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Supporting Family Care Of Persons Who Are Developmentally Disabled
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Author :Illinois. Governor's Planning Council on Developmental Disabilities Publisher : ISBN 13 : Total Pages :84 pages Book Rating :4.:/5 (31 download)
Book Synopsis Supporting Family Care of Persons who are Developmentally Disabled by : Illinois. Governor's Planning Council on Developmental Disabilities
Download or read book Supporting Family Care of Persons who are Developmentally Disabled written by Illinois. Governor's Planning Council on Developmental Disabilities and published by . This book was released on 1987 with total page 84 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Patient Safety and Quality by : Ronda Hughes
Download or read book Patient Safety and Quality written by Ronda Hughes and published by Department of Health and Human Services. This book was released on 2008 with total page 592 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/
Book Synopsis Family Support and Family Caregiving across Disabilities by : George H.S. Singer
Download or read book Family Support and Family Caregiving across Disabilities written by George H.S. Singer and published by Routledge. This book was released on 2014-06-11 with total page 215 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family members provide the majority of care for individuals with disabilities in the United States. Recognition is growing that family caregiving deserves and may require societal support, and evidence-based practices have been established for reducing stress associated with caregiving. Despite the substantial research literature on family support that has developed, researchers, advocates and professionals have often worked in separate categorical domains such as family support for caregiving for the frail elderly, for individuals with mental illness, or for people with development disabilities. Family Support and Family Caregiving across Disabilities addresses this significant limitation through cross-categorical and lifespan analyses of family support and family caregiving from the perspectives of theory and conceptual frameworks, empirical research, and frameworks and recommendations for improvements in public policy. The book also examines children with disabilities, children with autism, adults with schizophrenia, and individuals with cancer across the life cycle. This book was published as a two-part special issue in the Journal of Family Social Work.
Book Synopsis Helping People with Developmental Disabilities Mourn by : Marc A. Markell
Download or read book Helping People with Developmental Disabilities Mourn written by Marc A. Markell and published by Companion Press. This book was released on 2004-06-01 with total page 98 pages. Available in PDF, EPUB and Kindle. Book excerpt: Frequently, people with developmental disabilities are excluded from bereavement ceremonies when a loved one or friend dies, therefore not receiving the special care needed for comprehending their own feelings of loss. Focusing on creating mourning rituals for special needs people, this guide offers specific rituals and techniques for caregivers to use while helping explain death and dying. With more than 20 examples such as the use of pictures and storytelling or drawing and music, these practical tools can substantially lend to the understanding of grief and sadness for intellectually and developmentally disabled adults and adolescents.
Book Synopsis Multiple Dimensions of Caregiving and Disability by : Ronda C. Talley
Download or read book Multiple Dimensions of Caregiving and Disability written by Ronda C. Talley and published by Springer Science & Business Media. This book was released on 2012-06-27 with total page 231 pages. Available in PDF, EPUB and Kindle. Book excerpt: Caring for people with disabilities often becomes an all-encompassing responsibility for one or more family members. To manage the multifaceted demands, caregivers must possess strong multitasking skills, including the ability to assist with daily life tasks; provide emotional support; help with financial affairs; mediate and advocate with health care providers. Maintaining balance within their own lives can become incredibly challenging for caregivers. More often than not, providing care for family members or loved ones occurs at the expense of the caregivers’ well-being. And for caregivers who themselves have disabilities, it further complicates matters. Multiple Dimensions of Caregiving and Disability addresses concerns that have been long familiar to the caregiver population and examines the current state of family care for individuals with disabilities. With a lifespan perspective, this concise reference reviews the literature on specific problems of caregivers and explores which care strategies are effective, promising, or lacking in available resources and support interventions. Contributors also explore the more fluid and subjective aspects of caregiving, such as feelings, spirituality, and family roles. Suggestions for future policy improvements, particularly within the public health sector, are discussed as well. Topics covered include: • Family dynamics and caregiving for people with disabilities. • Parent caregiving of children with disabilities. • Race, ethnicity, socioeconomic status, and caregiving. • Educational, training, and support programs for caregivers. • Emerging technologies to aid caregivers. • Developing partnerships between caregivers and health care providers. Multiple Dimensions of Caregiving and Disability is a must-have resource for researchers, scientist-practitioners, policy makers, and graduate students across such disciplines as clinical psychology, nursing, social work, public health, medicine, and social and education policy.
