Total Pages : 74 pages
Book Rating : 4.0/5 (12 download)

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Book Synopsis Experiences of Adolescents Living with Type 1 Diabetes Mellitus Whilst Negotiating with the Society by : Gloria Tshabalala

Download or read book Experiences of Adolescents Living with Type 1 Diabetes Mellitus Whilst Negotiating with the Society written by Gloria Tshabalala and published by . This book was released on 2021-07-06 with total page 74 pages. Available in PDF, EPUB and Kindle. Book excerpt: This qualitative study aimed to explore the experiences of adolescents living with type 1 diabetes mellitus (T1DM) and how society perceives them. T1DM is a chronic condition characterized by abnormally high blood glucose due to lack of insulin production by the cells in the pancreas. The treatment is insulin injections or infusions, as there is no medical cure at the moment. More specifically, the study examined how the adolescents manage the illness and cope with the perception and stigmatization related to this condition. Despite the existence of research into living and coping with some chronic conditions, research on TIDM, particularly using qualitative methodologies, is limited. A review in literature also indicated insufficient studies on stigma associated with chronic conditions that have no overt symptoms. In-depth interviews were conducted with nine diverse volunteers after obtaining informed consent (five females and four males). The volunteers were aged between sixteen to nineteen years with a duration of diabetes at a minimum of two years since diagnosis. An analysis of interview results was based on ground theory methodology whereby many categories were generated. From these two core categories, which are assimilation and accommodation, stigmatization emerged. These represent the adolescents' attempt to cope with the experience of living with TIDM and the views of society on this condition with no visible physical abnormalities. Parts of the implications of these findings confirm that medical model management needs to consider psychosocial aspects in order to facilitate adjustment to the chronic condition. Further qualitative research using a bigger sample over a longer period was recommended. The DAWN study (attitudes, wishes, and needs in diabetes) has since been carried out.

Adolescent Perspectives on Communication and Negotiation of Self Management Responsibilities for Type 1 Diabetes with Parents: a Mixed Methods Study

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Publisher :
ISBN 13 :
Total Pages : 0 pages
Book Rating : 4.:/5 (141 download)

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Book Synopsis Adolescent Perspectives on Communication and Negotiation of Self Management Responsibilities for Type 1 Diabetes with Parents: a Mixed Methods Study by : Isabella Tuohy

Download or read book Adolescent Perspectives on Communication and Negotiation of Self Management Responsibilities for Type 1 Diabetes with Parents: a Mixed Methods Study written by Isabella Tuohy and published by . This book was released on 2021 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Adolescents living with type 1 diabetes (T1D) begin to adopt a more collaborative approach to managing T1D with their parents before becoming independent in self-management. However, adolescents can encounter difficulties with T1D management and ambiguity in relation to the division of responsibilities for T1D management with their parents. This study aimed to explore: (1) how adolescents living with T1D experience self-management of T1D and share self-management responsibilities with parents and (2) the relationship between adolescent communication with parents about T1D self-management and demographic, clinical and psychosocial variables. A meta-synthesis of qualitative literature on child and adolescent experiences of self-management of T1D was conducted. The findings of the meta-synthesis indicated that balancing the demands of self-management with other aspects of life and sense of control over T1D are important for self-management of T1D. Following this a mixed methods study involving two phases was conducted; semi-structured interviews with adolescents aged 11 to 17 years (n = 28) and a cross-sectional survey with adolescents aged 11 to 17 years (n = 113). In interviews, adolescents highlighted their experiences of gaining independence in self-management in the overarching theme 'Navigating increasing responsibility for self-management during adolescence: "it changed gradually... and I am almost fully doing it [self-managing] now". The following themes contributed to the overarching theme: (1) Changing levels of involvement in self-management, (2) Talking about self-management with parents, (3) Taking ownership of self-management and (4) Environmental and contextual influences affecting self-management. The findings from the quantitative phase of this study indicated that parent-adolescent communication and T1D-specific family conflict are associated with T1D self-efficacy, division of family responsibility for T1D management, activation and self-management of T1D. However, the findings also indicated that T1D-specific family conflict and parent-adolescent communication are differentially related to distinct aspects of self-management and QOL. Overall, this study identified that parent-adolescent communication and family context characteristics relate to and contribute to self-management and T1D-specific QOL in adolescents living with T1D. This research identified what factors contribute to helping or hindering adolescent engagement with self-management of T1D and specifically that adolescents' perceptions of their communication with their parents about T1D management are important. For the first time, the findings provide a nuanced understanding of adolescent perspectives on self-management of T1D and communication with parents about T1D self-management. Promoting self-efficacy through targeting communication strategies employed by adolescents and their parents may result in more optimal sharing of responsibilities, improved self-management and better QOL for adolescents living with T1D.

