Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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Publisher : National Academies Press
ISBN 13 : 0309316928
Total Pages : 304 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome by : Institute of Medicine

Download or read book Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-16 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: Myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are serious, debilitating conditions that affect millions of people in the United States and around the world. ME/CFS can cause significant impairment and disability. Despite substantial efforts by researchers to better understand ME/CFS, there is no known cause or effective treatment. Diagnosing the disease remains a challenge, and patients often struggle with their illness for years before an identification is made. Some health care providers have been skeptical about the serious physiological - rather than psychological - nature of the illness. Once diagnosed, patients often complain of receiving hostility from their health care provider as well as being subjected to treatment strategies that exacerbate their symptoms. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome proposes new diagnostic clinical criteria for ME/CFS and a new term for the illness - systemic exertion intolerance disease(SEID). According to this report, the term myalgic encephalomyelitis does not accurately describe this illness, and the term chronic fatigue syndrome can result in trivialization and stigmatization for patients afflicted with this illness. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome stresses that SEID is a medical - not a psychiatric or psychological - illness. This report lists the major symptoms of SEID and recommends a diagnostic process.One of the report's most important conclusions is that a thorough history, physical examination, and targeted work-up are necessary and often sufficient for diagnosis. The new criteria will allow a large percentage of undiagnosed patients to receive an accurate diagnosis and appropriate care. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome will be a valuable resource to promote the prompt diagnosis of patients with this complex, multisystem, and often devastating disorder; enhance public understanding; and provide a firm foundation for future improvements in diagnosis and treatment.

Myalgic Encephalomyelitis and Postviral Fatigue States

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Author :
Publisher :
ISBN 13 :
Total Pages : 84 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Myalgic Encephalomyelitis and Postviral Fatigue States by : Andrew Melvin Ramsay

Download or read book Myalgic Encephalomyelitis and Postviral Fatigue States written by Andrew Melvin Ramsay and published by . This book was released on 1988 with total page 84 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Believe Me

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Author :
Publisher : St. Martin's Press
ISBN 13 : 1250121663
Total Pages : 288 pages
Book Rating : 4.2/5 (51 download)

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Book Synopsis Believe Me by : Yolanda Hadid

Download or read book Believe Me written by Yolanda Hadid and published by St. Martin's Press. This book was released on 2017-09-12 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: From the star of The Real Housewives of Beverly Hills comes an emotional and eye opening behind-the-scenes look at her descent into uncovering the mystery of chronic Lyme disease. In early 2011, Yolanda was struck by mysterious symptoms including brain fog, severe exhaustion, migraines and more. Over the months and years that followed, she went from being an outspoken, multi-tasking, hands-on mother of three, reality TV star, and social butterfly, to a woman who spent most of her time in bed. Yolanda was turned inside out by some of the country’s top hospitals and doctors, but due to the lack of definitive diagnostic testing, she landed in a dark maze of conflicting medical opinions, where many were quick to treat her symptoms but could never provide clear answers to their possible causes. In this moving, behind the scenes memoir, Yolanda Hadid opens up in a way she has never been able to in the media before. Suffering from late stage Lyme, a disease that is an undeniable epidemic and more debilitating than anyone realizes, Yolanda had to fight with everything she had to hold onto her life. While her struggle was lived publicly, it impacted her privately in every aspect of her existence, affecting her family, friends and professional prospects. Her perfect marriage became strained and led to divorce. It was the strong bond with her children, Gigi, Bella and Anwar, that provided her greatest motivation to fight through the darkest days of her life. Hers is an emotional narrative and all-important read for anyone unseated by an unexpected catastrophe. With candor, authenticity and an unwavering inner strength, Yolanda reveals intimate details of her journey crisscrossing the world to find answers for herself and two of her children who suffer from Lyme and shares her tireless research into eastern and western medicine. Believe Me is an inspiring lesson in the importance of having courage and hope, even in those moments when you think you can’t go on.

