A Qualitative Exploration of the Experience of Parental Caretakers of Adults with Asperger's Syndrome in Rural West Tennessee

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ISBN 13 :
Total Pages : 250 pages
Book Rating : 4.:/5 (12 download)

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Book Synopsis A Qualitative Exploration of the Experience of Parental Caretakers of Adults with Asperger's Syndrome in Rural West Tennessee by : Nadine McNeal

Download or read book A Qualitative Exploration of the Experience of Parental Caretakers of Adults with Asperger's Syndrome in Rural West Tennessee written by Nadine McNeal and published by . This book was released on 2020 with total page 250 pages. Available in PDF, EPUB and Kindle. Book excerpt: ABSTRACT: The phenomenological study was conducted to investigate the experience of parental caregivers of adults with Asperger's syndrome. Bowen's Family Systems Theory provided a theoretical foundation for understanding the complex relationship between the role of the caregiver, the family unit, and the community. The family, as an interdependent system, is purposed to meet the diverse needs of its members. For children with an autism spectrum disorder, the supportive parental role often transitions into one of a long-term caretaker (Buescher et al., 2014). There is scant empirical information presented regarding the issues faced by this population as they enter middle and later adulthood. To address the gap in the literature this study gave attention to the role of parental caregiving, from a rural perspective, for individuals over age 23 with Asperger's syndrome, Ten caregivers addressed issues regarding the psychosocial impact of caregiving, Their relationships with the adult child, and survival with limited community supports. Themes from the study revealed the varied roles, losses, limited community supports, Themes from the study reveled the varied roles, losses, limited community support/resources, and the absence of understanding or empathy that beset the participants in the studio ad they journeyed through the lifecycle of adulthood with their children , Nevertheless, the caregivers shared a lifetime vow of commitment to their children and many appeared empowered by overcoming their various trials.

Experiences of Accumulated Stress Among Aging Parent Caregivers of Adults with Autism Spectrum Disorder

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ISBN 13 :
Total Pages : 0 pages
Book Rating : 4.:/5 (136 download)

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Book Synopsis Experiences of Accumulated Stress Among Aging Parent Caregivers of Adults with Autism Spectrum Disorder by : Ian McDonough

Download or read book Experiences of Accumulated Stress Among Aging Parent Caregivers of Adults with Autism Spectrum Disorder written by Ian McDonough and published by . This book was released on 2022 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: With the continuing increased incidence rate of autism spectrum disorder over the decades, there are increasing numbers of adults with autism who require varying levels of lifelong care, typically from parents. It is necessary to understand parents' lived experience of lifelong caregiving, and how their own aging process further impacts life quality. Furthermore, greater understanding of stressors, resources, appraisals, and coping among parent caregivers of children with "high functioning autism" who are transitioning into young adulthood is particularly necessary as services, needs, and experiences for both are nuanced due to functional status, deficits in the service system, and demographic disparities. Given lifespan aspects past research has not addressed, the study focused on development of a measure of parent accumulated stressors, and on interrelations of stressors, perceived social support, future time perspective, burden, satisfaction, and coping on health-related quality of life and meaning in life among 28 parents of young adults with autism. Although proposed quantitative analyses were not completed due to sample size, qualitative analyses on parent experiences and stressors revealed common themes of concern for child's future quality of life, complicated dynamics of providing help to their child overtime, and increased stress related to others' lack of understanding of their child. In total, 10 themes and multiple subthemes were identified in relation to aspects of accumulated stressors. Findings suggest parent stress with this specific population is complex, manifesting in nuanced ways at different life stages. Impacts of the COVID-19 pandemic are also explored, and implications for scientific advancement and clinical services are discussed.

Challenge and Resiliency

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ISBN 13 :
Total Pages : 226 pages
Book Rating : 4.:/5 (814 download)

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Book Synopsis Challenge and Resiliency by : Dave McMillan

Download or read book Challenge and Resiliency written by Dave McMillan and published by . This book was released on 2011 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this qualitative study, five caregivers of people with Asperger's Syndrome described their challenges and the resilience factors that assisted them in maintaining wellbeing. There is little research on this population; the challenges faced and their resilience factors. Challenges were explored across the lifespan, through key diagnostic criteria and clinical features of the condition. Resilience factors explored included psychological, relational, environmental and behavioural qualities. Their experiences in these areas were compared to literature on caregivers of people with Asperger's Syndrome and Autism Spectrum Disorders. Key themes of challenges that emerged were grief and challenges throughout the developmental stages, difficulties in accessing helpful services, reduced eligibility and access to services compared to other populations and facing judgement, criticism and blame from some professionals, family members and community members. Key resiliency themes emerged within internal and external categories. Internalised factors included having a positive self-identity, having positive attitudes and using spirituality and religion to make healthy meanings of circumstances. Important externalised behavioural factors identified were showing active agency inside and outside the family to access the resources and life they wanted and actively managing interpersonal boundaries. Unexpected findings included the benefits gained from helping others and accepting the realities of caregiving for their children. Recommendations were made regarding establishing a multi-disciplinary service that could provide practical and emotional support through each developmental stage, link caregivers with mentors and parent groups from the time of diagnosis, conduct assessments to identify challenges faced and areas of resilience to enhance and to teach resiliency skills.

Experiences of Neurotypical Adults Raised by Parents with Asperger's Syndrome

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ISBN 13 :
Total Pages : 0 pages
Book Rating : 4.:/5 (14 download)

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Book Synopsis Experiences of Neurotypical Adults Raised by Parents with Asperger's Syndrome by : Ava Pommerenk

Download or read book Experiences of Neurotypical Adults Raised by Parents with Asperger's Syndrome written by Ava Pommerenk and published by . This book was released on 2017 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Common Positive and Negative Experiences Among Parents and Caregivers of School-aged Children with Autism Spectrum Disorder

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Publisher :
ISBN 13 :
Total Pages : 0 pages
Book Rating : 4.:/5 (134 download)

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Book Synopsis Common Positive and Negative Experiences Among Parents and Caregivers of School-aged Children with Autism Spectrum Disorder by : Eva Loeffler

Download or read book Common Positive and Negative Experiences Among Parents and Caregivers of School-aged Children with Autism Spectrum Disorder written by Eva Loeffler and published by . This book was released on 2022 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The rate of children diagnosed with autism has skyrocketed over the past two decades. Although the increase in autism prevalence rates has led to more interest, research, and understanding of children with autism, there has been less understanding and focus on parents' and caregivers' experiences. Parents and caregivers face a range of complexities and challenges in raising a child with autism spectrum disorder (ASD). Studies of parental experiences with raising a child with ASD have identified mostly negatives, such as increased stress, emotional burnout, and social isolation. Fewer studies have examined positive experiences, such as coping, resilience, and personal growth. Not enough studies have focused on parents' and caregivers' experiences raising a child with ASD. Many parents and caregivers face caregiving responsibility for a child who will likely require lifelong services and support. It is important to understand the unique experiences of parents and caregivers in order to better understand and address their needs and to create better and more effective intervention and support for caregivers of children with ASD. Using a scoping review of the literature, this graduate project asks the following: What are the most common experiences for parents and caregivers raising children with ASD? Specifically, do parents and caregivers develop resilience and strength from their experiences?

A Qualitative Exploration of Caregiver Characteristics and Experiences Across Ecological Contexts

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ISBN 13 :
Total Pages : 82 pages
Book Rating : 4.:/5 (132 download)

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Book Synopsis A Qualitative Exploration of Caregiver Characteristics and Experiences Across Ecological Contexts by : Nicole O'Dea

Download or read book A Qualitative Exploration of Caregiver Characteristics and Experiences Across Ecological Contexts written by Nicole O'Dea and published by . This book was released on 2020 with total page 82 pages. Available in PDF, EPUB and Kindle. Book excerpt:

The Nine Degrees of Autism

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Publisher : Routledge
ISBN 13 : 1317500695
Total Pages : 211 pages
Book Rating : 4.3/5 (175 download)

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Book Synopsis The Nine Degrees of Autism by : Philip Wylie

Download or read book The Nine Degrees of Autism written by Philip Wylie and published by Routledge. This book was released on 2015-10-12 with total page 211 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Nine Degrees of Autism presents a much-needed positive tool for understanding the developmental process of autism, and to facilitate the improved mental health and well-being of individuals on the spectrum. The ground-breaking model charts nine distinct stages of development - from pre-identification, to learning to live with changes in self-image following a late diagnosis, through to self-acceptance and wellbeing. Using the model as a framework each chapter focuses on a particular stage of the process. Experts provide personal insights into the environmental and societal challenges faced by individuals with autism, and dispel a number of popular misconceptions. The positive developmental model described in this book will encourage people on the Spectrum to accept themselves by focusing on their gifts rather than weaknesses, and to avoid identifying with negative medical classifications. The developmental process which the authors describe is also applicable to other ‘hidden’ neurological conditions such as Dyslexia, Dyspraxia, Aphasia, and ADHD. The book should be read by anyone who wants to understand the real nature and experience of autism and will also be essential reading for a range of professionals seeking to work more effectively with individuals on the spectrum.

