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Respite And Well Being Among Families With Children With Autism Spectrum Disorder
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Book Synopsis Respite and Well-being Among Families With Children With Autism Spectrum Disorder by : Alyssa Ann Soohoo
Download or read book Respite and Well-being Among Families With Children With Autism Spectrum Disorder written by Alyssa Ann Soohoo and published by . This book was released on 2019 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Together, the study points to the need for future studies to investigate a broad range of types of respite programs for individuals with ASD and their families.
Book Synopsis Stress and Coping in Autism by : M. Grace Baron
Download or read book Stress and Coping in Autism written by M. Grace Baron and published by Oxford University Press, USA. This book was released on 2006 with total page 484 pages. Available in PDF, EPUB and Kindle. Book excerpt: Publisher description
Book Synopsis Parenting Across the Autism Spectrum by : Maureen Morrell
Download or read book Parenting Across the Autism Spectrum written by Maureen Morrell and published by Jessica Kingsley Publishers. This book was released on 2006-04-27 with total page 222 pages. Available in PDF, EPUB and Kindle. Book excerpt: Maureen F. Morrell and Ann Palmer are raising two very different children: Justin, a whirlwind of activity and mood swings, who is supervised in a residential farm community, and Eric, quiet and passive, who lives independently at college. The authors give an account of the striking similarities as well as the stark differences in their experiences of parenting children at opposite extremes of the autism spectrum. The two mothers speak openly about their children's diagnosis and early childhood through to adolescence, young adulthood and the day they leave home. They give a moving account of the challenges they faced and the surprising consolations they found along their sons' very different paths in life. Through their friendship and two decades of shared experiences of parenting an ASD child, each has gained a clear understanding of her own strengths and limitations, as well as those of her child. Parenting Across the Autism Spectrum offers a personal perspective and practical guidance for parents at the start of their journey with autism, especially those whose children are newly diagnosed. It also provides useful insights for professionals working with individuals across the autism spectrum and their families. The book was elected the 2007 Autism Society of America's Outstanding Literary Work of the Year.
Book Synopsis Systemically Treating Autism by : Brie Turns
Download or read book Systemically Treating Autism written by Brie Turns and published by Routledge. This book was released on 2019-02-18 with total page 403 pages. Available in PDF, EPUB and Kindle. Book excerpt: Systemically Treating Autism provides a unique resource for family therapists and other mental health professionals who want to increase their understanding of families with children with autism spectrum disorder (ASD). Through a combination of research, practical interventions, and case vignettes, this text covers the diagnosis of ASD, how ASD impacts the family, systemic theories that can be used when treating families with children with ASD, spirituality and cultural dynamics, and collaboration with other professionals. Providing a systemic framework for conceptualizing a diagnosis that is typically discussed from an individual perspective, this book guides mental health clinicians toward a better understanding of how they can help the entire family unit.
Book Synopsis Sharing Information about Your Child with Autism Spectrum Disorder by : Beverly Vicker
Download or read book Sharing Information about Your Child with Autism Spectrum Disorder written by Beverly Vicker and published by AAPC Publishing. This book was released on 2007 with total page 248 pages. Available in PDF, EPUB and Kindle. Book excerpt: Offers tools for respite workers to safely and reliably address your child's needs during your absence. This book helps parents decide what information to share with substitute caregivers and how best to organize it so as to make it easy to use and locate when needed.
Book Synopsis Associations Among Respite Care, Uplifts, Stress, and Marital Quality of Parents of Children with Autism Spectrum Disorder and Down Syndrome by : Jamie Kaye Easler
Download or read book Associations Among Respite Care, Uplifts, Stress, and Marital Quality of Parents of Children with Autism Spectrum Disorder and Down Syndrome written by Jamie Kaye Easler and published by . This book was released on 2016 with total page 48 pages. Available in PDF, EPUB and Kindle. Book excerpt: This study compared the relationships among respite care, uplifts, stress, and marital quality across two different groups of caregivers—102 heterosexual married couples with children with autism spectrum disorder (ASD) and 111 heterosexual married couples with children with Down syndrome (DS). This study also investigated if the effect of respite care on stress and marital quality varied as a function of the amount of uplifts these caregivers experienced. Participants completed self-report surveys. Three two-group Actor Partner Interdependence Models were estimated to calculate the direct, indirect, and partner-effects among these variables. Respite care was not related to stress for either groups of parents, but it was positively associated with husband and wife marital quality for parents of children with ASD. Uplifts were negatively associated with stress and positively associated with marital quality for both husbands and wives with children with ASD, but only for wives with children with DS. Furthermore, when husbands and wives with children with ASD reported more weekly respite hours and daily uplifts, wives tended to report more daily stress. However, as husbands and wives reported less weekly respite care and more daily uplifts, wives tended to report less daily stress. Implications for these findings are discussed.
