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The Lived Experience Of African American Informal Caregivers Of A Family Member With Alzheimers Disease And Related Dementias
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Book Synopsis The Lived Experience of African American Informal Caregivers of a Family Member with Alzheimer's Disease and Related Dementias by : Dell Mars (G.)
Download or read book The Lived Experience of African American Informal Caregivers of a Family Member with Alzheimer's Disease and Related Dementias written by Dell Mars (G.) and published by . This book was released on 2015 with total page 126 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Dementia Care with Black and Latino Families by : Delia J González Sanders, PhD LCSW
Download or read book Dementia Care with Black and Latino Families written by Delia J González Sanders, PhD LCSW and published by Springer Publishing Company. This book was released on 2011-12-20 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt: Designated a Doody's Core Title! "The authors have created a book that comfortably combines substantial research findings with readable, practical guidelines for assessment and intervention in the real-world practice of social work. This authoritatively researched, well-written volume will appeal to the multiple disciplines involved in assisting dementia patients and their families. It will also be useful for academic health care collections...Highly recommended."--Choice: Current Reviews for Academic Libraries Understanding the role of dementia caregivers in different ethnic and cultural contexts is one of the most important skills that social workers should master. This comprehensive volume provides practical guidance for social work professionals who work with Black and Latino families living with the daily challenges of Alzheimer's disease and other forms of dementia. It is grounded in the interpretation and meaning of dementia in Black and Latino cultural heritages, and based on both a solid theoretical framework and the substantial research and clinical expertise of the authors. Detailed, step-by-step guidelines to assessment and intervention in ethnic-specific situations provide useful strategies that go beyond generic solutions. The text presents an overview of the epidemiology and clinical course of dementia with a focus on those forms of the disease most common to Blacks and Latinos. It addresses family care and role responsibilities in ethnic families and their theoretical, ethnic, and cultural foundations. Self-efficacy and cognitive behavioral problem-solving theories are discussed as modalities of choice. The text also considers financial and service delivery trends and use of technology, and provides detailed forms, documents, and dementia care resources. Numerous case studies will help readers to quickly put information into the context of real-world situations. Key Features: Provides concrete, targeted interventions for assisting ethnic family caregivers in confronting day-to-day issues Explains how and why self-efficacy and cognitive behavioral problem-solving theories are particularly useful for social work with ethnic family caregivers Offers detailed, step-by-step guidelines to assessment and intervention Includes problem-solving forms, documents, and additional dementia care resources Contains vivid supporting case studies in each chapter
Book Synopsis African Americans Caring for Loved Ones with Dementia by : Angela Dumas
Download or read book African Americans Caring for Loved Ones with Dementia written by Angela Dumas and published by . This book was released on 2019 with total page 40 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimer's is a progressive neurogenerative disease and is the most common cause of dementia. There are approximately 50 million people, worldwide living with Alzheimer's disease and other dementias and five million are Americans (Alzheimer's Association, 2018). By the year 2050, approximately 14 million people could be living with Alzheimer's disease or some form of dementia. There are approximately 16 million informal caregivers living in the United States caring for people with Alzheimer's or other dementias (Alzheimer's Association, 2018). The purpose of this study was to gain an understanding of the experience's African American family member caregivers caring for a loved one with dementia because African Americans have been under represented in previous research. A qualitative exploratory study was conducted. The participant was interviewed in a setting most comfortable. An in-depth, semi-structured interview was conducted. The participant was asked 10 open-ended questions. The participant was African American, a primary caregiver, and loved one has Vascular dementia. Deductive coding was utilized to code the interview which is a "top-down approach to coding qualitative data using pre-set coding schemes. There were five themes were identified: caregiver burden, culture, communication, support, and life being placed on hold. The findings showed caregiving does change the caregiver's life and has some challenges. Caregivers need support from family and friends, as well as community resources when they become a primary caregiver for a loved one with dementia. Also, support allows the caregiver's time for self-care and time to meet their own basic needs, it decreases the burden that caregivers often feel. The caregiver's life can change drastically when becoming a primary caregiver for a loved one with dementia.
Book Synopsis The Hidden Among the Hidden by : Helen K. Black
Download or read book The Hidden Among the Hidden written by Helen K. Black and published by Oxford University Press. This book was released on 2017 with total page 193 pages. Available in PDF, EPUB and Kindle. Book excerpt: What are the experiences of African-American elder male caregivers? Based on research with twelve African-American caregivers born in the first half of the 20th century, this book captures the complexity and poignancy of the caregiving pilgrimage, and roots men's caregiving narratives within the biographical and historical context of their lives.
