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Living Well With Dystonia
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Book Synopsis Living Well with Dystonia by : Daniel Truong
Download or read book Living Well with Dystonia written by Daniel Truong and published by Demos Medical Publishing. This book was released on 2010-03-15 with total page 185 pages. Available in PDF, EPUB and Kindle. Book excerpt: Dystonia is a movement disorder that causes the muscles to contract and spasm involuntarily. According to the Dystonia Medical Foundation, estimates suggest that no less than 300,000 people in North America are coping with some form of dystonia. Living We
Book Synopsis Living Well with Dystonia by : Daniel Truong, MD
Download or read book Living Well with Dystonia written by Daniel Truong, MD and published by Springer Publishing Company. This book was released on 2016-03-28 with total page 200 pages. Available in PDF, EPUB and Kindle. Book excerpt: A patient-oriented guide to living life to your fullest with dystonia. Dystonia doesn’t have to rule your life. This empowering and encouraging resource, written for dystonia patients and their families and caregivers, provides an overview of a variety of dystonias including cervical dystonia, spasmodic dysphonia, blepharospasm, and writer’s cramp, and the breadth of treatment options available. The authors also offer practical advice for improving quality of life and managing pain and other symptoms. This updated second edition includes expanded discussions of new medications, chemodenervation with botulinum toxin, deep brain stimulation, genetic breakthroughs, and other areas. Written by three acclaimed neurologists with perspectives from patients that illuminate and inform, Living Well with Dystonia will help you: Understand your specific dystonia and how it progresses Determine the best treatment approaches Alleviate symptoms with rehabilitation exercises Address the “hidden symptoms,” such as social embarrassment Blurbs : "Living Well with Dystonia provides a balanced and easily understandable introduction to a chronic condition that is rarely discussed. Treatments and exercises are presented honestly - no miracle cures, but paths toward symptom relief. Simple diagrams of the nervous system and affected limbs or muscles are very helpful, and comments from actual patients personalize the discussions throughout. Well written. Recommended." - CAPHIS Consumer Connections "This kind of comprehensive guide to dystonia has long been needed. It will be an invaluable resource to patients, their families and caregivers."-Bonnie Strauss, President and Founder, The Bachmann-Strauss Dystonia & Parkinson Foundation, Inc. "Dr. Daniel Truong and co-authors have done a great service to patients with blepharospasm and other forms of dystonia by providing a clear and readable discussion of the disorders, their causes and therapeutic alternatives. Ignorance enhances fear and disability, whereas knowledge allows patients and their families to optimally adjust to chronic conditions, thereby improving their quality of life. This book should be read by all dystonia suffers and their loved ones."-Mary Lou Koster Thompson, President, Benign Essential Blepharospasm Research Foundation
Download or read book Diagnosis Dystonia written by Tom Seaman and published by Createspace Independent Publishing Platform. This book was released on 2015-03-20 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt: Diagnosis Dystonia takes you on a personal and educational journey full of valuable information for those newly diagnosed, as well as those who have been living with dystonia for years. Tom's perspective as a long time dystonia patient is invaluable, offering coping skills, healthy living strategies, and treatment options. He also provides practical information for emotionally adjusting to the diagnosis and subsequent lifestyle changes, and how to live in the world with something "different." Testimonials from other patients provide additional perspective. Having suffered for many years and not wanting the same for others, Tom compiled a ton of strategies for dealing with all that dystonia brings, such as pain, anger, fear, depression, anxiety, stress, grief, relationships, shame, as well as healthy lifestyle strategies, pain management, how to learn to accept and rebuild, dealing with the public and how to talk about dystonia, treatments, tips for dealing with the diagnosis and life changes down the road, what to expect at your doctor appointments, medications, the work environment, the disability process, tips and tricks for doing daily activities with more ease, and a ton of patient testimonials. Diagnosis Dystonia is a must read for patients, family, friends, caregivers, health care providers, researchers, and anyone who knows someone living with dystonia or other chronic health condition. Readers will benefit from the knowledge, wisdom, and experience Tom has gained through first learning to cope with dystonia and then improving upon the life he leads. This book will help others find their own path in pursuing life in which dystonia is not the focus, but a catalyst for finding better days. Tom now uses his experience and education as a certified professional life coach to help people