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Ethical Issues In Community Based Research With Children And Youth
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Book Synopsis Ethical Issues in Community-based Research with Children and Youth by : Bonnie J. Ross Leadbeater
Download or read book Ethical Issues in Community-based Research with Children and Youth written by Bonnie J. Ross Leadbeater and published by University of Toronto Press. This book was released on 2006-01-01 with total page 289 pages. Available in PDF, EPUB and Kindle. Book excerpt: Efforts to apply ethical guidelines and regulations to vulnerable populations are often problematic. Consequently, health and social scientists sometimes shy away from the challenges of research, particularly when it means addressing value-laden social problems such as sexuality, drugs, and racism. Ethical Issues in Community-Based Research with Children and Youth is a collection of essays that describe the uniqueness of community-based research, outlining several of the ethical concerns that it engenders. The contributors examine such issues as the scope of informed consent to multiple stakeholders, determining competence to give consent in marginalized populations, and managing dual roles as participant researchers. The collection suggests that a more collaborative, ongoing, and discursive approach is needed by researchers and by ethical review boards to ensure that research on sensitive social problems with high risk populations is supported and also conducted with a clear understanding of the highest ethical standards possible.
Book Synopsis Ethical Conduct of Clinical Research Involving Children by : Institute of Medicine
Download or read book Ethical Conduct of Clinical Research Involving Children written by Institute of Medicine and published by National Academies Press. This book was released on 2004-07-09 with total page 445 pages. Available in PDF, EPUB and Kindle. Book excerpt: In recent decades, advances in biomedical research have helped save or lengthen the lives of children around the world. With improved therapies, child and adolescent mortality rates have decreased significantly in the last half century. Despite these advances, pediatricians and others argue that children have not shared equally with adults in biomedical advances. Even though we want children to benefit from the dramatic and accelerating rate of progress in medical care that has been fueled by scientific research, we do not want to place children at risk of being harmed by participating in clinical studies. Ethical Conduct of Clinical Research Involving Children considers the necessities and challenges of this type of research and reviews the ethical and legal standards for conducting it. It also considers problems with the interpretation and application of these standards and conduct, concluding that while children should not be excluded from potentially beneficial clinical studies, some research that is ethically permissible for adults is not acceptable for children, who usually do not have the legal capacity or maturity to make informed decisions about research participation. The book looks at the need for appropriate pediatric expertise at all stages of the design, review, and conduct of a research project to effectively implement policies to protect children. It argues persuasively that a robust system for protecting human research participants in general is a necessary foundation for protecting child research participants in particular.
Book Synopsis Ethical Considerations for Research on Housing-Related Health Hazards Involving Children by : Institute of Medicine
Download or read book Ethical Considerations for Research on Housing-Related Health Hazards Involving Children written by Institute of Medicine and published by National Academies Press. This book was released on 2005-11-10 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ethical Considerations for Research on Housing-Related Health Hazards Involving Children explores the ethical issues posed when conducting research designed to identify, understand, or ameliorate housing-related health hazards among children. Such research involves children as subjects and is conducted in the home and in communities. It is often conducted with children in low-income families given the disproportionate prevalence of housing-related conditions such as lead poisoning, asthma, and fatal injuries among these children. This book emphasizes five key elements to address the particular ethical concerns raised by these characteristics: involving the affected community in the research and responding to their concerns; ensuring that parents understand the essential elements of the research; adopting uniform federal guidelines for such research by all sponsors (Subpart D of 45 CFR 46); providing guidance on key terms in the regulations; and viewing research oversight as a system with important roles for researchers, IRBs and their research institutions, sponsors and regulators of research, and the community.
