Caring For Children With Complex Needs In The Community

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Caring for Children with Complex Needs in the Community

Author : Jean Teare
Publisher : Wiley-Blackwell
ISBN 13 : 9781405151771
Total Pages : 0 pages
Book Rating : 4.1/5 (517 download)

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Book Synopsis Caring for Children with Complex Needs in the Community by : Jean Teare

Download or read book Caring for Children with Complex Needs in the Community written by Jean Teare and published by Wiley-Blackwell. This book was released on 2008-04-21 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Caring for the Child with Complex Needs in Community Settings provides a valuable overview of the key factors relating to caring for children with complex and continuing care needs. Despite its frequent and increasing use, complex care needs is a term without an agreed definition. This shortfall of knowledge is addressed in this book through critical discussion of evidence-based research and current health, social and education policy. It brings together the latest knowledge into one text providing practitioners with the crucial information needed when working with this diverse and broad group of children. Caring for the Child with Complex Needs in Community Settings explores caring for technology-dependent children who require respiratory assistance; caring for children who require home enteral tube feeds; and caring for children with complex disabilities. It looks at multi-agency care, respite care for families, social service support and educational support of children with complex needs. Practitioners from health, social services and education backgrounds have contributed to the chapters using case studies, while a parent of a child with complex needs has provided a personal view of caring. This accessible and practical text provides core knowledge and vital insight required for successful delivery of community care for children with complex and continuing care needs.

Caring for Children with Complex Needs in the Community

Author : Jean Teare
Publisher : John Wiley & Sons
ISBN 13 : 1444302620
Total Pages : 208 pages
Book Rating : 4.4/5 (443 download)

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Book Synopsis Caring for Children with Complex Needs in the Community by : Jean Teare

Download or read book Caring for Children with Complex Needs in the Community written by Jean Teare and published by John Wiley & Sons. This book was released on 2009-01-22 with total page 208 pages. Available in PDF, EPUB and Kindle. Book excerpt: Caring for the Child with Complex Needs in Community Settingsprovides a valuable overview of the key factors relating to caringfor children with complex and continuing care needs. Despite itsfrequent and increasing use, complex care needs is a term withoutan agreed definition. This shortfall of knowledge is addressed inthis book through critical discussion of evidence-based researchand current health, social and education policy. It brings togetherthe latest knowledge into one text providing practitioners with thecrucial information needed when working with this diverse and broadgroup of children. Caring for the Child with Complex Needs in Community Settingsexplores caring for technology-dependent children who requirerespiratory assistance; caring for children who require homeenteral tube feeds; and caring for children with complexdisabilities. It looks at multi-agency care, respite care forfamilies, social service support and educational support ofchildren with complex needs. Practitioners from health, socialservices and education backgrounds have contributed to the chaptersusing case studies, while a parent of a child with complex needshas provided a personal view of caring. This accessible andpractical text provides core knowledge and vital insight requiredfor successful delivery of community care for children with complexand continuing care needs.

Parenting Matters

Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309388570
Total Pages : 525 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Parenting Matters by : National Academies of Sciences, Engineering, and Medicine

Download or read book Parenting Matters written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-21 with total page 525 pages. Available in PDF, EPUB and Kindle. Book excerpt: Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.

Opportunities for Improving Programs and Services for Children with Disabilities

Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309472245
Total Pages : 351 pages
Book Rating : 4.3/5 (94 download)

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Book Synopsis Opportunities for Improving Programs and Services for Children with Disabilities by : National Academies of Sciences, Engineering, and Medicine

Download or read book Opportunities for Improving Programs and Services for Children with Disabilities written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2018-08-06 with total page 351 pages. Available in PDF, EPUB and Kindle. Book excerpt: Although the general public in the United States assumes children to be generally healthy and thriving, a substantial and growing number of children have at least one chronic health condition. Many of these conditions are associated with disabilities and interfere regularly with children's usual activities, such as play or leisure activities, attending school, and engaging in family or community activities. In their most severe forms, such disorders are serious lifelong threats to children's social, emotional well-being and quality of life, and anticipated adult outcomes such as for employment or independent living. However, pinpointing the prevalence of disability among children in the U.S. is difficult, as conceptual frameworks and definitions of disability vary among federal programs that provide services to this population and national surveys, the two primary sources for prevalence data. Opportunities for Improving Programs and Services for Children with Disabilities provides a comprehensive analysis of health outcomes for school-aged children with disabilities. This report reviews and assesses programs, services, and supports available to these children and their families. It also describes overarching program, service, and treatment goals; examines outreach efforts and utilization rates; identifies what outcomes are measured and how they are reported; and describes what is known about the effectiveness of these programs and services.