Author :National Academies of Sciences, Engineering, and Medicine Publisher :National Academies Press ISBN 13 :0309448093 Total Pages :367 pages Book Rating :4.3/5 (94 download)
Book Synopsis Families Caring for an Aging America by : National Academies of Sciences, Engineering, and Medicine
Download or read book Families Caring for an Aging America written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-08 with total page 367 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.
Book Synopsis AARP Loving Someone Who Has Dementia by : Pauline Boss
Download or read book AARP Loving Someone Who Has Dementia written by Pauline Boss and published by John Wiley & Sons. This book was released on 2011-12-12 with total page 149 pages. Available in PDF, EPUB and Kindle. Book excerpt: AARP Digital Editions offer you practical tips, proven solutions, and expert guidance. In Loving Someone Who Has Dementia, Pauline Boss provides research-based advice for people who care for someone with dementia. Nearly half of U.S. citizens over the age of 85 are suffering from some kind of dementia and require care. Loving Someone Who Has Dementia is a new kind of caregiving book. It's not about the usual techniques, but about how to manage on-going stress and grief. The book is for caregivers, family members, friends, neighbors as well as educators and professionals—anyone touched by the epidemic of dementia. Dr. Boss helps caregivers find hope in "ambiguous loss"—having a loved one both here and not here, physically present but psychologically absent. Outlines seven guidelines to stay resilient while caring for someone who has dementia Discusses the meaning of relationships with individuals who are cognitively impaired and no longer as they used to be Offers approaches to understand and cope with the emotional strain of care-giving Boss's book builds on research and clinical experience, yet the material is presented as a conversation. She shows you a way to embrace rather than resist the ambiguity in your relationship with someone who has dementia.
Book Synopsis Answering the Call by : Charlene Aaron PHD RN
Download or read book Answering the Call written by Charlene Aaron PHD RN and published by Fulton Books, Inc.. This book was released on 2021-10-25 with total page 42 pages. Available in PDF, EPUB and Kindle. Book excerpt: The title of the book, Answering the Call, is a reference to my nursing career with a focus on caregiver support and appropriate nursing care of persons with dementia. The call is also a reference to spiritual guidance and support during dark, stressful, and lonely times during this very important type of caregiving. Though the book is written for family caregivers of persons with dementia, health care professionals can also glean helpful tools from my toolbox, from which I have contributed from more than four decades of nursing. The scriptures throughout the book are woven in to comfort the caregiver while making sense and driving more meaning into the challenging responsibility of this type of caregiving.
Book Synopsis African American Dementia Caregivers Experiences with Decision Making by : Quinton Cotton
Download or read book African American Dementia Caregivers Experiences with Decision Making written by Quinton Cotton and published by . This book was released on 2022 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Caregivers for persons with Alzheimer's Disease and Related Dementias (ADRD) (henceforth will be referred to as dementia) face challenges over the course of their caregiving journey. Caregiving experiences are often influenced by structural factors and specific conditions surrounding these challenges. Caregivers' perspectives and experiences are critical in understanding how caregivers respond to these challenges. African American populations are disproportionately burdened by dementia, yet their experiences with and appraisal of how to navigate these situations are not well understood. To ensure development of supports that address the needs of African American dementia caregivers, we must develop evidence to inform intervention development. To better understand African Americans dementia caregivers' response to challenges, we conducted individual interviews employing Grounded Dimensional Analysis with ten African American caregivers to elucidate their caregiving experiences and generate a framework for understanding processes responding to new, emergent, and unexpected events. Findings demonstrate that caregivers evaluate emergent situations and available choices, often resulting in decision-making perceived as involving limited choice. Findings also highlight salient conditions that influence appraisal and decision making. Implications for this study have relevance for the development of pragmatic, culturally relevant decision supports. This dissertation also examines application of Grounded Dimensional Analysis and reflective practice conducting interviews with dementia caregivers. Collectively, this dissertation provides evidence on processes engaged by African American dementia caregivers in responding to challenges and strategies for improving research quality of qualitative studies that involve conducting interviews with dementia caregivers.