Bite Me

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Author :
Publisher : Center Street
ISBN 13 : 1455567078
Total Pages : 320 pages
Book Rating : 4.4/5 (555 download)

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Book Synopsis Bite Me by : Ally Hilfiger

Download or read book Bite Me written by Ally Hilfiger and published by Center Street. This book was released on 2016-05-10 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ally was at a breaking point when she woke up in a psych ward at the age of eighteen. She couldn't put a sentence together, let alone take a shower, eat a meal, or pick up a phone. What had gone wrong? In recent years, she had produced a feature film, a popular reality show for a major network, and had acted in an off-Broadway play. But now, Ally was pushed to a psychotic break after struggling since she was seven years old with physical symptoms that no doctor could explain; everything from joint pain, to night sweats, memory loss, nausea, and brain fog. A doctor in the psych ward was finally able to give her the answers her and her family had desperately been searching for, and the diagnosis that all the previous doctors had missed. She learned that she had Lyme disease-and finally had a breakthrough. What she didn't know was that this diagnosis would lead her down some of the most excruciating years of her life before beginning her journey to recovery from eleven years of misdiagnosis and physical pain. She would need to find her courage to heal physically, mentally, and emotionally, and become the survivor she is today. Set against the backdrop of the fast-paced fashion and entertainment industries, BITE ME shares the heartbreaking and hilarious stories that moved Ally forward on her journey from sickness to health. Its themes will be familiar to more than 300,000 Americans diagnosed with Lyme disease each year, many of whom, like Ally, wondered for years what was wrong with them. BITE ME offers readers hope and ideas for how one can transition from victim to survivor, and shares the spiritual principles and actions that have contributed to her wholeness as a human, mother, and international spokesperson against Lyme disease.

Coping with Lyme Disease, Third Edition

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Author :
Publisher : Holt Paperbacks
ISBN 13 : 146684308X
Total Pages : 352 pages
Book Rating : 4.4/5 (668 download)

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Book Synopsis Coping with Lyme Disease, Third Edition by : Denise Lang

Download or read book Coping with Lyme Disease, Third Edition written by Denise Lang and published by Holt Paperbacks. This book was released on 2004-06-01 with total page 352 pages. Available in PDF, EPUB and Kindle. Book excerpt: Now completely revised and updated-the bible for the thousands who contract Lyme disease each year Lyme disease, transmitted through the bite of a tick, is one of our nation's fastest-growing epidemics. Since Coping with Lyme Disease was first published in 1993, the number of sufferers afflicted by this debilitating condition has grown alarmingly. Every chapter has been thoroughly revised and new information about the long-term neurological effects of Lyme disease and congential and chronic versions of the illness has been added. This comprehensive guide includes - basic prevention tips - a detailed catalog of the physical and psychological symptoms to look for - a complete look at the medical and home care options and insurance policies available to patients - a special discussion of Lyme's effects on women, children, and the elderly - an expanded resource guide, with listings of news publications, state-by-state support groups, and special family services This fully updated third edition informs readers of the latest medical findings in diagnosing and treating Lyme disease-providing crucial information about newly discovered Lyme-related illnesses, electromagnetic procedures, clinical and antibiotic therapies, and curative nutritional products now on the market. A longtime bestseller, this authoritative book is an essential tool for all Lyme disease sufferers.

Can You Help Me?

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Publisher : Oxford University Press, USA
ISBN 13 : 0190684224
Total Pages : 289 pages
Book Rating : 4.1/5 (96 download)

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Book Synopsis Can You Help Me? by : Thomas D. Bird

Download or read book Can You Help Me? written by Thomas D. Bird and published by Oxford University Press, USA. This book was released on 2019 with total page 289 pages. Available in PDF, EPUB and Kindle. Book excerpt: Can You Help Me?: Living in the Turbulent World of Huntington Disease shares the surprising, insightful, challenging, and even encouraging stories of patients and their families who live with Huntington Disease. Having seen patients for more than 40 years, Dr Thomas Bird, a pioneer neurogeneticist, adds a human touch to this genetic brain disease that devastates persons during mid-life when they can least afford it. With a brief history of Huntington Disease and the occasional scientific detail, the true heart of the book is the human experience of the disorder: � The man who cannot stay out of prison because he is addicted to being a burglar. � Another man shoots and kills his roommate while watching television and cannot explain why he did it. � The woman with Huntington Disease copes with her depression by using Texas line dancing. � A twelve year old girl with juvenile Huntington Disease who can barely walk and talk, but her classmates rally around with touching and heartfelt support. � And the 72 year old man with late onset Huntington Disease and severe depression is made worse by ECT, but improved (for a while) with Transcranial Magnetic Stimulation. These are just some of the compelling stories of people of all ages and in all walks of life who feel trapped by a progressive degenerative brain disease from which there is no escape.