Normalizing

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Publisher :
ISBN 13 :
Total Pages : 228 pages
Book Rating : 4.:/5 (879 download)

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Book Synopsis Normalizing by : Elizabeth K. Babler

Download or read book Normalizing written by Elizabeth K. Babler and published by . This book was released on 2013 with total page 228 pages. Available in PDF, EPUB and Kindle. Book excerpt: The purpose of this research effort among adolescents ages 11 to 15 years was to gain a greater understanding, from the adolescent's perspective, of their experiences in living with diabetes and associated challenges and management issues they faced. The aim was to build a theoretical paradigm that captured the main categories and moving processes in the experiences of adolescents and provided much needed information and hypotheses to support interventional design. Classical grounded theory with constant comparative analysis using gerund coding was utilized. Fifteen individual interviews were conducted. The substantive theory that was developed was "normalizing". Normalizing is defined as the ability of the adolescents to integrate diabetes into the background of their daily life by creating routines to make diabetes `part of me'. The conceptual codes developed that describe normalizing for adolescents with diabetes included: a) `recognizing life is changing', b) `taking action to prevent a crisis', c) `disclosing to engage support', d) `taking on the burden of care', e) `accepting the `new normal'', and f) `hoping for a normal future'. For adolescents with diabetes, the normal developmental tasks of adolescence are closely related to each step of this normalizing process and help to explain why adolescents struggle with diabetes during this phase of adolescence. Needle fear, moving through transition to self-care, conflict with parents, and the interactions, reactions and emotions of others were key processes that affect the ability to normalize. Strategies used by adolescents in managing their diabetes include maintaining motivation, building trust, and learning to cope. The supportive behaviors of parents, peers, teachers, and others were helpful. When researchers and clinicians view this difficult stage of adolescent diabetes care as an attempt to normalize their life, it places a very different and positive perspective on this process with a focus on wellness and maintaining a normal life rather than a focus on illness. This creates many new opportunities to provide education and interventions to not only help the adolescents normalize but also assist their parents, peers, schools, and communities to help them normalize their life as well.

Synthesizing Qualitative Research

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Author :
Publisher : John Wiley & Sons
ISBN 13 : 1119959829
Total Pages : 144 pages
Book Rating : 4.1/5 (199 download)

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Book Synopsis Synthesizing Qualitative Research by : Karin Hannes

Download or read book Synthesizing Qualitative Research written by Karin Hannes and published by John Wiley & Sons. This book was released on 2011-10-13 with total page 144 pages. Available in PDF, EPUB and Kindle. Book excerpt: A considerable number of journal publications using a range of qualitative synthesis approaches has been published. Mary Dixon-Woods and colleagues (Mary Dixon-Woods, Booth, & Sutton, 2007) identified 42 qualitative evidence synthesis papers published in health care literature between 1990 and 2004. An ongoing update by Hannes and Macaitis (2010)identified around 100 additional qualitative or mixed methods syntheses. Yet these generally lack a clear, detailed description of what was done and why (Greenhalgh et al, 2007; McInnes & Wimpenny, 2008). Choices are most commonly influenced by what others have successfully used in the past or by a particular school of thought (Atkins et al, 2008; Britten et al, 2002). This is a substantive limitation. This book brings balance to the options available to researchers, including approaches that have not had a substantial uptake among researchers. It provides arguments for when and why researchers or other parties of interest should opt for a certain approach to synthesis, which challenges they might face in adopting it and what the potential strengths and weaknesses are compared with other approaches. This book acts as a resource for readers who would otherwise have to piece together the methodology from a range of journal articles. In addition, it should stimulate further development and documentation of synthesis methodology in a field that is characterized by diversity.