Book Synopsis Alzheimer's Disease by : Patricia R. Callone
Download or read book Alzheimer's Disease written by Patricia R. Callone and published by ReadHowYouWant.com. This book was released on 2010-02 with total page 238 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Dignity Within A Handbook for Caregivers, Family, and Friends Of the estimated 5 million Americans who have Alzheimer's disease, more than 70% live at home, with family and friends. Alzheimer's Disease: A Handbook for Caregivers, Family, and Friends is a unique resource for those caregivers so that they can be better equipped to nurture people living with Alzheimer's disease. This expert guide educates the reader on the physical changes in the brain as the disease progresses and outlines what can be done from a caregiver's standpoint at each stage. It stresses the importance of self-care in ensuring that you are prepared to support the person with Alzheimer's disease. Packed with tips and techniques from five authorities in the field, this book answers critical questions such as: What caregiving style will suit me best? What skills are likely to remain as Alzheimer's disease progresses? How do I balance my needs with the needs of the person I'm caring for? How do I find the time to rest and relax? When is it time to consider an assisted living community or a nursing home? And much more! The most important tenet of this book is that we can better care for people with Alzheimer's disease by recognizing the ''essence within'' a person living through the different stages of the disease. This positive approach will help both caregivers and people affected by Alzheimer's disease live with a sense of dignity, importance, and self-esteem.
Book Synopsis Ethnicity and the Dementias by : Gwen Yeo
Download or read book Ethnicity and the Dementias written by Gwen Yeo and published by Routledge. This book was released on 2013-05-13 with total page 414 pages. Available in PDF, EPUB and Kindle. Book excerpt: In recent years, the literature on the topic of ethnic and racial issues in Alzheimer’s disease and other dementias has increased dramatically. At the same time, the need for cultural competence in all of geriatric care, including dementia care, is increasingly being acknowledged. Researchers and providers are beginning to recognize the impending "ethnogeriatric imperative," as the number of elders from diverse ethnic and cultural backgrounds continues to rise. Ethnicity and the Dementias offers invaluable background information in this area, while also examining how those suffering from dementia and their family members respond or adapt to the challenges that follow. Thoroughly updated and revised from the first edition, the book features contributions from leading clinicians and researchers on the epidemiology of dementias by ethnic population, new information on the assessment of diverse populations, and updates and inclusions of new populations in the management of dementia and working with families. The book is ideal for practitioners, researchers, and policy makers in search of the most current ethnogeriatric findings.
Book Synopsis Lifting Our Voices by : Joyce Octavia Beckett
Download or read book Lifting Our Voices written by Joyce Octavia Beckett and published by Columbia University Press. This book was released on 2008 with total page 384 pages. Available in PDF, EPUB and Kindle. Book excerpt: Lifting Our Voices is the only book to explore the dual roles of professional social workers who are also family caregivers and the only collection on caregiving in which the majority of contributors are African American. After discussing the relevant literature, Lifting Our Voices vividly and sensitively presents the caregiving experiences of ten professional social workers. Using professional and theoretical knowledge and skills, each contributor draws implications for various levels of social work and human service interventions. These poignant descriptions and analyses recount both the frustrations and barriers of negotiating social service agencies and other institutions and the joys and triumphs of family caregiving. Lifting Our Voices frankly discusses how a professional education either prepares or fails to equip an individual with the skills for successful intervention on behalf of a loved one. Contributors hail from rich and varied backgrounds, revealing the importance of age, ethnicity, gender, marital status, and gerontological expertise in the practice of family caregiving. These essays explore situations rarely reported on in the literature, such as caregivers and care recipients who represent the lifespan from preschool to retirement. Lifting Our Voices graphically describes types of caregiving that are seldom discussed, including simultaneous caregiving to multiple family members and reciprocal and sequential caregiving, thus broadening and refining the very concepts of "caregiving" and "family."
Book Synopsis Black Families in White America by : Andrew Billingsley
Download or read book Black Families in White America written by Andrew Billingsley and published by Englewood Cliffs, N.J. : Prentice-Hall. This book was released on 1968 with total page 238 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Aging Well by : JEAN. HASELTINE GALIANA (WILLIAM.)
