The Lived Experience Of Dying For Hospitalized Patients Waiting To Be Transferred To A Palliative Care Unit

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The Lived Experience of Dying for Hospitalized Patients Waiting to be Transferred to a Palliative Care Unit

Author : Vasiliki Bitzas
Publisher :
ISBN 13 :
Total Pages : pages
Book Rating : 4.:/5 (911 download)

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Book Synopsis The Lived Experience of Dying for Hospitalized Patients Waiting to be Transferred to a Palliative Care Unit by : Vasiliki Bitzas

Download or read book The Lived Experience of Dying for Hospitalized Patients Waiting to be Transferred to a Palliative Care Unit written by Vasiliki Bitzas and published by . This book was released on 2014 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: "Background:Transitions in clinical care are often associated with changes in services and with care goals (Davidson, Dracup, Phillips, Padilla and Daly, 2007; Naylor, 2000). Although the transition from curative care to palliative care is recognized as a critical moment in the illness journey little is known about this potentially complicated transition (Schofield, Carey, Love, Nehill & Wein, 2006). More specifically, we understand little about the experience of hospitalized patients moving from acute care to palliative care. It is also not clear whether or not the notion of transition fully or accurately captures the lived experience of dying for individuals in this context. This interpretive phenomenology, influenced by the philosophy of Heidegger (1962) and the methodology of Benner (1984; 1994) sought to understand the lived experience of dying for hospitalized patients on acute care units waiting to be transferred to a palliative care ward for end of life care. Methods:An interpretive phenomenology was conducted in a tertiary care hospital situated in a multi-cultural urban center. Eleven participants were recruited and a total of 16 interviews were conducted. Participants were dying patients hospitalized on acute care wards waiting for a transfer to a palliative care unit within the same institution for end of life care. Data was collected through semi-structured interviews, observations captured in field notes and a reflexive journal. Data analysis was an iterative process in which interpretations occurred within the context of the hermeneutic circle and which emerged through frequent writing and immersion with the data. During the writing process and review of transcripts, development of summaries and phenomenological accounts, three parallel strategies were employed to guide the interpretive process: exemplars, paradigm cases and thematic analysis (Benner, Tanner & Chesla, 1996).Findings:The structure of the analysis was framed using the concepts of thrownness and situatedness (Withy, 2011) and are organized using the concepts of the situatedness of a contextual background, of a particular life and of the 'here and now'. The main findings of this inquiry are 1) participants transitioned to an awareness that they were dying prior to being told that they were by their health care providers. The impending transfer to the palliative care unit was not critical for this awareness; 2) participants' awareness of their own finitude was an experience imbued with a profound sense of aloneness; 3) the impending move to the palliative care unit was considered an opportunity for hope. At the same time, responses to the actual transfer to the palliative care unit were in part influenced by notions of control; 4) religious and spiritual beliefs offered hope and comfort but also had the potential to engender feelings of aloneness, and those participants who described themselves as non-religious found comfort in rationality and secular spirituality. Both religious and non-religious participants appear to find comfort in relinquishing control to a higher being; 5) an appreciation of embodiment is key to understanding the construct of dignity in the dying person.Conclusions:The findings of this inquiry offer a new way of understanding the lived experience of dying for hospitalized patients waiting to be transferred to a palliative care unit. These findings offer direction for future research and consideration for current theory. Clinical implications for nurses working with dying patients in acute care and palliative care settings are explored along with implications for nursing leaders and policy makers. Clinical implications for nurses could include supporting patients during the anticipated move to palliative care, creating a safe space to be with patients in their aloneness, and educating and supporting nurses to find ways of understanding and addressing the potential spiritual needs of patients." --

The Dying Process

Author : Julia Lawton
Publisher : Routledge
ISBN 13 : 1134588666
Total Pages : 244 pages
Book Rating : 4.1/5 (345 download)

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Book Synopsis The Dying Process by : Julia Lawton

Download or read book The Dying Process written by Julia Lawton and published by Routledge. This book was released on 2002-01-04 with total page 244 pages. Available in PDF, EPUB and Kindle. Book excerpt: Taking as its focus a highly emotive area of study, The Dying Process draws on the experiences of daycare and hospice patients to provide a forceful new analysis of the period of decline prior to death. Placing the bodily realities of dying very firmly centre stage and questioning the ideology central to the modern hospice movement of enabling patients to 'live until they die', Julia Lawton shows how our concept of a 'good death' is open to interpretation. Her study examines the non-negotiable effects of a patient's bodily deterioration on their sense of self and, in so doing, offers a powerful new perspective in embodiment and emotion in death and dying. A detailed and subtle ethnographic study, The Dying Process engages with a range of deeply complex and ethically contentious issues surrounding the care of dying patients in hospices and elsewhere.

