What You Need To Know About Als

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Navigating Life with Amyotrophic Lateral Sclerosis

Author : Mark B. Bromberg
Publisher : Oxford University Press
ISBN 13 : 0190241624
Total Pages : 281 pages
Book Rating : 4.1/5 (92 download)

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Book Synopsis Navigating Life with Amyotrophic Lateral Sclerosis by : Mark B. Bromberg

Download or read book Navigating Life with Amyotrophic Lateral Sclerosis written by Mark B. Bromberg and published by Oxford University Press. This book was released on 2017 with total page 281 pages. Available in PDF, EPUB and Kindle. Book excerpt: Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease.

Palliative Care in Amyotrophic Lateral Sclerosis

Author : David Oliver
Publisher : OUP Oxford
ISBN 13 : 0191509507
Total Pages : 353 pages
Book Rating : 4.1/5 (915 download)

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Book Synopsis Palliative Care in Amyotrophic Lateral Sclerosis by : David Oliver

Download or read book Palliative Care in Amyotrophic Lateral Sclerosis written by David Oliver and published by OUP Oxford. This book was released on 2014-03-20 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: Amytrophic Lateral Sclerosis (ALS or motor neurone disease) is a progressive neurodegenerative disease that can cause profound suffering for both the patient and their family. Whilst new treatments for ALS are being developed, these are not curative and offer only the potential to slow its progression. Palliative care must therefore be integral to the clinical approach to the disease. Palliative Care in Amyotrophic Lateral Sclerosis: From diagnosis to bereavement reflects the wide scope of this care; it must cover not just the terminal phase, but support the patient and their family from the onset of the disease. Both the multidisciplinary palliative care team and the neurology team are essential in providing a high standard of care and allowing quality of life (both patient and carer) to be maintained. Clear guidelines are provided to address care throughout the disease process. Control of symptoms is covered alongside the psychosocial care of patients and their families. Case studies are used to emphasise the complexity of the care needs and involvement of the patient and family, culminating in discussion of bereavement. Different models of care are explored, and this new edition utilizes the increase in both the evidence-base and available literature on the subject. New topics discussed include complementary therapies, personal and family experiences of ALS, new genetics research, and updated guidelines for patient care, to ensure this new edition remains the essential guide to palliative care in ALS.

Lou Gehrig Disease, Als Or Amyotrophic Lateral Sclerosis Explained. Als Symptoms, Signs, Stages, Types, Diagnosis, Treatment, Caregiver Tips, Aids And

Download Lou Gehrig Disease, Als Or Amyotrophic Lateral Sclerosis Explained. Als Symptoms, Signs, Stages, Types, Diagnosis, Treatment, Caregiver Tips, Aids And PDF Online Free

Author : Robert Rymore
Publisher : Imb Publishing
ISBN 13 : 9781909151604
Total Pages : 154 pages
Book Rating : 4.1/5 (516 download)

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Book Synopsis Lou Gehrig Disease, Als Or Amyotrophic Lateral Sclerosis Explained. Als Symptoms, Signs, Stages, Types, Diagnosis, Treatment, Caregiver Tips, Aids And by : Robert Rymore

Download or read book Lou Gehrig Disease, Als Or Amyotrophic Lateral Sclerosis Explained. Als Symptoms, Signs, Stages, Types, Diagnosis, Treatment, Caregiver Tips, Aids And written by Robert Rymore and published by Imb Publishing. This book was released on 2013-08-01 with total page 154 pages. Available in PDF, EPUB and Kindle. Book excerpt: The author, Robert Rymore, had a good friend who was diagnosed with Lou Gehrig Disease. He wanted to be able to help her and decided to buy some books about the disease. To his disappointment there was a lack of good informative books available on the subject. He decided to investigate the subject thoroughly and write a book about it to be able to help others. He decided he would start talking to professionals - doctors, physical therapists, speech therapists and occupational therapists - to learn more. He quickly realized the information he was getting would be extremely valuable for other people with ALS and their loved ones. This book has been a labor of love, one born of necessity and certainly one that aims to help those with ALS, their families, and their friends. ALS symptoms, signs, stages, types, diagnosis, treatment, caregiver tips, aids and what to expect is all covered. Including chapters about financial considerations, famous people with Lou Gehrig Disease and resources. The book is written in an easy to read and understandable style and contains tips for caregivers.

Dying Well

Author : Ira Byock
Publisher : Penguin
ISBN 13 : 110150028X
Total Pages : 321 pages
Book Rating : 4.1/5 (15 download)

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Book Synopsis Dying Well by : Ira Byock

Download or read book Dying Well written by Ira Byock and published by Penguin. This book was released on 1998-03-01 with total page 321 pages. Available in PDF, EPUB and Kindle. Book excerpt: From Ira Byock, prominent palliative care physician and expert in end of life decisions, a lesson in Dying Well. Nobody should have to die in pain. Nobody should have to die alone. This is Ira Byock's dream, and he is dedicating his life to making it come true. Dying Well brings us to the homes and bedsides of families with whom Dr. Byock has worked, telling stories of love and reconciliation in the face of tragedy, pain, medical drama, and conflict. Through the true stories of patients, he shows us that a lot of important emotional work can be accomplished in the final months, weeks, and even days of life. It is a companion for families, showing them how to deal with doctors, how to talk to loved ones—and how to make the end of life as meaningful and enriching as the beginning. Ira Byock is also the author of The Best Care Possible: A Physician's Quest to Transform Care Through the End of Life.

The End-of-Life Handbook

Author : David Feldman
Publisher : New Harbinger Publications
ISBN 13 : 1608824985
Total Pages : 202 pages
Book Rating : 4.6/5 (88 download)

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Book Synopsis The End-of-Life Handbook by : David Feldman

Download or read book The End-of-Life Handbook written by David Feldman and published by New Harbinger Publications. This book was released on 2008-01-01 with total page 202 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book address both the emotional and psychological issues associated with death and dying and the practical and medical realities typically dealt with at this time-unusual among titles in this subject area. The authors, a psychologist and medical doctor, are passionate advocates for quality end-of-life care. Author Feldman's background in positive psychology brings an emphasis on hope, inspiration, meaning, and human connection at the end of life to the book. As medical technology progresses and life expectancies edge upward, families are being faced with ever-more-complicated choices as loved ones approach their final hours. This book offers readers much-needed guidance and support for making these often difficult decisions.

What You Need to Know about ALS

Author : Harry LeVine III
Publisher : Bloomsbury Publishing USA
ISBN 13 : 1440863571
Total Pages : 168 pages
Book Rating : 4.4/5 (48 download)

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Book Synopsis What You Need to Know about ALS by : Harry LeVine III

Download or read book What You Need to Know about ALS written by Harry LeVine III and published by Bloomsbury Publishing USA. This book was released on 2019-10-11 with total page 168 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book offers an accessibly written introduction to ALS, focusing on the topics that matter most to anyone whose life has been affected—directly or indirectly—by this condition. Amyotrophic lateral sclerosis (ALS) or Lou Gehrig's disease, is a neurodegenerative disease that affects the motor neurons that drive voluntary movement. Those diagnosed with ALS experience difficulty moving and speaking and, as the condition worsens, difficulty swallowing and breathing. Beyond this definition, however, what do those affected by ALS need to know? What You Need to Know about ALS is a part of Greenwood's Inside Diseases and Disorders series. This series profiles a variety of physical and psychological conditions, and distills vast collections of scientific knowledge into concise, readable volumes. A list of "Top 10" essential questions begins each book, providing quick-access answers to readers' concerns. The text follows a standardized structure, with each chapter exploring a particular facet of the topic. In addition to covering causes, signs and symptoms, diagnosis, and treatment options, books in this series delve into issues that are less commonly addressed but still critical to understand, such as effects on loved ones and caregivers. Case illustrations highlight key themes discussed in the book and are accompanied by insightful analyses and recommendations.

Handbook for Mortals

Author : Joanne Lynn, MD
Publisher : Oxford University Press
ISBN 13 : 0199744564
Total Pages : 317 pages
Book Rating : 4.1/5 (997 download)

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Book Synopsis Handbook for Mortals by : Joanne Lynn, MD

Download or read book Handbook for Mortals written by Joanne Lynn, MD and published by Oxford University Press. This book was released on 2011-06-16 with total page 317 pages. Available in PDF, EPUB and Kindle. Book excerpt: Rev. ed. of: Handbook for mortals / Joanne Lynn, Joan Harrold, and the Center to Improve Care of the Dying, George Washington University. 1999.

The Deanna Protocol

Author : Vincent Tedone
Publisher :
ISBN 13 : 9781941102107
Total Pages : pages
Book Rating : 4.1/5 (21 download)

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Book Synopsis The Deanna Protocol by : Vincent Tedone

Download or read book The Deanna Protocol written by Vincent Tedone and published by . This book was released on 2015-07-10 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: The authors are in a life and death struggle against a terrible disease, Amyotrophic Lateral Sclerosis, which is referred to as ALS or Lou Gehrig's disease. If you or a loved one have been diagnosed with ALS, then you need to read this book. The Deanna Protocol® program was discovered by Dr. Tedone, Deanna's father, only after failing, again and again, with everything that he tried. The massage, non-exhausting exercise and core supplements, which are inexpensive and available without prescription from many suppliers. The program works for many ALS patients. It is not a cure, however, it provides a better quality of life and has been shown in ALS mice to extend life and improve motor skills. The rate of progression of ALS symptoms reported in ALSFRS scores, is markedly reduced in those adhering to the Deanna Protocol® program. There a few side effects reported, and those are manageable for most, if the program is phased in, gradually, over time.

Biometals in Neurodegenerative Diseases

Author : Anthony R. White
Publisher : Academic Press
ISBN 13 : 0128045639
Total Pages : 468 pages
Book Rating : 4.1/5 (28 download)

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Book Synopsis Biometals in Neurodegenerative Diseases by : Anthony R. White

Download or read book Biometals in Neurodegenerative Diseases written by Anthony R. White and published by Academic Press. This book was released on 2017-04-28 with total page 468 pages. Available in PDF, EPUB and Kindle. Book excerpt: Biometals in Neurodegenerative Diseases: Mechanisms and Therapeutics is an authoritative and timely resource bringing together the major findings in the field for ease of access to those working in the field or with an interest in metals and their role in brain function, disease, and as therapeutic targets. Chapters cover metals in Alzheimer's Disease, Parkinson's Disease, Motor Neuron Disease, Autism and lysosomal storage disorders. This book is written for academic researchers, clinicians and advanced graduate students studying or treating patients in neurodegeneration, neurochemistry, neurology and neurotoxicology. The scientific literature in this field is advancing rapidly, with approximately 300 publications per year adding to our knowledge of how biometals contribute to neurodegenerative diseases. Despite this rapid increase in our understanding of biometals in brain disease, the fields of biomedicine and neuroscience have often overlooked this information. The need to bring the research on biometals in neurodegeneration to the forefront of biomedical research is essential in order to understand neurodegenerative disease processes and develop effective therapeutics. - Authoritative and timely resource bringing together the major findings in the field for those with an interest in metals and their role in the brain function, disease, and as therapeutic targets - Written for academic researchers, clinicians, and advanced graduate students studying, or treating, patients in neurodegeneration, neurochemistry, neurology and neurotoxicology - Edited by international leaders in the field who have contributed greatly to the study of metals in neurodegenerative diseases

Until I Say Good-Bye

Author : Bret Witter
Publisher : Hachette UK
ISBN 13 : 1444762214
Total Pages : 346 pages
Book Rating : 4.4/5 (447 download)

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Book Synopsis Until I Say Good-Bye by : Bret Witter

Download or read book Until I Say Good-Bye written by Bret Witter and published by Hachette UK. This book was released on 2013-03-14 with total page 346 pages. Available in PDF, EPUB and Kindle. Book excerpt: THE NEW YORK TIMES BESTSELLER What would you do with one last year? Susan Spencer-Wendel was determined to laugh instead of cry. In June 2011, Susan Spencer-Wendel learned she had amyotrophic lateral sclerosis (ALS) - Lou Gehrig's disease - an irreversible condition that systematically destroys the nerves that power the muscles. She was 44-years-old, with three young children, and she had only one year of health remaining. She decided to live that year with joy. She left her job as a journalist and spent time with her family. She built a meeting place for friends in her backyard. And she took seven trips with the seven most important people in her life. As her health declined, Susan journeyed to the Yukon, Hungary, the Bahamas, and Cyprus. She went to the beach with her sons and to Kleinfeld's bridal shop in New York City with her teenage daughter, Marina, for a glimpse of the wedding she would never attend. She also wrote this book. No longer able to walk or even lift her arms, she tapped it out letter by letter on her iPhone using only her right thumb, the last finger still working. And yet Until I Say Good-Bye is not angry or bitter. It is sad in parts - how could it not be? - but it is filled with Susan's optimism, joie de vivre and sens of humour. It is a book that, like Susan, will make everyone smile. From a hilarious family Christmas disaster to the decrepit monastery in eastern Cyprus where she rediscovered her heritage, Until I Say Good-Bye is Susan Spencer-Wendel's unforgettable gift to her loved ones and to us: a record of their final experiences together and a reminder that every day is better when it is lived with joy.

Advanced Life Support Participant's Manual

Author : American Red Cross
Publisher :
ISBN 13 : 9781736744703
Total Pages : pages
Book Rating : 4.7/5 (447 download)

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Book Synopsis Advanced Life Support Participant's Manual by : American Red Cross

Download or read book Advanced Life Support Participant's Manual written by American Red Cross and published by . This book was released on 2021-06-30 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:

Model Rules of Professional Conduct

Author : American Bar Association. House of Delegates
Publisher : American Bar Association
ISBN 13 : 9781590318737
Total Pages : 216 pages
Book Rating : 4.3/5 (187 download)

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Book Synopsis Model Rules of Professional Conduct by : American Bar Association. House of Delegates

Download or read book Model Rules of Professional Conduct written by American Bar Association. House of Delegates and published by American Bar Association. This book was released on 2007 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Model Rules of Professional Conduct provides an up-to-date resource for information on legal ethics. Federal, state and local courts in all jurisdictions look to the Rules for guidance in solving lawyer malpractice cases, disciplinary actions, disqualification issues, sanctions questions and much more. In this volume, black-letter Rules of Professional Conduct are followed by numbered Comments that explain each Rule's purpose and provide suggestions for its practical application. The Rules will help you identify proper conduct in a variety of given situations, review those instances where discretionary action is possible, and define the nature of the relationship between you and your clients, colleagues and the courts.

Motor Neuron Disease in Adults

Author : Mark B. Bromberg
Publisher : Contemporary Neurology
ISBN 13 : 019978311X
Total Pages : 369 pages
Book Rating : 4.1/5 (997 download)

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Book Synopsis Motor Neuron Disease in Adults by : Mark B. Bromberg

Download or read book Motor Neuron Disease in Adults written by Mark B. Bromberg and published by Contemporary Neurology. This book was released on 2014-10-28 with total page 369 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'Motor Neuron Disease in Adults' reviews new information from 1998 as it applies to all aspects of motor neuron disease. Articles included use evidence-based methods to ensure that the new information is solid and advances the topic. The book can be used by anyone who provides any type of care to ALS patients.

Neurology in Clinical Practice

Author : Walter George Bradley
Publisher :
ISBN 13 : 9780750674690
Total Pages : 1672 pages
Book Rating : 4.6/5 (746 download)

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Book Synopsis Neurology in Clinical Practice by : Walter George Bradley

Download or read book Neurology in Clinical Practice written by Walter George Bradley and published by . This book was released on 2004 with total page 1672 pages. Available in PDF, EPUB and Kindle. Book excerpt: New edition, completely rewritten, with new chapters on endovascular surgery and mitochrondrial and ion channel disorders.

The Management of Motor Neurone Disease

Author : George M. Cochrane
Publisher :
ISBN 13 :
Total Pages : 124 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis The Management of Motor Neurone Disease by : George M. Cochrane

Download or read book The Management of Motor Neurone Disease written by George M. Cochrane and published by . This book was released on 1987 with total page 124 pages. Available in PDF, EPUB and Kindle. Book excerpt:

And Love Speaks

Author : Jamie L Blair
Publisher : Euphoria Publishing
ISBN 13 : 9781638771234
Total Pages : 38 pages
Book Rating : 4.7/5 (712 download)

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Book Synopsis And Love Speaks by : Jamie L Blair

Download or read book And Love Speaks written by Jamie L Blair and published by Euphoria Publishing. This book was released on 2021-05-24 with total page 38 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Grandma said she's sick, but she looks fine to me. She has a disease called ALS that makes it hard for her muscles to work. My whole family is learning new ways to help her, but I miss how things used to be." Amyotrophic Lateral Sclerosis (ALS) is a very challenging disease that affects all types of people: parents, grandparents, aunts, uncles, and friends. Of course, it also has an enormous impact on the children who love those who've been diagnosed with ALS. Children bring kisses, hugs, caregiving, and joy to those living with ALS, but at the same time, those children may be experiencing confusion, fear, and worry as they watch the person they love face a scary disease. And Love Speaks helps to navigate those difficult feelings and conversations, to help children understand that their loved one with ALS is the same person inside, and to maximize quality time together ensuring every moment counts.

Multiple Sclerosis

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309072859
Total Pages : 457 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis Multiple Sclerosis by : Institute of Medicine

Download or read book Multiple Sclerosis written by Institute of Medicine and published by National Academies Press. This book was released on 2001-08-10 with total page 457 pages. Available in PDF, EPUB and Kindle. Book excerpt: Multiple sclerosis is a chronic and often disabling disease of the nervous system, affecting about 1 million people worldwide. Even though it has been known for over a hundred years, no cause or cure has yet been discovered-but now there is hope. New therapies have been shown to slow the disease progress in some patients, and the pace of discoveries about the cellular machinery of the brain and spinal cord has accelerated. This book presents a comprehensive overview of multiple sclerosis today, as researchers seek to understand its processes, develop therapies that will slow or halt the disease and perhaps repair damage, offer relief for specific symptoms, and improve the abilities of MS patients to function in their daily lives. The panel reviews existing knowledge and identifies key research questions, focusing on: Research strategies that have the greatest potential to understand the biological mechanisms of recovery and to translate findings into specific strategies for therapy. How people adapt to MS and the research needed to improve the lives of people with MS. Management of disease symptoms (cognitive impairment, depression, spasticity, vision problems, and others). The committee also discusses ways to build and financially support the MS research enterprise, including a look at challenges inherent in designing clinical trials. This book will be important to MS researchers, research funders, health care advocates for MS research and treatment, and interested patients and their families.