The Deep Places

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Publisher : Convergent Books
ISBN 13 : 0593237366
Total Pages : 225 pages
Book Rating : 4.5/5 (932 download)

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Book Synopsis The Deep Places by : Ross Douthat

Download or read book The Deep Places written by Ross Douthat and published by Convergent Books. This book was released on 2021-10-26 with total page 225 pages. Available in PDF, EPUB and Kindle. Book excerpt: NEW YORK TIMES EDITORS’ CHOICE • In this vulnerable, insightful memoir, the New York Times columnist tells the story of his five-year struggle with a disease that officially doesn’t exist, exploring the limits of modern medicine, the stories that we unexpectedly fall into, and the secrets that only suffering reveals. “A powerful memoir about our fragile hopes in the face of chronic illness.”—Kate Bowler, bestselling author of Everything Happens for a Reason In the summer of 2015, Ross Douthat was moving his family, with two young daughters and a pregnant wife, from Washington, D.C., to a sprawling farmhouse in a picturesque Connecticut town when he acquired a mysterious and devastating sickness. It left him sleepless, crippled, wracked with pain--a shell of himself. After months of seeing doctors and descending deeper into a physical inferno, he discovered that he had a disease which according to CDC definitions does not actually exist: the chronic form of Lyme disease, a hotly contested condition that devastates the lives of tens of thousands of people but has no official recognition--and no medically approved cure. From a rural dream house that now felt like a prison, Douthat's search for help takes him off the map of official medicine, into territory where cranks and conspiracies abound and patients are forced to take control of their own treatment and experiment on themselves. Slowly, against his instincts and assumptions, he realizes that many of the cranks and weirdos are right, that many supposed "hypochondriacs" are victims of an indifferent medical establishment, and that all kinds of unexpected experiences and revelations lurk beneath the surface of normal existence, in the places underneath. The Deep Places is a story about what happens when you are terribly sick and realize that even the doctors who are willing to treat you can only do so much. Along the way, Douthat describes his struggle back toward health with wit and candor, portraying sickness as the most terrible of gifts. It teaches you to appreciate the grace of ordinary life by taking that life away from you. It reveals the deep strangeness of the world, the possibility that the reasonable people might be wrong, and the necessity of figuring out things for yourself. And it proves, day by dreadful day, that you are stronger than you ever imagined, and that even in the depths there is always hope.

Explaining Unexplained Illnesses

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Publisher : CRC Press
ISBN 13 : 9780789023896
Total Pages : 150 pages
Book Rating : 4.0/5 (238 download)

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Book Synopsis Explaining Unexplained Illnesses by : Martin Pall