America's Children

Author : Institute of Medicine and National Research Council
Publisher : National Academies Press
ISBN 13 : 0309173930
Total Pages : 216 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis America's Children by : Institute of Medicine and National Research Council

Download or read book America's Children written by Institute of Medicine and National Research Council and published by National Academies Press. This book was released on 1998-10-27 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: America's Children is a comprehensive, easy-to-read analysis of the relationship between health insurance and access to care. The book addresses three broad questions: How is children's health care currently financed? Does insurance equal access to care? How should the nation address the health needs of this vulnerable population? America's Children explores the changing role of Medicaid under managed care; state-initiated and private sector children's insurance programs; specific effects of insurance status on the care children receive; and the impact of chronic medical conditions and special health care needs. It also examines the status of "safety net" health providers, including community health centers, children's hospitals, school-based health centers, and others and reviews the changing patterns of coverage and tax policy options to increase coverage of private-sector, employer-based health insurance. In response to growing public concerns about uninsured children, last year Congress voted to provide $24 billion over five years for new state insurance initiatives. This volume will serve as a primer for concerned federal policymakers and regulators, state agency officials, health plan decisionmakers, health care providers, children's health advocates, and researchers.

Issues and Opportunities in Primary Health Care for Children in Europe

Author : Mitch Blair
Publisher : Emerald Group Publishing
ISBN 13 : 1789733510
Total Pages : 432 pages
Book Rating : 4.7/5 (897 download)

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Book Synopsis Issues and Opportunities in Primary Health Care for Children in Europe by : Mitch Blair

Download or read book Issues and Opportunities in Primary Health Care for Children in Europe written by Mitch Blair and published by Emerald Group Publishing. This book was released on 2019-05-06 with total page 432 pages. Available in PDF, EPUB and Kindle. Book excerpt: The ebook edition of this title is Open Access and is freely available to read online. This book presents the scientific findings of a three-year project across 30 EU and EEA countries assessing primary care for children throughout the life-course, drawing from 20 academic partners' analysis of evidence produced by agents in each of the countries.

Nursing Care of Children and Young People with Long-Term Conditions

Author : Mandy Brimble
Publisher : John Wiley & Sons
ISBN 13 : 1119653118
Total Pages : 306 pages
Book Rating : 4.1/5 (196 download)

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Book Synopsis Nursing Care of Children and Young People with Long-Term Conditions by : Mandy Brimble

Download or read book Nursing Care of Children and Young People with Long-Term Conditions written by Mandy Brimble and published by John Wiley & Sons. This book was released on 2021-03-15 with total page 306 pages. Available in PDF, EPUB and Kindle. Book excerpt: The second edition of Nursing Care of Children and Young People with Long Term Conditions remains the only nursing-specific text on the care of paediatric patients with chronic illness. Written to meet the needs of nursing students and professionals alike, this comprehensive volume provides authoritative and up-to-date information on the context, theory, and practice of delivering holistic care to children and families in a range of health and social care settings. Contributions from a team of experienced academics, educators, and practitioners offer valuable insight into the impact of chronic illness on children and parents, the practical implications of meeting their physical, psychological, and social needs, empowering them to be 'experts' in their care, and many more vital aspects of long-term paediatric care. This edition features new and revised content reflecting contemporary guidelines and evidence-based practice, including updated clinical case studies and a new chapter examining the impact of having a sibling with a long-term condition. Emphasising a multi-disciplinary approach to managing chronic illness, this important resource: Provides numerous case studies and activities illustrating the application of theoretical principles and current evidence in nursing practice Investigates the genetic basis of chronic illness and the differing onsets of long-term conditions Discusses current political, economic, and social policies that are influencing healthcare for children and bringing challenges to managers and practitioners Examines both classic and contemporary theories of grief, loss, coping, and adaptation Explores ethical, legal, and professional aspects of nursing children and young people with chronic illness Addresses evolving nursing roles, the importance of acute emergency care, and the planning and delivery of effective transition from child to adult services Nursing Care of Children and Young People with Long Term Conditions is required reading for student and registered children's nurses, as well as for practitioners in related health and social care disciplines.

Nursing Care of Children and Young People with Chronic Illness

Author : Fay Valentine
Publisher : John Wiley & Sons
ISBN 13 : 0470691395
Total Pages : 280 pages
Book Rating : 4.4/5 (76 download)

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Book Synopsis Nursing Care of Children and Young People with Chronic Illness by : Fay Valentine

Download or read book Nursing Care of Children and Young People with Chronic Illness written by Fay Valentine and published by John Wiley & Sons. This book was released on 2008-04-15 with total page 280 pages. Available in PDF, EPUB and Kindle. Book excerpt: Children and young people suffering from long-term conditions require continuing support and nursing care throughout their lives. Nursing Care of Children and Young People with Chronic Illness explores chronic disease management in the context of recent developments, including the National Service Framework for Children. It addresses the aetiology of chronic illness and the impact on the child’s family. It also explores holistic approaches to caring for their social, physical and psychological needs, and highlights the importance of the nurse’s role in promoting children and their parents as ‘expert patients’. Nursing Care of Children and Young People with Chronic Illness is a comprehensive, up-to-date resource for nursing students and practitioners on the context, theory and practice of assessing health needs, and the delivery of holistic care and services within a variety of care settings, to enable them to meet the changing needs of children and young people with chronic illnesses and diseases, and their families. The first nursing-specific text related to the care of children & young people with chronic illness Incorporates case studies & scenarios throughout to enable readers to gain an understanding of the application of concepts & theories in practice Covers care aspects of the child and young person in different settings including tertiary, secondary, primary health care and the home Written in the context of the NSF for Children

Integrating Social Care into the Delivery of Health Care

Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309493463
Total Pages : 195 pages
Book Rating : 4.3/5 (94 download)

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Book Synopsis Integrating Social Care into the Delivery of Health Care by : National Academies of Sciences, Engineering, and Medicine

Download or read book Integrating Social Care into the Delivery of Health Care written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2019-12-30 with total page 195 pages. Available in PDF, EPUB and Kindle. Book excerpt: Integrating Social Care into the Delivery of Health Care: Moving Upstream to Improve the Nation's Health was released in September 2019, before the World Health Organization declared COVID-19 a global pandemic in March 2020. Improving social conditions remains critical to improving health outcomes, and integrating social care into health care delivery is more relevant than ever in the context of the pandemic and increased strains placed on the U.S. health care system. The report and its related products ultimately aim to help improve health and health equity, during COVID-19 and beyond. The consistent and compelling evidence on how social determinants shape health has led to a growing recognition throughout the health care sector that improving health and health equity is likely to depend â€" at least in part â€" on mitigating adverse social determinants. This recognition has been bolstered by a shift in the health care sector towards value-based payment, which incentivizes improved health outcomes for persons and populations rather than service delivery alone. The combined result of these changes has been a growing emphasis on health care systems addressing patients' social risk factors and social needs with the aim of improving health outcomes. This may involve health care systems linking individual patients with government and community social services, but important questions need to be answered about when and how health care systems should integrate social care into their practices and what kinds of infrastructure are required to facilitate such activities. Integrating Social Care into the Delivery of Health Care: Moving Upstream to Improve the Nation's Health examines the potential for integrating services addressing social needs and the social determinants of health into the delivery of health care to achieve better health outcomes. This report assesses approaches to social care integration currently being taken by health care providers and systems, and new or emerging approaches and opportunities; current roles in such integration by different disciplines and organizations, and new or emerging roles and types of providers; and current and emerging efforts to design health care systems to improve the nation's health and reduce health inequities.