Book Synopsis Parent Health Outcomes and the Role of Parent Stress and Family Resilience in Families of Children with Autism Spectrum Disorder by : Trenton A. Call
Download or read book Parent Health Outcomes and the Role of Parent Stress and Family Resilience in Families of Children with Autism Spectrum Disorder written by Trenton A. Call and published by . This book was released on 2021 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The purpose of this study was to investigate the relationships between children with autism spectrum disorder (ASD) with co-occurring internalizing problems or externalizing behaviors and parents mental and physical health. Furthermore, this study investigated the roles parent stress, family communication and beliefs had on those relationships. Participants included 2091 parents reporting on their child's internalizing problems or externalizing behaviors, their own individual stress and their family communication and beliefs. Results captured significant negative direct effects between child internalizing problems and parents' mental health and child externalizing behaviors and parents' physical health. Furthermore, results captured two significant mediations with parent stress mediating the relationships between child internalizing problems and externalizing behaviors and parent mental health. Results indicated family communication and family beliefs did not moderate the relationships between child internalizing problems and externalizing behaviors and parent stress.
Book Synopsis A Comprehensive Book on Autism Spectrum Disorders by : Mohammad-Reza Mohammadi
Download or read book A Comprehensive Book on Autism Spectrum Disorders written by Mohammad-Reza Mohammadi and published by BoD – Books on Demand. This book was released on 2011-09-15 with total page 491 pages. Available in PDF, EPUB and Kindle. Book excerpt: The aim of the book is to serve for clinical, practical, basic and scholarly practices. In twentyfive chapters it covers the most important topics related to Autism Spectrum Disorders in the efficient way and aims to be useful for health professionals in training or clinicians seeking an update. Different people with autism can have very different symptoms. Autism is considered to be a "spectrum" disorder, a group of disorders with similar features. Some people may experience merely mild disturbances, while the others have very serious symptoms. This book is aimed to be used as a textbook for child and adolescent psychiatry fellowship training and will serve as a reference for practicing psychologists, child and adolescent psychiatrists, general psychiatrists, pediatricians, child neurologists, nurses, social workers and family physicians. A free access to the full-text electronic version of the book via Intech reading platform at http://www.intechweb.org is a great bonus.
Book Synopsis Parenting With Patience by : Mierzwinski Marcin Kazimierz
Download or read book Parenting With Patience written by Mierzwinski Marcin Kazimierz and published by Mierzwinski Marcin Kazimierz. This book was released on 2024-04-02 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: In "Parenting With Patience: Loving And Supporting A Child With Autism," the author takes readers on an insightful journey through the challenges and joys of raising a child with autism. This book offers a comprehensive guide to understanding and navigating the complex world of parenting a child on the autism spectrum. With a compassionate approach, the author delves into the importance of patience, love, and unwavering support as key pillars in fostering a thriving environment for children with autism. Through personal anecdotes, the author shares touching stories that highlight the unique experiences faced by families on this journey. From the initial diagnosis to daily routines, this book provides practical advice and strategies to help parents overcome obstacles and embrace the full potential of their child. The author addresses common concerns related to communication, sensory issues, behavior management, and social interaction, offering invaluable insights and evidence-based techniques to guide parents through these challenges. "Parenting With Patience" also emphasizes the power of acceptance and self-care for parents. Recognizing the toll that parenting a child with autism can take on caregivers, the author encourages parents to prioritize their own well-being in order to provide the best support possible. By advocating for self-compassion, stress management, and seeking support systems, the author empowers parents to foster a positive and emotionally healthy environment for themselves and their child. Furthermore, the book explores how to effectively collaborate with professionals, educators, and therapists to ensure a comprehensive support system for the child. The author breaks down the different therapies available, such as speech therapy, occupational therapy, and Applied Behavior Analysis (ABA), providing guidance on how to select the right interventions for each child's unique needs. This comprehensive approach offers parents a roadmap for building a strong network of support and optimizing their child's development and opportunities for growth. Whether you are a parent, guardian, or anyone involved in the life of a child with autism, "Parenting With Patience: Loving And Supporting A Child With Autism" is an indispensable resource. With its compassionate tone, wealth of practical advice, and powerful anecdotes, this book will inspire and empower readers to embark on a journey of patience, love, and unwavering support, ensuring a brighter, more inclusive future for their child.
