The Effects that a Child's Chronic Illness Has on Siblings

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ISBN 13 :
Total Pages : pages
Book Rating : 4.:/5 (571 download)

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Book Synopsis The Effects that a Child's Chronic Illness Has on Siblings by : Melissa Leigh Randall

Download or read book The Effects that a Child's Chronic Illness Has on Siblings written by Melissa Leigh Randall and published by . This book was released on 1996 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:

In the Shadow of Illness

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Publisher : Princeton University Press
ISBN 13 : 0691214700
Total Pages : 321 pages
Book Rating : 4.6/5 (912 download)

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Book Synopsis In the Shadow of Illness by : Myra Bluebond-Langner

Download or read book In the Shadow of Illness written by Myra Bluebond-Langner and published by Princeton University Press. This book was released on 2020-06-30 with total page 321 pages. Available in PDF, EPUB and Kindle. Book excerpt: A revealing account of how families adapt to living with a chronically ill child What is it like to live with a child who has a chronic, life-threatening disease? What impact does the illness have on well siblings in the family? Myra Bluebond-Langner suggests that understanding the impact of the illness lies not in identifying deficiencies in the lives of those affected, but in appreciating how family members carry on with their lives in the face of the disease's intrusion. The Private Worlds of Dying Children, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, she turns her attention to the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis. Through a series of narrative portraits, she draws us into the daily lives of nine families of children at different points in the natural history of the illness—from diagnosis through the terminal phase. In these portraits, as family members talk about their experiences in their own words, we see how parents, well siblings, and the ill children themselves struggle, in different ways, to contain the intrusion of the disease into their lives. Bluebond-Langner looks at how parents adjust their priorities and their idea of what constitutes a normal life, how they try to balance the needs of other family members while caring for the ill child, and how they see the future. This context helps us understand how well siblings view the illness and how they relate to their ill sibling and parents. Since the issues raised are not unique to cystic fibrosis but are common to other chronic and life-threatening illnesses, this book will be of interest to all who study, care for, or live with the seriously ill.

Shadow Child

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Publisher : Outskirts Press
ISBN 13 : 9781478782025
Total Pages : 166 pages
Book Rating : 4.7/5 (82 download)

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Book Synopsis Shadow Child by : Randall S. Beach

Download or read book Shadow Child written by Randall S. Beach and published by Outskirts Press. This book was released on 2016-12-31 with total page 166 pages. Available in PDF, EPUB and Kindle. Book excerpt: A story of the impact of childhood chronic disease on siblings and families. Each year, thousands of families are faced with the specter of childhood chronic disease. Despite often being labeled as "lucky ones," childhood chronic diseases take a severe toll on the healthy brothers and sisters of the sick child. Feelings of fear, jealousy, resentment and extraordinary responsibility are common among such healthy siblings. These children and young adults can feel emotionally neglected within the family structure. Shadow Child explores all of these impacts in the context of the author's relationship with his younger brother. Shadow Child is the story of the author's personal experience as a healthy sibling of a brother inflicted with Type 1 Diabetes when he was four years old (preceded by Juvenile Rheumatoid Arthritis when he was two). The book focuses on the impact that chronic diseases such as diabetes have on the families of the inflicted child, and explores how various interfamily relationships change due to the introduction of chronic disease.

Impact of Children's Chronic Diseases on the Global Self-worth of Siblings

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Publisher :
ISBN 13 :
Total Pages : 166 pages
Book Rating : 4.3/5 (129 download)

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Book Synopsis Impact of Children's Chronic Diseases on the Global Self-worth of Siblings by : Diana Loynes

Download or read book Impact of Children's Chronic Diseases on the Global Self-worth of Siblings written by Diana Loynes and published by . This book was released on 1997 with total page 166 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Childhood Chronic Illness

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Publisher :
ISBN 13 :
Total Pages : 124 pages
Book Rating : 4.3/5 (129 download)

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Book Synopsis Childhood Chronic Illness by : Sherry L. Nelson

Download or read book Childhood Chronic Illness written by Sherry L. Nelson and published by . This book was released on 1997 with total page 124 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Nursing Care of Children and Young People with Long-Term Conditions

