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Raising A Child With Hemophilia
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Book Synopsis Raising a Child with Hemophilia by : Laureen Kelley
Download or read book Raising a Child with Hemophilia written by Laureen Kelley and published by . This book was released on 2016-04-01 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: A parenting book covering medical, consumer, emotional and practical child-rearing aspects of raising a child with hemophilia.
Book Synopsis Congenital Bleeding Disorders by : Akbar Dorgalaleh
Download or read book Congenital Bleeding Disorders written by Akbar Dorgalaleh and published by Springer. This book was released on 2018-07-25 with total page 397 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book describes in detail the clinical presentation, diagnosis, and management of a wide range of congenital bleeding disorders. It will assist readers in overcoming the significant challenges involved in clinical and laboratory diagnosis and in providing effective clinical care that makes optimal use of new products, including recombinant factor concentrate. The coverage ranges from hemophilia A and B and von Willebrand disease to rare bleeding disorders such as congenital factor V, factor X, factor XI, and factor XIII deficiency and inherited platelet function disorders. The exceptional attention to rarer conditions is of particular importance given the considerable risk of overlooking them during diagnosis, with potential consequences for disease-related morbidity and mortality. The authors are acknowledged specialists in the field from across the world who have particular expertise in the disorder that they discuss. The book will be of value to hematologists, oncologists, pediatricians, laboratory specialists and technicians, general physicians, and trainees.
Download or read book Nine Pints written by Rose George and published by Metropolitan Books. This book was released on 2018-10-23 with total page 230 pages. Available in PDF, EPUB and Kindle. Book excerpt: Los Angeles Times Book Prize Finalist: A “compelling chronicle” of the science, politics, and business of blood (The Wall Street Journal). Blood carries life, yet the sight of it makes people faint. It is a waste product and a commodity pricier than oil. It can save lives and transmit deadly infections. Each one of us has roughly nine pints of it, yet many don’t even know their own blood type. And for all its ubiquitousness, the few tablespoons of blood discharged by 800 million women are still regarded as taboo: menstruation is perhaps the single most demonized biological event. Rose George, author of The Big Necessity, takes us from ancient practices of bloodletting to the breakthrough of the “liquid biopsy,” which promises to diagnose cancer and other diseases with a simple blood test. She introduces Janet Vaughan, who set up the world’s first system of mass blood donation during the Blitz, and Arunachalam Muruganantham, known as “Menstrual Man” for his work on sanitary pads for developing countries. She probes the lucrative business of plasma transfusions, in which the US is known as the “OPEC of plasma.” And she looks to the future, as researchers seek to bring synthetic blood to a hospital near you. Spanning science and politics, individual’s stories and global epidemics, Nine Pints reveals our life’s blood in an entirely new light. One of Bill Gates’ Recommended Summer Reading Titles “Stellar . . . An informative, elegant, and provocative exploration of the life-giving substance . . . A wondrously well-written work.” —Booklist (starred review) Both fascinating and informative . . . George packs her book with the kinds of provocative, witty, and rigorously reported facts and stories sure to make readers view the integral fluid coursing through our veins in a whole new way.” —Kirkus Reviews (starred review) “George charges down wholly unexpected avenues of medical history and global injustice, leaving the reader by turns giddy and appalled. And always, always in awe of the writing.” —Mary Roach, author of Grunt: The Curious Science of Humans at War “A very good book.” —The New York Times
Book Synopsis A Guide to Living with Von Willebrand Disease by : Laureen Kelley
Download or read book A Guide to Living with Von Willebrand Disease written by Laureen Kelley and published by . This book was released on 2021-08 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: The world's first book on the world's most commonly inherited bleeding disorder. Topics include learning to cope with VWD, inheritance, the medical system, treatment, women's issues, health insurance. Complete resource guide and real-life stories.
Book Synopsis A Journey of the Heart by : Dana Francis
Download or read book A Journey of the Heart written by Dana Francis and published by Park Place Publications. This book was released on 2013-09 with total page 112 pages. Available in PDF, EPUB and Kindle. Book excerpt: A collection of true stories of hemophilia social workers and their patients.
Book Synopsis Maternal Child Nursing Care - E-Book by : Shannon E. Perry
Download or read book Maternal Child Nursing Care - E-Book written by Shannon E. Perry and published by Elsevier Health Sciences. This book was released on 2022-03-05 with total page 1643 pages. Available in PDF, EPUB and Kindle. Book excerpt: Master the essentials of maternity and pediatric nursing with this comprehensive, all-in-one text! Maternal Child Nursing Care, 7th Edition covers the issues and concerns of women during their childbearing years and children during their developing years. It uses a family-centered, problem-solving approach to patient care, with guidelines supported by evidence-based practice. New to this edition is an emphasis on clinical judgment skills and a new chapter on children with integumentary dysfunction. Written by a team of experts led by Shannon E. Perry and Marilyn J. Hockenberry, this book provides the accurate information you need to succeed in the classroom, the clinical setting, and on the Next Generation NCLEX-RN® examination. - Focus on the family throughout the text emphasizes the influence of the entire family in health and illness. - Expert authors of the market-leading maternity and pediatric nursing textbooks combine to ensure delivery of the most accurate, up-to-date content. - Information on victims of sexual abuse as parents and human trafficking helps prepare students to handle these delicate issues. - Nursing Alerts highlight critical information that could lead to deteriorating or emergency situations. - Guidelines boxes outline nursing procedures in an easy-to-follow format. - Evidence-Based Practice boxes include findings from recent clinical studies. - Emergency Treatment boxes describe the signs and symptoms of emergency situations and provide step-by-step interventions. - Atraumatic Care boxes teach students how to manage pain and provide competent care to pediatric patients with the least amount of physical or psychological stress. - Community Focus boxes emphasize community issues, provide resources and guidance, and illustrate nursing care in a variety of settings. - Patient Teaching boxes highlight important information nurses need to communicate to patients and families. - Cultural Considerations boxes describe beliefs and practices relating to pregnancy, labor and birth, parenting, and women's health. - Family-Centered Care boxes draw attention to the needs or concerns of families that students should consider to provide family-centered care.
Book Synopsis Nursing Care of Children by : Jean Weiler Ashwill
Download or read book Nursing Care of Children written by Jean Weiler Ashwill and published by W.B. Saunders Company. This book was released on 1997 with total page 1496 pages. Available in PDF, EPUB and Kindle. Book excerpt: This paediatric nursing text discusses the disorders most commonly encountered in both hospital and community care settings. It discusses anatomy, physiology, paediatric differences and common diagnostic tests and medications, enabling readers to associate systems and diseases with appropriate tests and medications. It provides nursing care plans for key disorders, a unit on growth and development, a summary of growth and development, and special considerations for caring for children.
Book Synopsis Heritable Human Genome Editing by : The Royal Society
Download or read book Heritable Human Genome Editing written by The Royal Society and published by National Academies Press. This book was released on 2021-01-16 with total page 239 pages. Available in PDF, EPUB and Kindle. Book excerpt: Heritable human genome editing - making changes to the genetic material of eggs, sperm, or any cells that lead to their development, including the cells of early embryos, and establishing a pregnancy - raises not only scientific and medical considerations but also a host of ethical, moral, and societal issues. Human embryos whose genomes have been edited should not be used to create a pregnancy until it is established that precise genomic changes can be made reliably and without introducing undesired changes - criteria that have not yet been met, says Heritable Human Genome Editing. From an international commission of the U.S. National Academy of Medicine, U.S. National Academy of Sciences, and the U.K.'s Royal Society, the report considers potential benefits, harms, and uncertainties associated with genome editing technologies and defines a translational pathway from rigorous preclinical research to initial clinical uses, should a country decide to permit such uses. The report specifies stringent preclinical and clinical requirements for establishing safety and efficacy, and for undertaking long-term monitoring of outcomes. Extensive national and international dialogue is needed before any country decides whether to permit clinical use of this technology, according to the report, which identifies essential elements of national and international scientific governance and oversight.
Download or read book Arthrogryposis written by Lynn T. Staheli and published by Cambridge University Press. This book was released on 1998-04-28 with total page 298 pages. Available in PDF, EPUB and Kindle. Book excerpt: The term arthrogryposis describes a range of congenital contractures that lead to childhood deformities. It encompasses a number of syndromes and sporadic deformities that are rare individually but collectively are not uncommon. Yet, the existing medical literature on arthrogryposis is sparse and often confusing. The aim of this book is to provide individuals affected with arthrogryposis, their families, and health care professionals with a helpful guide to better understand the condition and its therapy. With this goal in mind, the editors have taken great care to ensure that the presentation of complex clinical information is at once scientifically accurate, patient oriented, and accessible to readers without a medical background. The book is authored primarily by members of the medical staff of the Arthrogryposis Clinic at Children's Hospital and Medical Center in Seattle, Washington, one of the leading teams in the management of the condition, and will be an invaluable resource for both health care professionals and families of affected individuals.
Book Synopsis Birth Defects in India by : Anita Kar
Download or read book Birth Defects in India written by Anita Kar and published by Springer Nature. This book was released on 2021-07-08 with total page 362 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book presents the epidemiology of birth defects and their public health and social implications in India. As neglected childhood disorders, birth defects remain invisible in global maternal and child health dialogues. Birth defects services are emerging in India. This book approaches birth defects from a public health perspective, identifying the core functions of a birth defects service. Keeping in mind the complex task of providing multidisciplinary services for children with disabilities and complex medical conditions, the book examines the basic public health activities that have been put in place to address these conditions in India. The book describes birth defects surveillance and the challenges of acquiring accurate and timely data on birth defects against the background of India’s mixed health system. It discusses opportunities for prevention of birth defects and describes the structure and function of an emergent genetic service. It explores issues related to an integrated service for children with special healthcare needs, such as screening, early intervention, and rehabilitation. Furthermore, it describes the impact of these conditions on caregivers, including birth defects stigma. This book not only addresses a knowledge gap in the field of public health in India, but also explores the broader issues of services for children with disabilities and disabling conditions in low and low-middle income settings where access to health care is not universal. Given the depth and breadth of its coverage, the book offers an essential resource for birth defects researchers, researchers in the field of maternal and child health, public health/ global health, disability researchers, and researchers from the fields of rehabilitation sciences, nursing and anthropology. This book will be a valuable read for social medicine/community medicine departments, global health courses, and public health schools in India and other low middle-income countries.
Book Synopsis Parenting Children with Health Issues by : Foster Cline
Download or read book Parenting Children with Health Issues written by Foster Cline and published by . This book was released on 2007 with total page 388 pages. Available in PDF, EPUB and Kindle. Book excerpt: Does your child have a health condition which requires special medical or dietary care? Whatever the health issue, you will learn the essential parenting skills you need to help your child comply with medical requirements, cope well with health challenges, and live a hope-filled life. Get practical and compassionate answers to your toughest questions as you discover effective ways to communicate about medical issues with children of all ages. This book will teach you how to: . Encourage your child to love life despite health challenges. . Handle refusal to take medication and do medical treatments. . Skillfully respond to your child's special emotional needs. . Avoid power struggles and other common parenting traps. . Promote responsibility without nagging or lecturing. . Navigate sibling, family and couple relationship issues. . Enable your child to make good self-care decisions.
Book Synopsis Textbook of Hemophilia by : Christine A. Lee
Download or read book Textbook of Hemophilia written by Christine A. Lee and published by John Wiley & Sons. This book was released on 2008-04-15 with total page 416 pages. Available in PDF, EPUB and Kindle. Book excerpt: The only up-to-date definitive reference source onhemophilia This book is an invaluable resource that provides an overview ofall aspects of the care of patients with haemophilia. Covering how to assess both bleeding children and adults,Haemophilia A and B, molecular basis of the disease, the role offactors in coagulation, epidemiology, pharmacokinetics, andtreatment of inhibitors. There will also be a section onmusculoskeletal aspects of haemophilia as well as newerdevelopments such as gene therapy and rare bleedingdisorders. Textbook of Hemophilia is ideal for: Trainees and residents in hematology Hematologists in practice Specialists working in thrombosis and hemostasis as well astransfusion medicine Why Buy This Book? The only up-to-date definitive reference source onhemophilia Essential for all those managing hemophilia patients Detailed guidance on assessment, diagnosis, management andtreatment Advice for everyday clinical questions Edited by three of the world’s leading experts onhemophilia
Book Synopsis Child Development From Infancy to Adolescence by : Laura E. Levine
Download or read book Child Development From Infancy to Adolescence written by Laura E. Levine and published by SAGE Publications. This book was released on 2019-01-02 with total page 1108 pages. Available in PDF, EPUB and Kindle. Book excerpt: Winner of the 2020 Textbook Excellence Award from the Textbook & Academic Authors Association (TAA) Chronologically organized, Child Development From Infancy to Adolescence, Second Edition presents topics within the field of child development through unique and highly engaging Active Learning opportunities. The Active Learning features foster a dynamic and personal learning process for students. Within each chapter, authors Laura E. Levine and Joyce Munsch introduce students to a wide range of real-world applications of psychological research to child development. Pedagogical features help students discover the excitement of studying child development and equip them with skills they can use long after completing the course. Digital Option / Courseware SAGE Vantage is an intuitive digital platform that delivers this text’s content and course materials in a learning experience that offers auto-graded assignments and interactive multimedia tools, all carefully designed to ignite student engagement and drive critical thinking. Built with you and your students in mind, it offers simple course set-up and enables students to better prepare for class. Assignable Video with Assessment Assignable video (available with SAGE Vantage) is tied to learning objectives and curated exclusively for this text to bring concepts to life. LMS Cartridge (formerly known as SAGE Coursepacks): Import this title’s instructor resources into your school’s learning management system (LMS) and save time. Don’t use an LMS? You can still access all of the same online resources for this title via the password-protected Instructor Resource Site. Also of Interest: Case Studies in Lifespan Development by Stephanie M. Wright presents a series of 12 case studies shaped by the contributions of real students to build immersive examples that readers can relate to and enjoy. Bundle Case Studies in Lifespan Development with Child Development From Infancy To Adolescence, Second Edition for even more savings!
Book Synopsis Hope and Suffering by : Gretchen Krueger
Download or read book Hope and Suffering written by Gretchen Krueger and published by JHU Press. This book was released on 2020-03-03 with total page 229 pages. Available in PDF, EPUB and Kindle. Book excerpt: Gretchen Krueger's poignant narrative explores how doctors, families, and the public interpreted the experience of childhood cancer from the 1930s through the 1970s. Pairing the transformation of childhood cancer from killer to curable disease with the personal experiences of young patients and their families, Krueger illuminates the twin realities of hope and suffering. In this social history, each decade follows a family whose experience touches on key themes: possible causes, means and timing of detection, the search for curative treatment, the merit of alternative treatments, the decisions to pursue or halt therapy, the side effects of treatment, death and dying—and cure. Recounting the complex and sometimes contentious interactions among the families of children with cancer, medical researchers, physicians, advocacy organizations, the media, and policy makers, Krueger reveals that personal odyssey and clinical challenge are the simultaneous realities of childhood cancer. This engaging study will be of interest to historians, medical practitioners and researchers, and people whose lives have been altered by cancer.
