Read Books Online and Download eBooks, EPub, PDF, Mobi, Kindle, Text Full Free.
The Ghost Of Rare Diseases And The Failure Of Doctors
Download The Ghost Of Rare Diseases And The Failure Of Doctors full books in PDF, epub, and Kindle. Read online The Ghost Of Rare Diseases And The Failure Of Doctors ebook anywhere anytime directly on your device. Fast Download speed and no annoying ads. We cannot guarantee that every ebooks is available!
Book Synopsis The ghost of rare diseases and the failure of doctors by : Adnan Radwan Author and poet
Download or read book The ghost of rare diseases and the failure of doctors written by Adnan Radwan Author and poet and published by Lulu.com. This book was released on 2019-01-10 with total page 38 pages. Available in PDF, EPUB and Kindle. Book excerpt: I am Adnan Radwan, a Syrian poet and author, who wrote this story about the rare diseases that have been spreading lately in order to spread awareness among people and to guide them median arcuate ligament syndrome The book is translated from Arabic to English
Book Synopsis Rare Diseases in the Age of Health 2.0 by : Rajeev K. Bali
Download or read book Rare Diseases in the Age of Health 2.0 written by Rajeev K. Bali and published by Springer Science & Business Media. This book was released on 2013-10-21 with total page 307 pages. Available in PDF, EPUB and Kindle. Book excerpt: This text focuses on various factors associated with orphan diseases and the influence and role of health information technologies. Orphan diseases have not been adopted by the pharmaceutical industry because they provide little financial incentive to treat or prevent it. It is estimated that 6,000-7,000 orphan diseases exist today; as medical knowledge continues to expand, this number is likely to become much greater. The book highlights the opportunities and challenges in this increasingly important area. The book explores new avenues which are opened by information technologies and Health 2.0, and highlights also economic opportunities of orphan disease medicine. The editors of this new book have international experience and competencies in the key areas of patient empowerment, healthcare and clinical knowledge management, healthcare inequalities and disparities, rare diseases and patient advocacy.
Book Synopsis Rare Diseases and Orphan Drugs by : Jules J. Berman
Download or read book Rare Diseases and Orphan Drugs written by Jules J. Berman and published by Academic Press. This book was released on 2014-05-26 with total page 407 pages. Available in PDF, EPUB and Kindle. Book excerpt: Rare Diseases and Orphan Drugs shows that much of what we now know about common diseases has been achieved by studying rare diseases. It proposes that future advances in the prevention, diagnosis, and treatment of common diseases will come as a consequence of our accelerating progress in the field of rare diseases. Understanding the complex steps in the development of common diseases, such as cancer, cardiovascular disease, and metabolic diseases, has proven a difficult problem. Rare diseases, however, are often caused by aberrations of a single gene. In rare diseases, we may study how specific genetic defects can trigger a series of events that lead to the expression of a particular disease. Often, the disease process manifested in a certain rare disease is strikingly similar to the disease process observed in a common disease. This work ties the lessons learned about rare diseases to our understanding of common ones. Chapters covering the number of common diseases are minimized, while rare diseases are introduced as single diseases or as members of diseases classes. After reading this book, readers will appreciate how further research into the rare diseases may lead to new methods for preventing, diagnosing, and treating all diseases, rare or common. - Makes rare diseases relevant to clinicians and researchers by tying lessons learned about the rare diseases to our understanding of the common diseases - Stresses basic pathologic mechanisms that account for human disease (e.g., disorders of cell development, replication, maintenance, function and structure), that can be understood without prior training in pathology - Discusses advanced concepts in molecular biology and genetics in a simple, functional context appropriate for medical trainees and new researchers - Offers insights into how further research into rare diseases may lead to new methods for preventing, diagnosing, and treating all diseases
Book Synopsis Rare Disease Information Directory by :
Download or read book Rare Disease Information Directory written by and published by . This book was released on 1995 with total page 2 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Rare Diseases: Diagnosis, Therapies and Hope by : Ana Sanfilippo and