with dystonia and other life challenges. From the Author: Why this book? There are not many books available on dystonia and most that are available were written by people who do not have dystonia. I felt there was a great need for a book from the perspective of patients, as our experiences are uniquely different than those who never walked a day in our shoes. This book provides readers with a wide window into life with dystonia through the eyes of those who live with this challenging condition. It is arguably the most comprehensive book currently available on dystonia, covering numerous issues we face on a daily basis and providing countless strategies for overcoming obstacles and living a productive life. My goal is to provide you with as much information possible to make your life with dystonia easier. This book need not be read from cover to cover. It is formatted so the reader can jump to chapters and topics of relevance and interest. Although this book centers on dystonia, much of the information can be applied to any health condition or other life challenge. It provides useful strategies and tools for any life circumstance. Sign up for a free newsletter at www.tomseamancoaching.com
Book Synopsis Spasmodic Torticollis Handbook by : Karen Frei, MD
Download or read book Spasmodic Torticollis Handbook written by Karen Frei, MD and published by Springer Publishing Company. This book was released on 2003-07-01 with total page 264 pages. Available in PDF, EPUB and Kindle. Book excerpt: Spasmodic torticollis, also known as cervical dystonia, affects about three people in 10,000, or an estimated 85,000 individuals in the United States alone. Despite this, there has been until now a lack of information outside of the professional medical literature for use by individuals with this disorder and their families. This book provides comprehensive information on the disorder for people with spasmodic torticollis and those close to them. Medical terms and concepts are introduced sequentially and then used as building blocks for the later discussion. Beginning with a clear definition of the disorder, opening chapters categorize this neurologic disease as one of the broader category of movement disorders, and differentiate it from other conditions with which it is often confused. The authors then present a stepwise introduction to the relevant anatomy and physiology of the nervous system and neck. They draw on the experiences of their patients to build a progressive depiction of the experiences an individual might have as he or she goes through the initial onset of symptoms, progression of the disorder, seeking medical care, diagnosis, treatment, and subsequent outcome. Personal vignettes from the experiences of selected patients are provided where they illustrate particular points in the discussion. Subsequent chapters discuss various modes of treatment for spasmodic torticollis. Prior to the mid-1980?s, there were no specific treatments for this disorder. Nearly all treatment consisted of using oral medications that were primarily intended for other medical conditions. Since most of these medications are still in use, and a few new ones have been added, a chapter is devoted to detailing them and discussing the general principles of medication therapy. During the past decade, chemodenervation using botulinum toxin has become the primary and most effective treatment for spasmodic torticollis. For those few patients who require surgery, a description is provided of the neurosurgical techniques developed during the last twenty years specifically for its treatment. The final chapter is a manual of therapeutic rehabilitation exercises designed to alleviate the symptoms of spasmodic torticollis. These exercises can be performed by most patients with no assistance and a bare minimum of equipment. Since each person?s case of spasmodic torticollis is different, only certain of the exercises may be appropriate for any given individual. They should be undertaken only after discussion with your physician. These exercises are accompanied by detailed illustrations that emphasize the particular muscles relevant to each posture or movement. About the Authors: Dr. Pathak is a neurologist with a special interest in the neurologic rehabilitation of movement disorders, especially spasmodic torticollis. Dr. Frei is a neurologist specialized in the field of neurogenetics, and has conducted clinical trials on a number of movement disorders, including spasmodic torticollis. Dr. Truong is a neurologist and movement disorders specialist. He has conducted active research in the management of movement disorders, including spasmodic torticollus. He was one of the pioneers in the use of botulinum toxin to manage this condition, and has lectured worldwide on the management of movement disorders.
Book Synopsis Rehabilitation in Movement Disorders by : Robert Iansek
Download or read book Rehabilitation in Movement Disorders written by Robert Iansek and published by Cambridge University Press. This book was released on 2013-05-23 with total page 263 pages. Available in PDF, EPUB and Kindle. Book excerpt: Provides a broad overview of current rehabilitation approaches, emphasizing the need for interdisciplinary management and focussing on deliverable outcomes.