Book Synopsis Autism and the Stress Effect by : Theresa Hamlin
Download or read book Autism and the Stress Effect written by Theresa Hamlin and published by Jessica Kingsley Publishers. This book was released on 2015-11-21 with total page 274 pages. Available in PDF, EPUB and Kindle. Book excerpt: Presenting a revolutionary lifestyle approach for the whole family, this step-by-step guide will help you to reduce your child's stress and anxiety levels by regulating their environment, eating and nutrition, energy, and encouraging emotional self-regulation. Children with autism often experience very high stress levels in learning and social environments, which can exacerbate problem behaviors and damage their physical and emotional health. This book demonstrates that lowering stress levels through regulating a child's experiences and environments, and giving them the tools to cope when stressful situations are unavoidable, can make a huge and very positive difference to their behavior, physical health, socialisation and happiness. Brimming with exercises, recipes, tips and real-life examples, this warm and supportive guide will help you transform the life of your child with autism and benefit the whole family.
Book Synopsis Adaptive and Developmental Health Outcomes for Children with Autism Spectrum Disorder and Their Families Throughout the COVID-19 Pandemic by : Laura L. Mason
Download or read book Adaptive and Developmental Health Outcomes for Children with Autism Spectrum Disorder and Their Families Throughout the COVID-19 Pandemic written by Laura L. Mason and published by . This book was released on 2021 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Children with autism spectrum disorder (ASD) are uniquely vulnerable to any adverse effects of the coronavirus (COVID-19) pandemic due to greater healthcare needs, dependency on resources and services, and difficulty in adapting to environmental changes. Caregivers of children with autism also experience substantial stress, even under ideal conditions, and have simultaneously been negatively impacted by the pandemic based on disruptions in routines and social infrastructures that typically bolster against mental health problems. Comprising data from two studies, this dissertation reports changes throughout the pandemic regarding the adaptive and developmental health of children with autism; access and barriers to telehealth; and the emotional wellbeing of their parents, with an additional aim to determine whether clinical or sociodemographic characteristics affect outcomes. Study 1 was a secondary analysis of 3,941 parents of children with autism between the ages of 3- and 10-years-old, shared from the Simons Foundation Powering Autism Research for Knowledge (SPARK) national autism project. Study 2 consisted of primary data collected from 85 parents of children with ASD within this same age range, recruited throughout the United States. Both studies obtained direct responses from caregivers to comprehensively explore challenges presented by the COVID-19 pandemic and characterize the outcomes of children with ASD and their families. Participants were given an online battery of standardized and novel measures, administered across Baseline and Follow-Up timeframes (spanning 1–6 months in Study 1, and 3 months for Study 2). Tests of group and mean differences and regression analyses assessed relations among behavioral characteristics of the children, general experiences and concerns regarding current service delivery, and the impact of the COVID-19 outbreak on parental wellbeing, while quotes and free-response comments were reviewed descriptively for common themes. Results showed children with ASD mostly demonstrated increases in adaptive and self-care behaviors between evaluation points, yet still performed below chronological age-level. Most families faced disruption in autism services due to COVID-19, but transitioning to online/remote delivery has been possible and successful in some instances. Finally, all children and parents experienced negative mental health effects during this time, though the extent of this impact varied based on risk and/or protective factors inherent to each individual family. Results also uncovered demographic disparities in COVID-19-related stressors and outcomes, particularly for parents from a lower educational background, families who are economically disadvantaged, and those residing in smaller geographic areas. Thematic analyses revealed parent concerns surrounding finances, fear of sickness, and the overarching impacts on child development, given the shift in education, therapies, and social interaction opportunities. Positive changes frequently included increased time for family togetherness, reduced academic and social worry in children, and benefits provided by technology. These findings outline the impact of the coronavirus pandemic on the autism population and can guide efforts to maintain and promote health and development while in crisis and inform strategies to limit potential harm in future emergencies. The value of this dissertation is its qualitative and quantitative consideration of both child and caregiver, and emphasis on the importance of ASD services during this critical age of development, recommending both parent and provider training programs as the best method to ensure continuity of care.
