Why Is End Of Life Care Delivery Sporadic

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Why is End-of-Life Care Delivery Sporadic?

Author : Valerie Wright
Publisher :
ISBN 13 :
Total Pages : 136 pages
Book Rating : 4.:/5 (52 download)

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Book Synopsis Why is End-of-Life Care Delivery Sporadic? by : Valerie Wright

Download or read book Why is End-of-Life Care Delivery Sporadic? written by Valerie Wright and published by . This book was released on 2009 with total page 136 pages. Available in PDF, EPUB and Kindle. Book excerpt: According to the Center for Disease Control (CDC) Infant Mortality Statistics, 28,384 infants died in the United States in 2005. These 28,384 infants are most often given resuscitative measures in the delivery room and then brought to the Neonatal Intensive Care Unit (NICU) for further care and treatment; however, all infants do not survive, and it then becomes the responsibility of the NICU staff to provide end-of-life care for the infants and their families. The purpose of this research project was to evaluate the barriers to and facilitators of providing end-of-life care in order to gain a greater understanding of why end-of-life care is often sporadic. A convenience sample of 75 NICU nurses was utilized. There was a 66.7% response rate of nurses completing The Neonatal Palliative Care Attitude Scale questionnaire. This quantitative, descriptive study explored the barriers to and facilitators of neonatal nurses providing palliative care. This research study identified five barriers and eight facilitators to palliative care practice in the NICU. The five barriers were the inability to express opinions; values and beliefs regarding palliative care; less than ideal physical environment; technological imperatives; parental demands; and finally, lack of education. The eight facilitators were supportive medical staff; parental involvement of decisions; parents informed of options; support from medical team when palliative care; and available counseling. Upon review of these barriers and facilitators outlined in this study, the NICU can thoroughly evaluate palliative care practices and make needed changes based on the results. Further research is warranted regarding palliative care education implementation in the NICU.

Approaching Death

Author : Committee on Care at the End of Life
Publisher : National Academies Press
ISBN 13 : 0309518253
Total Pages : 457 pages
Book Rating : 4.3/5 (95 download)

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Book Synopsis Approaching Death by : Committee on Care at the End of Life

Download or read book Approaching Death written by Committee on Care at the End of Life and published by National Academies Press. This book was released on 1997-10-30 with total page 457 pages. Available in PDF, EPUB and Kindle. Book excerpt: When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."

Dying in America

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309303133
Total Pages : 470 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Dying in America by : Institute of Medicine

Download or read book Dying in America written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-19 with total page 470 pages. Available in PDF, EPUB and Kindle. Book excerpt: For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

Pediatric Palliative Care

Author : Betty Ferrell
Publisher :
ISBN 13 : 0190244186
Total Pages : 161 pages
Book Rating : 4.1/5 (92 download)

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Book Synopsis Pediatric Palliative Care by : Betty Ferrell

Download or read book Pediatric Palliative Care written by Betty Ferrell and published by . This book was released on 2016 with total page 161 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric palliative care is a field of significant growth as health care systems recognize the benefits of palliative care in areas such as neonatal intensive care, pediatric ICU, and chronic pediatric illnesses. Pediatric Palliative Care, the fourth volume in the HPNA Palliative Nursing Manuals series, highlights key issues related to the field. Chapters address pediatric hospice, symptom management, pediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in pediatric palliative care. The content of the concise, clinically focused volumes in the HPNA Palliative Nursing Manuals series is one resource for nurses preparing for specialty certification exams and provides a quick-reference in daily practice. Plentiful tables and patient teaching points make these volumes useful resources for nurses.

Neonatal Palliative Care for Nurses

Author : Alexandra Mancini
Publisher : Springer Nature
ISBN 13 : 303031877X
Total Pages : 407 pages
Book Rating : 4.0/5 (33 download)

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Book Synopsis Neonatal Palliative Care for Nurses by : Alexandra Mancini

Download or read book Neonatal Palliative Care for Nurses written by Alexandra Mancini and published by Springer Nature. This book was released on 2020-01-22 with total page 407 pages. Available in PDF, EPUB and Kindle. Book excerpt: This textbook details the nursing care of babies with life limiting conditions and sets the context within the philosophy of internationally collaborative neonatal palliative care emphasising emotional and practical support for their families. Currently, increasing interest from nursing and medical fields regarding palliative care for babies in the antenatal and neonatal period is evident. This innovative and unique text provides experienced nurses and student nurses alike with realistic guidance in caring for babies with palliative care needs, alongside the crucial support for their families and identifies important strategies for professional self care. Nursing experts in this field collaborated to develop a reference book which supports holistic and integrated clinical practice. Parents’ experiences of what they consider helpful or not so helpful are interwoven throughout the chapter. There is currently no other textbook which offers the above information and guidance specifically for nurses and allied health professionals. As such this book will appeal to all nurses and health professionals working within the neonatal palliative care specialty in a global context.

Avery's Diseases of the Newborn E-Book

Author : Christine A. Gleason
Publisher : Elsevier Health Sciences
ISBN 13 : 0323401724
Total Pages : 2021 pages
Book Rating : 4.3/5 (234 download)

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Book Synopsis Avery's Diseases of the Newborn E-Book by : Christine A. Gleason

Download or read book Avery's Diseases of the Newborn E-Book written by Christine A. Gleason and published by Elsevier Health Sciences. This book was released on 2017-11-21 with total page 2021 pages. Available in PDF, EPUB and Kindle. Book excerpt: Covering the evaluation and management of every key disease and condition affecting newborns, Avery’s Diseases of the Newborn, by Drs. Christine A. Gleason and Sandra E. Juul, remains your #1 source for practical, clinically relevant information in this fast-changing field. You’ll find the specific strategies you need to confidently diagnose and treat this unique patient population, in a full-color, easy-to-use single volume that focuses on key areas of practice. Now in a thoroughly revised 10th Edition, this highly respected reference is an authoritative clinical resource for neonatal practitioners. Provides up-to-date information on every aspect of newborn evaluation and management in a new, visually improved format featuring more than 500 all-new, full-color illustrations integrated within each chapter Includes greatly expanded Neurology and Hematology sections that highlight the knowledge and expertise of new co-editor, Dr. Sandra E. Juul Features all-new chapters on Palliative Care, Gastroesophageal Reflux, Platelet Disorders, Transfusion Therapy, Hypertension, , and The Ear and Hearing Disorders, as well as expanded coverage of brain injury and neuroprotective strategies in the preterm and term infant Contains new Key Points boxes at the beginning of every chapter Brings you up to date on current topics such as the evolving epidemic of neonatal abstinence syndrome and the new clinical uses of ultrasound (including ultrasound videos online) Expert ConsultTM eBook version included with purchase. This enhanced eBook experience allows you to search all of the text, figures, and references from the book on a variety of devices Provides up-to-date information on every aspect of newborn evaluation and management in a new, visually improved format featuring more than 500 all-new, full-color illustrations integrated within each chapter. Includes greatly expanded Neurology and Hematology sections that highlight the knowledge and expertise of new co-editor, Dr. Sandra E. Juul. Features all-new chapters on Palliative Care, Gastroesophageal Reflux, Platelet Disorders, Transfusion Therapy, Hypertension, , and The Ear and Hearing Disorders, as well as expanded coverage of brain injury and neuroprotective strategies in the preterm and term infant. Contains new Key Points boxes at the beginning of every chapter. Brings you up to date on current topics such as the evolving epidemic of neonatal abstinence syndrome and the new clinical uses of ultrasound (including ultrasound videos online). Expert ConsultTM eBook version included with purchase. This enhanced eBook experience allows you to search all of the text, figures, and references from the book on a variety of devices.

Perinatal Palliative Care

Author : Erin M. Denney-Koelsch
Publisher : Springer Nature
ISBN 13 : 3030347516
Total Pages : 443 pages
Book Rating : 4.0/5 (33 download)

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Book Synopsis Perinatal Palliative Care by : Erin M. Denney-Koelsch

Download or read book Perinatal Palliative Care written by Erin M. Denney-Koelsch and published by Springer Nature. This book was released on 2020-02-05 with total page 443 pages. Available in PDF, EPUB and Kindle. Book excerpt: This unique book is a first-of-its-kind resource that comprehensively covers each facet and challenge of providing optimal perinatal palliative care. Designed for a wide and multi-disciplinary audience, the subjects covered range from theoretical to the clinical and the practically relevant, and all chapters include case studies that provide real-world scenarios as additional teaching tools for the reader. Perinatal Palliative Care: A Clinical Guide is divided into four sections. Part One provides the foundation, covering an overview of the field, key theories that guide the practice of perinatal palliative care, and includes a discussion of perinatal ethics and parental experiences and needs upon receiving a life-limiting fetal diagnosis. Part Two delves further into practical clinical care, guiding readers through issues of obstetrical management, genetic counseling, neonatal pain management, non-pain symptom management, spiritual care, and perinatal bereavement care. Part Three discusses models of perinatal palliative care, closely examining evidence for different types of PPC programs: from hospital-based programs, to community-based care, and examines issues of interdisciplinary PPC care coordination, birth planning, and team support. Finally, Part Four concludes the book with a close look at special considerations in the field. In this section, racial, ethnic, and cultural perspectives and implications for PPC are discussed, along with lessons in how to provide PPC for a wide-range of clinical and other healthcare workers. The book closes with a look to the future of the field of perinatal palliative care. Thorough and practical, Perinatal Palliative Care: A Clinical Guide is an ideal resource for any healthcare practitioner working with these vulnerable patient populations, from palliative care specialists, to obstetricians, midwifes, neonatologists, hospice providers, nurses, doulas, social workers, chaplains, therapists, ethicists, and child life specialists.

A Public Health Perspective on End of Life Care

Author : Joachim Cohen
Publisher : Oxford University Press
ISBN 13 : 0199599408
Total Pages : 270 pages
Book Rating : 4.1/5 (995 download)

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Book Synopsis A Public Health Perspective on End of Life Care by : Joachim Cohen

Download or read book A Public Health Perspective on End of Life Care written by Joachim Cohen and published by Oxford University Press. This book was released on 2012-01-19 with total page 270 pages. Available in PDF, EPUB and Kindle. Book excerpt: Focusing on population health and discussing studies using different methodologies, this title presents a synthesis and overview of relevant research and empirical data on the end of life that can bear a basis for a more systematic 'public health of the end of life'.

End of Life Care in the ICU

Author : Graeme Rocker
Publisher : Oxford University Press, USA
ISBN 13 : 019923924X
Total Pages : 403 pages
Book Rating : 4.1/5 (992 download)

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Book Synopsis End of Life Care in the ICU by : Graeme Rocker

Download or read book End of Life Care in the ICU written by Graeme Rocker and published by Oxford University Press, USA. This book was released on 2010-01-28 with total page 403 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book highlights real clinical issues which need to be addressed if quality palliative care within ICUs is to be consistently delivered. It is presented in an easily accessible, bullet pointed style, and is illustrated with case histories from real-life patients, and drug tables.

Avery's Diseases of the Newborn: First South Asia Edition-E-Book

Author : Christine A Gleason, MD
Publisher : Elsevier Health Sciences
ISBN 13 : 8131254720
Total Pages : 1973 pages
Book Rating : 4.1/5 (312 download)

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Book Synopsis Avery's Diseases of the Newborn: First South Asia Edition-E-Book by : Christine A Gleason, MD

Download or read book Avery's Diseases of the Newborn: First South Asia Edition-E-Book written by Christine A Gleason, MD and published by Elsevier Health Sciences. This book was released on 2018-05-23 with total page 1973 pages. Available in PDF, EPUB and Kindle. Book excerpt: Covering the evaluation and management of every key disease and condition affecting newborns, Avery's Diseases of the Newborn, by Drs. Christine A. Gleason and Sandra E. Juul, remains your #1 source for practical, clinically relevant information in this fast-changing field. You'll find the specific strategies you need to confidently diagnose and treat this unique patient population, easy-to-use single volume that focuses on key areas of practice. Now in a thoroughly revised first South Asia Edition, this highly respected reference is an authoritative clinical resource for neonatal practitioners. Provides up-to-date information on every aspect of newborn evaluation and management in a new, visually improved format featuring more than 500 all-new illustrations integrated within each chapter. Includes greatly expanded Neurology and Hematology sections that highlight the knowledge and expertise of new co-editor, Dr. Sandra E. Juul. Features all-new chapters on Palliative Care, Gastroesophageal Reflux, Platelet Disorders, Transfusion Therapy, Hypertension, and The Ear and Hearing Disorders, as well as expanded coverage of brain injury and neuroprotective strategies in the preterm and term infant. Contains new Key Points boxes at the beginning of every chapter. Brings you up to date on current topics such as the evolving epidemic of neonatal abstinence syndrome and the new clinical uses of ultrasound

Choices in Palliative Care

Author : Arthur Blank
Publisher : Springer Science & Business Media
ISBN 13 : 0387708758
Total Pages : 249 pages
Book Rating : 4.3/5 (877 download)

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Book Synopsis Choices in Palliative Care by : Arthur Blank

Download or read book Choices in Palliative Care written by Arthur Blank and published by Springer Science & Business Media. This book was released on 2007-07-21 with total page 249 pages. Available in PDF, EPUB and Kindle. Book excerpt: Choices in Palliative Care brings together leading experts to spotlight core issues in the field and identify ways PC can fill gaps in current care systems. This far-sighted volume redefines palliative care as interdisciplinary and integrative, bridging acute and long-term care to respond to clients’ evolving needs. Those teaching health service delivery courses will find this material especially useful.

Improving Palliative Care for Cancer

Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309074029
Total Pages : 344 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis Improving Palliative Care for Cancer by : National Research Council

Download or read book Improving Palliative Care for Cancer written by National Research Council and published by National Academies Press. This book was released on 2001-10-19 with total page 344 pages. Available in PDF, EPUB and Kindle. Book excerpt: In our society's aggressive pursuit of cures for cancer, we have neglected symptom control and comfort care. Less than one percent of the National Cancer Institute's budget is spent on any aspect of palliative care research or education, despite the half million people who die of cancer each year and the larger number living with cancer and its symptoms. Improving Palliative Care for Cancer examines the barriersâ€"scientific, policy, and socialâ€"that keep those in need from getting good palliative care. It goes on to recommend public- and private-sector actions that would lead to the development of more effective palliative interventions; better information about currently used interventions; and greater knowledge about, and access to, palliative care for all those with cancer who would benefit from it.

