Voices Of The Chronically Ill

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Voices of the Chronically Ill

Author : Mary Kalfoss
Publisher : Cambridge Scholars Publishing
ISBN 13 : 1527520374
Total Pages : 227 pages
Book Rating : 4.5/5 (275 download)

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Book Synopsis Voices of the Chronically Ill by : Mary Kalfoss

Download or read book Voices of the Chronically Ill written by Mary Kalfoss and published by Cambridge Scholars Publishing. This book was released on 2023-08-09 with total page 227 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book describes what it is like to embody chaos and liminality in living with a physical chronic illness and how these experiences are related to the loss and remaking of one’s sense of self. It also encourages readers to listen closely to the figurative language people use in trying to articulate the unspeakable. Focusing upon a wide array of narrative fragments gathered from first-person literary work and research, the author portrays how a conglomerate of sensations, feelings, and thoughts are embodied in the illness experience. The voices present in this text speak of vulnerability, suffering, and brokenness, yet also, endurance and fortitude. The ethics of philosopher Emmanuel Levinas provide the grounds for offering care lovingly. This book makes a significant contribution to helping students, practitioners and carers understand the chaos that is inherent, yet so often silenced, in the illness experience. This text could also be of interest to laypeople who are curious about how subjective illness is experienced, and to those who are ill who may be seeking affirmation for what they are experiencing.

Chronically Fabulous: Finding Wholeness and Hope Living with Chronic Illness

Author : Marisa Zeppieri
Publisher : Broadleaf Books
ISBN 13 : 1506464114
Total Pages : 209 pages
Book Rating : 4.5/5 (64 download)

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Book Synopsis Chronically Fabulous: Finding Wholeness and Hope Living with Chronic Illness by : Marisa Zeppieri

Download or read book Chronically Fabulous: Finding Wholeness and Hope Living with Chronic Illness written by Marisa Zeppieri and published by Broadleaf Books. This book was released on 2021-05-04 with total page 209 pages. Available in PDF, EPUB and Kindle. Book excerpt: When Marisa Zeppieri was 22-years-old she found herself face-to-face with a raven-haired elderly woman who had emerged from a crowd and gently taken her hands: God will use these hands to change people's lives.Years later Marisa's once-spirited demeanor was shrouded in anger and bitterness. Triggered first by a near-fatal car accident that sent her 100-lb body flying from a crosswalk and later by a painful Lupus diagnosis, she became stuck in a season of brokenness.But in the seasons that followed, an insatiable emotional, spiritual, and physical hunger took over: She learned how to nourish her broken body with the help of food, herbs, and a gastronomically-gifted Italian grandmother, while also nourishing her broken heart and crushed spirit through a deeper relationship with God.With Chronically Fabulous, Marisa fulfills the old woman's prophecy by offering pure nourishment to those of us living with chronic illness, helping us create wholeness and well-being through a love of food. Here, the founder of LupusChick, a nonprofit supporting those with autoimmune diseases, offers guiding principles, personal stories, and recipes that support whole-life thriving. With the depth, smarts, and spiritual advice beloved by her dedicated followers, Marisa shows us how faith, passion, and persistence can radically change our lives.

Lycanthropy and Other Chronic Illnesses

Author : Kristen O'Neal
Publisher : National Geographic Books
ISBN 13 : 1683693078
Total Pages : 0 pages
Book Rating : 4.6/5 (836 download)

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Book Synopsis Lycanthropy and Other Chronic Illnesses by : Kristen O'Neal

Download or read book Lycanthropy and Other Chronic Illnesses written by Kristen O'Neal and published by National Geographic Books. This book was released on 2022-05-10 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: “Emotional, thoughtful, and a true testament to the power of friendship”—Locus Magazine Teen Wolf meets Emergency Contact in this sharply observed, hilarious, and heartwarming debut young adult novel about friendship, chronic illness, and . . . werewolves. Priya worked hard to pursue her premed dreams at Stanford, but the fallout from undiagnosed Lyme disease sends her back to her childhood home in New Jersey during her sophomore year—and leaves her wondering if she’ll ever be able to return to the way things were. Thankfully she has her online pen pal, Brigid, and the rest of the members of “oof ouch my bones,” a virtual support group that meets on Discord to crack jokes and vent about their own chronic illnesses. When Brigid suddenly goes offline, Priya does something out of character: she steals the family car and drives to Pennsylvania to check on Brigid. Priya isn’t sure what to expect, but it isn’t the horrifying creature that's shut in the basement. With Brigid nowhere to be found, Priya begins to puzzle together an impossible but obvious truth: the creature might be a werewolf—and the werewolf might be Brigid. As Brigid's unique condition worsens, their friendship will be deepened and challenged in unexpected ways, forcing them to reckon with their own ideas of what it means to be normal.

