Chronic Illness

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Life Disrupted

Author : Laurie Edwards
Publisher : Bloomsbury Publishing USA
ISBN 13 : 0802779735
Total Pages : 289 pages
Book Rating : 4.8/5 (27 download)

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Book Synopsis Life Disrupted by : Laurie Edwards

Download or read book Life Disrupted written by Laurie Edwards and published by Bloomsbury Publishing USA. This book was released on 2011-02-01 with total page 289 pages. Available in PDF, EPUB and Kindle. Book excerpt: Twenty-seven-year-old Laurie Edwards is one of 125 million Americans who have a chronic illness, in her case a rare genetic respiratory disease. Because of medical advances in the treatment of serious childhood diseases, 600,000 chronically ill teens enter adulthood every year who decades ago would not have survived-they and people diagnosed in adulthood face the same challenges of college, career, and starting a family as others in their twenties and thirties, but with the added circumstance of having chronic illness. Life Disrupted is a personal and unflinching guide to living well with a chronic illness: managing your own health care without letting it take over your life, dealing with difficult doctors and frequent hospitalizations, having a productive and satisfying career that accommodates your health needs, and nurturing friendships and a loving, committed relationship regardless of recurring health problems. Laurie Edwards also addresses the particular needs of people who have more than one chronic illness or who are among the twenty-five million Americans with a rare disorder. She shares her own story and the experiences of others with chronic illness, as well as advice from life coaches, employment specialists, and health professionals. Reading Life Disrupted is like having a best friend and mentor who truly does know what you're going through.

Living Well with Chronic Illness

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309221277
Total Pages : 350 pages
Book Rating : 4.3/5 (92 download)

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Book Synopsis Living Well with Chronic Illness by : Institute of Medicine

Download or read book Living Well with Chronic Illness written by Institute of Medicine and published by National Academies Press. This book was released on 2011-06-30 with total page 350 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the United States, chronic diseases currently account for 70 percent of all deaths, and close to 48 million Americans report a disability related to a chronic condition. Today, about one in four Americans have multiple diseases and the prevalence and burden of chronic disease in the elderly and racial/ethnic minorities are notably disproportionate. Chronic disease has now emerged as a major public health problem and it threatens not only population health, but our social and economic welfare. Living Well with Chronic Disease identifies the population-based public health actions that can help reduce disability and improve functioning and quality of life among individuals who are at risk of developing a chronic disease and those with one or more diseases. The book recommends that all major federally funded programmatic and research initiatives in health include an evaluation on health-related quality of life and functional status. Also, the book recommends increasing support for implementation research on how to disseminate effective longterm lifestyle interventions in community-based settings that improve living well with chronic disease. Living Well with Chronic Disease uses three frameworks and considers diseases such as heart disease and stroke, diabetes, depression, and respiratory problems. The book's recommendations will inform policy makers concerned with health reform in public- and private-sectors and also managers of communitybased and public-health intervention programs, private and public research funders, and patients living with one or more chronic conditions.

Chronic Illness

Author : Ilene Morof Lubkin
Publisher : Jones & Bartlett Publishers
ISBN 13 : 0763799661
Total Pages : 738 pages
Book Rating : 4.7/5 (637 download)

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Book Synopsis Chronic Illness by : Ilene Morof Lubkin

Download or read book Chronic Illness written by Ilene Morof Lubkin and published by Jones & Bartlett Publishers. This book was released on 2013 with total page 738 pages. Available in PDF, EPUB and Kindle. Book excerpt: The newest edition of best-selling Chronic Illness continues to focus on the various aspects of chronic illness that influence both patients and their families. Topics include the sociological, psychological, ethical, organizational, and financial factors, as well as individual and system outcomes. This book is designed to teach students about the whole client or patient versus the physical status of the client with chronic illness. The study questions at the end of each chapter and the case studies help the students apply the information to real life. Evidence-based practice references are included in almost every chapter.

