Informal Caregivers: From Hidden Heroes to Integral Part of Care

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Author :
Publisher : Springer Nature
ISBN 13 : 3031167457
Total Pages : 219 pages
Book Rating : 4.0/5 (311 download)

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Book Synopsis Informal Caregivers: From Hidden Heroes to Integral Part of Care by : Andreas Charalambous

Download or read book Informal Caregivers: From Hidden Heroes to Integral Part of Care written by Andreas Charalambous and published by Springer Nature. This book was released on 2023-01-05 with total page 219 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book builds on the current trends in informal caregivers’ role in the supportive care of cancer patients (as well as other diseases) across the care continuum covering topics from the healthcare professionals and the users’ perspectives. Informal caregivers are a critical resource to their care recipients and an essential component of the health care system. The book introduces a comprehensive view of the topic and acknowledges the importance and the complexity of caregiving. Here lays one of the uniqueness of this book, which highlights the areas and the ways that for example interventions in specific settings/groups of patients can actually facilitate the caregiving process. The increasing number of care-dependent people, the adoption of the principle “outpatient before inpatient”, the shift of care from inpatient to outpatient and the preference for home care (i.e. majority) are only some of the reasons that contributed to Informal caregiving becoming a central feature of the health care landscape and will become even more prominent in the decades ahead. The book draws on the experts’ high-end, current systematic research evidence and real-life examples on these topics to provide an insightful perspective on undertaking research within this context, and to demonstrate informal caregivers’ impact on patients’ outcomes. The structure of the book provides multiple perspectives to the topic and makes it appealing to a wide range of recipients including the nursing community, clinicians, social workers, researchers, policy makers, technology experts as well as postgraduate students especially to those practicing specifically in supportive care in cancer. The book fills a gap in this field of expertise not only by familiarizing the reader with a wide range of topics to be considered but it also emphasizes on what the developments in the field in the future would need to take into consideration. Finally, current and future studies can be informed from the practices of preceding studies that are incorporated in the book.

Hidden Heroes

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Author :
Publisher : Rand Corporation
ISBN 13 : 0833085581
Total Pages : 258 pages
Book Rating : 4.8/5 (33 download)

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Book Synopsis Hidden Heroes by : Rajeev Ramchand

Download or read book Hidden Heroes written by Rajeev Ramchand and published by Rand Corporation. This book was released on 2014-04-01 with total page 258 pages. Available in PDF, EPUB and Kindle. Book excerpt: "While much has been written about the role of caregiving for the elderly and chronically ill and for children with special needs, little is known about "military caregivers" -- the population of those who care for wounded, ill, and injured military personnel and veterans. These caregivers play an essential role in caring for injured or wounded service members and veterans. This enables those for whom they are caring to live better quality lives, and can result in faster and improved rehabilitation and recovery. Yet playing this role can impose a substantial physical, emotional, and financial toll on caregivers. This report summarizes the results of a study designed to describe the magnitude of military caregiving in the United States today, as well as to identify gaps in the array of programs, policies, and initiatives designed to support military caregivers. Improving military caregivers' well-being and ensuring their continued ability to provide care will require multifaceted approaches to reducing the current burdens caregiving may impose, and bolstering their ability to serve as caregivers more effectively. Given the systematic differences among military caregiver groups, it is also important that tailored approaches meet the unique needs and characteristics of post-9/11 caregivers."--Abstract

Family Care and Social Capital: Transitions in Informal Care

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Author :
Publisher : Springer Science & Business Media
ISBN 13 : 9400768729
Total Pages : 170 pages
Book Rating : 4.4/5 (7 download)

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Book Synopsis Family Care and Social Capital: Transitions in Informal Care by : Patrick Barrett

Download or read book Family Care and Social Capital: Transitions in Informal Care written by Patrick Barrett and published by Springer Science & Business Media. This book was released on 2013-08-04 with total page 170 pages. Available in PDF, EPUB and Kindle. Book excerpt: Becoming a caregiver is increasingly an inevitable experience for many people and, therefore, a likely life transition. Drawing on research and personal experiences of working with family caregivers, this book examines a range of family caregiving situations from across the life course. It seeks to capture the dynamics of caregiving in a number of common situations: caregiving during infancy, for adults who acquire a disability through accidents or illness, for older people with age-related issues, and caregiving by children and adolescent carers and grandparent carers. In drawing attention to key moments of vulnerability faced by family and informal caregivers, and by suggesting how to assist ‘reconnection’ at these moments, the book provides a guide for those working in the area of health, disability and care. Informal care is conceptualised as occurring with the context of personal interrelationships, these being nested within wider kin networks and linked with wider professional formal care networks. Informal care is seen both as an expression of social capital and as an activity that builds social capital. It is an indicator of resources of mutual support within social networks, and it has the effect of adding to the stock of social resources. The book makes a case, therefore, for facilitating the development of social capital by strengthening the capacity of informal caregivers and caregiver groups, and by improving the linkages with formal care organisations.

The Hidden Among the Hidden

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Author :
Publisher : Oxford University Press
ISBN 13 : 0190602325
Total Pages : 193 pages
Book Rating : 4.1/5 (96 download)

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Book Synopsis The Hidden Among the Hidden by : Helen K. Black

Download or read book The Hidden Among the Hidden written by Helen K. Black and published by Oxford University Press. This book was released on 2017 with total page 193 pages. Available in PDF, EPUB and Kindle. Book excerpt: What are the experiences of African-American elder male caregivers? Based on research with twelve African-American caregivers born in the first half of the 20th century, this book captures the complexity and poignancy of the caregiving pilgrimage, and roots men's caregiving narratives within the biographical and historical context of their lives.

Improving Support for America's Hidden Heroes

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Publisher :
ISBN 13 : 9780833097675
Total Pages : 0 pages
Book Rating : 4.0/5 (976 download)

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Book Synopsis Improving Support for America's Hidden Heroes by : Terri Tanielian

Download or read book Improving Support for America's Hidden Heroes written by Terri Tanielian and published by . This book was released on 2017 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Sponsored by the Elizabeth Dole Foundation."

Families Caring for an Aging America

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Author :
Publisher : National Academies Press
ISBN 13 : 0309448093
Total Pages : 367 pages
Book Rating : 4.3/5 (94 download)

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Book Synopsis Families Caring for an Aging America by : National Academies of Sciences, Engineering, and Medicine

Download or read book Families Caring for an Aging America written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-08 with total page 367 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

Forced to Care

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Publisher : Harvard University Press
ISBN 13 : 0674064151
Total Pages : 271 pages
Book Rating : 4.6/5 (74 download)

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Book Synopsis Forced to Care by : Evelyn Nakano Glenn

Download or read book Forced to Care written by Evelyn Nakano Glenn and published by Harvard University Press. This book was released on 2012-03-05 with total page 271 pages. Available in PDF, EPUB and Kindle. Book excerpt: The United States faces a growing crisis in care. The number of people needing care is growing while the ranks of traditional caregivers have shrunk. The status of care workers is a critical concern. Evelyn Nakano Glenn offers an innovative interpretation of care labor in the United States by tracing the roots of inequity along two interconnected strands: unpaid caring within the family; and slavery, indenture, and other forms of coerced labor. By bringing both into the same analytic framework, she provides a convincing explanation of the devaluation of care work and the exclusion of both unpaid and paid care workers from critical rights such as minimum wage, retirement benefits, and workers' compensation. Glenn reveals how assumptions about gender, family, home, civilization, and citizenship have shaped the development of care labor and been incorporated into law and social policies. She exposes the underlying systems of control that have resulted in womenÑespecially immigrants and women of colorÑperforming a disproportionate share of caring labor. Finally, she examines strategies for improving the situation of unpaid family caregivers and paid home healthcare workers. This important and timely book illuminates the source of contradictions between American beliefs about the value and importance of caring in a good society and the exploitation and devalued status of those who actually do the caring.

