Secrets in Families and Family Therapy

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Author :
Publisher : W. W. Norton
ISBN 13 : 9780393701470
Total Pages : 425 pages
Book Rating : 4.7/5 (14 download)

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Book Synopsis Secrets in Families and Family Therapy by : Evan Imber-Black

Download or read book Secrets in Families and Family Therapy written by Evan Imber-Black and published by W. W. Norton. This book was released on 1993-01-01 with total page 425 pages. Available in PDF, EPUB and Kindle. Book excerpt: Secret-keeping is a seemingly unavoidable part of human interaction, from governments to married couples. Unlike privacy, which in the West is considered a healthy characteristic of the autonomous adult, secrets are often troublesome, creating distorted perceptions and strained relationships. Secrets, moreover, are complex. They differ in significance (a surprise party versus hidden incest), in the ways they shape family relationships (who knows what about whom), in their location (between family members or between the family and society), and in their effects on individual functioning (Does the secret affect only one relationship or the overall way the individual responds to others?). Because of this complexity, secrets are resistant to simple "rules": Therapy must comprise more than opening up the secret or addressing only the context and not the content or vice versa. Therapists are confronted with the difficult task of examining their own values regarding secrecy while, at the same time, providing an effective therapeutic environment. Practical issues of individual safety, the meaning of the secret for the family, the therapist's attitude towards secrets in general and the family's secret in particular - all must be considered in order for treatment to be effective. Here, Imber-Black and her contributors offer a vast array of approaches to helping families deal with secrets involving sexuality, race, violence, parentage, substance abuse, illness, and death. The contributors explore the therapeutic, social, and political issues of secrets, while always keeping families firmly in mind. Through the many case examples, they show us how families, at first constricted by the need tomaintain secrecy, can gain strength through greater openness. Part I sets the stage by defining secrets and their often shame-bound origins. Part II examines secrets throughout the family life cycle: in couples, between parents and children, and with loss. Part III shows how addictions such as drug abuse and eating disorders are often symptoms of unhealthy secrets. In Part IV, secrets of violence and abuse are discussed. Part V offers a comprehensive look at social secrets involving sexism, heterosexism, and taboos. Part VI discusses two very charged topics: secret-keeping involving race and racism and with AIDS. Part VII concludes the book by offering a pattern for teaching and handling secrets in therapist training. This diverse cast of talented therapists provides an elastic model for treating family secrets, while compelling us to reevaluate our own thinking about secrets.

The Secret Life of Families

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Author :
Publisher : Bantam
ISBN 13 : 0307423352
Total Pages : 336 pages
Book Rating : 4.3/5 (74 download)

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Book Synopsis The Secret Life of Families by : Evan Imber-Black

Download or read book The Secret Life of Families written by Evan Imber-Black and published by Bantam. This book was released on 2009-08-19 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: Secrets come in all shapes and sizes. And for families as well as individuals, they are built on a complex web of shifting motives and emotions. But today, when personal revelations are posted on the Internet or sensationalized on afternoon talk shows, we risk losing touch with how important secrets are--how they are used and abused, their power to harm and heal. In this important work, Evan Imber-Black explores the nature of secrets, helping us understand: The distinction between healthy privacy and toxic secrecy What to tell--and not to tell--young children How to safely confront a family "zone of silence" Why adolescents need to have some secrets--and where to draw the line The effect of "official" secrets, like sealed adoption records and medical testing What to consider before revealing an important secret And much more Filled with moving first-person stories, The Secret Life of Families provides perspective on some of today's most sensitive personal and social issues. Giving voice to our deepest fears and to our power to overcome them, this is a book that will be talked about for years to come.

Bowen Theory's Secrets: Revealing the Hidden Life of Families

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Author :
Publisher : W. W. Norton & Company
ISBN 13 : 0393713628
Total Pages : 446 pages
Book Rating : 4.3/5 (937 download)

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Book Synopsis Bowen Theory's Secrets: Revealing the Hidden Life of Families by : Michael E. Kerr

Download or read book Bowen Theory's Secrets: Revealing the Hidden Life of Families written by Michael E. Kerr and published by W. W. Norton & Company. This book was released on 2019-02-05 with total page 446 pages. Available in PDF, EPUB and Kindle. Book excerpt: A much-needed update to one of the most significant family therapy theories of the past century. Murray Bowen (1931–1990) was the first to study the family in a live-in setting and describe specific details about how families function as systems. Despite Bowen theory being based on research begun more than seventy years ago, the value of viewing human beings as profoundly emotionally-driven creatures and human families functioning as emotional units is more relevant than ever. This book, written by one of his closet collaborators, updates his still-radical theory with the latest approaches to understanding emotional development. Reduced to its most fundamental level, Bowen theory explains how people begin a relationship very close emotionally but become more distant over time. The ideas also help explain why good people do bad things, and bad people do good things, and how family life strengthens some members while weakening others. Gaining knowledge about previously unseen specifics of family interactions reveals a hidden life of families. The hidden life explains how the best of intentions can fail to produce the desired result, thus providing a blueprint for change. Part I of the book explains the core ideas in the theory. Part II describes the process of differentiation of self, which is the most important application of Bowen theory. People sometimes think of theories as "ivory tower" productions: interesting, but not necessarily practical. Differentiation of self is anything but; it has a well-tested real-world application. Part II includes four long case presentations of families in the public eye. They help illustrate how Bowen theory can help explain how families—three of which appear fairly normal and one which does not—unwittingly produce an offspring that chronically manifests some time of severely aberrant behavior. Finally, the book proposes a new "unidisease" concept—the idea that a wide range of diseases have a number of physiological processes in common. In an Epilogue, Kerr applies Bowen theory to his family to illustrate how changes in a family relationship system over time can better explain the clinical course of a chronic illness than the diagnosis itself. With close to four thousand hours of therapy conducted with about thirty-five hundred families over decades, Michael Kerr is an expert guide to the ins and outs of this most influential way of approaching clinical work with families.

Families and Larger Systems

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Author :
Publisher : Guilford Press
ISBN 13 : 9780898621099
Total Pages : 244 pages
Book Rating : 4.6/5 (21 download)

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Book Synopsis Families and Larger Systems by : Evan Imber-Black

Download or read book Families and Larger Systems written by Evan Imber-Black and published by Guilford Press. This book was released on 1992-06-01 with total page 244 pages. Available in PDF, EPUB and Kindle. Book excerpt: If individuals cannot adequately be understood without reference to the family system, families themselves are comprehensible only in a broader social context. FAMILIES AND LARGER SYSTEMS is the first single-author book on families and larger systems designed specifically for the practicing therapist. It offers rich descriptions of the difficulties families and larger systems often pose for one another; presents a detailed assessment model for therapists; and provides a careful interviewing format as well as directions for designing creative interventions. Imber-Black offers a consultation model for dealing with families and larger systems who have become embroiled with one another, and methods for longer term work with those families who must engage with larger systems across significant portions of their life cycle, due to illness, handicaps, or poverty. Problems of labeling, stigma, and secrecy in families are addressed, and an entire chapter is devoted to women's issues in families and related systems. Utilizing numerous case illustrations and interview excerpts, Dr, Imber-Black first delineates the problems common to family-larger system situations, analyzing the origins of these interactions, the assessment model and interviewing methods used, and the design and implementation of intervention. In the second half of her book, she presents in-depth discussions of strategies for improving the relationship between families and related systems. Through concrete example and hands-on analysis, Imber-Black shows how the misconceptions, assumptions, and subsequent labeling of family functioning and family members give rise to stalemated situations. FAMILIES AND LARGER SYSTEMS provides a practical guide for all clinicians regardless of theoretical orientation. Therapists who wish to maintain a career in public sector settings, such as mental health clinics, hospitals, and schools, will find in this volume direction for effective work with families and the maintenance of good working relationships with colleagues. Therapists in private practice will discover that Imber-Black's model will aid their conceptualization of cases that have involved multiple therapists or other practitioners. Much of the material presented will also be useful to human services workers, both professional and paraprofessional, in welfare, child welfare, probation, drug counseling, schools and other institutions. The book's ecological viewpoint, which enables such professionals to see their own position in the system, also helps them to avoid the traps of replicating existing patterns, and to position themselves for therapeutic change. Finally, this book will be of interest to human service system administrators and program planners. The case examples offer a seldom seen view of the struggles families and multiple helpers can have with one another, while its theoretical models can be utilized to assess current inter-systematic functioning among larger systems in a community, with implications for program design and burn-out prevention.

Secrets of Feeding a Healthy Family

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Author :
Publisher : Kelcy Press
ISBN 13 : 0967118948
Total Pages : 256 pages
Book Rating : 4.9/5 (671 download)

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Book Synopsis Secrets of Feeding a Healthy Family by : Ellyn Satter

Download or read book Secrets of Feeding a Healthy Family written by Ellyn Satter and published by Kelcy Press. This book was released on 2011-12-01 with total page 256 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ellyn Satter's Secrets of Feeding a Healthy Family takes a leadership role in the grassroots movement back to the family table. More a cooking primer than a cookbook, this book encourages singles, couples, and families with children to go to the trouble of feeding themselves well. Satter uses simple, delicious recipes as a scaffolding on which to hang cooking lessons, fast tips, night-before suggestions, in-depth background information, ways to involve kids in the kitchen, and guidelines on adapting menus for young children. In chapters about eating, feeding, choosing food, cooking, planning, and shopping, the author entertainingly helps readers have fun with food while not eating unhealthily or too often. She cites current studies and makes a convincing case for lightening up on fat and sodium without endangering ourselves or our children. The book demonstrates Satter's dictum that “your positive feelings about food and eating will do more for your health than adhering to a set of rules about what to eat and what not to eat.”

The Secret Life of Families

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Publisher :
ISBN 13 : 9780722537145
Total Pages : 315 pages
Book Rating : 4.5/5 (371 download)

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Book Synopsis The Secret Life of Families by : Evan Imber-Black

Download or read book The Secret Life of Families written by Evan Imber-Black and published by . This book was released on 1998 with total page 315 pages. Available in PDF, EPUB and Kindle. Book excerpt: What are the consequences of keeping a family secret? When is it appropriate to tell the truth?

Adult Children Secrets of Dysfunctional Families

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Publisher : Simon and Schuster
ISBN 13 : 0757393357
Total Pages : 200 pages
Book Rating : 4.7/5 (573 download)

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Book Synopsis Adult Children Secrets of Dysfunctional Families by : John Friel

Download or read book Adult Children Secrets of Dysfunctional Families written by John Friel and published by Simon and Schuster. This book was released on 2010-01-01 with total page 200 pages. Available in PDF, EPUB and Kindle. Book excerpt: It is estimated that as many as 34 million people grew up in alcoholic homes. But what about the rest of us? What about families that had no alcoholism, but did have perfectionism, workaholism, compulsive overeating, intimacy problems, depression, problems in expressing feelings, plus all the other personality traits that can produce a family system much like an alcoholic one? Countless millions of us struggle with these kinds of dysfunctions every day, and until very recently we struggled alone. Pulling together both theory and clinical practice, John and Linda Friel provide a readable explanation of what happened to us and how we can rectify it.

Family Therapy in Clinical Practice

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Publisher : Jason Aronson
ISBN 13 : 9781568210117
Total Pages : 584 pages
Book Rating : 4.2/5 (11 download)

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Book Synopsis Family Therapy in Clinical Practice by : Murray Bowen

Download or read book Family Therapy in Clinical Practice written by Murray Bowen and published by Jason Aronson. This book was released on 1993-12-01 with total page 584 pages. Available in PDF, EPUB and Kindle. Book excerpt: When Bowen was a student and practitioner of classical psychoanalysis at the Menninger Clinic, he became engrossed in understanding the process of schizophrenia and its relationship to mother-child symbiosis. Between the years 1950 and 1959, at Menninger and later at the National Institute of Mental Health (as first chief of family studies), he worked clinically with over 500 schizophrenic families. This extensive experience was a time of fruition for his thinking as he began to conceptualize human behavior as emerging from within the context of a family system. Later, at Georgetown University Medical School, Bowen worked to extend the application of his ideas to the neurotic family system. Initially he saw his work as an amplification and modification of Freudian theory, but later viewed it as an evolutionary step toward understanding human beings as functioning within their primary networkDtheir family. One of the most renowned theorist and therapist in the field of family work, this book encompasses the breadth and depth of Bowen's contributions. It presents the evolution of Bowen's Family Theory from his earliest essays on schizophrenic families and their treatment, through the development of his concepts of triangulation, intergenerational conflict and societal regression, and culminating in his brilliant exploration of the differentiation of one's self in one's family of origin.

Rituals In Families And Family Therapy 1e

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Author :
Publisher : W. W. Norton & Company
ISBN 13 : 9780393700640
Total Pages : 444 pages
Book Rating : 4.7/5 (6 download)

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Book Synopsis Rituals In Families And Family Therapy 1e by : Black Evan Imber

Download or read book Rituals In Families And Family Therapy 1e written by Black Evan Imber and published by W. W. Norton & Company. This book was released on 1988 with total page 444 pages. Available in PDF, EPUB and Kindle. Book excerpt: Uses case material to demonstrate how normative family rituals can be identified and used as the basis for therapy. A practical treatment. Annotation copyrighted by Book News, Inc., Portland, OR

Basic Concepts in Family Therapy

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Publisher : Routledge
ISBN 13 : 1317789822
Total Pages : 652 pages
Book Rating : 4.3/5 (177 download)

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Book Synopsis Basic Concepts in Family Therapy by : Linda Berg Cross

Download or read book Basic Concepts in Family Therapy written by Linda Berg Cross and published by Routledge. This book was released on 2014-02-25 with total page 652 pages. Available in PDF, EPUB and Kindle. Book excerpt: Gain confidence and creativity in your family therapy interventions with new, up-to-date research! Basic Concepts in Family Therapy: An Introductory Text, Second Edition, presents twenty-two basic psychological concepts that therapists may use to understand clients and provide successful services to them. Each chapter focuses on a single concept using material from family therapy literature, basic psychological and clinical research studies, and cross-cultural research studies. Basic Concepts in Family Therapy is particularly useful to therapists working in a family context with child- or adolescent-referred problems, and for students and clinicians treating the problems they see every day in their community. The book builds on the strengths of the first edition, incorporating ideas and articles that have become worthy of investigating since 1990 into the original text. This new edition also introduces five new chapters on resiliency and poverty, adoption, chronic illness, spirituality and religion, and parenting strategies. The new chapters make the book far more relevant for students and clinicians try ing to use family theory and technique in response to the problems they see in their communities. Basic Concepts in Family Therapy will assist you in offering clients better services by providing a deeper understanding of the contemporary family in its various forms, the psychological bonds that shape all families, and the developmental stages of the family life cycle. This exploration of how family demography, stages and life cycles affect family functions is a solid foundation from which all of the therapeutic concepts in this book can be explored. Some of the facets of family therapy you will explore in Basic Concepts in Family Therapy are: the importance of spirituality and religion in family therapy generational boundaries, closeness, and role behaviors managing a family's emotions defining problems and generating and evaluating possible solutions teaching children specific attitudes, values, social skills, and norms transracial adoptions and normative processes and developmental issues of adoptive parents strategies for reducing conflict . . . and much more! Basic Concepts in Family Therapy will help to broaden your understanding of the ways families function in general. You can use the effective concepts explored in this text to make a thorough assessment of the impact of a disorder on a child and on the rest of his or her family, as well as how family dynamics might have shaped or exacerbated the problems. The concepts described in this text can be customized to clients’cultural values to avoid unnecessary resistance. As a new therapist, you will gain confidence in your assessments, and if you are already a seasoned professional, you will gain creativity in your interventions.

The SAGE Encyclopedia of Marriage, Family, and Couples Counseling

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Publisher : SAGE Publications
ISBN 13 : 1483369579
Total Pages : 4317 pages
Book Rating : 4.4/5 (833 download)

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Book Synopsis The SAGE Encyclopedia of Marriage, Family, and Couples Counseling by : Jon Carlson

Download or read book The SAGE Encyclopedia of Marriage, Family, and Couples Counseling written by Jon Carlson and published by SAGE Publications. This book was released on 2016-09-15 with total page 4317 pages. Available in PDF, EPUB and Kindle. Book excerpt: The SAGE Encyclopedia of Marriage, Family and Couples Counseling is a new, all-encompassing, landmark work for researchers seeking to broaden their knowledge of this vast and diffuse field. Marriage and family counseling programs are established at institutions worldwide, yet there is no current work focused specifically on family therapy. While other works have discussed various methodologies, cases, niche aspects of the field and some broader views of counseling in general, this authoritative Encyclopedia provides readers with a fully comprehensive and accessible reference to aid in understanding the full scope and diversity of theories, approaches, and techniques and how they address various life events within the unique dynamics of families, couples, and related interpersonal relationships. Key topics include: Assessment Communication Coping Diversity Interventions and Techniques Life Events/Transitions Sexuality Work/Life Issues, and more Key features include: More than 500 signed articles written by key figures in the field span four comprehensive volumes Front matter includes a Reader’s Guide that groups related entries thematically Back matter includes a history of the development of the field, a Resource Guide to key associations, websites, and journals, a selected Bibliography of classic publications, and a detailed Index All entries conclude with Further Readings and Cross References to related entries to aid the reader in their research journey

Secrets in the Family

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Author :
Publisher : Pantheon
ISBN 13 :
Total Pages : 168 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Secrets in the Family by : Lily Pincus

Download or read book Secrets in the Family written by Lily Pincus and published by Pantheon. This book was released on 1978 with total page 168 pages. Available in PDF, EPUB and Kindle. Book excerpt:

The Secrets of Happy Families

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Publisher : Harper Collins
ISBN 13 : 0062199501
Total Pages : 320 pages
Book Rating : 4.0/5 (621 download)

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Book Synopsis The Secrets of Happy Families by : Bruce Feiler

Download or read book The Secrets of Happy Families written by Bruce Feiler and published by Harper Collins. This book was released on 2013-02-19 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: In The Secrets of Happy Families, New York Times bestselling author Bruce Feiler has drawn up a blueprint for modern families — a new approach to family dynamics, inspired by cutting-edge techniques gathered from experts in the disciplines of science, business, sports, and the military. Don't worry about family dinner. Let your kids pick their punishments. Ditch the sex talk. Cancel date night. These are just a few of the surprising innovations in this bold first-of-its-kind playbook for today's families. Bestselling author and New York Times family columnist Bruce Feiler found himself squeezed between caring for aging parents and raising his children. So he set out on a three-year journey to find the smartest solutions and the most cutting-edge research about families. Instead of the usual family "experts," he sought out the most creative minds—from Silicon Valley to the set of Modern Family, from the country's top negotiators to the Green Berets—and asked them what team-building exercises and problem-solving techniques they use with their families. Feiler then tested these ideas with his wife and kids. The result is a fun, original look at how families can draw closer together, complete with 200 never-before-seen best practices. Feiler's life-changing discoveries include a radical plan to reshape your family in twenty minutes a week, Warren Buffett's guide for setting an allowance, and the Harvard handbook for resolving conflict. The Secrets of Happy Families is a timely, counterintuitive book that answers the questions countless parents are asking: How do we manage the chaos of our lives? How do we teach our kids values? How do we make our family happier? Written in a charming, accessible style, The Secrets of Happy Families is smart, funny, and fresh, and will forever change how your family lives every day.

The Secret Life of Families

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Author :
Publisher : Bantam
ISBN 13 :
Total Pages : 344 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis The Secret Life of Families by : Evan Imber-Black

Download or read book The Secret Life of Families written by Evan Imber-Black and published by Bantam. This book was released on 1998 with total page 344 pages. Available in PDF, EPUB and Kindle. Book excerpt: A family therapist explains the necessity of privacy and offers guidance to parents about what to tell and what not to tell young children.

Multigenerational Family Therapy

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Author :
Publisher : Routledge
ISBN 13 : 1317765443
Total Pages : 419 pages
Book Rating : 4.3/5 (177 download)

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Book Synopsis Multigenerational Family Therapy by : David S Freeman

Download or read book Multigenerational Family Therapy written by David S Freeman and published by Routledge. This book was released on 2013-12-16 with total page 419 pages. Available in PDF, EPUB and Kindle. Book excerpt: Multigenerational Family Therapy is a book about honoring and helping families. Rich with personal reflections and anecdotes from the author’s many years as a family therapist, this volume’s major strength lies in its precise definition of the process and content of the therapy itself. As the family is the major resource system available to an individual, this important book provides therapists with the keys for helping family members help each other and provides a framework for understanding how the family, as a multigenerational system, moves through various stages of the therapeutic process. By emphasizing the importance of family members utilizing the past as a positive force for change and featuring complete transcripts of family therapy sessions, this sensitive book clearly illustrates how therapists can use the positive forces of family for dealing with today’s uncertainties and dilemmas. The step-by-step approach details how family therapists can work with families in a positive, healing manner. Several chapters illustrate the transition from the beginning to middle phases of family therapy to the terminating phase and provide a framework for how therapy evolves over time. Other chapters discuss the special skills required to work with various family constellations, such as couples, parents with children, siblings, adult children with aged parents, and individuals as well as extended family members. Helpful advice on how to deal with special issues and dilemmas of family therapy such as secret-keeping, affairs, co-therapy, crises and emergencies is also included in this comprehensive book. Beginning and advanced family therapy practitioners, students of family theory and therapy, faculty of social work practice, clinical psychology, nursing, family life education, and counseling psychology will find many positive ideas for working with families in this detailed book.

Families Under Stress

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Publisher : Routledge
ISBN 13 : 1317487435
Total Pages : 208 pages
Book Rating : 4.3/5 (174 download)

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Book Synopsis Families Under Stress by : Tony Manocchio

Download or read book Families Under Stress written by Tony Manocchio and published by Routledge. This book was released on 2015-07-24 with total page 208 pages. Available in PDF, EPUB and Kindle. Book excerpt: The family is perhaps the most important single institution in everyone’s life. What happens in such an intense group? How does it develop over time? What happens when stress is placed upon it, whether generated from inside or outside the family? Originally published in 1975, when the late Tony Manocchio was one of the leading practitioners of family therapy in Britain and Scandinavia, this title, written with his colleague William Petitt, is a lively study of communication within families, revealing the universal problems common to all. The authors demonstrate and illuminate the application of communication principles by analysing healthy and ‘unhealthy’ family systems in six major plays – The Winslow Boy, Riders to the Sea, Hamlet, A Long Day’s Journey into Night, Death of a Salesman and A Delicate Balance. As part of this analysis they examine the difficulties family members have in allowing for differences, in sharing secrets and the ease with which a whole family can scapegoat a single member. They give a number of short case histories and examples from other plays which further illustrate the importance of communicating clearly. The book will still be of value to all those interested in the uses of family therapy, and also to students of literature for the human insight it offers into the texts discussed.

Hidden Valley Road

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Author :
Publisher : Anchor
ISBN 13 : 0385543778
Total Pages : 426 pages
Book Rating : 4.3/5 (855 download)

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Book Synopsis Hidden Valley Road by : Robert Kolker

Download or read book Hidden Valley Road written by Robert Kolker and published by Anchor. This book was released on 2020-04-07 with total page 426 pages. Available in PDF, EPUB and Kindle. Book excerpt: #1 NEW YORK TIMES BESTSELLER • OPRAH’S BOOK CLUB PICK • ONE OF GQ's TOP 50 BOOKS OF LITERARY JOURNALISM IN THE 21st CENTURY • The heartrending story of a midcentury American family with twelve children, six of them diagnosed with schizophrenia, that became science's great hope in the quest to understand the disease. "Reads like a medical detective journey and sheds light on a topic so many of us face: mental illness." —Oprah Winfrey Don and Mimi Galvin seemed to be living the American dream. After World War II, Don's work with the Air Force brought them to Colorado, where their twelve children perfectly spanned the baby boom: the oldest born in 1945, the youngest in 1965. In those years, there was an established script for a family like the Galvins--aspiration, hard work, upward mobility, domestic harmony--and they worked hard to play their parts. But behind the scenes was a different story: psychological breakdown, sudden shocking violence, hidden abuse. By the mid-1970s, six of the ten Galvin boys, one after another, were diagnosed as schizophrenic. How could all this happen to one family? What took place inside the house on Hidden Valley Road was so extraordinary that the Galvins became one of the first families to be studied by the National Institute of Mental Health. Their story offers a shadow history of the science of schizophrenia, from the era of institutionalization, lobotomy, and the schizophrenogenic mother to the search for genetic markers for the disease, always amid profound disagreements about the nature of the illness itself. And unbeknownst to the Galvins, samples of their DNA informed decades of genetic research that continues today, offering paths to treatment, prediction, and even eradication of the disease for future generations. With clarity and compassion, bestselling and award-winning author Robert Kolker uncovers one family's unforgettable legacy of suffering, love, and hope.