What Dying People Want

Author : David Kuhl
Publisher : PublicAffairs
ISBN 13 : 0786725834
Total Pages : 354 pages
Book Rating : 4.7/5 (867 download)

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Book Synopsis What Dying People Want by : David Kuhl

Download or read book What Dying People Want written by David Kuhl and published by PublicAffairs. This book was released on 2003-07-10 with total page 354 pages. Available in PDF, EPUB and Kindle. Book excerpt: Facing death results in more fear and anxiety than any other human experience. Though much has been done to address the physical pain suffered by those with a terminal illness, Western medicine has been slow to understand and alleviate the psychological and spiritual distress that comes with the knowledge of death. In What Dying People Want, Dr. David Kuhl begins to bridge that gap by addressing end-of-life realities--practical and emotional--through his own experiences as a doctor and through the words and experiences of people who knew that they were dying. Dr. Kuhl presents ways of finding new life in the process of dying, understanding the inner reality of living with a terminal illness, and addressing the fear of pain, as well as pain itself. He also offers concrete guidance on how to enhance doctor/patient relationships and hold family meetings, and provides an introduction to the process of life review. It is possible to find meaning and peace in the face of death. What Dying People Want "helps us learn to view the knowledge of death as a gift, not a curse." (New Times)

Conversations on Dying

Author : Phil Dwyer
Publisher : Dundurn
ISBN 13 : 1459731956
Total Pages : 278 pages
Book Rating : 4.4/5 (597 download)

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Book Synopsis Conversations on Dying by : Phil Dwyer

Download or read book Conversations on Dying written by Phil Dwyer and published by Dundurn. This book was released on 2016-04-16 with total page 278 pages. Available in PDF, EPUB and Kindle. Book excerpt: The story of the end-of-life experience of a palliative care physician who helped thousands of patients to die well. We all die. Most of us spend the majority of our lives ignoring this uncomfortable truth, but Dr. Larry Librach dedicated his life and his career to helping his patients navigate their final journey. Then, in April 2013, Larry was diagnosed with terminal pancreatic cancer. Unlike the majority of us, Larry knew the death he wanted. He wanted to die at home, surrounded by his family: his wife of forty years, his children, and his grandchildren. He did. He was peaceful and calm at the end. Larry proved that the “good death” isn’t a myth. It can be done, and he showed us how. Ever the teacher, Larry made his last journey a teachable moment on how to die the best death possible, even with a pernicious disease. As hard as it is to guide patients toward dying well, it is far harder to live those precepts day by day as the clock ticks down to one’s own death, but Larry, together with author Phil Dwyer, chronicled his final journey with courage and humour.

And a Time to Die

Author : Sharon Kaufman
Publisher : Simon and Schuster
ISBN 13 : 0743282523
Total Pages : 415 pages
Book Rating : 4.7/5 (432 download)

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Book Synopsis And a Time to Die by : Sharon Kaufman

Download or read book And a Time to Die written by Sharon Kaufman and published by Simon and Schuster. This book was released on 2005-04-19 with total page 415 pages. Available in PDF, EPUB and Kindle. Book excerpt: Most Americans, when pressed, have a vague sense of how they would like to die. They may imagine a quick and painless end or a gentle passing away during sleep. Some may wish for time to prepare and make peace with themselves, their friends, and their families. Others would prefer not to know what's coming, a swift, clean break. Yet all fear that the reality will be painful and prolonged; all fear the loss of control that could accompany dying. That fear is justified. It is also historically unprecedented. In the past thirty years, the advent of medical technology capable of sustaining life without restoring health, the expectation that a critically ill person need not die, and the conviction that medicine should routinely thwart death have significantly changed where, when, and how Americans die and put us all in the position of doing something about death. In a penetrating and revelatory study, medical anthropologist Sharon R. Kaufman examines the powerful center of those changes -- the hospital, where most Americans die today. In the hospital world, the deep, irresolvable tension between the urge to extend life at all costs and the desire to allow "letting go" is rarely acknowledged, yet it underlies everything that happens there among patients, families, and health professionals. Over the course of two years, Kaufman observed and interviewed critically ill patients, their families, doctors, nurses, and other hospital staff at three community hospitals. In...And a Time to Die, her research places us at the heart of that science-driven yet fractured and often irrational world of health care delivery, where empathetic yet frustrated, hard-working yet constrained professionals both respond to and create the anxieties and often inchoate expectations of patients and families, who must make "decisions" they are ill-prepared to make. Filled with actual conversations between patients and doctors, families and hospital staff,...And a Time to Die clearly and carefully exposes the reasons for complicated questions about medical care at the end of life: for example, why "heroic" treatment so often overrides "humane" care; why patients and families are ambivalent about choosing death though they claim to want control; what constitutes quality of life and life itself; and, ultimately, why a "good" death is so elusive. In elegant, compelling prose, Kaufman links the experiences of patients and families, the work of hospital staff, and the ramifications of institutional bureaucracy to show the invisible power of the hospital system itself -- its rules, mandates, and daily activity -- in shaping death and our individual experience of it. ...And a Time to Die is a provocative, illuminating, and necessary read for anyone working in or navigating the health care system today, providing a much-needed road map to the disorienting territory of the hospital, where we all are asked to make life-and-death choices.