User Participation In Health And Social Care Research

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Publisher : McGraw-Hill Education (UK)
ISBN 13 : 0335222056
Total Pages : 254 pages
Book Rating : 4.3/5 (352 download)

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Book Synopsis User Participation In Health And Social Care Research by : Nolan, Mike

Download or read book User Participation In Health And Social Care Research written by Nolan, Mike and published by McGraw-Hill Education (UK). This book was released on 2007-10-01 with total page 254 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is a timely book, given the increasing emphasis on user participation in both research and health and social service provision, that can be read in conjunction with a more general book on research..."David Hicks, Liverpool John Moores University, UK User participation in research is still in its relative infancy with many practical, ethical, moral, methodological and philosophical questions unanswered. This text gathers together an international set of authors to explore these issues and begin to forge some practical solutions to each of these concerns. The book includes contributions on the use and application of narrative approaches, intervention and evaluation research, methodological development and quality thresholds. It provides a practical framework for all groups wishing to undertake research based on the principles and values of user participation. The book is structured around ten original case studies which explore the use of participatory methods in practice with a variety of groups across diverse health, social care and community settings. These include older people, including those with dementia, people with learning disability, mental health service users and their carers, and children and young people. Unique and often groundbreaking studies from Australia, Sweden, the UK, and the USA are used to illustrate application of theory to research practice. In addition the text: Considers the issues, challenges and rewards of user participation research Draws on the actual experience of doing research and working with users Includes the voices and contributions of users in reporting research User Participation in Health and Social Care Research: Voices, Values and Evaluationis key reading for students, researchers, practitioners and users themselves wishing to undertake participative research involving service users.

The Best Care Possible

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Publisher : Penguin
ISBN 13 : 1583335129
Total Pages : 338 pages
Book Rating : 4.5/5 (833 download)

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Book Synopsis The Best Care Possible by : Ira Byock

Download or read book The Best Care Possible written by Ira Byock and published by Penguin. This book was released on 2013-03-05 with total page 338 pages. Available in PDF, EPUB and Kindle. Book excerpt: A doctor on the front lines of hospital care illuminates one of the most important and controversial social issues of our time. It is harder to die in this country than ever before. Though the vast majority of Americans would prefer to die at home—which hospice care provides—many of us spend our last days fearful and in pain in a healthcare system ruled by high-tech procedures and a philosophy to “fight disease and illness at all cost.” Dr. Ira Byock, one of the foremost palliative-care physicians in the country, argues that how we die represents a national crisis today. To ensure the best possible elder care, Dr. Byock explains we must not only remake our healthcare system but also move beyond our cultural aversion to thinking about death. The Best Care Possible is a compelling meditation on medicine and ethics told through page-turning life-or-death medical drama. It has the power to lead a new national conversation.

The Future of Nursing

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Publisher : National Academies Press
ISBN 13 : 0309208955
Total Pages : 700 pages
Book Rating : 4.3/5 (92 download)

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Book Synopsis The Future of Nursing by : Institute of Medicine

Download or read book The Future of Nursing written by Institute of Medicine and published by National Academies Press. This book was released on 2011-02-08 with total page 700 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Future of Nursing explores how nurses' roles, responsibilities, and education should change significantly to meet the increased demand for care that will be created by health care reform and to advance improvements in America's increasingly complex health system. At more than 3 million in number, nurses make up the single largest segment of the health care work force. They also spend the greatest amount of time in delivering patient care as a profession. Nurses therefore have valuable insights and unique abilities to contribute as partners with other health care professionals in improving the quality and safety of care as envisioned in the Affordable Care Act (ACA) enacted this year. Nurses should be fully engaged with other health professionals and assume leadership roles in redesigning care in the United States. To ensure its members are well-prepared, the profession should institute residency training for nurses, increase the percentage of nurses who attain a bachelor's degree to 80 percent by 2020, and double the number who pursue doctorates. Furthermore, regulatory and institutional obstacles-including limits on nurses' scope of practice-should be removed so that the health system can reap the full benefit of nurses' training, skills, and knowledge in patient care. In this book, the Institute of Medicine makes recommendations for an action-oriented blueprint for the future of nursing.

