The Willowbrook Wars

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The Willowbrook Wars

Author : David J. Rothman
Publisher : Routledge
ISBN 13 : 1351472569
Total Pages : 417 pages
Book Rating : 4.3/5 (514 download)

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Book Synopsis The Willowbrook Wars by : David J. Rothman

Download or read book The Willowbrook Wars written by David J. Rothman and published by Routledge. This book was released on 2017-07-12 with total page 417 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Willowbrook Wars is a dramatic and illuminating account of the effort to close down a scandal-ridden institution and return its 5,400 handicapped residents to communities in New York. The wars began in 1972 with Geraldo Rivera's televised raid on the Willowbrook State School. They continued for three years in a federal courtroom, with civil libertarian lawyers persuading a conservative and conscience-stricken judge to expand the rights of the disabled, and they culminated in a 1975 consent decree, with the state of New York pledging to accomplish the unprecedented assignment in six years. From 1975 to 1982, David and Sheila Rothman observed this remarkable chapter in American reform of mental disabilities care. Would the state live up to its agreement without "dumping" residents into other nightmarish institutions? Would the lawyers prove as interested in meeting client needs as in securing client rights? Could a tradition-bound bureaucracy create a new network of community services? And finally, would a governor and a legislature tolerate such outside intervention, and if so, for how long? In answering these questions, The Willowbrook Wars takes us behind the scenes to clarify the role of the judiciary, the fate of the underprivileged, and the potential for social justice. In their new afterword, the authors bring the story up to date, describing the results of the closing of the institution in 1987 from the experiences of integrating the former residents into communities to the legal battles between the state of New York and advocates for the mentally handicapped.

The Origins of Bioethics

Author : John A. Lynch
Publisher : MSU Press
ISBN 13 : 1628953802
Total Pages : 288 pages
Book Rating : 4.6/5 (289 download)

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Book Synopsis The Origins of Bioethics by : John A. Lynch

Download or read book The Origins of Bioethics written by John A. Lynch and published by MSU Press. This book was released on 2019-09-01 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Origins of Bioethics argues that what we remember from the history of medicine and how we remember it are consequential for the identities of doctors, researchers, and patients in the present day. Remembering when medicine went wrong calls people to account for the injustices inflicted on vulnerable communities across the twentieth century in the name of medicine, but the very groups empowered to create memorials to these events often have a vested interest in minimizing their culpability for them. Sometimes these groups bury this past and forget events when medical research harmed those it was supposed to help. The call to bioethical memory then conflicts with a desire for “minimal remembrance” on the part of institutions and governments. The Origins of Bioethics charts this tension between bioethical memory and minimal remembrance across three cases—the Tuskegee Syphilis Study, the Willowbrook Hepatitis Study, and the Cincinnati Whole Body Radiation Study—that highlight the shift from robust bioethical memory to minimal remembrance to forgetting.

Disputes and Dilemmas in Health Law

Author : Ian R. Freckelton
Publisher : Federation Press
ISBN 13 : 9781862875531
Total Pages : 740 pages
Book Rating : 4.8/5 (755 download)

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Book Synopsis Disputes and Dilemmas in Health Law by : Ian R. Freckelton

Download or read book Disputes and Dilemmas in Health Law written by Ian R. Freckelton and published by Federation Press. This book was released on 2006 with total page 740 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book replaces the successful Controversies in Health Law. Under the same editorship and much the same authorship, it is substantially larger (30 chapters instead of 18) and correspondingly more comprehensive. It retains the lively analysis and the focus on controversial and cutting-edge problems. The chapters are broken up into parts covering Litigation and Liabilty; Reproductive Technologies; The Sequelae of the End of Life; Public Health; Ethical Frameworks and Dilemmas; Regulation; Human Rights and Therapeutic Jurisprudence; Research and Vulnerability and Information, Privacy and Confidentiality . They consider issues raised by new technologies, changing legislation and altering community expectations; by new regulatory processes for medicine and all of the health professions; by the fundamental changes to civil liability for medical negligence; by the fierce debate over the role of coroners. Disputes and Dilemmas in Health Law covers questions on property in human tissue and on the ethical and legal aspects of the genetics revolution; provides a modern take on "old" issues such as reproductive law; takes account of changes relating to expert evidence; and discusses how difficult cases in relation to psychiatric injury and wrongful life are pushing compensability to its edges.