Dying in America

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309303133
Total Pages : 470 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Dying in America by : Institute of Medicine

Download or read book Dying in America written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-19 with total page 470 pages. Available in PDF, EPUB and Kindle. Book excerpt: For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

Extreme Measures

Author : Dr. Jessica Nutik Zitter, M.D.
Publisher : Penguin
ISBN 13 : 0525533419
Total Pages : 353 pages
Book Rating : 4.5/5 (255 download)

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Book Synopsis Extreme Measures by : Dr. Jessica Nutik Zitter, M.D.

Download or read book Extreme Measures written by Dr. Jessica Nutik Zitter, M.D. and published by Penguin. This book was released on 2021-08-24 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: For readers of Being Mortal and Modern Death, an ICU and Palliative Care specialist offers a framework for a better way to exit life that will change our medical culture at the deepest level In medical school, no one teaches you how to let a patient die. Jessica Zitter became a doctor because she wanted to be a hero. She elected to specialize in critical care—to become an ICU physician—and imagined herself swooping in to rescue patients from the brink of death. But then during her first code she found herself cracking the ribs of a patient so old and frail it was unimaginable he would ever come back to life. She began to question her choice. Extreme Measures charts Zitter’s journey from wanting to be one kind of hero to becoming another—a doctor who prioritizes the patient’s values and preferences in an environment where the default choice is the extreme use of technology. In our current medical culture, the old and the ill are put on what she terms the End-of-Life Conveyor belt. They are intubated, catheterized, and even shelved away in care facilities to suffer their final days alone, confused, and often in pain. In her work Zitter has learned what patients fear more than death itself: the prospect of dying badly. She builds bridges between patients and caregivers, formulates plans to allay patients’ pain and anxiety, and enlists the support of loved ones so that life can end well, even beautifully. Filled with rich patient stories that make a compelling medical narrative, Extreme Measures enlarges the national conversation as it thoughtfully and compassionately examines an experience that defines being human.

Approaching Death

Author : Committee on Care at the End of Life
Publisher : National Academies Press
ISBN 13 : 0309518253
Total Pages : 457 pages
Book Rating : 4.3/5 (95 download)

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Book Synopsis Approaching Death by : Committee on Care at the End of Life

Download or read book Approaching Death written by Committee on Care at the End of Life and published by National Academies Press. This book was released on 1997-10-30 with total page 457 pages. Available in PDF, EPUB and Kindle. Book excerpt: When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."

Courageous Conversations on Dying - the Gift of Palliative Care

Author : Shahid Aziz
Publisher : Createspace Independent Publishing Platform
ISBN 13 : 9781983403286
Total Pages : 224 pages
Book Rating : 4.4/5 (32 download)

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Book Synopsis Courageous Conversations on Dying - the Gift of Palliative Care by : Shahid Aziz

Download or read book Courageous Conversations on Dying - the Gift of Palliative Care written by Shahid Aziz and published by Createspace Independent Publishing Platform. This book was released on 2018-01-31 with total page 224 pages. Available in PDF, EPUB and Kindle. Book excerpt: Dying - which we all inevitably must do - can be appreciably better for each of us if we approach end of life conversations early, while we still have the capacity to make our own decisions. This book can help us all with this. In addition, Courageous Conversations on Dying guides physicians in their role of supporting patients and families through decision-making for end of life, concentrating on patients' goals. Whether we are physicians, patients, family members, or caring individuals who want the best possible end of life experience for ourselves and each other, we must acquire the skills for loving, fruitful conversations. In this book, you'll learn how to prepare for these conversations, including what kind of setting, what words to use, how to be a good listener, how to empathize, how to help in decision-making, how to properly document end of life wishes, and more, along with many case studies to illustrate the points.

Care at the Close of Life: Evidence and Experience

Author : Stephen J. McPhee
Publisher : McGraw Hill Professional
ISBN 13 : 0071637966
Total Pages : 625 pages
Book Rating : 4.0/5 (716 download)

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Book Synopsis Care at the Close of Life: Evidence and Experience by : Stephen J. McPhee

Download or read book Care at the Close of Life: Evidence and Experience written by Stephen J. McPhee and published by McGraw Hill Professional. This book was released on 2010-12-31 with total page 625 pages. Available in PDF, EPUB and Kindle. Book excerpt: The world's leading source of evidence-based guidance on caring for patients at the end of life. Featuirng the content of the world's most widely read medical journal, plus completely new, never-before-published content. Perfect for medical students, trainees, and clinicians alike. Market / Audience Medical students: 18000/yr US, 250,000 global NP and PA students: 25,000/yr US, 50,000+ global IM and FP residents: 30,000 US, 60,000 global IM and FP clinicians: 140,000 US, 300,000+ global Palliative medicine: 3000 US Oncology: 20,000 US, 60,000 global Social workers About the Book In the tradition of the User's Guides to the Medical Literature, and The Rational Clinical Examination, JAMA/Care at the Close of Life is based on a widely successful series of articles appearing over the course of the last ten years in JAMA, the world's most widely read medical journal. The series is directed by Stephen McPhee, a leading authoriity of end of life care, and the chief editor of our market leading Current Medical Diagnosis and Treatment text. The articles in the series cover fundamental topics and challenges in caring for patients who have been given a terminal diagnosis. Featuring a strong focus on evidence-based medicine, and organized by clinical cases, the articles are widely read by faculty, medical students, and clinicians who, frankly, have not been given a solid educational experience on this very important medical issue. The book will be physically modeled after The Rational Clinical Examination, in a full color format that highlights the clinical cases. It will be well suited for use as an required or recommended textbook for medical, PA, and NO students, and as a clinical reference text for trainees and practicing physicians and nurses. Key Selling Features Based on highy regarded content from the world's most widely read medical journal All content is completely updated, and extensive new, never-before-published content has been added Case-based, and evidence-based, so its a perfect fit for the way medical students and residents like to learn Focuses on practical, real-world issues for primary care physicians, and avoids esoteric issues of interest only to specialists in palliative care Full color format, modeled after the highly regarded Rational Clinical Examination Includes multimedia materials available on line: Power Point slides for teaching, and video interviews with patients in end-of-life care, so that faculty and students get supplemental resources for learning the art and science of care at the end of life Evidence-based guidance from the world's leading medical journal, on a critical topic that has been neglected in medical education and training until recently. Author Profile JAMA is the world's most widely read medical journal, and has a reputation for excellence in evidence-based medicine. Stephen McPhee has high visbility on account of his editorship of CMDT, and for his driving role in enhancing end of life care in medical education and training programs. He is: Professor of Medicine, UCSF School of Medicine, San Francisco CA

Only Love Remains

Author : Attilio Stajano
Publisher : CLAIRVIEW BOOKS
ISBN 13 : 1905570775
Total Pages : 221 pages
Book Rating : 4.9/5 (55 download)

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Book Synopsis Only Love Remains by : Attilio Stajano

Download or read book Only Love Remains written by Attilio Stajano and published by CLAIRVIEW BOOKS. This book was released on 2015-11-09 with total page 221 pages. Available in PDF, EPUB and Kindle. Book excerpt: What happens to the dying in the final days and weeks of their lives? What emotions come to the surface and what do they want to talk about? Attilio Stajano, a volunteer worker at the palliative care ward of a Brussels hospital, presents a series of deeply-moving personal encounters with seriously-ill patients. The dying, he discovers, have much to teach the living. Whilst their stories are all different, they share one thing in common: in the end, when all is said and done, only love remains... How should we respond to the challenge of death? As a society and as individuals, we can choose to be patient and sensitive, giving dignity to those reaching the end of their lives – even when those lives appear to have no further value. The period leading to death can be full of profound experiences, telling us much about the meaning of life and the abiding nature of love. If we see the terminally-ill as an inconvenience, however, we forego the possibility of finding unexpected resources in ourselves: a tenderness, a touch, a readiness to assist that we did not know we were capable of. Underlying this book is the momentous and very current debate over euthanasia. In a comprehensive appendix, the author reports on the provision of palliative care services and the laws governing euthanasia in European and English-speaking countries around the world, and the implications these have for the way we value and care for the dying.