Caring for our future

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Publisher : The Stationery Office
ISBN 13 : 9780101837828
Total Pages : 72 pages
Book Rating : 4.8/5 (378 download)

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Book Synopsis Caring for our future by : Great Britain: Department of Health

Download or read book Caring for our future written by Great Britain: Department of Health and published by The Stationery Office. This book was released on 2012-07-11 with total page 72 pages. Available in PDF, EPUB and Kindle. Book excerpt: Care and support affects a large number of people: eight out of 10 people aged 65 will need some care and support in their later years; some people have impairments from birth or develop them during their working life; some 5 million people care for a friend or relative, some for more than 50 hours a week. The current system does not offer enough support until a crisis point is reached, the quality of care is variable and inconsistent, and the growing and ageing population is only going to increase the pressure. Consequently, two core principles lie at the heart of this White Paper. The first is that individuals, communities and Government should do everything possible to prevent, postpone and minimise people's need for formal care and support. The system should be built around the promotion of people's independence and well-being. The second principle is that people should be in control of their own care and support, with personal budgets and direct payments, backed by clear, comparable information and advice that will allow individuals and their carers to make the choices that are right for them. This paper sets out the principles and approach, with sections covering: strengthening support within communities; housing; better information and advice; assessment, eligibility and portability for people who use care services; carers' support; defining high-quality care; improving quality; keeping people safe; a better local care market; workforce; personalised care and support; integration and joined-up care.

Building the Case for Health Literacy

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Author :
Publisher : National Academies Press
ISBN 13 : 0309474299
Total Pages : 171 pages
Book Rating : 4.3/5 (94 download)

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Book Synopsis Building the Case for Health Literacy by : National Academies of Sciences, Engineering, and Medicine

Download or read book Building the Case for Health Literacy written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2018-08-26 with total page 171 pages. Available in PDF, EPUB and Kindle. Book excerpt: The field of health literacy has evolved from one focused on individuals to one that recognizes that health literacy is multidimensional. While communicating in a health literate manner is important for everyone, it is particularly important when communicating with those with limited health literacy who also experience more serious medication errors, higher rates of hospitalization and use of the emergency room, poor health outcomes, and increased mortality. Over the past decade, research has shown that health literacy interventions can significantly impact various areas including health care costs, outcomes, and health disparities. To understand the extent to which health literacy has been shown to be effective at contributing to the Quadruple Aim of improving the health of communities, providing better care, providing affordable care, and improving the experience of the health care team, the National Academies of Sciences, Engineering, and Medicine convened a public workshop on building the case for health literacy. This publication summarizes the presentations and discussions from the workshop, and highlights important lessons about the role of health literacy in meeting the Quadruple Aim, case studies of organizations that have adopted health literacy, and discussions among the different stakeholders involved in making the case for health literacy.

Patient Safety and Quality

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Author :
Publisher : Department of Health and Human Services
ISBN 13 :
Total Pages : 592 pages
Book Rating : 4.:/5 (318 download)

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Book Synopsis Patient Safety and Quality by : Ronda Hughes

Download or read book Patient Safety and Quality written by Ronda Hughes and published by Department of Health and Human Services. This book was released on 2008 with total page 592 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/

TIP 35: Enhancing Motivation for Change in Substance Use Disorder Treatment (Updated 2019)

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Author :
Publisher : Lulu.com
ISBN 13 : 1794755136
Total Pages : 208 pages
Book Rating : 4.7/5 (947 download)