Book Synopsis Dystonia and Dystonic Syndromes by : Petr Kanovsky
Download or read book Dystonia and Dystonic Syndromes written by Petr Kanovsky and published by Springer. This book was released on 2015-04-13 with total page 253 pages. Available in PDF, EPUB and Kindle. Book excerpt: The current concept of dystonic movement connects the abnormal function of somatosensory pathways and somatosensory analyzers with the dystonic performance of motor action, which is based on the abnormality of sensorimotor integration. This concept is reflected not only in idiopathic dystonia, but also in secondary and symptomatic dystonias. This book will give a comprehensive account of the history of the terms dystonia and dystonic, the physiology of dystonic movement and the genetics and clinical appearance of primary and secondary dystonias. Taking into consideration latest research findings, Dystonia and Dystonic Syndromes offers an in-depth discussion of current treatment options available for dystonia, including pharmacotherapy, surgery and neurorehabilitation. Therefore, it serves as a valuable reference for practitioners in the fields of neurology, neurosurgery, psychiatry and neuroradiology as well as for neuroscientists.
Book Synopsis Woman of Few Words: My Creative Journey with Dystonia by : Cheryl Tannenbaum
Download or read book Woman of Few Words: My Creative Journey with Dystonia written by Cheryl Tannenbaum and published by Gefen Books. This book was released on 2019-10-18 with total page 140 pages. Available in PDF, EPUB and Kindle. Book excerpt: How would you like to be unable to speak intelligibly? How would you enjoy having an awkward gait that makes you prone to falling and causes people to stare? Living with dystonia is not something I would have chosen for myself. You can live a fulfilling life full of happiness, blessings, and contentment. This is how it can be done.
Download or read book Dystonia written by Tamer Rizk and published by BoD – Books on Demand. This book was released on 2018-11-07 with total page 114 pages. Available in PDF, EPUB and Kindle. Book excerpt: The book contains four chapters discussing dystonia from a new perspective. Dystonia may result from either diffuse or localized pathology of the cerebral cortex, brain stem, or spinal cord. Management of dystonia is challenging, and specific goals should be identified. Dystonia is considered one of the most disabling conditions in the pediatric age group, which may remain until adulthood; treatment is usually unsatisfactory. Meige's syndrome, or "oromandibular dystonia," may be misdiagnosed as temporomandibular joint or psychogenic disorder, which will alter management and delay proper treatment. Dystonia with non-motor disorders includes sleep, cognitive, pain, sensory, and psychiatric disorders, and their pathophysiological and biochemical mechanisms and specific treatment are discussed. This book will be of interest to GPs, neurologists, family physicians, and internal medicine specialists.
Book Synopsis Principles and Practice of Movement Disorders E-Book by : Joseph Jankovic
Download or read book Principles and Practice of Movement Disorders E-Book written by Joseph Jankovic and published by Elsevier Health Sciences. This book was released on 2011-04-01 with total page 557 pages. Available in PDF, EPUB and Kindle. Book excerpt: Principles and Practice of Movement Disorders provides the complete, expert guidance you need to diagnose and manage these challenging conditions. Drs. Stanley Fahn, Joseph Jankovic and Mark Hallett explore all facets of these disorders, including the latest rating scales for clinical research, neurochemistry, clinical pharmacology, genetics, clinical trials, and experimental therapeutics. This edition features many new full-color images, additional coverage of pediatric disorders, updated Parkinson information, and many other valuable updates. An accompanying Expert Consult website makes the content fully searchable and contains several hundred video clips that illustrate the manifestations of all the movement disorders in the book along with their differential diagnoses. Get just the information you need for a clinical approach to diagnosis and management, with minimal emphasis on basic science. Find the answers you need quickly and easily thanks to a reader-friendly full-color format, with plentiful diagrams, photographs, and tables. Apply the latest advances to diagnosis and treatment of pediatric movement disorders, Parkinson disease, and much more. View the characteristic presentation of each disorder with a complete collection of professional-quality, narrated videos online. Better visualize every concept with new full-color illustrations throughout. Search the complete text online, follow links to PubMed abstracts, and download all of the illustrations, at www.expertconsult.com.
