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The Moral Challenge Of Alzheimer Disease
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Book Synopsis The Moral Challenge of Alzheimer Disease by : Stephen G. Post
Download or read book The Moral Challenge of Alzheimer Disease written by Stephen G. Post and published by JHU Press. This book was released on 2002-11-04 with total page 176 pages. Available in PDF, EPUB and Kindle. Book excerpt: Society today, writes Stephen Post, is "hypercognitive": it places inordinate emphasis on people's powers of rational thinking and memory. Thus, Alzheimer disease and other dementias, which over an extended period incrementally rob patients of exactly those functions, raise many dilemmas. How are we to view—and value—persons deprived of what some consider the most important human capacities? In the second edition of The Moral Challenge of Alzheimer Disease, Post updates his highly praised account of the major ethical issues relating to dementia care. With chapters organized to follow the progression from mild to severe and then terminal stages of dementia, Post discusses topics including the experience of dementia, family caregiving, genetic testing for Alzheimer disease, quality of life, and assisted suicide and euthanasia. New to this edition are sections dealing with end-of-life issues (especially artificial nutrition and hydration), the emerging cognitive-enhancing drugs, distributive justice, spirituality, and hospice, as well as a critique of rationalistic definitions of personhood. The last chapter is a new summary of practical solutions useful to family members and professionals.
Book Synopsis The Moral Challenge of Alzheimer Disease by : Stephen Garrard Post
Download or read book The Moral Challenge of Alzheimer Disease written by Stephen Garrard Post and published by . This book was released on 2000 with total page 162 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Dignity for Deeply Forgetful People by : Stephen G. Post
Download or read book Dignity for Deeply Forgetful People written by Stephen G. Post and published by JHU Press. This book was released on 2022-05-31 with total page 289 pages. Available in PDF, EPUB and Kindle. Book excerpt: "A new ethics guideline for caregivers of "deeply forgetful people" and a program on how to communicate and connect based on 30 years of community dialogues through Alzheimer's organizations across the globe"--
Book Synopsis Dementia and Aging by : Robert H. Binstock
Download or read book Dementia and Aging written by Robert H. Binstock and published by Johns Hopkins University Press. This book was released on 1992-09-01 with total page 214 pages. Available in PDF, EPUB and Kindle. Book excerpt: Several million Americans are afflicted with Alzheimer's disease or a related dementing disorder. For families, professional caregivers, policy makers, and the patients themselves, the challenges are immense and the economic costs are staggering. In Dementia and Aging Robert H. Binstock, Stephen G. Post, and Peter J. Whitehouse bring together experts in gerontology, geriatrics, psychiatry, neurology, nursing, ethics, philosophy, public policy, and law to examine the ethical, moral, and policy controversies surrounding dementia. The authors first present background information on dementia and related ethical and policy issues. The remainder of the book is divided into three parts. Part One conveys the difficulties experienced by dementia patients and their caregivers. Part Two deals with ethical and moral issues involved in decisions regarding treatment and care, including the highly controversial subject of euthanasia. Part Three lays out societal choices regarding the allocation of resources for treatment, care, and research on dementia.
Book Synopsis The Problem of Alzheimer's by : Jason Karlawish
Download or read book The Problem of Alzheimer's written by Jason Karlawish and published by St. Martin's Press. This book was released on 2021-02-23 with total page 269 pages. Available in PDF, EPUB and Kindle. Book excerpt: A definitive and compelling book on one of today's most prevalent illnesses. In 2020, an estimated 5.8 million Americans had Alzheimer’s, and more than half a million died because of the disease and its devastating complications. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2050. Part case studies, part meditation on the past, present and future of the disease, The Problem of Alzheimer's traces Alzheimer’s from its beginnings to its recognition as a crisis. While it is an unambiguous account of decades of missed opportunities and our health care systems’ failures to take action, it tells the story of the biomedical breakthroughs that may allow Alzheimer’s to finally be prevented and treated by medicine and also presents an argument for how we can live with dementia: the ways patients can reclaim their autonomy and redefine their sense of self, how families can support their loved ones, and the innovative reforms we can make as a society that would give caregivers and patients better quality of life. Rich in science, history, and characters, The Problem of Alzheimer's takes us inside laboratories, patients' homes, caregivers’ support groups, progressive care communities, and Jason Karlawish's own practice at the Penn Memory Center.
Book Synopsis The Person with Alzheimer's Disease by : Phyllis Braudy Harris
Download or read book The Person with Alzheimer's Disease written by Phyllis Braudy Harris and published by JHU Press. This book was released on 2002-06-06 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: The first book to provide a comprehensive look at what it's like to have dementia and the subjective experience of living with progressive memory loss. Few families are untouched by Alzheimer's disease or a related dementia. Moving accounts of what it is like to care for someone with this disease have already been published, as well as how-to books that offer caregivers advice and information on coping. But this book is the first to provide a comprehensive report of what it is like to have dementia oneself—the subjective experience of living with progressive memory loss. Each chapter discusses a different aspect of having dementia, from the initial assessment and diagnosis through placement in a nursing home. The discussions are grounded in qualitative research and case studies, which convey the variable and personal nature of the experience. They seek to help clinicians, researchers, students, and caregivers (both professionals and family members) understand the experience of dementia, and thereby to promote better caregiving through a person-centered approach. Contributors: Kathleen Kahn-Denis, Judson Retirement Community; Casey Durkin, a psychotherapist in Cleveland, Ohio; Jane Gilliard, Dementia Voice, UK; Phyllis Braudy Harris, John Carroll University; John Keady, University of Wales, UK; John Killick, University of Stirling, UK; Rebecca G. Logsdon, University of Washington; Charlie Murphy, University of Stirling, UK; Alison Phinney, University of British Columbia, Canada; Steven R. Sabat, Georgetown University; Dorothy Seman, Alzheimer's Family Care Center, Chicago; Lisa Snyder, University of California, San Diego; Jane Stansell, Alzheimer's Family Care Center, Chicago; Gloria Sterin, Shaker Heights, Ohio; Jon C. Stuckey, Messiah College; Robyn Yale, Consultant to the Alzheimer's Association, San Francisco; Rosalie Young, Wayne State University School of Medicine.
Book Synopsis Cognitive Disability and Its Challenge to Moral Philosophy by : Eva Feder Kittay
Download or read book Cognitive Disability and Its Challenge to Moral Philosophy written by Eva Feder Kittay and published by John Wiley & Sons. This book was released on 2010-05-18 with total page 440 pages. Available in PDF, EPUB and Kindle. Book excerpt: Through a series of essays contributed by clinicians, medicalhistorians, and prominent moral philosophers, CognitiveDisability and Its Challenge to Moral Philosophy addresses theethical, bio-ethical, epistemological, historical, andmeta-philosophical questions raised by cognitive disability Features essays by a prominent clinicians and medicalhistorians of cognitive disability, and prominent contemporaryphilosophers such as Ian Hacking, Martha Nussbaum, and PeterSinger Represents the first collection that brings togetherphilosophical discussions of Alzheimer's disease,intellectual/developmental disabilities, and autism under therubric of cognitive disability Offers insights into categories like Alzheimer's, mentalretardation, and autism, as well as issues such as care,personhood, justice, agency, and responsibility
Book Synopsis Ethical Foundations of Palliative Care for Alzheimer Disease by : Ruth B. Purtilo
Download or read book Ethical Foundations of Palliative Care for Alzheimer Disease written by Ruth B. Purtilo and published by JHU Press. This book was released on 2010-09-01 with total page 394 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimer disease afflicts more than twelve million people worldwide, and its incidence is increasing at a staggering rate. People with the disorder are living longer than have those in previous generations, and they require interventions for quality-of-life issues associated with palliative care. However, the symptoms of Alzheimer disease often fail to place such persons into settings where palliative care resources are available to them. Indeed, clinicians and other caregivers may be unsure about what constitutes effective palliation in these cases. At the same time, the ethical issues involved in providing end-of-life care to persons with Alzheimer disease remain on the margins of mainstream bioethics. In Ethical Foundations of Palliative Care for Alzheimer Disease, leading ethicists and clinicians from the United States and Europe explore ethical and scientific concerns about the diagnosis and prognosis of Alzheimer disease, challenges arising from applying palliative procedures to its symptoms, key philosophical and theological concepts central to our understanding of the disease and to end-of-life decisions, and the changing patterns of relevant medical, social, and economic policies. Cross-cultural, multidisciplinary, and state-of-the-art, this volume is a unique and important resource for bioethicists, clinicians, and policy makers everywhere. Contributors: David A. Bennahum, M.D., University of New Mexico; Pierre Boitte, Ph.D., Catholic University of Lille, France; Roger A. Brumback, M.D., Creighton University Medical Center; Wim J. M. Dekkers, M.D., Ph.D., University Medical Centre Nijmegen, The Netherlands; Elizabeth Furlong, R.N., Ph.D., J.D., Creighton University Medical Center; Eugenijus Gefenas, M.D., Ph.D., Vilnius University, Lithuania; Bert Gordijn, Ph.D., University Medical Centre Nijmegen, The Netherlands; Amy M. Haddad, R.N., Ph.D., Creighton University Medical Center; Søren Holm, M.D., Ph.D., Dr.Med.Sci., University of Manchester; Franz J. Illhardt, D.D., Ph.D., Freiburg University; Rien Janssens, Ph.D., University Medical Centre Nijmegen, The Netherlands; Givi Javashvili, M.D., Ph.D., State Medical Academy of Georgia, Tbilisi; Judith Lee Kissell, Ph.D., Creighton University Medical Center; Gunilla Nordenram, D.D.S., Ph.D., Karolinska Institute, Stockholm; Richard L. O'Brien, M.D., Creighton University Medical Center; Marcel G. M. Olde Rikkert, M.D., Ph.D., University Medical Centre Nijmegen, The Netherlands; Winifred J. Ellenchild Pinch, R.N., Ed.D., Creighton University Medical Center; Patricio F. Reyes, M.D., Creighton University Medical Center; Anne-Sophie Rigaud, M.D., Ph.D., Hôpital Broca, Paris; Linda S. Scheirton, Ph.D., Creighton University Medical Center; Jos V. M. Welie, M.Med.S., J.D., Ph.D., Creighton University Medical Center.
Download or read book Speaking Our Minds written by Lisa Snyder and published by . This book was released on 1999 with total page 266 pages. Available in PDF, EPUB and Kindle. Book excerpt: Four million people have been diagnosed with Alzheimer's disease in the United States, yet most live in silent shadows, their stories untold. Here seven individuals of various ages and backgrounds express their thoughts and feelings about what it is like to have Alzheimer's disease, to live with it day to day, and to cope with its impact on their lives. What emerges is a powerful and compassionate portrait of people forced to define themselves in new ways, not just by what has been lost, but also by what endures.
Book Synopsis Caring for a Person with Alzheimer's Disease: Your Easy -to-Use- Guide from the National Institute on Aging (Revised January 2019) by : National Institute on Aging
Download or read book Caring for a Person with Alzheimer's Disease: Your Easy -to-Use- Guide from the National Institute on Aging (Revised January 2019) written by National Institute on Aging and published by Lulu.com. This book was released on 2019-04-13 with total page 106 pages. Available in PDF, EPUB and Kindle. Book excerpt: The guide tells you how to: Understand how AD changes a person Learn how to cope with these changes Help family and friends understand AD Plan for the future Make your home safe for the person with AD Manage everyday activities like eating, bathing, dressing, and grooming Take care of yourself Get help with caregiving Find out about helpful resources, such as websites, support groups, government agencies, and adult day care programs Choose a full-time care facility for the person with AD if needed Learn about common behavior and medical problems of people with AD and some medicines that may help Cope with late-stage AD
Book Synopsis Genetic Testing for Alzheimer Disease by : Stephen Garrard Post
Download or read book Genetic Testing for Alzheimer Disease written by Stephen Garrard Post and published by . This book was released on 1998 with total page 310 pages. Available in PDF, EPUB and Kindle. Book excerpt: The genetics of Alzheimer disease has been a point of intense concern and immense informational confusion for families in which a loved one is diagnosed with dementia. In recent years, however, scientists have begun to uncover the genetic bases for some forms of Alzheimer disease. Once a chromosomal defect is identified, it becomes possible to devise a test for its presence. The far-reaching implications of such tests are the focus of the present volume. In Genetic Testing for Alzheimer Disease, Stephen G. Post and Peter J. Whitehouse bring together experts from the fields of ethics, genetics, policy, neurology, philosophy, and anthropology to examine the ethical and social aspects of genetic testing for Alzheimer disease. The authors begin by focusing on current genetic findings and their clinical applicability. They then address ethical issues in genetic testing and genetic counseling for Alzheimer disease. They examine social issues such as confidentiality, discrimination, and fairness in health care. Finally, they discuss ways to educate professionals and laypeople regarding these issues. Contributors: Robert H. Binstock, Ph.D.?Thomas D. Bird, M.D. ? Robert Mullan Cook-Deegan, M.D.? Leonard Fleck, Ph.D. ? Atwood D. Gaines, Ph.D, M.P.H. ? Eric T. Juengst, Ph.D. ? Harry Karlinsky, M.D. ? Steven Miles, M.D. ? Thomas H. Murray, Ph.D. ? Stephen G. Post, Ph.D. ? Kimberly A. Quaid, Ph.D. ? Allen D. Roses, M.D. ? Greg A. Sachs, M.D. ? Peter H. St. George-Hyslop, M.D. ? Bonnie Steinbock, Ph.D. ? Arthur B. Zinn, M.D., Ph.D.
Book Synopsis The Moral Status of Persons by : Gerhold K. Becker
Download or read book The Moral Status of Persons written by Gerhold K. Becker and published by Rodopi. This book was released on 2000 with total page 270 pages. Available in PDF, EPUB and Kindle. Book excerpt: The advances in molecular biology and genetics, medicine and neurosciences, in ethology and environmental studies have put the concept of the person firmly on the philosophical agenda. Whereas earlier times seemed to have a clear understanding about the moral implications of personhood and its boundaries, today there is little consensus on such matters. Whether a patient in the last stages of Alzheimer's disease is still a person, or whether a human embryo is already a person are highly contentious issues. This book tackles the issue of personhood and its moral implications head-on. The thirteen essays are representative of the major strands in the current bioethical debate and offer new insights into humanity's moral standing, its foundations, and its implications for social interaction. While most of the essays approach the issue by drawing on the rich intellectual tradition of the West, others offer a cross-cultural perspective and make available for ethical consideration the philosophical resources and the wisdom of the East. The contributors to this book are highly recognized philosophers, ethicists, theologians, and professionals in health care and medicine from East Asia (China, Japan), Europe, and North America. The first part of the book probes the foundations of personhood. Examining critically the main theories on personhood in contemporary philosophy, the authors offer alternatives that better respond to contemporary challenges and their implications for bioethics. The focus of the second part is firmly on the Confucian relational concept of the person and on the social constitution of personhood in traditional Japanese culture. While the essays challenge the individualistic features of personhood in the Western tradition, they lay the foundations for a richer concept that holds great promise for the resolution of moral dilemmas in modern medicine and health care. The third part of the book enters into a dialogue with the Christian tradition and draws on its spiritual heritage in the search for answers to the contemporary challenges to human dignity and value. Its focus is on the Catholic social thought and Lutheran theology. The fourth part addresses the moral status of persons in view of specific issues such as the effects of brain injury, gene therapy, and human cloning on personhood. It extends the scope of research beyond human beings and inquires also into the moral status of animals.
Book Synopsis American Dementia by : Daniel R. George
Download or read book American Dementia written by Daniel R. George and published by JHU Press. This book was released on 2021-09-14 with total page 425 pages. Available in PDF, EPUB and Kindle. Book excerpt: "The authors argue for a strong connection between public health and social policies that have boosted access to education; quality health care; cleaner air, soil, and water; and a reduction in Alzheimer's disease and dementia. They question the assumption of many that developing a pharmaceutical cure is the best hope for addressing Alzheimer's"--
Book Synopsis Forget Memory by : Anne Davis Basting
Download or read book Forget Memory written by Anne Davis Basting and published by JHU Press. This book was released on 2009-07-01 with total page 220 pages. Available in PDF, EPUB and Kindle. Book excerpt: Memory loss can be one of the most terrifying aspects of a diagnosis of dementia. Yet the fear and dread of losing our memory make the experience of the disease worse than it needs to be, according to cultural critic and playwright Anne Davis Basting. She says, Forget memory. Basting emphasizes the importance of activities that focus on the present to improve the lives of persons with Alzheimer's disease and other dementias. Based on ten years of practice and research in the field, Basting’s study includes specific examples of innovative programs that stimulate growth, humor, and emotional connection; translates into accessible language a wide range of provocative academic works on memory; and addresses how advances in medical research and clinical practice are already pushing radical changes in care for persons with dementia. Bold, optimistic, and innovative, Basting's cultural critique of dementia care offers a vision for how we can change the way we think about and care for people with memory loss.
Book Synopsis The Soul of Care by : Arthur Kleinman
Download or read book The Soul of Care written by Arthur Kleinman and published by Penguin. This book was released on 2019-09-17 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: A moving memoir and an extraordinary love story that shows how an expert physician became a family caregiver and learned why care is so central to all our lives and yet is at risk in today's world. When Dr. Arthur Kleinman, an eminent Harvard psychiatrist and social anthropologist, began caring for his wife, Joan, after she was diagnosed with early-onset Alzheimer's disease, he found just how far the act of caregiving extended beyond the boundaries of medicine. In The Soul of Care: The Moral Education of a Husband and a Doctor, Kleinman delivers a deeply humane and inspiring story of his life in medicine and his marriage to Joan, and he describes the practical, emotional and moral aspects of caretaking. He also writes about the problems our society faces as medical technology advances and the cost of health care soars but caring for patients no longer seems important. Caregiving is long, hard, unglamorous work--at moments joyous, more often tedious, sometimes agonizing, but it is always rich in meaning. In the face of our current political indifference and the challenge to the health care system, he emphasizes how we must ask uncomfortable questions of ourselves, and of our doctors. To give care, to be "present" for someone who needs us, and to feel and show kindness are deep emotional and moral experiences, enactments of our core values. The practice of caregiving teaches us what is most important in life, and reveals the very heart of what it is to be human.
Book Synopsis Our Aging Society by : Alan J. Pifer
Download or read book Our Aging Society written by Alan J. Pifer and published by W. W. Norton & Company. This book was released on 1986 with total page 456 pages. Available in PDF, EPUB and Kindle. Book excerpt: In sounding alarm about the population challenges we face in the next five decades, the essays here--written by a wide variety of experts--offer constructive proposals for meeting these challenges on both personal and public policy levels.
Book Synopsis Deciding for Others by : Allen E. Buchanan
Download or read book Deciding for Others written by Allen E. Buchanan and published by Cambridge University Press. This book was released on 1989 with total page 450 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is the most comprehensive treatment available of one of the most urgent problems in bioethics: decision-making for incompetents.
