Ethical Social And Psychological Impacts Of Genomic Risk Communication

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Ethical, Social and Psychological Impacts of Genomic Risk Communication

Author : Ulrik Kihlbom
Publisher : Routledge
ISBN 13 : 1000225143
Total Pages : 178 pages
Book Rating : 4.0/5 (2 download)

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Book Synopsis Ethical, Social and Psychological Impacts of Genomic Risk Communication by : Ulrik Kihlbom

Download or read book Ethical, Social and Psychological Impacts of Genomic Risk Communication written by Ulrik Kihlbom and published by Routledge. This book was released on 2020-11-15 with total page 178 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume presents the ethical implications of risk information as related to genetics and other health data for policy decisions at clinical, research and societal levels. Ethical, Social and Psychological Impacts of Genomic Risk Communication examines the introduction of new types of health risk information based on faster, cheaper and larger sets of genetic or genomic analysis. Synthesizing the results of a five-year interdisciplinary project, it explores the unsolved ethical and social questions around the sharing of this data, such as: What is best practice in risk communication? What are the normative presumptions and ethical consequences of an increased individual responsibility for ones’ health? And how does one deal with the gap between the knowledge of risk and the lack of therapeutic options which often exist for complex diseases, such as dementia or some types of cancer? Drawing on contributions from over 20 experts in the field, this collection examines these questions from a liberal bioethics’ perspective, advocating for contextual and cultural-sensitive ethical discussions. This book will be of great interest to students and scholars of theoretical and clinical medical ethics, medical sociology, risk communication and ethics of risk, as well as professionals in clinical genetics.

Reporting on Risks

Author : Jim Willis
Publisher : Praeger
ISBN 13 :
Total Pages : 248 pages
Book Rating : 4.F/5 ( download)

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Book Synopsis Reporting on Risks by : Jim Willis

Download or read book Reporting on Risks written by Jim Willis and published by Praeger. This book was released on 1997-07-30 with total page 248 pages. Available in PDF, EPUB and Kindle. Book excerpt: Health and safety risk issues such as AIDS, hazardous waste disposal, airline disasters, and health care policy frequently dominate the news and require a new level of sensitivity and expertise on the part of journalists. This volume focuses on a study of the trends in risk reporting and offers guidelines on how to report the dangers of these risks more accurately. It also examines the ethical implications of reporting risks to the public. This work will be of interest to those studying communication, specifically in the areas of ethics in journalism and public health and medical reporting.

Risk and Responsibilisation in Public Communication

Author : Antoinette Fage-Butler
Publisher : Taylor & Francis
ISBN 13 : 1000987175
Total Pages : 166 pages
Book Rating : 4.0/5 (9 download)

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Book Synopsis Risk and Responsibilisation in Public Communication by : Antoinette Fage-Butler

Download or read book Risk and Responsibilisation in Public Communication written by Antoinette Fage-Butler and published by Taylor & Francis. This book was released on 2023-10-23 with total page 166 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book explores the connections between risk and responsibilisation in official communication to the public about the global risks of the pandemic and climate change. Our media spheres in the 2020s have been saturated with information about what we should or should not be doing to meet the challenges of the COVID-19 pandemic and climate change. Although the ability of risk communication to ‘responsibilise’ the public is central to its functioning in our societies, this aspect has so far been under-investigated in academia. To address this lacuna, Antoinette Fage-Butler develops a discursive approach to risk communication that focuses on the values that are communicated in risk messages. Examples of official risk communication about the pandemic and climate change from national and transnational contexts are analysed and compared, leading to new empirical findings and theoretical insights about the nature of risk and responsibilisation. Fage-Butler also builds on recent stirrings in the evolving field of risk communication that highlight the importance of cultural and value-related factors. Overall, this book will equip researchers with an approach to risk communication that reflects the complexity of today’s global risk challenges. Risk and Responsibilisation in Public Communication will be of great interest to students and scholars of risk communication, public health and environmental studies.

Assessing Genetic Risks

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309047986
Total Pages : 353 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis Assessing Genetic Risks by : Institute of Medicine

Download or read book Assessing Genetic Risks written by Institute of Medicine and published by National Academies Press. This book was released on 1994-01-01 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: Raising hopes for disease treatment and prevention, but also the specter of discrimination and "designer genes," genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening. Advantages of early genetic knowledge are balanced with issues associated with such knowledge: availability of treatment, privacy and discrimination, personal decision-making, public health objectives, cost, and more. Among the important issues covered: Quality control in genetic testing. Appropriate roles for public agencies, private health practitioners, and laboratories. Value-neutral education and counseling for persons considering testing. Use of test results in insurance, employment, and other settings.

A Theory of Uncertainty

Author : Andreas Klinke
Publisher : Taylor & Francis
ISBN 13 : 1040102735
Total Pages : 283 pages
Book Rating : 4.0/5 (41 download)

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Book Synopsis A Theory of Uncertainty by : Andreas Klinke

Download or read book A Theory of Uncertainty written by Andreas Klinke and published by Taylor & Francis. This book was released on 2024-08-02 with total page 283 pages. Available in PDF, EPUB and Kindle. Book excerpt: Using sources from classical to modern that broach the phenomenon of uncertainty and its relation to risk, this book creates a novel approach to the recognized but theoretically often unattended issue of uncertainty. Andreas Klinke develops a new, general theory of uncertainty that provides a taxonomy of categories which are deduced from a critical inventory in philosophy, social and natural sciences, and risk research. Comprising six parts, the philosophical grounding of uncertainty sets the stage for the following philosophical and social scientific accounts and explanation of four distinctive guises of uncertainty that form a taxonomic notion and rationale: ontological, epistemological, linguistic-communicative, and teleological uncertainty. The theoretical-conceptual rumination provides a complex, differentiated view of the anatomy of uncertainty and an understanding that can be used in further theoretical and empirical research, as well as socio-political practice. The latter is delineated in the final part addressing the societal domestication of uncertainty. This book will be of great interest to scholars and students in philosophy, social and natural sciences, risk research, as well as inter- and transdisciplinary science fields.

Understanding the Concept of Pre-Clinical Autoimmunity

Author : David Karp
Publisher : Frontiers Media SA
ISBN 13 : 2889768422
Total Pages : 187 pages
Book Rating : 4.8/5 (897 download)

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Book Synopsis Understanding the Concept of Pre-Clinical Autoimmunity by : David Karp

Download or read book Understanding the Concept of Pre-Clinical Autoimmunity written by David Karp and published by Frontiers Media SA. This book was released on 2022-08-26 with total page 187 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Returning Individual Research Results to Participants

Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309475171
Total Pages : 399 pages
Book Rating : 4.3/5 (94 download)

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Book Synopsis Returning Individual Research Results to Participants by : National Academies of Sciences, Engineering, and Medicine

Download or read book Returning Individual Research Results to Participants written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2018-09-23 with total page 399 pages. Available in PDF, EPUB and Kindle. Book excerpt: When is it appropriate to return individual research results to participants? The immense interest in this question has been fostered by the growing movement toward greater transparency and participant engagement in the research enterprise. Yet, the risks of returning individual research resultsâ€"such as results with unknown validityâ€"and the associated burdens on the research enterprise are competing considerations. Returning Individual Research Results to Participants reviews the current evidence on the benefits, harms, and costs of returning individual research results, while also considering the ethical, social, operational, and regulatory aspects of the practice. This report includes 12 recommendations directed to various stakeholdersâ€"investigators, sponsors, research institutions, institutional review boards (IRBs), regulators, and participantsâ€"and are designed to help (1) support decision making regarding the return of results on a study-by-study basis, (2) promote high-quality individual research results, (3) foster participant understanding of individual research results, and (4) revise and harmonize current regulations.

Direct-to-Consumer Genetic Testing

Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309162165
Total Pages : 106 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Direct-to-Consumer Genetic Testing by : National Research Council

Download or read book Direct-to-Consumer Genetic Testing written by National Research Council and published by National Academies Press. This book was released on 2011-01-16 with total page 106 pages. Available in PDF, EPUB and Kindle. Book excerpt: Today, scores of companies, primarily in the United States and Europe, are offering whole genome scanning services directly to the public. The proliferation of these companies and the services they offer demonstrate a public appetite for this information and where the future of genetics may be headed; they also demonstrate the need for serious discussion about the regulatory environment, patient privacy, and other policy implications of direct-to-consumer (DTC) genetic testing. Rapid advances in genetic research already have begun to transform clinical practice and our understanding of disease progression. Existing research has revealed a genetic basis or component for numerous diseases, including Parkinson's disease, Alzheimer's disease, diabetes, heart disease, and several forms of cancer. The availability of the human genome sequence and the HapMap, plummeting costs of high-throughput screening, and increasingly sophisticated computational analyses have led to an explosion of discoveries of linkages between patterns of genetic variation and disease susceptibility. While this research is by no means a straight path toward better public health, improved knowledge of the genetic linkages has the potential to change fundamentally the way health professionals and public health practitioners approach the prevention and treatment of disease. Realizing this potential will require greater sophistication in the interpretation of genetic tests, new training for physicians and other diagnosticians, and new approaches to communicating findings to the public. As this rapidly growing field matures, all of these questions require attention from a variety of perspectives. To discuss some of the foregoing issues, several units of the National Academies held a workshop on August 31 and September 1, 2009, to bring together a still-developing community of professionals from a variety of relevant disciplines, to educate the public and policy-makers about this emerging field, and to identify issues for future study. The meeting featured several invited presentations and discussions on the many technical, legal, policy, and ethical questions that such DTC testing raises, including: (1) overview of the current state of knowledge and the future research trajectory; (2) shared genes and emerging issues in privacy; (3) the regulatory framework; and (4) education of the public and the medical community.

Clinical Genome Sequencing

Author : Aad Tibben
Publisher : Academic Press
ISBN 13 : 9780128133354
Total Pages : 0 pages
Book Rating : 4.1/5 (333 download)

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Book Synopsis Clinical Genome Sequencing by : Aad Tibben

Download or read book Clinical Genome Sequencing written by Aad Tibben and published by Academic Press. This book was released on 2019-04-03 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Clinical Genome Sequencing: Psychological Aspects thoroughly details key psychological factors to consider while implementing genome sequencing in clinical practice, taking into account the subtleties of genetic risk assessment, patient consent and best practices for sharing genomic findings. Chapter contributions from leading international researchers and practitioners cover topics ranging from the current state of genomic testing, to patient consent, patient responses to sequencing data, common uncertainties, direct-to-consumer genomics, the role of genome sequencing in precision medicine, genetic counseling and genome sequencing, genome sequencing in pediatrics, genome sequencing in prenatal testing, and ethical issues in genome sequencing. Applied clinical case studies support concept illustration, making this an invaluable, practical reference for this important and multifaceted topic area within genomic medicine.

Implications of Genomics for Public Health

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309096073
Total Pages : 98 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis Implications of Genomics for Public Health by : Institute of Medicine

Download or read book Implications of Genomics for Public Health written by Institute of Medicine and published by National Academies Press. This book was released on 2005-07-27 with total page 98 pages. Available in PDF, EPUB and Kindle. Book excerpt: Genomics is the study of the entire human genome. Genomics explores not only the actions of single genes, but also the interactions of multiple genes with each other and with the environment. As a result, genomics has great potential for improving the health of the public. However, realizing the benefits of genomics requires a systematic evaluation of its potential contributions and an understanding of the information necessary to facilitate the translation of research findings into public health strategies. In October 2004, the Institute of Medicine convened a workshop to discuss major scientific and policy issues related to genomics and public health, examine major supports for and challenges to the translation of genetic research into population health benefits, and suggest approaches for the integration of genomic information into strategies for promoting health and preventing disease. Implications of Genomics for Public Health summarizes the discussions and presentations from this workshop.

Innovations in Service Delivery in the Age of Genomics

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309132142
Total Pages : 80 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Innovations in Service Delivery in the Age of Genomics by : Institute of Medicine

Download or read book Innovations in Service Delivery in the Age of Genomics written by Institute of Medicine and published by National Academies Press. This book was released on 2009-06-11 with total page 80 pages. Available in PDF, EPUB and Kindle. Book excerpt: New discoveries in genomics-that is, the study of the entire human genome-are changing how we diagnose and treat diseases. As the trend shifts from genetic testing largely being undertaken for rare genetic disorders to, increasingly, individuals being screened for common diseases, general practitioners, pediatricians, obstetricians/gynecologists, and other providers need to be knowledgeable about and comfortable using genetic information to improve their patients' health. To address these changes, the Roundtable on Translating Genomic-Based Research for Health held the public workshop "Innovations in Service Delivery in the Age of Genomics" on July 27, 2008.

Am I My Genes?

Author : Robert Klitzman
Publisher : OUP USA
ISBN 13 : 0199837163
Total Pages : 376 pages
Book Rating : 4.1/5 (998 download)

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Book Synopsis Am I My Genes? by : Robert Klitzman

Download or read book Am I My Genes? written by Robert Klitzman and published by OUP USA. This book was released on 2012-03 with total page 376 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this volume, the psychiatrist Robert Klitzman explores how individuals confront the complex issues associated with genetic testing in their daily lives.

Genetic Responsibility

Author : Mack Lipkin
Publisher : Springer Science & Business Media
ISBN 13 : 1468421182
Total Pages : 171 pages
Book Rating : 4.4/5 (684 download)

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Book Synopsis Genetic Responsibility by : Mack Lipkin

Download or read book Genetic Responsibility written by Mack Lipkin and published by Springer Science & Business Media. This book was released on 2012-12-06 with total page 171 pages. Available in PDF, EPUB and Kindle. Book excerpt: The "Genetics, Man, and Society" symposium was a collaborative effort of the Task Force on Genetics and Reproduction at Yale University and the Youth Council of the American Association for the Advancement of Science (A. A. A. S. ). The Task Force on Genetics and Reproduction at Yale is a voluntary, inter-professional organization engaged in examination of ethical and social implications of medical and basic genetics. It is similar in purpose to the Hastings Institute of Society, Ethics, and Life Sciences and the Kennedy Center for the Study of Bioethics at Georgetown. The Youth Council of A. A. A. S. was a committee of the A. A. A. S. concerned with problems of young persons. The Youth Council had significant impact on the A. A. A. S. through the constitutional reform and a number of innovative programs including the Congressional Fellows and Regional Centers Program, and the Committees on Minorities and Women. The symposium was initially conceived by William Drayton and Richard A. Tropp and was arranged by us. The Task Force took primary responsibility for format and for selecting and inviting speakers. The Youth Council made the arrangements, raised the necessary funds and represented the organizers for post-symposium use of the materials including printed and taped publications. This volume contains the edited proceedings of the symposium plus the editors' perspective on it.

Mapping and Sequencing the Human Genome

Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309038405
Total Pages : 128 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis Mapping and Sequencing the Human Genome by : National Research Council

Download or read book Mapping and Sequencing the Human Genome written by National Research Council and published by National Academies Press. This book was released on 1988-01-01 with total page 128 pages. Available in PDF, EPUB and Kindle. Book excerpt: There is growing enthusiasm in the scientific community about the prospect of mapping and sequencing the human genome, a monumental project that will have far-reaching consequences for medicine, biology, technology, and other fields. But how will such an effort be organized and funded? How will we develop the new technologies that are needed? What new legal, social, and ethical questions will be raised? Mapping and Sequencing the Human Genome is a blueprint for this proposed project. The authors offer a highly readable explanation of the technical aspects of genetic mapping and sequencing, and they recommend specific interim and long-range research goals, organizational strategies, and funding levels. They also outline some of the legal and social questions that might arise and urge their early consideration by policymakers.

Society's Choices

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309051320
Total Pages : 560 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis Society's Choices by : Institute of Medicine

Download or read book Society's Choices written by Institute of Medicine and published by National Academies Press. This book was released on 1995-03-27 with total page 560 pages. Available in PDF, EPUB and Kindle. Book excerpt: Breakthroughs in biomedicine often lead to new life-giving treatments but may also raise troubling, even life-and-death, quandaries. Society's Choices discusses ways for people to handle today's bioethics issues in the context of America's unique history and cultureâ€"and from the perspectives of various interest groups. The book explores how Americans have grappled with specific aspects of bioethics through commission deliberations, programs by organizations, and other mechanisms and identifies criteria for evaluating the outcomes of these efforts. The committee offers recommendations on the role of government and professional societies, the function of commissions and institutional review boards, and bioethics in health professional education and research. The volume includes a series of 12 superb background papers on public moral discourse, mechanisms for handling social and ethical dilemmas, and other specific areas of controversy by well-known experts Ronald Bayer, Martin Benjamin, Dan W. Brock, Baruch A. Brody, H. Alta Charo, Lawrence Gostin, Bradford H. Gray, Kathi E. Hanna, Elizabeth Heitman, Thomas Nagel, Steven Shapin, and Charles M. Swezey.

Human Genome Editing

Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309452880
Total Pages : 329 pages
Book Rating : 4.3/5 (94 download)

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Book Synopsis Human Genome Editing by : National Academies of Sciences, Engineering, and Medicine

Download or read book Human Genome Editing written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2017-08-13 with total page 329 pages. Available in PDF, EPUB and Kindle. Book excerpt: Genome editing is a powerful new tool for making precise alterations to an organism's genetic material. Recent scientific advances have made genome editing more efficient, precise, and flexible than ever before. These advances have spurred an explosion of interest from around the globe in the possible ways in which genome editing can improve human health. The speed at which these technologies are being developed and applied has led many policymakers and stakeholders to express concern about whether appropriate systems are in place to govern these technologies and how and when the public should be engaged in these decisions. Human Genome Editing considers important questions about the human application of genome editing including: balancing potential benefits with unintended risks, governing the use of genome editing, incorporating societal values into clinical applications and policy decisions, and respecting the inevitable differences across nations and cultures that will shape how and whether to use these new technologies. This report proposes criteria for heritable germline editing, provides conclusions on the crucial need for public education and engagement, and presents 7 general principles for the governance of human genome editing.

Medical and Health Genomics

Author : Dhavendra Kumar
Publisher : Academic Press
ISBN 13 : 0127999221
Total Pages : 358 pages
Book Rating : 4.1/5 (279 download)

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Book Synopsis Medical and Health Genomics by : Dhavendra Kumar

Download or read book Medical and Health Genomics written by Dhavendra Kumar and published by Academic Press. This book was released on 2016-06-04 with total page 358 pages. Available in PDF, EPUB and Kindle. Book excerpt: Medical and Health Genomics provides concise and evidence-based technical and practical information on the applied and translational aspects of genome sciences and the technologies related to non-clinical medicine and public health. Coverage is based on evolving paradigms of genomic medicine—in particular, the relation to public and population health genomics now being rapidly incorporated in health management and administration, with further implications for clinical population and disease management. Provides extensive coverage of the emergent field of health genomics and its huge relevance to healthcare management Presents user-friendly language accompanied by explanatory diagrams, figures, and many references for further study Covers the applied, but non-clinical, sciences across disease discovery, genetic analysis, genetic screening, and prevention and management Details the impact of clinical genomics across a diverse array of public and community health issues, and within a variety of global healthcare systems