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Author : Henry S. Shackelford
Publisher :
ISBN 13 :
Total Pages : 116 pages
Book Rating : 4.:/5 (89 download)
Download or read book The Mongoloid Child and His Future written by Henry S. Shackelford and published by . This book was released on 1972 with total page 116 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Christof Wunderlich
Publisher :
ISBN 13 :
Total Pages : 208 pages
Book Rating : 4.:/5 (31 download)
Download or read book The Mongoloid Child written by Christof Wunderlich and published by . This book was released on 1977 with total page 208 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Chris Kaposy
Publisher : MIT Press
ISBN 13 : 0262546248
Total Pages : 237 pages
Book Rating : 4.2/5 (625 download)
Download or read book Choosing Down Syndrome written by Chris Kaposy and published by MIT Press. This book was released on 2022-08-09 with total page 237 pages. Available in PDF, EPUB and Kindle. Book excerpt: An argument that more people should have children with Down syndrome, written from a pro-choice, disability-positive perspective. The rate at which parents choose to terminate a pregnancy when prenatal tests indicate that the fetus has Down syndrome is between 60 and 90 percent. In Choosing Down Syndrome, Chris Kaposy offers a carefully reasoned ethical argument in favor of choosing to have such a child. Arguing from a pro-choice, disability-positive perspective, Kaposy makes the case that there is a common social bias against cognitive disability that influences decisions about prenatal testing and terminating pregnancies, and that more people should resist this bias by having children with Down syndrome. Drawing on accounts by parents of children with Down syndrome, and arguing for their objectivity, Kaposy finds that these parents see themselves and their families as having benefitted from having a child with Down syndrome. To counter those who might characterize these accounts as based on self-deception or expressing adaptive preference, Kaposy cites supporting evidence, including divorce rates and observational studies showing that families including children with Down syndrome typically function well. Himself the father of a child with Down syndrome, Kaposy argues that cognitive disability associated with Down syndrome does not lead to diminished well-being. He argues further that parental expectations are influenced by neoliberal ideologies that unduly focus on the supposed diminished economic potential of a person with Down syndrome. Kaposy does not advocate restricting access to abortion or prenatal testing for Down syndrome, and he does not argue that it is ethically mandatory in all cases to give birth to a child with Down syndrome. People should be free to make important decisions based on their values. Kaposy's argument shows that it may be consistent with their values to welcome a child with Down syndrome into the family.
Author : Rayna Rapp
Publisher : Routledge
ISBN 13 : 1135963924
Total Pages : 377 pages
Book Rating : 4.1/5 (359 download)
Download or read book Testing Women, Testing the Fetus written by Rayna Rapp and published by Routledge. This book was released on 2004-11-23 with total page 377 pages. Available in PDF, EPUB and Kindle. Book excerpt: Rich with the voices and stories of participants, these touching, firsthand accounts examine how women of diverse racial, ethnic, class and religious backgrounds perceive prenatal testing, the most prevalent and routinized of the new reproducing technologies. Based on the author's decade of research and her own personal experiences with amniocentesis, Testing Women, Testing the Fetus explores the "geneticization" of family life in all its complexity and diversity.
Author : Siegfried M. Pueschel
Publisher :
ISBN 13 :
Total Pages : 356 pages
Book Rating : 4.E/5 ( download)
Download or read book A Parent's Guide to Down Syndrome written by Siegfried M. Pueschel and published by . This book was released on 2001 with total page 356 pages. Available in PDF, EPUB and Kindle. Book excerpt: For over 10 years, parents and professionals have trusted Dr. Pueschel's bestselling book A Parent's Guide to Down Syndrome--and now, they can get the latest information in his newly updated edition translated into Spanish. Crossing the lifespan, this thorough volume highlights developmental stages and shows recent advances that can improve a child's quality of life. New topics covered include Individuals with Disabilities Education Act (IDEA) 1997 innovative services, programs, and support groups the latest prenatal genetic testing methods the impact of play on gross motor development association of Down syndrome with other disorders such as Attention-Deficit/Hyperactivity Disorder and Pervasive Developmental Disorder Written by leading experts, many of whom are parents of children with Down syndrome themselves, readers will get the advice and insight in this easy-to-read reference.