What Doesn't Kill You

Author : Tessa Miller
Publisher : Henry Holt and Company
ISBN 13 : 1250751462
Total Pages : 240 pages
Book Rating : 4.2/5 (57 download)

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Book Synopsis What Doesn't Kill You by : Tessa Miller

Download or read book What Doesn't Kill You written by Tessa Miller and published by Henry Holt and Company. This book was released on 2021-02-02 with total page 240 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Should be read by anyone with a body. . . . Relentlessly researched and undeniably smart." —The New York Times Named one of BuzzFeed's "Best Books of 2021" What Doesn't Kill You is the riveting account of a young journalist’s awakening to chronic illness, weaving together personal story and reporting to shed light on living with an ailment forever. Tessa Miller was an ambitious twentysomething writer in New York City when, on a random fall day, her stomach began to seize up. At first, she toughed it out through searing pain, taking sick days from work, unable to leave the bathroom or her bed. But when it became undeniable that something was seriously wrong, Miller gave in to family pressure and went to the hospital—beginning a years-long nightmare of procedures, misdiagnoses, and life-threatening infections. Once she was finally correctly diagnosed with Crohn’s disease, Miller faced another battle: accepting that she will never get better. Today, an astonishing three in five adults in the United States suffer from a chronic disease—a percentage expected to rise post-Covid. Whether the illness is arthritis, asthma, Crohn's, diabetes, endometriosis, multiple sclerosis, ulcerative colitis, or any other incurable illness, and whether the sufferer is a colleague, a loved one, or you, these diseases have an impact on just about every one of us. Yet there remains an air of shame and isolation about the topic of chronic sickness. Millions must endure these disorders not only physically but also emotionally, balancing the stress of relationships and work amid the ever-present threat of health complications. Miller segues seamlessly from her dramatic personal experiences into a frank look at the cultural realities (medical, occupational, social) inherent in receiving a lifetime diagnosis. She offers hard-earned wisdom, solidarity, and an ultimately surprising promise of joy for those trying to make sense of it all.

Chronic Disease in the Twentieth Century

Author : George Weisz
Publisher : JHU Press
ISBN 13 : 1421413027
Total Pages : 326 pages
Book Rating : 4.4/5 (214 download)

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Book Synopsis Chronic Disease in the Twentieth Century by : George Weisz

Download or read book Chronic Disease in the Twentieth Century written by George Weisz and published by JHU Press. This book was released on 2014-05 with total page 326 pages. Available in PDF, EPUB and Kindle. Book excerpt: Chronic Disease in the Twentieth Century challenges the conventional wisdom that the concept of chronic disease emerged because medicine's ability to cure infectious disease led to changing patterns of disease. Instead, it suggests, the concept was constructed and has evolved to serve a variety of political and social purposes. How and why the concept developed differently in the United States, an United Kingdom, and France are central concerns of this work. While an international consensus now exists, the different paths taken by these three countries continue to exert profound influence. This book seeks to explain why, among the innumerable problems faced by societies, some problems in some places become viewed as critical public issues that shape health policy. -- from back cover.

Managing Chronic Illness Using the Four-Phase Treatment Approach

Author : Patricia A. Fennell
Publisher : John Wiley & Sons
ISBN 13 : 0471462772
Total Pages : 456 pages
Book Rating : 4.4/5 (714 download)

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Book Synopsis Managing Chronic Illness Using the Four-Phase Treatment Approach by : Patricia A. Fennell

Download or read book Managing Chronic Illness Using the Four-Phase Treatment Approach written by Patricia A. Fennell and published by John Wiley & Sons. This book was released on 2003-10-17 with total page 456 pages. Available in PDF, EPUB and Kindle. Book excerpt: A pioneering book to help maximize the quality of life for chronically ill patients Written by a leading authority on chronic illness treatment and management, Managing Chronic Illness Using the Four-Phase Treatment Approach provides evidence-based practice guidelines for clinicians to help their clients with debilitating health problems embrace a new "normal," understand the cyclical nature of their illness, and function at the highest level possible. Patricia Fennell's groundbreaking model for understanding chronic illness identifies and describes four broad phases experienced by the chronically ill: crisis, stabilization, resolution, and integration. Using a broad array of case histories, Fennell vividly illustrates what clients need at each phase and how to assess and respond to them compassionately. Fennell also suggests how clinicians may best use their own changing experiences in their work to help clients transition through the four phases. The goal of the "Four-Phase Model" is to maximize a client's quality of life without offering false hope for a cure, making it an effective treatment strategy for diverse client populations, including people with physiological diseases; patients whose lives are being prolonged by modern medicine; and people who suffer from addiction, post-traumatic stress syndrome, intractable pain, and post-rape and abuse conditions. Complete with detailed treatment protocols for documenting a client's symptoms and quality of life at each phase, Managing Chronic Illness Using the Four-Phase Treatment Approach is a highly practical book for everyone working with chronically ill clients.

How to Live Well with Chronic Pain and Illness

Author : Toni Bernhard
Publisher : Simon and Schuster
ISBN 13 : 1614292639
Total Pages : 352 pages
Book Rating : 4.6/5 (142 download)

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Book Synopsis How to Live Well with Chronic Pain and Illness by : Toni Bernhard

Download or read book How to Live Well with Chronic Pain and Illness written by Toni Bernhard and published by Simon and Schuster. This book was released on 2015-10-06 with total page 352 pages. Available in PDF, EPUB and Kindle. Book excerpt: Comfort, understanding, and advice for those who are suffering--and those who care for them. Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down. In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from: • Mindfulness exercises to mitigate physical and emotional pain • Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations • Tools for navigating the strains illness can place on relationships Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help. Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being.

The Invisible Kingdom

Author : Meghan O'Rourke
Publisher : Penguin
ISBN 13 : 0399573305
Total Pages : 337 pages
Book Rating : 4.3/5 (995 download)

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Book Synopsis The Invisible Kingdom by : Meghan O'Rourke

Download or read book The Invisible Kingdom written by Meghan O'Rourke and published by Penguin. This book was released on 2023-02-28 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: A NEW YORK TIMES BESTSELLER FINALIST FOR THE 2022 NATIONAL BOOK AWARD FOR NONFICTION Named one of the BEST BOOKS OF 2022 by NPR, The New Yorker, Time, and Vogue “Remarkable.” –Andrew Solomon, The New York Times Book Review "At once a rigorous work of scholarship and a radical act of empathy.”—Esquire "A ray of light into those isolated cocoons of darkness that, at one time or another, may afflict us all.” —The Wall Street Journal "Essential."—The Boston Globe A landmark exploration of one of the most consequential and mysterious issues of our time: the rise of chronic illness and autoimmune diseases A silent epidemic of chronic illnesses afflicts tens of millions of Americans: these are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier. Drawing on her own medical experiences as well as a decade of interviews with doctors, patients, researchers, and public health experts, O’Rourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color. Blending lyricism and erudition, candor and empathy, O’Rourke brings together her deep and disparate talents and roles as critic, journalist, poet, teacher, and patient, synthesizing the personal and universal into one monumental project arguing for a seismic shift in our approach to disease. The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.

Public Health Ethics: Cases Spanning the Globe

Author : Drue H. Barrett
Publisher : Springer
ISBN 13 : 9783319238463
Total Pages : 0 pages
Book Rating : 4.2/5 (384 download)

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Book Synopsis Public Health Ethics: Cases Spanning the Globe by : Drue H. Barrett

Download or read book Public Health Ethics: Cases Spanning the Globe written by Drue H. Barrett and published by Springer. This book was released on 2016-04-20 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: This Open Access book highlights the ethical issues and dilemmas that arise in the practice of public health. It is also a tool to support instruction, debate, and dialogue regarding public health ethics. Although the practice of public health has always included consideration of ethical issues, the field of public health ethics as a discipline is a relatively new and emerging area. There are few practical training resources for public health practitioners, especially resources which include discussion of realistic cases which are likely to arise in the practice of public health. This work discusses these issues on a case to case basis and helps create awareness and understanding of the ethics of public health care. The main audience for the casebook is public health practitioners, including front-line workers, field epidemiology trainers and trainees, managers, planners, and decision makers who have an interest in learning about how to integrate ethical analysis into their day to day public health practice. The casebook is also useful to schools of public health and public health students as well as to academic ethicists who can use the book to teach public health ethics and distinguish it from clinical and research ethics.

Sexuality and Chronic Illness

Author : Leslie R. Schover
Publisher : Guilford Press
ISBN 13 : 9780898627152
Total Pages : 380 pages
Book Rating : 4.6/5 (271 download)

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Book Synopsis Sexuality and Chronic Illness by : Leslie R. Schover

Download or read book Sexuality and Chronic Illness written by Leslie R. Schover and published by Guilford Press. This book was released on 1988-06-10 with total page 380 pages. Available in PDF, EPUB and Kindle. Book excerpt: This much-needed work presents a clear, sensitive, and practical guide for clinicians who treat sexual problems among chronically ill men and women. Providing a comprehensive analysis of the difficulties faced by these individuals in their attempts to live full lives, the volume teaches clinicians basic skills needed to comfortably discuss sexuality with patients, assess sexual problems using both psychological and medical approaches, and create a systematic treatment plan. Authors Schover and Jensen's consistent emphasis on integrative assessment and therapeutic techniques goes a long way toward rectifying the imbalance often created by a strictly medical or psychological techniques.

The Infectious Etiology of Chronic Diseases

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309089948
Total Pages : 235 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis The Infectious Etiology of Chronic Diseases by : Institute of Medicine

Download or read book The Infectious Etiology of Chronic Diseases written by Institute of Medicine and published by National Academies Press. This book was released on 2004-07-16 with total page 235 pages. Available in PDF, EPUB and Kindle. Book excerpt: In recent years, a number of chronic diseases have been linked, in some cases definitively, to an infectious etiology: peptic ulcer disease with Helicobacter pylori, cervical cancer with several human papillomaviruses, Lyme arthritis and neuroborreliosis with Borrelia burgdorferi, AIDS with the human immunodeficiency virus, liver cancer and cirrhosis with hepatitis B and C viruses, to name a few. The proven and suspected roles of microbes does not stop with physical ailments; infections are increasingly being examined as associated causes of or possible contributors to a variety of serious, chronic neuropsychiatric disorders and to developmental problems, especially in children. The Infectious Etiology of Chronic Diseases: Defining the Relationship, Enhancing the Research, and Mitigating the Effects, summarizes a two-day workshop held by the Institute of Medicine's Forum on Microbial Threats to address this rapidly evolving field. Participants explored factors driving infectious etiologies of chronic diseases of prominence, identified difficulties in linking infectious agents with chronic outcomes, and discussed broad-based strategies and research programs to advance the field.

When Chronic Illness Enters Your Life - Bible Study

Author : Lisa J. Copen
Publisher : Rest Ministries, Inc.
ISBN 13 : 0971660018
Total Pages : 50 pages
Book Rating : 4.9/5 (716 download)

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Book Synopsis When Chronic Illness Enters Your Life - Bible Study by : Lisa J. Copen

Download or read book When Chronic Illness Enters Your Life - Bible Study written by Lisa J. Copen and published by Rest Ministries, Inc.. This book was released on 2010 with total page 50 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Aging Bones

Author : Gerald N. Grob
Publisher : JHU Press
ISBN 13 : 1421413183
Total Pages : 305 pages
Book Rating : 4.4/5 (214 download)

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Book Synopsis Aging Bones by : Gerald N. Grob

Download or read book Aging Bones written by Gerald N. Grob and published by JHU Press. This book was released on 2014-04-15 with total page 305 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book makes a historical inquiry into how the normal aging of bones was transformed into a medical diagnosis requiring treatment. -- Publisher description.