Author :National Academies of Sciences, Engineering, and Medicine Publisher :National Academies Press ISBN 13 :0309448093 Total Pages :367 pages Book Rating :4.3/5 (94 download)
Book Synopsis Families Caring for an Aging America by : National Academies of Sciences, Engineering, and Medicine
Download or read book Families Caring for an Aging America written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-08 with total page 367 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.
Book Synopsis Life Planning for Adults with Developmental Disabilities by : Judith Greenbaum
Download or read book Life Planning for Adults with Developmental Disabilities written by Judith Greenbaum and published by New Harbinger Publications. This book was released on 2007-05-01 with total page 212 pages. Available in PDF, EPUB and Kindle. Book excerpt: A Comprehensive Guide for Parents and Caregivers As any parent or caregiver of an individual with developmental disabilities can tell you, planning for the future of an adult with intellectual disabilities, Cerebral Palsy, severe autism, or another such condition requires hard work and good advice. While complete independence and self-reliance is out of reach for many adults with developmental disabilities, a productive, stable, and enjoyable life is certainly possible. But government and private support for parents and disabled individuals is scattered and difficult to negotiate. This book is a comprehensive guide to resources you can use to help an adult child or other individual with developmental disabilities for whom you care. The book begins by assessing the quality of life of the adult with a disability. It offers a wealth of suggestions for making that person's life even better. The book then focuses on long-term planning for the individual with a disability and helps answer the question, Who will take care of my child after I'm gone? Learn effective ways to: Assess a disabled individual's strengths and need for support services Develop a plan to for building a busy and productive life Locate good housing and employment opportunities Gather a supportive team of caregivers Advocate for a disabled individual with community agencies
Book Synopsis Intellectual and Developmental Disabilities by : Briana S. Nelson Goff
Download or read book Intellectual and Developmental Disabilities written by Briana S. Nelson Goff and published by Routledge. This book was released on 2017-10-19 with total page 276 pages. Available in PDF, EPUB and Kindle. Book excerpt: Intellectual and Developmental Disabilities provides a unique contribution not currently available in the professional literature by addressing the experiences and perspectives of families living with or raising a child with a disability. Designed for family therapists, social workers, and other helping professionals, it provides empirically-based, practical information for working with families experiencing intellectual and developmental disabilities of a loved one. This book also provides important information for navigating the various professional systems of care with which these families interface: health care providers, early childhood intervention teams, educational systems, the legal system, and financial planners.
Book Synopsis Supporting Families of Children With Developmental Disabilities by : Mian Wang
Download or read book Supporting Families of Children With Developmental Disabilities written by Mian Wang and published by Oxford University Press. This book was released on 2016-02-11 with total page 377 pages. Available in PDF, EPUB and Kindle. Book excerpt: Supporting Families of Children with Developmental Disabilities: Evidence-based and Emerging Practices provides a comprehensive review of the empirical evidence on interventions for families of individuals - ranging from post-preschool age to adulthood - with developmental disabilities. The book presents both narrative and meta-analytic syntheses of a large body of research to evaluate which interventions meet contemporary standards as evidence based practices. The body of studies reviewed in the book has not previously been gathered into one volume, nor evaluated as a whole for the quality and extent of the evidence. The research is presented in the context of contemporary social policy and practices aimed at maximizing the development of children with disabilities while increasing the quality of life of their families. The criteria and procedures followed for identifying, reviewing, evaluating, and categorizing the studies are articulated in line with other major professional standards. Individual chapters focus on several different schools of practice, including: group psycho-educational interventions, behavioral parent training, multiple component interventions, supportive interventions for families of children with autism, home- and school-based practices, self-help groups, and advocacy programs. Supporting Families of Children with Developmental Disabilities is an important tool for moving the disability field forward for future research, practice, and social policy.
Book Synopsis The Elderly Caregiver by : Karen A. Roberto
Download or read book The Elderly Caregiver written by Karen A. Roberto and published by SAGE Publications. This book was released on 1993-08-09 with total page 234 pages. Available in PDF, EPUB and Kindle. Book excerpt: By bringing together contributions from the fields of gerontology and developmental disabilities, the editor of this volume makes an important statement about the need for collaborative and multidisciplinary research to be conducted in this area, and for the developmental disabilities service system and the aging network to work together to support these caregivers and their family members with developmental disabilities. --American Journal on Mental Retardation The shift from institutional to community-based care for individuals with developmental disabilities and their increase in longevity has resulted in more and more elderly serving as primary caregivers for adults with developmental disabilities. The Elderly Caregiver addresses the predominate issues and concerns confronting these older caregivers. By bringing together the empirical work of researchers from a variety of disciplines, this volume provides insight into the physical, psychological, and social needs of this growing segment of the population. Contributors explore the needs of elderly parents caring for adult children with mental retardation, changes in their caregiving activities, the increasing burden of caregiving, and the ordeal of facing their own frailties while planning future out-of-home placement for their children. Additional chapters focus on the needs of caregivers of aging adults with Down syndrome and Alzheimer′s disease. Finally, case management is examined from the perceptions of family members as well as case managers themselves. A concluding chapter draws together the implications for the future directions for practice, policy, and research. Unique in its presentation, The Elderly Caregiver is invaluable to researchers, practitioners and advanced students in aging, health/rehabilitation, social work, and family studies. "Not only does the author provide insight into some of the physical, social, and psychological needs of these [developmentally disabled] adults, she explores certain needs of the elderly parents who are facing their own aging problems. This accessible book is geared for caregivers, providers, family members, and professionals involved with older adults who have developmental disabilities. . . . This book offers highly practical advice of use to a wide variety of readers, including the caregivers, professionals, and health care providers concerned with adults having these disabilities." --Academic Library Book Review "In addition to enlightening the reader with its contemporary knowledge of the field, the text is well organized and includes some of the most impressive empirical work conducted in this area. As well, it provides some good suggestions for future research. . . . The work provides a comprehensive perspective on family caregivers, aging caregivers, and the aging of people with developmental disabilities who are recipients of care. . . . At a time when numerous books on deinstitutionalization, community care of the mentally ill, and the intellectually impaired are appearing on the market, it is a great pleasure to see a book that is well-rounded. . . . I recommend this book as a valuable text for researchers, practitioners, and students of gerontology. Further, it will serve as an invaluable book for caregivers themselves. It has undoubtedly made a significant contribution in the field." --The Canadian Health Psychologist "...This collection fills a significant unmet need, and can be related to other caregiving situations. It is an up-to-date and very readable book, for practitioners and policy makers as well as researchers and educators. Families should also find it useful. ...The topic is a timely example of the need for service integration in our aging society. This collection helps to address their needs and those of their children by applying theory, suggesting additional research, and making specific practice and policy recommendations." --Contemporary Gerontology
Book Synopsis Health Care for People with Intellectual and Developmental Disabilities across the Lifespan by : I. Leslie Rubin
Download or read book Health Care for People with Intellectual and Developmental Disabilities across the Lifespan written by I. Leslie Rubin and published by Springer. This book was released on 2016-05-10 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides a broad overview of quality health care for people with intellectual and developmental disabilities (IDD). It focuses on providing the reader a practical approach to dealing with the health and well-being of people with IDD in general terms as well as in dealing with specific conditions. In addition, it offers the reader a perspective from many different points of view in the health care delivery system as well as in different parts of the world. This is the 3rd , and much expanded edition, of a text that was first published in 1989 (Lea and Fibiger). The second edition was published in 2006 (Paul Brookes) and has been used as a formal required text in training programs for physicians, nurses and nurse practitioners as well as by administrators who are responsible for programs serving people with IDD. This book is considered the “Bible” in the field of health care for people with IDD since 1989 when the first edition came out.