Book Synopsis Ethical Issues in Mental Health Research With Children and Adolescents by : Kimberly Hoagwood
Download or read book Ethical Issues in Mental Health Research With Children and Adolescents written by Kimberly Hoagwood and published by Routledge. This book was released on 2014-06-03 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt: Studies involving children with mental, emotional, or behavioral problems--or their families--have to meet certain standards of research ethics. This book contains chapters on the kinds of ethical dilemmas that typically occur in different types of studies of children, and then presents 65 real-world cases from experts who study children's mental health. These experts offer practical suggestions for how to handle these dilemmas. Chapters on the perspectives of parents, regulators, and bioethicists provide additional points of view on these issues. Written in down-to-earth language, this book will be useful for professionals who study children, for those who train students in research methods, and for parents who are thinking about participating in research studies. In attempting to bridge the apparent gap between ethics and science, the editors close this volume on a note commonly sounded by researchers: more research is needed. Yet in this area, a new kind of research is required. The science of scientific ethics must be developed and expanded, and better understanding of the determinants and circumstances under which children can comprehend and evaluate risks and benefits is needed. Likewise, fuller knowledge of the contextual factors affecting children's and families' consent to participate in research is essential. In particular, development of scales to assess children's ability to comprehend risk-benefit issues, studies of families' reactions to research procedures, and empirical data on the impact of various forms of participant reimbursement will advance both science and ethics. This volume should spur further research, serving as a guide for current investigators, participating families, institutional review boards, and policymakers who shape the research enterprise.
Book Synopsis The Ethics of Research with Children and Young People by : Priscilla Alderson
Download or read book The Ethics of Research with Children and Young People written by Priscilla Alderson and published by SAGE Publications. This book was released on 2011-02-09 with total page 177 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ethical questions are at the centre of research with children and young people. This clear and practical text informs students and researchers about the relevant laws and guidelines and current debates in research ethics. Priscilla Alderson and Virginia Morrow cover ethics at every stage of research, and with all kinds of young research participants, particularly those who are vulnerable or neglected. They break down the process of research into ten stages, each with its own set of related questions and problems, and they show how these need to be addressed. This practical book is essential reading for anyone who conducts or reviews research with children or young people. Priscilla Alderson is Emerita Professor of Childhood Studies at the Institute of Education University of London. Virginia Morrow is Senior Research Officer in the Department of International Development, University of Oxford.
Book Synopsis Researching Children and Youth by : Ingrid E. Castro
Download or read book Researching Children and Youth written by Ingrid E. Castro and published by Emerald Group Publishing. This book was released on 2017-03-17 with total page 421 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume seeks to directly address the problems and pitfalls that often accompany researching children and youth in today’s society. This volume addresses participatory and feminist ethnographic approaches, digital mining, children’s agency, and navigating IRBs. Themes of space, location, and identity run throughout this volume.
Book Synopsis The Handbook of Ethical Research with Ethnocultural Populations and Communities by : Joseph E. Trimble
Download or read book The Handbook of Ethical Research with Ethnocultural Populations and Communities written by Joseph E. Trimble and published by SAGE. This book was released on 2006 with total page 401 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume addresses challenges at methodological, procedural and conceptual levels for the responsible conduct of research in the field. Each chapter includes case examples to illustrate significant ethical principles.
Book Synopsis Urban Youth and Photovoice by : Melvin Delgado
Download or read book Urban Youth and Photovoice written by Melvin Delgado and published by Oxford University Press. This book was released on 2015-02-11 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: The past decade brought forth a wave of excitement and promise for researchers and practitioners interested in community practice as an approach based on social justice principles and an embrace of community participatory actions. But, effective community practice is predicated on the availability and use of assessment methods that not only capture and report on conditions, but also simultaneously set the stage for social change efforts. This research, therefore, serves the dual purpose of generating knowledge and also being an integral part of social intervention. Research done in this way, however, requires new tools. Photovoice is one such tool - a form of visual ethnography that invites participants to represent their community or point of view through photographs, accompanied by narratives, to be shared with each other and with a broader community. Urban Youth and Photovoice focuses on the use of this method within urban settings and among adolescents and young adults - a group that is almost naturally drawn to the use of photography (especially digital and particularly in today's era of texting, facebook, and instagram) to showcase photovoice as an important qualitative research method for social workers and others in the social sciences, and providing readers with detailed theoretical and practical account of how to plan, implement, and evaluate the results of a photovoice project focused on urban youth.
Book Synopsis Ethics and Research with Children by : Eric Kodish
Download or read book Ethics and Research with Children written by Eric Kodish and published by Oxford University Press, USA. This book was released on 2018-12-14 with total page 345 pages. Available in PDF, EPUB and Kindle. Book excerpt: Fundamental questions about the morality of pediatric medical research persist despite years of debate and the establishment of strict codes of ethics. Is it ever permissible to use a child as a means to an end? How much authority should parents have over decisions about research involving their children? Should children or their parents be paid for participation in research? Most importantly, how can the twin goals of access to the benefits of clinical research and protection from research risk be reconciled? Promoting more thoughtful attention to the complex ethical problems that arise when research involves children, this fully updated new edition of Ethics and Research with Children presents 14 case studies featuring some of the most challenging and fascinating ethical dilemmas in pediatric research. Each chapter begins with a unique case vignette, followed by rich discussion and incisive ethical analysis. Chapters represent a host of current controversies and are contributed by leading scholars from a variety of disciplines that must grapple with how to best protect children from research risk while driving innovation in the fight against childhood diseases. Chapters end with questions for discussion, providing faculty and students with accessible starting points from which to explore more in depth the thorny issues that are raised. In the final chapter, the editors provide a synthesis and summary that serve as a capstone and companion to the case-based chapters. Unique in its specific focus on research, Ethics and Research with Children provides a balanced and thorough account of the enduring dilemmas that arise when children become research subjects, and will be essential reading for those involved with pediatric research in any context.
Book Synopsis Researching with Children and Young People by : Kay Tisdall
Download or read book Researching with Children and Young People written by Kay Tisdall and published by SAGE. This book was released on 2008-12-18 with total page 250 pages. Available in PDF, EPUB and Kindle. Book excerpt: ′This text will be of great use to postgraduate researchers in education, social work and nursing, and any practitioner involved in carrying out research with children and young people′ - CPD Update ′[T]here is a sense of newness and innovation about the book, whereby the reader is treated to insight into the life and work of collaborators who wrote each case study....[T]he book is highly accessible for students at graduate and undergraduate level, for example BA (Hons) Early Childhood Studies students′ - ESCalate Researching with Children and Young People covers every stage of the process of doing a research project, from research design and data collection, through to analysis and writing up. The book is divided into three sections, in which the authors cover: - Introducing research and consultation with children and young people - Collecting and analysing data - Whole-project issues. Each chapter includes activities, discussion questions, tips and extended case studies to help the reader to engage with the material and investigate the practical implications. This text will be of great use to postgraduate researchers in education, social work and nursing, and any practitioner involved in carrying out research with children and young people.
Book Synopsis Resilience in Action by : Michael Ungar
Download or read book Resilience in Action written by Michael Ungar and published by University of Toronto Press. This book was released on 2008-01-01 with total page 425 pages. Available in PDF, EPUB and Kindle. Book excerpt: Mental health specialists and researchers contend that the development of resilience in youth is facilitated at several levels. Relational, cultural, individual, and governmental factors all have a strong influence over the mental well being of young people. Resilience in Action looks at youth interventions with a view to fostering resilience in those living in adverse situations and conditions. In order to provide a practical approach to the issue, the essays in this volume explore the components of successful interventions, encouraging the transmission of effective practices from one community to another across borders. It is organized into four sections, each dealing with a different aspect of work with at-risk youth. The first section focuses on individual health and the ways in which intervention and therapy strengthen personal resources. The second section explores the dynamics of interventions in relation to specific contexts and localized relationships, emphasizing holistic approaches to youth work. A review of the cultural relevance of resilience follows in section three, and the fourth considers ways of increasing the accessibility to resources that encourage healthy development. Featuring contributors from a variety of academic and cultural backgrounds, Resilience in Action offers diverse answers to many of the persistent questions mental health professionals ask regarding how to enhance resilience.
Book Synopsis Being Participatory: Researching with Children and Young People by : Imelda Coyne
Download or read book Being Participatory: Researching with Children and Young People written by Imelda Coyne and published by Springer. This book was released on 2018-02-23 with total page 178 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides a clear framework for conducting participatory research with children and young people supported with practical examples from international research studies. Our aim is to encourage more participatory research with children and young people on all matters that affect their lives. This book illustrates innovative ways of being participatory and sheds new light on involvement strategies that play to children’s and young people’s competencies. Participatory research is based on the recognition of children and young people as active contributors rather than objects of research. Participatory researchers support and value the voices of children and young people in all matters that concern them. Core to participatory research practice is a strengths-based approach that aims to promote the active engagement of children and young people in all stages of research, from inception to implementation and beyond. Engagement of children and young people requires the use of creative, participatory methods, tools and involvement strategies to reveal children’s competencies. This book shares knowledge about creative participatory techniques that can enable and promote children’s ways of expressing their views and experiences. The book provides guidance on appropriate techniques that reduce the power differential in the adult-child relationship and which optimise children’s abilities to participate in research. This book is targeted at researchers, academics, and practitioners who need guidance on what tools are available, how the tools can be used, advantages and challenges, and how best to involve children in all stages of a research project. It will provide several examples of how children can have an active participatory role in research. There is increasing interest in involving children as co-researchers but little guidance on how this can be done. This book fills a this gap by addressing all of these issues and by providing worked examples from leading researchers and academics.
Book Synopsis Participatory Action Research by : Hal A. Lawson
Download or read book Participatory Action Research written by Hal A. Lawson and published by Oxford University Press. This book was released on 2015-01-06 with total page 192 pages. Available in PDF, EPUB and Kindle. Book excerpt: As novel, complex social problems increase, especially those involving vulnerable people who reside in challenging places, the limitations of conventional research methods implemented by just one or two investigators become apparent. Research and development alternatives are needed, particularly methods that engage teams of researchers in real world problem solving while simultaneously generating practice- and policy-relevant knowledge. Research methods that effectively tap the expertise of everyday people, especially those impacted by these targeted social problems, are a special priority because academic researchers often lack experiential knowledge that stems from direct, everyday encounters with these vexing problems. Participatory action research (PAR) responds to these manifest needs. It provides a methodological structure and operational guidelines for preparing and deploying people from various walks of life as co-researchers, and it provides a proven strategy for generating practice- and policy-relevant knowledge as problem-solving in real world contexts proceeds.
Book Synopsis Social Research on Children and Adolescents by : Barbara Stanley
Download or read book Social Research on Children and Adolescents written by Barbara Stanley and published by SAGE. This book was released on 1992 with total page 213 pages. Available in PDF, EPUB and Kindle. Book excerpt: The important issues of what theory and research on human development can teach us about adolescents' vulnerability, how to reduce that vulnerability and under what circumstances parental consent does not protect children's rights are considered in this volume. The editors skilfully bridge the gap between those volumes which set out legal requirements that govern research on minors and the research methodology literature on adolescent psychology.
