Reimagining Illness

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The Invisible Kingdom

Author : Meghan O'Rourke
Publisher : Penguin
ISBN 13 : 0399573305
Total Pages : 337 pages
Book Rating : 4.3/5 (995 download)

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Book Synopsis The Invisible Kingdom by : Meghan O'Rourke

Download or read book The Invisible Kingdom written by Meghan O'Rourke and published by Penguin. This book was released on 2023-02-28 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: A NEW YORK TIMES BESTSELLER FINALIST FOR THE 2022 NATIONAL BOOK AWARD FOR NONFICTION Named one of the BEST BOOKS OF 2022 by NPR, The New Yorker, Time, and Vogue “Remarkable.” –Andrew Solomon, The New York Times Book Review "At once a rigorous work of scholarship and a radical act of empathy.”—Esquire "A ray of light into those isolated cocoons of darkness that, at one time or another, may afflict us all.” —The Wall Street Journal "Essential."—The Boston Globe A landmark exploration of one of the most consequential and mysterious issues of our time: the rise of chronic illness and autoimmune diseases A silent epidemic of chronic illnesses afflicts tens of millions of Americans: these are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier. Drawing on her own medical experiences as well as a decade of interviews with doctors, patients, researchers, and public health experts, O’Rourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color. Blending lyricism and erudition, candor and empathy, O’Rourke brings together her deep and disparate talents and roles as critic, journalist, poet, teacher, and patient, synthesizing the personal and universal into one monumental project arguing for a seismic shift in our approach to disease. The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.

Reimagining Global Health

Author : Paul Farmer
Publisher : University of California Press
ISBN 13 : 0520271998
Total Pages : 508 pages
Book Rating : 4.5/5 (22 download)

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Book Synopsis Reimagining Global Health by : Paul Farmer

Download or read book Reimagining Global Health written by Paul Farmer and published by University of California Press. This book was released on 2013-09-07 with total page 508 pages. Available in PDF, EPUB and Kindle. Book excerpt: Bringing together the experience, perspective and expertise of Paul Farmer, Jim Yong Kim, and Arthur Kleinman, Reimagining Global Health provides an original, compelling introduction to the field of global health. Drawn from a Harvard course developed by their student Matthew Basilico, this work provides an accessible and engaging framework for the study of global health. Insisting on an approach that is historically deep and geographically broad, the authors underline the importance of a transdisciplinary approach, and offer a highly readable distillation of several historical and ethnographic perspectives of contemporary global health problems. The case studies presented throughout Reimagining Global Health bring together ethnographic, theoretical, and historical perspectives into a wholly new and exciting investigation of global health. The interdisciplinary approach outlined in this text should prove useful not only in schools of public health, nursing, and medicine, but also in undergraduate and graduate classes in anthropology, sociology, political economy, and history, among others.

The Long Goodbye

Author : Meghan O'Rourke
Publisher : Penguin
ISBN 13 : 1101486554
Total Pages : 320 pages
Book Rating : 4.1/5 (14 download)

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Book Synopsis The Long Goodbye by : Meghan O'Rourke

Download or read book The Long Goodbye written by Meghan O'Rourke and published by Penguin. This book was released on 2011-04-14 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Anguished, beautifully written... The Long Goodbye is an elegiac depiction of drama as old as life." -- The New York Times Book Review From one of America's foremost young literary voices, a transcendent portrait of the unbearable anguish of grief and the enduring power of familial love. What does it mean to mourn today, in a culture that has largely set aside rituals that acknowledge grief? After her mother died of cancer at the age of fifty-five, Meghan O'Rourke found that nothing had prepared her for the intensity of her sorrow. In the first anguished days, she began to create a record of her interior life as a mourner, trying to capture the paradox of grief-its monumental agony and microscopic intimacies-an endeavor that ultimately bloomed into a profound look at how caring for her mother during her illness changed and strengthened their bond. O'Rourke's story is one of a life gone off the rails, of how watching her mother's illness-and separating from her husband-left her fundamentally altered. But it is also one of resilience, as she observes her family persevere even in the face of immeasurable loss. With lyricism and unswerving candor, The Long Goodbye conveys the fleeting moments of joy that make up a life, and the way memory can lead us out of the jagged darkness of loss. Effortlessly blending research and reflection, the personal and the universal, it is not only an exceptional memoir, but a necessary one.

Life Disrupted

Author : Laurie Edwards
Publisher : Bloomsbury Publishing USA
ISBN 13 : 0802779735
Total Pages : 289 pages
Book Rating : 4.8/5 (27 download)

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Book Synopsis Life Disrupted by : Laurie Edwards

Download or read book Life Disrupted written by Laurie Edwards and published by Bloomsbury Publishing USA. This book was released on 2011-02-01 with total page 289 pages. Available in PDF, EPUB and Kindle. Book excerpt: Twenty-seven-year-old Laurie Edwards is one of 125 million Americans who have a chronic illness, in her case a rare genetic respiratory disease. Because of medical advances in the treatment of serious childhood diseases, 600,000 chronically ill teens enter adulthood every year who decades ago would not have survived-they and people diagnosed in adulthood face the same challenges of college, career, and starting a family as others in their twenties and thirties, but with the added circumstance of having chronic illness. Life Disrupted is a personal and unflinching guide to living well with a chronic illness: managing your own health care without letting it take over your life, dealing with difficult doctors and frequent hospitalizations, having a productive and satisfying career that accommodates your health needs, and nurturing friendships and a loving, committed relationship regardless of recurring health problems. Laurie Edwards also addresses the particular needs of people who have more than one chronic illness or who are among the twenty-five million Americans with a rare disorder. She shares her own story and the experiences of others with chronic illness, as well as advice from life coaches, employment specialists, and health professionals. Reading Life Disrupted is like having a best friend and mentor who truly does know what you're going through.

Elderhood

Author : Louise Aronson
Publisher : Bloomsbury Publishing USA
ISBN 13 : 1620405482
Total Pages : 467 pages
Book Rating : 4.6/5 (24 download)

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Book Synopsis Elderhood by : Louise Aronson

Download or read book Elderhood written by Louise Aronson and published by Bloomsbury Publishing USA. This book was released on 2019-06-11 with total page 467 pages. Available in PDF, EPUB and Kindle. Book excerpt: Finalist for the Pulitzer Prize in General Nonfiction A New York Times Bestseller Longlisted for the Andrew Carnegie Medal for Excellence in Nonfiction Winner of the WSU AOS Bonner Book Award Winner of the 2022 At Home With Growing Older Impact Award As revelatory as Atul Gawande's Being Mortal, physician and award-winning author Louise Aronson's Elderhood is an essential, empathetic look at a vital but often disparaged stage of life. For more than 5,000 years, "old" has been defined as beginning between the ages of 60 and 70. That means most people alive today will spend more years in elderhood than in childhood, and many will be elders for 40 years or more. Yet at the very moment that humans are living longer than ever before, we've made old age into a disease, a condition to be dreaded, denigrated, neglected, and denied. Reminiscent of Oliver Sacks, noted Harvard-trained geriatrician Louise Aronson uses stories from her quarter century of caring for patients, and draws from history, science, literature, popular culture, and her own life to weave a vision of old age that's neither nightmare nor utopian fantasy--a vision full of joy, wonder, frustration, outrage, and hope about aging, medicine, and humanity itself. Elderhood is for anyone who is, in the author's own words, "an aging, i.e., still-breathing human being."

How to Be Sick

Author : Toni Bernhard
Publisher : Simon and Schuster
ISBN 13 : 0861716264
Total Pages : 217 pages
Book Rating : 4.8/5 (617 download)

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Book Synopsis How to Be Sick by : Toni Bernhard

Download or read book How to Be Sick written by Toni Bernhard and published by Simon and Schuster. This book was released on 2010-09-14 with total page 217 pages. Available in PDF, EPUB and Kindle. Book excerpt: This life-affirming, instructive and thoroughly inspiring book is a must-read for anyone who is--or who might one day be--sick. And it can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or even life-threatening illness. The author--who became ill while a university law professor in the prime of her career--tells the reader how she got sick and, to her and her partner's bewilderment, stayed that way. Toni had been a longtime meditator, going on long meditation retreats and spending many hours rigorously practicing, but soon discovered that she simply could no longer engage in those difficult and taxing forms. She had to learn ways to make "being sick" the heart of her spiritual practice--and through truly learning how to be sick, she learned how, even with many physical and energetic limitations, to live a life of equanimity, compassion, and joy. And whether we ourselves are sick now or not, we can learn these vital arts of living well from "How to Be Sick."

Sun in Days: Poems

Author : Meghan O'Rourke
Publisher : W. W. Norton & Company
ISBN 13 : 039360876X
Total Pages : 128 pages
Book Rating : 4.3/5 (936 download)

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Book Synopsis Sun in Days: Poems by : Meghan O'Rourke

Download or read book Sun in Days: Poems written by Meghan O'Rourke and published by W. W. Norton & Company. This book was released on 2017-09-19 with total page 128 pages. Available in PDF, EPUB and Kindle. Book excerpt: Named a Best Poetry Book of 2017 by the New York Times Book Review, Sun in Days is “O’Rourke’s most ravishing and brilliant collection yet” (Cathy Park Hong). From acclaimed poet and critic Meghan O’Rourke comes a powerful collection about the frailty of the body, the longing for a child, and the philosophical questions raised when the body goes dramatically awry. These formally ambitious poems and lyric essays give voice to the experience of illness, the permanence of loss, and invigorating moments of grace. A Paterson Poetry Prize finalist, Sun in Days is unsentimental yet deeply felt, characterized by O’Rourke’s signature lyric precision and force of observation.

Reimagining Healthcare

Author : Thomas Koulopoulos
Publisher : Post Hill Press
ISBN 13 : 1642935581
Total Pages : 255 pages
Book Rating : 4.6/5 (429 download)

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Book Synopsis Reimagining Healthcare by : Thomas Koulopoulos

Download or read book Reimagining Healthcare written by Thomas Koulopoulos and published by Post Hill Press. This book was released on 2020-05-26 with total page 255 pages. Available in PDF, EPUB and Kindle. Book excerpt: Since FDR, the US healthcare system has been mired in politics and policy. All the while it has only increased in complexity and cost. Today half of all personal bankruptcies are attributable to healthcare costs. Many community hospitals are barely getting by with single digit profit margins. With a system teetering on the edge of a systemic crisis, we need to turn to a brand-new approach to rescue the US healthcare system.

The Lady's Handbook for Her Mysterious Illness

Author : Sarah Ramey
Publisher : Anchor
ISBN 13 : 030774194X
Total Pages : 434 pages
Book Rating : 4.3/5 (77 download)

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Book Synopsis The Lady's Handbook for Her Mysterious Illness by : Sarah Ramey

Download or read book The Lady's Handbook for Her Mysterious Illness written by Sarah Ramey and published by Anchor. This book was released on 2021-05-11 with total page 434 pages. Available in PDF, EPUB and Kindle. Book excerpt: The darkly funny memoir of Sarah Ramey’s years-long battle with a mysterious illness that doctors thought was all in her head—but wasn’t. In her harrowing, darkly funny, and unforgettable memoir, Sarah Ramey recounts the decade-long saga of how a seemingly minor illness in her senior year of college turned into a prolonged and elusive condition that destroyed her health but that doctors couldn't diagnose or treat. Worse, as they failed to cure her, they hinted that her devastating symptoms were psychological. The Lady's Handbook for Her Mysterious Illness is a memoir with a mission: to help the millions of (mostly) women who suffer from unnamed or misunderstood conditions—autoimmune illnesses, fibromyalgia and chronic fatigue syndrome, chronic Lyme disease, chronic pain, and many more. Ramey's pursuit of a diagnosis and cure for her own mysterious illness becomes a page-turning medical mystery that reveals a new understanding of today's chronic illnesses as ecological in nature, driven by modern changes to the basic foundations of health, from the quality of our sleep, diet, and social connections to the state of our microbiomes. Her book will open eyes, change lives, and, ultimately, change medicine. The Lady's Handbook for Her Mysterious Illness is a revelation and an inspiration for millions of women whose legitimate health complaints are ignored.

Surviving and Thriving with an Invisible Chronic Illness

Author : Ilana Jacqueline
Publisher : New Harbinger Publications
ISBN 13 : 1626256012
Total Pages : 178 pages
Book Rating : 4.6/5 (262 download)

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Book Synopsis Surviving and Thriving with an Invisible Chronic Illness by : Ilana Jacqueline

Download or read book Surviving and Thriving with an Invisible Chronic Illness written by Ilana Jacqueline and published by New Harbinger Publications. This book was released on 2018-03-01 with total page 178 pages. Available in PDF, EPUB and Kindle. Book excerpt: “An important antidote to the dogmatic ‘kale and vitamins’ tone of most ‘self-help’ literature.” —Alexa Tsoulis-Reay, senior writer, New York magazine Popular blogger Ilana Jacqueline offers smart and savvy advice, humor, and practical tips for living with an invisible chronic illness. Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood—and that’s on top of dealing with the symptoms of your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see—such as postural orthostatic tachycardia syndrome (POTS), chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity (MCS), Lyme disease, lupus, dysautonomia, or even multiple sclerosis (MP). This book will tell you everything you need to know about living with a complicated, invisible condition—from how to balance sex, dating, and relationships to handling work and school with unavoidable absences. You’ll also learn to navigate judg-y or skeptical relatives and strangers and—most importantly—manage your medical care. Suffering from a chronic illness doesn’t mean you can’t live an active, engaged life. This book will show you how.

Reimagining Social Medicine from the South

Author : Abigail H. Neely
Publisher : Duke University Press
ISBN 13 : 1478021586
Total Pages : 110 pages
Book Rating : 4.4/5 (78 download)

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Book Synopsis Reimagining Social Medicine from the South by : Abigail H. Neely

Download or read book Reimagining Social Medicine from the South written by Abigail H. Neely and published by Duke University Press. This book was released on 2021-07-12 with total page 110 pages. Available in PDF, EPUB and Kindle. Book excerpt: In Reimagining Social Medicine from the South, Abigail H. Neely explores social medicine's possibilities and limitations at one of its most important origin sites: the Pholela Community Health Centre (PCHC) in South Africa. The PCHC's focus on medical and social factors of health yielded remarkable success. And yet South Africa's systemic racial inequality hindered health center work, and witchcraft illnesses challenged a program rooted in the sciences. To understand Pholela's successes and failures, Neely interrogates the “social” in social medicine. She makes clear that the social sciences the PCHC used failed to account for the roles that Pholela's residents and their environment played in the development and success of its program. At the same time, the PCHC's reliance on biomedicine prevented it from recognizing the impact on health of witchcraft illnesses and the social relationships from which they emerged. By rewriting the story of social medicine from Pholela, Neely challenges global health practitioners to recognize the multiple worlds and actors that shape health and healing in Africa and beyond.

What Doesn't Kill You

Author : Tessa Miller
Publisher : Henry Holt and Company
ISBN 13 : 1250751462
Total Pages : 240 pages
Book Rating : 4.2/5 (57 download)

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Book Synopsis What Doesn't Kill You by : Tessa Miller

Download or read book What Doesn't Kill You written by Tessa Miller and published by Henry Holt and Company. This book was released on 2021-02-02 with total page 240 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Should be read by anyone with a body. . . . Relentlessly researched and undeniably smart." —The New York Times Named one of BuzzFeed's "Best Books of 2021" What Doesn't Kill You is the riveting account of a young journalist’s awakening to chronic illness, weaving together personal story and reporting to shed light on living with an ailment forever. Tessa Miller was an ambitious twentysomething writer in New York City when, on a random fall day, her stomach began to seize up. At first, she toughed it out through searing pain, taking sick days from work, unable to leave the bathroom or her bed. But when it became undeniable that something was seriously wrong, Miller gave in to family pressure and went to the hospital—beginning a years-long nightmare of procedures, misdiagnoses, and life-threatening infections. Once she was finally correctly diagnosed with Crohn’s disease, Miller faced another battle: accepting that she will never get better. Today, an astonishing three in five adults in the United States suffer from a chronic disease—a percentage expected to rise post-Covid. Whether the illness is arthritis, asthma, Crohn's, diabetes, endometriosis, multiple sclerosis, ulcerative colitis, or any other incurable illness, and whether the sufferer is a colleague, a loved one, or you, these diseases have an impact on just about every one of us. Yet there remains an air of shame and isolation about the topic of chronic sickness. Millions must endure these disorders not only physically but also emotionally, balancing the stress of relationships and work amid the ever-present threat of health complications. Miller segues seamlessly from her dramatic personal experiences into a frank look at the cultural realities (medical, occupational, social) inherent in receiving a lifetime diagnosis. She offers hard-earned wisdom, solidarity, and an ultimately surprising promise of joy for those trying to make sense of it all.

Reimagining Advocacy

Author : Elizabeth C. Britt
Publisher : Penn State Press
ISBN 13 : 0271081333
Total Pages : 187 pages
Book Rating : 4.2/5 (71 download)

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Book Synopsis Reimagining Advocacy by : Elizabeth C. Britt

Download or read book Reimagining Advocacy written by Elizabeth C. Britt and published by Penn State Press. This book was released on 2018-05-17 with total page 187 pages. Available in PDF, EPUB and Kindle. Book excerpt: Domestic violence accounts for approximately one-fifth of all violent crime in the United States and is among the most difficult issues confronting professionals in the legal and criminal justice systems. In this volume, Elizabeth Britt argues that learning embodied advocacy—a practice that results from an expanded understanding of expertise based on lived experience—and adopting it in legal settings can directly and tangibly help victims of abuse. Focusing on clinical legal education at the Domestic Violence Institute at the Northeastern University School of Law, Britt takes a case-study approach to illuminate how challenging the context, aims, and forms of advocacy traditionally embraced in the U.S. legal system produces better support for victims of domestic violence. She analyzes a wide range of materials and practices, including the pedagogy of law school training programs, interviews with advocates, and narratives written by students in the emergency department, and looks closely at the forms of rhetorical education through which students assimilate advocacy practices. By examining how students learn to listen actively to clients and to recognize that clients have the right and ability to make decisions for themselves, Britt shows that rhetorical education can succeed in producing legal professionals with the inclination and capacity to engage others whose values and experiences diverge from their own. By investigating the deep relationship between legal education and rhetorical education, Reimagining Advocacy calls for conversations and action that will improve advocacy for others, especially for victims of domestic violence seeking assistance from legal professionals.

You Don't Look Sick!

Author : Joy H. Selak
Publisher : Demos Medical Publishing
ISBN 13 : 1936303426
Total Pages : 199 pages
Book Rating : 4.9/5 (363 download)

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Book Synopsis You Don't Look Sick! by : Joy H. Selak

Download or read book You Don't Look Sick! written by Joy H. Selak and published by Demos Medical Publishing. This book was released on 2012-12-17 with total page 199 pages. Available in PDF, EPUB and Kindle. Book excerpt: Chronicles one person's true life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illness; Getting Sick, Being Sick, Grief and Acceptance and Living Well. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones.

The End of Illness

Author : David B. Agus
Publisher : Simon and Schuster
ISBN 13 : 1451610173
Total Pages : 352 pages
Book Rating : 4.4/5 (516 download)

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Book Synopsis The End of Illness by : David B. Agus

Download or read book The End of Illness written by David B. Agus and published by Simon and Schuster. This book was released on 2012-01-17 with total page 352 pages. Available in PDF, EPUB and Kindle. Book excerpt: Challenges popular conceptions to outline new methods for promoting wellness and longevity, arguing that traditional medicine has not been successful in treating serious illness while urging readers to embrace a systemic understanding of the body that incorporates the use of revolutionary technologies.

Halflife

Author : Meghan O'Rourke
Publisher :
ISBN 13 :
Total Pages : 104 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Halflife by : Meghan O'Rourke

Download or read book Halflife written by Meghan O'Rourke and published by . This book was released on 2007 with total page 104 pages. Available in PDF, EPUB and Kindle. Book excerpt: Impressive. A box full of surprises and intense delights.--Billy Collins

An Evocative Autoethnography of Living Alongside Myalgic Encephalomyelitis (ME)

Author : Orlagh Farrell Delaney
Publisher : Cambridge Scholars Publishing
ISBN 13 : 1527573281
Total Pages : 277 pages
Book Rating : 4.5/5 (275 download)

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Book Synopsis An Evocative Autoethnography of Living Alongside Myalgic Encephalomyelitis (ME) by : Orlagh Farrell Delaney

Download or read book An Evocative Autoethnography of Living Alongside Myalgic Encephalomyelitis (ME) written by Orlagh Farrell Delaney and published by Cambridge Scholars Publishing. This book was released on 2021-07-30 with total page 277 pages. Available in PDF, EPUB and Kindle. Book excerpt: This ground-breaking book explores and explains the day-to-day realities of living long-term with Myalgic Encephalomyelitis (ME). ME is an acquired complex disorder characterised by a variety of symptoms affecting multiple systems of the body. Marked fatigue and weakness, sickness, cognitive dysfunction and symptom flare-up can follow any physical or cognitive exertion. It is estimated that there are 17-24 million sufferers worldwide. The author has lived with moderately severe ME for the last 18 years. Utilising autoethnography as a methodology and drawing on multidisciplinary social science theory, the book tells the story of the author’s own lived experiences of the illness, and how she sought to reimagine a ‘self’ or a life living alongside the illness, that could still be considered a ‘good life’. This autoethnographic book is beautifully and evocatively written. It is a work of scholarship that will be highly accessible to academic and other readers. It is also a comprehensive introduction to autoethnography as a methodology, but it is much more. The images and poetry complement the narrative discussion, and are exemplary as part of an approach that integrates creative work with academic argument. It illuminates the struggles of living with ME and how there can be sanctuary.