Sickle Cell and the Social Sciences

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Publisher : Routledge
ISBN 13 : 1351580841
Total Pages : 242 pages
Book Rating : 4.3/5 (515 download)

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Book Synopsis Sickle Cell and the Social Sciences by : Simon M. Dyson

Download or read book Sickle Cell and the Social Sciences written by Simon M. Dyson and published by Routledge. This book was released on 2019-03-27 with total page 242 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle cell disease (SCD) is a severe chronic illness and one of the world’s most common genetic conditions, with 400,000 children born annually with the disorder, mainly in Sub-Saharan Africa, India, Brazil, the Middle East and in diasporic African populations in North America and Europe. Biomedical treatments for SCD are increasingly available to the world’s affluent populations, while such medical care is available only in attenuated forms in Africa, India and to socio-economically disadvantaged groups in North America and Europe. Often a condition rendered invisible in policy terms because of its problematic association with politically marginalized groups, the social study of sickle cell has been neglected. This illuminating volume explores the challenges and possibilities for developing a social view of sickle cell, and for improving the quality of lives of those living with SCD. Tackling the controversial role of screening and genetics in SCD, the book offers a brief thematic history of approaches to the condition, queries the role of ethnicity and includes a discussion of how the social model of disability can be applied, as well as featuring chapters focusing on athletics, prisons and schools. Bringing together a wide range of original research conducted in the USA, the UK, Ghana and Nigeria, Sickle Cell and the Social Sciences is anchored in the discipline of sociology, but draws upon a diverse range of fields, including public health, anthropology, social policy and disability studies.

Social Sciences

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Author :
Publisher : Ardent Media
ISBN 13 :
Total Pages : 32 pages
Book Rating : 4./5 ( download)

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Book Synopsis Social Sciences by :

Download or read book Social Sciences written by and published by Ardent Media. This book was released on with total page 32 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Addressing Sickle Cell Disease

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Author :
Publisher : National Academies Press
ISBN 13 : 030966960X
Total Pages : 523 pages
Book Rating : 4.3/5 (96 download)

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Book Synopsis Addressing Sickle Cell Disease by : National Academies of Sciences, Engineering, and Medicine

Download or read book Addressing Sickle Cell Disease written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2021-01-22 with total page 523 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle cell disease (SCD) is a genetic condition that affects approximately 100,000 people in the United States and millions more globally. Individuals with SCD endure the psychological and physiological toll of repetitive pain as well as side effects from the pain treatments they undergo. Some adults with SCD report reluctance to use health care services, unless as a last resort, due to the racism and discrimination they face in the health care system. Additionally, many aspects of SCD are inadequately studied, understood, and addressed. Addressing Sickle Cell Disease examines the epidemiology, health outcomes, genetic implications, and societal factors associated with SCD and sickle cell trait (SCT). This report explores the current guidelines and best practices for the care of patients with SCD and recommends priorities for programs, policies, and research. It also discusses limitations and opportunities for developing national SCD patient registries and surveillance systems, barriers in the healthcare sector associated with SCD and SCT, and the role of patient advocacy and community engagement groups.

Uncertain Suffering

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Publisher : Univ of California Press
ISBN 13 : 0520259122
Total Pages : 328 pages
Book Rating : 4.5/5 (22 download)

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Book Synopsis Uncertain Suffering by : Carolyn Rouse

Download or read book Uncertain Suffering written by Carolyn Rouse and published by Univ of California Press. This book was released on 2009-08-03 with total page 328 pages. Available in PDF, EPUB and Kindle. Book excerpt: “Within the pages of Uncertain Suffering it becomes all too clear that race, class, and age converge to define a powerful triple blow that guarantees both subtle and outrageously obvious health disparities. Rouse moves gracefully from the subjective pain of adolescent patients in crisis, to the compassionate yet distanced professionalism of health care specialists, to the level of national policy, revealing a clinical world fraught with contradictions over how best to treat black, and, all too often, underclass children in pain. Uncertain Suffering will make a big splash within anthropology.”—Lesley Sharp, Barnard College “Uncertain Suffering will have a unique place in medical anthropology, public health scholarship, and the social sciences of health. It involves a layered and deeply philosophical approach to the limits of the role/ responsibility of modern American medicine to address the suffering of African American patients.”—Rayna Rapp, New York University

The Enculturated Gene

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Publisher : Princeton University Press
ISBN 13 : 0691123179
Total Pages : 370 pages
Book Rating : 4.6/5 (911 download)

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Book Synopsis The Enculturated Gene by : Duana Fullwiley

Download or read book The Enculturated Gene written by Duana Fullwiley and published by Princeton University Press. This book was released on 2011-11-27 with total page 370 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the 1980s, a research team led by Parisian scientists identified several unique DNA sequences, or haplotypes, linked to sickle cell anemia in African populations. After casual observations of how patients managed this painful blood disorder, the researchers in question postulated that the Senegalese type was less severe. The Enculturated Gene traces how this genetic discourse has blotted from view the roles that Senegalese patients and doctors have played in making sickle cell "mild" in a social setting where public health priorities and economic austerity programs have forced people to improvise informal strategies of care. Duana Fullwiley shows how geneticists, who were fixated on population differences, never investigated the various modalities of self-care that people developed in this context of biomedical scarcity, and how local doctors, confronted with dire cuts in Senegal's health sector, wittingly accepted the genetic prognosis of better-than-expected health outcomes. Unlike most genetic determinisms that highlight the absoluteness of disease, DNA haplotypes for sickle cell in Senegal did the opposite. As Fullwiley demonstrates, they allowed the condition to remain officially invisible, never to materialize as a health priority. At the same time, scientists' attribution of a less severe form of Senegalese sickle cell to isolated DNA sequences closed off other explanations of this population's measured biological success. The Enculturated Gene reveals how the notion of an advantageous form of sickle cell in this part of West Africa has defined--and obscured--the nature of this illness in Senegal today.

Social and Economic Issues Concerning Patients with Sickle Cell Disease

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Author :
Publisher :
ISBN 13 :
Total Pages : 50 pages
Book Rating : 4.:/5 (152 download)

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Book Synopsis Social and Economic Issues Concerning Patients with Sickle Cell Disease by : Punita Khanna

Download or read book Social and Economic Issues Concerning Patients with Sickle Cell Disease written by Punita Khanna and published by . This book was released on 1986 with total page 50 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Managing Sickle Cell Disease

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Publisher : Temple University Press
ISBN 13 : 9781592131952
Total Pages : 242 pages
Book Rating : 4.1/5 (319 download)

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Book Synopsis Managing Sickle Cell Disease by : Shirley Hill

Download or read book Managing Sickle Cell Disease written by Shirley Hill and published by Temple University Press. This book was released on 2003-04-09 with total page 242 pages. Available in PDF, EPUB and Kindle. Book excerpt: As many as 30,000 African Americans have sickle cell disease (SCD). Though the political activism of the 1960s and a major 1970s health campaign spurred demands for testing, treatment, and education programs, little attention has been given to how families cope with SCD. This first study to give SCD a social, economic, and cultural context documents the daily lives of families living with this threatening illness. Specifically, Shirley A. Hill examines how low-income African American mothers with children suffering from this hereditary, incurable, and chronically painful disease, react to the diagnosis and manage their family's health care.The 23 mostly single mothers Hill studies survive in an inner-city world of social inequality. Despite limited means, they actively participate, create, and define the social world they live in, their reality shaped by day-to-day caregiving. These women overcome obstacles by utilizing such viable alternatives as sharing child care with relatives within established kinship networks.Highlighting the role of class, race, and gender in the illness experience, Hill interprets how these women reject, redefine, or modify the objective scientific facts about SCD. She acknowledges and explains the relevance of child-bearing and motherhood to African American women's identity, revealing how the revelation of the SCD trait or the diagnosis of one child often does not affect a woman's interpretation of her reproductive rights.

Dying in the City of the Blues

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Author :
Publisher :
ISBN 13 :
Total Pages : 360 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Dying in the City of the Blues by : Keith Wailoo

Download or read book Dying in the City of the Blues written by Keith Wailoo and published by . This book was released on 2001 with total page 360 pages. Available in PDF, EPUB and Kindle. Book excerpt: Dying in the City of the Blues: Sickle Cell Anemia and the Politics of Race and Health

Handbook of Social Sciences and Global Public Health

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Publisher : Springer Nature
ISBN 13 : 3031251105
Total Pages : 2224 pages
Book Rating : 4.0/5 (312 download)

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Book Synopsis Handbook of Social Sciences and Global Public Health by : Pranee Liamputtong

Download or read book Handbook of Social Sciences and Global Public Health written by Pranee Liamputtong and published by Springer Nature. This book was released on 2023-09-09 with total page 2224 pages. Available in PDF, EPUB and Kindle. Book excerpt: This handbook highlights the relevance of the social sciences in global public health and their significantly crucial role in the explanation of health and illness in different population groups, the improvement of health, and the prevention of illnesses around the world. Knowledge generated via social science theories and research methodologies allows healthcare providers, policy-makers, and politicians to understand and appreciate the lived experience of their people, and to provide sensitive health and social care to them at a time of most need. Social sciences, such as medical sociology, medical anthropology, social psychology, and public health are the disciplines that examine the sociocultural causes and consequences of health and illness. It is evident that biomedicine cannot be the only answer to improving the health of people. What makes social sciences important in global public health is the critical role social, cultural, economic, and political factors play in determining or influencing the health of individuals, communities, and the larger society and nation. This handbook is comprehensive in its nature and contents, which range from a more disciplinary-based approach and theoretical and methodological frameworks to different aspects of global public health. It covers: Discussions of the social science disciplines and their essence, concepts, and theories relating to global public health Theoretical frameworks in social sciences that can be used to explain health and illness in populations Methodological inquiries that social science researchers can use to examine global public health issues and understand social issues relating to health in different population groups and regions Examples of social science research in global public health areas and concerns as well as population groups The Handbook of Social Sciences and Global Public Health is a useful reference for students, researchers, lecturers, practitioners, and policymakers in global health, public health, and social science disciplines; and libraries in universities and health and social care institutions. It offers readers a good understanding of the issues that can impact the health and well-being of people in society, which may lead to culturally sensitive health and social care for people that ultimately will lead to a more equitable society worldwide.

Sickle Cell Anemia

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Author :
Publisher : Nova Science Publishers
ISBN 13 : 9781634847049
Total Pages : 0 pages
Book Rating : 4.8/5 (47 download)

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Book Synopsis Sickle Cell Anemia by : Intsar S. Waked

Download or read book Sickle Cell Anemia written by Intsar S. Waked and published by Nova Science Publishers. This book was released on 2016 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle cell disease (SCD), an inherited hemolytic anemia, is associated with multiple acute and chronic complications such as painful vasoocclusive events, cerebral vasculopathy, priapism, and renal or lung disease. These complications are variable and unpredictable, and can be associated with significant morbidity and poor quality of life. This book covers several areas regarding pathology, diagnosis, complications, signs, symptoms and medical treatments. There are few studies in literature on the role of physiotherapy as a resource to prevent and treat locomotor system disorders, respiratory problems and painful crises in SCD individuals. This book highlights the role of physiotherapy in sickle cell anemia. A comprehensive and authoritative monograph, this book will be equally interesting to both established researchers and to graduate students interested in both genetics and the physical therapy field.

People's Science

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Publisher : Stanford University Press
ISBN 13 : 0804786739
Total Pages : 268 pages
Book Rating : 4.8/5 (47 download)

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Book Synopsis People's Science by : Ruha Benjamin

Download or read book People's Science written by Ruha Benjamin and published by Stanford University Press. This book was released on 2013-05-22 with total page 268 pages. Available in PDF, EPUB and Kindle. Book excerpt: “An engaging, insightful, and challenging call to examine both the rhetoric and reality of innovation and inclusion in science and science policy.” —Daniel R. Morrison, American Journal of Sociology Stem cell research has sparked controversy and heated debate since the first human stem cell line was derived in 1998. Too frequently these debates devolve to simple judgments—good or bad, life-saving medicine or bioethical nightmare, symbol of human ingenuity or our fall from grace—ignoring the people affected. With this book, Ruha Benjamin moves the terms of debate to focus on the shifting relationship between science and society, on the people who benefit—or don’t—from regenerative medicine and what this says about our democratic commitments to an equitable society. People’s Science uncovers the tension between scientific innovation and social equality, taking the reader inside California’s 2004 stem cell initiative, the first of many state referenda on scientific research, to consider the lives it has affected. Benjamin reveals the promise and peril of public participation in science, illuminating issues of race, disability, gender, and socio-economic class that serve to define certain groups as more or less deserving in their political aims and biomedical hopes. Ultimately, Ruha Benjamin argues that without more deliberate consideration about how scientific initiatives can and should reflect a wider array of social concerns, stem cell research—from African Americans’ struggle with sickle cell treatment to the recruitment of women as tissue donors—still risks excluding many. Even as regenerative medicine is described as a participatory science for the people, Benjamin asks us to consider if “the people” ultimately reflects our democratic ideals.

Sickle Cell Pain

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Publisher : Lippincott Williams & Wilkins
ISBN 13 : 1496331834
Total Pages : 1004 pages
Book Rating : 4.4/5 (963 download)

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Book Synopsis Sickle Cell Pain by : Samir K. Ballas

Download or read book Sickle Cell Pain written by Samir K. Ballas and published by Lippincott Williams & Wilkins. This book was released on 2015-06-01 with total page 1004 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle Cell Pain is a panoramic, in-depth exploration of every scientific, human, and social dimension of this cruel disease. This comprehensive, definitive work is unique in that it is the only book devoted to sickle cell pain, as opposed to general aspects of the disease. The 752-page book links sickle cell pain to basic, clinical, and translational research, addressing various aspects of sickle pain from molecular biology to the psychosocial aspects of the disease. Supplemented with patient narratives, case studies, and visual art, Sickle Cell Pain’s scientific rigor extends through its discussion of analgesic pharmacology, including abuse-deterrent formulations. The book also addresses in great detail inequities in access to care, stereotyping and stigmatization of patients, the implications of rapidly evolving models of care, and recent legislation and litigation and their consequences.

The Bobbs-Merrill Reprint Series in the Social Sciences

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Author :
Publisher : Ardent Media
ISBN 13 :
Total Pages : 32 pages
Book Rating : 4./5 ( download)

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Book Synopsis The Bobbs-Merrill Reprint Series in the Social Sciences by :

Download or read book The Bobbs-Merrill Reprint Series in the Social Sciences written by and published by Ardent Media. This book was released on with total page 32 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Iron Chelation Therapy

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Publisher : Springer Science & Business Media
ISBN 13 : 1461505933
Total Pages : 275 pages
Book Rating : 4.4/5 (615 download)

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Book Synopsis Iron Chelation Therapy by : Chaim Hershko

Download or read book Iron Chelation Therapy written by Chaim Hershko and published by Springer Science & Business Media. This book was released on 2012-12-06 with total page 275 pages. Available in PDF, EPUB and Kindle. Book excerpt: Within the last few years, iron research has yielded exciting new insights into the under standing of normal iron homeostasis. However, normal iron physiology offers little protec tion from the toxic effects of pathological iron accumulation, because nature did not equip us with effective mechanisms of iron excretion. Excess iron may be effectively removed by phlebotomy in hereditary hemochromatosis, but this method cannot be applied to chronic anemias associated with iron overload. In these diseases, iron chelating therapy is the only method available for preventing early death caused mainly by myocardial and hepatic iron toxicity. Iron chelating therapy has changed the quality of life and life expectancy of thalassemic patients. However, the high cost and rigorous requirements of deferoxamine therapy, and the significant toxicity of deferiprone underline the need for the continued development of new and improved orally effective iron chelators. Such development, and the evolution of improved strategies of iron chelating therapy require better understanding of the pathophysiology of iron toxicity and the mechanism of action of iron chelating drugs. The timeliness of the present volume is underlined by several significant develop ments in recent years. New insights have been gained into the molecular basis of aberrant iron handling in hereditary disorders and the pathophysiology of iron overload (Chapters 1-5).

Sickle Cell Disease

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Author :
Publisher : Praeger
ISBN 13 : 027592503X
Total Pages : 0 pages
Book Rating : 4.2/5 (759 download)

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Book Synopsis Sickle Cell Disease by : Vipul Mankad

Download or read book Sickle Cell Disease written by Vipul Mankad and published by Praeger. This book was released on 1992-11-24 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle cell disease is a complex disease with a genetic mutation producing a wide variety of manifestations. It is of great public health importance nationally and internationally. While the conclusions of this study support the generally accepted views on the disease, the book provides the most recent information and state-of-the-art knowledge on the subject. The book is unique in that it presents the genetic, molecular, cellular, metabolic, rheologic, clinical, diagnostic, therapeutic, and psychosocial dimensions of sickle cell disease. Its synthesis of micro to macro, molecular to cellular, individual to social relationships provides a comprehensive study of sickle cell disease. The book offers a synthesis of basic science describing genetic, molecular, metabolic, and rheologic aspects of sickle cell disease. Clinical aspects, including diagnosis and treatment, and psychosocial aspects, covering the interaction of the patient with sickle cell disease with society, are also treated. Physicians, scientists, allied health workers, sociologists, and social workers, epidemiologists and anthropologists as well as administrators of sickle cell centers will find this volume useful. The ultimate goal of the book is to improve the understanding of sickle cell disease and to contribute to a better quality of life for those who have the disease or who are at risk of getting it.

Sickle Cell Anemia

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Author :
Publisher : Springer
ISBN 13 : 3319067133
Total Pages : 439 pages
Book Rating : 4.3/5 (19 download)

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Book Synopsis Sickle Cell Anemia by : Fernando Ferreira Costa

Download or read book Sickle Cell Anemia written by Fernando Ferreira Costa and published by Springer. This book was released on 2016-03-29 with total page 439 pages. Available in PDF, EPUB and Kindle. Book excerpt: Although sickle cell anemia was the first molecular disease to be identified, its complex and fascinating pathophysiology is still not fully understood. A single mutation in the beta-globin gene incurs numerous molecular and cellular mechanisms that contribute to the plethora of symptoms associated with the disease. Our knowledge regarding sickle cell disease mechanisms, while still not complete, has broadened considerably over the last decades. Sickle Cell Anemia: From Basic Science to Clinical Practice aims to provide an update on our current understanding of the disease’s pathophysiology and use this information as a basis to discuss its manifestations in childhood and adulthood. Current therapies and prospects for the development of new approaches for the management of the disease are also covered.

Sickle Cell Pain

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Author :
Publisher : IASP Press
ISBN 13 : 9780931092060
Total Pages : 0 pages
Book Rating : 4.0/5 (92 download)

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Book Synopsis Sickle Cell Pain by : Samir K. Ballas

Download or read book Sickle Cell Pain written by Samir K. Ballas and published by IASP Press. This book was released on 2014 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle Cell Pain is a panoramic, in-depth exploration of every scientific, human, and social dimension of this cruel disease. This comprehensive, definitive work is unique in that it is the only book devoted to sickle cell pain, as opposed to general aspects of the disease. The 752-page book links sickle cell pain to basic, clinical, and translational research, addressing various aspects of sickle pain from molecular biology to the psychosocial aspects of the disease. Supplemented with patient narratives, case studies, and visual art, Sickle Cell Pain's scientific rigor extends through its discussion of analgesic pharmacology, including abuse-deterrent formulations. The book also addresses in great detail inequities in access to care, stereotyping and stigmatization of patients, the implications of rapidly evolving models of care, and recent legislation and litigation and their consequences.