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Publisher : John Wiley & Sons
ISBN 13 : 1119653169
Total Pages : 306 pages
Book Rating : 4.1/5 (196 download)

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Book Synopsis Nursing Care of Children and Young People with Long-Term Conditions by : Mandy Brimble

Download or read book Nursing Care of Children and Young People with Long-Term Conditions written by Mandy Brimble and published by John Wiley & Sons. This book was released on 2020-12-29 with total page 306 pages. Available in PDF, EPUB and Kindle. Book excerpt: The second edition of Nursing Care of Children and Young People with Long Term Conditions remains the only nursing-specific text on the care of paediatric patients with chronic illness. Written to meet the needs of nursing students and professionals alike, this comprehensive volume provides authoritative and up-to-date information on the context, theory, and practice of delivering holistic care to children and families in a range of health and social care settings. Contributions from a team of experienced academics, educators, and practitioners offer valuable insight into the impact of chronic illness on children and parents, the practical implications of meeting their physical, psychological, and social needs, empowering them to be 'experts' in their care, and many more vital aspects of long-term paediatric care. This edition features new and revised content reflecting contemporary guidelines and evidence-based practice, including updated clinical case studies and a new chapter examining the impact of having a sibling with a long-term condition. Emphasising a multi-disciplinary approach to managing chronic illness, this important resource: Provides numerous case studies and activities illustrating the application of theoretical principles and current evidence in nursing practice Investigates the genetic basis of chronic illness and the differing onsets of long-term conditions Discusses current political, economic, and social policies that are influencing healthcare for children and bringing challenges to managers and practitioners Examines both classic and contemporary theories of grief, loss, coping, and adaptation Explores ethical, legal, and professional aspects of nursing children and young people with chronic illness Addresses evolving nursing roles, the importance of acute emergency care, and the planning and delivery of effective transition from child to adult services Nursing Care of Children and Young People with Long Term Conditions is required reading for student and registered children's nurses, as well as for practitioners in related health and social care disciplines.

International Classification of Impairments, Disabilities, and Handicaps

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Publisher : Geneva : World Health Organization ; [Albany, N.Y. : sold by WHO Publications Centre USA]
ISBN 13 :
Total Pages : 216 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis International Classification of Impairments, Disabilities, and Handicaps by : World Health Organization

Download or read book International Classification of Impairments, Disabilities, and Handicaps written by World Health Organization and published by Geneva : World Health Organization ; [Albany, N.Y. : sold by WHO Publications Centre USA]. This book was released on 1980 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: Used for the classification of the consequences of disease (as well as of injuries and other disorders) and of their implications for the lives of individuals. Each section includes a definition and characteristics of the classification, as well as a list of two digit categories.

Chronic Illness of a Child

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Publisher :
ISBN 13 :
Total Pages : 232 pages
Book Rating : 4.:/5 (232 download)

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Book Synopsis Chronic Illness of a Child by : Amanda Kathleen Bourland

Download or read book Chronic Illness of a Child written by Amanda Kathleen Bourland and published by . This book was released on 1983 with total page 232 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Sibling Loss

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Publisher : Psychology Press
ISBN 13 : 1317779932
Total Pages : 199 pages
Book Rating : 4.3/5 (177 download)

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Book Synopsis Sibling Loss by : Joanna H. Fanos

Download or read book Sibling Loss written by Joanna H. Fanos and published by Psychology Press. This book was released on 2014-02-04 with total page 199 pages. Available in PDF, EPUB and Kindle. Book excerpt: Despite the rise of clinical interest in posttraumatic stress disorder and traumatic stress in children, there has been little attention paid to the impact of sibling death as a traumatic event. Although there is much evidence that children suffer long-lasting consequences of such trauma as divorce or the loss of a parent, the loss of a sibling has not been the topic of substantial clinical or research attention. The sibling relationship has only begun to receive research and theoretical attention. The complexities of the sibling bond as it changes and evolves over the life-span have only begun to be explored. The death of a child has generally been considered one of the most stressful events encountered by families in our society. The chronicity of illnesses such as cystic fibrosis is in a sense new, an outgrowth of recent advances in medical treatment which have considerably extended the lives of children stricken with leukemia, cystic fibrosis, HIV-infection, diabetes, and others. This book explores the long-term consequences of chronic illness followed by the death of a sibling on adult adjustment. The illness and loss of the child will have a direct impact on the siblings, dependent upon their own capacity to give meaning to its occurrence and to mourn the loss effectively. In addition, the sibling's world will be inexorably shaped by the handling of the illness and loss by the parents.

Chronic Childhood Illness

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Publisher :
ISBN 13 :
Total Pages : 252 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Chronic Childhood Illness by : Gilman D. Grave

Download or read book Chronic Childhood Illness written by Gilman D. Grave and published by . This book was released on 1976 with total page 252 pages. Available in PDF, EPUB and Kindle. Book excerpt: Contains the proceedings of three separate conferences held in 1973 and 1974.

Extreme Parenting

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Publisher : Jessica Kingsley Publishers
ISBN 13 : 184642772X
Total Pages : 211 pages
Book Rating : 4.8/5 (464 download)

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Book Synopsis Extreme Parenting by : Sharon Dempsey

Download or read book Extreme Parenting written by Sharon Dempsey and published by Jessica Kingsley Publishers. This book was released on 2008-03-15 with total page 211 pages. Available in PDF, EPUB and Kindle. Book excerpt: [A] valuable addition to the literature on chronic paediatric illness... The book provides an in depth understanding of the path through chronic illness, illustrating the obvious effects on the child, but also the parents, siblings and the family as a whole across the spectrum from the psychological and social to the physical... There is much to be learnt from this book and it deserves careful reading.' - from the Foreword by Hilton Davis, Emeritus Professor of Child Health Psychology, King's College London Parents of children with chronic illnesses experience 'extreme parenting'. Parenting under extreme circumstances, like an extreme sport, challenges us to find our true strengths, to push ourselves physically and emotionally. This book is a guide and a source of support for parents of children with long-term illnesses. Sharon Dempsey argues that by helping parents to cope with their child's condition we are ultimately helping the child, and that parents are better able to live a full, enjoyable life if they have an awareness of strategies and knowledge to cope with the difficulties of dealing with their child with a chronic illness. The guide is packed with practical advice, models of exploration and lists of action points, and will empower parents to be good advocates for their children. It will also provide health professionals with invaluable insights into the demands of living with chronic illness.

The Effect of Childhood Chronic Illness on Siblings of the Ill Child

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Publisher :
ISBN 13 :
Total Pages : 215 pages
Book Rating : 4.:/5 (612 download)

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Book Synopsis The Effect of Childhood Chronic Illness on Siblings of the Ill Child by : Dorothy Jane Feeman

Download or read book The Effect of Childhood Chronic Illness on Siblings of the Ill Child written by Dorothy Jane Feeman and published by . This book was released on 1987 with total page 215 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Promoting Psychological Well-Being in Children with Acute and Chronic Illness

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Publisher : Jessica Kingsley Publishers
ISBN 13 : 085700395X
Total Pages : 218 pages
Book Rating : 4.8/5 (57 download)

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Book Synopsis Promoting Psychological Well-Being in Children with Acute and Chronic Illness by : Melinda Edwards

Download or read book Promoting Psychological Well-Being in Children with Acute and Chronic Illness written by Melinda Edwards and published by Jessica Kingsley Publishers. This book was released on 2011-02-15 with total page 218 pages. Available in PDF, EPUB and Kindle. Book excerpt: Living with a chronic illness can have a significant psychological impact on a child and his or her family, and it is essential that this aspect of their care is not overlooked. This book provides a comprehensive guide to promoting the psychological well-being of children with chronic illnesses and medical conditions, covering support within health, social services and education. It discusses issues such as the impact of diagnosis and the experiences of children and their families in managing their medical condition and treatment. Strategies to support children and help them to cope with medical conditions are demonstrated, including cognitive behavioural and systemic approaches, and techniques such as relaxation and motivational interviewing. Case examples from clinical practice are given to illustrate the application of psychological ideas and frameworks to a variety of medical conditions and psychological difficulties. The book also includes a comprehensive resources section of where to look for further information. This will be an essential book for all professionals working with children with medical conditions, including psychologists, doctors, nurses, physiotherapists, occupational therapists, counsellors, social workers, speech and language therapists, dieticians and play therapists.

