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Satisfaction Guaranteed Improving Developmental Disability Family Support Programs
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Book Synopsis Satisfaction Guaranteed? Improving Developmental Disability Family Support Programs by : Amber Christine Gibbs
Download or read book Satisfaction Guaranteed? Improving Developmental Disability Family Support Programs written by Amber Christine Gibbs and published by . This book was released on 2023 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: People with developmental disabilities (DD) overwhelmingly rely on family caregivers to provide the support they need at home and in the community, often because of limited funding, long waiting lists for paid services, and more recently a dangerous shortage of paid caregivers. Family caregivers experience physical, social, and psychological demands of the extended caregiving they provide and have poorer health outcomes, negative impacts on their financial well-being, and higher incidence of stress and depression than non-caregivers. Family Supports (FS) programs provide services and other resources designed to help individuals with disabilities remain living in their family homes (Freedman et al., 2000; Heller et. al., 1999). These programs often offer flexible but limited funding for services and are consumer-directed in that individuals with DD and their families can decide which services they want to access, and in which amounts within their funding allowance. Given the significant demands on family caregivers over the lifetime of a person with a developmental disability, FS programs must be considered a viable option to provide at least some support to people who may be waiting for other funding options. In some states, FS programs may not be available or may be underutilized. This study was designed to understand the factors that influence people to utilize (or not utilize) a FS program, and to measure how useful FS program services are to people with DD and their families. Research questions also asked if there were relationships between satisfaction and demographic characteristics or specific need factors of people served. Using both a phenomenological approach and Andersen's behavioral model (1995) as a framework, the study employed an explanatory sequential practical action research model, consisting of a quantitative survey followed by qualitative interviews to expand on the quantitative findings. Participants included family caregivers of individuals with DD currently and previously enrolled in a FS program administered by one agency in a large metropolitan area in a Midwestern state in the U.S. Both participants enrolled in the program and those previously enrolled gave similar ratings (helpful or very helpful) to program services, were satisfied or very satisfied with the FS program, and willing to recommend it to others. Participants did give overall higher ratings of service usefulness than non-participants, which may explain why non-participants are no longer enrolled in the program. Program participants specifically rated the services of camp and incontinence supplies as more useful than non-participants, which may have been related to the timing of the research post-COVID pandemic when these surveys were in high demand and low supply. Participants also provided helpful suggestions for FS program improvement to improve ease of access to services, allow for greater self-direction, and include ongoing feedback of caregivers and participants in future FS program decisions.
Book Synopsis Supporting Families of Children With Developmental Disabilities by : Mian Wang
Download or read book Supporting Families of Children With Developmental Disabilities written by Mian Wang and published by Oxford University Press. This book was released on 2016-02-11 with total page 377 pages. Available in PDF, EPUB and Kindle. Book excerpt: Supporting Families of Children with Developmental Disabilities: Evidence-based and Emerging Practices provides a comprehensive review of the empirical evidence on interventions for families of individuals - ranging from post-preschool age to adulthood - with developmental disabilities. The book presents both narrative and meta-analytic syntheses of a large body of research to evaluate which interventions meet contemporary standards as evidence based practices. The body of studies reviewed in the book has not previously been gathered into one volume, nor evaluated as a whole for the quality and extent of the evidence. The research is presented in the context of contemporary social policy and practices aimed at maximizing the development of children with disabilities while increasing the quality of life of their families. The criteria and procedures followed for identifying, reviewing, evaluating, and categorizing the studies are articulated in line with other major professional standards. Individual chapters focus on several different schools of practice, including: group psycho-educational interventions, behavioral parent training, multiple component interventions, supportive interventions for families of children with autism, home- and school-based practices, self-help groups, and advocacy programs. Supporting Families of Children with Developmental Disabilities is an important tool for moving the disability field forward for future research, practice, and social policy.
Book Synopsis Family Futures Planning by : Elizabeth J. DeBrine
Download or read book Family Futures Planning written by Elizabeth J. DeBrine and published by . This book was released on 2002 with total page 40 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Building and Evaluating Family Support Initiatives by : Carl J. Dunst
Download or read book Building and Evaluating Family Support Initiatives written by Carl J. Dunst and published by Brookes Publishing Company. This book was released on 1993 with total page 340 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This enlightening reference details the results of an extensive national study of federal and local policies and practices for the families of persons with disabilities. Beginning with a description of the key elements of family support initiatives and the characteristics of support programs, this probing text defines the goal of family support initiatives and explores how the relationship between beliefs and practices effects the achievement of that goal" -- Back cover.
Author :Illinois. Governor's Planning Council on Developmental Disabilities Publisher : ISBN 13 : Total Pages :84 pages Book Rating :4.:/5 (31 download)
Book Synopsis Supporting Family Care of Persons who are Developmentally Disabled by : Illinois. Governor's Planning Council on Developmental Disabilities
Download or read book Supporting Family Care of Persons who are Developmentally Disabled written by Illinois. Governor's Planning Council on Developmental Disabilities and published by . This book was released on 1987 with total page 84 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Family Support written by and published by . This book was released on 1991 with total page 16 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Americans with Developmental Disabilities by : Barbara Wright
Download or read book Americans with Developmental Disabilities written by Barbara Wright and published by National Conference of State. This book was released on 1991 with total page 48 pages. Available in PDF, EPUB and Kindle. Book excerpt: This Task Force report offers recommendations to state legislatures in the following policy areas: early intervention, family support, transition services, community living, supported employment, and funding for persons with developmental disabilities. Stressed is a consumer orientation which focuses on individual and family strengths and needs. For each policy area the report provides background information including why legislators should be concerned, federal activities, and state activities as well as the specific Task Force recommendations for state actions. Major recommendations in each policy area include: establish a statewide collaborative system of intervention services; create and fund family support programs for families who provide care at home for their disabled children; designate a lead agency to coordinate activities needed for a transition program for young people with developmental disabilities; increase resources for typical community residences and support services tailored to individual needs; develop strong public-private partnerships to encourage the employment of people with developmental disabilities; and develop financial goals for community services and support systems for this population. Appendixes include a statement by the National Conference of State Legislatures; a table giving state fiscal efforts in this area; and a list of 19 organizational resources. Footnotes document the report's findings and a list of acronyms is provided. (DB)
Author :United States. Congress. Senate. Committee on Labor and Human Resources. Subcommittee on Disability Policy Publisher : ISBN 13 : Total Pages :56 pages Book Rating :4.3/5 (91 download)
Book Synopsis Family Support for Families of Children with Disabilities by : United States. Congress. Senate. Committee on Labor and Human Resources. Subcommittee on Disability Policy
Download or read book Family Support for Families of Children with Disabilities written by United States. Congress. Senate. Committee on Labor and Human Resources. Subcommittee on Disability Policy and published by . This book was released on 1994 with total page 56 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Serving Children with Disabilities by : Laudan Y. Aron
Download or read book Serving Children with Disabilities written by Laudan Y. Aron and published by The Urban Insitute. This book was released on 1996 with total page 212 pages. Available in PDF, EPUB and Kindle. Book excerpt: A revised version of the report submitted to the National Commission on Childhood Disability, which was established to review the assistance given to children with disabilities under the Supplemental Security Income (SSI). The commission was releasing its findings and recommendations as the book went to print. Overviews the programs generally and the principles behind them, then details specific programs such as SSI, Medicaid, special education, block grants, Head Start, and mental health and family support programs. Includes over 40 pages of data. No index. Annotation copyright by Book News, Inc., Portland, OR
Book Synopsis Meeting the Needs of Children with Disabilities by : Laudan Y. Aron
Download or read book Meeting the Needs of Children with Disabilities written by Laudan Y. Aron and published by The Urban Insitute. This book was released on 2007 with total page 144 pages. Available in PDF, EPUB and Kindle. Book excerpt: "The complexity of government programs sometimes makes it difficult for children with disabilities to get the benefits they need. This can impede their health and development. This book suggests ways to improve the system. Its main focus on the three largest programs: special education, Supplemental Security Income, and Medicaid"--Provided by publisher.
Book Synopsis Prevention Science and Research in Intellectual and Developmental Disabilities by :
Download or read book Prevention Science and Research in Intellectual and Developmental Disabilities written by and published by Academic Press. This book was released on 2021-11-22 with total page 314 pages. Available in PDF, EPUB and Kindle. Book excerpt: Prevention Science and Research in Intellectual and Developmental Disabilities, Volume 61 highlights the WHOs emphasis on the importance of adopting a public health approach. Chapters in the book include A Prevention Science Approach to Promoting Health for Those with Developmental Disabilities, From Surviving to Thriving: A New Conceptual Model to Advance Interventions to Support People with FASD Across the Lifespan, Disability-related Abuse in People with Intellectual and Developmental Disabilities: Considerations Across the Lifespan, Two Sides of the Same Coin: A Qualitative Study of Multiple Stakeholder Perspectives on Factors Affecting Implementation of Evidence-Based Practices for Children with Autism in Elementary Schools, and more. Other topics discussed include Family-Focused Interventions as Prevention and Early Intervention of Behavioral Problems in Children with Autism Spectrum Disorder, Body weight improvements associated with nutritional intervention for adults with IDD living in group homes: A randomized controlled trial, Lifestyle Intervention Adaptation to Promote Healthy Eating and Physical Activity of Youth with Intellectual and Developmental Disability, Cultural Adaptations of the Parents Taking Action Program for Youth with Autism Spectrum Disorder, and more. Includes a framework for integrating a prevention science approach into IDD research Provides examples of prevention science research with IDD populations Illustrates how some are implementing and adapting preventive interventions for those with IDD
Book Synopsis Families of Children with Developmental Disabilities by : David W. Carroll
Download or read book Families of Children with Developmental Disabilities written by David W. Carroll and published by . This book was released on 2015-05-09 with total page 251 pages. Available in PDF, EPUB and Kindle. Book excerpt: Parents of children with disabilities confront a number of challenges and may be at risk for depressive or trauma-related symptoms. Changes in family roles and routines can cause stress for parents, siblings, and extended family alike as they confront multiple issues, including behavioral problems and frequent healthcare needs. Despite such challenges, many families derive a sense of meaning from facing their difficulties in a positive way. This book surveys the most recent empirical research on families of children with disabilities and provides guidelines and strategies for the developmental and family psychologists who support these clients. The book follows a developmental progression, first examining the immediate effects that a child's disability can have on his or her family and looking at the changes that occur as the child grows and faces new challenges. In doing so, the author examines studies employing a variety of methodologies, including quantitative research, meta-analyses, and qualitative methods such as narrative analysis. The book also describes cognitive behavioral interventions and programs that train parents to more effectively manage child behavioral problems and thereby improve family well-being.
Book Synopsis Controversial Therapies for Developmental Disabilities by : John W. Jacobson
Download or read book Controversial Therapies for Developmental Disabilities written by John W. Jacobson and published by CRC Press. This book was released on 2005-01-15 with total page 537 pages. Available in PDF, EPUB and Kindle. Book excerpt: One of the largest and most complex human services systems in Western nations has evolved to address the needs of people with developmental disabilities. In the U.S., for example, school budgets are stretched thin by legally mandated special education, and billions of Medicaid dollars annually are consumed by residential and professional services to this population. The temptation of a quick fix is strong. Many parents desperately seek the latest ideas and place pressure on program administrators, who often are not trained to think critically about the evidence base for intervention efforts. The problems of people with developmental disabilities have historically been targeted by a wide range of professionals who rely on clinical experience and intuition and do not submit their claims to the tests of scientific research. Professional entrepreneurs have energetically promoted their treatments to a public perhaps too trustful of those with credentials. Thus, families and their children are buffeted by reforms founded on belief and ideologically driven management. Services fluctuate with the currents of social movements and rapidly shifting philosophies of care as policymakers and providers strive for increased responsiveness and individualization. These forces affect not only where and how, but how well people are served. Too often, services are less effective than they could be, or worse, damaging to personal growth and quality of life. Many treatments are based on poorly understood or even disproven approaches. What approaches to early intervention, education, therapy, and remediation really help those with mental retardation and developmental disabilities improve their functioning and adaptation? And what approaches represent wastes of time, effort, and resources? This book brings together leading behavioral scientists and practitioners to focus light on the major controversies surrounding these questions. The authors review the origins, perpetuation, and resistance to scrutiny of questionable practices, and offer a clear rationale for appraising the quality of services. In an era of increasing accountability, no one with a professional stake in services to individuals with mental retardation and developmental disabilities can afford not to read this book.
Author :Connecticut. General Assembly. Developmental Disabilities Work Group Publisher : ISBN 13 : Total Pages :10 pages Book Rating :4.:/5 (1 download)
Book Synopsis Findings and Recommendations to Improve Care for Children with Developmental Disabilities and Their Families by : Connecticut. General Assembly. Developmental Disabilities Work Group
Download or read book Findings and Recommendations to Improve Care for Children with Developmental Disabilities and Their Families written by Connecticut. General Assembly. Developmental Disabilities Work Group and published by . This book was released on 2017 with total page 10 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Improving Family Support by : Ohio Family Support Council
Download or read book Improving Family Support written by Ohio Family Support Council and published by . This book was released on 2007 with total page 19 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Quality Enhancement in Developmental Disabilities by : Valerie J. Bradley
Download or read book Quality Enhancement in Developmental Disabilities written by Valerie J. Bradley and published by Brookes Publishing Company. This book was released on 2003 with total page 368 pages. Available in PDF, EPUB and Kindle. Book excerpt: As person-centered services and supports become more prevalent, people with disabilities are enjoying more choices and opportunities - making it challenging to ensure the quality of every service offered. This timely book helps meet that challenge. Diverse contributors, including researchers, care providers, policy-makers, self-advocates, and family members, combine their expertise to help readers understand the changed expectations of people with disabilities and their families - and the resulting challenges to quality enhancement clarify the roles of Medicaid and the Centers for Medicare and Medicaid Services address health and safety issues, including investigation of abuse, neglect, and death design databases that track outcomes and target areas for service improvement translate quality information into reliable quality enhancement approaches manage staffing challenges like recruitment, retention, and professional development consider future recommendations and policy directions Building on Bradley & Bersani's Quality Assurance for Individuals with Developmental Disabilities, this important resource clarifies the shift toward self-determination and individually tailored supports - and shows professionals in the human services field how to enhance service quality in this rapidly changing world.
Book Synopsis Health Matters for People with Developmental Disabilities by : Beth Marks
Download or read book Health Matters for People with Developmental Disabilities written by Beth Marks and published by Brookes Publishing Company. This book was released on 2010 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: -assess individual and organizational needs --