Author : Terry J. Hassold
Publisher : Wiley-Liss
ISBN 13 : 9780471296874
Total Pages : 312 pages
Book Rating : 4.2/5 (968 download)
Download or read book Down Syndrome written by Terry J. Hassold and published by Wiley-Liss. This book was released on 1999-06-15 with total page 312 pages. Available in PDF, EPUB and Kindle. Book excerpt: Down Syndrome: A Promising Future, Together provides a comprehensive and up-to-date look at life with Down syndrome. Designed to meet the needs of parents and professionals alike, this edited volume addresses a variety of critical medical, developmental, educational, and vocational issues. It discusses current trends and presents the most recent update of the Health Care Guidelines for Individuals with Down Syndrome: Down Syndrome Preventative Medical Check List, which groups by age medical assessments and other important information. Also covered are the controversial and high-profile issues surrounding alternative and nonconventional therapies. The book concludes with the personal stories of young adults with Down syndrome, including an account by Chris Burke of the television series Life Goes On. Filled with practical advice from leading practitioners and advocates in the field, Down Syndrome: A Promising Future, Together is an essential reference for families of people with Down syndrome, for primary care physicians and other healthcare professionals, and for researchers, educators, social workers, early intervention workers, and students.
Author : Jen Jacob
Publisher : Simon and Schuster
ISBN 13 : 1440592918
Total Pages : 204 pages
Book Rating : 4.4/5 (45 download)
Download or read book The Parent's Guide to Down Syndrome written by Jen Jacob and published by Simon and Schuster. This book was released on 2015-12-04 with total page 204 pages. Available in PDF, EPUB and Kindle. Book excerpt: Help your child succeed and thrive! As a parent of a child diagnosed with Down syndrome, you may be feeling unsure of what to do next or where your child's journey will take you. In this book, authors Jen Jacob and Mardra Sikora share their experiences and guide you through life with Ds with expert advice from diagnosis to adulthood. Each page teaches you ways to support your child through major milestones; nurture their development; and ensure that they succeed behaviorally, socially, and cognitively. You'll also find valuable information on: Sharing the news with loved ones Transitioning into primary school Developing your child's social skills Discussing future opportunities, including employment and housing options With The Parent's Guide to Down Syndrome, you will have the tools you need to raise a happy, healthy, and thriving child.
Author : William P. Alford
Publisher : Springer Nature
ISBN 13 : 9811551286
Total Pages : 574 pages
Book Rating : 4.8/5 (115 download)
Download or read book An Oral History of the Special Olympics in China Volume 2 written by William P. Alford and published by Springer Nature. This book was released on 2020-01-01 with total page 574 pages. Available in PDF, EPUB and Kindle. Book excerpt: This open access book contains the oral histories that were inspired by the work of the Special Olympics in conjunction with the 50th anniversary of its founding. The foreword and prefatory materials provide an overview of the Special Olympics and its growth in the Peoples Republic of China. The sections that follow record interview transcripts of individuals with intellectual disabilities living in Shanghai. In addition to chronicling the involvement of these individuals and their families in the Special Olympics movement, the interview transcripts also capture their daily lives and how they have navigated school and work.
Author : Michael Berube
Publisher : Vintage
ISBN 13 : 0679758666
Total Pages : 306 pages
Book Rating : 4.6/5 (797 download)
Download or read book Life As We Know It written by Michael Berube and published by Vintage. This book was released on 1998-03-31 with total page 306 pages. Available in PDF, EPUB and Kindle. Book excerpt: When Jamie Bérubé was born with Down syndrome in 1991, he was immediately subject to the medical procedures, insurance guidelines, policies, and representations that surround every child our society designates as disabled. In this wrenching yet ultimately inspiring book, Jamie's father, literary scholar Michael Bérubé, describes not only the challenges of raising his son but the challenge of seeing him as a person rather than as a medical, genetic, or social problem.
Author : Mohammed Al-Biltagi
Publisher : Bentham Science Publishers
ISBN 13 : 1681081342
Total Pages : 486 pages
Book Rating : 4.6/5 (81 download)
Download or read book Down Syndrome Children - An Update written by Mohammed Al-Biltagi and published by Bentham Science Publishers. This book was released on 2015-11-04 with total page 486 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book describes different medical problems that children with Down syndrome can encounter. Twelve chapters written by medical experts present information about the disease and give general guidelines for pediatric care. Readers are introduced to the epidemiology and risk factors associated with Down Syndrome followed by descriptions of medical issues related to the disease in children. These include neonatal problems, cardiac defects, respiratory disorders, gastrointestinal problems, nervous system disorders, dental disorders and more. The book also includes information on mental health development and social issues that arise in the lives of affected children. This handbook will be essential for medical students, healthcare professionals and special education personnel who are involved in the care of children with Down syndrome.