Book Synopsis Youth ‘At the Margins’ by : Sheri Bastien
Download or read book Youth ‘At the Margins’ written by Sheri Bastien and published by Springer. This book was released on 2015-06-25 with total page 394 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume comes at a critical juncture, as global commitments transition from the Millennium Development Goals to Sustainable Development Goals and the wider post-2015 development agenda is being discussed and debated. In these discussions, children and youth have been recognized as one of the nine major groups of civil society whose participation in decision making is essential for achieving sustainable development. There is also a concomitant need for action – innovative, evidence-based approaches to addressing entrenched global challenges or ‘wicked problems’ and engaging youth in those efforts. Within academic discourse, the perspectives and active participation of youth in research has long been debated. It is widely believed that their participation can result in better policy responses and contribute to the development of more relevant and effective interventions and programs to address their needs. However, the engagement of youth in research processes is not without critique; issues such as how to move from tokenism towards authentic participation and empowerment have been critically discussed, and many question if youth can or should even be expected to make change happen. Youth ‘At the Margins’: Critical Perspectives and Experiences of Engaging Youth in Research Worldwide brings together a range of critical and empirical contributions from emerging scholars and seasoned academics alike. Each contribution provides a unique perspective on the potentialities and challenges associated with youth engaged research. The chapters presented in this volume strive to critically interrogate and debate important foundational issues to consider when engaging youth in the research process, such as epistemological and methodological considerations. Important insights into the ethical, pedagogical and practical aspects one must contend with can be gleaned from the selection of chapters here; some of which are primarily theoretical and descriptive, whilst others present empirical data with case examples from around the world. This volume is devoted to showcasing high quality contributions to the scholarly literature on youth engaged research in order to spur further critical debate on the various epistemological, methodological and ethical issues associated with engaging youth in research processes and in addressing intractable global issues. The audience for this volume includes students, researchers and academics within a broad range of fields who are interested in understanding the range of approaches being used worldwide to include youth in research endeavors on issues of global importance including poverty, social exclusion, structural violence, un- and under-employment, education and health.
Book Synopsis Picturing Research by : Linda Theron
Download or read book Picturing Research written by Linda Theron and published by Springer Science & Business Media. This book was released on 2012-01-01 with total page 246 pages. Available in PDF, EPUB and Kindle. Book excerpt: Picturing research: drawing as visual methodology offers a timely analysis of the use of drawings in qualitative research. Drawing can be a method in itself, as in the research area of Visual Studies, and also one that complements the use of photography, video, and other visual methodologies. This edited volume is divided into two sections. The first section provides critical commentary on the use of drawings in social science research, addressing such issues of methodology as the politics of working with children and drawing, ethical issues in working with both adults and children, and some of the interpretive considerations. The second section, in its presentation of nine research-based case-studies, illustrates the richness of drawings. Each case study explores participatory research involving drawings that encourages social change, or illustrates participant resilience. These case studies also highlight the various genres of drawings including cartoons and storyboarding. The book draws on community-based research from a wide variety of contexts, most in South Africa, although it also includes work from Rwanda and Lesotho. Given the high rates of HIV&AIDS in sub-Saharan Africa, it should not be surprising that many of the chapters take up concerns such as the preparation of teachers and community health workers in the age of AIDS, and the experiences of orphans and vulnerable children. Moving further afield, this book also includes work done with immigrant populations in Canada, and with tribunals in Somalia and Australia. Picturing research is an important resource for novice and experienced researchers interested in employing qualitative methodology that encourages rich (yet low-tech) visible data and that offers a participatory, enabling experience for participants and their communities.
Book Synopsis Negotiating Ethical Challenges in Youth Research by : Kitty te Riele
Download or read book Negotiating Ethical Challenges in Youth Research written by Kitty te Riele and published by Routledge. This book was released on 2012-11-27 with total page 218 pages. Available in PDF, EPUB and Kindle. Book excerpt: Negotiating Ethical Challenges in Youth Research brings together contributors from across the world to explore real-life ethical dilemmas faced by researchers working with young people in a range of social science disciplines. Unlike literature that tends to discuss youth research at an abstracted and exalted level, this volume aims to make the basic principles and guidelines of youth research more ‘real.’ By openly discussing actual challenges that researchers have experienced in the course of conducting their fieldwork or interpreting their findings, this collection provides the most authentic overview of the ethics of youth research available. A careful selection of chapters addresses a range of ethical challenges particularly relevant to contemporary youth researchers. Each chapter identifies an ethical issue that the author has personally experienced in his or her youth research, explains why this was a challenge or dilemma, outlines how the researcher responded to the challenge, and provides advice and draws out broader implications for youth researchers. The chapters are organized around three themes that capture core ethical challenges: power and agency, protection and harm prevention, and trust and respect. The result is a collection that is a rigorous and valuable resource to those embarking on research with young people for the first time as well as supporting the resolution of ethical challenges by more experienced researchers.