Essential Nursing Care for Children and Young People

Author : Chris Thurston
Publisher : Routledge
ISBN 13 : 1317818997
Total Pages : 472 pages
Book Rating : 4.3/5 (178 download)

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Book Synopsis Essential Nursing Care for Children and Young People by : Chris Thurston

Download or read book Essential Nursing Care for Children and Young People written by Chris Thurston and published by Routledge. This book was released on 2014-03-14 with total page 472 pages. Available in PDF, EPUB and Kindle. Book excerpt: Essential Nursing Care for Children and Young People is the definitive guide for all nursing and healthcare students and professionals caring for children and young people. Designed to meet the 2010 NMC competency standards for pre-registration nurses, the textbook supports you through the process of caring for children and young people with varied needs and conditions across all healthcare settings. A practical, patient-centred approach is taken throughout, with the ‘voices’ of children, their families and their carers used to tie theoretical knowledge to the real experience of providing care. The inclusion of the latest research and health and social care policies ensures that you are fully in line with the latest clinical practice, whilst the book’s activities and exercises allow you to regularly check your understanding and develop confidence during your journey from student to nursing professional. Main features: Course-Focused Approach – pedagogy and content designed specifically for all three years of the child nursing degree programme. Contemporary Content – research note features and policy integrated throughout to give you instant access to the latest evidence-based practice. Illustrated Throughout – this highly accessible text regularly uses pictures and diagrams to highlight key issues. Voices – include authentic experiences of children, young people, parents, carers and professionals to help develop a patient-focused attitude to care. Pertinent A&P – includes coverage of all relevant anatomy and physiology for child and young person nursing courses. Practice Guidelines – provide practical guidance on everyday procedures for your quick reference. Activities and Answers – allow you to check your knowledge and build confidence. Specialist Authors – each chapter is written by leading experts in each area. Essential Nursing Care for Children and Young People is the ideal main textbook for all undergraduate child and young person nursing students, as well as professionals wanting to ensure they are using the latest practice. This text is also relevant to any student or professional involved in the health and social care of children and young adults.

Caring for Children With Neurodevelopmental Disabilities and Their Families

Author : Claudia Maria Vargas
Publisher : Routledge
ISBN 13 : 1135626588
Total Pages : 410 pages
Book Rating : 4.1/5 (356 download)

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Book Synopsis Caring for Children With Neurodevelopmental Disabilities and Their Families by : Claudia Maria Vargas

Download or read book Caring for Children With Neurodevelopmental Disabilities and Their Families written by Claudia Maria Vargas and published by Routledge. This book was released on 2004-09-10 with total page 410 pages. Available in PDF, EPUB and Kindle. Book excerpt: Children with neurodevelopmental disabilities such as mental retardation or autism present multiple challenges to their families, health care providers, and teachers. Professionals consulted by desperate parents often see the problems from their own angle only and diagnosis and intervention efforts wind up fragmented and ineffective. This book presents a model multidisciplinary approach to care--family-centered and collaborative--that has proven effective in practice. A pillar of the approach is recognition of the importance of performing culturally competent assessment and adjusting service delivery so that is responsive to cultural differences. Detailed case stories illuminate the ways in which the approach can help children with different backgrounds and different disabilities. Most chapters include study questions, lists of resources, and glossaries to facilitate easy comprehension by professionals with different backgrounds--in special education, communication sciences, and disorders, clinical and counseling psychology, neuropsychology and psychiatry, social work, pediatrics--and program administrators as well as students, trainees and educated parents. Caring for Children With Neurodevelopmental Disabilities and Their Families constitutes a crucial new resource for all those professionally and personally concerned with these children.

Children's High Dependency Nursing

Author : Andrea Cockett
Publisher : John Wiley & Sons
ISBN 13 : 0470517166
Total Pages : 311 pages
Book Rating : 4.4/5 (75 download)

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Book Synopsis Children's High Dependency Nursing by : Andrea Cockett

Download or read book Children's High Dependency Nursing written by Andrea Cockett and published by John Wiley & Sons. This book was released on 2009-11-23 with total page 311 pages. Available in PDF, EPUB and Kindle. Book excerpt: Children may require high dependency care for a variety of reasons, and this care is delivered ideally in a designated high dependency unit but sometimes on the general paediatric ward or even an adult ward as a temporary measure. Children’s High Dependency Nursing is an invaluable resource for nurses delivering high dependency care to children, providing them with the knowledge required to deliver effective and high quality high dependency care Children’s High Dependency Nursing explores all the key areas required for efficient nursing care, including what high dependency care is and how and where it should be delivered, clinical examination skills and the various clinical or body systems requiring support., caring for families when a child dies, and mental health and intellectual impairment. With practical features throughout such as learning outcomes, case studies and activities, this is an indispensable guide for post-registration children’s nurses who provide high dependency care, and children’s nurses starting their career in intensive care

The System of Care Handbook

Author : Beth A. Stroul
Publisher : Brookes Publishing Company
ISBN 13 :
Total Pages : 780 pages
Book Rating : 4.:/5 (321 download)

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Book Synopsis The System of Care Handbook by : Beth A. Stroul

Download or read book The System of Care Handbook written by Beth A. Stroul and published by Brookes Publishing Company. This book was released on 2008 with total page 780 pages. Available in PDF, EPUB and Kindle. Book excerpt: Address the urgent need for individualized, coordinated mental health care with this book--the only one-stop reference for establishing, evaluating, and improving services and systems of care for children and adolescents with mental health challenges and their families. The new cornerstone of the highly respected Systems of Care for Children's Mental Health series, this comprehensive volume helps administrators, program developers, and clinicians from mental health and partner child-serving systems skillfully navigate every key issue they may encounter on the road to effective service delivery. Weaving all the latest research and best practices into a single accessible handbook, more than 60 expert contributors give readers the in-depth, practical knowledge they need to develop comprehensive, community-based, coordinated systems of care for youth with mental health challenges and their families avoid duplication and fragmentation of services across mental health and other child-serving systems develop individualized care plans for children with complex needs and implement the "wraparound" approach to service delivery incorporate evidence-based practices into systems of care use smart financing strategies that make the most of multiple funding streams ensure the full participation of families and youth in service planning and delivery improve services and care coordination across a variety of systems--schools, child welfare, juvenile justice work effectively with youth and families from diverse backgrounds and communities conduct accurate program evaluation and continuous quality improvement use the best professional development strategies to ensure a skilled and dedicated workforce Throughout the book, extended case studies of children, youth, families, and successful programs take readers beyond the abstract and reveal in vivid detail how high-quality services can transform the lives of children and youth--from early childhood to their transition to adulthood--as well as their families and caregivers. A must-own compendium of knowledge for anyone involved in shaping the future of mental health services, this book is the new blueprint for systems of care that truly respond to the needs of children, youth and families. Learn more about the Systems of Care for Children's Mental Health series.

Understanding Looked After Children

Author : Jeune Guishard-Pine
Publisher : Jessica Kingsley Publishers
ISBN 13 : 9781846426841
Total Pages : 176 pages
Book Rating : 4.4/5 (268 download)

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Book Synopsis Understanding Looked After Children by : Jeune Guishard-Pine

Download or read book Understanding Looked After Children written by Jeune Guishard-Pine and published by Jessica Kingsley Publishers. This book was released on 2007-09-15 with total page 176 pages. Available in PDF, EPUB and Kindle. Book excerpt: Understanding Looked After Children is an accessible guide to understanding the mental health needs of children in foster care and the role of foster carers and support networks in helping these children. The authors provide foster carers with an insight into the psychological issues experienced by children in the care system, and the impact of these issues on the foster family. Chapters cover cultural, social and legal structures associated with foster care and both the relevant child psychology theory and examples drawn from real-life situations. The authors give advice on how to address common psychological issues in collaboration with multi-agency professionals, as well as how to access to statutory services. They also explain the possible impact of assessments on foster children and the causes and management of foster carers' own feelings of frustration, anger or disappointment with social and mental health services or the placement itself. Chapters are complemented by case studies, and the book includes a helpful glossary to common terminology. Understanding Looked After Children is essential reading for registered foster carers and those considering fostering, as well as adoptive parents, and a useful reference for trainee and experienced practitioners in the care system, including social workers, psychologists, counsellors, teachers and others looking after vulnerable children.

Working with Children and Youth with Complex Needs

Author : Michael Ungar
Publisher : Routledge
ISBN 13 : 1317626702
Total Pages : 376 pages
Book Rating : 4.3/5 (176 download)

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Book Synopsis Working with Children and Youth with Complex Needs by : Michael Ungar

Download or read book Working with Children and Youth with Complex Needs written by Michael Ungar and published by Routledge. This book was released on 2014-09-25 with total page 376 pages. Available in PDF, EPUB and Kindle. Book excerpt: Working with Children and Youth with Complex Needs provides a detailed description of techniques and rich stories of how social workers, psychologists, counselors, and child and youth care workers can help young people become more resilient. With ample case studies and fascinating explanations of research, Dr. Ungar shows why we need to work just as hard changing the environments that surround children as we do changing children themselves. Building on lessons learned from clinical, community and residential settings, Dr. Ungar discusses 20 skills that can enhance the effectiveness of frontline mental health services. Along with descriptions of the skills necessary to talk with clients about the factors that put their mental health at risk, Working with Children and Youth with Complex Needs also presents systemic practices clinicians can use in their everyday work. Engaging with children’s extended family, addressing issues of community violence, racism and homophobia, and helping parents and teachers understand children’s maladaptive coping strategies as sometimes necessary are among the many practical strategies that are discussed which clinicians can use to enhance and sustain the therapeutic value of their work.

Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs

Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309447690
Total Pages : 115 pages
Book Rating : 4.3/5 (94 download)

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Book Synopsis Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs by : National Academies of Sciences, Engineering, and Medicine

Download or read book Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-24 with total page 115 pages. Available in PDF, EPUB and Kindle. Book excerpt: Children with disabilities and complex medical and educational needs present a special challenge for policy makers and practitioners. These children exhibit tremendous heterogeneity in their conditions and needs, requiring a varied array of services to meet those needs. Uneven public and professional awareness of their conditions and a research base marked by significant gaps have led to programs, practices, and policies that are inconsistent in quality and coverage. Parents often have to navigate and coordinate, largely on their own, a variety of social, medical, and educational support services, adding to the already daunting financial, logistical, and emotional challenges of raising children with special needs. The unmet needs of children with disabilities and complex medical and educational needs can cause great suffering for these children and for those who love and care for them. To examine how systems can be configured to meet the needs of children and families as they struggle with disabilities and complex health and educational needs, the National Academies of Sciences, Engineering, and Medicine held a workshop in December 2015. The goal of the workshop was to highlight the main barriers and promising solutions for improving care and outcome of children with complex medical and educational needs. Workshop participants examined prevention, care, service coordination, and other topics relevant to children with disabilities and complex health and educational needs, along with their families and caregivers. More broadly, the workshop seeks actionable understanding on key research questions for enhancing the evidence base; promoting and sustaining the quality, accessibility, and use of relevant programs and services; and informing relevant policy development and implementation. By engaging in dialogue to connect the prevention, treatment, and implementation sciences with settings where children are seen and cared for, the forum seeks to improve the lives of children by improving the systems that affect those children and their families. This publications summarizes the presentations and discussions from the workshop.

Nursing Care of Children and Young People with Long-Term Conditions

Author : Mandy Brimble
Publisher : John Wiley & Sons
ISBN 13 : 1119653169
Total Pages : 306 pages
Book Rating : 4.1/5 (196 download)

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Book Synopsis Nursing Care of Children and Young People with Long-Term Conditions by : Mandy Brimble

Download or read book Nursing Care of Children and Young People with Long-Term Conditions written by Mandy Brimble and published by John Wiley & Sons. This book was released on 2020-12-29 with total page 306 pages. Available in PDF, EPUB and Kindle. Book excerpt: The second edition of Nursing Care of Children and Young People with Long Term Conditions remains the only nursing-specific text on the care of paediatric patients with chronic illness. Written to meet the needs of nursing students and professionals alike, this comprehensive volume provides authoritative and up-to-date information on the context, theory, and practice of delivering holistic care to children and families in a range of health and social care settings. Contributions from a team of experienced academics, educators, and practitioners offer valuable insight into the impact of chronic illness on children and parents, the practical implications of meeting their physical, psychological, and social needs, empowering them to be 'experts' in their care, and many more vital aspects of long-term paediatric care. This edition features new and revised content reflecting contemporary guidelines and evidence-based practice, including updated clinical case studies and a new chapter examining the impact of having a sibling with a long-term condition. Emphasising a multi-disciplinary approach to managing chronic illness, this important resource: Provides numerous case studies and activities illustrating the application of theoretical principles and current evidence in nursing practice Investigates the genetic basis of chronic illness and the differing onsets of long-term conditions Discusses current political, economic, and social policies that are influencing healthcare for children and bringing challenges to managers and practitioners Examines both classic and contemporary theories of grief, loss, coping, and adaptation Explores ethical, legal, and professional aspects of nursing children and young people with chronic illness Addresses evolving nursing roles, the importance of acute emergency care, and the planning and delivery of effective transition from child to adult services Nursing Care of Children and Young People with Long Term Conditions is required reading for student and registered children's nurses, as well as for practitioners in related health and social care disciplines.