The Promise of Adolescence

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Publisher : National Academies Press
ISBN 13 : 0309490111
Total Pages : 493 pages
Book Rating : 4.3/5 (94 download)

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Book Synopsis The Promise of Adolescence by : National Academies of Sciences, Engineering, and Medicine

Download or read book The Promise of Adolescence written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2019-07-26 with total page 493 pages. Available in PDF, EPUB and Kindle. Book excerpt: Adolescenceâ€"beginning with the onset of puberty and ending in the mid-20sâ€"is a critical period of development during which key areas of the brain mature and develop. These changes in brain structure, function, and connectivity mark adolescence as a period of opportunity to discover new vistas, to form relationships with peers and adults, and to explore one's developing identity. It is also a period of resilience that can ameliorate childhood setbacks and set the stage for a thriving trajectory over the life course. Because adolescents comprise nearly one-fourth of the entire U.S. population, the nation needs policies and practices that will better leverage these developmental opportunities to harness the promise of adolescenceâ€"rather than focusing myopically on containing its risks. This report examines the neurobiological and socio-behavioral science of adolescent development and outlines how this knowledge can be applied, both to promote adolescent well-being, resilience, and development, and to rectify structural barriers and inequalities in opportunity, enabling all adolescents to flourish.

The American Diabetes Association/JDRF Type 1 Diabetes Sourcebook

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Publisher : American Diabetes Association
ISBN 13 : 1580405061
Total Pages : 729 pages
Book Rating : 4.5/5 (84 download)

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Book Synopsis The American Diabetes Association/JDRF Type 1 Diabetes Sourcebook by : Anne L. Peters

Download or read book The American Diabetes Association/JDRF Type 1 Diabetes Sourcebook written by Anne L. Peters and published by American Diabetes Association. This book was released on 2013-03-29 with total page 729 pages. Available in PDF, EPUB and Kindle. Book excerpt: The American Diabetes Association/JDRF Type 1 Diabetes Sourcebook serves as both an evidence-based reference work and consensus report outlining the most critical components of care for individuals with type 1 diabetes throughout their lifespan. The volume serves not only as a comprehensive guide for clinicians, but also reviews the evidence supporting these components of care and provides a perspective on the critical areas of research that are needed to improve our understanding of type 1 diabetes diagnosis and treatment. The volume focuses specifically on the needs of patients with type 1 diabetes and provides clear and detailed guidance on the current standards for the optimal treatment of type 1 diabetes from early childhood to later life. To accomplish the book’s editorial goals, Editors-in-Chief, Drs. Anne Peters and Lori Laffel, assembled an editorial steering committee of prominent research physicians, clinicians, and educators to develop the topical coverage. In addition, a Managing Editor was brought on to help the authors write and focus their chapters.

Social Reproduction

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Publisher : McGill-Queen's Press - MQUP
ISBN 13 : 0773531033
Total Pages : 337 pages
Book Rating : 4.7/5 (735 download)

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Book Synopsis Social Reproduction by : Meg Luxton

Download or read book Social Reproduction written by Meg Luxton and published by McGill-Queen's Press - MQUP. This book was released on 2006 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: Using a feminist political economy approach, contributors document the impact of current socio-economic policies on states, markets, households, and communities. Relying on impressive empirical research, they argue that women bear the costs of and responsibility for care-giving and show that the theoretical framework provided by feminist analyses of social reproduction not only corrects the gender-blindness of most economic theories but suggests an alternative that places care-giving at its centre. In this illuminating study, they challenge feminist scholars to re-engage with materialism and political economy to engage with feminism.

Diabetes Burnout

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Publisher : American Diabetes Association
ISBN 13 : 1580400337
Total Pages : 362 pages
Book Rating : 4.5/5 (84 download)

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Book Synopsis Diabetes Burnout by : William Polonsky

Download or read book Diabetes Burnout written by William Polonsky and published by American Diabetes Association. This book was released on 1999-12-01 with total page 362 pages. Available in PDF, EPUB and Kindle. Book excerpt: Living with diabetes is hard. It's easy to get discouraged, frustrated, and burned out. Here's an author that understands the emotional rollercoaster and gives you the tools you need to keep from being overwhelmed, addressing such issues as dealing with friends and family, and how you can better handle the stress for better health. Written with compassion and a sprinkle of humor.

