Family Needs of Parents of Children and Youth with Cerebral Palsy

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Author :
Publisher : Universal-Publishers
ISBN 13 : 1599423588
Total Pages : pages
Book Rating : 4.5/5 (994 download)

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Book Synopsis Family Needs of Parents of Children and Youth with Cerebral Palsy by : Nihad A. Almasri

Download or read book Family Needs of Parents of Children and Youth with Cerebral Palsy written by Nihad A. Almasri and published by Universal-Publishers. This book was released on 2010-08-30 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: It is important for professionals who provide medical, rehabilitation, educational, and community services for children and youth with cerebral palsy to provide a quality medical home, family-centered, and needs-based services to address their needs and improve child and family well-being. Knowledge regarding determinants and unique profiles of needs for families of children and youth with cerebral palsy is limited. The aims of this research were to (1) test structural equation models of determinants of three types of family needs of parents of children and youth with cerebral palsy; (2) identify and describe unique profiles of family needs; and (3) examine whether profiles of needs are differentiated based on child, family, and service characteristics. Participants were 579 parents of children and youth with cerebral palsy. Children/youth and their parents completed a modified version of the Family Needs Survey, Family Environment Scale, Coping Inventory, Children's Assessment of Participation and Enjoyment, Measure of Processes of Care, and Services questionnaire. Research assistants determined the Gross Motor Function Classification System levels of the children. The structural models explained 23% of variance in needs related to child condition, 43% of variance in needs related to community and financial resources, and 33% of variance in needs related to family functioning. The determinants of the three models included different combinations of services (accessibility, coordination, processes), family (relationships, income), and child (gross motor function, adaptive behavior, communication problems) characteristics. K-means cluster analysis indicated four unique profiles of needs: Low Needs, Needs Related to Child Health Condition, Needs Related to Community and Financial Resources, and High Needs. Profile membership was differentiated based on child gross motor function and adaptive behavior, family relationships and income, and access to and coordination of services. Families who were included in the profile of low needs commonly reported accessible, coordinated, and family-centered care. The results emphasize the importance of providing medical and family-centered services to address the unique needs of families of children and youth with cerebral palsy. Service providers are encouraged to engage families in expressing their needs, collaborate with families in identifying resources to meet needs, and guide families in navigating complex service systems to address needs.

Family Needs of Parents of Children and Youth with Cerebral Palsy

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Author :
Publisher : LAP Lambert Academic Publishing
ISBN 13 : 9783659382857
Total Pages : 184 pages
Book Rating : 4.3/5 (828 download)

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Book Synopsis Family Needs of Parents of Children and Youth with Cerebral Palsy by : Nihad Almasri

Download or read book Family Needs of Parents of Children and Youth with Cerebral Palsy written by Nihad Almasri and published by LAP Lambert Academic Publishing. This book was released on 2013 with total page 184 pages. Available in PDF, EPUB and Kindle. Book excerpt: The aim of this book is to identify child, family, and services determinants of family needs for child health, financial, and family functioning resources. In addition to describing profiles of family needs for parents of children and youth with cerebral palsy. Results of this research is discussed and important implications for planning family-centered services that are specific and cost effective are presented.

Children and Youth with Complex Cerebral Palsy

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Author :
Publisher : Mac Keith Press
ISBN 13 : 9781909962989
Total Pages : 0 pages
Book Rating : 4.9/5 (629 download)

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Book Synopsis Children and Youth with Complex Cerebral Palsy by : Laurie Glader

Download or read book Children and Youth with Complex Cerebral Palsy written by Laurie Glader and published by Mac Keith Press. This book was released on 2019-02-26 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Children with complex cerebral palsy (typically, but not always, GMFCS levels IV and V) require skilled management and extensive expertise which can be overwhelming or intimidating for many clinical practitioners. This book explores management of the many medical comorbidities these children encounter, including orthopedic concerns, mobility and equipment needs, cognition and sensory impairment, difficult behaviors, seizures, respiratory complications and nutritional challenges, among many others. Summary points at the end of each chapter provide at-a-glance access to key recommendations. In addition, an Appendix provides adaptable care tools to guide clinicians in evaluation, preventive care and crisis management. Importantly, the book includes contributions from parents of children with cerebral palsy and youth with cerebral palsy, providing unique and critical wisdom for family-centred care. Parents and families of children and youth with complex cerebral palsy will particularly appreciate the inclusion of chapters on adolescence, transition to adulthood, and growing up, growing well with cerebral palsy.