Book Synopsis A Friend's and Relative's Guide to Supporting the Family with Autism by : Ann Palmer
Download or read book A Friend's and Relative's Guide to Supporting the Family with Autism written by Ann Palmer and published by Jessica Kingsley Publishers. This book was released on 2012 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: A guide for the family of autistic children discusses the feelings that family members are likely to experience after a child is diagnosed as well as changes that will take place in a household, and covers the condition's characteristics.
Book Synopsis The Division of Family Work Among Fathers and Mothers of Children with an Autism Spectrum Disorder by : Paula L. Ogston-Nobile
Download or read book The Division of Family Work Among Fathers and Mothers of Children with an Autism Spectrum Disorder written by Paula L. Ogston-Nobile and published by . This book was released on 2014 with total page 189 pages. Available in PDF, EPUB and Kindle. Book excerpt: [A]n often ignored aspect of parenting and family work is the responsibility-related caregiving (i.e. the monitoring, arranging, and planning) that is done to ensure that a child is cared for. Among fathers and mothers who have a child with an autism spectrum disorder (ASD), the intensity of meeting these needs is greater than for a typically developing child (e.g. additional coordination of schooling, interventions, healthcare, recreation, respite, and after-school services). As is the case for all parents, they must also attend to the demands of household labor (e.g. car maintenance, groceries, laundry, yard care), nurture their relationships (e.g. partner, friends, other family members) and find time to pursue interests outside of the home. The aim of this study was to examine parents' management of and satisfaction with the division of responsibility-related caregiving and household labor, parenting stress, the couple's relationship quality, and family functioning among parents of children with an ASD. Fathers (n = 66) and mothers (n = 104) of school-age children with an ASD responded to an online questionnaire. Most parents (mean 41.4 y.) were white (95%) and well-educated (98% had at least some college). All lived in the United States with the child and the child' s other parent. Parents provided information about their child (82% boys, mean 8.8 y.), including level of functioning. Fathers managed less responsibility-related caregiving than mothers, but they did not differ in their management of household labor. Parents were most satisfied with how the family work was shared when they managed less of it; however, when one parent always managed the work, satisfaction with the couple' s relationship was lowest and parenting stress was highest. Satisfaction with how the family work was shared was positively associated with overall family functioning. In general, parents, couples, and families fare better when the management of family work is shared between parents. Findings will further our understanding of the experience of fathers and mothers who have a child with an ASD, and may aid in our efforts to best support families affected by the autism spectrum disorders.
Book Synopsis Comprehensive Guide to Autism by : Vinood B. Patel
Download or read book Comprehensive Guide to Autism written by Vinood B. Patel and published by Springer. This book was released on 2013-10-15 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Autism is a complex multifaceted disorder affecting neurodevelopment during the early years of life and, for many, throughout the life span. Inherent features include difficulties or deficits in communication, social interaction, cognition, and interpersonal behavioral coordination, to name just a few. Autism profoundly impacts the affected individual, the family, and, in many cases, the localized communities. The increased prevalence of childhood autism has resulted in rapid developments in a wide range of disciplines in recent years. Nevertheless, despite intensive research, the cause(s) remain unresolved and no single treatment strategy is employed. To address these issues, Comprehensive Guide to Autism is an all-embracing reference that offers analyses and discussions of contemporary issues in the field of autism. The work brings together scientific material from leading experts in the field relating to a wide range of important current topics, such as the early identification and treatment of children with autism, pertinent social and behavioral studies, recent developments in genetics and immunology, the influence of diet, models of autism, and future treatment prospects. Comprehensive Guide to Autism contains essential readings for behavioral science researchers, psychologists, physicians, social workers, parents, and caregivers.