The Type 1 Diabetes Self-Care Manual

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Publisher : American Diabetes Association
ISBN 13 : 1580406920
Total Pages : 168 pages
Book Rating : 4.5/5 (84 download)

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Book Synopsis The Type 1 Diabetes Self-Care Manual by : Wood Jamie

Download or read book The Type 1 Diabetes Self-Care Manual written by Wood Jamie and published by American Diabetes Association. This book was released on 2017-11-08 with total page 168 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Type 1 Diabetes Self-Care Manual: A Complete Guide to Type 1 Diabetes Across the Lifespan for People with Diabetes, Parents, and Caregivers offers practical, evidence-based and common sense help for people with type 1 diabetes and their caregivers. For the close to 1.5 million people with type 1 diabetes in the United States alone and their family and friends, this book will help them understand the effects of type 1 diabetes, not just when diagnosed, but throughout their lifespan. Dr. Jamie Wood and Dr. Anne Peters, two of the most respected and sought-after endocrinologists, provide an easy-to-follow narrative on all aspects of the disease. The Type 1 Diabetes Self-Care Manual will be the go-to reference for everyone touched by type 1 diabetes.

Caring for Diabetes in Children and Adolescents

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Publisher :
ISBN 13 : 9780957944336
Total Pages : 216 pages
Book Rating : 4.9/5 (443 download)

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Book Synopsis Caring for Diabetes in Children and Adolescents by : Geoffery Richard Ambler

Download or read book Caring for Diabetes in Children and Adolescents written by Geoffery Richard Ambler and published by . This book was released on 2010 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Caring for diabetes in children and adolescents is a challenging task for families and their health professionals. Education and knowledge are essential elements in being able to look after your child’s diabetes from day to day and in special situations. This resource aims to provide this information for you. It will help you revise and build on your knowledge from your diabetes education and also serve as a ready reference when new situations arise."--Publisher's website.

Diabetes in Childhood and Adolescence

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Publisher : Karger Medical and Scientific Publishers
ISBN 13 : 3805577664
Total Pages : 391 pages
Book Rating : 4.8/5 (55 download)

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Book Synopsis Diabetes in Childhood and Adolescence by : Francesco Chiarelli

Download or read book Diabetes in Childhood and Adolescence written by Francesco Chiarelli and published by Karger Medical and Scientific Publishers. This book was released on 2005-01-01 with total page 391 pages. Available in PDF, EPUB and Kindle. Book excerpt: Diabetes mellitus is one of the most frequent chronic diseases affecting children and adolescents. The number of young children being diagnosed with type 1 diabetes is increasing worldwide and an epidemic of type 2 diabetes already at a young age is being

Adolescent Risk and Vulnerability

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Publisher : National Academies Press
ISBN 13 : 0309170362
Total Pages : 164 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Adolescent Risk and Vulnerability by : National Research Council

Download or read book Adolescent Risk and Vulnerability written by National Research Council and published by National Academies Press. This book was released on 2001-10-08 with total page 164 pages. Available in PDF, EPUB and Kindle. Book excerpt: Adolescents obviously do not always act in ways that serve their own best interests, even as defined by them. Sometimes their perception of their own risks, even of survival to adulthood, is larger than the reality; in other cases, they underestimate the risks of particular actions or behaviors. It is possible, indeed likely, that some adolescents engage in risky behaviors because of a perception of invulnerabilityâ€"the current conventional wisdom of adults' views of adolescent behavior. Others, however, take risks because they feel vulnerable to a point approaching hopelessness. In either case, these perceptions can prompt adolescents to make poor decisions that can put them at risk and leave them vulnerable to physical or psychological harm that may have a negative impact on their long-term health and viability. A small planning group was formed to develop a workshop on reconceptualizing adolescent risk and vulnerability. With funding from Carnegie Corporation of New York, the Workshop on Adolescent Risk and Vulnerability: Setting Priorities took place on March 13, 2001, in Washington, DC. The workshop's goal was to put into perspective the total burden of vulnerability that adolescents face, taking advantage of the growing societal concern for adolescents, the need to set priorities for meeting adolescents' needs, and the opportunity to apply decision-making perspectives to this critical area. This report summarizes the workshop.