The Rights Revolution

Author : Samuel Walker
Publisher : Oxford University Press, USA
ISBN 13 : 019509025X
Total Pages : 241 pages
Book Rating : 4.1/5 (95 download)

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Book Synopsis The Rights Revolution by : Samuel Walker

Download or read book The Rights Revolution written by Samuel Walker and published by Oxford University Press, USA. This book was released on 1998 with total page 241 pages. Available in PDF, EPUB and Kindle. Book excerpt: Walker offers a vigorous defense of the rise of personal rights in America, conceding that the expansion of individual rights does present problems, but insisting that the gains far outweigh the losses.

Willowbrook

Author : Geraldo Rivera
Publisher :
ISBN 13 :
Total Pages : 172 pages
Book Rating : 4.E/5 ( download)

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Book Synopsis Willowbrook by : Geraldo Rivera

Download or read book Willowbrook written by Geraldo Rivera and published by . This book was released on 1972 with total page 172 pages. Available in PDF, EPUB and Kindle. Book excerpt:

From Snake Pits to Cash Cows

Author : Paul J. Castellani
Publisher : State University of New York Press
ISBN 13 : 0791483312
Total Pages : 316 pages
Book Rating : 4.7/5 (914 download)

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Book Synopsis From Snake Pits to Cash Cows by : Paul J. Castellani

Download or read book From Snake Pits to Cash Cows written by Paul J. Castellani and published by State University of New York Press. This book was released on 2012-02-01 with total page 316 pages. Available in PDF, EPUB and Kindle. Book excerpt: Public institutions for people with developmental disabilities continue to operate within New York State, although their very existence has been condemned, and public policies directed their complete closure by the year 2000. From Snake Pits to Cash Cows investigates why these institutions persevere despite virtually universal predictions of their demise. Paul J. Castellani's provocative account spans the years 1935 to 2000, describing decades of conflict and confusion about the role of public institutions. This book demonstrates how and why a convergence of operational, fiscal, and political crises in the mid-1970s resulted in a series of agreements among adversaries that radically changed the political landscape, and reversed the plan to close all public institutions. He also shows why New York's experience has implications and lessons for the study of public policy in the area of developmental disabilities services and for understanding Medicaid policymaking, intergovernmental finance, and human services administration.

A History and Sociology of the Willowbrook State School

Author : David Goode
Publisher : American Association
ISBN 13 : 9781937604059
Total Pages : 0 pages
Book Rating : 4.6/5 (4 download)

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Book Synopsis A History and Sociology of the Willowbrook State School by : David Goode

Download or read book A History and Sociology of the Willowbrook State School written by David Goode and published by American Association. This book was released on 2013 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Making All the Difference

Author : Martha Minow
Publisher : Cornell University Press
ISBN 13 : 1501705091
Total Pages : 420 pages
Book Rating : 4.5/5 (17 download)

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Book Synopsis Making All the Difference by : Martha Minow