Book Synopsis Family-centered Care for Children Needing Specialized Health and Developmental Services by : Terri L. Shelton
Download or read book Family-centered Care for Children Needing Specialized Health and Developmental Services written by Terri L. Shelton and published by . This book was released on 1994 with total page 120 pages. Available in PDF, EPUB and Kindle. Book excerpt: This monograph articulates eight key elements of a family-centered approach to policy and practice for children needing specialized health and developmental services. An introductory section reviews the development of the first edition of the monograph in 1987 and its widespread dissemination and acceptance since that time. Each of the following eight chapters then addresses one of the following elements: (1) recognition that the family is the constant in the child's life, while the service systems and support personnel within those systems fluctuate; (2) facilitation of family/professional collaboration at all levels of hospital, home, and community care; (3) exchange of complete and unbiased information between families and professionals in a supportive manner; (4) respect for cultural diversity within and across all families including ethnic, racial, spiritual, social, economic, educational, and geographic diversity; (5) recognition of different methods of coping and promotion of programs providing developmental, educational, emotional, environmental, and financial supports to families; (6) encouragement of family-to-family support and networking; (7) provision of hospital, home, and community service and support systems that are flexible, accessible, and comprehensive in meeting family-identified needs; and (8) appreciation of families as families, recognizing their wide range of strengths, concerns, emotions, and aspirations beyond their need for specialized health and developmental services and support. Checklists for evaluating these elements are attached. (Contains 160 references.) (DB)
Book Synopsis Behavior Management in Dentistry for Children by : Gerald Z. Wright
Download or read book Behavior Management in Dentistry for Children written by Gerald Z. Wright and published by John Wiley & Sons. This book was released on 2014-01-21 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: Guiding patient behavior is as important as ever for the practicing dentist, and the behavior of pediatric patients is perhaps the most challenging to manage. Drs. Wright and Kupietzky here update Dr. Wright’s classic work on managing pediatric dental patients. Behavior Management in Dentistry for Children,2nd Edition, has been entirely rewritten and includes the latest and most effective management strategies from an international team of experts in the field. The book addresses the influence of family and parenting styles on children’s behavior and the factors that determine how children behave in the dental office. Pharmacological and non-pharmacological management techniques are described in depth, as are techniques for dealing with special needs patients. Clinical scenarios are described throughout the book, with practical application of the taught principles. The final part of the book covers the dental environment—training office personnel to manage children’s behavior, practical considerations for behavior guidance, and the effects of the physical dental office environment. Behavior Management in Dentistry for Children,2nd Edition, is ideal for pediatric residents, dental students, and practicing dentists who see children on a regular basis.
Book Synopsis Vial 023: A Father's Pursuit of Justice by : Gary William Cross
Download or read book Vial 023: A Father's Pursuit of Justice written by Gary William Cross and published by . This book was released on 2012-12-01 with total page 151 pages. Available in PDF, EPUB and Kindle. Book excerpt: When Gary Cross and his wife learned that their baby son Brad had hemophilia, it seemed like a relatively small bump in the road of their American dream family life. Medicine would make it all manageable. But the Crosses did not know the shots they were giving Brad for his condition carried a deadly virus. As AIDS began to dominate the headlines, Gary started to doubt the doctors' assurances that everything was OK with Brad's treatment. And his demand for answers brought to light disturbing revelations: Thousands of hemophiliacs like Brad had been infected with HIV because the blood used for their clotting factor injections came from high-risk donor groups. While caring for his ailing son, Gary embarked on a campaign for justice for Brad and the thousands like him. His efforts took him from the courtrooms to the steps of the Capitol in Washington D.C. The Crosses' heartbreaking personal story was broadcast nationally on CBS' 60 Minutes. After more than a decade, Gary's crusade ended not in court or in government chambers but in a Los Angeles hotel, where with other leaders in the hemophilia community he brokered a remarkable peace settlement with the pharmaceutical companies whose products had killed. This is his story.