Download or read book Rare Diseases: Diagnosis, Therapies and Hope written by Ana Sanfilippo and and published by . This book was released on 2014-07-20 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: This book gives readers a firsthand look at the impact genome sequencing and other advanced techniques are having on rare diseases. It is unique in that it goes beyond the clinical side of the topic and includes very personal stories told by the families living with rare diseases. “These rare diseases are collectively so common, affecting over 300 million globally,” says co-author Dr. Jimmy Lin, MD, PhD, MHS. The key to assembling such a comprehensive resource was the year long process to examine the topic from all sides. The guide brings together interviews and visits with families that are currently battling rare diseases along with leading experts. The results of all this hard work is a valuable resource that will educate and inspire hope. “We are part of a growing movement to raise global awareness of rare diseases, and we are so pleased to be able to offer one of the early books for families living with rare diseases,” said the book’s co-author Ana Sanfilippo. The book includes expert interviews and remarkable stories from families like: - Amylynne Volker, whose son was the first child saved through DNA sequencing - Dallas police officer Mark Dant who raised over $3M for research that saved his son Ryan’s life - John Crowley, who saved his own children’s lives through creating a new company to develop a new drug, which is now the standard of care - Retta Beery, whose twins, Noah and Alexis, are alive due to her own exhaustive medical research and genomics. Please note there is no markup on the book and that the price is the Blurb book price only.
Book Synopsis Rare Diseases by : Mani T. Valarmathi
Download or read book Rare Diseases written by Mani T. Valarmathi and published by . This book was released on 2021 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: A rare disease is any disease or condition that affects a small percentage of the population. Many rare conditions are life-threatening or chronically debilitating, and unfortunately do not have appropriate treatments, rendering them incurable. In recent years, there has been substantial development in the area of rare disease research and its clinical applications, for instance, rare disease biology and genomics, epidemiology and preventions, early detection and screening, and diagnosis and treatment. In this context, this book consolidates the recent advances in rare disease biology and therapeutics, covering a wide spectrum of interrelated topics, and disseminates this essential knowledge in a comprehensible way to a greater scientific and clinical audience as well as patients, caregivers, and drug and device manufacturers, especially to support rare disease product development. Chapters cover such diseases as Felty's syndrome, Löfgren's syndrome, mesothelioma, epidermolysis bullosa, and more. This book is a valuable resource not only for medical and allied health students but also for researchers, clinical and nurse geneticists, genetic counselors, and physician assistants.
Book Synopsis NORD Compendium of Rare Diseases and Disorders by : National Organization for Rare Disorders
Download or read book NORD Compendium of Rare Diseases and Disorders written by National Organization for Rare Disorders and published by . This book was released on 2008 with total page 893 pages. Available in PDF, EPUB and Kindle. Book excerpt: A unique compendium providing comprehensive information on the diagnosis and management of over 1,000 rare diseases and disorders. This fully revised and expanded NORD Compendium of Rare Diseases and Disorders is the most comprehensive and authoritative resource of its kind. The Compendium provides a wealth of quick-reference information and data on more than 1,100 rare diseases and more than 1,100 organizations from signs, symptoms, and etiology to support groups, researchers, and treatments.The book is an invaluable diagnostic tool for physicians in the early identification of rare diseases, for researchers on genetic disorders, for non-profit organizations, and for patients who can often go years with proper diagnosis. While rare or orphan diseases are defined as those affecting fewer than 200,000 people in the United States, more than 25 million Americans are actually suffering from one of them. Due to the passage of the landmark Orphan Drug Act of 1983, together with the work of the National Organization for Rare Diseases, there is heightened awareness of and interest in these conditions among physicians, drug discovery researchers, government officials, and the health insurance industry. The FDA has approved 288 drugs and therapies to treat rare diseases, and over 1,400 products are in development and being tested for future approval since the Orphan Drug Act legislation was passed. An essential reference for ALL Libraries: Medical physician and hospital reference and research Government research, support, and funding Academic research and education Industry development of new drugs and therapies Public patient information, advocacy, and support.