Author : Bonnie Rochman
Publisher : Scientific American / Farrar, Straus and Giroux
ISBN 13 : 0374713960
Total Pages : 289 pages
Book Rating : 4.3/5 (747 download)
Download or read book The Gene Machine written by Bonnie Rochman and published by Scientific American / Farrar, Straus and Giroux. This book was released on 2017-02-28 with total page 289 pages. Available in PDF, EPUB and Kindle. Book excerpt: A sharp-eyed exploration of the promise and peril of having children in an age of genetic tests and interventions Is screening for disease in an embryo a humane form of family planning or a slippery slope toward eugenics? Should doctors tell you that your infant daughter is genetically predisposed to breast cancer? If tests revealed that your toddler has a genetic mutation whose significance isn’t clear, would you want to know? In The Gene Machine, the award-winning journalist Bonnie Rochman deftly explores these hot-button questions, guiding us through the new frontier of gene technology and how it is transforming medicine, bioethics, health care, and the factors that shape a family. Rochman tells the stories of scientists working to unlock the secrets of the human genome; genetic counselors and spiritual advisers guiding mothers and fathers through life-changing choices; and, of course, parents (including Rochman herself) grappling with revelations that are sometimes joyous, sometimes heartbreaking, but always profound. She navigates the dizzying and constantly expanding array of prenatal and postnatal tests, from carrier screening to genome sequencing, while considering how access to more tests is altering perceptions of disability and changing the conversation about what sort of life is worth living and who draws the line. Along the way, she highlights the most urgent ethical quandary: Is this technology a triumph of modern medicine or a Pandora’s box of possibilities? Propelled by human narratives and meticulously reported, The Gene Machine is both a scientific road map and a meditation on our power to shape the future. It is a book that gets to the very core of what it means to be human.
Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309324882
Total Pages : 587 pages
Book Rating : 4.3/5 (93 download)
Download or read book Transforming the Workforce for Children Birth Through Age 8 written by National Research Council and published by National Academies Press. This book was released on 2015-07-23 with total page 587 pages. Available in PDF, EPUB and Kindle. Book excerpt: Children are already learning at birth, and they develop and learn at a rapid pace in their early years. This provides a critical foundation for lifelong progress, and the adults who provide for the care and the education of young children bear a great responsibility for their health, development, and learning. Despite the fact that they share the same objective - to nurture young children and secure their future success - the various practitioners who contribute to the care and the education of children from birth through age 8 are not acknowledged as a workforce unified by the common knowledge and competencies needed to do their jobs well. Transforming the Workforce for Children Birth Through Age 8 explores the science of child development, particularly looking at implications for the professionals who work with children. This report examines the current capacities and practices of the workforce, the settings in which they work, the policies and infrastructure that set qualifications and provide professional learning, and the government agencies and other funders who support and oversee these systems. This book then makes recommendations to improve the quality of professional practice and the practice environment for care and education professionals. These detailed recommendations create a blueprint for action that builds on a unifying foundation of child development and early learning, shared knowledge and competencies for care and education professionals, and principles for effective professional learning. Young children thrive and learn best when they have secure, positive relationships with adults who are knowledgeable about how to support their development and learning and are responsive to their individual progress. Transforming the Workforce for Children Birth Through Age 8 offers guidance on system changes to improve the quality of professional practice, specific actions to improve professional learning systems and workforce development, and research to continue to build the knowledge base in ways that will directly advance and inform future actions. The recommendations of this book provide an opportunity to improve the quality of the care and the education that children receive, and ultimately improve outcomes for children.
