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Severe Me Notes For Carers
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Book Synopsis Severe ME: Notes for Carers by : Greg Crowhurst
Download or read book Severe ME: Notes for Carers written by Greg Crowhurst and published by Lulu.com. This book was released on 2015-05-10 with total page 250 pages. Available in PDF, EPUB and Kindle. Book excerpt: This illustrated guide with contributions from carers and those who are ill, from around the world, is packed full of practical tips, insights, guides and self-reflective exercises designed to raise awareness of how to care for someone with Severe/Very Severe M.E. Greg Crowhurst PgDip, Cert Counselling, Dip Life Coaching, MA, who qualified as a Registered Nurse in 1984, has spent over two decades caring for his wife who has Very Severe ME. In 2015 he was a finalist in the prestigious BJN Nurse of the Year Award, receiving a certificate in Clinical Excellence in Nursing. Greg is the author of ""Severe ME featuring Justice for Karina Hansen"" widely acclaimed as a book of ""immense value"" in describing what it is like to ""live a life as and with someone who is severely stricken with the devastating disease Myalgic Encephalomyelitis"".
Book Synopsis More Notes For Carers by : Greg Crowhurst
Download or read book More Notes For Carers written by Greg Crowhurst and published by . This book was released on 2020-12-16 with total page 436 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book gives you an overview of how you might approach relationship, interaction and care for people diagnosed with Severe or Very Severe ME. Whether in the context of decades of suffering or newly faced with the unexpected decline of a loved one into severe illness, it is not always obvious what to do and when to do it, in the best way. My hope is to show how, in this silent, fragile and complex situation, you can not only flow and be present with each other, but learn also how to grow, to communicate, to be aware, to be skilled, to be empowered through partnership, to make all the difference in the world to the quality of care and understanding people receive.
Book Synopsis Caring for the M.E. Patient by : Jodi Bassett
Download or read book Caring for the M.E. Patient written by Jodi Bassett and published by Lulu.com. This book was released on 2011 with total page 164 pages. Available in PDF, EPUB and Kindle. Book excerpt: Essential information on the neurological disease M.E. sourced from the world's leading M.E. experts. Suitable for M.E. patients, their friends and family, partners, carers or doctors. The book includes a foreword by international M.E. expert Dr Byron Hyde. M.E.is a distinct neurological disease and is not at all the same thing as 'CFS.' Learning the facts is not time-consuming or complicated. Supporting your ill friend or family member or patient more fully by being aware of the basic facts of M.E. could make all the difference in the world to them. This book shows you how. Jodi Bassett is the founder of the international M.E. charity, HFME. Jodi contracted M.E. in 1995 when she was just 19. HFME contributors also aim to advocate for those non-M.E. patients who have been given the always meaningless 'CFS' diagnosis, and subsequently denied correct diagnosis and treatment.
Book Synopsis Chronic Fatigue Syndrome/ME by : Elizabeth Turp
Download or read book Chronic Fatigue Syndrome/ME written by Elizabeth Turp and published by Jessica Kingsley Publishers. This book was released on 2011-04-15 with total page 176 pages. Available in PDF, EPUB and Kindle. Book excerpt: People with Chronic Fatigue Syndrome (CFS)/ME experience extreme tiredness and a range of other symptoms, including pain, headaches, impaired concentration and memory, anxiety, sleep problems, and palpitations. The condition can affect all areas of a sufferer's life and, in turn, the lives of those who are close to them. This book provides the families and friends of people with CFS/ME with an accessible introduction to the condition, and explains what can be done to support those who have it. It offers useful advice on how to help a loved one cope with the illness, and suggests ways to help them with everyday issues such as personal hygeine, nutrition, finances, and relationships. Recognising that coping with the impact of CFS/ME can be just as difficult for the relatives and friends of those with the condition, it addresses the emotional, social, and practical aspects of having a loved one with CFS/ME, explains how to understand the changes in their relationship with the sufferer, how to manage stress, and where to go for further help and support. The book also includes detailed case studies and practical advice from a wide range of people with mild, moderate, and severe CFS/ME, and their loved ones. This book offers much-needed information and support to the friends, families, and carers of people with CFS/ME. It will also be a useful resource for health professionals who wish to deepen their understanding of CFS/ME, including home helps, care staff, counsellors, therapists, doctors, and nurses.
Author :National Academies of Sciences, Engineering, and Medicine Publisher :National Academies Press ISBN 13 :0309448093 Total Pages :367 pages Book Rating :4.3/5 (94 download)
Book Synopsis Families Caring for an Aging America by : National Academies of Sciences, Engineering, and Medicine
Download or read book Families Caring for an Aging America written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-08 with total page 367 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.
