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Author : Michael Trisolini
Publisher :
ISBN 13 : 9780955013904
Total Pages : 63 pages
Book Rating : 4.0/5 (139 download)
Download or read book Principles to Promote the Quality of Life of People with Multiple Sclerosis written by Michael Trisolini and published by . This book was released on 2005* with total page 63 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Julia Stachowiak
Publisher : ReadHowYouWant.com
ISBN 13 : 1458757390
Total Pages : 570 pages
Book Rating : 4.4/5 (587 download)
Download or read book The Multiple Sclerosis Manifesto written by Julia Stachowiak and published by ReadHowYouWant.com. This book was released on 2010-06-21 with total page 570 pages. Available in PDF, EPUB and Kindle. Book excerpt: Julie Stachowiak, PhD is the About. com Guide to Multiple Sclerosis. As anepidemiologist who is also a person living with MS, Julie has an in-depth understanding about the scientific developments around MS and the personal side of living with a chronic illness. She has been the best MS writer on the web. In the Multiple Sclerosis Manifesto Julie has given us a call to self-help, self-reliance, and political action. The books covers such diverse topics as: How to create your personal mission statement; How to protect yourself by learning more about medications you are currently taking or considering to take; How to determine what you want in a doctor and how to evaluate the doctor you have; The importance of celebrating your successes; Tips to make disclosing your MS status to friends, family and others easier; Finding a support group Learning to stand up for yourself Joining the fight - Adding your voice to the movement.
Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309072859
Total Pages : 457 pages
Book Rating : 4.3/5 (9 download)
Download or read book Multiple Sclerosis written by Institute of Medicine and published by National Academies Press. This book was released on 2001-08-10 with total page 457 pages. Available in PDF, EPUB and Kindle. Book excerpt: Multiple sclerosis is a chronic and often disabling disease of the nervous system, affecting about 1 million people worldwide. Even though it has been known for over a hundred years, no cause or cure has yet been discovered-but now there is hope. New therapies have been shown to slow the disease progress in some patients, and the pace of discoveries about the cellular machinery of the brain and spinal cord has accelerated. This book presents a comprehensive overview of multiple sclerosis today, as researchers seek to understand its processes, develop therapies that will slow or halt the disease and perhaps repair damage, offer relief for specific symptoms, and improve the abilities of MS patients to function in their daily lives. The panel reviews existing knowledge and identifies key research questions, focusing on: Research strategies that have the greatest potential to understand the biological mechanisms of recovery and to translate findings into specific strategies for therapy. How people adapt to MS and the research needed to improve the lives of people with MS. Management of disease symptoms (cognitive impairment, depression, spasticity, vision problems, and others). The committee also discusses ways to build and financially support the MS research enterprise, including a look at challenges inherent in designing clinical trials. This book will be important to MS researchers, research funders, health care advocates for MS research and treatment, and interested patients and their families.
Author : Julie Stachowiak, PhD
Publisher : Demos Health
ISBN 13 : 9781932603446
Total Pages : 338 pages
Book Rating : 4.6/5 (34 download)
Download or read book The Multiple Sclerosis Manifesto written by Julie Stachowiak, PhD and published by Demos Health. This book was released on 2009-12-22 with total page 338 pages. Available in PDF, EPUB and Kindle. Book excerpt: An empowering guide for increasing your quality of life, navigating challenges, and embracing opportunities Julie Stachowiak, PhD is the About.com Guide to Multiple Sclerosis. As an epidemiologist who is also a person living with MS, Julie has an in-depth understanding about the scientific developments around MS and the personal side of living with a chronic illness. In the Multiple Sclerosis Manifesto, Julie shows you how to create your own personal MS manifesto and provides practical tools and reassurance to help you Ïget betterÓ in your life, from optimizing medical care and managing symptoms, to strengthening relationships, dealing with emotions, and embracing activism. Committed to making the hard parts easier and the good parts last longer, Julie show you how to figure out what you need, identify opportunities, understand challenges, and get your needs met. With the Multiple Sclerosis Manifesto, youÌll know how to: Create your personal mission statement Protect yourself by learning more about medications you are currently taking or considering to take Determine what you want in a doctor and how to evaluate the doctor you have Celebrate your successesÛand why itÌs essential that you do Make disclosing your MS status to friends, family and others easier Find a support group "
Author : Phillip D. Rumrill
Publisher : ReadHowYouWant.com
ISBN 13 : 145876558X
Total Pages : 450 pages
Book Rating : 4.4/5 (587 download)
Download or read book Employment Issues and Multiple Sclerosis written by Phillip D. Rumrill and published by ReadHowYouWant.com. This book was released on 2010-02 with total page 450 pages. Available in PDF, EPUB and Kindle. Book excerpt: Employment Issues and Multiple Sclerosis, 2nd Edition, is essential reading for any person with MS who has questions regarding employment and disability. Chapters cover everything from vocational rehabilitation to job placement to the laws covering employment. This updated edition includes: A NEW chapter detailing employee rights regarding medical leave, health insurance portability and accountability, and continuation of benefits; A NEW chapter on Social Security Disability Insurance programs; An expanded and updated chapter on the Americans with Disabilities Act; An expanded and updated chapter on employment services for people with MS; A completely updated chapter on policy, programming, and research recommendations to improve the rate of labor force participation of people with a chronic condition Intended for people with MS, their families, physicians, nurses, social workers, rehabilitation professionals, and others interested in the employment implications of MS, this comprehensive book is a basic source of information on matters of research and public policy.
Author : United States. Congress. Senate. Committee on Foreign Relations
Publisher :
ISBN 13 :
Total Pages : 428 pages
Book Rating : 4.:/5 (319 download)
Download or read book Convention on the Rights of Persons with Disabilities (Treaty Doc. 112-7) written by United States. Congress. Senate. Committee on Foreign Relations and published by . This book was released on 2014 with total page 428 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Marcia Finlayson
Publisher : CRC Press
ISBN 13 : 1439828849
Total Pages : 607 pages
Book Rating : 4.4/5 (398 download)
Download or read book Multiple Sclerosis Rehabilitation written by Marcia Finlayson and published by CRC Press. This book was released on 2012-08-01 with total page 607 pages. Available in PDF, EPUB and Kindle. Book excerpt: "MS is always in the back of your mind. If there is something you want to do, you always wonder if the MS will allow you do to it." —Darlene, living with MS for 22 years Living with multiple sclerosis (MS) is challenging and multidimensional. MS pervades all aspects of life: one’s body becomes unpredictable and unreliable, one’s identity and sense of self are tested, and relationships with others often change. MS symptoms emerge and remit; limitations evolve and progress. MS rehabilitation is an active, person-centered, and goal-oriented process embedded within a respectful and collaborative partnership between the person with MS and the members of his or her rehabilitation treatment team. Using the International Classification of Functioning, Disability and Health (ICF) as a guiding framework, Multiple Sclerosis Rehabilitation: From Impairment to Participation provides a comprehensive and evidence-based resource to inform and guide clinical reasoning and decision making during each phase of the MS rehabilitation process, from initial referral to post-discharge follow-up. With an emphasis on the application of evidence throughout the entire MS rehabilitation process, the specific objectives of the book are to increase the understanding of: The nature and impact of specific impairments, activity limitations, and participation restrictions experienced by people with MS How to select and use valid, reliable, and relevant assessment tools to inform the development of rehabilitation goals and intervention plans, and to evaluate outcomes This book provides information about the nature and impact of MS on the daily lives of people living with the disease, describes evidence-based assessment processes and instruments, and summarizes current knowledge that can inform goal setting and intervention planning. Thoughtful application of the knowledge contained in this book will inform and guide rehabilitation providers to work collaboratively with people with MS and enable them to achieve their goals for participation in everyday life.
Author : Julie Stachowiak, PhD
Publisher : Demos Medical Publishing
ISBN 13 : 1935281720
Total Pages : 357 pages
Book Rating : 4.9/5 (352 download)
Download or read book The Multiple Sclerosis Manifesto written by Julie Stachowiak, PhD and published by Demos Medical Publishing. This book was released on 2009-12-22 with total page 357 pages. Available in PDF, EPUB and Kindle. Book excerpt: An empowering guide for increasing your quality of life, navigating challenges, and embracing opportunities Julie Stachowiak, PhD is the About.com Guide to Multiple Sclerosis. As an epidemiologist who is also a person living with MS, Julie has an in-depthunderstanding about the scientific developments around MS and the personal side of living with a chronic illness. In the Multiple Sclerosis Manifesto, Julie shows you how to create your own personal MS manifesto and provides practical tools and reassurance to help you ìget betterî in your life, from optimizing medical care and managing symptoms, to strengthening relationships, dealing with emotions, and embracing activism. Committed to making the hard parts easier and the good parts last longer, Julie show you how to figure out what you need, identify opportunities, understand challenges, and get your needs met. With the Multiple Sclerosis Manifesto, youíll know how to: Create your personal mission statement Protect yourself by learning more about medications you are currently taking or considering to take Determine what you want in a doctor and how to evaluate the doctor you have Celebrate your successesóand why itís essential that you do Make disclosing your MS status to friends, family and others easier Find a support group
Author : Vanessa Bouchard
Publisher :
ISBN 13 :
Total Pages : pages
Book Rating : 4.:/5 (1 download)
Download or read book Getting on with Your Life with MS written by Vanessa Bouchard and published by . This book was released on 2017 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: "Multiple sclerosis (MS), an auto-immune disease of the central nervous system, is the leading cause of neurological disability among young adults in Canada. The effect of MS is profound and is similar for people across nations, socioeconomic gradients, levels of education, and occupations. Its presentation varies widely from person to person, with symptoms ranging from mild sensory alterations to severe disability limiting activity and restricting participation in life's roles. These manifestations of MS have a direct impact on quality of life (QOL). The main priorities of people with MS are to remain independent and empowered to participate in their communities and their care. In order to maintain their QOL as high as possible, people with MS recognize the importance of maintaining a healthy life style, yet research shows that few are sufficiently physically active to maintain health in the face of a progressive disease. This indicates a gap between information (knowledge) and action, a gap that needs to be filled. To bridge that gap and address the wide range of topics important to people with MS, a knowledge tool based on principles of self-management was developed. Self-management is a lifetime task where patients are coached to maintain wellness in their foreground perspective, rather than illness, through development of five core skills: problem solving, decision making, resource utilization, forming patient/health care provider partnership, taking action. To put those skills to use, a person needs to gain the ability to self-assess, identify and implement strategies to improve, and monitor progress. The first aim of this thesis was to develop a workbook for people living with MS entitled Getting On With Your Life With MS: A Guide To Taking Charge Of Your Health (GETONMS©) following the principles and skills of self-management and optimize its functionality. The development and optimization of GETONMS© is presented in Manuscript 1 along with a 10-stage process that would allow others to use this methodology to develop and refine self-management educational material for other patient populations. GETONMS©, presented in Chapter 5, is a workbook that covers 43 topics identified as important for the quality of life of people with MS. Clinicians and researchers who evaluated the workbook have approved of the content and format and showed interest in offering the final product to their patients. Preliminary evaluation showed that the content and format fit the needs of the users and little or no support is needed to use the workbook.The next objective of this thesis was to gain insight into the processes through which engagement with the workbook produces change in QOL. Manuscript 2 explored how people with MS valued GETONMS© as well as the potential of GETONMS© to produce a response shift in QOL over a 2 month period. The information gathered from the analysis of values and changes in QOL in the form of response shift helped design a feasibility study to be conducted on the internet in order to make the workbook accessible to as many as possible.Manuscript 3 presents the protocol for the randomized feasibility study as well as data from the first 23 subjects recruited to identify strengths and limitations of using social media to enroll people with MS into an internet-based study of self-management. This interim analysis was conducted to allow for modifications to the protocol to be made if needed. It showed that social media recruitment strategy reached a patient population similar to the traditional in-person recruitment sample but also recruited participants into the study over twice as fast. The three manuscripts and the GETONMS© self-management workbook presented in this thesis provide evidence towards global self-management research, social media recruitment, and will allow for the design of a main trial evaluating GETONMS©. It also produced a workbook that will be made available to people with MS soon." --
Author : Paul J. Bull
Publisher : Springer
ISBN 13 : 1137457066
Total Pages : 305 pages
Book Rating : 4.1/5 (374 download)
Download or read book People with Multiple Sclerosis written by Paul J. Bull and published by Springer. This book was released on 2015-09-01 with total page 305 pages. Available in PDF, EPUB and Kindle. Book excerpt: Multiple sclerosis is an incurable neurological disease of unknown cause with a fearful reputation for generating disability, unemployment, poverty and early death. This book critically surveys the current state of multiple sclerosis research, demonstrating the shortfall of current research undertaken on the lives of people with multiple sclerosis.
Author : Rosalind Kalb
Publisher : John Wiley & Sons
ISBN 13 : 1118175875
Total Pages : 387 pages
Book Rating : 4.1/5 (181 download)
Download or read book Multiple Sclerosis For Dummies written by Rosalind Kalb and published by John Wiley & Sons. This book was released on 2012-05-08 with total page 387 pages. Available in PDF, EPUB and Kindle. Book excerpt: Your trusted, compassionate guide to living with MS Being diagnosed with multiple sclerosis (MS) doesn't mean your life is over. Everyone's MS is different and no one can predict exactly what yours will be like. The fact is, lots of people live their lives with MS without making a full-time job of it. Multiple Sclerosis For Dummies gives you accessible, easy-to-understand information about what happens with MS—what kinds of symptoms it can cause, how it can affect your life at home and at work, what you can do to feel and function better, and how you can protect yourself and your family against the long-term unpredictability of the disease. You'll learn how to make treatment and lifestyle choices that work for you, what qualities to look for in a neurologist and the rest of your healthcare team, how to manage fatigue, the pros and cons of alternative medicine, why and how to talk to your kids about MS, stress management strategies, your rights under the Americans with Disabilities act, and so much more. Covers major medical breakthroughs that slow the progression of the disease and improve quality of life for those living with MS Helps those affected by MS and their family members understand the disease and the latest treatment options Helpful and trusted advice on coping with physical, mental, emotional, and financial aspects of MS Complete with listings of valuable resources such as other books, websites, and community agencies and organizations that you can tap for information or assistance, Multiple Sclerosis For Dummies gives you everything you need to make educated choices and comfortable decisions about living with MS.
Author : Alastair Wilkins
Publisher : Springer
ISBN 13 : 3319659219
Total Pages : 309 pages
Book Rating : 4.3/5 (196 download)
Download or read book Progressive Multiple Sclerosis written by Alastair Wilkins and published by Springer. This book was released on 2017-11-24 with total page 309 pages. Available in PDF, EPUB and Kindle. Book excerpt: This revised, updated second edition draws together the basic science, pathology, epidemiology and treatment possibilities in progressive multiple sclerosis. Each chapter addresses specific aspects of progressive multiple sclerosis providing an extensive review of the current literature and a discussion of the likely mechanisms of tissue injury relevant to the disease. New additions to the second edition include a description of clinical scales used to determine levels of disability; recent trials specifically directed at reducing disease progression; rehabilitation; and an in depth discussion of the similarities and differences between primary and secondary multiple sclerosis. The biological processes underlying disease progression are elucidated as are specific pathophysiological mechanisms. The basic science of axonal degeneration and the clinical understanding of progressive multiple sclerosis are discussed in the context of emerging and future therapies for disease progression as are trials which have been and will be conducted for progressive multiple sclerosis. An overview of biomarkers for the disease is included and existing symptomatic therapies for progressive multiple sclerosis are covered in detail. Progressive Multiple Sclerosis, Second Edition is ideal for both general neurologists and those with a specialist interest in multiple sclerosis. It will also be of interest to neurologists in training and other medical professionals treating this common disease.
Author : David Mohr
Publisher : Oxford University Press
ISBN 13 : 0199709246
Total Pages : pages
Book Rating : 4.1/5 (997 download)
Download or read book The Stress and Mood Management Program for Individuals With Multiple Sclerosis written by David Mohr and published by Oxford University Press. This book was released on 2010-02-03 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Multiple Sclerosis presents not only physical challenges, but emotional challenges as well. Many people with MS suffer from depression, anxiety and stress. Problems with mood and stress can interfere with your relationships with others, reduce your ability to meet your obligations at work and at home, and substantially worsen your overall quality of life. If you have MS and are experiencing problems with mood and stress, this workbook can help. The stress and mood management program described in this book is backed by research and has proven effective in clinical trials. Based on the principles of cognitive-behavioral therapy (CBT), one of the most effective therapeutic techniques available for combating depression and anxiety, this program can help you manage stress and improve your well-being. In Part I of the program, you will learn skills for identifying and challenging your unhelpful thoughts, as well as how to motivate yourself to reengage in pleasant activities. In Part II, you will choose those treatment modules that apply to you and your specific MS-related problems. Choices include modules on managing symptoms like fatigue, pain, and cognitive problems, and improving communication and assertiveness skills, among others. If you take injectable medications and have a fear of injecting yourself, the module on self-injection anxiety will also prove useful. Complete with user-friendly forms and worksheets, this workbook provides all the materials you need to supplement treatment with a qualified mental health professional. If you are a highly motivated individual, you may have success using this book on your own. Whatever the setting, the stress and mood management program will give you the tools to handle the stresses of your disease and improve the overall quality of your life.
Author : Teresa M. Briggs
Publisher :
ISBN 13 :
Total Pages : 114 pages
Book Rating : 4.:/5 (57 download)
Download or read book Relationship Between Health-promoting Behaviors and Quality of Life of Individuals with Multiple Sclerosis written by Teresa M. Briggs and published by . This book was released on 2002 with total page 114 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : World Health Organization
Publisher : World Health Organization
ISBN 13 : 9241563362
Total Pages : 233 pages
Book Rating : 4.2/5 (415 download)
Download or read book Neurological Disorders written by World Health Organization and published by World Health Organization. This book was released on 2006 with total page 233 pages. Available in PDF, EPUB and Kindle. Book excerpt: Although there are several gaps in understanding the many issues related to neurological disorders, we know enough to be able to shape effective policy responses to some of the most common. This book describes and discusses the increasing public health impact of common neurological disorders such as dementia, epilepsy, headache disorders, multiple sclerosis, neuroinfections, neurological disorders associated with malnutrition, pain associated with neurological disorders, Parkinson's disease, stroke and traumatic brain injuries. It provides information and advice on public health interventions that may reduce their occurrence and consequences, and offers health professionals and planners the opportunity to assess the burden caused by these disorders. The clear message that emerges is that unless immediate action is taken globally, the neurological burden is likely to become an increasingly serious and unmanageable.
Author : Marcia Finlayson
Publisher : Routledge
ISBN 13 : 1135795886
Total Pages : 165 pages
Book Rating : 4.1/5 (357 download)
Download or read book Occupational Therapy Practice and Research with Persons with Multiple Sclerosis written by Marcia Finlayson and published by Routledge. This book was released on 2013-04-15 with total page 165 pages. Available in PDF, EPUB and Kindle. Book excerpt: Discover strategies to enhance quality of life and promote social and community participation for people with MS! Occupational Therapy Practice and Research with Persons with Multiple Sclerosis will familiarize you with the complex issues experienced by people who have multiple sclerosis, suggesting ways to enhance your practice or research with this population. This vital resource fills a void in the scarce literature on occupational therapy and multiple sclerosis, providing you with a unique single-source reference on the subject. This book compiles the work and contributions of experts from Europe, Australia, Canada, and the United States—from a variety of fields, including occupational therapy, medicine, physical therapy, and psychology. This thought-provoking book offers new perspectives on potential assessment and intervention ideas and provides information that could be used for broader program planning. This extensive resource will give you a deeper appreciation of the MS disease process and its influence on everyday living for persons with MS and their families. In this collection, you will learn more about: the health-related service needs of older adults with MS the range of fatigue assessment tools that are available for clinical and research applications the effect of wheelchair use on quality of life the implications of tremor on everyday activities the development and use of Lifestyle Management Programs© coping processes used by women with MS as they age the symptom and functional limitation profiles experienced by people with MS that lead to referrals to occupational therapy Occupational Therapy Practice and Research with Persons with Multiple Sclerosis contains charts, figures, graphs, and bibliographies to augment the research and studies found in this book. Also provided are contributions by Dr. Nicholas G. LaRocca—a well-known MS researcher—and Dr. Carol A. Gaetjens—an educator with MS. Occupational therapy students, clinicians, and researchers working with individuals and families who are affected by MS will find this book an important resource in their profession.
Author :
Publisher :
ISBN 13 :
Total Pages : 24 pages
Book Rating : 4.:/5 (17 download)
Download or read book Improving the Quality of Life in Patients with Multiple Sclerosis written by and published by . This book was released on 2011 with total page 24 pages. Available in PDF, EPUB and Kindle. Book excerpt:
