Author : Nadine McNeal
Publisher :
ISBN 13 :
Total Pages : 250 pages
Book Rating : 4.:/5 (12 download)
Book Synopsis A Qualitative Exploration of the Experience of Parental Caretakers of Adults with Asperger's Syndrome in Rural West Tennessee by : Nadine McNeal
Download or read book A Qualitative Exploration of the Experience of Parental Caretakers of Adults with Asperger's Syndrome in Rural West Tennessee written by Nadine McNeal and published by . This book was released on 2020 with total page 250 pages. Available in PDF, EPUB and Kindle. Book excerpt: ABSTRACT: The phenomenological study was conducted to investigate the experience of parental caregivers of adults with Asperger's syndrome. Bowen's Family Systems Theory provided a theoretical foundation for understanding the complex relationship between the role of the caregiver, the family unit, and the community. The family, as an interdependent system, is purposed to meet the diverse needs of its members. For children with an autism spectrum disorder, the supportive parental role often transitions into one of a long-term caretaker (Buescher et al., 2014). There is scant empirical information presented regarding the issues faced by this population as they enter middle and later adulthood. To address the gap in the literature this study gave attention to the role of parental caregiving, from a rural perspective, for individuals over age 23 with Asperger's syndrome, Ten caregivers addressed issues regarding the psychosocial impact of caregiving, Their relationships with the adult child, and survival with limited community supports. Themes from the study revealed the varied roles, losses, limited community supports, Themes from the study reveled the varied roles, losses, limited community support/resources, and the absence of understanding or empathy that beset the participants in the studio ad they journeyed through the lifecycle of adulthood with their children , Nevertheless, the caregivers shared a lifetime vow of commitment to their children and many appeared empowered by overcoming their various trials.