The Patient's Voice

Author : Jeanine Young-Mason
Publisher : F.A. Davis
ISBN 13 : 080364471X
Total Pages : 260 pages
Book Rating : 4.8/5 (36 download)

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Book Synopsis The Patient's Voice by : Jeanine Young-Mason

Download or read book The Patient's Voice written by Jeanine Young-Mason and published by F.A. Davis. This book was released on 2015-12-15 with total page 260 pages. Available in PDF, EPUB and Kindle. Book excerpt: See the world through a patient’s eyes…from other side of illness. Pause to see the world beyond the scientific and clinical. Each chapter in the book provides a brief memoir recounting an experience of illness, written either by the patient, a member of the patient’s family, or an advocate for the patient within the medical, legal, or judicial system. As you share their experiences, you’ll gain a deeper understanding of the importance of holistic, patient-centered care. Reviews of the 1st Edition… “...powerful stories...shed light on care giving, spiritual growth, altered self-concept and other aspects of chronic illness.”—ALS Newsletter on the Web “...speak about the most important things clearly, strongly as possible...to do anything else is precious waste of time.”—UMass Magazine “...these accounts...are deep reflections about living with afflictions, relationships, and interactions with the healthcare system.”—Nursing Spectrum "The Patient's Voice: Experiences of Illness is an outstanding collection of autobiographical essays. The 16 narratives, solicited specifically for this book, are skilfully written by both children and adults. The narratives themselves are intensely personal and powerful accounts of self understanding and human triumph over acute physical and psychiatric illness, and chronic disability. As the author notes in her preface, the contributors to The Patient's Voice are "known for their writing ability and the quality of their perceptions" (p. ix).This is a modest description, however, for the contributors are talented writers indeed."- Cathy Lysack, Wayne State University, Detroit MI

Life Disrupted

Author : Laurie Edwards
Publisher : Bloomsbury Publishing USA
ISBN 13 : 0802779735
Total Pages : 289 pages
Book Rating : 4.8/5 (27 download)

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Book Synopsis Life Disrupted by : Laurie Edwards

Download or read book Life Disrupted written by Laurie Edwards and published by Bloomsbury Publishing USA. This book was released on 2011-02-01 with total page 289 pages. Available in PDF, EPUB and Kindle. Book excerpt: Twenty-seven-year-old Laurie Edwards is one of 125 million Americans who have a chronic illness, in her case a rare genetic respiratory disease. Because of medical advances in the treatment of serious childhood diseases, 600,000 chronically ill teens enter adulthood every year who decades ago would not have survived-they and people diagnosed in adulthood face the same challenges of college, career, and starting a family as others in their twenties and thirties, but with the added circumstance of having chronic illness. Life Disrupted is a personal and unflinching guide to living well with a chronic illness: managing your own health care without letting it take over your life, dealing with difficult doctors and frequent hospitalizations, having a productive and satisfying career that accommodates your health needs, and nurturing friendships and a loving, committed relationship regardless of recurring health problems. Laurie Edwards also addresses the particular needs of people who have more than one chronic illness or who are among the twenty-five million Americans with a rare disorder. She shares her own story and the experiences of others with chronic illness, as well as advice from life coaches, employment specialists, and health professionals. Reading Life Disrupted is like having a best friend and mentor who truly does know what you're going through.

What Doesn't Kill You

Author : Tessa Miller
Publisher : Henry Holt and Company
ISBN 13 : 1250751462
Total Pages : 240 pages
Book Rating : 4.2/5 (57 download)

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Book Synopsis What Doesn't Kill You by : Tessa Miller

Download or read book What Doesn't Kill You written by Tessa Miller and published by Henry Holt and Company. This book was released on 2021-02-02 with total page 240 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Should be read by anyone with a body. . . . Relentlessly researched and undeniably smart." —The New York Times Named one of BuzzFeed's "Best Books of 2021" What Doesn't Kill You is the riveting account of a young journalist’s awakening to chronic illness, weaving together personal story and reporting to shed light on living with an ailment forever. Tessa Miller was an ambitious twentysomething writer in New York City when, on a random fall day, her stomach began to seize up. At first, she toughed it out through searing pain, taking sick days from work, unable to leave the bathroom or her bed. But when it became undeniable that something was seriously wrong, Miller gave in to family pressure and went to the hospital—beginning a years-long nightmare of procedures, misdiagnoses, and life-threatening infections. Once she was finally correctly diagnosed with Crohn’s disease, Miller faced another battle: accepting that she will never get better. Today, an astonishing three in five adults in the United States suffer from a chronic disease—a percentage expected to rise post-Covid. Whether the illness is arthritis, asthma, Crohn's, diabetes, endometriosis, multiple sclerosis, ulcerative colitis, or any other incurable illness, and whether the sufferer is a colleague, a loved one, or you, these diseases have an impact on just about every one of us. Yet there remains an air of shame and isolation about the topic of chronic sickness. Millions must endure these disorders not only physically but also emotionally, balancing the stress of relationships and work amid the ever-present threat of health complications. Miller segues seamlessly from her dramatic personal experiences into a frank look at the cultural realities (medical, occupational, social) inherent in receiving a lifetime diagnosis. She offers hard-earned wisdom, solidarity, and an ultimately surprising promise of joy for those trying to make sense of it all.

Missed and Dismissed Voices

Author : Alexander Segall PhD
Publisher : University of Toronto Press
ISBN 13 : 1487530471
Total Pages : 236 pages
Book Rating : 4.4/5 (875 download)

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Book Synopsis Missed and Dismissed Voices by : Alexander Segall PhD

Download or read book Missed and Dismissed Voices written by Alexander Segall PhD and published by University of Toronto Press. This book was released on 2023-05-26 with total page 236 pages. Available in PDF, EPUB and Kindle. Book excerpt: There is a complex relationship between illness and identity. Missed and Dismissed Voices aims to expose the impact of hidden health problems on the daily lives of a growing number of adults who live with chronic conditions and repeatedly face the challenge of trying to maintain their personal sense of healthiness across the life course. The book focuses on the meaning and management of both medically diagnosed chronic diseases and medically unexplained physical conditions or syndromes. In each case, people must decide whether to make their private suffering public. The book includes analysis derived from research literature, combined with illness narrative accounts of people in qualitative interviews and blog posts, to create fictional exemplary case studies for each of the chronic conditions examined. The common issues raised in these stories provide important insights into the process by which people manage to adapt to their changing health status and life circumstances. In this book, Alexander Segall, PhD, gives voice to chronically ill people who often have their life stories either missed or dismissed.

Work and Unseen Chronic Illness

Author : Margaret Vickers
Publisher : Routledge
ISBN 13 : 1134544499
Total Pages : 303 pages
Book Rating : 4.1/5 (345 download)

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Book Synopsis Work and Unseen Chronic Illness by : Margaret Vickers

Download or read book Work and Unseen Chronic Illness written by Margaret Vickers and published by Routledge. This book was released on 2002-09-09 with total page 303 pages. Available in PDF, EPUB and Kindle. Book excerpt: In an increasingly ageing society, medicine, hygiene and nutrition have reduced the impact of acute and life-threatening illnesses. However, whilst we are living longer, the chance of developing or contracting a chronic illness is increasing. There are a growing number of working adults affected by chronic health conditions that may be largely invisible to those around them. In this book, the author explores the 'silent' problem of unseen illness at work. The author employs qualitative research methods to challenge the idea that if you look well, you must be well. While demonstrating the effectiveness of this controversial methodology, she uses it to expose the voices of a group of marginalized workplace actors who have hitherto remained unheard. Stories from people with cancer, multiple sclerosis, endometriosis and other illnesses are interspersed with the author's reflections about life and work with illness that others cannot see. These stories reflect a passage of trauma and marginalization, but also foreground themes of survival.

Ordinary Lives

Author : Irving Kenneth Zola
Publisher : Cambridge [Mass.] : Apple-wood Books
ISBN 13 :
Total Pages : 234 pages
Book Rating : 4.F/5 ( download)

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Book Synopsis Ordinary Lives by : Irving Kenneth Zola

Download or read book Ordinary Lives written by Irving Kenneth Zola and published by Cambridge [Mass.] : Apple-wood Books. This book was released on 1982 with total page 234 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Strong at the Broken Places

Author : Richard M. Cohen
Publisher : Harper Collins
ISBN 13 : 0061752983
Total Pages : 414 pages
Book Rating : 4.0/5 (617 download)

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Book Synopsis Strong at the Broken Places by : Richard M. Cohen