Book Synopsis Rare Diseases by : Giorgio Di Giovanni
Download or read book Rare Diseases written by Giorgio Di Giovanni and published by Nova Science Publishers. This book was released on 2014 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: A rare disease is any disease that affects a small percentage of the population. Rare diseases can vary in prevalence between populations, so a disease that is rare in some populations may be common in others. This is especially true of genetic diseases and infectious diseases. In this book, the authors present current research on the diagnoses, challenges and developing treatments for rare diseases, from researchers across the globe. Topics discussed include commotio cordis, also known as cardiac concussion with described cases of ventricular fibrillation and sudden death from cardiac arrest; the clinical manifestations and pathophysiology of muscle-specific kinase (MuSK) myasthenia gravis (MG); neurological complications of histiocytosis; nail-patella syndrome; management of cardiac angiosarcoma; diagnosis and treatment of clear cell adenocarcinoma of the bladder; eosinophilic pancreatitis; non-traumatic splenic rupture; and alkaptonuria (AKU).
Book Synopsis Discover Magazine's Vital Signs by : Robert A. Norman
Download or read book Discover Magazine's Vital Signs written by Robert A. Norman and published by Skyhorse. This book was released on 2024-05-07 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Fans of hit medical dramas such as The Good Doctor and House MD will savor the opportunity to read of the real-life cases that puzzled doctors, the gripping detective work that ensued, and the completely unexpected, often life-saving diagnoses. “Vital Signs,” a popular column featured in Discover Magazine, has long been a favorite of readers, showcasing, each month, fascinating new tales of strange illnesses and diseases that baffle doctors and elude diagnosis. Each tale is true and borders on the unbelievable. It’s no wonder that throughout the years the column has become an unofficial textbook for medical students, interns, doctors, and anyone interested in human illness and staying healthy. Now, physician and “Vital Signs” editor Robert Norman has compiled the very best of the series into an intriguing and suspenseful collection for fans and new readers alike. A young woman carries a baby that wasn’t her own—and wasn’t even a human; Aretha Franklin gives a physician the insight needed to save a life; a modern gynecologist faces an ancient disease. These cases and more, representing a wide variety of unique medical anomalies and life-or-death situations, bring readers to the front lines of the medical fray. Discover Magazine’s Vital Signs is a glimpse into the exciting work of real medical professionals, told from their perspective, and revealing that anything can happen in medicine. Readers will never look at a “routine check-up” the same again.
Download or read book The Ghost Garden written by Susan Doherty and published by Vintage Canada. This book was released on 2020-09-08 with total page 386 pages. Available in PDF, EPUB and Kindle. Book excerpt: "A compelling act of connection, leavened with humour, clear-eyed yet packed with hope." —Ann-Marie MacDonald A rare work of narrative non-fiction that illuminates a world most of us try not to see: the daily lives of the severely mentally ill, who are medicated, marginalized, locked away and shunned. Susan Doherty's groundbreaking book brings us a population of lost souls, ill-served by society, feared, shunted from locked wards to rooming houses to the streets to jail and back again. For the past 10 years, many who have cycled in and out of the locked wards of the Douglas Institute in Montreal found a friend in Susan, who volunteers on the wards and then accompanies her friends out into the world. With their full cooperation, she brings us intimate stories that challenge our views of people with mental illness. Through "Caroline Evans," a woman in her early sixties whom Susan has known since she was a bright, sunny school girl, we experience living with schizophrenia, such as when Caroline was convinced she could save her roommate from the devil by pouring boiling water into her ear... She has been through it all, including having to navigate an indifferent justice system that is incapable of serving the severely ill. Susan interleaves Caroline's story with vignettes about her other friends—stories that reveal their hopes, circumstances, personalities, humanity. Susan found that if she can hang in through the first 10-15 minutes of every coffee date with someone in the grip of psychosis, true communication results. Their "madness" is not otherworldly: instead it tells us something about how they're surviving their lives and what they've been through. The Ghost Garden carries a cargo of compassion and empathy that motivates us to re-examine our understanding of justice, society and humanity.
