The Chronic Illness Experience

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Coping with Chronic Illness

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Author : Silvia Bonino
Publisher : Routledge
ISBN 13 : 1000289109
Total Pages : 196 pages
Book Rating : 4.0/5 (2 download)

Book Synopsis Coping with Chronic Illness by : Silvia Bonino

Download or read book Coping with Chronic Illness written by Silvia Bonino and published by Routledge. This book was released on 2020-12-20 with total page 196 pages. Available in PDF, EPUB and Kindle. Book excerpt: This valuable book combines psychological theories of health with the lived experience of coping with chronic health conditions, focusing on the "ill person" as an actor of their own development. It draws on perspectives from developmental and health psychology alongside the author’s personal experience of chronic illness. Bonino considers all aspects of living with illness, from issues that impact on everyday functioning such as pain and fatigue, to the rebuilding of identity through meaningful new goals and effective actions, and the development of therapeutic relationships. Psychological theories are interweaved with descriptions of lived encounters to center the experience of the person living alongside illness and provide insightful points of reference that everyone could try to use when facing the challenges of chronic disease in the course of their daily lives. Coping with Chronic Illness is important reading for those living with chronic health conditions, as well as for healthcare professionals looking to gain awareness of the psychological issues caused by living with illness. It is also of interest for postgraduate students of health psychology.

Chronic Illness

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Author : S. Kay Toombs
Publisher :
ISBN 13 : 9780253360113
Total Pages : 221 pages
Book Rating : 4.3/5 (61 download)

Book Synopsis Chronic Illness by : S. Kay Toombs

Download or read book Chronic Illness written by S. Kay Toombs and published by . This book was released on 1995 with total page 221 pages. Available in PDF, EPUB and Kindle. Book excerpt: "...excellent..." --Choices - Choice on Dying Newsletter "Toombs, Barnard, and Carson have organized and edited a valuable series of papers that provide a rare perspective on the impact of chronic illness. Beginning with the person who is experiencing the chronic condition, they are able to weave an important blend of personal, social, and policy themes." --Choice "This volume of collected essays is a solid contribution to the medical humanities literature on chronic illness... the contributors have produced a cohesive, systematic, and sensitive examination of issues in chronic illness and disability." --Medical Humanities Review "Although it may seem to be intended largely for health care providers, this thought-provoking volume has much that will interest a wider lay audience." --Medical and Health Annual An often moving exploration of the human, moral, and policy aspects of a health issue that affects each of us. Through first-person accounts and the perspectives of literature, medicine, philosophy, and religion, this book explores what it means to live with chronic illness and the implications of this experience for social policy, health care, bioethics, and the professions.

Chronic Illness, Vulnerability and Social Work

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Author : Liz Price
Publisher : Routledge
ISBN 13 : 1136165460
Total Pages : 179 pages
Book Rating : 4.1/5 (361 download)

Book Synopsis Chronic Illness, Vulnerability and Social Work by : Liz Price

Download or read book Chronic Illness, Vulnerability and Social Work written by Liz Price and published by Routledge. This book was released on 2015-05-01 with total page 179 pages. Available in PDF, EPUB and Kindle. Book excerpt: Whilst the body has recently assumed greater sociological significance, there has been less engagement in social work and social care on the bodily experience of health, illness and disease. This innovative volume redresses the balance by exploring chronic illness and social work, through the specific lens of autoimmunity, engaging in wider debates around vulnerability, resistance and the lived experience of ongoing ill-health. Moving beyond existing conceptualisations of vulnerability as an issue of mental distress, ageing, child protection and poverty, Price and Walker demonstrate the role that society has to play in actively engaging the physical body, rather than working around and through it. The book focuses on auto-immune conditions such as lupus, multiple sclerosis, rheumatoid arthritis and scleroderma. Conditions like these allow for an exploration of the materiality of illness which exacerbates social and economic vulnerability and may precipitate personal and social crises, requiring a variety of interventions and support. The risks and challenges associated with chronic illness include disruptions to a sense of self and identity, altered relationships and the renegotiation of roles and responsibilities in a variety of relationships in addition to an economic impact, with the potential for disruption to employment status and financial insecurity. This text opens up a range of debates around some of the central concerns of the social work profession, including vulnerability, ill-health, and independence. It will be of interest to scholars and students of social work, nursing, disability studies, medicine and the social sciences.