Download or read book Strong at the Broken Places written by Richard M. Cohen and published by Harper Collins. This book was released on 2009-03-17 with total page 414 pages. Available in PDF, EPUB and Kindle. Book excerpt: The bestselling author of Blindsided, Richard M. Cohen spent three years chronicling the lives of five diverse "citizens of sickness": Denise, who suffers from ALS; Buzz, whose Christian faith helps him deal with his non-Hodgkin's lymphoma; Sarah, a determined young woman with Crohn's disease; Ben, a college student with muscular dystrophy; and Larry, whose bipolar disorder is hidden within. Differing in age and gender, race and economic status, all five are determined to live life on their own terms. In Strong at the Broken Places, Cohen shares these inspirational and revealing stories, which offer lessons for us all—–on self-determination, on courage in the face of adversity and public ignorance, on keeping hope alive. We are all strong at the broken places—stronger than we think.

Hear My Voice

Author : Heather Dean
Publisher : Rowman & Littlefield
ISBN 13 : 147585336X
Total Pages : 113 pages
Book Rating : 4.4/5 (758 download)

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Book Synopsis Hear My Voice by : Heather Dean

Download or read book Hear My Voice written by Heather Dean and published by Rowman & Littlefield. This book was released on 2019-12-16 with total page 113 pages. Available in PDF, EPUB and Kindle. Book excerpt: Today’s educators face challenges unparalleled by previous generations of teachers. A typical classroom is comprised of students from diverse backgrounds, varying languages and unique backgrounds. In order for educators to meet the needs of the individual students within their classes, they must have a grasp on the challenges facing their students. Currently in education, the focus is on marginalized students and the impact their circumstances have on their ability to learn. This book is designed to make the various hardships encountered by many students more personal in order to give teachers insight into the very real needs of today’s students. Educators are familiar with the data regarding students; however, it is through the individual story of students that teachers are reminded of their vital role in nurturing and educating the students that fill their desks each year. This book will pair student narratives with brain research to provide valuable insights to K-12 educators and university professors.

Chronicity Enquiries: Making Sense of Chronic Illness

Author : Li Zhenyi
Publisher : BRILL
ISBN 13 : 1848881509
Total Pages : 192 pages
Book Rating : 4.8/5 (488 download)

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Book Synopsis Chronicity Enquiries: Making Sense of Chronic Illness by : Li Zhenyi

Download or read book Chronicity Enquiries: Making Sense of Chronic Illness written by Li Zhenyi and published by BRILL. This book was released on 2019-01-04 with total page 192 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume was first published by Inter-Disciplinary Press in 2013. Chronic illness, together with people experiencing or treating it, became almost mute to predominant biomedical narration pervasive in mainstream media, education, medical and pharmaceutical industry. Contributors in this book aim to represent, discuss, and preserve the vanishing voices and stories on chronic illness from dimensions beyond medicine so that we may make sense of chronicity with the diversity it deserves. The book also incorporates research articles which share important stories about chronicity. These stories, same as chronic illness in our world, should not be treated in a ‘standardised’ way. Each reader, we hope, will relate the meanings of chronicity in this book to his or her own world.

Breaking Eggs: Finding New Meaning With Chronic Illness

Author : Lucia Amsden
Publisher : Outskirts Press
ISBN 13 : 1432796100
Total Pages : 145 pages
Book Rating : 4.4/5 (327 download)

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Book Synopsis Breaking Eggs: Finding New Meaning With Chronic Illness by : Lucia Amsden

Download or read book Breaking Eggs: Finding New Meaning With Chronic Illness written by Lucia Amsden and published by Outskirts Press. This book was released on 2013-01-15 with total page 145 pages. Available in PDF, EPUB and Kindle. Book excerpt: Breaking Eggs: Finding New Meaning with Chronic Illness, is unique. One Amazon reviewer put it like this: This account is written from a life well examined. Lucia Amsden serves up her own struggles with candor and deep wisdom in coming to grips with chronic illness. Yet this is much more than one person's story. Here are helpful suggestions on how to cope, grow, and re-frame ANY toxic negativity, no matter the circumstances. Enter into her heroic story -- and the stories of others --and be inspired by shared experiences and uplifting outlooks. Breaking Eggs won the 2013 New Mexico-Arizona Book Award, and the 2014 Reviewers Choice Award.

