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The Adolescent With Cystic Fibrosis And Self Care Agency
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Book Synopsis Promoting Adherence to Medical Treatment in Chronic Childhood Illness by : Dennis Drotar
Download or read book Promoting Adherence to Medical Treatment in Chronic Childhood Illness written by Dennis Drotar and published by Psychology Press. This book was released on 2000-08 with total page 515 pages. Available in PDF, EPUB and Kindle. Book excerpt: This interdisciplinary edited volume addresses critical gaps in scientific understanding of adherence/compliance to treatment regimens in chronic health conditions for children & Ados.
Book Synopsis Nursing Care of Children and Young People with Long-Term Conditions by : Mandy Brimble
Download or read book Nursing Care of Children and Young People with Long-Term Conditions written by Mandy Brimble and published by John Wiley & Sons. This book was released on 2021-03-15 with total page 306 pages. Available in PDF, EPUB and Kindle. Book excerpt: The second edition of Nursing Care of Children and Young People with Long Term Conditions remains the only nursing-specific text on the care of paediatric patients with chronic illness. Written to meet the needs of nursing students and professionals alike, this comprehensive volume provides authoritative and up-to-date information on the context, theory, and practice of delivering holistic care to children and families in a range of health and social care settings. Contributions from a team of experienced academics, educators, and practitioners offer valuable insight into the impact of chronic illness on children and parents, the practical implications of meeting their physical, psychological, and social needs, empowering them to be 'experts' in their care, and many more vital aspects of long-term paediatric care. This edition features new and revised content reflecting contemporary guidelines and evidence-based practice, including updated clinical case studies and a new chapter examining the impact of having a sibling with a long-term condition. Emphasising a multi-disciplinary approach to managing chronic illness, this important resource: Provides numerous case studies and activities illustrating the application of theoretical principles and current evidence in nursing practice Investigates the genetic basis of chronic illness and the differing onsets of long-term conditions Discusses current political, economic, and social policies that are influencing healthcare for children and bringing challenges to managers and practitioners Examines both classic and contemporary theories of grief, loss, coping, and adaptation Explores ethical, legal, and professional aspects of nursing children and young people with chronic illness Addresses evolving nursing roles, the importance of acute emergency care, and the planning and delivery of effective transition from child to adult services Nursing Care of Children and Young People with Long Term Conditions is required reading for student and registered children's nurses, as well as for practitioners in related health and social care disciplines.
Book Synopsis Development of a Tool Assessing Health Knowledge of Adolescents with Cystic Fibrosis by : Nancy Ellen Schwartz
Download or read book Development of a Tool Assessing Health Knowledge of Adolescents with Cystic Fibrosis written by Nancy Ellen Schwartz and published by . This book was released on 1979 with total page 90 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Adolescent Health: Background and the effectiveness of selected prevention and treatment services by :
Download or read book Adolescent Health: Background and the effectiveness of selected prevention and treatment services written by and published by . This book was released on 1991 with total page 782 pages. Available in PDF, EPUB and Kindle. Book excerpt: This three volume work presents the Office of Technology's assessment of the physical, emotional, and behavioral health status of contemporary American adolescents, including those living in poverty, racial and ethnic minority groups, Native Americans, and rural adolescents. Specific topics covered are identifying risk and protective factors for adolescent health problems, evaluating options in the organization of health services and technologies available to adolescents, assessing options in the conduct of national health surveys to improve collection of adolescent health statistics, and identifying gaps in research on the health and behavior of adolescents.
Download or read book Cystic Fibrosis written by Marcus A. Mall and published by European Respiratory Society. This book was released on 2014-06-01 with total page 342 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cystic fibrosis (CF) is one of the most common fatal hereditary diseases. The discovery of the cystic fibrosis transmembrane conductance regulator (CFTR) gene 25 years ago set the stage for unraveling the pathogenesis of CF lung disease, continuous refinement of symptomatic treatments and the development of mutation-specific therapies, which are now becoming available for a subgroup of patients. This ERS Monograph provides an update on all aspects of CF lung disease, from infancy to adulthood, including current concepts on disease process, improvements in early diagnosis and monitoring, therapeutic approaches, and patient care. The book highlights important recent developments and discusses the next steps that will be required for further improvement of the life expectancy and quality of life of CF patients. It will be an essential reference for basic and clinical scientists and all members of the CF team.
Book Synopsis Health Care Transition by : Albert C. Hergenroeder
Download or read book Health Care Transition written by Albert C. Hergenroeder and published by Springer. This book was released on 2018-05-03 with total page 386 pages. Available in PDF, EPUB and Kindle. Book excerpt: This comprehensive book thoroughly addresses all aspects of health care transition of adolescents and young adults with chronic illness or disability; and includes the framework, tools and case-based examples needed to develop and evaluate a Health Care Transition (HCT) planning program that can be implemented regardless of a patient’s disease or disability. Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is a uniquely inclusive resource, incorporating youth/young adult, caregiver, and pediatric and adult provider voices and perspectives. Part I of the book opens by defining Health Care Transition, describing the urgent need for comprehensive transition planning, barriers to HCT and then offering a framework for developing and evaluating health care transition programs. Part II focuses on the anatomic and neuro-chemical changes that occur in the brain during adolescence and young adulthood, and how they affect function and behavior. Part III covers the perspectives of important participants in the HCT transition process – youth and young adults, caregivers, and both pediatric and adult providers. Each chapter in Part IV addresses a unique aspect of developing HCT programs. Part V explores various examples of successful transition from the perspective of five key participants in the transition process - patients, caregivers, pediatric providers, adult providers and third party payers. Related financial matters are covered in part VI, while Part VII explores special issues such as HCT and the medical home, international perspectives, and potential legal issues. Models of HCT programs are presented in Part VIII, utilizing an example case study. Representing perspectives from over 75 authors and more than 100 medical centers in North America and Europe, Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is an ideal resource for any clinician, policy maker, caregiver, or hospitalist working with youth in transition.
Book Synopsis Adolescent Risk and Vulnerability by : National Research Council
Download or read book Adolescent Risk and Vulnerability written by National Research Council and published by National Academies Press. This book was released on 2001-10-08 with total page 164 pages. Available in PDF, EPUB and Kindle. Book excerpt: Adolescents obviously do not always act in ways that serve their own best interests, even as defined by them. Sometimes their perception of their own risks, even of survival to adulthood, is larger than the reality; in other cases, they underestimate the risks of particular actions or behaviors. It is possible, indeed likely, that some adolescents engage in risky behaviors because of a perception of invulnerabilityâ€"the current conventional wisdom of adults' views of adolescent behavior. Others, however, take risks because they feel vulnerable to a point approaching hopelessness. In either case, these perceptions can prompt adolescents to make poor decisions that can put them at risk and leave them vulnerable to physical or psychological harm that may have a negative impact on their long-term health and viability. A small planning group was formed to develop a workshop on reconceptualizing adolescent risk and vulnerability. With funding from Carnegie Corporation of New York, the Workshop on Adolescent Risk and Vulnerability: Setting Priorities took place on March 13, 2001, in Washington, DC. The workshop's goal was to put into perspective the total burden of vulnerability that adolescents face, taking advantage of the growing societal concern for adolescents, the need to set priorities for meeting adolescents' needs, and the opportunity to apply decision-making perspectives to this critical area. This report summarizes the workshop.
Book Synopsis Advancing Health Literacy by : Christina Zarcadoolas
Download or read book Advancing Health Literacy written by Christina Zarcadoolas and published by John Wiley & Sons. This book was released on 2009-04-15 with total page 398 pages. Available in PDF, EPUB and Kindle. Book excerpt: Advancing Health Literacy addresses the crisis in health literacy in the United States and around the world. This book thoroughly examines the critical role of literacy in public health and outlines a practical, effective model that bridges the gap between health education, health promotion, and health communication. Step by step, the authors outline the theory and practice of health literacy from a public health perspective. This comprehensive resource includes the history of health literacy, theoretical foundations of health and language literacy, the role of the media, a series of case studies on important topics including prenatal care, anthrax, HIV/AIDS, genomics, and diabetes. The book concludes with a series of practical guidelines for the development and assessment of health communications materials. Also included are essential techniques needed to help people make informed decisions, advocate for themselves and their community, mitigate risk, and live healthier lives.
Book Synopsis Pharmacist Services by : Jon Schommer
Download or read book Pharmacist Services written by Jon Schommer and published by MDPI. This book was released on 2019-11-04 with total page 436 pages. Available in PDF, EPUB and Kindle. Book excerpt: The overall goal of this book is to give the reader a state-of-the-art synopsis of the pharmacist services domain. To accomplish this goal, the authors have addressed the social, psychosocial, political, legal, historic, clinical, and economic factors that are associated with pharmacist services. In this book, you will gain cutting-edge insights from learning about the research of experts throughout the world. The findings have relevance for enhancing pharmacist professionalism, pharmacist practice, and the progression of pharmacist services in the future.
Book Synopsis Dissertation Abstracts International by :
Download or read book Dissertation Abstracts International written by and published by . This book was released on 2009 with total page 810 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Transition from Pediatric to Adult Healthcare Services for Adolescents and Young Adults with Long-term Conditions by : Cecily L. Betz
Download or read book Transition from Pediatric to Adult Healthcare Services for Adolescents and Young Adults with Long-term Conditions written by Cecily L. Betz and published by Springer Nature. This book was released on 2019-11-30 with total page 344 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book offers essential information on interventions and actions that enable and promote transition experiences for adolescents and young adults. It provides guidance on appropriate strategies that bring together these groups and caregivers in the context of transition preparation, and those which optimize adolescents’ and young adults’ ability to self-manage their healthcare. The health care transition for adolescents and young adults has gained more attention given the improved survival rates, including for those with long-term conditions. It is now estimated that more than 90% of children diagnosed with a long-term condition will survive into adulthood. The significant change in survival requires concomitant services to facilitate adolescents’ and young adults’ successful transition to adult health care, therefore providers need education, knowledge and skills to support healthcare transition services. A recent US national survey demonstrated only 10% of parents/caregivers reported that their children received transition preparation services. This book is targeted at nurses and pediatric and adult health care providers of different disciplines seeking guidance on which interventions are available, how they can be used, advantages and challenges, and how best to promote a seamless transition for all adolescents and young adults with long-term conditions. It provides several examples of transition programmes and initiatives worldwide. There is an increasing focus on how nurses can support transition but little guidance on what is effective and what has been tried. This book will fill a gap by addressing all of these issues outlined above and by providing worked examples from leading nurse researchers and academics worldwide.
Book Synopsis The Science and Art of Self-care by : Joan Riehl-Sisca
Download or read book The Science and Art of Self-care written by Joan Riehl-Sisca and published by . This book was released on 1985 with total page 340 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Advances in Cystic Fibrosis, An Issue of Clinics in Chest Medicine, E-Book by : Clemente J. Britto
Download or read book Advances in Cystic Fibrosis, An Issue of Clinics in Chest Medicine, E-Book written by Clemente J. Britto and published by Elsevier Health Sciences. This book was released on 2022-11-09 with total page 281 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this issue of Clinics in Chest Medicine, guest editors Drs. Clemente J. Britto and Jennifer L. Taylor-Cousar bring their considerable expertise to Advances in Cystic Fibrosis. Top experts in the field cover key topics such as genetics of cystic fibrosis (CF): clinical implications; innate and adaptive immunity in CF; novel applications of biomarkers and personalized medicine to define the spectrum of CF; emerging approaches to understand CF pathogenesis; and more. - Contains 18 relevant, practice-oriented topics including novel approaches to multidrug resistant infections in CF; clinical outcomes of highly-effective modulator therapy; nontuberculous mycobacterial infections in CF; management of mental health in CF; sexual and reproductive health in CF; nutritional management in CF; transitions of care in CF; and more. - Provides in-depth clinical reviews on advances in cystic fibrosis, offering actionable insights for clinical practice. - Presents the latest information on this timely, focused topic under the leadership of experienced editors in the field. Authors synthesize and distill the latest research and practice guidelines to create clinically significant, topic-based reviews.
Book Synopsis The Handbook of Salutogenesis by : Maurice B. Mittelmark
Download or read book The Handbook of Salutogenesis written by Maurice B. Mittelmark and published by Springer. This book was released on 2016-09-02 with total page 467 pages. Available in PDF, EPUB and Kindle. Book excerpt: This in-depth survey of salutogenesis shows the breadth and strengths of this innovative perspective on health promotion, health care, and wellness. Background and historical chapters trace the development of the salutogenic model of health, and flesh out the central concepts, most notably generalized resistance resources and the sense of coherence, that differentiate it from pathogenesis. From there, experts describe a range of real-world applications within and outside health contexts, from positive psychology to geriatrics, from small towns to corrections facilities, and from school and workplace to professional training. Perspectives from scholars publishing in languages other than English show the global relevance of the field. Among the topics in the Handbook: · Emerging ideas relevant to the salutogenic model of health · Specific resistance resources in the salutogenic model of health · The sense of coherence and its measurement · The application of salutogenesis in communities and neighborhoods · The application of salutogenesis to health development in youth with chronic conditions · The application of salutogenesis in mental health care settings The Handbook of Salutogenesis summarizes an increasingly salient field for graduate and professional students of public health, nursing, psychology, and medicine, and for their instructors. It will also appeal to health-related academicians and professionals who wish to have a thorough grounding in the topic.
Download or read book Cystic Fibrosis written by Alex Horsley and published by OUP Oxford. This book was released on 2015-03-26 with total page 205 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cystic Fibrosis (CF) is a multi-system disorder, requiring not just respiratory expertise but also management of nutrition, diabetes, musculoskeletal and psychosocial issues. This pocketbook is a concise companion for all health care professionals who manage patients with CF. The book covers all aspects of care, including both paediatric and adult-specific issues, and summarizes up-to-date literature in a concise and focussed style. There is an emphasis on the practical aspects of management with separate chapters covering the effects of CF in the lung, the microbiology of pulmonary CF, and management of exacerbations. Psychosocial aspects of CF care, end of life care and lung transplantation are also covered, and potential future therapies reviewed. This second edition has been extensively updated to reflect the UK CF Trust Standards of Care, treatment guidelines and Cochrane reviews. There are updates on emerging organisms; an expanded section on physiotherapy; and a new Pharmacopeia that covers all common CF medications.
Book Synopsis Hodson and Geddes' Cystic Fibrosis by : Andrew Bush
Download or read book Hodson and Geddes' Cystic Fibrosis written by Andrew Bush and published by CRC Press. This book was released on 2023-11-20 with total page 747 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cystic Fibrosis has seen dramatic advances in treatment since the last edition, including targeted cystic fibrosis transmembrane conductance regulator (CFTR) protein modulators for most CFTR gene abnormalities. This new fifth edition is an update and expansion of the rapid clinical and scientific advances in improving prognosis, and the impact of COVID-19, all of which has transformed conventional models of care. It covers basic science, such as how detailed understanding of the biology of the CFTR gene and protein has led to novel and beneficial therapies, as well as all aspects of clinical management in high-, middle- and low-income settings and the voices of individuals with CF from across the world. It will be a useful reference for clinicians, including all levels of trainees, across the whole multidisciplinary team, scientists and students. Key Features • Follows an appealing organization of chapters, by developing fundamental knowledge of the reader before moving on to more complex or developing topics. • Presents a comprehensive, authoritative and up-to-date text, integrating fundamental science and clinical aspects of cystic fibrosis providing an attractive read for clinicians, trainee doctors and scientists. • Draws on global expertise and reflects best evidence-based practice from experts conducting cutting-edge clinical and basic science research from around the world.
Book Synopsis Cystic Fibrosis, Third Edition by : Margaret Hodson
Download or read book Cystic Fibrosis, Third Edition written by Margaret Hodson and published by CRC Press. This book was released on 2007-05-25 with total page 524 pages. Available in PDF, EPUB and Kindle. Book excerpt: This international and authoritative work, which brings together current knowledge in the field of cystic fibrosis, has become established in previous editions as a leading reference in the field. The third edition continues to provide everything that the clinician or allied health professional treating patients with cystic fibrosis will need in a single manageable volume. Thoroughly revised and updated throughout, it reflects the significant advances that have been made in the field since the second edition published in 2000. Cystic Fibrosis evaluates in detail the basic science that underlies the disease and its progression, putting it into a clinical context. Diagnostic and clinical aspects are covered in depth, as are monitoring the condition and the importance of multi-disciplinary care, reflected in the sections into which the new edition has been sub-divided to improve accessibility. Future developments, including novel therapies, are covered in a concluding section. The clinical areas have been much expanded, with the introduction of separate chapters covering sleep, lung mechanics and the work of breathing, upper airway disease, insulin deficiency and diabetes, bone disease, and sexual and reproductive issues. A new section on monitoring discusses the use of databases to improve patient care, and covers monitoring in different age groups, exercise testing and the outcomes of clinical trials in these areas. Separate chapters are devoted to paramedical issues, including nursing, physiotherapy, psychology, and palliative and spiritual care. Throughout, the emphasis is on providing an up-to-date and balanced review of both the clinical and basic sciences aspects of the subject, and to reflect the multi-disciplinary nature of the cystic fibrosis care team. Drawing on the expertise of a team of international specialists from a variety of backgrounds, the third edition of Cystic Fibrosiswill continue to find a broad readership among respiratory physicians, paediatricians, specialist nurses and other health professionals working with patients with cystic fibrosis.