Parenting Matters

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Publisher : National Academies Press
ISBN 13 : 0309388570
Total Pages : 525 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Parenting Matters by : National Academies of Sciences, Engineering, and Medicine

Download or read book Parenting Matters written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-21 with total page 525 pages. Available in PDF, EPUB and Kindle. Book excerpt: Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.

Playing Boal

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Author :
Publisher : Routledge
ISBN 13 : 1134884702
Total Pages : 256 pages
Book Rating : 4.1/5 (348 download)

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Book Synopsis Playing Boal by : Jan Cohen-Cruz

Download or read book Playing Boal written by Jan Cohen-Cruz and published by Routledge. This book was released on 2002-09-11 with total page 256 pages. Available in PDF, EPUB and Kindle. Book excerpt: Playing Boal examines the techniques in application of Augusto Boal, creator of Theatre of the Oppressed, Brazilian theatre maker and political activist. This text looks at the use of the Theatre of the Oppressed exercises by a variety of practitioners and scholars working in Europe, North America and Canada. It explores the possibilities of these tools for "active learning and personal empowerment; co-operative education and healing; participatory theatre and community action." This collection is designed to illuminate and invigorate discussion about Augusto Boal's work and the transformative potential of theatre. It includes two interviews with Boal, and two pieces of his own writing.

Making Eye Health a Population Health Imperative

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Publisher : National Academies Press
ISBN 13 : 0309439981
Total Pages : 587 pages
Book Rating : 4.3/5 (94 download)

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Book Synopsis Making Eye Health a Population Health Imperative by : National Academies of Sciences, Engineering, and Medicine

Download or read book Making Eye Health a Population Health Imperative written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2017-01-15 with total page 587 pages. Available in PDF, EPUB and Kindle. Book excerpt: The ability to see deeply affects how human beings perceive and interpret the world around them. For most people, eyesight is part of everyday communication, social activities, educational and professional pursuits, the care of others, and the maintenance of personal health, independence, and mobility. Functioning eyes and vision system can reduce an adult's risk of chronic health conditions, death, falls and injuries, social isolation, depression, and other psychological problems. In children, properly maintained eye and vision health contributes to a child's social development, academic achievement, and better health across the lifespan. The public generally recognizes its reliance on sight and fears its loss, but emphasis on eye and vision health, in general, has not been integrated into daily life to the same extent as other health promotion activities, such as teeth brushing; hand washing; physical and mental exercise; and various injury prevention behaviors. A larger population health approach is needed to engage a wide range of stakeholders in coordinated efforts that can sustain the scope of behavior change. The shaping of socioeconomic environments can eventually lead to new social norms that promote eye and vision health. Making Eye Health a Population Health Imperative: Vision for Tomorrow proposes a new population-centered framework to guide action and coordination among various, and sometimes competing, stakeholders in pursuit of improved eye and vision health and health equity in the United States. Building on the momentum of previous public health efforts, this report also introduces a model for action that highlights different levels of prevention activities across a range of stakeholders and provides specific examples of how population health strategies can be translated into cohesive areas for action at federal, state, and local levels.

Psychosocial Care for People with Diabetes

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Author :
Publisher : American Diabetes Association
ISBN 13 : 1580404391
Total Pages : 330 pages
Book Rating : 4.5/5 (84 download)

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Book Synopsis Psychosocial Care for People with Diabetes by : Deborah Young-Hyman

Download or read book Psychosocial Care for People with Diabetes written by Deborah Young-Hyman and published by American Diabetes Association. This book was released on 2012-12-25 with total page 330 pages. Available in PDF, EPUB and Kindle. Book excerpt: Psychosocial Care for People with Diabetes describes the major psychosocial issues which impact living with and self-management of diabetes and its related diseases, and provides treatment recommendations based on proven interventions and expert opinion. The book is comprehensive and provides the practitioner with guidelines to access and prescribe treatment for psychosocial problems commonly associated with living with diabetes.