Book Synopsis Stronger Together by : Wesley Kerrebrouck
Download or read book Stronger Together written by Wesley Kerrebrouck and published by Wesley Kerrebrouck. This book was released on 2024-01-19 with total page 62 pages. Available in PDF, EPUB and Kindle. Book excerpt: To "Stronger Together: Effective Parenting Strategies for Children with Autism," a book born of a deep desire to strengthen families in the wonderful, but sometimes challenging journey of raising a child with autism. In these pages you will find not only a collection of strategies, but also a source of hope, understanding and inspiration. Every child is unique, and this is even more true for children with autism. Their way of perceiving, interacting with the world, and unique challenges require an approach to parenting that is both flexible and attuned. This book is written with this diversity in mind, recognizing that there is no "one-size-fits-all" approach. Instead, we offer a spectrum of strategies and insights that you can adapt to the needs of your own family. We begin our journey with a fundamental understanding of what autism is - and what it is not. By debunking misconceptions and exploring the spectrum of autism, we aim to lay the foundation for an empathetic and informed approach to parenting. We then dive into the core of effective parenting strategies, ranging from communication techniques to behavior management to dealing with sensory challenges. Each chapter offers practical tips, underpinned by both scientific research and the experiences of parents and experts. We also discuss the importance of self-care for parents and building a support network, which is essential for the resilience of the whole family. This book is not just about the challenges, however. It is also a celebration of the unique talents and perspectives that children with autism offer to the world. It is a story of growth, adaptability and the unexpected joys of parenthood. "Stronger Together" is written for you, the parents, caregivers and educators who want the best for your children every day. May this book be your guide and companion on your journey as you grow stronger together with your child. Let us begin this journey together, armed with knowledge, empathy and the determination to help our children flourish in their own unique colors. Welcome to "Stronger Together."
Book Synopsis Respite Care and Marital Quality by : Amber Harper
Download or read book Respite Care and Marital Quality written by Amber Harper and published by . This book was released on 2012 with total page 66 pages. Available in PDF, EPUB and Kindle. Book excerpt: Parents of children with an autism spectrum disorder (ASD) are at greater risk than other couples for having higher stress levels and lower marital quality. Respite care has been suggested as a way to help alleviate stress. This study investigated the relationship between respite care and marital quality; and the potential of mother stress and father stress as mediating variables. One hundred and one couples, each consisting of a mother and a father who lived with their child with an ASD, were given questionnaires including a respite questionnaire, Revised Dyadic Adjustment Scale, Experience in Close Relationships Questionnaire, and Daily Hassles and Uplifts Scale. Results showed that the amount of respite care was positively related to marital quality for both husbands and wives. Husband and wife stress and husband and wife uplifts mediated the relationship between respite care and marital quality for both husbands and wives, indicating these variables of stress and uplifts were processes through which respite care had an indirect effect on marital quality. Results suggest that policy makers should develop strategies for providing respite care for families with children diagnosed with an ASD.
Book Synopsis Sleep and Quality of Life Among Family Caregivers with Children who Have Autism Spectrum Disorders by : Maureen Russell
Download or read book Sleep and Quality of Life Among Family Caregivers with Children who Have Autism Spectrum Disorders written by Maureen Russell and published by . This book was released on 2014 with total page 162 pages. Available in PDF, EPUB and Kindle. Book excerpt: Autism spectrum disorder (ASD) holds potential for significantly impacting the primary caregiver and family, as well as the child with ASD. In particular, sleep problems occur frequently among children with ASD, and their poor sleep may negatively affect that of their caregivers. Health-related quality of life (HRQoL) and Family Quality of Life (FQoL) are salient indices of caregiver and family well-being. This pilot study explored associations between family caregiver sleep problems and caregiver sense of coherence (SOC) or coping on HRQoL and FQoL. Additionally, this study examined relationships between child sleep and behavior problems on caregiver sleep and well-being. Sixty-two family caregivers of children with ASD (M =7.61, range: 6-11 years old) participated in this survey study. Participants provided demographic information and completed measures of HRQoL, FQoL, caregiver sleep, SOC, parental stress, child sleep, and child behavior. Caregivers with longer sleep duration reported better mental health and better FQol. Caregivers who reported insomnia symptoms, non-restorative sleep, and insufficient sleep were more likely to report poorer mental health than caregivers who did not report these sleep disorder symptoms. A stronger caregiver SOC was associated with lower caregiver stress, better mental health, and better FQoL. Significant relationships were found between shorter caregiver sleep duration or sleep disorder symptoms (i.e., difficulty staying asleep, early morning awakening, insufficient sleep) and greater child sleep problems. Moreover, short sleep duration or insufficient sleep among caregivers was significantly associated with greater parenting stress. Notably, biological parents with Restless Legs Syndrome (RLS) had children with more restless sleep and higher rates of some behavior problems. There are a number of potential connections between sleep problems of children with ASD and sleep problems of their caregivers that are likely rooted in genetic, environmental, socio-economic, and behavioral factors. Interventions for sleep problems must address the context of the family and consider that sleep problems may be common to the caregiver and the child. The results of this study support findings from many prior studies and point to salient variables for future research and interventions to promote healthy caregiver sleep.