Author : O. Conor Ward
Publisher : Royal Society of Medicine
ISBN 13 : 9781853153747
Total Pages : 213 pages
Book Rating : 4.1/5 (537 download)
Download or read book John Langdon Down, 1828-1896 written by O. Conor Ward and published by Royal Society of Medicine. This book was released on 1998-01-01 with total page 213 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Brian Skotko
Publisher : Special Needs Collection
ISBN 13 : 9781890627867
Total Pages : 0 pages
Book Rating : 4.6/5 (278 download)
Download or read book Fasten Your Seatbelt written by Brian Skotko and published by Special Needs Collection. This book was released on 2009 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Even the closest brothers and sisters don't always get along or understand each other. Add a disability like Down syndrome to the mix, and that sibling relationship gets even more complicated, especially for teenagers. Fasten Your Seatbelt is the first book written exclusively for teens with a brother or sister with Down syndrome. In an easy-to-read, question & answer format, it tackles a broad range of their most common issues and concerns. Nearly 100 questions--all posed by teen siblings--are grouped into the following categories: Facts and stats about Down syndrome How people with Down syndrome learn Handling parent and family conflicts Dealing with your sibling's frustrating behaviors Managing uncomfortable situations Sorting out your feelings Becoming an advocate What the future holds for you and your sibling Finding local and national resources Thoughtful, knowledgeable answers are provided by Brian Skotko, the brother of a young woman with Down syndrome, and Sue Levine, a social worker focused on sibling issues for the past 30 years. Fasten Your Seatbelt gives teens the green light to explore their own feelings and questions about their sibling with Down syndrome and how their relationship may change in the future. Wondering whats on their minds? Here are a few sample questions from the book: Why does my brother always have temper tantrums? How can one extra chromosome make someone so different? Can my sister with Down syndrome marry someday? Will my brother be able to live on his own as an adult?
Author : Maryanne Bruni
Publisher :
ISBN 13 : 9781890627676
Total Pages : 0 pages
Book Rating : 4.6/5 (276 download)
Download or read book Fine Motor Skills in Children with Down Syndrome written by Maryanne Bruni and published by . This book was released on 2006 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book explains the best practices and procedures for helping children master the finger and hand skills needed for home and school activities.
Author : Susan J. Skallerup
Publisher : Special Needs Collection
ISBN 13 : 9781890627553
Total Pages : 0 pages
Book Rating : 4.6/5 (275 download)
Download or read book Babies with Down Syndrome written by Susan J. Skallerup and published by Special Needs Collection. This book was released on 2008 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Babies with Down Syndrome-- the book that tens of thousands of new parents have turned to for information and guidance-- is now completely revised and updated. Covering medical care, daily care, family life, development, early interention, learning, legal rights, and much more, the new edition is a complete roadmap to every aspect of your child's health and well being from birth through age five.
Author : George Estreich
Publisher : MIT Press
ISBN 13 : 0262039567
Total Pages : 239 pages
Book Rating : 4.2/5 (62 download)
Download or read book Fables and Futures written by George Estreich and published by MIT Press. This book was released on 2019-03-19 with total page 239 pages. Available in PDF, EPUB and Kindle. Book excerpt: How new biomedical technologies—from prenatal testing to gene-editing techniques—require us to imagine who counts as human and what it means to belong. From next-generation prenatal tests, to virtual children, to the genome-editing tool CRISPR-Cas9, new biotechnologies grant us unprecedented power to predict and shape future people. That power implies a question about belonging: which people, which variations, will we welcome? How will we square new biotech advances with the real but fragile gains for people with disabilities—especially when their voices are all but absent from the conversation? This book explores that conversation, the troubled territory where biotechnology and disability meet. In it, George Estreich—an award-winning poet and memoirist, and the father of a young woman with Down syndrome—delves into popular representations of cutting-edge biotech: websites advertising next-generation prenatal tests, feature articles on “three-parent IVF,” a scientist's memoir of constructing a semisynthetic cell, and more. As Estreich shows, each new application of biotechnology is accompanied by a persuasive story, one that minimizes downsides and promises enormous benefits. In this story, people with disabilities are both invisible and essential: a key promise of new technologies is that disability will be repaired or prevented. In chapters that blend personal narrative and scholarship, Estreich restores disability to our narratives of technology. He also considers broader themes: the place of people with disabilities in a world built for the able; the echoes of eugenic history in the genomic present; and the equation of intellect and human value. Examining the stories we tell ourselves, the fables already creating our futures, Estreich argues that, given biotech that can select and shape who we are, we need to imagine, as broadly as possible, what it means to belong.