Download or read book Aging Well written by JEAN. HASELTINE GALIANA (WILLIAM.) and published by Springer. This book was released on 2019-01-01 with total page 218 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This open access book outlines the challenges of supporting the health and wellbeing of older adults around the world and offers examples of solutions designed by stakeholders, healthcare providers, and public, private and nonprofit organizations in the United States. The solutions presented address challenges including: providing person-centered long-term care, making palliative care accessible in all healthcare settings and the home, enabling aging-in-place, financing long-term care, improving care coordination and access to care, delivering hospital-level and emergency care in the home and retirement community settings, merging health and social care, supporting people living with dementia and their caregivers, creating communities and employment opportunities that are accessible and welcoming to those of all ages and abilities, and combating the stigma of aging. The innovative programs of support and care in Aging Well serve as models of excellence that, when put into action, move health spending toward a sustainable path and greatly contribute to the well-being of older adults."--Provided by publisher.
Book Synopsis Alzheimer's/Dementia from the Experiences of a Caregiver by : Rev. Frederick Trunk
Download or read book Alzheimer's/Dementia from the Experiences of a Caregiver written by Rev. Frederick Trunk and published by Xulon Press. This book was released on 2012-02 with total page 64 pages. Available in PDF, EPUB and Kindle. Book excerpt: If you are a caregiver, or know someone who is, you owe it to yourself to read this book. It is very important to know the phases of Alzheimer's as well as the effects it has, not only on the patient, but on those who care for, or live with the patient. If you know someone who is struggling with the challenge you need to know how to help them. This book will give you insight into the challenges of dementia and Alzheimer's from the prospective of a caregiver who started attending caregivers meetings shortly after he realized that his wife was having unusual challenges and behaviors. Frederick and Marjorie were caregivers for about three years for a couple from their church. They were not able to get satisfactory help from family members or friends so they stepped in and got the appropriate legal Power of Attorney and helped them get into assisted living. We took care of their needs until they passed away. During this period we learned a lot about care giving. Frederick has been caregiver for his wife Marjorie for eleven years. His wish is that the book he has written will get into the hands of those who are just beginning to recognize there is a problem as well as those who may be experiencing many years as a caregiver. He also wants people to know that getting help early on is very important and makes the challenge of care giving much easier. For over forty years Frederick has served as Minister of Music/Organist in eleven churches in New Jersey, Massachusetts and Georgia. He attended Northeastern Bible College and Seminary in Essex Fells, New Jersey, and International Christian College and Seminary in Plymouth, Florida where he earned a Bachelor of Music and a Masters in Ministry.
Book Synopsis The Book Of Alzheimer's by : The Balm In Gilead
Download or read book The Book Of Alzheimer's written by The Balm In Gilead and published by Lulu.com. This book was released on 2017-04-17 with total page 70 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Book of Alzheimer's is a resource guide for congregations serving African Americans who desire to help families and individuals cope with Alzheimer's. According to the Alzheimer's Association, African Americans are two to three times more likely than whites to develop dementia. More than 5 million people in the United States have Alzheimer's and this number is expected to double by the year 2030. It is now estimated that one out of every nine persons over the age of 65 is living with Alzheimer's. The Book of Alzheimer's is a road map for providing compassionate support to persons living with Alzheimer's and their caregivers.
Author :National Academies of Sciences Engineering and Medicine Publisher : ISBN 13 :9780309495035 Total Pages : pages Book Rating :4.4/5 (95 download)
Book Synopsis Reducing the Impact of Dementia in America by : National Academies of Sciences Engineering and Medicine
Download or read book Reducing the Impact of Dementia in America written by National Academies of Sciences Engineering and Medicine and published by . This book was released on 2022-04-26 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.
Book Synopsis When Someone You Know Is Living in a Dementia Care Community by : Rachael Wonderlin
Download or read book When Someone You Know Is Living in a Dementia Care Community written by Rachael Wonderlin and published by Johns Hopkins University Press. This book was released on 2016-11-01 with total page 220 pages. Available in PDF, EPUB and Kindle. Book excerpt: "When Someone You Know Is Living in a Dementia Care Community is an accessible guide offering answers to such questions as: How do I choose a place for my loved one to live? What can I find out by visiting a candidate memory-care community twice? What do I do if my loved one asks about going home? How can I improve the quality of my visits? What is the best way to handle conflict between residents, or between the resident and staff? How can I cope with my loved one's sundowning? What do I do if my loved one starts a romantic relationship with another resident?An indispensable book for family members and friends of people with dementia, When Someone You Know is Living in a Dementia Care Community touches the heart while explaining how to make a difficult situation better.