Parenting Matters

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Author :
Publisher : National Academies Press
ISBN 13 : 0309388570
Total Pages : 525 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Parenting Matters by : National Academies of Sciences, Engineering, and Medicine

Download or read book Parenting Matters written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-21 with total page 525 pages. Available in PDF, EPUB and Kindle. Book excerpt: Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.

Cerebral Palsy

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Author :
Publisher : JHU Press
ISBN 13 : 0801883547
Total Pages : 537 pages
Book Rating : 4.8/5 (18 download)

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Book Synopsis Cerebral Palsy by : Freeman Miller

Download or read book Cerebral Palsy written by Freeman Miller and published by JHU Press. This book was released on 2006-05-08 with total page 537 pages. Available in PDF, EPUB and Kindle. Book excerpt: When a child has a health problem, parents want answers. But when a child has cerebral palsy, the answers don't come quickly. A diagnosis of this complex group of chronic conditions affecting movement and coordination is difficult to make and is typically delayed until the child is eighteen months old. Although the condition may be mild or severe, even general predictions about long-term prognosis seldom come before the child's second birthday. Written by a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children, this authoritative resource provides parents and families with vital information that can help them cope with uncertainty. Thoroughly updated and revised to incorporate the latest medical advances, the second edition is a comprehensive guide to cerebral palsy. The book is organized into three parts. In the first, the authors describe specific patterns of involvement (hemiplegia, diplegia, quadriplegia), explain the medical and psychosocial implications of these conditions, and tell parents how to be effective advocates for their child. In the second part, the authors provide a wealth of practical advice about caregiving from nutrition to mobility. Part three features an extensive alphabetically arranged encyclopedia that defines and describes medical terms and diagnoses, medical and surgical procedures, and orthopedic and other assistive devices. Also included are lists of resources and recommended reading.

Children with Cerebral Palsy

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Publisher :
ISBN 13 : 9780933149823
Total Pages : 0 pages
Book Rating : 4.1/5 (498 download)

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Book Synopsis Children with Cerebral Palsy by : Elaine Geralis

Download or read book Children with Cerebral Palsy written by Elaine Geralis and published by . This book was released on 1998 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The future is brighter then ever for children with cerebral palsy -- the most common developmental disability among young people today. With advances in medicine, early intervention, and therapy, these children can maximise their potential and lead healthy, rewarding lives. But perhaps the most important influence of all comes from parents who provide constant support and encouragement. This is essential reading for all parents who want to learn about cerebral palsy and how it will affect their child and family.

Ethics in Child Health

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Publisher : Mac Keith Press
ISBN 13 : 9781909962637
Total Pages : 0 pages
Book Rating : 4.9/5 (626 download)

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Book Synopsis Ethics in Child Health by : Peter L. Rosenbaum

Download or read book Ethics in Child Health written by Peter L. Rosenbaum and published by Mac Keith Press. This book was released on 2016-10-17 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Have you ever Wondered how to deal with a family that repeatedly fails to keep clinic appointments? Disagreed with colleagues over a proposed course of treatment for a child? Considered ways to 'bump' a child on a waiting to speed up their assessment? These are a few of the scenarios faced by clinicians in neurodisability on a daily basis. Ethics in Child Health explores the ethical dimensions of these issues that have either been ignored or not recognised. Each chapter is built around a scenario familiar to clinicians and is discussed with respect to how ethical principles can be utilised to inform decision-making. Useful "Themes for Discussion" are provided at the end of each chapter to help professionals and students develop practical ethical thinking. Ethics in Child Health offers a set of principles that clinicians, social workers and policy-makers can utilise in their respective spheres of influence.

The Parent to Parent Handbook

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Author :
Publisher :
ISBN 13 :
Total Pages : 418 pages
Book Rating : 4.E/5 ( download)

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Book Synopsis The Parent to Parent Handbook by : Betsy Santelli

Download or read book The Parent to Parent Handbook written by Betsy Santelli and published by . This book was released on 2001 with total page 418 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this comprehensive book, you'll learn how to develop and maintain a strong local Parent to Parent program that individually matches "veteran" supporting parents with those who are new to the challenges of caring for a child with a disability.

