The Genetic Information Nondiscrimination Act of 2008 (GINA).

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ISBN 13 :
Total Pages : 0 pages
Book Rating : 4.:/5 (137 download)

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Book Synopsis The Genetic Information Nondiscrimination Act of 2008 (GINA). by :

Download or read book The Genetic Information Nondiscrimination Act of 2008 (GINA). written by and published by . This book was released on 2008 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Such concerns are a deterrent to advances in the field of genetic testing and may limit the realization of the benefits of genetic testing.14 A joint report by the Department of Labor, the Department of Health and Human Services, the Equal Employment Opportunity Commission (EEOC), and the Department of Justice summarized the various studies on discrimination based on genetic information and argued [...] In addition, once the applicant is hired, the employer may request that the employee take a medical exam, such as a genetic test, if the employer can demonstrate that the information from that test is job related and consistent with business necessity."25 Although the combination of the ADA's legislative history and the EEOC's guidance has led some commentators to argue that the ADA would cover ge [...] These laws vary and the National Conference of State Legislatures noted the following: All laws prohibit discrimination based on the results of genetic tests; many extend the protections to inherited characteristics, and some include test results of family members, family history and information about genetic testing, such as the receipt of genetic services. [...] After being reported out of the House Education and Labor Committee, the House Energy and Commerce Committee, and the House Ways and Means Committee, the bill passed the House on April 25, 2007, by a vote of 420 to 3. On April 24, 2008, the Senate took up H. R. 493, replaced the existing language with an amendment in the nature of a substitute, added new language strengthening the "firewall" betwe [...] The bill also would have prevented the acquisition and disclosure of genetic information as well as applied the procedures and remedies authorized under the Civil Rights Act of 1964 to cases of genetic discrimination.

Direct-to-Consumer Genetic Testing

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Publisher : National Academies Press
ISBN 13 : 0309162165
Total Pages : 106 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Direct-to-Consumer Genetic Testing by : National Research Council

Download or read book Direct-to-Consumer Genetic Testing written by National Research Council and published by National Academies Press. This book was released on 2011-01-16 with total page 106 pages. Available in PDF, EPUB and Kindle. Book excerpt: Today, scores of companies, primarily in the United States and Europe, are offering whole genome scanning services directly to the public. The proliferation of these companies and the services they offer demonstrate a public appetite for this information and where the future of genetics may be headed; they also demonstrate the need for serious discussion about the regulatory environment, patient privacy, and other policy implications of direct-to-consumer (DTC) genetic testing. Rapid advances in genetic research already have begun to transform clinical practice and our understanding of disease progression. Existing research has revealed a genetic basis or component for numerous diseases, including Parkinson's disease, Alzheimer's disease, diabetes, heart disease, and several forms of cancer. The availability of the human genome sequence and the HapMap, plummeting costs of high-throughput screening, and increasingly sophisticated computational analyses have led to an explosion of discoveries of linkages between patterns of genetic variation and disease susceptibility. While this research is by no means a straight path toward better public health, improved knowledge of the genetic linkages has the potential to change fundamentally the way health professionals and public health practitioners approach the prevention and treatment of disease. Realizing this potential will require greater sophistication in the interpretation of genetic tests, new training for physicians and other diagnosticians, and new approaches to communicating findings to the public. As this rapidly growing field matures, all of these questions require attention from a variety of perspectives. To discuss some of the foregoing issues, several units of the National Academies held a workshop on August 31 and September 1, 2009, to bring together a still-developing community of professionals from a variety of relevant disciplines, to educate the public and policy-makers about this emerging field, and to identify issues for future study. The meeting featured several invited presentations and discussions on the many technical, legal, policy, and ethical questions that such DTC testing raises, including: (1) overview of the current state of knowledge and the future research trajectory; (2) shared genes and emerging issues in privacy; (3) the regulatory framework; and (4) education of the public and the medical community.

The Genetic Information Nondiscrimination Act of 2008 (GINA).

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ISBN 13 :
Total Pages : pages
Book Rating : 4.:/5 (15 download)

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Book Synopsis The Genetic Information Nondiscrimination Act of 2008 (GINA). by : Amanda K. Sarata

Download or read book The Genetic Information Nondiscrimination Act of 2008 (GINA). written by Amanda K. Sarata and published by . This book was released on 2015 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: This report provides background on genetic information, legal implications regarding the use of this information, and relevant laws. It also discusses the statutory provisions of GINA and the regulations regarding both health insurance and employment.

The Genetic Information Nondiscrimination Act of 2008

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Publisher : GRIN Verlag
ISBN 13 : 3346638227
Total Pages : 21 pages
Book Rating : 4.3/5 (466 download)

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Book Synopsis The Genetic Information Nondiscrimination Act of 2008 by : Eli Dickinson

Download or read book The Genetic Information Nondiscrimination Act of 2008 written by Eli Dickinson and published by GRIN Verlag. This book was released on 2022-05-04 with total page 21 pages. Available in PDF, EPUB and Kindle. Book excerpt: Academic Paper from the year 2021 in the subject Leadership and Human Resources - Miscellaneous, grade: 100, , course: EEO, language: English, abstract: Throughout the history of the United States of America, discrimination has been one of the major issues found within employment decisions. To counter these discriminatory actions, laws have been passed to make these actions illegal. For example, the Civil Rights Act of 1964 created protected classes (race, color, religion, sex, and national origin) that could not be discriminated against in employment actions. Later the Age Discrimination in Employment Act of 1967 came along to stop discriminatory employment decisions based upon age. Finally, the American with Disabilities Act of 1990 was enacted to stop discriminatory decisions against those with disabilities. A common theme in each of these laws is that they came along to fix a problem. None of these laws were preemptive but were the effect of years of discriminatory actions. But this is not the case with one of the most recent civil rights laws, The Genetic Information Nondiscrimination Act of 2008. Unlike these laws that have been mentioned so far, The Genetic Information Nondiscrimination Act of 2008, shortened as GINA, was passed in efforts to prevent discriminatory actions that had little history of occurring (Sarata & Feder, 2015). Instead, GINA was enacted out of fear that with improving gene related science, that an individual’s genetics may at some point be used to discriminate against them.

Returning Individual Research Results to Participants

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Publisher : National Academies Press
ISBN 13 : 0309475201
Total Pages : 399 pages
Book Rating : 4.3/5 (94 download)

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Book Synopsis Returning Individual Research Results to Participants by : National Academies of Sciences, Engineering, and Medicine

Download or read book Returning Individual Research Results to Participants written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2018-08-23 with total page 399 pages. Available in PDF, EPUB and Kindle. Book excerpt: When is it appropriate to return individual research results to participants? The immense interest in this question has been fostered by the growing movement toward greater transparency and participant engagement in the research enterprise. Yet, the risks of returning individual research resultsâ€"such as results with unknown validityâ€"and the associated burdens on the research enterprise are competing considerations. Returning Individual Research Results to Participants reviews the current evidence on the benefits, harms, and costs of returning individual research results, while also considering the ethical, social, operational, and regulatory aspects of the practice. This report includes 12 recommendations directed to various stakeholdersâ€"investigators, sponsors, research institutions, institutional review boards (IRBs), regulators, and participantsâ€"and are designed to help (1) support decision making regarding the return of results on a study-by-study basis, (2) promote high-quality individual research results, (3) foster participant understanding of individual research results, and (4) revise and harmonize current regulations.

How to Practice Academic Medicine and Publish from Developing Countries?

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Publisher : Springer Nature
ISBN 13 : 9811652481
Total Pages : 475 pages
Book Rating : 4.8/5 (116 download)

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Book Synopsis How to Practice Academic Medicine and Publish from Developing Countries? by : Samiran Nundy

Download or read book How to Practice Academic Medicine and Publish from Developing Countries? written by Samiran Nundy and published by Springer Nature. This book was released on 2021-10-23 with total page 475 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is an open access book. The book provides an overview of the state of research in developing countries – Africa, Latin America, and Asia (especially India) and why research and publications are important in these regions. It addresses budding but struggling academics in low and middle-income countries. It is written mainly by senior colleagues who have experienced and recognized the challenges with design, documentation, and publication of health research in the developing world. The book includes short chapters providing insight into planning research at the undergraduate or postgraduate level, issues related to research ethics, and conduct of clinical trials. It also serves as a guide towards establishing a research question and research methodology. It covers important concepts such as writing a paper, the submission process, dealing with rejection and revisions, and covers additional topics such as planning lectures and presentations. The book will be useful for graduates, postgraduates, teachers as well as physicians and practitioners all over the developing world who are interested in academic medicine and wish to do medical research.

The Genetic Information Nondiscrimination Act (GINA)

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Publisher :
ISBN 13 :
Total Pages : 0 pages
Book Rating : 4.:/5 (137 download)

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Book Synopsis The Genetic Information Nondiscrimination Act (GINA) by : Eric A. Feldman

Download or read book The Genetic Information Nondiscrimination Act (GINA) written by Eric A. Feldman and published by . This book was released on 2014 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Survey data suggest that many people fear genetic discrimination by health insurers or employers. In fact, such discrimination has not yet been a significant problem. This article examines the fear and reality of genetic discrimination in the United States, describes how Congress sought to prohibit such discrimination by passing the Genetic Information Nondiscrimination Act of 2008 (GINA), and explores the implications of GINA for general internists and their institutions. It concludes that medical providers and health care institutions must be familiar with the general intent and specific terms of GINA, and should continue to collect genetic information that can contribute to the high quality provision of medical treatment. Not doing so violates their medical mission and diminishes the quality of care patients deserve.

Awareness of the US Genetic Information Nondiscrimination Act of 2008: an Online Survey

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ISBN 13 :
Total Pages : pages
Book Rating : 4.:/5 (15 download)

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Book Synopsis Awareness of the US Genetic Information Nondiscrimination Act of 2008: an Online Survey by :

Download or read book Awareness of the US Genetic Information Nondiscrimination Act of 2008: an Online Survey written by and published by . This book was released on 2013 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Abstract: Objective: The US Genetic Information Nondiscrimination Act (GINA) of 2008 prohibits discrimination in health insurance and employment in the USA based on genetic information and provides important protection to Americans who undergo genetic tests. Consumers need to understand GINA to take advantage of the protections it provides against genetic discrimination. However, research regarding people's awareness of this law is scant. This study used an online survey to evaluate people's awareness of the GINA 2008 in the USA. Methods: An anonymous online survey was distributed by Qualtrics to a general population panel of US residents in April 2011. The inclusion criterion for the study was adults aged 18–64. The 17‐item survey included two multiple‐choice questions to measure awareness and knowledge of the GINA. Key findings: A total of 295 responses were collected over 4 days. Only 26 respondents (8.8%) indicated they had ever heard of the GINA 2008. When those who have heard of the Act were asked about further details, only 10 people (3.4%) could correctly identify that the GINA prohibits the improper use of genetic information in health insurance and employment. Respondents with male gender, family history of Alzheimer's disease and caregiving experience for Alzheimer's disease patients were more likely to be aware of the GINA 2008. Conclusion: Three years after GINA 2008 was signed into US federal law, people's awareness of this law was found to be low. More effective dissemination of information related to this federal law may be required to improve protection against genetic discrimination.

Genetic Analysis of Complex Disease

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Publisher : John Wiley & Sons
ISBN 13 : 1118123913
Total Pages : 340 pages
Book Rating : 4.1/5 (181 download)

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Book Synopsis Genetic Analysis of Complex Disease by : William K. Scott

Download or read book Genetic Analysis of Complex Disease written by William K. Scott and published by John Wiley & Sons. This book was released on 2021-12-06 with total page 340 pages. Available in PDF, EPUB and Kindle. Book excerpt: Genetic Analysis of Complex Diseases An up-to-date and complete treatment of the strategies, designs and analysis methods for studying complex genetic disease in human beings In the newly revised Third Edition of Genetic Analysis of Complex Diseases, a team of distinguished geneticists delivers a comprehensive introduction to the most relevant strategies, designs and methods of analysis for the study of complex genetic disease in humans. The book focuses on concepts and designs, thereby offering readers a broad understanding of common problems and solutions in the field based on successful applications in the design and execution of genetic studies. This edited volume contains contributions from some of the leading voices in the area and presents new chapters on high-throughput genomic sequencing, copy-number variant analysis and epigenetic studies. Providing clear and easily referenced overviews of the considerations involved in genetic analysis of complex human genetic disease, including sampling, design, data collection, linkage and association studies and social, legal and ethical issues. Genetic Analysis of Complex Diseases also provides: A thorough introduction to study design for the identification of genes in complex traits Comprehensive explorations of basic concepts in genetics, disease phenotype definition and the determination of the genetic components of disease Practical discussions of modern bioinformatics tools for analysis of genetic data Reflecting on responsible conduct of research in genetic studies, as well as linkage analysis and data management New expanded chapter on complex genetic interactions This latest edition of Genetic Analysis of Complex Diseases is a must-read resource for molecular biologists, human geneticists, genetic epidemiologists and pharmaceutical researchers. It is also invaluable for graduate students taking courses in statistical genetics or genetic epidemiology.

GINA, the ADA, and Genetic Discrimination in Employment

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ISBN 13 :
Total Pages : 0 pages
Book Rating : 4.:/5 (137 download)

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Book Synopsis GINA, the ADA, and Genetic Discrimination in Employment by : Mark A. Rothstein

Download or read book GINA, the ADA, and Genetic Discrimination in Employment written by Mark A. Rothstein and published by . This book was released on 2009 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Genetic Information Nondiscrimination Act of 2008 (GINA) was signed into law on May 21, 2008, after a 13-year struggle in Congress. GINA prohibits genetic discrimination in employment and health insurance, thereby supplementing existing federal protections against genetic discrimination in employersponsored group health plans contained in the federal Health Insurance Portability and Accountability Act of 1996 (HIPAA) and state laws prohibiting genetic discrimination in employment and individual health insurance.

Regulations Under the Genetic Information Nondiscrimination Act of 2008 (Us Equal Employment Opportunity Commission Regulation) (Eeoc) (2018 Edition)

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Publisher : Createspace Independent Publishing Platform
ISBN 13 : 9781723560767
Total Pages : 58 pages
Book Rating : 4.5/5 (67 download)

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Book Synopsis Regulations Under the Genetic Information Nondiscrimination Act of 2008 (Us Equal Employment Opportunity Commission Regulation) (Eeoc) (2018 Edition) by : The Law The Law Library

Download or read book Regulations Under the Genetic Information Nondiscrimination Act of 2008 (Us Equal Employment Opportunity Commission Regulation) (Eeoc) (2018 Edition) written by The Law The Law Library and published by Createspace Independent Publishing Platform. This book was released on 2018-07-22 with total page 58 pages. Available in PDF, EPUB and Kindle. Book excerpt: Regulations under the Genetic Information Nondiscrimination Act of 2008 (US Equal Employment Opportunity Commission Regulation) (EEOC) (2018 Edition) The Law Library presents the complete text of the Regulations under the Genetic Information Nondiscrimination Act of 2008 (US Equal Employment Opportunity Commission Regulation) (EEOC) (2018 Edition). Updated as of May 29, 2018 The Equal Employment Opportunity Commission ("EEOC" or "Commission") is issuing a final rule to implement Title II of the Genetic Information Nondiscrimination Act of 2008 ("GINA"). Congress enacted Title II of GINA to protect job applicants, current and former employees, labor union members, and apprentices and trainees from discrimination based on their genetic information. Title II of GINA requires the EEOC to issue implementing regulations. The Commission issued a proposed rule in the Federal Register on March 2, 2009, for a sixty-day notice and comment period that ended on May 1, 2009. After consideration of the public comments, the Commission has revised portions of both the final rule and the preamble. This book contains: - The complete text of the Regulations under the Genetic Information Nondiscrimination Act of 2008 (US Equal Employment Opportunity Commission Regulation) (EEOC) (2018 Edition) - A table of contents with the page number of each section

Genetic Information Nondiscrimination Act of 2007 : report house version parts 3 and 4

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Publisher : DIANE Publishing
ISBN 13 : 9781422325353
Total Pages : 148 pages
Book Rating : 4.3/5 (253 download)

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Book Synopsis Genetic Information Nondiscrimination Act of 2007 : report house version parts 3 and 4 by :

Download or read book Genetic Information Nondiscrimination Act of 2007 : report house version parts 3 and 4 written by and published by DIANE Publishing. This book was released on with total page 148 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Genetics and Life Insurance

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Publisher : MIT Press
ISBN 13 : 9780262182362
Total Pages : 320 pages
Book Rating : 4.1/5 (823 download)

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Book Synopsis Genetics and Life Insurance by : Mark A. Rothstein

Download or read book Genetics and Life Insurance written by Mark A. Rothstein and published by MIT Press. This book was released on 2004 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: Experts discuss the economic, legal, and social issues surrounding the use of genetic testing in determining eligibility for life insurance. Insurance companies routinely use an individual's medical history and family medical history in determining eligibility for life insurance; this is part of the process of medical underwriting. Insurers have also long used genetic information, often derived from family history, in underwriting. But rapid advances in gene identification and genetic testing are changing the way we look at genetic information. Should the results of genetic testing (which might identify a predisposition toward disease not related to medical history) be available to life insurance medical underwriters? Few if any life insurers currently require genetic testing, but there are no laws or regulations prohibiting its use. Genetics and Life Insurance examines the complex economic, legal, and social issues surrounding the use of genetic information in life insurance underwriting. The contributors are legal scholars, representatives of the life insurance industry (including an actuary and an insurance physician), a geneticist, a genetic counselor, a philosopher, and a consumer advocate. They explore all aspects of an issue that has only recently drawn the attention of policymakers and the public. The book opens with a report on the results of a public opinion poll on genetics and life insurance. Succeeding chapters present the insurer perspective, a discussion of the economics of risk selection in life insurance, background information on the process of underwriting, a scientific analysis of genetic risks and mortality rates, a philosophical discussion of fairness and genetic underwriting, the viewpoints of consumers and genetics counselors, a comparison of different international policy approaches to the issue, and a legal analysis of antitrust implications when insurers collaborate in setting standards for medical underwriting. In the final chapter the editor addresses various policy options, examining the pros and cons of each one and assessing their political feasibility.

Advancing Civil Rights, the Next Generation

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Publisher :
ISBN 13 :
Total Pages : 0 pages
Book Rating : 4.:/5 (137 download)

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Book Synopsis Advancing Civil Rights, the Next Generation by : Morse Tan

Download or read book Advancing Civil Rights, the Next Generation written by Morse Tan and published by . This book was released on 2015 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: On the leading edge of civil rights law and bioethics/healthcare law, this Article provides the first law review analysis of the recently passed Genetic Information Nondiscrimination Act (GINA) of 2008, which extends important protection against discrimination in health insurance and employment. GINA also bolsters genetic research by freeing research subjects from the threat of genetic discrimination. This Article demonstrates how GINA further protects this society against the rising dangers of genetic discrimination beyond previously existing federal and state law.

Health Benefits Coverage Under Federal Law--.

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ISBN 13 :
Total Pages : 108 pages
Book Rating : 4.3/5 ( download)

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Book Synopsis Health Benefits Coverage Under Federal Law--. by :

Download or read book Health Benefits Coverage Under Federal Law--. written by and published by . This book was released on 2010 with total page 108 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Preventing Hazing

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Publisher : John Wiley & Sons
ISBN 13 : 9780787986988
Total Pages : 192 pages
Book Rating : 4.9/5 (869 download)

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Book Synopsis Preventing Hazing by : Susan Lipkins

Download or read book Preventing Hazing written by Susan Lipkins and published by John Wiley & Sons. This book was released on 2006-08-28 with total page 192 pages. Available in PDF, EPUB and Kindle. Book excerpt: Written with clarity and passion, Preventing Hazing uncovers the deep roots of hazing, how and why it permeates schools, colleges, and communities, and what parents, teachers, and coaches can do to prevent it. The author shows how to recognize the warning signs, what to do if a student has been involved in a hazing (either as a victim, bystander, or perpetrator), how to deal with the moral, legal, and emotional aspects of hazing, and, ultimately, how to heal and move forward both as an individual and a community.

Essential Genetic and Genomic Competencies for Nurses with Graduate Degrees

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Publisher :
ISBN 13 : 9781558104372
Total Pages : pages
Book Rating : 4.1/5 (43 download)

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Book Synopsis Essential Genetic and Genomic Competencies for Nurses with Graduate Degrees by : Karen E. Greco

Download or read book Essential Genetic and Genomic Competencies for Nurses with Graduate Degrees written by Karen E. Greco and published by . This book was released on 2012 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: "Describes and delineates the thirty eight essential genetic and genomic competencies that inform the practice of all nurses functioning at the graduate level in nursing, summarizes the key documents and processes used to identify these competencies, and identifies the members of the Steering, Advisory and Consensus Panel committees involved"--Provided by publisher.