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Parkinsons Diva
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Download or read book Parkinson's Diva written by Maria De Leon and published by . This book was released on 2015-06-29 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: Parkinson's disease affects all sides of you: your inside, your outside, and your "right" side-that is, the side where you feel positive, balanced, and beautiful. How do you find that edge when you're not feeling very sharp at all? Parkinson's Diva is a personal and professional accounting of a young Parkinson's doctor's experience with the disease in all realms of her life . . . from doctor, caregiver, and ultimately as a young Parkinson's patient herself. Not only does Dr. Maria De Leon cover important basics of PD and research-based data, she also shares the personal concerns and gender-specific battles that young women who live with the disease must face. She encourages all of us to be empowered through education, self-awareness, and faith. This book is about embracing your own style and grace in your journey with PD . . . as Maria says "summoning your inner diva.""
Download or read book Parkinson's Diva written by Maria De Leon and published by Thewordverve Incorporated. This book was released on 2019-07-12 with total page 156 pages. Available in PDF, EPUB and Kindle. Book excerpt: Designed specifically for women with Parkinson's disease, this delightfully illustrated guided journal offers fun activities and a place to document the hopes and struggles that go along a Parkinson's diagnosis. Be inspired through this workbook and let your Inner Diva shine!
Book Synopsis Self-management support to handle everyday life with Parkinson´s disease by : Carina Hellqvist
Download or read book Self-management support to handle everyday life with Parkinson´s disease written by Carina Hellqvist and published by Linköping University Electronic Press. This book was released on 2020-04-27 with total page 108 pages. Available in PDF, EPUB and Kindle. Book excerpt: Background: Being diagnosed with Parkinson´s disease (PD) is a life-altering experience. The long-term condition requires continuous adjustments to the everyday life not only of the person affected, but also for care partners. There is still insufficient knowledge on how best to support this process of acceptance and adjustment to encourage self-management. Aims: The aim of this thesis is to enhance the knowledge and understanding of self-management for persons with PD (PwPD) and their care partners. Furthermore, to investigate whether the self-management intervention Swedish National Parkinson School can be used as a tool to support self-management, and how nurses specialised in the care of persons with Parkinson´s disease can tailor their support to encourage self-management in everyday life. Method and design: Both qualitative and quantitative designs and methods were used in the three studies included in this thesis. Participants included a total of 209 persons. Of these, 127 were persons with PD and 75 were care partners. Participants with PD were largely in the middle stages of the disease. The time since diagnosis ranged from less than one year to over 20 years, and most participants had lived with the disease for around five years. Participants were cared for at five separate outpatient clinics, both geriatric and neurological, in three county and two university hospitals across Sweden. Data collection included observations, interviews, self-reported questionnaires and audio-recordings of the National Parkinson School in clinical care. The overall results of this thesis were obtained using a qualitative approach, where the results of the three studies were analysed using qualitative thematic analysis as described by Braun and Clarke (2006). Results: In combining the results of the separate studies through thematic analysis three distinct but interrelated themes were evident. These described the processes and efforts of persons to accept, manage and adjust to everyday life with PD. The theme “A changed reality” involves participants´ descriptions of how life changed after the diagnosis of PD. For many this was a shock, and both the person affected and their care partners experienced a variety of emotions such as anger, denial and hopelessness. It changed their personal identities, their perception of themselves as individuals and as a couple. They worried about what the future would hold, and the uncertainty was hard to accept and handle. One strategy for processing and beginning to acknowledge the new situation involved speaking openly about the diagnosis. The second theme “Finding a new path”, involves a description of how, after accepting or at least acknowledging, their new reality, participants started to find ways of managing the impact of PD on everyday life, incorporating it into their current life and identity. Many felt new knowledge was needed and turned to books and websites on PD. An intervention which was appreciated in terms of providing tools for self-observation and self-knowledge was the Swedish National Parkinson School. Participants later used these techniques to communicate and observe symptoms and healthcare needs. Being an active participant in life and performing activities such as physical exercise or other activities they enjoyed were also used as a strategy to feel satisfaction in life. Participants frequently worked out self-care and compensatory strategies to handle everyday tasks. Another strategy they found comforting and helpful involved retaining a positive mind-set and believing that a good future lay ahead. In the third category “The companions”, the participants described self-management in everyday life as a task they performed together. Management of PD was considered the shared responsibility of the person affected and the care partner, but was also influenced by others such as family members and close friends. The Swedish National Parkinson School provided knowledge as a form of common ground for the person affected and the care partner. During the Swedish National Parkinson School, the social interaction involved in exchanging experiences and feeling support from others in the same situation was considered helpful and was much appreciated. Conclusions: Management of PD in everyday life involves both the person affected and the care partner. After the initial emotional reactions, alongside feelings of lost identity and an altered life, persons started to look to the future and were ready to find ways of handling the changed conditions of their everyday lives. Persons with PD and their care partners were now willing to learn more about PD and to find tools and strategies to help them manage its impact on their everyday lives. During this phase, they appreciated the support of the Swedish National Parkinson School intervention. In the intervention, they would meet others in the same situation to find support and exchange experiences. They also turn to healthcare for support in the process of self-management in everyday life. Nurses working specifically to support PwPD and their CP will need to tailor support taking into account the disease trajectory as well as the psychological processes involved in accepting and adjusting to PD to best fit the unique needs and wishes of every person with PD and their care partner.
Book Synopsis Navigating Life with Parkinson's Disease by : Sotirios A. Parashos MD
Download or read book Navigating Life with Parkinson's Disease written by Sotirios A. Parashos MD and published by Oxford University Press. This book was released on 2020-06-16 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: Navigating Life with Parkinson's Disease is a guide for anyone affected by Parkinson's, providing useful information to those with Parkinson's and their caregivers, family, and friends. This extensively revised second edition contains up-to-date information on recent research and the latest adaptive equipment available to those living with Parkinson's disease. Discussing available treatments and providing practical advice, this book emphasizes lifestyle adjustments that provide a better quality of life for patients and their loved ones. The material is organized so that chapters can be read sequentially or individually, and the index and glossary facilitate the use of the book as a quick reference. Q&A sections, thoughts from people living with Parkinson's and Ask the Experts boxes address often-overlooked topics in physician-directed disease management, such as how to talk to family and friends about one's life with Parkinson's. Promoting a patient-centered approach, Navigating Life with Parkinson Disease empowers patients and their families to manage their health care.
Book Synopsis Navigating Life with Parkinson's Disease by : Sotirios A. Parashos
Download or read book Navigating Life with Parkinson's Disease written by Sotirios A. Parashos and published by Brain and Life Books. This book was released on 2020 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: "It is hard to believe it has been only 7 years since the publication of our first edition. In this short time, so much has changed in what we know about Parkinson's disease and how to treat it. As I read through the first edition, I found much information was already out of date within 4 years from publication. New knowledge about the role of protein misfolding and how it leads to nerve cell damage in Parkinson's, about when and where the disease may be starting, about how it may progress and spread through the brain, about how it affects almost all aspects of body functions, about how all this new knowledge is shaping the quest for a cure, about how important exercise is, and about how the multidisciplinary approach to disease management changes the quality of life of people with Parkinson's has been accumulating at a dizzying pace. More than 200 years after the publication of Parkinson's An Essay on the Shaking Palsy and just over 50 years after the implementation of levodopa in Parkinson's treatment, it looks as though scientists are poised to make a breakthrough toward effective treatments of the disease itself, not just the symptoms, and paths that may eventually lead to a cure are now visible. Such progress would be impossible without the hard work of many researchers; the financial support of the corresponding government agencies; the advocacy of national and international Parkinson's organizations and the philanthropy of their donors; and the tireless efforts and open minds of the doctors, nurses, therapists, and social workers caring for people with Parkinson's and their families. Above all, none of this progress would be possible without the active participation of people with Parkinson's and their families through advocacy, community engagement, and participation in clinical trials. To them we would like to extend a great "thank you"."--
Book Synopsis Navigating Life with Parkinson's Disease by : Sotirios Parashos
Download or read book Navigating Life with Parkinson's Disease written by Sotirios Parashos and published by Oxford University Press, USA. This book was released on 2012-12-06 with total page 318 pages. Available in PDF, EPUB and Kindle. Book excerpt: Navigating Life with Parkinson's Disease is a guide for anyone affected by Parkinson's—patients, family members, friends, and caregivers. Containing the most up-to-date information on the disease, one of the most common nervous system diseases, it also discusses the available treatments and provides practical advice on how to manage the disease in the long term. Emphasizing life-style adjustments that will provide a better quality of life and moderate the burden for patients and their loved ones, Navigating Life with Parkinson's Disease empowers patients and their families with the necessary information to take charge of their health care.