Parents as Care Managers

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Author :
Publisher : Routledge
ISBN 13 : 0429813449
Total Pages : 472 pages
Book Rating : 4.4/5 (298 download)

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Book Synopsis Parents as Care Managers by : Gillian Bridge

Download or read book Parents as Care Managers written by Gillian Bridge and published by Routledge. This book was released on 2019-07-23 with total page 472 pages. Available in PDF, EPUB and Kindle. Book excerpt: First published in 1999, this volume examines the inclusion of disabled children as a category of children in need under the Children Act 1989 and as eligible for assessments of need under the NHS and Community Care Act 1990 has drawn renewed attention to the plight of these children and their families. This book presents the findings from a study of parents whose child has cerebral palsy. The research undertaken at the cost of social policy change focuses on the apparent gap between the well-argued proposals for community care and the experiences of carers. A bewildering picture emerges of inadequate services and treatments from the health, education and social services in the public, voluntary and private sectors. Parents experience isolation and stress as they explore ways to improve the quality of their children’s lives by experimenting with unregulated and under-researched treatments for an incurable physical condition. The conclusion that there has been deterioration in provision for these families is a serious indictment on current social policy direction.

Child Parent Relationship Therapy (CPRT) Treatment Manual

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Author :
Publisher : Routledge
ISBN 13 : 1136659536
Total Pages : 356 pages
Book Rating : 4.1/5 (366 download)

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Book Synopsis Child Parent Relationship Therapy (CPRT) Treatment Manual by : Sue C. Bratton

Download or read book Child Parent Relationship Therapy (CPRT) Treatment Manual written by Sue C. Bratton and published by Routledge. This book was released on 2006-07-26 with total page 356 pages. Available in PDF, EPUB and Kindle. Book excerpt: This manual is the highly recommended companion to CPRT: A 10-Session Filial Therapy Model. Accompanied by a CD-Rom of training materials, which allows for ease of reproduction and enhanced usability, the workbook will help the facilitator of the filial training and will provide a much needed educational outline to allow filial therapists to pass their knowledge on to parents. The Treatment Manual provides a comprehensive outline and detailed guidelines for each of the ten sessions, facilitating the training process for both the parents and the therapist. The book contains a designed structure for the therapy training described in the book, with child-centered play therapy principles and skills, such as reflective listening, recognizing and responding to children’s feelings, therapeutic limit setting, building children’s self-esteem, and structuring required weekly play sessions with their children using a special kit of selected toys. Bratton and her co-authors recommend teaching aids, course materials, and activities for each session, as well as worksheets for parents to complete between sessions. By using this workbook and CD-Rom to accompany the CPRT book, filial therapy leaders will have a complete package for use in training parents to act as therapeutic agents with their own children. They provide the therapist with a complete package for training parents to act as therapeutic agents with their own children.

Little Children, Big Needs

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Author :
Publisher :
ISBN 13 :
Total Pages : 280 pages
Book Rating : 4.3/5 ( download)

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Book Synopsis Little Children, Big Needs by : Don Weinhouse

Download or read book Little Children, Big Needs written by Don Weinhouse and published by . This book was released on 1994 with total page 280 pages. Available in PDF, EPUB and Kindle. Book excerpt: Geared especially for parents, Little Children, Big Needs is also an excellent resource for professionals in early childhood education, special education, pediatrics, general medicine, nursing, occupational therapy, physical therapy, speech and language pathology, audiology, day care, social work, individual/family counseling, and recreation therapy. The extensive range of topics covered in Little Children, Big Needs ensures that this book will remain a relevant reference for many years to come.

Children with Cerebral Palsy

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Publisher :
ISBN 13 : 9780933149151
Total Pages : 434 pages
Book Rating : 4.1/5 (491 download)

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Book Synopsis Children with Cerebral Palsy by : Elaine Geralis

Download or read book Children with Cerebral Palsy written by Elaine Geralis and published by . This book was released on 1991-01 with total page 434 pages. Available in PDF, EPUB and Kindle. Book excerpt: CHILDREN WITH CEREBRAL PALSY is the first book that families of children with cerebral palsy should read. The second edition offers a complete spectrum of information and advice about cerebral palsy and its effect on development and education during a child's first six years. Parents' statements at the end of each chapter provide the reader with insight and perspective on how other families cope.

America's Children

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Publisher : National Academies Press
ISBN 13 : 0309173930
Total Pages : 216 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis America's Children by : Institute of Medicine and National Research Council

Download or read book America's Children written by Institute of Medicine and National Research Council and published by National Academies Press. This book was released on 1998-10-27 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: America's Children is a comprehensive, easy-to-read analysis of the relationship between health insurance and access to care. The book addresses three broad questions: How is children's health care currently financed? Does insurance equal access to care? How should the nation address the health needs of this vulnerable population? America's Children explores the changing role of Medicaid under managed care; state-initiated and private sector children's insurance programs; specific effects of insurance status on the care children receive; and the impact of chronic medical conditions and special health care needs. It also examines the status of "safety net" health providers, including community health centers, children's hospitals, school-based health centers, and others and reviews the changing patterns of coverage and tax policy options to increase coverage of private-sector, employer-based health insurance. In response to growing public concerns about uninsured children, last year Congress voted to provide $24 billion over five years for new state insurance initiatives. This volume will serve as a primer for concerned federal policymakers and regulators, state agency officials, health plan decisionmakers, health care providers, children's health advocates, and researchers.

Meanings Underlying Parent Narratives of Living with and Caring for Their Preadolescent Child with Cerebral Palsy

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Author :
Publisher :
ISBN 13 :
Total Pages : 394 pages
Book Rating : 4.:/5 (319 download)

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Book Synopsis Meanings Underlying Parent Narratives of Living with and Caring for Their Preadolescent Child with Cerebral Palsy by : Nicola Dominique Rodrigues

Download or read book Meanings Underlying Parent Narratives of Living with and Caring for Their Preadolescent Child with Cerebral Palsy written by Nicola Dominique Rodrigues and published by . This book was released on 2007 with total page 394 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Family-centered Care for Children Needing Specialized Health and Developmental Services

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Author :
Publisher :
ISBN 13 : 9780937821879
Total Pages : 120 pages
Book Rating : 4.8/5 (218 download)

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Book Synopsis Family-centered Care for Children Needing Specialized Health and Developmental Services by : Terri L. Shelton

Download or read book Family-centered Care for Children Needing Specialized Health and Developmental Services written by Terri L. Shelton and published by . This book was released on 1994 with total page 120 pages. Available in PDF, EPUB and Kindle. Book excerpt: This monograph articulates eight key elements of a family-centered approach to policy and practice for children needing specialized health and developmental services. An introductory section reviews the development of the first edition of the monograph in 1987 and its widespread dissemination and acceptance since that time. Each of the following eight chapters then addresses one of the following elements: (1) recognition that the family is the constant in the child's life, while the service systems and support personnel within those systems fluctuate; (2) facilitation of family/professional collaboration at all levels of hospital, home, and community care; (3) exchange of complete and unbiased information between families and professionals in a supportive manner; (4) respect for cultural diversity within and across all families including ethnic, racial, spiritual, social, economic, educational, and geographic diversity; (5) recognition of different methods of coping and promotion of programs providing developmental, educational, emotional, environmental, and financial supports to families; (6) encouragement of family-to-family support and networking; (7) provision of hospital, home, and community service and support systems that are flexible, accessible, and comprehensive in meeting family-identified needs; and (8) appreciation of families as families, recognizing their wide range of strengths, concerns, emotions, and aspirations beyond their need for specialized health and developmental services and support. Checklists for evaluating these elements are attached. (Contains 160 references.) (DB)

Cluster Analysis for Researchers

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Author :
Publisher : Lulu.com
ISBN 13 : 1411606175
Total Pages : 334 pages
Book Rating : 4.4/5 (116 download)

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Book Synopsis Cluster Analysis for Researchers by : Charles Romesburg

Download or read book Cluster Analysis for Researchers written by Charles Romesburg and published by Lulu.com. This book was released on 2004 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt: Back in print at a good price. To see the many websites referencing this book, in Google enter "cluster analysis" (in quotes) and Romesburg. Headlines of 5-star reviews on Amazon.com: "A very clear 'how to' book on cluster analysis" (C. Fielitz, Bristol, TN); "An excellent introduction to cluster analysis" (T. W. Powell, Shreveport, LA). A recent (2004) review in Journal of Classification (21:279-283) says: "We should be grateful to the author for his insistence in bringing forth important issues, which have not got yet that level of attention they deserve. I wish this journal could devote more efforts in promoting the scientific inquiry and discussions of methodology of clustering in scientific research [as Cluster Analysis for Researchers does]." To see or search inside the book, go to www.google.com, type in the book's title, and click on it when it comes up (or copy and paste in your browser's window the following URL: http://print.google.com/print?isbn=1411606175 ).

Out of My Mind

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Author :
Publisher : Simon and Schuster
ISBN 13 : 1416971718
Total Pages : 320 pages
Book Rating : 4.4/5 (169 download)

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Book Synopsis Out of My Mind by : Sharon M. Draper

Download or read book Out of My Mind written by Sharon M. Draper and published by Simon and Schuster. This book was released on 2012-05 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: Considered by many to be mentally retarded, a brilliant, impatient fifth-grader with cerebral palsy discovers a technological device that will allow her to speak for the first time.