Growing Up with a Chronic Disease

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Publisher : Jessica Kingsley Publishers
ISBN 13 : 9781853021688
Total Pages : 260 pages
Book Rating : 4.0/5 (216 download)

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Book Synopsis Growing Up with a Chronic Disease by : Christine Eiser

Download or read book Growing Up with a Chronic Disease written by Christine Eiser and published by Jessica Kingsley Publishers. This book was released on 1993 with total page 260 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book, drawing on theoretical and practical sources, acknowledges the potential for distress involved in caring for a sick child but also emphasizes the coping resources and skills that can be, and frequently are, adopted by families.

Nursing Care of Children and Young People with Chronic Illness

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Publisher : John Wiley & Sons
ISBN 13 : 0470691395
Total Pages : 280 pages
Book Rating : 4.4/5 (76 download)

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Book Synopsis Nursing Care of Children and Young People with Chronic Illness by : Fay Valentine

Download or read book Nursing Care of Children and Young People with Chronic Illness written by Fay Valentine and published by John Wiley & Sons. This book was released on 2008-04-15 with total page 280 pages. Available in PDF, EPUB and Kindle. Book excerpt: Children and young people suffering from long-term conditions require continuing support and nursing care throughout their lives. Nursing Care of Children and Young People with Chronic Illness explores chronic disease management in the context of recent developments, including the National Service Framework for Children. It addresses the aetiology of chronic illness and the impact on the child’s family. It also explores holistic approaches to caring for their social, physical and psychological needs, and highlights the importance of the nurse’s role in promoting children and their parents as ‘expert patients’. Nursing Care of Children and Young People with Chronic Illness is a comprehensive, up-to-date resource for nursing students and practitioners on the context, theory and practice of assessing health needs, and the delivery of holistic care and services within a variety of care settings, to enable them to meet the changing needs of children and young people with chronic illnesses and diseases, and their families. The first nursing-specific text related to the care of children & young people with chronic illness Incorporates case studies & scenarios throughout to enable readers to gain an understanding of the application of concepts & theories in practice Covers care aspects of the child and young person in different settings including tertiary, secondary, primary health care and the home Written in the context of the NSF for Children

Chronic Illness in Children

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Publisher :
ISBN 13 : 9780804708937
Total Pages : 556 pages
Book Rating : 4.7/5 (89 download)

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Book Synopsis Chronic Illness in Children by : Georgia Travis

Download or read book Chronic Illness in Children written by Georgia Travis and published by . This book was released on 1976 with total page 556 pages. Available in PDF, EPUB and Kindle. Book excerpt:

The Psychological Impact of Childhood Chronic Illnesses on Siblings

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Publisher :
ISBN 13 :
Total Pages : pages
Book Rating : 4.:/5 (817 download)

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Book Synopsis The Psychological Impact of Childhood Chronic Illnesses on Siblings by : Menaz Akhtar

Download or read book The Psychological Impact of Childhood Chronic Illnesses on Siblings written by Menaz Akhtar and published by . This book was released on 2011 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: The relationship between siblings is considered one of the most significant of all human relationships. Therefore it is not surprising that research has focused on the psychological impact of childhood chronic illnesses on siblings. Findings within this field of research have been mixed owing to methodological shortcomings. The review paper addresses these shortcomings by focusing on papers that have used sibling reported psychological outcomes for diseases that are similar in their medical sequelae: Asthma, Type 1 Diabetes and Epilepsy. The review suggests siblings are at no greater risk of psychological difficulties than those not affected by sibling chronic illness. These findings are explained by coping and adjustment, and risk and resilience theories. Spinal Cord Injury (SCI) is a life transforming chronic illness which is associated with a number of medical complications that impact on the whole family. The psychological impact of childhood SCI on the injured child's siblings has not been researched. The empirical study focused on the experiences of children living with a brother or sister with SC!. Eight participants (4 male, 4 female) aged between 7 and 18 years were interviewed using a semi-structured interview, concentrating on their unique experiences and understandings of having a brother or sister with SC!. The qualitative method of Interpretative Phenomenological Analysis (IPA) was used to analyse the data and three main themes were identified: "Life interrupted", "What about me?" and "My safety net". Results are discussed in relation to attachment, and coping and adjustment theories.