Author :National Academies of Sciences, Engineering, and Medicine Publisher :National Academies Press ISBN 13 :0309388570 Total Pages :525 pages Book Rating :4.3/5 (93 download)
Book Synopsis Parenting Matters by : National Academies of Sciences, Engineering, and Medicine
Download or read book Parenting Matters written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-21 with total page 525 pages. Available in PDF, EPUB and Kindle. Book excerpt: Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.
Book Synopsis Parents with Intellectual Disabilities by : Gwynnyth Llewellyn
Download or read book Parents with Intellectual Disabilities written by Gwynnyth Llewellyn and published by John Wiley & Sons. This book was released on 2010-02-18 with total page 290 pages. Available in PDF, EPUB and Kindle. Book excerpt: The first international, cross-disciplinary book to explore and understand the lives of parents with intellectual disabilities, their children, and the systems and services they encounter Presents a unique, pan-disciplinary overview of this growing field of study Offers a human rights approach to disability and family life Informed by the newly adopted UN Convention on the Rights of Persons with Disabilities (2006) Provides comprehensive research-based knowledge from leading figures in the field of intellectual disability
Book Synopsis Tools for the Primary Care of People with Developmental Disabilities by : Developmental Disabilities Primary Care Initiative
Download or read book Tools for the Primary Care of People with Developmental Disabilities written by Developmental Disabilities Primary Care Initiative and published by . This book was released on 2011-03 with total page 95 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Respite Care by : Christine L. Salisbury
Download or read book Respite Care written by Christine L. Salisbury and published by . This book was released on 1986 with total page 346 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ce document fait la description des besoins de répit ou de dépannage auprés des famille d'enfant rencontrant des difficultés importantes. Certains modèles sont proposés comme la coopérative de services. Le focus est orienté sur les besoins des parents et de la famille ainsi que pour l'élaboration des systèmes d'évaluation.
Book Synopsis Neurological, Psychiatric, and Developmental Disorders by : Institute of Medicine
Download or read book Neurological, Psychiatric, and Developmental Disorders written by Institute of Medicine and published by National Academies Press. This book was released on 2001-01-01 with total page 458 pages. Available in PDF, EPUB and Kindle. Book excerpt: Brain disordersâ€"neurological, psychiatric, and developmentalâ€"now affect at least 250 million people in the developing world, and this number is expected to rise as life expectancy increases. Yet public and private health systems in developing countries have paid relatively little attention to brain disorders. The negative attitudes, prejudice, and stigma that often surround many of these disorders have contributed to this neglect. Lacking proper diagnosis and treatment, millions of individual lives are lost to disability and death. Such conditions exact both personal and economic costs on families, communities, and nations. The report describes the causes and risk factors associated with brain disorders. It focuses on six representative brain disorders that are prevalent in developing countries: developmental disabilities, epilepsy, schizophrenia, bipolar disorder, depression, and stroke. The report makes detailed recommendations of ways to reduce the toll exacted by these six disorders. In broader strokes, the report also proposes six major strategies toward reducing the overall burden of brain disorders in the developing world.
Book Synopsis Feminist Perspectives on Family Care by : Nancy R. Hooyman
Download or read book Feminist Perspectives on Family Care written by Nancy R. Hooyman and published by SAGE Publications. This book was released on 1995-08-29 with total page 433 pages. Available in PDF, EPUB and Kindle. Book excerpt: Today women find themselves playing an ever-increasing role in caring for older family members who are frail, developmentally disabled, or suffering from serious mental illness. While this has role of women as caregivers has been documented, the actual impact on the lives of women has remained largely unstudied. In this volume, the authors examine caregiving as a central feminist issue, looking at its impact on women socially, personally, and economically. The authors review how changing family structures, the changing economy and workforce, and the changing health care demands of needy adults have impacted on women′s lives. They critique existing public and private policies, demonstrating a need for fundamental structural changes in social institutions and attitudes to improve the lives of women. Finally, they propose a social model of care that is oriented toward gender justice--recognition of the work of caring and its impact upon women socially, personally, and economically. For students, scholars and practitioners in the field of gerontology, gender studies, and social work, this book is a must.