Download or read book A Life Shaken written by Joel Havemann and published by JHU Press. This book was released on 2002-04-26 with total page 204 pages. Available in PDF, EPUB and Kindle. Book excerpt: The personal story of a Los Angeles Times editor discusses his experiences with Parkinson's disease, from its physical to its psychological challenges, and provides additional information about how the disease works, how it is treated, and the outlook for its cure.
Download or read book Shaken written by Robert S. Magill PhD and published by Xlibris Corporation. This book was released on 2012-05-03 with total page 70 pages. Available in PDF, EPUB and Kindle. Book excerpt: Parkinsons Disease is a chronic, disabling illness that has affected between 500,000 to 1.2 million people in the United States. Cells that produce the neurotransmitter dopamine in the brain die and do not regenerate in people with PD. As a result, people with Parkinsons Disease suffer from a range of symptoms involving muscle movement. These symptoms may include tremors, problems with walking and balance, rigid muscles, an immobile facial expression, and diminished speaking volume. Sometimes cognitive diffi culties develop.
Book Synopsis Parkinson's Disease by : William J. Weiner
Download or read book Parkinson's Disease written by William J. Weiner and published by JHU Press. This book was released on 2013-12-01 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: The third edition incorporates findings from years of intensive research. Recent innovations, including deep brain stimulation and new medications, have significantly improved the lives of people who have Parkinson's disease. Nevertheless, patients and families continue to face many challenges. They have long relied on this book for reliable advice about medical, emotional, and physical issues. Bringing this trusted guide up to date, three expert neurologists describe • New understandings gained by five years of additional research on Parkinson's disease • New focus on the importance of exercise • New information about imaging techniques such as SPECT Scan and DATScan that are aiding in the diagnosis • New findings about the genetics of the disease • Promising uses of new technologies such as tablet devices for people who have trouble communicating • Information about impulse control disorders caused by some drugs used to address the symptoms of the disease • A complete update on treatments such as medications, surgery, and more
Book Synopsis Parkinson’s Disease and the Family by : Nutan Sharma
Download or read book Parkinson’s Disease and the Family written by Nutan Sharma and published by Harvard University Press. This book was released on 2005-05-23 with total page 233 pages. Available in PDF, EPUB and Kindle. Book excerpt: Parkinson's disease is a movement disorder characterized by tremor, stiffness and slow gait. Sharman and Richman draw on the latest research and clinical practice techniques to offer valuable suggestions for managing patient care, and perhaps more important, for healing the family unit.
Download or read book Keepin' On written by Robert J. Silver and published by . This book was released on 2017-12-28 with total page 180 pages. Available in PDF, EPUB and Kindle. Book excerpt: Written for fellow Parkinson¿s patients, their families, and their friends, Keepin¿ On chronicles a life of love, loss, longing, work, sports, travel, friendship, and intimacy¿all against the backdrop of progressive Parkinson¿s disease. Twenty chapter scenes explore issues ranging from the frustrating unpredictability of prescribed pharmaceuticals; loss of function; hope and inspiration; overcoming challenge; generosity and the kindness of strangers; the helpless concern of friends and family; expert medical care; comic relief; and more. Keepin¿ On defiantly rejects the initial prophecy¿the crippling of body and mind. It¿s one person¿s version of a condition that varies widely in its symptomatic expressions.
Book Synopsis Parkinson Pete on LIving & Dying with Parkinson's by : Peter Beidler
Download or read book Parkinson Pete on LIving & Dying with Parkinson's written by Peter Beidler and published by Coffeetown Press. This book was released on 2020-05-12 with total page 188 pages. Available in PDF, EPUB and Kindle. Book excerpt: Parkinson Pete on Living and Dying with Parkinson's Disease is a direct, honest, and sometimes funny assessment of what it can be like to face a life and a death with a neurodegenerative disease like Parkinson's. Most of the writers of the books Pete reviewed in Parkinson Pete's Bookshelves dealt exclusively with the easy early stages of the disease. Then they mumbled something about the need to keep hoping that a cure is just around the corner. Pete shares that hope, of course, while advising readers how to take charge of their own futures, cure or no cure.
Book Synopsis Living Well with Parkinson's by : Glenna Wotton Atwood
Download or read book Living Well with Parkinson's written by Glenna Wotton Atwood and published by Wiley. This book was released on 2005-03-23 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The long-awaited update to the definitive guide to successfully living with Parkinson's disease Known for its upbeat, informative, and inspirational guidance, Living Well with Parkinson's includes a wealth of up-to-date medical information for Parkinson's sufferers, who number over 1 million in the U.S. alone. Combined with the author's poignant personal account of her own struggles with the disease, this new edition features coverage of pallidotomy (a new surgical technique), the dramatic implications of recent genetic research, and new drugs and therapies. The book also includes tips on dealing with social services and elder law, maintaining a positive attitude, handling issues with spouses and children, and finding support groups. Glenna Wotton Atwood, a former home economics teacher from Maine, lived with Parkinson's for over two decades until her death in 1998. Lila Green Hunnewell (Rockaway, NJ) is a freelance writer and editor. Roxanne Moore Saucier (Bangor, ME) is a journalist with the Bangor Daily News.
Book Synopsis The hiss of hope by : Meredith Oenning-Hodgson
Download or read book The hiss of hope written by Meredith Oenning-Hodgson and published by Chiron Publications. This book was released on 2019-05-03 with total page 315 pages. Available in PDF, EPUB and Kindle. Book excerpt: Parkinson’s Disease;chronic illness;intimate autonomy;psychology;Jungian psychology From the initial port of a relating pattern with Parkinson’s Disease consisting of the usual fight, flight, freeze or the book’s new ‘fall’ structural methodology, the author takes off on a voyage harboring cryptic intimations about being “with” an illness, about a less ego accentuated interacting. This remarkable transmutation happens gradually. A re-molding takes place during the course of an eight year journey. The nucleus of this book is a descriptive narrative of this journey, of a voyage to the paradoxical space of an intimate autonomy. Even though THE HISS OF HOPE is about living with a chronic disease, the book does not dwell on a life of suffering and desperation, but rather, it also depicts the adventure leading to places, to encounters and to depths of experience that would not have been possible without first having been ambushed by Parkinson’s. Today’s Zeitgeist seems to be pregnant with dark and fearful hints of impending disasters. This book suggests an intimate autonomy as a culturally integrable relating pattern to cope with life in the first half of the 21st century. And with death. With a grateful nod to Parkinson’s Disease and its initial rupture of her life, the author concludes her book with a generous smile. The sparkle of the ‘before’ space links to the calm radiance of the ‘after’. And the sibilant hiss, reveals itself as a dynamic third between hope and no-hope: a concurrent unity of an intimate togetherness and an autonomous separateness. A beginning asserts itself at the end. Parkinson’s reacts with a wise and iconic grin.
Book Synopsis Living with Parkinson's by : Brookdale Center On Aging
Download or read book Living with Parkinson's written by Brookdale Center On Aging and published by Harper Perennial. This book was released on 1993-02-26 with total page 256 pages. Available in PDF, EPUB and Kindle. Book excerpt: An accessible and vastly informative guide for the more than one million Americans who suffer from Parkinson's Disease.
Download or read book Ivan written by Ivan Vaughan and published by . This book was released on 1986 with total page 203 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Apomorphine in Parkinson's Disease by : Per Odin
Download or read book Apomorphine in Parkinson's Disease written by Per Odin and published by . This book was released on 2005 with total page 88 pages. Available in PDF, EPUB and Kindle. Book excerpt: Apomorphine in Parkinson's Disease provides a thorough and comprehensive review of apomorphine, one of the oldest drugs still in clinical use that recently has received renewed attention due to its efficacy in the treatment of advanced Parkinson's disease.Apomorphine in Parkinson's Disease covers the history of the drug, its pharmacology and clinical use in Parkinson's disease, practical tips and recommendations for its use, as well as a discussion of health economic aspects of its use. The efficacy of apomorphine is also contrasted to that of other recent approaches to the treatment of advanced Parkinson's disease, most notably neurosurgical interventions.The primary audience of Apomorphine in Parkinson's Disease consists of physicians and nurses concerned with the management of patients suffering from advanced Parkinson's disease, but it will probably also be relevant for other health care professionals (including students and those practicing in related fields), researchers, teachers, administrators and decision makers with an interest in the field of Parkinson's disease and clinical neurology.