Autism Spectrum Disorders in Adults

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Publisher : Springer
ISBN 13 : 331942713X
Total Pages : 278 pages
Book Rating : 4.3/5 (194 download)

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Book Synopsis Autism Spectrum Disorders in Adults by : Bernardo Barahona Corrêa

Download or read book Autism Spectrum Disorders in Adults written by Bernardo Barahona Corrêa and published by Springer. This book was released on 2017-04-13 with total page 278 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this book a group of international experts guide the reader through the clinical features of adults with autism spectrum disorders, describe the care needs of patients and their families, explain the evolution of the disorders into old age, and highlight what can be done to help. Detailed attention is paid to the medical and psychiatric problems of adults with these disorders and the approach to their education and professional integration. In addition, expert neuroscientists summarize current views on the neurobiology of autism. Autism spectrum disorders are devastating neurodevelopmental disorders. Although diagnosis and therapeutic interventions usually take place in infancy, they are chronic lifelong conditions. Surprisingly, the literature on autism spectrum disorders in adults is scarce. Moreover, most mental health professionals working with adults have little training in autism, and adult mental health services around the world are rarely prepared to address the needs of these patients, which tend to increase with age. This book therefore fills a crucial gap in the literature and will prove useful for all who care for and deal with adults in the Autistic Spectrum.

Developmental and Behavioral Pediatrics

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ISBN 13 : 9781581106862
Total Pages : 590 pages
Book Rating : 4.1/5 (68 download)

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Book Synopsis Developmental and Behavioral Pediatrics by : Robert G. Voigt

Download or read book Developmental and Behavioral Pediatrics written by Robert G. Voigt and published by . This book was released on 2011 with total page 590 pages. Available in PDF, EPUB and Kindle. Book excerpt: All-new clinical resource for managing children with developmental and behavioral concerns. Developed by leading experts in developmental and behavioral pediatrics, the all-new AAP Developmental and Behavioral Pediatrics gives one place to turn for expert recommendations to deliver, coordinate, and/or monitor quality developmental/behavioral care within the medical home. The one resource with all the essentials for pediatric primary care providers. Evaluation and care initiation: Interviewing and counseling, Surveillance and screening, Psychoeducational testing, Neurodevelopment.

I Am AspienWoman

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Publisher : AspienGirl
ISBN 13 : 9780992360948
Total Pages : 0 pages
Book Rating : 4.3/5 (69 download)

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Book Synopsis I Am AspienWoman by : Tania Marshall

Download or read book I Am AspienWoman written by Tania Marshall and published by AspienGirl. This book was released on 2015-08-12 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Have you ever wondered about a friend, a partner, a mother, sister or daughter? Wondered why she says she feels 'different'? Maybe she is a woman on the Autism spectrum, with a unique constellation of super-abilities, strengths and challenges?

Ethics and Neurodiversity

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Publisher : Cambridge Scholars Publishing
ISBN 13 : 1443867594
Total Pages : 315 pages
Book Rating : 4.4/5 (438 download)

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Book Synopsis Ethics and Neurodiversity by : Alexandra Perry

Download or read book Ethics and Neurodiversity written by Alexandra Perry and published by Cambridge Scholars Publishing. This book was released on 2014-09-26 with total page 315 pages. Available in PDF, EPUB and Kindle. Book excerpt: Increasingly, voices in the growing neurodiversity movement are alleging that individuals who are neurologically divergent, such as those with conditions related to bipolar disorder, autism, schizophrenia, and depression, must struggle for their civil rights. This movement therefore raises questions of interest to scholars in the humanities and social sciences, as well as to concerned members of the general public. These questions have to do with such matters as the accessibility of knowledge about mental health; autonomy and community within the realm of the mentally ill; and accommodation in civil society and its institutions. The contributors to Ethics and Neurodiversity explore these questions, and the traditional philosophical questions related to them. The authors pay special attention to the need to examine the policies and practices of institutions, such as higher education, social support, and healthcare.

Critical Needs and Gaps in Understanding Prevention, Amelioration, and Resolution of Lyme and Other Tick-Borne Diseases

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Publisher : National Academies Press
ISBN 13 : 0309211093
Total Pages : 560 pages
Book Rating : 4.3/5 (92 download)

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Book Synopsis Critical Needs and Gaps in Understanding Prevention, Amelioration, and Resolution of Lyme and Other Tick-Borne Diseases by : Institute of Medicine

Download or read book Critical Needs and Gaps in Understanding Prevention, Amelioration, and Resolution of Lyme and Other Tick-Borne Diseases written by Institute of Medicine and published by National Academies Press. This book was released on 2011-07-01 with total page 560 pages. Available in PDF, EPUB and Kindle. Book excerpt: A single tick bite can have debilitating consequences. Lyme disease is the most common disease carried by ticks in the United States, and the number of those afflicted is growing steadily. If left untreated, the diseases carried by ticks-known as tick-borne diseases-can cause severe pain, fatigue, neurological problems, and other serious health problems. The Institute of Medicine held a workshop October 11-12, 2010, to examine the state of the science in Lyme disease and other tick-borne diseases.

Assessment of Autism Spectrum Disorder

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Publisher : Guilford Publications
ISBN 13 : 1462533175
Total Pages : 461 pages
Book Rating : 4.4/5 (625 download)

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Book Synopsis Assessment of Autism Spectrum Disorder by : Sam Goldstein

Download or read book Assessment of Autism Spectrum Disorder written by Sam Goldstein and published by Guilford Publications. This book was released on 2018-02-12 with total page 461 pages. Available in PDF, EPUB and Kindle. Book excerpt: This authoritative resource, now thoroughly revised for DSM-5, has set the standard for the comprehensive assessment of autism spectrum disorder (ASD). Leading experts demonstrate how to craft a scientifically grounded profile of each child’s strengths and difficulties, make a formal diagnosis, and use assessment data to guide individualized intervention in clinical and school settings. Chapters review state-of-the-art instruments and approaches for evaluating specific areas of impairment in ASD and co-occurring emotional and behavioral disorders. Considerations in working with children of different ages are highlighted. With a primary focus on children, several chapters also address assessment of adolescents and adults. New to This Edition *Chapter on key implications of DSM-5 diagnostic criteria, plus related updates throughout the volume. *Chapter on advances in early identification (ages 0–3). *Chapter with in-depth case examples illustrating the evaluation decision-making process and common diagnostic challenges. *Chapters on pseudoscience (including strategies for advising parents) and future directions in the field. *Current assessment data, numerous new and revised measures, and cutting-edge screening approaches.

Intrinsic and Extrinsic Motivation

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Publisher : Elsevier
ISBN 13 : 0080509096
Total Pages : 513 pages
Book Rating : 4.0/5 (85 download)

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Book Synopsis Intrinsic and Extrinsic Motivation by : Carol Sansone

Download or read book Intrinsic and Extrinsic Motivation written by Carol Sansone and published by Elsevier. This book was released on 2000-09-12 with total page 513 pages. Available in PDF, EPUB and Kindle. Book excerpt: In understanding human behavior, psychologists have long been interested in what motivates specific actions. Debates have pitted extrinsic motivators (e.g. rewards/punishment) against intrinsic motivation in attempting to determine what best motivates individuals. This book provides a summary view of what research has determined about both extrinsic and intrinsic motivation, and clarifies what questions remain unanswered. Divided into three sections, section I revisits the debate about the effects of extrinsic incentives or constraints on intrinsic motivation and creativity, and identifies theoretical advances in motivational research. Section II focuses on the hidden costs and benefits of different types of achievement goals on motivation and performance. Section III discusses theory and research findings on how extrinsic and intrinsic motivators may work in everyday life and over time. This book is of interest to researchers in psychology, education, and business, as well as to a wider audience interested in promoting optimal motivation and performance.Coverage in this book includes:* Debates and controversies in motivational research* Developmental nature of intrinsic and extrinsic motivation over time* Influences of parents, educators, and employers in facilitating motivation* Effect of achievement goals on learning and performance* The role of intrinsic and extrinsic motivation in self-regulation Key Features* Brings together major figures in the fields of motivation, education, and social psychology* Provides a mix of theory, basic and applied research* Presents research conducted both in laboratories and educational settings* Comprehensive chapters provide excellent reviews of previous literature as well as outlines important new directions* Provides different perspectives on controversial debates in a balanced, constructive manner

Handbook of Autism Spectrum Disorder and the Law

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Publisher : Springer Nature
ISBN 13 : 3030709132
Total Pages : 563 pages
Book Rating : 4.0/5 (37 download)

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Book Synopsis Handbook of Autism Spectrum Disorder and the Law by : Fred R. Volkmar

Download or read book Handbook of Autism Spectrum Disorder and the Law written by Fred R. Volkmar and published by Springer Nature. This book was released on 2021-09-22 with total page 563 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book addresses an important and relatively neglected topic in the scientific literature: individuals with autism spectrum disorder (ASD) who have dealings with the legal system. It examines issues and implications for autistic people, who have a significant risk for engagement with the legal system in some capacity (e.g., witness/bystander, victim, or perpetrator). Key areas of coverage include: Autistic people as victims and perpetrators of criminal activities, including violence, stalking, sexual exploitation, and cybercrime. Risks for unlawful behavior in individuals with autism and Asperger's. Legal assessment issues, such as witness protection and postconviction diagnoses. Legal outcomes for autistic people, including case law, prevention, service provisions in correctional settings, and rights and support systems. The Handbook of Autism Spectrum Disorder and the Law is an essential, comprehensive resource that explores the risk for unlawful behaviors affecting autistitc people as victims and perpetrators, as well as related issues of assessment and treatment, and outcome. It is a must-have reference for researchers, clinicians/practitioners, and graduate students in psychology, psychiatry, social work, and law, as well as professionals in such related fields, as criminology/criminal justice and the legal system.

I Am Aspiengirl

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Publisher : Aspiengirl(r)
ISBN 13 : 9780992360924
Total Pages : 158 pages
Book Rating : 4.3/5 (69 download)

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Book Synopsis I Am Aspiengirl by : Tania Marshall

Download or read book I Am Aspiengirl written by Tania Marshall and published by Aspiengirl(r). This book was released on 2014-06-30 with total page 158 pages. Available in PDF, EPUB and Kindle. Book excerpt: Have you ever wondered why she says she feels different to her peers? Wondered why life seems challenging for her? Her peers seem to gracefully and naturally meet their milestones, yet she has reached some developmental milestones early and some late. She may have spoken and read early, asking an endless array of questions. Maybe at age four she was teaching herself to read as you drove down the road by reading street signs. She may have been an overly active child, had sensory issues, or had a speech delay. You knew she was bright from early on, with a sprinkle of some anxiety, social and eating issues, yet the professionals just cannot find an explanation that completely fits her. She may be very artistic, whether she sings, draws, paints, or writes, at times, too mature for her age. Yet, she struggles socially and emotionally, acting and appearing younger than her peers. She may be ten years old now, yet none of your research completely fits her or maybe you have just now come across some information on females that completely makes sense to you. Maybe she is "Aspien," a young female with Asperger Syndrome or High-Functioning Autism. She has a unique constellation of super-abilities, strengths and challenges. She may feel or say that she is from another Planet, Planet Aspien(r). If you are looking for a book on the often perplexing and unique female Autism Spectrum traits, then this is the book for you. Watch for "I am AspienWoman," coming soon.

Autism in the Workplace

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Publisher : Springer Nature
ISBN 13 : 3030290492
Total Pages : 278 pages
Book Rating : 4.0/5 (32 download)

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Book Synopsis Autism in the Workplace by : Amy E. Hurley-Hanson

Download or read book Autism in the Workplace written by Amy E. Hurley-Hanson and published by Springer Nature. This book was released on 2019-11-15 with total page 278 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book explores the career experiences of Generation A, the half-million individuals with autism spectrum disorder (ASD) who will reach adulthood in the next decade. With Generation A eligible to enter the workforce in unprecedented numbers, research is needed to help individuals, organizations, and educational institutions to work together to create successful work experiences and career outcomes for individuals with ASD. Issues surrounding ASD in the workplace are discussed from individual, organizational, and societal perspectives. This book also examines the stigma of autism and how it may affect the employment and career experiences of individuals with ASD. This timely book provides researchers, practitioners, and employers with empirical data that examines the work and career experiences of individuals with ASD. It offers a framework for organizations committed to hiring individuals with ASD and enhancing their work experiences and career outcomes now and in the future.