Download or read book Explaining Unexplained Illnesses written by Martin Pall and published by CRC Press. This book was released on 2007-04-23 with total page 150 pages. Available in PDF, EPUB and Kindle. Book excerpt: Discover the answer to the mysteries of these debilitating illnesses Explaining “Unexplained Illnesses” provides long-sought explanations for the properties of chronic fatigue syndrome (CFS), multiple chemical sensitivity (MCS), fibromyalgia, and posttraumatic stress disorder. This groundbreaking book examines common symptoms and signs; short-term stressors such as infection, chemical exposure, physical trauma, and severe psychological stress; why people are often diagnosed as having more than one of these illnesses, and approaches for treating the cause of each disease, rather than the symptoms. The book presents a detailed and well-supported mechanism (the NO/ONOO- cycle) that provides consistent explanations for many of the puzzling elements of these diseases. At least a dozen scientists have proposed that chronic fatigue syndrome, multiple chemical sensitivity, and fibromyalgia must share a common mechanism; others have suggested posttraumatic stress disorder may belong to this group as well. This unique book provides explanations for their previously unexplained properties with more than 1,500 references to scientific literature, creating a whole new approach to therapy and treatment of these illnesses. Explaining "Unexplained Illnesses" provides answers to these questions: how do short-term stressors initiate chronic illness? how does the biochemistry of the NO/ONOO- cycle produce chronic illness? how can the diverse symptoms and signs of these illnesses be generated as a consequence of their common biochemistry? why is there so much variation in symptoms from one sufferer to another? what are the principles underlying the NO/ONOO- cycle mechanism? how does the NO/ONOO- cycle provide explanations for a dozen previously unexplained properties of these illnesses? how might 14 additional illnesses/diseases also be caused by the NO/ONOO- cycle etiology? and many more Explaining “Unexplained Illnesses” is a must-read for physicians and scientists, and for anyone who suffers from-or knows someone who suffers from—these previously puzzling illnesses.

Caring for the M.E. Patient

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Publisher : Lulu.com
ISBN 13 : 144529639X
Total Pages : 164 pages
Book Rating : 4.4/5 (452 download)

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Book Synopsis Caring for the M.E. Patient by : Jodi Bassett

Download or read book Caring for the M.E. Patient written by Jodi Bassett and published by Lulu.com. This book was released on 2011 with total page 164 pages. Available in PDF, EPUB and Kindle. Book excerpt: Essential information on the neurological disease M.E. sourced from the world's leading M.E. experts. Suitable for M.E. patients, their friends and family, partners, carers or doctors. The book includes a foreword by international M.E. expert Dr Byron Hyde. M.E.is a distinct neurological disease and is not at all the same thing as 'CFS.' Learning the facts is not time-consuming or complicated. Supporting your ill friend or family member or patient more fully by being aware of the basic facts of M.E. could make all the difference in the world to them. This book shows you how. Jodi Bassett is the founder of the international M.E. charity, HFME. Jodi contracted M.E. in 1995 when she was just 19. HFME contributors also aim to advocate for those non-M.E. patients who have been given the always meaningless 'CFS' diagnosis, and subsequently denied correct diagnosis and treatment.

Me, My Mother, and Alzheimer’S Disease

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Publisher : Xlibris Corporation
ISBN 13 : 1493141503
Total Pages : 183 pages
Book Rating : 4.4/5 (931 download)

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Book Synopsis Me, My Mother, and Alzheimer’S Disease by : Janet O’Connell

Download or read book Me, My Mother, and Alzheimer’S Disease written by Janet O’Connell and published by Xlibris Corporation. This book was released on 2014-03-06 with total page 183 pages. Available in PDF, EPUB and Kindle. Book excerpt: There are a great deal of information in the story of me, my mother and Alzheimers disease. Because of the intensity of the story, do not even try to take it all at once. Some of you might found that your life journey is totally different of mine, while some facts will jump at you. Focus on this first .If you found that you disagree with some of the facts, just overlook it- but if you get one exceptional thought out of this story which you can use to improve the relationship between you and your mother, and you have a deeper understanding of how a diagnosis of Alzheimers disease affects the individual, the children, family and friends and how to choose the best care for your loved one then I feel satisfied.

The Lady's Handbook for Her Mysterious Illness

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Author :
Publisher : Anchor
ISBN 13 : 030774194X
Total Pages : 434 pages
Book Rating : 4.3/5 (77 download)

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Book Synopsis The Lady's Handbook for Her Mysterious Illness by : Sarah Ramey