Book Synopsis Communicating Rare Diseases and Disorders in the Digital Age by : Costa, Liliana Vale
Download or read book Communicating Rare Diseases and Disorders in the Digital Age written by Costa, Liliana Vale and published by IGI Global. This book was released on 2020-01-03 with total page 412 pages. Available in PDF, EPUB and Kindle. Book excerpt: A primary concern of rare disease diagnosis is the lack of accurate information that may lead to delayed interventions, administering inaccurate treatments, and social consequences. Health communication continues to be one-way and rely on the expertise from the health practitioner. In such a broad spectrum of rare diseases, patients may find it difficult to obtain timely information, accurate diagnosis, and appropriate treatments, surgeries, medications, or psychological counseling in their own countries. The use of information and communication technologies can create new communication channels that address this lack of knowledge. Communicating Rare Diseases and Disorders in the Digital Age is an essential reference source that uses computer-mediated communication to improve patient knowledge when afflicted or dealing with rare health conditions. Featuring research on topics such as support networking, eHealth management, and social computing, this book is ideally designed for health practitioners, physicians, patients, medical administrators, nurses, surgeons, infectious disease educators, hospital directors, world health organizations, academicians, students, and researchers seeking coverage on current advances in health communication, computer science, and epidemiology.
Download or read book Bettany's Book written by Thomas Keneally and published by Sceptre. This book was released on 2013-09-19 with total page 799 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'A work of towering authority: large in scope; rich in detail; overflowing with ripe humanity . . . more than an engrossing novel: it is a stirring one.' Sunday Telegraph An enthralling novel from Thomas Keneally, set in Australia and the Sudan, and spanning the 19th and 20th centuries. When Dimp Bettany, a Sydney film producer, comes into possession of her ancestor John Bettany's journals, she believes she has finally found the subject of her next masterpiece. Even her more detached sister Prim, an aid worker in the Sudan, becomes intrigued as the story unfolds of how John Bettany carved out a living in the wilds of New South Wales in the 1840s, and of the internment in the notorious Female Factory of Sarah Bernard, the convict woman he was destined to meet. As John's and Sarah's paths converge, each sister finds her life cast in a new and galvanising light.
Download or read book The Illinois Medical Journal written by and published by . This book was released on 1926 with total page 584 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Ghost-valley Evil Doctor in the City by : Bai Bu
Download or read book Ghost-valley Evil Doctor in the City written by Bai Bu and published by Funstory. This book was released on 2019-11-26 with total page 415 pages. Available in PDF, EPUB and Kindle. Book excerpt: My name is Li Yan, a student of the Rui Zhong City University. A single accident made me realize my strange background, as the last disciple of Taoist Jingyuan, the Second Young Master of the Hall of Healing, I was tasked with the task of revitalizing my clan. My body cultivation technique, weapon forging, chasing beauties, protecting the country, practicing medicine, and so on are all outstanding youths.
Book Synopsis The Spirit Catches You and You Fall Down by : Anne Fadiman
Download or read book The Spirit Catches You and You Fall Down written by Anne Fadiman and published by Macmillan. This book was released on 2012-04-24 with total page 370 pages. Available in PDF, EPUB and Kindle. Book excerpt: Winner of the National Book Critics Circle Award for Nonfiction, this brilliantly reported and beautifully crafted book explores the clash between a medical center in California and a Laotian refugee family over their care of a child.
Book Synopsis Journal of the American Medical Association by :
Download or read book Journal of the American Medical Association written by and published by . This book was released on 1919 with total page 992 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book The Pall Mall Magazine written by and published by . This book was released on 1905 with total page 790 pages. Available in PDF, EPUB and Kindle. Book excerpt:
