The Lived Experience Of Dying For Hospitalized Patients Waiting To Be Transferred To A Palliative Care Unit

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Approaching Death

Author : Committee on Care at the End of Life
Publisher : National Academies Press
ISBN 13 : 0309518253
Total Pages : 457 pages
Book Rating : 4.3/5 (95 download)

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Book Synopsis Approaching Death by : Committee on Care at the End of Life

Download or read book Approaching Death written by Committee on Care at the End of Life and published by National Academies Press. This book was released on 1997-10-30 with total page 457 pages. Available in PDF, EPUB and Kindle. Book excerpt: When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."

The Lived Experience of Palliative Chaplains

Author : Caroline Yih
Publisher : Taylor & Francis
ISBN 13 : 104004929X
Total Pages : 144 pages
Book Rating : 4.0/5 (4 download)

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Book Synopsis The Lived Experience of Palliative Chaplains by : Caroline Yih

Download or read book The Lived Experience of Palliative Chaplains written by Caroline Yih and published by Taylor & Francis. This book was released on 2024-06-21 with total page 144 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book explores the unique challenges of disenfranchisement faced by Christian chaplains working within the secular and pluralistic context of contemporary healthcare. The case study focuses on practitioners in Hong Kong and showcases the utilisation of interpretative phenomenological analysis (IPA) as a fruitful basis for practical theological endeavours. The role and perspective of the palliative chaplain as spiritual care specialist is examined, along with the tension that exists with the cultural and organisational context in which they operate. The chapters examine how end of life care practitioners can often face marginalisation, oppression, vulnerability, and disorientation among other difficult experiences that the author unites under a general theme of “homelessness”. The book contributes to discussions regarding fuller integration of the spiritual dimension within a holistic vision of end of life care provision. It will be of particular interest to scholars of practical theology and chaplaincy, as well as palliative medicine.

Dying Well

Author : Ira Byock
Publisher : Penguin
ISBN 13 : 110150028X
Total Pages : 321 pages
Book Rating : 4.1/5 (15 download)

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Book Synopsis Dying Well by : Ira Byock

Download or read book Dying Well written by Ira Byock and published by Penguin. This book was released on 1998-03-01 with total page 321 pages. Available in PDF, EPUB and Kindle. Book excerpt: From Ira Byock, prominent palliative care physician and expert in end of life decisions, a lesson in Dying Well. Nobody should have to die in pain. Nobody should have to die alone. This is Ira Byock's dream, and he is dedicating his life to making it come true. Dying Well brings us to the homes and bedsides of families with whom Dr. Byock has worked, telling stories of love and reconciliation in the face of tragedy, pain, medical drama, and conflict. Through the true stories of patients, he shows us that a lot of important emotional work can be accomplished in the final months, weeks, and even days of life. It is a companion for families, showing them how to deal with doctors, how to talk to loved ones—and how to make the end of life as meaningful and enriching as the beginning. Ira Byock is also the author of The Best Care Possible: A Physician's Quest to Transform Care Through the End of Life.

Oxford Textbook of Palliative Nursing

Author : Betty R. Ferrell
Publisher : Oxford University Press, USA
ISBN 13 : 0199332347
Total Pages : 1249 pages
Book Rating : 4.1/5 (993 download)

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Book Synopsis Oxford Textbook of Palliative Nursing by : Betty R. Ferrell

Download or read book Oxford Textbook of Palliative Nursing written by Betty R. Ferrell and published by Oxford University Press, USA. This book was released on 2015 with total page 1249 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Oxford Textbook of Palliative Nursing is the definitive text on nursing care of the seriously ill and dying. It is a comprehensive work addressing all aspects of palliative care including physical, psychological, social and spiritual needs. The text is written by leaders in the field and includes an impressive section on international palliative care. Each chapter includes case examples and a strong evidence base to support the highest quality of care. The book is rich with tables and figures offering practical resources for clinical practice across all settings of care and encompassing all ages from pediatrics to geriatrics.

Care at the Close of Life: Evidence and Experience

Author : Stephen J. McPhee
Publisher : Mcgraw-hill
ISBN 13 : 9780071637954
Total Pages : 616 pages
Book Rating : 4.6/5 (379 download)

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Book Synopsis Care at the Close of Life: Evidence and Experience by : Stephen J. McPhee

Download or read book Care at the Close of Life: Evidence and Experience written by Stephen J. McPhee and published by Mcgraw-hill. This book was released on 2010-10-04 with total page 616 pages. Available in PDF, EPUB and Kindle. Book excerpt: From one of the world’s leading medical journals comes the definitive evidence-based, full-color guide to end-of-life and palliative care "...represents an important milestone in the evolution of care for people with advanced disease—-for which its editors and authors and JAMA should be rightly proud. It is wonderful that JAMA had the foresight to publish a series on this topic, which, as medicine has become more technologically advanced and subspecialized, is often overlooked and, sometimes worse, avoided....this book will be invaluable for front-line clinicians, and indeed all health care practitioners—as care at the close of life is a part of almost all of medicine’s specialties and settings."--Irene J. Higginson, BMBS, PhD, FPPHM, FRCP; Dept. of Palliative Care, Policy, & Rehabilitation; Cicely Saunders Institute; King's College London (from the foreword) A new addition to the JAMAevidence series, Care at the Close of Life: Evidence and Experience offers evidence-based and clinical expert guidance on caring for patients with life-limiting illness, incorporating the words and perspectives of affected patients, their families, and treating clinicians. Organized by these actual clinical cases, the book is based on the acclaimed 7-year series of 42 articles, originally published in JAMA as “Perspectives on Care at the Close of Life,” and now thoroughly updated as chapters and featuring extensive never-before-published material. Care at the Close of Life covers are a wide range of clinical syndromes, disease processes, communication challenges, health-care delivery settings, and issues faced by patients, including withdrawal of dialysis and other life-sustaining measures, cross-cultural approaches, and the role of chemotherapy. Throughout the book, emphasis is on the principles of palliative care, with the patient and family at the center of care, and with attention given to all problems—physical, psychological, social, and spiritual. Reflecting this focus, each chapter begins with a patient case study to introduce the clinical problem, followed by “perspectives” that draw on extensive, real-world dialogue between clinicians, patients, and families. Internationally renowned authors then review the typical challenges illustrated by the case, offering state-of-the-art, evidence-based assessment and treatment approaches. Features Fully revised and updated text with new evidence and references, including the search methodology for each chapter’s update Evidence-based orientation presents the current state of knowledge in the care of terminally ill patients and support for their families and caregivers Practical clinical guidance and approaches from international experts in palliative care Self-assessment Q&A, for reinforcing your knowledge of each chapter’s content and for preparing for exams A useful Glossary of acronyms, terms, and tests Updated Resources for each chapter offer current, authoritative sources of diagnostic and treatment information that can help you optimize palliative care Medline PubMed ID numbers facilitate quick, convenient access to references

Dying at the Margins

Author : David Wendell Moller
Publisher : Oxford University Press
ISBN 13 : 0190918128
Total Pages : 289 pages
Book Rating : 4.1/5 (99 download)

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Book Synopsis Dying at the Margins by : David Wendell Moller

Download or read book Dying at the Margins written by David Wendell Moller and published by Oxford University Press. This book was released on 2018-10-03 with total page 289 pages. Available in PDF, EPUB and Kindle. Book excerpt: Dying at the Margins: Reflections on Justice and Healing for Inner-City Poor gives voice to the most vulnerable and disempowered population-the urban dying poor- and connects them to the voices of leaders in end-of-life-care. Chapters written by these experts in the field discuss the issues that challenge patients and their loved ones, as well as offering insights into how to improve the quality of their lives. In an illuminating and timely follow up to Dancing with Broken Bones, all discussions revolve around the actual experiences of the patients previously documented, encouraging a greater understanding about the needs of the dying poor, advocating for them, and developing best practices in caring. Demystifying stereotypes that surround poverty, Moller illuminates how faith, remarkable optimism, and an unassailable spirit provide strength and courage to the dying poor.Dying at the Margins serves as a rallying call for not only end-of-life professionals, but compassionate individuals everywhere, to understand and respond to the needs of the especially vulnerable, yet inspiring, people who comprise the world of the inner city dying poor.

Dying in America

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309303133
Total Pages : 470 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Dying in America by : Institute of Medicine

Download or read book Dying in America written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-19 with total page 470 pages. Available in PDF, EPUB and Kindle. Book excerpt: For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

Palliative Day Care

Author : Ronald Fisher
Publisher : CRC Press
ISBN 13 : 9780340625217
Total Pages : 259 pages
Book Rating : 4.6/5 (252 download)

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Book Synopsis Palliative Day Care by : Ronald Fisher

Download or read book Palliative Day Care written by Ronald Fisher and published by CRC Press. This book was released on 1996-03-29 with total page 259 pages. Available in PDF, EPUB and Kindle. Book excerpt: There has been a steady growth in the provision of day care services for people with life-threatening illnesses who live at home. This book includes details of the range of therapies and services that a multi-disciplinary team can provide to address the physical, emotional, psycho-social and spiritual needs of these patients and their families, thus enabling them to remain in their own homes.

Dying and Death in Canada, Third Edition

Author : Herbert C. Northcott
Publisher : University of Toronto Press
ISBN 13 : 1442634561
Total Pages : 337 pages
Book Rating : 4.4/5 (426 download)

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Book Synopsis Dying and Death in Canada, Third Edition by : Herbert C. Northcott

Download or read book Dying and Death in Canada, Third Edition written by Herbert C. Northcott and published by University of Toronto Press. This book was released on 2016-07-07 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Dying and Death in Canada offers a comprehensive discussion of dying, death, and bereavement from a Canadian perspective. The third edition has been thoroughly updated and several new topics have been added, including assisted suicide and active euthanasia, end of life care, emerging trends in funerary practices, and changing conceptualizations and interventions in the grieving process. A glossary has also been added along with end-of-chapter review questions and an appendix listing recent and seminal movies, television programs, documentary films, and other visual media sources dealing with dying and death. The new edition includes 22 black and white photos, 4 figures, and 3 tables."--

The Oxford Textbook of Palliative Social Work

Author : Terry Altilio
Publisher : Oxford University Press
ISBN 13 : 0197537855
Total Pages : 1009 pages
Book Rating : 4.1/5 (975 download)

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Book Synopsis The Oxford Textbook of Palliative Social Work by : Terry Altilio

Download or read book The Oxford Textbook of Palliative Social Work written by Terry Altilio and published by Oxford University Press. This book was released on 2022 with total page 1009 pages. Available in PDF, EPUB and Kindle. Book excerpt: "It is so important to advocate for things that may not always seem possible. Getting to work with patients/families at the end of their life is the ultimate honor." - Lauren G Markham, MSW, LCSW, APHSW-C "In this work, one witnesses both depths of human suffering and heights of human transcendence that can inspire both awe and fear. At those times, I have found that surrendering my need to be "an expert" and instead, allow myself to simply be a "human" is the wisest action." - Kerry Irish, LCSW, OSW-C, FAOSW"--

Textbook of Palliative Medicine and Supportive Care

Author : Eduardo Bruera
Publisher : CRC Press
ISBN 13 : 1444135260
Total Pages : 1332 pages
Book Rating : 4.4/5 (441 download)

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Book Synopsis Textbook of Palliative Medicine and Supportive Care by : Eduardo Bruera

Download or read book Textbook of Palliative Medicine and Supportive Care written by Eduardo Bruera and published by CRC Press. This book was released on 2015-01-15 with total page 1332 pages. Available in PDF, EPUB and Kindle. Book excerpt: "the thoroughness of the text has to be admired. It is an excellent starting point for students of palliative care which makes an important contribution to any library."-British Journal of Hospital Medicine" covers a plethora of topics ranging from the development of palliative medicine in different countries to clinical topics and bioethics an

Dying and Death in Canada, Fourth Edition

Author : Herbert C. Northcott
Publisher : University of Toronto Press
ISBN 13 : 1487509294
Total Pages : 382 pages
Book Rating : 4.4/5 (875 download)

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Book Synopsis Dying and Death in Canada, Fourth Edition by : Herbert C. Northcott

Download or read book Dying and Death in Canada, Fourth Edition written by Herbert C. Northcott and published by University of Toronto Press. This book was released on 2021-11-01 with total page 382 pages. Available in PDF, EPUB and Kindle. Book excerpt: Dying and Death in Canada provides a comprehensive, up-to-date examination of dying, death, and bereavement from a Canadian perspective. The fourth edition covers current issues and recent developments in the field, such as the implementation of Medical Assistance in Dying (MAID) and the implications of the COVID-19 pandemic. New topics include death doulas, death tourism, psychogenic death, bonds between the living and the dead, mass death events, and cultural diversity, sensitivity, and competence. This edition combines current research and language used to destigmatize conversations surrounding suicide, while new case studies offer personal accounts from doctors, nurses, and family members of the deceased. Exploring the significance of end-of-life experiences, Dying and Death in Canada shows that how we live influences how we die, and the society and culture in which we live has a profound effect on how we behave when confronted with dying and death.

Reichel's Care of the Elderly

Author : Jan Busby-Whitehead
Publisher : Cambridge University Press
ISBN 13 : 110883776X
Total Pages : 821 pages
Book Rating : 4.1/5 (88 download)

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Book Synopsis Reichel's Care of the Elderly by : Jan Busby-Whitehead

Download or read book Reichel's Care of the Elderly written by Jan Busby-Whitehead and published by Cambridge University Press. This book was released on 2022-07-21 with total page 821 pages. Available in PDF, EPUB and Kindle. Book excerpt: A clinical guide for all health specialists offering practical, relevant and comprehensive information on managing the elderly patient.

Care of the Dying Patient

Author : David A. Fleming
Publisher : University of Missouri Press
ISBN 13 : 0826272215
Total Pages : 172 pages
Book Rating : 4.8/5 (262 download)

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Book Synopsis Care of the Dying Patient by : David A. Fleming

Download or read book Care of the Dying Patient written by David A. Fleming and published by University of Missouri Press. This book was released on 2010-04-15 with total page 172 pages. Available in PDF, EPUB and Kindle. Book excerpt: Although the need for improved care for dying patients is widely recognized and frequently discussed, few books address the needs of the physicians, nurses, social workers, therapists, hospice team members, and pastoral counselors involved in care. Care of the Dying Patient contains material not found in other sources, offering advice and solutions to anyone—professional caregiver or family member—confronted with incurable illness and death. Its authors have lectured and published extensively on care of the dying patient and here review a wide range of topics to show that relief of physical suffering is not the only concern in providing care. This collection encompasses diverse aspects of end-of-life care across multiple disciplines, offering a broad perspective on such central issues as control of pain and other symptoms, spirituality, the needs of caregivers, and special concerns regarding the elderly. In its pages, readers will find out how to: effectively utilize palliative-care services and activate timely referral to hospice, arrange for care that takes into account patients’ cultural beliefs, and respond to spiritual and psychological distress, including the loss of hope that often overshadows physical suffering. The authors especially emphasize palliative care and hospice, since some physicians fear that such referrals may be viewed by patients and families as abandonment. They also address ethical and legal risks in pain management and warn that fear of overprescribing pain medication may inadvertently lead to ineffective pain relief and even place the treating team at risk of liability for undertreatment of pain. While physicians have the ability to treat disease, they also help to determine the time and place of death, and they must recognize that end-of-life choices are made more complex than ever before by advances in medicine and at the same time increasingly important. Care of the Dying Patient addresses some of the challenges frequently confronted in terminal care and points the way toward a more compassionate way of death.

Oxford Textbook of Geriatric Medicine

Author : Jean-Pierre Michel
Publisher : Oxford University Press
ISBN 13 : 0198701594
Total Pages : 1393 pages
Book Rating : 4.1/5 (987 download)

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Book Synopsis Oxford Textbook of Geriatric Medicine by : Jean-Pierre Michel

Download or read book Oxford Textbook of Geriatric Medicine written by Jean-Pierre Michel and published by Oxford University Press. This book was released on 2018 with total page 1393 pages. Available in PDF, EPUB and Kindle. Book excerpt: The third edition of the definitive international reference book on all aspects of the medical care of older persons will provide every physician involved in the care of older patients with a comprehensive resource on all the clinical problems they are likely to encounter, as well as on related psychological, philosophical, and social issues.

Euthanasia: Searching for the Full Story

Author : Timothy Devos
Publisher : Springer Nature
ISBN 13 : 3030567958
Total Pages : 110 pages
Book Rating : 4.0/5 (35 download)

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Book Synopsis Euthanasia: Searching for the Full Story by : Timothy Devos

Download or read book Euthanasia: Searching for the Full Story written by Timothy Devos and published by Springer Nature. This book was released on 2021-03-17 with total page 110 pages. Available in PDF, EPUB and Kindle. Book excerpt: This open access book has been written by ten Belgian health care professionals, nurses, university professors and doctors specializing in palliative care and ethicists who, together, raise questions concerning the practice of euthanasia. They share their experiences and reflections born out of their confrontation with requests for euthanasia and end-of-life support in a country where euthanasia has been decriminalized since 2002 and is now becoming a trivial topic.Far from evoking any militancy, these stories of life and death present the other side of a reality needs to be evaluated more rigorously.Featuring multidisciplinary perspectives, this though-provoking and original book is intended not only for caregivers but also for anyone who questions the meaning of death and suffering, as well as the impact of a law passed in 2002. Presenting real-world cases and experiences, it highlights the complexity of situations and the consequences of the euthanasia law.This book appeals to palliative care providers, hematologists, oncologists, psychiatrists, nurses and health professionals as well as researchers, academics, policy-makers, and social scientists working in health care. It is also a unique resource for those in countries where the decriminalization of euthanasia is being considered. Sometimes shocking, it focuses on facts and lived experiences to challenge readers and offer insights into euthanasia in Belgium.

Case Studies in Palliative and End-of-Life Care

Author : Margaret L. Campbell
Publisher : John Wiley & Sons
ISBN 13 : 1118363272
Total Pages : 328 pages
Book Rating : 4.1/5 (183 download)

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Book Synopsis Case Studies in Palliative and End-of-Life Care by : Margaret L. Campbell

Download or read book Case Studies in Palliative and End-of-Life Care written by Margaret L. Campbell and published by John Wiley & Sons. This book was released on 2012-08-02 with total page 328 pages. Available in PDF, EPUB and Kindle. Book excerpt: Case Studies in Palliative and End-of-Life Care uses a case-based approach to provide students and practitioners with an important learning tool to improve critical thinking skills and encourage discussion toward improving experiences for patients and their families. The book is organized into three sections covering subjects related to communication, symptom management, and family care. Each case is presented in a consistent, logical format for ease of use, highlighting key evidence-based concepts including the case history, care setting, diagnosis and prognosis, assessment, treatment considerations, and family support. A key reference, Case Studies in Palliative and End-of-Life Care is an invaluable resource for clinicians who provide palliative care to patients with life-limiting illnesses and those at the end of life along with their families.