Families Living With Chronic Illness And Disability

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Families Living with Chronic Illness and Disability

Author : Paul W. Power
Publisher : Springer Publishing Company
ISBN 13 : 9780826155818
Total Pages : 308 pages
Book Rating : 4.1/5 (558 download)

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Book Synopsis Families Living with Chronic Illness and Disability by : Paul W. Power

Download or read book Families Living with Chronic Illness and Disability written by Paul W. Power and published by Springer Publishing Company. This book was released on 2004-07-20 with total page 308 pages. Available in PDF, EPUB and Kindle. Book excerpt: To help families manage an intense medical-related event, Power and Dell Orto propose that a family-oriented life and living perspective should be combined with a family intervention philosophy. Stressing acknowledgment of the adverse effects of the illness and an affirmation approach to family struggle and opportunities, the authors explore issues relevant to treatment, family adaptation, quality of life, and family survival. A unique feature of the text includes the organization of the chapters around thought-provoking personal statements followed by questions/experiential tasks designed to stimulate thought and discussion. This book is must reading for health and allied health professionals including physicians, nurses, rehabilitation counselors, social workers, psychologists, and family advocates and will serve as a useful textbook for professionals-in-training.

Living with Chronic Illness and Disability

Author : Esther Chang
Publisher : Elsevier Health Sciences
ISBN 13 : 0729588270
Total Pages : 514 pages
Book Rating : 4.7/5 (295 download)

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Book Synopsis Living with Chronic Illness and Disability by : Esther Chang

Download or read book Living with Chronic Illness and Disability written by Esther Chang and published by Elsevier Health Sciences. This book was released on 2021-10-12 with total page 514 pages. Available in PDF, EPUB and Kindle. Book excerpt: Fully updated and refreshed to reflect current knowledge, data and perspectives

Handbook of Health Social Work

Author : Sarah Gehlert
Publisher : John Wiley & Sons
ISBN 13 : 0471758884
Total Pages : 769 pages
Book Rating : 4.4/5 (717 download)

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Book Synopsis Handbook of Health Social Work by : Sarah Gehlert

Download or read book Handbook of Health Social Work written by Sarah Gehlert and published by John Wiley & Sons. This book was released on 2006-03-20 with total page 769 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Handbook of Health Social Work provides a comprehensive and evidence-based overview of contemporary social work practice in health care. Written from a wellness perspective, the chapters cover the spectrum of health social work settings with contributions from a wide range of experts. The resulting resource offers both a foundation for social work practice in health care and a guide for strategy, policy, and program development in proactive and actionable terms. Three sections present the material: The Foundations of Social Work in Health Care provides information that is basic and central to the operations of social workers in health care, including conceptual underpinnings; the development of the profession; the wide array of roles performed by social workers in health care settings; ethical issues and decision - making in a variety of arenas; public health and social work; health policy and social work; and the understanding of community factors in health social work. Health Social Work Practice: A Spectrum of Critical Considerations delves into critical practice issues such as theories of health behavior; assessment; effective communication with both clients and other members of health care teams; intersections between health and mental health; the effects of religion and spirituality on health care; family and health; sexuality in health care; and substance abuse. Health Social Work: Selected Areas of Practice presents a range of examples of social work practice, including settings that involve older adults; nephrology; oncology; chronic diseases such as diabetes, heart disease, and HIV/AIDS; genetics; end of life care; pain management and palliative care; and alternative treatments and traditional healers. The first book of its kind to unite the entire body of health social work knowledge, the Handbook of Health Social Work is a must-read for social work educators, administrators, students, and practitioners.

Living Well with Chronic Illness

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309221277
Total Pages : 350 pages
Book Rating : 4.3/5 (92 download)

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Book Synopsis Living Well with Chronic Illness by : Institute of Medicine

Download or read book Living Well with Chronic Illness written by Institute of Medicine and published by National Academies Press. This book was released on 2011-06-30 with total page 350 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the United States, chronic diseases currently account for 70 percent of all deaths, and close to 48 million Americans report a disability related to a chronic condition. Today, about one in four Americans have multiple diseases and the prevalence and burden of chronic disease in the elderly and racial/ethnic minorities are notably disproportionate. Chronic disease has now emerged as a major public health problem and it threatens not only population health, but our social and economic welfare. Living Well with Chronic Disease identifies the population-based public health actions that can help reduce disability and improve functioning and quality of life among individuals who are at risk of developing a chronic disease and those with one or more diseases. The book recommends that all major federally funded programmatic and research initiatives in health include an evaluation on health-related quality of life and functional status. Also, the book recommends increasing support for implementation research on how to disseminate effective longterm lifestyle interventions in community-based settings that improve living well with chronic disease. Living Well with Chronic Disease uses three frameworks and considers diseases such as heart disease and stroke, diabetes, depression, and respiratory problems. The book's recommendations will inform policy makers concerned with health reform in public- and private-sectors and also managers of communitybased and public-health intervention programs, private and public research funders, and patients living with one or more chronic conditions.

Estate Planning for People with a Chronic Condition or Disability

Author : Martin M. Shenkman, CPA, MBA, JD
Publisher : Demos Medical Publishing
ISBN 13 : 1935281070
Total Pages : 227 pages
Book Rating : 4.9/5 (352 download)

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Book Synopsis Estate Planning for People with a Chronic Condition or Disability by : Martin M. Shenkman, CPA, MBA, JD

Download or read book Estate Planning for People with a Chronic Condition or Disability written by Martin M. Shenkman, CPA, MBA, JD and published by Demos Medical Publishing. This book was released on 2009-03-26 with total page 227 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is the first comprehensive estate-planning guide for those living with a chronic disease or disability. This book is targeted at those planning for the disbursement of their estates, no matter their size. Estate-planning is crucial for those living with a chronic disease or disability: individuals must express their preferences whether to receive long-term care at home rather than in a nursing home in the event that they become more disabled, and it is more important for one who has a chronic illness to name a power of attorney. Estate Planning for People with a Chronic Condition or Disability covers all of those topics plus: How to write your will How to determine how much life insurance your family needs How to figure out whether you need a living trust Learn about powers of attorney When to work with a lawyer, if you need to The book also includes downloadable sample forms for: Power of Attorney Living Will Designation of Proxy for Financial and Health Decisions

Helping Couples and Families Navigate Illness and Disability

Author : John S. Rolland
Publisher : Guilford Publications
ISBN 13 : 1462534953
Total Pages : 417 pages
Book Rating : 4.4/5 (625 download)

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Book Synopsis Helping Couples and Families Navigate Illness and Disability by : John S. Rolland

Download or read book Helping Couples and Families Navigate Illness and Disability written by John S. Rolland and published by Guilford Publications. This book was released on 2018-04-20 with total page 417 pages. Available in PDF, EPUB and Kindle. Book excerpt: Couples and families face daunting challenges as they cope with serious illness and disability. This book gives clinicians a roadmap for helping affected individuals and their loved ones live well with a wide range of child, adult, and later-life conditions. John S. Rolland describes ways to intervene with emerging challenges over the course of long-term or life-threatening disorders. Using vivid case examples, he illustrates how clinicians can help families harness their strengths for positive adaptation and relational growth. Rolland's integrated systemic approach is useful for preventive screening, consultations, brief counseling, more intensive therapy, and multifamily groups, across health care settings and disciplines. This book significantly advances the clinical utility of Rolland?s earlier landmark volume, Families, Illness, and Disability.

When Your Child Has a Chronic Medical Illness

Author : Frank J. Sileo
Publisher : American Psychological Association (APA)
ISBN 13 : 9781433833816
Total Pages : 419 pages
Book Rating : 4.8/5 (338 download)

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Book Synopsis When Your Child Has a Chronic Medical Illness by : Frank J. Sileo

Download or read book When Your Child Has a Chronic Medical Illness written by Frank J. Sileo and published by American Psychological Association (APA). This book was released on 2021-01-26 with total page 419 pages. Available in PDF, EPUB and Kindle. Book excerpt: Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. When you're focused on ensuring your child gets the best possible treatments for their symptoms, it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.

Living Well at the End of Life

Author : Joanne Lynn
Publisher : RAND Corporation
ISBN 13 :
Total Pages : 32 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Living Well at the End of Life by : Joanne Lynn

Download or read book Living Well at the End of Life written by Joanne Lynn and published by RAND Corporation. This book was released on 2003 with total page 32 pages. Available in PDF, EPUB and Kindle. Book excerpt: Self-care deficits and a slowly dwindling course to death, which usually results from frailty or dementia. Effective and reliable care for persons coming to the end of life will require changes in the organization and financing of care to match these trajectories, as well as compassionate and skillful clinicians. (Available from the publisher or libraries holding the journal.).

Families Caring for an Aging America

Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309448069
Total Pages : 367 pages
Book Rating : 4.3/5 (94 download)

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Book Synopsis Families Caring for an Aging America by : National Academies of Sciences, Engineering, and Medicine

Download or read book Families Caring for an Aging America written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-12-08 with total page 367 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

Illness Behavior

Author : Sean McHugh
Publisher : Springer Science & Business Media
ISBN 13 : 1468452576
Total Pages : 421 pages
Book Rating : 4.4/5 (684 download)

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Book Synopsis Illness Behavior by : Sean McHugh

Download or read book Illness Behavior written by Sean McHugh and published by Springer Science & Business Media. This book was released on 2012-12-06 with total page 421 pages. Available in PDF, EPUB and Kindle. Book excerpt: In August, 1985, the 2nd International Conference on Illness Behaviour was held in Toronto, Ontario, Canada. The first International Conference took place one year previous in Adelaide, South Australia, Australia. This book is based on the proceedings of the second conference. The purpose behind this conference was to facilitate the development of a single integrated model to account for illness experience and presentation. A major focus of the conference was to outline methodological issues related to current behaviour research. A multidiscipl~nary approach was emphasized because of the bias that collaborative efforts are likely to be the most successful in achieving greater understanding of illness behaviour. Significant advances in our knowledge are occurring in all areas of the biological and social sciences, albeit more slowly in the latter areas. Marked specialization in each of these areas has lead to greater difficulty in integrating new knowledge with that of other areas and the development of a meaningful cohesive model to which all can relate. Thus there is a major need for forums such as that provided by this conference.

Extreme Parenting

Author : Sharon Dempsey
Publisher : Jessica Kingsley Publishers
ISBN 13 : 184642772X
Total Pages : 211 pages
Book Rating : 4.8/5 (464 download)

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Book Synopsis Extreme Parenting by : Sharon Dempsey

Download or read book Extreme Parenting written by Sharon Dempsey and published by Jessica Kingsley Publishers. This book was released on 2008-03-15 with total page 211 pages. Available in PDF, EPUB and Kindle. Book excerpt: [A] valuable addition to the literature on chronic paediatric illness... The book provides an in depth understanding of the path through chronic illness, illustrating the obvious effects on the child, but also the parents, siblings and the family as a whole across the spectrum from the psychological and social to the physical... There is much to be learnt from this book and it deserves careful reading.' - from the Foreword by Hilton Davis, Emeritus Professor of Child Health Psychology, King's College London Parents of children with chronic illnesses experience 'extreme parenting'. Parenting under extreme circumstances, like an extreme sport, challenges us to find our true strengths, to push ourselves physically and emotionally. This book is a guide and a source of support for parents of children with long-term illnesses. Sharon Dempsey argues that by helping parents to cope with their child's condition we are ultimately helping the child, and that parents are better able to live a full, enjoyable life if they have an awareness of strategies and knowledge to cope with the difficulties of dealing with their child with a chronic illness. The guide is packed with practical advice, models of exploration and lists of action points, and will empower parents to be good advocates for their children. It will also provide health professionals with invaluable insights into the demands of living with chronic illness.

Coping with Chronic Illness and Disability

Author : Erin Martz
Publisher : Springer Science & Business Media
ISBN 13 : 0387486704
Total Pages : 437 pages
Book Rating : 4.3/5 (874 download)

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Book Synopsis Coping with Chronic Illness and Disability by : Erin Martz

Download or read book Coping with Chronic Illness and Disability written by Erin Martz and published by Springer Science & Business Media. This book was released on 2007-09-23 with total page 437 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book synthesizes the expanding literature on coping styles and strategies by analyzing how individuals with CID face challenges, find and use their strengths, and alter their environment to fit their life-changing realities. The book includes up-to-date information on coping with high-profile conditions, such as cancer, heart disease, diabetes, arthritis, spinal cord injuries, and traumatic brain injury, in-depth coverage of HIV/AIDS, chronic pain, and severe mental illness, and more.

Pain and Disability

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309037379
Total Pages : 318 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis Pain and Disability by : Institute of Medicine

Download or read book Pain and Disability written by Institute of Medicine and published by National Academies Press. This book was released on 1987-01-01 with total page 318 pages. Available in PDF, EPUB and Kindle. Book excerpt: Painâ€"it is the most common complaint presented to physicians. Yet pain is subjectiveâ€"it cannot be measured directly and is difficult to validate. Evaluating claims based on pain poses major problems for the Social Security Administration (SSA) and other disability insurers. This volume covers the epidemiology and physiology of pain; psychosocial contributions to pain and illness behavior; promising ways of assessing and measuring chronic pain and dysfunction; clinical aspects of prevention, diagnosis, treatment, and rehabilitation; and how the SSA's benefit structure and administrative procedures may affect pain complaints.

Easy for You to Say

Author : Miriam Kaufman
Publisher : Firefly Books
ISBN 13 : 1770881263
Total Pages : 287 pages
Book Rating : 4.7/5 (78 download)

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Book Synopsis Easy for You to Say by : Miriam Kaufman

Download or read book Easy for You to Say written by Miriam Kaufman and published by Firefly Books. This book was released on 2012-11-01 with total page 287 pages. Available in PDF, EPUB and Kindle. Book excerpt: Practical information for teens and their families. Praise for the previous edition: This very unusual book...is loaded with the kind of information disabled teens often need but may be too embarrassed to ask for. --Booklist The teen years are some of the most demanding. Even the most well-adjusted youth struggles with the intense daily challenges of friends, family, school and wider society. But these problems pale in comparison to those faced by teenagers with a handicap or chronic illness such as spina bifida or cystic fibrosis. "Get over it" or "it's just a phase" is idle advice and little more than offensive. "Easy for you to say," is the teenager's often-heard -- and reasonable -- response. Easy for You to Say profiles the lives of uniquely challenged teens as they work hard to make sense of the world and their places in it. The questions they pose are frank and courageous, many include street language that teens can identify with and readily understand. The issues front and center in their lives are addressed, such as family, doctors and medical issues, friends and dating, school and work, alcohol and street drugs, medications and sexuality. Useful charts give reliable information on medication interactions and side effects. Kaufman is straightforward and honest, and provides solid information. Easy for You to Say to Say addresses issues that often are not easy or pretty. It offers solid practical advice, straight talk and honest answers to questions that many would be too embarrassed to ask.

Life Disrupted

Author : Laurie Edwards
Publisher : Bloomsbury Publishing USA
ISBN 13 : 0802779735
Total Pages : 288 pages
Book Rating : 4.8/5 (27 download)

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Book Synopsis Life Disrupted by : Laurie Edwards

Download or read book Life Disrupted written by Laurie Edwards and published by Bloomsbury Publishing USA. This book was released on 2011-02-01 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: Twenty-seven-year-old Laurie Edwards is one of 125 million Americans who have a chronic illness, in her case a rare genetic respiratory disease. Because of medical advances in the treatment of serious childhood diseases, 600,000 chronically ill teens enter adulthood every year who decades ago would not have survived-they and people diagnosed in adulthood face the same challenges of college, career, and starting a family as others in their twenties and thirties, but with the added circumstance of having chronic illness. Life Disrupted is a personal and unflinching guide to living well with a chronic illness: managing your own health care without letting it take over your life, dealing with difficult doctors and frequent hospitalizations, having a productive and satisfying career that accommodates your health needs, and nurturing friendships and a loving, committed relationship regardless of recurring health problems. Laurie Edwards also addresses the particular needs of people who have more than one chronic illness or who are among the twenty-five million Americans with a rare disorder. She shares her own story and the experiences of others with chronic illness, as well as advice from life coaches, employment specialists, and health professionals. Reading Life Disrupted is like having a best friend and mentor who truly does know what you're going through.

Patient Safety and Quality

Author : Ronda Hughes
Publisher : Department of Health and Human Services
ISBN 13 :
Total Pages : 592 pages
Book Rating : 4.:/5 (318 download)

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Book Synopsis Patient Safety and Quality by : Ronda Hughes

Download or read book Patient Safety and Quality written by Ronda Hughes and published by Department of Health and Human Services. This book was released on 2008 with total page 592 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/

Surviving and Thriving with an Invisible Chronic Illness

Author : Ilana Jacqueline
Publisher : New Harbinger Publications
ISBN 13 : 1626256012
Total Pages : 181 pages
Book Rating : 4.6/5 (262 download)

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Book Synopsis Surviving and Thriving with an Invisible Chronic Illness by : Ilana Jacqueline

Download or read book Surviving and Thriving with an Invisible Chronic Illness written by Ilana Jacqueline and published by New Harbinger Publications. This book was released on 2018-03-01 with total page 181 pages. Available in PDF, EPUB and Kindle. Book excerpt: “An important antidote to the dogmatic ‘kale and vitamins’ tone of most ‘self-help’ literature.” —Alexa Tsoulis-Reay, senior writer, New York magazine Popular blogger Ilana Jacqueline offers smart and savvy advice, humor, and practical tips for living with an invisible chronic illness. Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood—and that’s on top of dealing with the symptoms of your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see—such as postural orthostatic tachycardia syndrome (POTS), chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity (MCS), Lyme disease, lupus, dysautonomia, or even multiple sclerosis (MP). This book will tell you everything you need to know about living with a complicated, invisible condition—from how to balance sex, dating, and relationships to handling work and school with unavoidable absences. You’ll also learn to navigate judg-y or skeptical relatives and strangers and—most importantly—manage your medical care. Suffering from a chronic illness doesn’t mean you can’t live an active, engaged life. This book will show you how.