Perinatal Palliative Care

Author : Paola Lago
Publisher : Frontiers Media SA
ISBN 13 : 2889711412
Total Pages : 116 pages
Book Rating : 4.8/5 (897 download)

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Book Synopsis Perinatal Palliative Care by : Paola Lago

Download or read book Perinatal Palliative Care written by Paola Lago and published by Frontiers Media SA. This book was released on 2021-08-03 with total page 116 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Living Well at the End of Life

Author : Joanne Lynn
Publisher : RAND Corporation
ISBN 13 :
Total Pages : 32 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Living Well at the End of Life by : Joanne Lynn

Download or read book Living Well at the End of Life written by Joanne Lynn and published by RAND Corporation. This book was released on 2003 with total page 32 pages. Available in PDF, EPUB and Kindle. Book excerpt: Self-care deficits and a slowly dwindling course to death, which usually results from frailty or dementia. Effective and reliable care for persons coming to the end of life will require changes in the organization and financing of care to match these trajectories, as well as compassionate and skillful clinicians. (Available from the publisher or libraries holding the journal.).

Palliative Psychology

Author : E. Alessandra Strada
Publisher : Oxford University Press
ISBN 13 : 0199798559
Total Pages : 321 pages
Book Rating : 4.1/5 (997 download)

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Book Synopsis Palliative Psychology by : E. Alessandra Strada

Download or read book Palliative Psychology written by E. Alessandra Strada and published by Oxford University Press. This book was released on 2018 with total page 321 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Palliative Psychology: Clinical Perspectives on an Emerging Specialty is the first book that proposes palliative psychology as a new specialty defining the roles and competencies of psychologists working in the palliative care setting in the US context. As proposed and defined in this book, palliative psychology is a specialty for licensed psychologists interested in providing psychological assessment and interventions to patients with serious and advanced illness and their family caregivers. The psychologist's involvement can begin after a diagnosis of serious illness and continue during treatment, transition of care, during the dying process, and in bereavement. This book follows the framework developed by the Clinical Practice Guidelines for Quality Palliative Care, which identifies eight domains of specialist palliative care. The chapters of the book explore each of the domains, describing some of the essential knowledge, skills, and attitudes that palliative psychologists should develop to become competent palliative care professionals. Tables and clinical case vignettes are used throughout the book to illustrate important clinical aspects related to the work of palliative psychologists"--Publisher's description.

The Challenge of Palliative Psychology Across the Lifespan: Between New Health Emergencies and Paradigm Shifts

Author : Ines Testoni
Publisher : Frontiers Media SA
ISBN 13 : 2832506305
Total Pages : 203 pages
Book Rating : 4.8/5 (325 download)

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Book Synopsis The Challenge of Palliative Psychology Across the Lifespan: Between New Health Emergencies and Paradigm Shifts by : Ines Testoni

Download or read book The Challenge of Palliative Psychology Across the Lifespan: Between New Health Emergencies and Paradigm Shifts written by Ines Testoni and published by Frontiers Media SA. This book was released on 2022-11-17 with total page 203 pages. Available in PDF, EPUB and Kindle. Book excerpt:

What's in the Syringe?

Author : Juliet Jacobsen
Publisher : Oxford University Press
ISBN 13 : 0197525199
Total Pages : 193 pages
Book Rating : 4.1/5 (975 download)

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Book Synopsis What's in the Syringe? by : Juliet Jacobsen

Download or read book What's in the Syringe? written by Juliet Jacobsen and published by Oxford University Press. This book was released on 2021-07-20 with total page 193 pages. Available in PDF, EPUB and Kindle. Book excerpt: What's in the Syringe? offers a succinct overview of the psychological skills of outpatient palliative care, teaching clinicians how to help patients live well and acknowledge end of life as patients meet five challenges of serious illness. It explores how to help patients develop prognostic awareness, through which they pair hopes and worries and see themselves with clarity and empathy. The book also teaches clinicians how to support patients' coping skills. As patients use these skills, they improve their quality of life and deepen their prognostic awareness, helping them make informed medical and personal decisions as they approach end of life. Illustrated, case-based chapters are organized from diagnosis to end of life and draw on two decades of research and clinical experience. Each chapter describes how palliative care and oncology clinicians can collaborate and explains the interpretive role of the palliative care clinician in helping the patient and oncologist understand each other. What's in the Syringe? is an essential resource for palliative care fellows, trainees, and clinicians, for oncologists, primary care clinicians, and medical students, and for all care providers working with patients facing serious illness.