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Book Synopsis TIP 35: Enhancing Motivation for Change in Substance Use Disorder Treatment (Updated 2019) by : U.S. Department of Health and Human Services

Download or read book TIP 35: Enhancing Motivation for Change in Substance Use Disorder Treatment (Updated 2019) written by U.S. Department of Health and Human Services and published by Lulu.com. This book was released on 2019-11-19 with total page 208 pages. Available in PDF, EPUB and Kindle. Book excerpt: Motivation is key to substance use behavior change. Counselors can support clients' movement toward positive changes in their substance use by identifying and enhancing motivation that already exists. Motivational approaches are based on the principles of person-centered counseling. Counselors' use of empathy, not authority and power, is key to enhancing clients' motivation to change. Clients are experts in their own recovery from SUDs. Counselors should engage them in collaborative partnerships. Ambivalence about change is normal. Resistance to change is an expression of ambivalence about change, not a client trait or characteristic. Confrontational approaches increase client resistance and discord in the counseling relationship. Motivational approaches explore ambivalence in a nonjudgmental and compassionate way.

Understanding and Supporting 'Families with Complex Needs'

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Author :
Publisher : MDPI
ISBN 13 : 3038421596
Total Pages : 215 pages
Book Rating : 4.0/5 (384 download)

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Book Synopsis Understanding and Supporting 'Families with Complex Needs' by : Nathan Hughes

Download or read book Understanding and Supporting 'Families with Complex Needs' written by Nathan Hughes and published by MDPI. This book was released on 2018-10-01 with total page 215 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is a printed edition of the Special Issue "Understanding and Supporting 'Families with Complex Needs'" that was published in Social Sciences

Global Health Governance

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Publisher : Routledge
ISBN 13 : 1136586512
Total Pages : 200 pages
Book Rating : 4.1/5 (365 download)

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Book Synopsis Global Health Governance by : Sophie Harman

Download or read book Global Health Governance written by Sophie Harman and published by Routledge. This book was released on 2012-03-15 with total page 200 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the light of scares about potential pandemics such as swine fever and avian flu, the issue of global health and its governance is of increasing concern to scholars and practitioners of medicine, public health, social work, and international politics alike. Providing a concise and informative introduction to how global health is governed, this book: Explores the various ways in which we understand global health governance Explains the "nuts and bolts" of the traditional institutions of global health governance, highlights key frameworks and treaties and their relative successes and failings Examines the actors in global health governance, their purpose, influence and impact Offers an in depth analysis of the effectiveness of global health interventions, focusing particularly on HIV/AIDS, tuberculosis and malaria. Highlighting the wide variety of actors, issues and approaches involved, this work shows the complex nature of global health governance, forcing the reader to examine who or what really governs global health, to what outcome, and for whom.

Plugged in

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Author :
Publisher : Yale University Press
ISBN 13 : 0300218877
Total Pages : 341 pages
Book Rating : 4.3/5 (2 download)

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Book Synopsis Plugged in by : Patti M. Valkenburg

Download or read book Plugged in written by Patti M. Valkenburg and published by Yale University Press. This book was released on 2017-01-01 with total page 341 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cover -- Half-title -- Title -- Copyright -- Dedication -- Contents -- Preface -- 1 Youth and Media -- 2 Then and Now -- 3 Themes and Theoretical Perspectives -- 4 Infants, Toddlers, and Preschoolers -- 5 Children -- 6 Adolescents -- 7 Media and Violence -- 8 Media and Emotions -- 9 Advertising and Commercialism -- 10 Media and Sex -- 11 Media and Education -- 12 Digital Games -- 13 Social Media -- 14 Media and Parenting -- 15 The End -- Notes -- Acknowledgments -- Index -- A -- B -- C -- D -- E -- F -- G -- H -- I -- J -- K -- L -- M -- N -- O -- P -- Q -- R -- S -- T -- U -- V -- W -- X -- Y -- Z