Download or read book Making All the Difference written by Martha Minow and published by Cornell University Press. This book was released on 2016-10-01 with total page 420 pages. Available in PDF, EPUB and Kindle. Book excerpt: Should a court order medical treatment for a severely disabled newborn in the face of the parents' refusal to authorize it? How does the law apply to a neighborhood that objects to a group home for developmentally disabled people? Does equality mean treating everyone the same, even if such treatment affects some people adversely? Does a state requirement of employee maternity leave serve or violate the commitment to gender equality?Martha Minow takes a hard look at the way our legal system functions in dealing with people on the basis of race, gender, age, ethnicity, religion, and disability. Minow confronts a variety of dilemmas of difference resulting from contradictory legal strategies—strategies that attempt to correct inequalities by sometimes recognizing and sometimes ignoring differences. Exploring the historical sources of ideas about difference, she offers challenging alternative ways of conceiving of traits that legal and social institutions have come to regard as "different." She argues, in effect, for a constructed jurisprudence based on the ability to recognize and work with perceptible forms of difference.Minow is passionately interested in the people—"different" people—whose lives are regularly (mis)shaped and (mis)directed by the legal system's ways of handling them. Drawing on literary and feminist theories and the insights of anthropology and social history, she identifies the unstated assumptions that tend to regenerate discrimination through the very reforms that are supposed to eliminate it. Education for handicapped children, conflicts between job and family responsibilities, bilingual education, Native American land claims—these are among the concrete problems she discusses from a fresh angle of vision.Minow firmly rejects the prevailing conception of the self that she believes underlies legal doctrine—a self seen as either separate and autonomous, or else disabled and incompetent in some way. In contrast, she regards the self as being realized through connection, capable of shaping an identity only in relationship to other people. She shifts the focus for problem solving from the "different" person to the relationships that construct that difference, and she proposes an analysis that can turn "difference" from a basis of stigma and a rationale for unequal treatment into a point of human connection. "The meanings of many differences can change when people locate and revise their relationships to difference," she asserts. "The student in a wheelchair becomes less different when the building designed without him in mind is altered to permit his access." Her book evaluates contemporary legal theories and reformulates legal rights for women, children, persons with disabilities, and others historically identified as different.Here is a powerful voice for change, speaking to issues that permeate our daily lives and form a central part of the work of law. By illuminating the many ways in which people differ from one another, this book shows how lawyers, political theorist, teachers, parents, students—every one of us—can make all the difference,

Dangerous Medicine

Author : Sydney A. Halpern
Publisher : Yale University Press
ISBN 13 : 030025962X
Total Pages : 305 pages
Book Rating : 4.3/5 (2 download)

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Book Synopsis Dangerous Medicine by : Sydney A. Halpern

Download or read book Dangerous Medicine written by Sydney A. Halpern and published by Yale University Press. This book was released on 2021 with total page 305 pages. Available in PDF, EPUB and Kindle. Book excerpt: The untold history of America's mid-twentieth-century program of hepatitis infection research, its scientists' aspirations, and the damage the project caused human subjects "Sydney Halpern has written a compelling, if unsettling, history of hepatitis research during World War II and the Cold War. It will become a must-read for anyone interested in bioethics and medical history."--Susan E. Lederer, author of Subjected to Science and Flesh and Blood From 1942 through 1972, American biomedical researchers deliberately infected people with hepatitis. Government-sponsored researchers were attempting to discover the basic features of the disease and the viruses causing it, and to develop interventions that would quell recurring outbreaks. Drawing from extensive archival research and in-person interviews, Sydney Halpern traces the hepatitis program from its origins in World War II through its expansion during the initial Cold War years, to its demise in the early 1970s amid an outcry over research abuse. The subjects in hepatitis studies were members of stigmatized groups--conscientious objectors, prison inmates, the mentally ill, and developmentally disabled adults and children. The book reveals how researchers invoked military and scientific imperatives and the rhetoric of a common good to win support for the experiments and access to recruits. Halpern examines the participants' long-term health consequences and raises troubling questions about hazardous human experiments aimed at controlling today's epidemic diseases.

The Faces of Intellectual Disability

Author : Licia Carlson
Publisher : Indiana University Press
ISBN 13 : 0253221579
Total Pages : 286 pages
Book Rating : 4.2/5 (532 download)

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Book Synopsis The Faces of Intellectual Disability by : Licia Carlson

Download or read book The Faces of Intellectual Disability written by Licia Carlson and published by Indiana University Press. This book was released on 2010 with total page 286 pages. Available in PDF, EPUB and Kindle. Book excerpt: In a challenge to current thinking about cognitive impairment, this book explores what it means to treat people with intellectual disabilities in an ethical manner. Reassessing philosophical views of intellectual disability, Licia Carlson shows how we can affirm the dignity and worth of intellectually disabled people first by ending comparisons to nonhuman animals and then by confronting our fears and discomforts. Carlson presents the complex history of ideas about cognitive disability, the treatment of intellectually disabled people, and social and cultural reactions to them. Sensitive and clearly argued, this book offers new insights on recent trends in disability studies and philosophy.

Against Their Will

Author : Allen M. Hornblum
Publisher : St. Martin's Press
ISBN 13 : 1137363452
Total Pages : 284 pages
Book Rating : 4.1/5 (373 download)

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Book Synopsis Against Their Will by : Allen M. Hornblum

Download or read book Against Their Will written by Allen M. Hornblum and published by St. Martin's Press. This book was released on 2013-06-25 with total page 284 pages. Available in PDF, EPUB and Kindle. Book excerpt: During the Cold War, an alliance between American scientists, pharmaceutical companies, and the US military pushed the medical establishment into ethically fraught territory. Doctors and scientists at prestigious institutions were pressured to produce medical advances to compete with the perceived threats coming from the Soviet Union. In Against Their Will, authors Allen Hornblum, Judith Newman, and Gregory Dober reveal the little-known history of unethical and dangerous medical experimentation on children in the United States. Through rare interviews and the personal correspondence of renowned medical investigators, they document how children—both normal and those termed "feebleminded"—from infants to teenagers, became human research subjects in terrifying experiments. They were drafted as "volunteers" to test vaccines, doused with ringworm, subjected to electric shock, and given lobotomies. They were also fed radioactive isotopes and exposed to chemical warfare agents. This groundbreaking book shows how institutional superintendents influenced by eugenics often turned these children over to scientific researchers without a second thought. Based on years of archival work and numerous interviews with both scientific researchers and former test subjects, this is a fascinating and disturbing look at the dark underbelly of American medical history.

The Hidden Palace (The Daughters of War, Book 2)

Author : Dinah Jefferies
Publisher : HarperCollins
ISBN 13 : 0008546312
Total Pages : 445 pages
Book Rating : 4.0/5 (85 download)

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Book Synopsis The Hidden Palace (The Daughters of War, Book 2) by : Dinah Jefferies

Download or read book The Hidden Palace (The Daughters of War, Book 2) written by Dinah Jefferies and published by HarperCollins. This book was released on 2022-11-22 with total page 445 pages. Available in PDF, EPUB and Kindle. Book excerpt: An island of secrets. A runaway. And a promise...

Boundary Wars

Author : Katherine Hancock Ragsdale
Publisher : Cleveland, Ohio : Pilgrim Press
ISBN 13 :
Total Pages : 268 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Boundary Wars by : Katherine Hancock Ragsdale

Download or read book Boundary Wars written by Katherine Hancock Ragsdale and published by Cleveland, Ohio : Pilgrim Press. This book was released on 1996 with total page 268 pages. Available in PDF, EPUB and Kindle. Book excerpt: Are intimate relations between clergy and those they serve, or between mental health professionals and their patients, ethical? Do such relations represent an abuse of power? This book squarely addresses these questions--and contains surprising answers. While uniformly supporting victims and abhoring abuse, these contriubtors reveal profound differences in interpreting the need for boundries in healing relationships.

The Beautiful Unwanted

Author : Chris Kaposy
Publisher : McGill-Queen's Press - MQUP
ISBN 13 : 0228019680
Total Pages : 142 pages
Book Rating : 4.2/5 (28 download)

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Book Synopsis The Beautiful Unwanted by : Chris Kaposy

Download or read book The Beautiful Unwanted written by Chris Kaposy and published by McGill-Queen's Press - MQUP. This book was released on 2023-10-15 with total page 142 pages. Available in PDF, EPUB and Kindle. Book excerpt: Prenatal genetic testing has changed the circumstances under which parents choose what pregnancies to carry to term. Some have predicted that as a result of parents’ choices, people with Down syndrome will disappear from our communities in the near future. Chris Kaposy, a bioethicist who has a son with Down syndrome, reflects on parenting his son in the midst of this supposed disappearance. Writing from a pro-choice, disability-positive perspective, Kaposy presents some of the decades-old bioethical controversies involving children with Down syndrome, illustrating a prehistory of disappearance that has shaped current attitudes toward intellectual disability. Layered throughout this history are elements of Kaposy’s personal experience with his son and family. Transcending monograph and memoir, The Beautiful Unwanted draws creatively upon the past and the present, upon myth, history, science, and personal stories, to present the world of families that include children with Down syndrome from a series of uncommon perspectives. This account encompasses the changeling myths of Newfoundland, the “discovery” of Down syndrome by John Langdon Down and Jérôme Lejeune, and the twentieth-century experience of institutionalization, as well as recent advances in reproductive technology. We must recognize that we have some control over the future, Kaposy argues, and we must ask what kind of future we want for those who have intellectual disabilities. The Beautiful Unwanted poses this question in a way that is engaging, often bewildering, and always fascinating.

Clearinghouse Review

Author :
Publisher :
ISBN 13 :
Total Pages : 1824 pages
Book Rating : 4.3/5 (3 download)

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Book Synopsis Clearinghouse Review by :

Download or read book Clearinghouse Review written by and published by . This book was released on 1991 with total page 1824 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Useful Bodies

Author : Jordan Goodman
Publisher : JHU Press
ISBN 13 : 9780801873423
Total Pages : 242 pages
Book Rating : 4.8/5 (734 download)

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Book Synopsis Useful Bodies by : Jordan Goodman

Download or read book Useful Bodies written by Jordan Goodman and published by JHU Press. This book was released on 2003-10-07 with total page 242 pages. Available in PDF, EPUB and Kindle. Book excerpt: Though notoriously associated with Germany, human experimentation in the name of science has been practiced in other countries, as well, both before and after the Nazi era. The use of unwitting or unwilling Subjects in experiments designed to test the effects of radiation and disease on the human body emerged at the turn of the twentieth century, when the rise of the modern, coercive state and the professionalization of medical science converged. Useful Bodies explores the intersection of government power and medical knowledge in revealing studies of human experimentation -- germ warfare and jaundice tests in Great Britain; radiation, malaria, and hepatitis experiments in the U.S.; and nuclear fallout trials in Australia. These examples of medical abuse illustrate the extent to which living human bodies have been "useful" to democratic states and emphasize the need for intense scrutiny and regulation to prevent future violations. Contributors: Brian Balmer, University College London; Miriam Boleyn-Fitzgerald, University of Wisconsin; Rodney A. Hayward, University of Michigan; Joel D. Howell, University of Michigan; Margaret Humphreys, Duke University; David S. Jones, Massachusetts General Hospital; Robert L. Martensen, Tulane University School of Medicine; Glenn Mitchell, University of Wollongong; Jenny Stanton, London School of Hygiene and Tropical Medicine; Gilbert Whittemore, independent scholar/attorney, Boston

Life and Death Decisions

Author : Sheldon Ekland-Olson
Publisher : Routledge
ISBN 13 : 1317611985
Total Pages : 204 pages
Book Rating : 4.3/5 (176 download)

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Book Synopsis Life and Death Decisions by : Sheldon Ekland-Olson

Download or read book Life and Death Decisions written by Sheldon Ekland-Olson and published by Routledge. This book was released on 2014-11-12 with total page 204 pages. Available in PDF, EPUB and Kindle. Book excerpt: Issues of Life and Death such as abortion, assisted suicide, capital punishment and others are among the most contentious in many societies. Whose rights are protected? How do these rights and protections change over time and who makes those decisions? Based on the author’s award-winning and hugely popular undergraduate course at the University of Texas, this book explores these questions and the fundamentally sociological processes which underlie the quest for morality and justice in human societies. The Author’s goal is not to advocate any particular moral "high ground" but to shed light on the social movements and social processes which are at the root of these seemingly personal moral questions. Under 200 printed pages, this slim paperback is priced and sized to be easily assigned in a variety of undergraduate courses that touch on the social bases underlying these contested and contentious issues.