In the Kingdom of the Sick

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Author : Laurie Edwards
Publisher : Bloomsbury Publishing USA
ISBN 13 : 0802778275
Total Pages : 257 pages
Book Rating : 4.8/5 (27 download)

Book Synopsis In the Kingdom of the Sick by : Laurie Edwards

Download or read book In the Kingdom of the Sick written by Laurie Edwards and published by Bloomsbury Publishing USA. This book was released on 2013-04-09 with total page 257 pages. Available in PDF, EPUB and Kindle. Book excerpt: Thirty years ago, Susan Sontag wrote, "Everyone who is born holds dual citizenship in the kingdom of the well and the kingdom of the sick ... Sooner or later each of us is obliged, at least for a spell, to identify ourselves as citizens of that other place." Now more than 133 million Americans live with chronic illness, accounting for nearly three-quarters of all health care dollars, and untold pain and disability. There has been an alarming rise in illnesses that defy diagnosis through clinical tests or have no known cure. Millions of people, especially women, with illnesses such as irritable bowel syndrome, chronic pain, and chronic fatigue syndrome face skepticism from physicians and the public alike. And people with diseases as varied as cardiovascular disease, HIV, certain cancers, and type 2 diabetes have been accused of causing their preventable illnesses through their lifestyle choices. We must balance our faith in medical technology with awareness of the limits of science, and confront our throwback beliefs that people who are sick have weaker character than those who are well. Through research and patient narratives, health writer Laurie Edwards explores patient rights, the role of social media in medical advocacy, the origins of our attitudes about chronic illness, and much more. What The Noonday Demon did for people suffering from depression, In the Kingdom of the Sick does for those who are chronically ill.

Illness Behavior

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Author : Sean McHugh
Publisher : Springer Science & Business Media
ISBN 13 : 1468452576
Total Pages : 421 pages
Book Rating : 4.4/5 (684 download)

Book Synopsis Illness Behavior by : Sean McHugh

Download or read book Illness Behavior written by Sean McHugh and published by Springer Science & Business Media. This book was released on 2012-12-06 with total page 421 pages. Available in PDF, EPUB and Kindle. Book excerpt: In August, 1985, the 2nd International Conference on Illness Behaviour was held in Toronto, Ontario, Canada. The first International Conference took place one year previous in Adelaide, South Australia, Australia. This book is based on the proceedings of the second conference. The purpose behind this conference was to facilitate the development of a single integrated model to account for illness experience and presentation. A major focus of the conference was to outline methodological issues related to current behaviour research. A multidiscipl~nary approach was emphasized because of the bias that collaborative efforts are likely to be the most successful in achieving greater understanding of illness behaviour. Significant advances in our knowledge are occurring in all areas of the biological and social sciences, albeit more slowly in the latter areas. Marked specialization in each of these areas has lead to greater difficulty in integrating new knowledge with that of other areas and the development of a meaningful cohesive model to which all can relate. Thus there is a major need for forums such as that provided by this conference.

The Chronic Illness Experience

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Author : Cheri Register
Publisher :
ISBN 13 : 9781568383460
Total Pages : 368 pages
Book Rating : 4.3/5 (834 download)

Book Synopsis The Chronic Illness Experience by : Cheri Register

Download or read book The Chronic Illness Experience written by Cheri Register and published by . This book was released on 1999 with total page 368 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Chronic Illness Experience

Good Days, Bad Days

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Author : Kathy Charmaz
Publisher : Rutgers University Press
ISBN 13 : 9780813519678
Total Pages : 332 pages
Book Rating : 4.5/5 (196 download)

Book Synopsis Good Days, Bad Days by : Kathy Charmaz

Download or read book Good Days, Bad Days written by Kathy Charmaz and published by Rutgers University Press. This book was released on 1991 with total page 332 pages. Available in PDF, EPUB and Kindle. Book excerpt: Describing how chronic illness affects one's self-image, friends, and family, this book shares the experiences of people with serious chronic illnesses, and shows how they find the strength to carry on.

The Shared Experience Of Illness

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Author : Susan H. Mcdaniel
Publisher :
ISBN 13 : 0786751274
Total Pages : 398 pages
Book Rating : 4.7/5 (867 download)

Book Synopsis The Shared Experience Of Illness by : Susan H. Mcdaniel

Download or read book The Shared Experience Of Illness written by Susan H. Mcdaniel and published by . This book was released on 2009-08-05 with total page 398 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the narrative of every human life and family, illness is a prominent character. Even if we have avoided serious illness ourselves, we cannot escape its reach into our circle of family and friends. Illness brings us closer to one another through caregiving and separates us through disability and death, yet little attention has been paid to personal and family illness in psychotherapy. Rather, therapists tend to focus on the psychosocial realm, leaving the biological realm to other physicians and nurses. Susan H. McDaniel, Jeri Hepworth, and William J. Doherty invited therapists who work with individuals and families experiencing chronic illness and disability to describe clinical cases that illustrate their approach to medical family therapy. Contributors then were asked to share a personal story about their experiences with illness, and to explain how those experiences affect the way they work with their clients. Vivid case studies dealing with a range of illnesses, including cancer infertility, schizophrenia, AIDS, heart disease, diabetes, asthma, and multiple sclerosis, show how the therapists' own experiences of illness are relevant to their care of others-and how these experiences can be used to form a healing bond in therapy. Poignant, honest, and illuminating, The Shared Experience of Illness allows us to understand more fully the relationship between the personal and the professional.

Managing Chronic Illness Using the Four-Phase Treatment Approach

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Author : Patricia A. Fennell
Publisher : John Wiley & Sons
ISBN 13 : 0471462772
Total Pages : 456 pages
Book Rating : 4.4/5 (714 download)

Book Synopsis Managing Chronic Illness Using the Four-Phase Treatment Approach by : Patricia A. Fennell

Download or read book Managing Chronic Illness Using the Four-Phase Treatment Approach written by Patricia A. Fennell and published by John Wiley & Sons. This book was released on 2003-10-17 with total page 456 pages. Available in PDF, EPUB and Kindle. Book excerpt: A pioneering book to help maximize the quality of life for chronically ill patients Written by a leading authority on chronic illness treatment and management, Managing Chronic Illness Using the Four-Phase Treatment Approach provides evidence-based practice guidelines for clinicians to help their clients with debilitating health problems embrace a new "normal," understand the cyclical nature of their illness, and function at the highest level possible. Patricia Fennell's groundbreaking model for understanding chronic illness identifies and describes four broad phases experienced by the chronically ill: crisis, stabilization, resolution, and integration. Using a broad array of case histories, Fennell vividly illustrates what clients need at each phase and how to assess and respond to them compassionately. Fennell also suggests how clinicians may best use their own changing experiences in their work to help clients transition through the four phases. The goal of the "Four-Phase Model" is to maximize a client's quality of life without offering false hope for a cure, making it an effective treatment strategy for diverse client populations, including people with physiological diseases; patients whose lives are being prolonged by modern medicine; and people who suffer from addiction, post-traumatic stress syndrome, intractable pain, and post-rape and abuse conditions. Complete with detailed treatment protocols for documenting a client's symptoms and quality of life at each phase, Managing Chronic Illness Using the Four-Phase Treatment Approach is a highly practical book for everyone working with chronically ill clients.

Lubkin's Chronic Illness

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Author : Larsen
Publisher : Jones & Bartlett Learning
ISBN 13 : 1284128857
Total Pages : 622 pages
Book Rating : 4.2/5 (841 download)

Book Synopsis Lubkin's Chronic Illness by : Larsen

Download or read book Lubkin's Chronic Illness written by Larsen and published by Jones & Bartlett Learning. This book was released on 2017-12 with total page 622 pages. Available in PDF, EPUB and Kindle. Book excerpt: Lubkin's Chronic Illness, Tenth Edition is an essential text for nursing students who seek to understand the various aspects of chronic Illness affecting both patients and families. Important Notice: The digital edition of this book is missing some of the images or content found in the physical edition.

The Psychology Of Chronic Illness

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Author : Robert Shuman
Publisher :
ISBN 13 :
Total Pages : 248 pages
Book Rating : 4.3/5 (91 download)

Book Synopsis The Psychology Of Chronic Illness by : Robert Shuman

Download or read book The Psychology Of Chronic Illness written by Robert Shuman and published by . This book was released on 1996-12-09 with total page 248 pages. Available in PDF, EPUB and Kindle. Book excerpt: With the onset of chronic illness, an individual and family's world, previously taken for granted, is often undone. The actual and potential losses from illness impact on family, friends, physicians, therapists, nurses, and others in profound and unexpected ways. Through his own honest, personal account and the testimony of others, Robert Shuman takes us inside the illness experience to help us better grasp the daily inner lives of the ailing person and his or her family. As our aging population lives longer, chronic illness touches more and more of us. Whether as patient or parent, nurse or spouse, colleague or therapist, we need to have greater knowledge and understanding of the intricacies of chronic illness.Robert Shuman maps out the many dimensions of illness and invites the reader to explore its challenging terrain in a way that provides opportunities for self-discovery and reflection. In lyrical prose, he opens up new ways of thinking about the psychology of illness and healing. He suggests, for example, that illness symptoms can have a generative effect on a person's imaginative and creative possibilities, and that the socially despised events of illness and disability offer new ways of being once sought through the work of religion. Drawing on the fields of behavioral and family medicine, medical anthropology and sociology, moral and bioethical philosophies, and family, existential, cognitive, Jungian, and archetypal psychotherapies, among others, The Psychology of Chronic Illness raises provocative questions for the professional caregiver as well as for those living with illness and disability.This book will help anyone touched by illness, personally or professionally, to support those living with chronic illnesses and disabilities; to cope with multiple impacts on work, relationships, social roles, individual dreams, and disappointments; to listen to and voice suffering and fears, grief and anger, questions of values and moral doubts; and to acknowledge loss and mourning as a “common ground” that we all share. This book offerrs specific resources to the caregiver and aids the professional in his or her ethical obligation to give. Moreover, Shuman's voice is one of compassion, reminding us how to hold on to or recover hope, meaning, and morale during times of affliction and distress.

Lubkin's Chronic Illness: Impact and Intervention

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Author : Pamala D. Larsen
Publisher : Jones & Bartlett Learning
ISBN 13 : 1284230643
Total Pages : 620 pages
Book Rating : 4.2/5 (842 download)

Book Synopsis Lubkin's Chronic Illness: Impact and Intervention by : Pamala D. Larsen

Download or read book Lubkin's Chronic Illness: Impact and Intervention written by Pamala D. Larsen and published by Jones & Bartlett Learning. This book was released on 2021-10-29 with total page 620 pages. Available in PDF, EPUB and Kindle. Book excerpt: . Lubkin’s Chronic Illness: Impact an Intervention, Eleventh Edition provides a solid foundation for nursing students by teaching them the skills and knowledge they need to care for patients experiencing illness.

Surviving and Thriving with an Invisible Chronic Illness

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Author : Ilana Jacqueline
Publisher :
ISBN 13 : 9781626255999
Total Pages : 0 pages
Book Rating : 4.2/5 (559 download)

Book Synopsis Surviving and Thriving with an Invisible Chronic Illness by : Ilana Jacqueline

Download or read book Surviving and Thriving with an Invisible Chronic Illness written by Ilana Jacqueline and published by . This book was released on 2018 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this much-needed guide, popular blogger Ilana Jacqueline writes poignantly about her experience living with two debilitating, yet invisible autoimmune diseases, and offers sound advice and practical tips for living with a chronic illness or disability that others can't see. Readers will learn to deal with doctors who don't understand, are of little or no help, or outright dismiss their condition. They will also learn how to navigate friendships, family, relationships, work, and school; overcome body image and self-esteem issues; become their own best advocate; create a support system; and live an engaged and values-driven life.

EBOOK: Caring for People with Chronic Conditions: A Health System Perspective

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Author : Ellen Nolte
Publisher : McGraw-Hill Education (UK)
ISBN 13 : 0335236901
Total Pages : 283 pages
Book Rating : 4.3/5 (352 download)

Book Synopsis EBOOK: Caring for People with Chronic Conditions: A Health System Perspective by : Ellen Nolte

Download or read book EBOOK: Caring for People with Chronic Conditions: A Health System Perspective written by Ellen Nolte and published by McGraw-Hill Education (UK). This book was released on 2008-09-16 with total page 283 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Overall, the book walks a delicate balance between evidence and advocacy regarding the care of people with chronic conditions. Nolte and McKee conclude the volume with the following: 'A first step is to recognize that something must be done. A second, which we hope will be facilitated by the evidence provided in this book, is to realize that something actually can be done, and that they can do it (p. 240)'. The overarching desire to match the need for evidence with the reality that advocates (including policy-makers) need a reasoned voice makes the book well suited to health policy deliberations." International Journal of Integrated Care The complex nature of many chronic diseases, which affect people many different ways, requires a multifaceted response that will meet the needs of the individual patient. Yet while everyone agrees that the traditional relationship between an individual patient and a single doctor is inappropriate, there is much less agreement about what should replace it. Many countries are now experimenting with new approaches to delivering care in ways that do meet the complex needs of people with chronic disorders, redesigning delivery systems to coordinate activities across the continuum of care. Yet while integration and coordination have an intuitive appeal, policy makers have had little to help them decide how to move forward. The book systematically examines some of the key issues involved in the care of those with chronic diseases. It synthesises the evidence on what we know works (or does not) in different circumstances. From an international perspective, it addresses the prerequisites for effective policies and management of chronic disease. Taking a whole systems approach, the book: Describes the burden of chronic disease in Europe Explores the economic case for investing in chronic disease management Examines key challenges posed by the growing complexity in healthcare including prevention, the role of self-management, the healthcare workforce, and decision-support Examines systems for financing chronic care Analyses the prerequisites for effective policies for chronic care Caring for People with Chronic Conditions is key reading for health policy makers and health care professionals, as well as postgraduate students studying health policy, health services research, health economics, public policy and management. Contributors: Reinhard Busse, Elisabeth Chan, Anna Dixon, Carl-Ardy Dubois, Isabelle Durand-Zaleski, Daragh K Fahey, Nicholas Glasgow, Monique Hejmans, Izzat Jiwani, Martyn Jones, Cécile Knai, Nicholas Mays, Martin McKee, Ellen Nolte, Thomas E Novotny, Joceline Pomerleau, Mieke Rijken, Dhigna Rubiano, Debbie Singh, Marc Suhrcke.

Living with Chronic Illness

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Author : Robert Anderson
Publisher : Taylor & Francis
ISBN 13 : 1040122442
Total Pages : 274 pages
Book Rating : 4.0/5 (41 download)

Book Synopsis Living with Chronic Illness by : Robert Anderson

Download or read book Living with Chronic Illness written by Robert Anderson and published by Taylor & Francis. This book was released on 2024-09-30 with total page 274 pages. Available in PDF, EPUB and Kindle. Book excerpt: First published in 1988, Living with Chronic Illness presents a vivid account of the reality of life with chronic illness – from the perspective of patients and their families. The authors look at the expectations, priorities, and problems of those most affected by chronic illness, and examine the strategies they have developed to cope with their considerable disadvantages. The experience of carers, the ways in which their problems change over time, are also major themes in the book. The book looks at the everyday life of people with the following conditions: stroke, renal failure, multiple sclerosis, Parkinson’s disease, arthritis, heart attack, epilepsy, rectal cancer, psoriasis, and diabetes. In each case, an overview of the consequences of a particular illness is presented, before discussion of specific problems in daily life – maintaining family relationships, managing treatment regimes, coping with work and home commitments, and living with bodily change and social stigma. This volume will be of importance to all those concerned with providing support and planning care for the chronically ill – in the health and social services and in voluntary organizations. Students of medical sociology, policy makers and planners will also find the insights and research presented here valuable in the understanding of the daily life of people with chronic illness. It will also be of use for those in professional training, in nursing, social work, general practice and related areas.

Listening in the Shadows

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Author : Sarah Joyce Shoemaker
Publisher :
ISBN 13 :
Total Pages : 620 pages
Book Rating : 4.:/5 (319 download)

Book Synopsis Listening in the Shadows by : Sarah Joyce Shoemaker

Download or read book Listening in the Shadows written by Sarah Joyce Shoemaker and published by . This book was released on 2005 with total page 620 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Chronic Illness and the Quality of Life

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Author : Anselm L. Strauss
Publisher : Mosby Elsevier Health Science
ISBN 13 :
Total Pages : 252 pages
Book Rating : 4.3/5 (91 download)

Book Synopsis Chronic Illness and the Quality of Life by : Anselm L. Strauss

Download or read book Chronic Illness and the Quality of Life written by Anselm L. Strauss and published by Mosby Elsevier Health Science. This book was released on 1984 with total page 252 pages. Available in PDF, EPUB and Kindle. Book excerpt: