Respite Care And Marital Quality In Parents Of Children With Down Syndrome

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Respite Care and Marital Quality in Parents of Children with Down Syndrome

Author : Michelle Norton
Publisher :
ISBN 13 :
Total Pages : 88 pages
Book Rating : 4.:/5 (975 download)

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Book Synopsis Respite Care and Marital Quality in Parents of Children with Down Syndrome by : Michelle Norton

Download or read book Respite Care and Marital Quality in Parents of Children with Down Syndrome written by Michelle Norton and published by . This book was released on 2015 with total page 88 pages. Available in PDF, EPUB and Kindle. Book excerpt: Parents of a child with a disability are at greater risk than other couples for having higher stress, adjustment difficulties, and lower marital quality. Respite care has been shown to reduce stress in parents of children with disabilities. This study focused on parents who have a child with Down syndrome and their reported marital quality and respite care received. One hundred and twelve couples, each consisting of a mother and a father who lived with their child with Down syndrome, completed questionnaires included the Revised Dyadic Adjustment Scale, Experience in Close Relationships Questionnaire, Daily Hassles and Uplifts Scale, and a respite questionnaire. Results were mixed. Respite care did not predict marital quality for either wives or husbands. However, respite hours was related to wife stress, which was in turn related to wife marital quality. Respite hours was also related to husband stress, which was related to husband marital quality. In addition, wife uplifts was directly related to wife marital quality and to husband marital quality. Husband uplifts was related to husband marital quality. While not directly predicting marital quality, respite care was indirectly related to increases in marital quality through stress. Therefore, it is important that respite care be accessible and provided to parents who have a child with Down syndrome. Recommendations for policy makers and researchers are offered.

Associations Among Respite Care, Uplifts, Stress, and Marital Quality of Parents of Children with Autism Spectrum Disorder and Down Syndrome

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Author : Jamie Kaye Easler
Publisher :
ISBN 13 :
Total Pages : 48 pages
Book Rating : 4.:/5 (975 download)

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Book Synopsis Associations Among Respite Care, Uplifts, Stress, and Marital Quality of Parents of Children with Autism Spectrum Disorder and Down Syndrome by : Jamie Kaye Easler

Download or read book Associations Among Respite Care, Uplifts, Stress, and Marital Quality of Parents of Children with Autism Spectrum Disorder and Down Syndrome written by Jamie Kaye Easler and published by . This book was released on 2016 with total page 48 pages. Available in PDF, EPUB and Kindle. Book excerpt: This study compared the relationships among respite care, uplifts, stress, and marital quality across two different groups of caregivers—102 heterosexual married couples with children with autism spectrum disorder (ASD) and 111 heterosexual married couples with children with Down syndrome (DS). This study also investigated if the effect of respite care on stress and marital quality varied as a function of the amount of uplifts these caregivers experienced. Participants completed self-report surveys. Three two-group Actor Partner Interdependence Models were estimated to calculate the direct, indirect, and partner-effects among these variables. Respite care was not related to stress for either groups of parents, but it was positively associated with husband and wife marital quality for parents of children with ASD. Uplifts were negatively associated with stress and positively associated with marital quality for both husbands and wives with children with ASD, but only for wives with children with DS. Furthermore, when husbands and wives with children with ASD reported more weekly respite hours and daily uplifts, wives tended to report more daily stress. However, as husbands and wives reported less weekly respite care and more daily uplifts, wives tended to report less daily stress. Implications for these findings are discussed.

Families and Their Children with Down's Syndrome

Author : Elizabeth A. Byrne
Publisher : Psychology Press
ISBN 13 : 0415006082
Total Pages : 168 pages
Book Rating : 4.4/5 (15 download)

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Book Synopsis Families and Their Children with Down's Syndrome by : Elizabeth A. Byrne

Download or read book Families and Their Children with Down's Syndrome written by Elizabeth A. Byrne and published by Psychology Press. This book was released on 1988 with total page 168 pages. Available in PDF, EPUB and Kindle. Book excerpt: The authors present research based on interviews with families in the Manchester Down's Syndrome Cohort given to professionals involved in the welfare of children with Down's Syndrome or in the provision of community care and support for their families.

Keys to Parenting a Child with Down Syndrome

Author : Marlene Targ Brill
Publisher :
ISBN 13 : 9780812014587
Total Pages : 210 pages
Book Rating : 4.0/5 (145 download)

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Book Synopsis Keys to Parenting a Child with Down Syndrome by : Marlene Targ Brill

Download or read book Keys to Parenting a Child with Down Syndrome written by Marlene Targ Brill and published by . This book was released on 1993 with total page 210 pages. Available in PDF, EPUB and Kindle. Book excerpt: Offers parents and guardians of these children sound advice on managing healthcare, dealing with siblings, coping with finances, and choosing education, recreation, adult living, and employment options.

Issues for Families with Children with Down Syndrome

Author : Sue Buckley
Publisher : DSE Enterprises
ISBN 13 : 1903806267
Total Pages : 46 pages
Book Rating : 4.9/5 (38 download)

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Book Synopsis Issues for Families with Children with Down Syndrome by : Sue Buckley

Download or read book Issues for Families with Children with Down Syndrome written by Sue Buckley and published by DSE Enterprises. This book was released on 2002 with total page 46 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Families Child Downs Syndrome

Author : Elizabeth Byrne
Publisher : Routledge
ISBN 13 : 1134987188
Total Pages : 168 pages
Book Rating : 4.1/5 (349 download)

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Book Synopsis Families Child Downs Syndrome by : Elizabeth Byrne

Download or read book Families Child Downs Syndrome written by Elizabeth Byrne and published by Routledge. This book was released on 2002-01-08 with total page 168 pages. Available in PDF, EPUB and Kindle. Book excerpt: First published in 1988. Routledge is an imprint of Taylor & Francis, an informa company.

Adaptive Behavior Strategies for Individuals with Intellectual and Developmental Disabilities

Author : Russell Lang
Publisher : Springer Nature
ISBN 13 : 3030664414
Total Pages : 235 pages
Book Rating : 4.0/5 (36 download)

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Book Synopsis Adaptive Behavior Strategies for Individuals with Intellectual and Developmental Disabilities by : Russell Lang

Download or read book Adaptive Behavior Strategies for Individuals with Intellectual and Developmental Disabilities written by Russell Lang and published by Springer Nature. This book was released on 2021-04-29 with total page 235 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book examines strategies for teaching adaptive behavior across the lifespan to individuals with intellectual and developmental disabilities who regularly experience difficulty learning the skills necessary for daily living. It details evidence-based practices for functional life skills, ranging from teaching such basic hygiene as bathing, brushing teeth, and dressing to more complex skills, including driving. In addition, the volume describes interventions relating to recreation, play, and leisure as well as those paramount for maintaining independence and safety in community settings (e.g., abduction prevention skills for children). The book details existing evidence-based practices as well as how to perform the interventions. Key areas of coverage include: Basic hygiene as bathing, brushing teeth, and dressing. Advanced, complex skills, including driving, recreation, play, and leisure. Skills to maintain independence and safety in community settings, including abduction prevention skills for children. Teaching new technology skills, such as using mobile telephones and apps as well as surfing the web. Training caregivers to promote and support adaptive behavior. Use of evidence-based practices for teaching and supporting adaptive behavior for individuals with intellectual disabilities and autism. Adaptive Behavior Strategies for Individuals with Intellectual and Developmental Disabilities is an essential reference for researchers, professors, and graduate students as well as clinicians, therapists, and other scientist-practitioners in developmental psychology, behavioral therapy/rehabilitation, social work, clinical child and school psychology, child and adolescent psychiatry, pediatrics, and special education.

The Oxford Handbook of Nonsuicidal Self-Injury

Author : Elizabeth Lloyd-Richardson
Publisher : Oxford University Press
ISBN 13 : 0197611273
Total Pages : 1297 pages
Book Rating : 4.1/5 (976 download)

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Book Synopsis The Oxford Handbook of Nonsuicidal Self-Injury by : Elizabeth Lloyd-Richardson

Download or read book The Oxford Handbook of Nonsuicidal Self-Injury written by Elizabeth Lloyd-Richardson and published by Oxford University Press. This book was released on 2024-05-06 with total page 1297 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Oxford Handbook of Nonsuicidal Self-Injury is a compendium of up-to-date research and knowledge of topics germane to the field of nonsuicidal self-injury (NSSI). Edited by renowned scholars Elizabeth E. Lloyd-Richardson, Imke Baetens, and Janis L. Whitlock, the handbook brings together cutting-edge research from a group of internationally distinguished scholars. It covers a wide array of topics including epidemiology, function, neurophysiological processes, lived experience, and intervention and prevention approaches. This comprehensive text will serve as a go-to guide for scholars, clinicians, and anyone with interest in understanding, treating, and preventing self-injury.

Parenting Matters

Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309388570
Total Pages : 525 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Parenting Matters by : National Academies of Sciences, Engineering, and Medicine

Download or read book Parenting Matters written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-21 with total page 525 pages. Available in PDF, EPUB and Kindle. Book excerpt: Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.

Babies with Down Syndrome

Author : Karen Stray-Gundersen
Publisher :
ISBN 13 : 9780933149649
Total Pages : 356 pages
Book Rating : 4.1/5 (496 download)

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Book Synopsis Babies with Down Syndrome by : Karen Stray-Gundersen

Download or read book Babies with Down Syndrome written by Karen Stray-Gundersen and published by . This book was released on 1995 with total page 356 pages. Available in PDF, EPUB and Kindle. Book excerpt: Guide to the issues faced by the parents and families of children with Down Syndrome.

Clinical Perspectives in the Management of Down Syndrome

Author : Susan van Duyne
Publisher : Springer Science & Business Media
ISBN 13 : 1461396441
Total Pages : 241 pages
Book Rating : 4.4/5 (613 download)

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Book Synopsis Clinical Perspectives in the Management of Down Syndrome by : Susan van Duyne

Download or read book Clinical Perspectives in the Management of Down Syndrome written by Susan van Duyne and published by Springer Science & Business Media. This book was released on 2012-12-06 with total page 241 pages. Available in PDF, EPUB and Kindle. Book excerpt: The management of and attitudes toward children and adults with Down syndrome have undergone considerable changes in the course of the condi tion's long history (Zellweger, 1977, 1981, Zellweger & Patil, 1987). J. E. D. Esquirol (1838) and E. Seguin (1846) were probably the first physicians to witness the condition without using currently accepted diagnostic designa tions. Seguin coined the terms furfuraceus or lowland cretinism in contradis tinction to the goiterous cretinism endemic at that time in the Swiss Alps. Esquirol, as well as Seguin, had a positive attitude toward persons who were mentally ill or mentally subnormal. Esquirol pioneered a more humane treatment in mental institutions and Seguin created the first homes in France, and later in the United States, aimed at educating persons who were mentally subnormal. The term mongolian idiocy was coined by J. H. L. Down in England (1866). The term is misleading in several respects: (1) Down identified the epicanthic folds seen in many children with Down syndrome with the additional skin fold in the upper lid occurring particularly in people of Oriental (Mongolian) descent; and (2) Down also erred by assuming that Down syndrome represented regression to an ethnic variant of lower cultural standing. Such an interpretation might have been understandable at a time when the myth of Anglo-Saxon superiority was widely accepted by the British. Charles Darwin's then highly acclaimed theory of origin of the species may have contributed to such a concept.

How to Build a Thriving Marriage as You Care for Children with Disabilities

Author : Kristin Faith Evans, MA MS LMSW
Publisher : Baker Books
ISBN 13 : 149344574X
Total Pages : 196 pages
Book Rating : 4.4/5 (934 download)

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Book Synopsis How to Build a Thriving Marriage as You Care for Children with Disabilities by : Kristin Faith Evans, MA MS LMSW

Download or read book How to Build a Thriving Marriage as You Care for Children with Disabilities written by Kristin Faith Evans, MA MS LMSW and published by Baker Books. This book was released on 2024-05-14 with total page 196 pages. Available in PDF, EPUB and Kindle. Book excerpt: Building a vibrant and joyful marriage is always a challenge. When you add the stresses inherent in parenting children with disabilities, it becomes both more difficult and more critical. Once on the brink of divorce, Kristin and Todd Evans uncovered the unique set of skills critical for growing a fulfilling relationship amid the extraordinary challenges of caring for their two children with special needs. Now they are sharing their hard-won discoveries and inspiring marriage story with you. Weaving together insights from Scripture, research, and clinical and personal experience, Kristin and Todd offer you the practical relationship tools you need to save, strengthen, and enjoy your marriage. They help you · identify your unique needs · assess your strengths and weaknesses · set your priorities · develop healthy stress management skills · deepen your communication and connection · tackle problems as a team · find ways to rest and recharge · nurture sexual intimacy · build a strong support network · and so much more

Far From the Tree

Author : Andrew Solomon
Publisher : Simon and Schuster
ISBN 13 : 1439183104
Total Pages : 976 pages
Book Rating : 4.4/5 (391 download)

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Book Synopsis Far From the Tree by : Andrew Solomon

Download or read book Far From the Tree written by Andrew Solomon and published by Simon and Schuster. This book was released on 2012-11-13 with total page 976 pages. Available in PDF, EPUB and Kindle. Book excerpt: * Selected as One of the Best Books of the 21st Century by The New York Times * * WINNER of the National Book Critics Circle Award * Books for a Better Life Award * The New York Times Book Review’s 10 Best Books of the Year * This masterpiece by the National Book Award–winning author of The Noonday Demon features stories of parents who not only learn to deal with their exceptional children, but also find profound meaning in doing so—“a brave, beautiful book that will expand your humanity” (People). Solomon’s startling proposition in Far from the Tree is that being exceptional is at the core of the human condition—that difference is what unites us. He writes about families coping with deafness, dwarfism, Down syndrome, autism, schizophrenia, or multiple severe disabilities; with children who are prodigies, who are conceived in rape, who become criminals, who are transgender. While each of these characteristics is potentially isolating, the experience of difference within families is universal, and Solomon documents triumphs of love over prejudice in every chapter. All parenting turns on a crucial question: to what extent should parents accept their children for who they are, and to what extent they should help them become their best selves. Drawing on ten years of research and interviews with more than three hundred families, Solomon mines the eloquence of ordinary people facing extreme challenges. Elegantly reported by a spectacularly original and compassionate thinker, Far from the Tree explores how people who love each other must struggle to accept each other—a theme in every family’s life.

Handbook of Clinical Child Psychology

Author : Johnny L. Matson
Publisher : Springer Nature
ISBN 13 : 3031249267
Total Pages : 1109 pages
Book Rating : 4.0/5 (312 download)

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Book Synopsis Handbook of Clinical Child Psychology by : Johnny L. Matson

Download or read book Handbook of Clinical Child Psychology written by Johnny L. Matson and published by Springer Nature. This book was released on 2023-06-10 with total page 1109 pages. Available in PDF, EPUB and Kindle. Book excerpt: This comprehensive handbook explores the many issues affecting children’s physical and mental health. Its coverage spans a broad range of topics, exploring the history and foundations of clinical child psychology as well as the discipline’s theories, research base, ethical and legal implications, and diagnostic systems, including the NIMH’s Research Domain Criteria (RDoC). The handbook examines family risk factors for children (e.g., parental stress, divorce, and depression) and provides leading-edge reviews of cognitive variables (e.g., theories of memory, executive function, theories of intelligence, theory of mind and cognitive tempo). In addition, it describes methods of assessment, including checklists, interviews, and methods of treatment (e.g., cognitive behavior therapy, mindfulness, and family therapy). Chapters focus on assessment of specific diagnostic categories, such as depression, anxiety, selective mutism, ADHD, and pediatric topics, including chronic pain, childhood cancer, childhood obesity, and toilet training. Finally, the book addresses such emerging issues as gender diversity, social justice, cyberbullying, internet gaming disorder and the impact of COVID-19. Key areas of coverage include: Foundations of clinical child psychology. Cognition and clinical child psychology. Testing, assessment, and treatment methods in child psychology. Neurodevelopmental and pediatric disorders in childhood. Assessment and treatments for challenging behaviors in children. Assessment and treatments for psychopathologies in children. The Handbook of Clinical Child Psychology is a must-have resource for researchers, professors, graduate students, clinicians, therapists, and professionals in clinical child and school psychology, child and adolescent psychiatry, social work, public health, pediatrics as well as special education, developmental psychology, nursing, and all interrelated disciplines.