Book Synopsis Movement Disorder Emergencies by : Steven J. Frucht
Download or read book Movement Disorder Emergencies written by Steven J. Frucht and published by Springer Science & Business Media. This book was released on 2008-02-10 with total page 250 pages. Available in PDF, EPUB and Kindle. Book excerpt: Movement Disorder Emergencies: Diagnosis and Treatment provides a fresh and unique approach to what is already a high-profile subspecialty area in clinical neurology. The disorders covered in this volume are standard fare in the field but emphasize the urgencies and emergencies that can occur. One of the very attractive features of the field of movement disorders is that diagnosis is often based on unique visible and sometimes audible phenomenological symptoms and signs. Therefore, in this era of highly sophisticated laboratory and radiological diagnostic tools, the diagnosis of many movement disorders is still largely made in the clinic where pattern recognition is key. Crucial to astute clinical diagnosis is broad clinical experience. In short, you have to have seen one to recognize one! Patients with movement disorders nearly always present as outpatients but, as aptly recognized by Drs. Frucht and Fahn, this may include acute manifestations leading to emergency presentations, often in an emergency room setting, where they are very likely to be unrecognized and therefore poorly managed. The authors define an “emergency” movement disorder as one in which failure to promptly diagnose and treat may result in significant morbidity or mortality. However, they also stress the importance of certain “can’t miss” diagnoses such as Wilson’s disease, dopa-responsive dystonia, and Whipple’s disease in which delayed diagnosis in less emergent situations can lead to slowly evolving and often irreversible neurological damage with tragic consequences.
Book Synopsis Treatment of Dystonia by : Dirk Dressler
Download or read book Treatment of Dystonia written by Dirk Dressler and published by Cambridge University Press. This book was released on 2018-06-07 with total page 481 pages. Available in PDF, EPUB and Kindle. Book excerpt: Our understanding of dystonia is advancing rapidly. This comprehensive reference work provides an effective guide to this challenging group of disorders, offering an overview of the current and emerging treatment options for all manifestations. Treatments for the many forms of dystonia differ substantially in pediatrics and adults - both are covered in detail in this book. Approaches include botulinum toxin therapy, deep brain stimulation, oral drug applications, rehabilitation, and behavioral and experimental therapies. Special emphasis is also given to combining different treatment modalities in order to achieve optimal effect. Treatment of Dystonia brings together peer-reviewed articles, written by experts and based on work presented at international conferences. By enabling the physician to select and combine the best therapies, it is an essential resource for neurologists, neurosurgeons and physical therapists.
Book Synopsis Beyond Pain and Suffering by : Tom Seaman
Download or read book Beyond Pain and Suffering written by Tom Seaman and published by . This book was released on 2021-03-11 with total page 256 pages. Available in PDF, EPUB and Kindle. Book excerpt: To move beyond pain and suffering does not necessarily mean to live without pain and suffering. It means learning to adapt to adversity so the most difficult parts of our lives are no longer the most significant parts of our lives. Life comes at us quickly and is like a series of doors. Sometimes we don't like the doors we have to go through, but we still have to walk through them. We all experience hardships in our lives so it is of great help to have tools in place for challenges we are experiencing in the moment to minimize despair, as well as unpredictable stressors such as pain, trauma, diseases and other illnesses, financial trouble, relationship issues, loss, fear, anxiety, and depression, to name just a few. This book provides practical concepts and strategies for how to cope and manage these and other situations to reduce the burden they bring, be it physical, emotional, or both. When we learn to live beyond our pain and suffering, our physical and/or emotional challenges do not become the dominant force in our lives.
Book Synopsis Parkinson’s Disease and Movement Disorders by : Charles H. Adler
Download or read book Parkinson’s Disease and Movement Disorders written by Charles H. Adler and published by Springer Science & Business Media. This book was released on 2000-04-07 with total page 474 pages. Available in PDF, EPUB and Kindle. Book excerpt: The field of movement disorders is relatively broad, encompassing disorders of increased movement, such as tremors, dystonia, and tics, to disorders characterized by a paucity of movement, such as Parkinson's disease. Our understanding of the pathogenic mechanisms and our treatment options are expanding at a rapid pace. This expansion ranges from the medical and surgical advances in treating Parkinson's disease to the flood of genetic abnormalities that have now been found to cause various movement disorders. Although many patients are seen by the movement disorders specialist in neurology clinics around the country, most of these patients receive their followup care from a primary care physician or "general" neurologist who must be versed in the character istics and treatment plans of this diverse group of disorders. The major goal of Parkinson's Disease and Movement Disorders: Diagnosis and Treatment Guidelines for the Practicing Physician is to distill this immense amount of information and to educate the practitioner about the many facets of the movement disorders field. We believe that this book fills a large void, since most texts on movement disorders are more detailed and geared toward the specialist. We have asked the chapter authors to emphasize the clinical characteristics of each disorder, discuss the differential diagnosis and the diagnostic testing, and then outline the various treatment options, as if they were teaching during a preceptorship in their clinic.
Book Synopsis The Book of Exercise and Yoga for Those with Parkinson's Disease by : Lori Newell
Download or read book The Book of Exercise and Yoga for Those with Parkinson's Disease written by Lori Newell and published by Createspace Independent Publishing Platform. This book was released on 2010-07-17 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: This first-of-a-kind book based on the author's experience outlines a comprehensive program specifically geared to those with Parkinson's disease. This book covers a wide range of movement therapies such as range of motion exercises, low to no-impact aerobics, strength training, yoga, and T'ai Chi. The Book of Exercise and Yoga for Those with Parkinson's Disease is unique in that it covers a wide range of techniques, which are specificallygeared to, and have been proven helpful for, those with Parkinson's disease. The exercises are all explained in detail utilizing safe body mechanics and are illustrated in standing, standing holding onto a chair, and seated variations to accommodate a widevariety of abilities. This complete wellness program goes beyond the traditional exercise book offering information on home safety, fall prevention, activities of daily living, and body mechanics (including how to get up from the floor) as well as facial and voice projection exercises. Each chapter includes brief explanations on how each movement technique physiologically affects the body and how they specifically help those with Parkinson's disease. The strength training chapter also includes simple muscle diagrams to educatereaders about which muscle group(s) they are targeting. This book also provides information on stress management and provides instruction in four different relaxation/meditation techniques. If you are looking for a complete program to help you manage your symptoms and enhance your quality of life, then this book is for you.
Book Synopsis Genetics of Movement Disorders by : Stefan M. Pulst
Download or read book Genetics of Movement Disorders written by Stefan M. Pulst and published by Elsevier. This book was released on 2002-10-25 with total page 585 pages. Available in PDF, EPUB and Kindle. Book excerpt: Hereditary or genetic diseases featuring involuntary movements constitute a major aspect of the practice of neurology, functional neurosurgery, genetics, and many areas of basic and applied neuroscience research. Describing the current knowledge on these disorders, Genetics of Movement Disorders brings together information essential for clinicians, geneticists, and neuroscientists in one source. Utilizing a convenient and accessible format, the book is designed to allow easy identification of relevant information, with the overall organization of topics following established phenotypic classifications of movement disorders such as Parkinsonian syndromes, chorea, ataxia, and major categories of diseases grouped by gene locus. This book broadly appeals to neurologists, neuroscientists, geneticists, as well as cell and molecular biologists and hematologists. Consistently formatted to present a clinical description of the disorder, followed by an in-depth analysis of the mutation and function of the mutated gene including cellular and animal models Emphasizes the use of DNA tests for each respective disorder Provides up-to-date, easily accessible information for clinicians, geneticists, and neuroscientists
Book Synopsis Never Look Down by : Zachary Weinstein
Download or read book Never Look Down written by Zachary Weinstein and published by . This book was released on 2012-10-31 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: A boy named Jack learns he is diagnosed with dystonia. Never Look Down was written by a mother and son team to help other families impacted by this neurological movement disorder.
Book Synopsis Psychogenic Movement Disorders by : Mark Hallett
Download or read book Psychogenic Movement Disorders written by Mark Hallett and published by Lippincott Williams & Wilkins. This book was released on 2006 with total page 388 pages. Available in PDF, EPUB and Kindle. Book excerpt: This groundbreaking volume is the first text devoted to psychogenic movement disorders. Co-published by Lippincott Williams & Wilkins and the American Academy of Neurology, the book contains the highlights of an international, multidisciplinary conference on these disorders and features contributions from leading neurologists, psychiatrists, psychologists, physiatrists, and basic scientists. Major sections discuss the phenomenology of psychogenic movement disorders from both the neurologist's and the psychiatrist's viewpoint. Subsequent sections examine recent findings on pathophysiology and describe current diagnostic techniques and therapies. Also included are abstracts of 16 seminal free communications presented at the conference.