Chronic Illness and Long-Term Care: Breakthroughs in Research and Practice

Author : Management Association, Information Resources
Publisher : IGI Global
ISBN 13 : 152257123X
Total Pages : 845 pages
Book Rating : 4.5/5 (225 download)

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Book Synopsis Chronic Illness and Long-Term Care: Breakthroughs in Research and Practice by : Management Association, Information Resources

Download or read book Chronic Illness and Long-Term Care: Breakthroughs in Research and Practice written by Management Association, Information Resources and published by IGI Global. This book was released on 2018-10-05 with total page 845 pages. Available in PDF, EPUB and Kindle. Book excerpt: Stemming from environmental, genetic, and situational factors, chronic disease is a critical concern in modern medicine. Managing treatment and controlling symptoms is imperative to the longevity and quality of life of patients with such diseases. Chronic Illness and Long-Term Care: Breakthroughs in Research and Practice features current research on the diagnosis, monitoring, management, and treatment of chronic diseases such as diabetes, Parkinson's disease, autoimmune disorders, and many more. Highlighting a range of topics such as medication management, quality-of-life issues, and sustainable health, this publication is an ideal reference source for hospital administrators, healthcare professionals, academicians, researchers, and graduate-level students interested in the latest research on chronic diseases and long-term care.

Working and Caring for a Child with Chronic Illness

Author : M. Vickers
Publisher : Springer
ISBN 13 : 0230505902
Total Pages : 225 pages
Book Rating : 4.2/5 (35 download)

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Book Synopsis Working and Caring for a Child with Chronic Illness by : M. Vickers

Download or read book Working and Caring for a Child with Chronic Illness written by M. Vickers and published by Springer. This book was released on 2006-03-15 with total page 225 pages. Available in PDF, EPUB and Kindle. Book excerpt: Using an innovative, action research approach, Vickers explores the lives of women who work full time while caring for a child with significant chronic illness or disability. She demonstrates that such women can be disconnected from those around them, unsupported and overwhelmed with responsibility at home and work.

The Voice of Shame

Author : Robert G. Lee
Publisher : Taylor & Francis
ISBN 13 : 1135061726
Total Pages : 306 pages
Book Rating : 4.1/5 (35 download)

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Book Synopsis The Voice of Shame by : Robert G. Lee

Download or read book The Voice of Shame written by Robert G. Lee and published by Taylor & Francis. This book was released on 2013-04-15 with total page 306 pages. Available in PDF, EPUB and Kindle. Book excerpt: Shame and shame reactions are two of the most delicate and difficult issues of psychotherapy and are among the most likely to defy our usual dynamic, systemic, and behavioral theories. In this groundbreaking new collection, The Voice of Shame, thirteen distinguished authors show how use of the Gestalt model of self and relationship can clarify the dynamics of shame and lead us to fresh approaches and methods in this challenging terrain. This model shows how shame issues become pivotal in therapeutic and other relationships and how healing shame is the key to transformational change. The contributors show how new perspectives on shame gained in no particular area transfer and generalize to other areas and settings. In so doing, they transform our fundamental understanding of psychotherapy itself. Grounded in the most recent research on the dynamics and experience of shame, this book is a practical guide for all psychotherapists, psychologists, clinicians, and others interested in self, psychotherapy, and relationship. This book contains powerful new insights for the therapist on a full-range of topics from intimacy in couples to fathering to politics to child development to gender issues to negative therapeutic reactions. Filled with anecdotes and case examples as well as practical strategies, The Voice of Shame will transform your ideas about the role of shame in relationships - and about the potential of the Gestalt model to clarify and contextualize other approaches.

Understanding Patients' Voices

Author : Marta Antón
Publisher : John Benjamins Publishing Company
ISBN 13 : 9027268746
Total Pages : 185 pages
Book Rating : 4.0/5 (272 download)

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Book Synopsis Understanding Patients' Voices by : Marta Antón

Download or read book Understanding Patients' Voices written by Marta Antón and published by John Benjamins Publishing Company. This book was released on 2015-04-15 with total page 185 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume illustrates the process of conducting interdisciplinary, multi-cultural research into the relationship between patient language use and chronic disease management. The ten chapters in this book provide a model for interdisciplinary research in health discourse from start to finish. Part I describes in detail the conceptualization and design of a multi-year research project exploring language use among people living with diabetes. Part II offers a sampler of a variety of qualitative, quantitative, and contrastive methodologies that have considerable potential in the study of health discourse. Part III brings the research process full circle by discussing issues related to adapting research protocols to diverse cultural contexts, translating results into practice, and working in interdisciplinary teams.