The Parent's Guide to Down Syndrome

Author : Jen Jacob
Publisher : Simon and Schuster
ISBN 13 : 1440592918
Total Pages : 204 pages
Book Rating : 4.4/5 (45 download)

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Book Synopsis The Parent's Guide to Down Syndrome by : Jen Jacob

Download or read book The Parent's Guide to Down Syndrome written by Jen Jacob and published by Simon and Schuster. This book was released on 2015-12-04 with total page 204 pages. Available in PDF, EPUB and Kindle. Book excerpt: Help your child succeed and thrive! As a parent of a child diagnosed with Down syndrome, you may be feeling unsure of what to do next or where your child's journey will take you. In this book, authors Jen Jacob and Mardra Sikora share their experiences and guide you through life with Ds with expert advice from diagnosis to adulthood. Each page teaches you ways to support your child through major milestones; nurture their development; and ensure that they succeed behaviorally, socially, and cognitively. You'll also find valuable information on: Sharing the news with loved ones Transitioning into primary school Developing your child's social skills Discussing future opportunities, including employment and housing options With The Parent's Guide to Down Syndrome, you will have the tools you need to raise a happy, healthy, and thriving child.

Links Between Family-provider Relationships and Well-being in Families with Children who Have Down Syndrome

Author : Marcia Van Riper
Publisher :
ISBN 13 :
Total Pages : 334 pages
Book Rating : 4.:/5 (89 download)

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Book Synopsis Links Between Family-provider Relationships and Well-being in Families with Children who Have Down Syndrome by : Marcia Van Riper

Download or read book Links Between Family-provider Relationships and Well-being in Families with Children who Have Down Syndrome written by Marcia Van Riper and published by . This book was released on 1995 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Disability and U.S. Politics

Author : Dana Lee Baker
Publisher : Bloomsbury Publishing USA
ISBN 13 : 1440839239
Total Pages : 575 pages
Book Rating : 4.4/5 (48 download)

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Book Synopsis Disability and U.S. Politics by : Dana Lee Baker

Download or read book Disability and U.S. Politics written by Dana Lee Baker and published by Bloomsbury Publishing USA. This book was released on 2017-01-16 with total page 575 pages. Available in PDF, EPUB and Kindle. Book excerpt: More than 1 billion people worldwide have a disability, and they are all affected by politics. This two-volume work explores key topics at the heart of disability policy, such as voting, race, gender, age, health care, social security, transportation, abuse, and the environment. Disability policy is no longer an area that can be adequately addressed within major areas of public policy such as welfare, health, labor, and education. Disability has become widely acknowledged in recent decades, partly because of the increasing number of disabled citizens across all demographic populations. Advocates argue that diversity of all kinds deserves recognition and accommodation. This set examines policies targeting disability to provide a multifaceted description of the political participation of people with disabilities as well as disability policy development in the United States. The first volume focuses on political participation and voting issues, and the second volume covers disability public policy. In these two volumes, numerous scholars and experts in the social sciences and humanities explore timely topics that are key to disability policy questions, including activism, voting, race, gender, age, health care, social security, civil rights, abuse, the environment, and even death. Readers will better understand the challenges that policymakers face in grappling with controversies over issues of social engineering and public policy, often attempting to reconcile majority experience with minority rights. The chapters analyze the history of disability politics, describe the disability policy infrastructure as it currently exists in the United States, and provide insight into current disability-related controversies.