Book Synopsis Forced to Care by : Evelyn Nakano Glenn
Download or read book Forced to Care written by Evelyn Nakano Glenn and published by Harvard University Press. This book was released on 2012-03-05 with total page 271 pages. Available in PDF, EPUB and Kindle. Book excerpt: The United States faces a growing crisis in care. The number of people needing care is growing while the ranks of traditional caregivers have shrunk. The status of care workers is a critical concern. Evelyn Nakano Glenn offers an innovative interpretation of care labor in the United States by tracing the roots of inequity along two interconnected strands: unpaid caring within the family; and slavery, indenture, and other forms of coerced labor. By bringing both into the same analytic framework, she provides a convincing explanation of the devaluation of care work and the exclusion of both unpaid and paid care workers from critical rights such as minimum wage, retirement benefits, and workers' compensation. Glenn reveals how assumptions about gender, family, home, civilization, and citizenship have shaped the development of care labor and been incorporated into law and social policies. She exposes the underlying systems of control that have resulted in womenÑespecially immigrants and women of colorÑperforming a disproportionate share of caring labor. Finally, she examines strategies for improving the situation of unpaid family caregivers and paid home healthcare workers. This important and timely book illuminates the source of contradictions between American beliefs about the value and importance of caring in a good society and the exploitation and devalued status of those who actually do the caring.
Book Synopsis Pocket Book of Hospital Care for Children by : World Health Organization
Download or read book Pocket Book of Hospital Care for Children written by World Health Organization and published by World Health Organization. This book was released on 2013 with total page 442 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Pocket Book is for use by doctors nurses and other health workers who are responsible for the care of young children at the first level referral hospitals. This second edition is based on evidence from several WHO updated and published clinical guidelines. It is for use in both inpatient and outpatient care in small hospitals with basic laboratory facilities and essential medicines. In some settings these guidelines can be used in any facilities where sick children are admitted for inpatient care. The Pocket Book is one of a series of documents and tools that support the Integrated Managem.
Book Synopsis UCOC English for Carers by : Virginia Allum
Download or read book UCOC English for Carers written by Virginia Allum and published by Lulu.com. This book was released on 2015-06-22 with total page 143 pages. Available in PDF, EPUB and Kindle. Book excerpt: English for Carers (UCOC version)is a book which can be used in conjunction with online materials by carers, personal care assistants, nursing assistants and nurses who care for the elderly. A variety of common situations are presented, including end-of-life care. Dialogues are introduced using short YouTube cartoon videos with related practice activities. The book has a communication focus aimed at Pre-Intermediate Level (A2) Virginia Allum is a medical English author who has published several EFL/ESP books for nurses, nursing assistants and doctors. She is a practising Registered Nurse in the UK and has taught in a Diploma of Nurses and Aged Care Certificate in Australia. She is a co-author of both 'Cambridge English for Nursing' books as well as several online courses for nurses and healthcare assistants
Book Synopsis Finding You Finding Me by : Phoebe Caldwell
Download or read book Finding You Finding Me written by Phoebe Caldwell and published by Jessica Kingsley Publishers. This book was released on 2006 with total page 176 pages. Available in PDF, EPUB and Kindle. Book excerpt: Based on many years of working with such people, many of whom have withdrawn into a world of their own, Phoebe Caldwell explores the different sensory reality they experience, showing it to be infinitely more complex and varied than is widely understood.
Book Synopsis Lighting Up a Hidden World by : Valerie Free
Download or read book Lighting Up a Hidden World written by Valerie Free and published by FriesenPress. This book was released on 2016-08-29 with total page 516 pages. Available in PDF, EPUB and Kindle. Book excerpt: The onset can be fast and shocking or slow and insidious. It can happen to anyone at any age. A flu, a vaccination, or an infection can be the innocent beginnings to the potentially life-long and disabling illness called myalgic encephalomyelitis (ME), which is more commonly known as chronic fatigue syndrome (CFS) or ME/CFS in North America. In the mid 1980s, the U.S. Centers for Disease Control (CDC) was called in by concerned doctors who were witnessing an influx of patients with a mysterious illness. Eventually the CDC labeled the condition "chronic fatigue syndrome" which turned out to be very misleading. Decades later, in 2016, health agencies are finally beginning to agree with international experts that ME/CFS is a serious, chronic, multi-system illness. Through artwork, poetry, story-telling, and meticulous research, Lighting Up a Hidden World: CFS and ME takes readers into the fascinating, yet frightening, landscape of ME/CFS. Author Valerie Free shares her personal experiences and delivers illuminating first-hand perspectives from patients, caregivers, journalists, and medical professionals from within the global community in short easy-to-read segments. These stories reveal the disgrace, controversy, and tragedy of worldwide neglect by political and health care systems, leaving ME/CFS research underfunded and millions of people marginalized, sick, and socially unsupported. Lighting Up a Hidden World: CFS and ME advocates for those too ill to speak out, abounds with patient resources, and offers realistic hope for the future. People living with this illness, along with their family and friends, will find compassion and camaraderie in its pages. This book reaches beyond the ME/CFS community exposing the themes of human suffering, resilience, and the need for social change.
Download or read book Acute Medicine written by Glenn Matfin and published by John Wiley & Sons. This book was released on 2023-01-20 with total page 468 pages. Available in PDF, EPUB and Kindle. Book excerpt: Lecture Notes discusses the principles of the initial assessment, investigation, diagnosis, and management of adult patients with everyday Acute Internal Medicine (AIM) presentations and conditions. This textbook is wide in scope and covers topics ranging from initial identification of acute medical illness, through to effective discharge planning. Lecture Notes contains the latest developments on the generic professional and specialty specific capabilities needed to manage patients presenting with a wide range of medical symptoms and conditions covered in the UK AIM curriculum (2022). In Lecture Notes, readers can expect to find detailed information on: Generic skills relevant to AIM, such as clinical reasoning, safe prescribing, point of care ultrasound (POCUS), resuscitation, and managing the acute medical take AIM across the various acute care settings – home (telemedicine, virtual wards, Hospital at Home), ambulatory (same day emergency care), and in-hospital (acute medical unit, enhanced care, critical care) AIM presentations and conditions in special populations such as older people, pregnancy, people with HIV, LGBTQ+, inclusion medicine, people with learning disabilities, perioperative medicine, people with mental illness and more Common presentations in AIM Standalone chapters can be read in any sequence, making the text perfect for quick reference With its accessible coverage of a wide range of AIM content, Lecture Notes: Acute Medicine is an essential resource for medical students, physician trainees, consultants, and other members of the multidisciplinary team working in acute care, patient-facing settings.
Book Synopsis Diagnosis and Treatment of Chronic Fatigue Syndrome and Myalgic Encephalitis by : Sarah Myhill
Download or read book Diagnosis and Treatment of Chronic Fatigue Syndrome and Myalgic Encephalitis written by Sarah Myhill and published by Chelsea Green Publishing. This book was released on 2018 with total page 434 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Original edition published in 2017 by Hammersmith Books, London, United Kingdom"--T.p. verso.
Download or read book Never Let Me Go written by Sachin Garg and published by . This book was released on 2012 with total page 239 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book We Walk written by Amy S. F. Lutz and published by Cornell University Press. This book was released on 2020-10-15 with total page 148 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this collection of beautiful and raw essays, Amy S. F. Lutz writes openly about her experience—the positive and the negative—as a mother of a now twenty-one-year-old son with severe autism. Lutz's human emotion drives through each page and challenges commonly held ideas that define autism either as a disease or as neurodiversity. We Walk is inspired by her own questions: What is the place of intellectually and developmentally disabled people in society? What responsibilities do we, as citizens and human beings, have to one another? Who should decide for those who cannot decide for themselves? What is the meaning of religion to someone with no abstract language? Exploring these questions, We Walk directly—and humanly—examines social issues such as inclusion, religion, therapeutics, and friendship through the lens of severe autism. In a world where public perception of autism is largely shaped by the "quirky geniuses" featured on television shows like The Big Bang Theory and The Good Doctor, We Walk demands that we center our debates about this disorder on those who are most affected by its impacts.
Book Synopsis Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome by : Institute of Medicine
Download or read book Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-16 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: Myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are serious, debilitating conditions that affect millions of people in the United States and around the world. ME/CFS can cause significant impairment and disability. Despite substantial efforts by researchers to better understand ME/CFS, there is no known cause or effective treatment. Diagnosing the disease remains a challenge, and patients often struggle with their illness for years before an identification is made. Some health care providers have been skeptical about the serious physiological - rather than psychological - nature of the illness. Once diagnosed, patients often complain of receiving hostility from their health care provider as well as being subjected to treatment strategies that exacerbate their symptoms. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome proposes new diagnostic clinical criteria for ME/CFS and a new term for the illness - systemic exertion intolerance disease(SEID). According to this report, the term myalgic encephalomyelitis does not accurately describe this illness, and the term chronic fatigue syndrome can result in trivialization and stigmatization for patients afflicted with this illness. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome stresses that SEID is a medical - not a psychiatric or psychological - illness. This report lists the major symptoms of SEID and recommends a diagnostic process.One of the report's most important conclusions is that a thorough history, physical examination, and targeted work-up are necessary and often sufficient for diagnosis. The new criteria will allow a large percentage of undiagnosed patients to receive an accurate diagnosis and appropriate care. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome will be a valuable resource to promote the prompt diagnosis of patients with this complex, multisystem, and often devastating disorder; enhance public understanding; and provide a firm foundation for future improvements in diagnosis and treatment.
Book Synopsis Finding Joy with an Invisible Chronic Illness by : Christopher Martin
Download or read book Finding Joy with an Invisible Chronic Illness written by Christopher Martin and published by Martin Family Bookstore. This book was released on 2021-11-14 with total page 200 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Christopher does a brilliant job of explaining the tools for managing the social, spiritual, mental, and physical aspects of chronic illness. I loved that the book contains straightforward tips for patients, their caregivers, and loved ones. Every chapter includes useful advice." —Edith Wairimu, 5-Star Readers' Favorite Book Review Live your best life — even when your physical health crumbles. Finding Joy presents a comprehensive, practical guide for living your best life with chronic illness. This psychology self-help book integrates personal and professional insights to give you tools for handling various aspects of living with a chronic illness. There is also a chapter specifically for the loved ones and caregivers of the chronically ill. While this book is designed for anyone with a chronic illness, the spiritual content early in the book suggests the value of sticking to your faith and offers several Bible references. Ultimately, Finding Joy is an A-to-Z guide that critiques the literature and empowers the reader with: Positive psychology techniques. These range from self-compassion, positive reappraisal, positive self-talk, and pacing to positive thoughts, emotions, and behaviors such as optimism, humor, and volunteer work. Stress-reduction methods. These include tools such as mindfulness, breathing exercises, simplification, and (therapeutic) journaling. Proven therapies. Examples include cognitive behavior therapy (CBT), dialectical behavior therapy (DBT), and acceptance and commitment therapy (ACT). Effective communication strategies and their impact on relationships and even the ability to access quality healthcare. Numerous tips to both access and optimize your your experience with high quality healthcare. Important considerations for loved ones of the chronically ill, so they too can know how to best support their loved one and take care of themselves in the process. Lastly, consider using the workbook by Oak Tree Reading on Amazon to enhance your reading experience. This could be useful for solo readers or support groups. “This book offers great value for anyone with chronic illness as it contains clear, practical, and actionable insights and steps that can be naturally implemented into daily life. An engaging, easy, and helpful read. Highly recommended.” —Alla Bogdanova, MSc, MIM, co-founder and past president of the International Empty Nose Syndrome Association "Having known Chris for decades, I am beyond fortunate to have been privy to such a work that serves others by providing a timely message, a powerhouse of practical strategies, and invaluable guidance.” —Mark Montgomery, PhD, chief diversity officer, SUNY Polytechnic Institute, and founder and chair of Joseph’s Experience, Inc., an organization that assists children impacted by cancer and/or leukemia “I have had various invisible chronic illnesses for nearly forty years, but I was still able to find suggestions that will help me. So many of the things I have gone through are reflected in this book. I highly recommend this comprehensive book.” —Sue on Amazon.ca
Download or read book Caregiver's Handbook written by DK and published by Penguin. This book was released on 2013-09-01 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Caregiver's Handbook is a definitive guide to caring for a sick or disabled person of any age. Whether it be adults looking after parents, partners looking after each other, parents looking after children, or young caregivers looking after their parents, the Caregiver's Handbook addresses both the needs of the caregiver, and person who needs care. The Caregiver's Handbook offers emotional support and practical advice on a wide range of topics, enabling individuals to provide the best care possible-whatever the requirements. Everyday concerns, including healthy eating, personal care, and rest and sleep, are addressed alongside topics such as safe movement and handling, choosing the right stability aids, or even how to maneuver a wheelchair for the first time. Features also include a look at how either at the needs of the caregiver, or how the requirement of specific conditions-such as dementia or physical impairment-can affect the way a task can be approached. The Caregiver's Handbook is a comprehensive, compassionate, and indispensable resource that all caregivers will want to have on hand at all times - it is essential reading for anyone caring for someone at home.