The Best Care Possible

Author : Ira Byock
Publisher : Penguin
ISBN 13 : 1583335129
Total Pages : 338 pages
Book Rating : 4.5/5 (833 download)

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Book Synopsis The Best Care Possible by : Ira Byock

Download or read book The Best Care Possible written by Ira Byock and published by Penguin. This book was released on 2013-03-05 with total page 338 pages. Available in PDF, EPUB and Kindle. Book excerpt: A doctor on the front lines of hospital care illuminates one of the most important and controversial social issues of our time. It is harder to die in this country than ever before. Though the vast majority of Americans would prefer to die at home—which hospice care provides—many of us spend our last days fearful and in pain in a healthcare system ruled by high-tech procedures and a philosophy to “fight disease and illness at all cost.” Dr. Ira Byock, one of the foremost palliative-care physicians in the country, argues that how we die represents a national crisis today. To ensure the best possible elder care, Dr. Byock explains we must not only remake our healthcare system but also move beyond our cultural aversion to thinking about death. The Best Care Possible is a compelling meditation on medicine and ethics told through page-turning life-or-death medical drama. It has the power to lead a new national conversation.

Palliative and End-of-life Pearls

Author : John E. Heffner
Publisher : Elsevier Health Sciences
ISBN 13 : 9781560535003
Total Pages : 252 pages
Book Rating : 4.5/5 (35 download)

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Book Synopsis Palliative and End-of-life Pearls by : John E. Heffner

Download or read book Palliative and End-of-life Pearls written by John E. Heffner and published by Elsevier Health Sciences. This book was released on 2002 with total page 252 pages. Available in PDF, EPUB and Kindle. Book excerpt: This addition to the popular Pearls Series. presents 71 case presentations of clinical interest related to end-of-life and palliative care for both hospitalized patients and patients receiving home care. The patient vignettes highlight considerations of pain and symptom management at the end of life, ethical issues related to life-supportive care, and approaches to assisting patients and families with the difficulties that surround death and dying.

Compassionate Person-Centered Care for the Dying

Author : Bonnie Freeman
Publisher : Springer Publishing Company
ISBN 13 : 0826122477
Total Pages : 297 pages
Book Rating : 4.8/5 (261 download)

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Book Synopsis Compassionate Person-Centered Care for the Dying by : Bonnie Freeman

Download or read book Compassionate Person-Centered Care for the Dying written by Bonnie Freeman and published by Springer Publishing Company. This book was released on 2015-02-23 with total page 297 pages. Available in PDF, EPUB and Kindle. Book excerpt: This groundbreaking reference for palliative care nurses is the first to provide realistic and achievable evidence-based methods for incorporating compassionate and humanistic care of the dying into current standards of practice. It builds on the author’s research-based CARES Tool, a reference that synthesizes five key elements demonstrated to enable a peaceful death as free from suffering as possible: Comfort, Airway Management, Management of Restlessness and Delirium, Emotional and Spiritual Support, and Self-Care for Nurses. The book describes step-by-step how nurses can easily implement the basic tenets of the CARES Tool into their end-of-life practice. It provides a clearly defined plan that can be individualized for each patient and tailored to specific family needs, and facilitates caring for the dying in the most respectful and humane way possible.

Crossing Over

Author : David Barnard
Publisher : Oxford University Press
ISBN 13 : 0197602274
Total Pages : 513 pages
Book Rating : 4.1/5 (976 download)

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Book Synopsis Crossing Over by : David Barnard

Download or read book Crossing Over written by David Barnard and published by Oxford University Press. This book was released on 2022-12-02 with total page 513 pages. Available in PDF, EPUB and Kindle. Book excerpt: Crossing Over provides a unique view of patients, families, and their caregivers in the face of incurable illness. Twenty richly-detailed narratives bring vividly to life the experiences of dying and bereavement, weaving together emotions, physical symptoms, spiritual concerns, and the stresses of family life, as well as the professional and personal challenges of providing hospice and palliative care. Drawing on a variety of qualitative research methods, including participant-observation, interviews, and journal keeping, the narratives depict the sights, sounds, tastes, and smells of daily life in patients' homes and in the palliative care unit. Crossing Over moves far beyond conventional case reports in medicine, which typically concentrate narrowly on symptoms and treatments, and beyond clichés about "dying with dignity." It provides intimate views of the anger and fear, tenderness and reconciliation, jealousy and love, unexpected courage and unshakable faith, social support and "falling through the cracks," which are all part of facing death in North American society. It provides an extraordinary portrait of the processes of giving and receiving hospice and palliative care in the real world, as opposed to idealized versions in many textbooks. This edition of Crossing Over has been thoroughly revised and updated to reflect changes in hospice and palliative care and in North American society since the first edition in 2000. Chief among these are the expansion of hospice and palliative care as a field, the ravages of the COVID-19 pandemic, the wider availability of medical aid in dying, and a heightened awareness of how structural racism, classism, and other forms of discrimination shape individuals' and families' experiences right up to the close of life.

The Inner Life of the Dying Person

Author : Allan Kellehear
Publisher : Columbia University Press
ISBN 13 : 0231536933
Total Pages : 283 pages
Book Rating : 4.2/5 (315 download)

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Book Synopsis The Inner Life of the Dying Person by : Allan Kellehear

Download or read book The Inner Life of the Dying Person written by Allan Kellehear and published by Columbia University Press. This book was released on 2014-05-27 with total page 283 pages. Available in PDF, EPUB and Kindle. Book excerpt: This unique book recounts the experience of facing one's death solely from the dying person's point of view rather than from the perspective of caregivers, survivors, or rescuers. Such unmediated access challenges assumptions about the emotional and spiritual dimensions of dying, showing readers that—along with suffering, loss, anger, sadness, and fear—we can also feel courage, love, hope, reminiscence, transcendence, transformation, and even happiness as we die. A work that is at once psychological, sociological, and philosophical, this book brings together testimonies of those dying from terminal illness, old age, sudden injury or trauma, acts of war, and the consequences of natural disasters and terrorism. It also includes statements from individuals who are on death row, in death camps, or planning suicide. Each form of dying addressed highlights an important set of emotions and narratives that often eclipses stereotypical renderings of dying and reflects the numerous contexts in which this journey can occur outside of hospitals, nursing homes, and hospices. Chapters focus on common emotional themes linked to dying, expanding and challenging them through first-person accounts and analyses of relevant academic and clinical literature in psycho-oncology, palliative care, gerontology, military history, anthropology, sociology, cultural and religious studies, poetry, and fiction. The result is an all-encompassing investigation into an experience that will eventually include us all and is more surprising and profound than anyone can imagine.

What Dying People Want

Author : Dr. David Kuhl
Publisher : Anchor Canada
ISBN 13 : 0307374971
Total Pages : 354 pages
Book Rating : 4.3/5 (73 download)

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Book Synopsis What Dying People Want by : Dr. David Kuhl

Download or read book What Dying People Want written by Dr. David Kuhl and published by Anchor Canada. This book was released on 2011-07-27 with total page 354 pages. Available in PDF, EPUB and Kindle. Book excerpt: An internationally renowned palliative care physician offers guidance on living with a terminal illness. Based on research funded by the Soros Foundation and extensive interviews with dying people. A profound and practical book about living with a terminal illness over a long period of time. It offers guidance, solace, and helpful strategies for people who are terminally ill, their families and caregivers. Facing death results in more fear and anxiety than any other human experience. Western medicine has accomplished a great deal in addressing physical pain and controlling symptoms for people with a terminal illness, but much slower progress has been made in understanding and alleviating psychological and spiritual distress. In What Dying People Want, Dr. David Kuhl begins to bridge that gap. He does so by addressing end-of-life realities — physical, psychological and spiritual — through his own experiences as a doctor and through the words and experiences of people who know that they are dying. He presents ways of addressing the pain, of finding new life in the process of dying and of understanding the inner reality of living with a terminal illness. He acknowledges the despair and recognizes the desire for hope and meaning. Dr. Kuhl also makes the provocative case that insensitive communication by doctors creates more suffering for patients than either the illness or the knowledge of impending death, and offers both the dying and their caregivers guidance on preventing painful interactions. He provides ways of speaking about difficult topics with physicians, family members, friends and those who have a terminal illness. “This book started with a research question: What is the daily experience of living with a terminal illness? How does that experience affect your sense of self, your relationship with others, and your understanding of the spiritual? Many of those I interviewed asked me to share what they had given me with others who would follow — those with a terminal illness as well as their friends and family members who would care for them and about them. They asked specifically that I write a book for a general audience, and not only for my colleagues in the medical profession. This is the book that grew out of that research.” — Dr. David Kuhl