Download or read book The Lady's Handbook for Her Mysterious Illness written by Sarah Ramey and published by Anchor. This book was released on 2021-05-11 with total page 434 pages. Available in PDF, EPUB and Kindle. Book excerpt: The darkly funny memoir of Sarah Ramey’s years-long battle with a mysterious illness that doctors thought was all in her head—but wasn’t. In her harrowing, darkly funny, and unforgettable memoir, Sarah Ramey recounts the decade-long saga of how a seemingly minor illness in her senior year of college turned into a prolonged and elusive condition that destroyed her health but that doctors couldn't diagnose or treat. Worse, as they failed to cure her, they hinted that her devastating symptoms were psychological. The Lady's Handbook for Her Mysterious Illness is a memoir with a mission: to help the millions of (mostly) women who suffer from unnamed or misunderstood conditions—autoimmune illnesses, fibromyalgia and chronic fatigue syndrome, chronic Lyme disease, chronic pain, and many more. Ramey's pursuit of a diagnosis and cure for her own mysterious illness becomes a page-turning medical mystery that reveals a new understanding of today's chronic illnesses as ecological in nature, driven by modern changes to the basic foundations of health, from the quality of our sleep, diet, and social connections to the state of our microbiomes. Her book will open eyes, change lives, and, ultimately, change medicine. The Lady's Handbook for Her Mysterious Illness is a revelation and an inspiration for millions of women whose legitimate health complaints are ignored.

Just Like Me!: A Book about a Girl with a Rare Disease

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Author :
Publisher : Braughler Books, LLC
ISBN 13 : 9780982218716
Total Pages : 22 pages
Book Rating : 4.2/5 (187 download)

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Book Synopsis Just Like Me!: A Book about a Girl with a Rare Disease by : Anne Rugari

Download or read book Just Like Me!: A Book about a Girl with a Rare Disease written by Anne Rugari and published by Braughler Books, LLC. This book was released on 2018-10-30 with total page 22 pages. Available in PDF, EPUB and Kindle. Book excerpt:

An Adolescent's Guide to ME/CFS

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Publisher :
ISBN 13 : 9780999516232
Total Pages : 122 pages
Book Rating : 4.5/5 (162 download)

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Book Synopsis An Adolescent's Guide to ME/CFS by : Vidhima Shetty

Download or read book An Adolescent's Guide to ME/CFS written by Vidhima Shetty and published by . This book was released on 2018-08 with total page 122 pages. Available in PDF, EPUB and Kindle. Book excerpt: A brief book on ME to provide young people and their parents an excellent overview of what this disease is including its history and possible causes. While there is still no cure, there are coping strategies that can help patients better adjust to one of the more debilitating illnesses that affect thousands of youth in our country.

Recovery from Lyme Disease

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Publisher : Simon and Schuster
ISBN 13 : 151076206X
Total Pages : 392 pages
Book Rating : 4.5/5 (17 download)

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Book Synopsis Recovery from Lyme Disease by : Daniel A. Kinderlehrer

Download or read book Recovery from Lyme Disease written by Daniel A. Kinderlehrer and published by Simon and Schuster. This book was released on 2021-03-16 with total page 392 pages. Available in PDF, EPUB and Kindle. Book excerpt: From the foreword by world-leading Lyme expert Joseph J. Burrascano, Jr., MD: A detailed and thoughtful road map is sorely needed. And it is in this context that I am so pleased that we have this book by Dr. Kinderlehrer. I wish I’d had a book like this back in the day to guide me! It covers just about everything—the infections, diagnostic tests, treatments, and yes, the all-important terrain. It gives the reader an in-depth, but easily understandable, guide through the many subtleties of tick-borne illnesses. I am impressed with the knowledge presented and grateful for this information, which has helped so many people recover from chronic illness. To anyone touched by tick-borne diseases, be they a patient, a caregiver, loved one, or health practitioner, this book is a must-read. It will serve as a continuing reference as it gets read and reread to assimilate all it has to offer. I congratulate Dr. Kinderlehrer and thank him for this most impressive work. The ultimate guide to recognizing, coping with, and overcoming chronic infection. Lyme Disease is a substantial problem. While the CDC reported 427,000 new cases in 2017 based on surveillance criteria, actual numbers based on clinical diagnosis put that number at over one million. It is now well accepted that 10 to 20 percent of these cases go on to become a chronic illness, and these numbers don't even include those people who became chronically ill without ever witnessing a tick attachment or a bulls-eye rash. In other words, hundreds of thousands of people develop a chronic illness every year. This is why Dr. Dan Kinderlehrer’s book is so important and timely and has the potential to help millions who are victims of this epidemic. His integrative approach offers the most up-to-date and comprehensive plan available for treating and beating this disease. It will discuss brand new treatments such as disulfiram, which is being hailed as a major breakthrough, as well as the use of cannabis to treat pain and anxiety, among other developments in the field. With the staggering growth we are seeing in numbers of people afflicted, this book becomes more important every day. Kinderhlehrer is in a unique position to write this book. After completing a residency in Internal Medicine in 1979, he opened one of the first practices in the US in what was then called Holistic Medicine. After becoming an expert in nutrition and environmental illness, he became ill himself with Lyme disease complex. His long road to recovery has given him insights into what patients are going through; his background in internal medicine trained him to understand the complexities of his multi-systemic illness; his knowledge of environmental illness has enabled him to evaluate immune dysregulation; and his study of energetic medicine, spiritual alignment, and healing from trauma has yielded insights into how to help patients shift their belief systems to being well. Recovery from Lyme Disease is by far the most thorough book available on Lyme Disease Complex. It will provide patients with information that will guide them on their healing journeys, as well as supplying doctors with instruction on appropriate diagnosis and treatment approaches.

Chronic Fatigue Syndrome

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Author :
Publisher :
ISBN 13 : 9781905140008
Total Pages : 160 pages
Book Rating : 4.1/5 (4 download)

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Book Synopsis Chronic Fatigue Syndrome by : Basant K. Puri

Download or read book Chronic Fatigue Syndrome written by Basant K. Puri and published by . This book was released on 2004-10-01 with total page 160 pages. Available in PDF, EPUB and Kindle. Book excerpt: Are you suffering from M.E.? Are you caring for someone with M.E.? Doesomeone close to you have M.E.? Whoever the sufferer, young or old, man oroman, he or she is highly likely to have been told the condition ispsychosomatic' ('all in the mind'), depression is the root cause, andntidepressants the only sensible answer. In this ground-breaking new book,ou will discover a very different way of looking at M.E. Historical andontemporary evidence are combined to show how M.E. is almost certainly ahysical, or 'organic', condition resulting from viral and other influenceshat reduce essential chemicals in the body. As such, it can be treated, andn a natural, cost effective way. Read how and why EPA ('eicosapentaenoiccid') will be essential to recovery, how to take it, what supplements toave with it, and how to change to a lifestyle that will promote recovery.

Meanings of ME: Interpersonal and Social Dimensions of Chronic Fatigue

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Author :
Publisher : Springer
ISBN 13 : 1137467320
Total Pages : 231 pages
Book Rating : 4.1/5 (374 download)

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Book Synopsis Meanings of ME: Interpersonal and Social Dimensions of Chronic Fatigue by : C. Ward

Download or read book Meanings of ME: Interpersonal and Social Dimensions of Chronic Fatigue written by C. Ward and published by Springer. This book was released on 2015-07-14 with total page 231 pages. Available in PDF, EPUB and Kindle. Book excerpt: Chronic Fatigue Syndrome (CFS or ME) is a problematic diagnosis which can be interpreted in conflicting ways by doctors, patients and others. Meanings of ME signals a paradigm shift in thinking about the illness by providing fresh perspectives from doctors, clinicians and those who have personal knowledge of CFS/ME.

Chronic Fatigue Syndrome

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Author :
Publisher : Sheldon Press
ISBN 13 : 1847093019
Total Pages : 128 pages
Book Rating : 4.8/5 (47 download)

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Book Synopsis Chronic Fatigue Syndrome by : Megan A. Arroll

Download or read book Chronic Fatigue Syndrome written by Megan A. Arroll and published by Sheldon Press. This book was released on 2014-07-17 with total page 128 pages. Available in PDF, EPUB and Kindle. Book excerpt: Chronic Fatigue Syndrome (CFS/ME) affects around 250,000 people in the UK, and an estimated one million in the USA. With a characteristic profile of severe exhaustion, flu-like symptoms, and unrefreshing sleep, it has no cure, but often improves with treatment and self-help. This book, by an expert who herself experienced chronic fatigue, presents the latest thinking on the condition, along with tried and tested advice on how to manage it.