Living a Healthy Life with Chronic Conditions

Author : Kate Lorig
Publisher :
ISBN 13 : 9780923521530
Total Pages : 330 pages
Book Rating : 4.5/5 (215 download)

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Book Synopsis Living a Healthy Life with Chronic Conditions by : Kate Lorig

Download or read book Living a Healthy Life with Chronic Conditions written by Kate Lorig and published by . This book was released on 2000 with total page 330 pages. Available in PDF, EPUB and Kindle. Book excerpt: Drawing on input from people with long-term ailments, this book points the way to achieving the best possible life under the circumstances.

Living with Chronic Illness and Disability

Author : Esther Chang
Publisher : Elsevier Health Sciences
ISBN 13 : 0729588270
Total Pages : 514 pages
Book Rating : 4.7/5 (295 download)

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Book Synopsis Living with Chronic Illness and Disability by : Esther Chang

Download or read book Living with Chronic Illness and Disability written by Esther Chang and published by Elsevier Health Sciences. This book was released on 2021-10-12 with total page 514 pages. Available in PDF, EPUB and Kindle. Book excerpt: Fully updated and refreshed to reflect current knowledge, data and perspectives

Disease Control Priorities in Developing Countries

Author : Dean T. Jamison
Publisher : World Bank Publications
ISBN 13 : 0821361805
Total Pages : 1449 pages
Book Rating : 4.8/5 (213 download)

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Book Synopsis Disease Control Priorities in Developing Countries by : Dean T. Jamison

Download or read book Disease Control Priorities in Developing Countries written by Dean T. Jamison and published by World Bank Publications. This book was released on 2006-04-02 with total page 1449 pages. Available in PDF, EPUB and Kindle. Book excerpt: Based on careful analysis of burden of disease and the costs ofinterventions, this second edition of 'Disease Control Priorities in Developing Countries, 2nd edition' highlights achievable priorities; measures progresstoward providing efficient, equitable care; promotes cost-effectiveinterventions to targeted populations; and encourages integrated effortsto optimize health. Nearly 500 experts - scientists, epidemiologists, health economists,academicians, and public health practitioners - from around the worldcontributed to the data sources and methodologies, and identifiedchallenges and priorities, resulting in this integrated, comprehensivereference volume on the state of health in developing countries.

Ethics and Chronic Illness

Author : Tom Walker
Publisher : Routledge
ISBN 13 : 0429559887
Total Pages : 242 pages
Book Rating : 4.4/5 (295 download)

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Book Synopsis Ethics and Chronic Illness by : Tom Walker

Download or read book Ethics and Chronic Illness written by Tom Walker and published by Routledge. This book was released on 2019-04-17 with total page 242 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides an account of the ethics of chronic illness. Chronic illness differs from other illnesses in that it is often incurable, patients can live with it for many years, and its day-to-day management is typically carried out by the patient or members of their family. These features problematise key distinctions that underlie much existing work in medical ethics including those between beneficence and autonomy, between treatment and prevention, and between the recipient and provider of treatment. The author carries out a detailed reappraisal of the roles of both autonomy and beneficence across the different stages of treatment for a range of chronic illnesses. A central part of the author’s argument is that in the treatment of chronic illness, the patient and/or the patient’s family should be seen as acting with healthcare professionals to achieve a common aim. This aspect opens up unexplored questions such as what healthcare professionals should do when patients are managing their illness poorly, the ethical implications of patients being responsible for parts of their treatment, and how to navigate sharing information with those directly involved in patient care without violating privacy or breaching confidentiality. The author addresses these challenges by engaging with philosophical work on shared commitments and joint action, responsibility and justice, and privacy and confidentiality. The Ethics of Chronic Illness provides a new, and much needed, critical reappraisal of healthcare professionals’ obligations to their patients. It will be of interests to academics working in bioethics and medical ethics, philosophers interested in the topics of autonomy, responsibility, and consent, and medical practitioners who treat patients with chronic illness.