Psychological Issues In Amyotrophic Lateral Sclerosis

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Psychological Issues in Amyotrophic Lateral Sclerosis

Author : Francesco Pagnini
Publisher : Frontiers Media SA
ISBN 13 : 2889197581
Total Pages : 105 pages
Book Rating : 4.8/5 (891 download)

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Book Synopsis Psychological Issues in Amyotrophic Lateral Sclerosis by : Francesco Pagnini

Download or read book Psychological Issues in Amyotrophic Lateral Sclerosis written by Francesco Pagnini and published by Frontiers Media SA. This book was released on 2016-03-02 with total page 105 pages. Available in PDF, EPUB and Kindle. Book excerpt: Amyotrophic lateral sclerosis is a fatal and progressive disease, characterized by progressive muscles weakness, with consequent loss of physical capacities. Patients become relentlessly immobile and, in the late stages of the disease, develop a "locked-in" state in which only residual muscular movement is possible, but the intellect and the personality usually remain unimpaired. At now, there is no cure for ALS. The psychological impact of the disease is huge, on both patients and caregivers. Aim of the present Research Topic is to collect new evidence about quality of life, depression, anxiety, pain, spiritual and existential issues, hope and hopelessness in the ALS field, with attention to both patients and their caregivers. Emphasis will be provided to the investigation of psychological support and the possible role of psychologists in this challenging field. Keywords: Amyotrophic Lateral Sclerosis; Health Psychology; Clinical Psychology, Motor Neuron Disorder; Quality of Life. Subtopics: The subtopics to be covered in the Research Topic include, but not limited to: 1. Assessment of psychological variables in ALS 2. Quality of life during the course of the illness 3. Impact of technological assistance to illness (wheelchairs, NIV...) 4. Interfaces among biological, psychosocial, and social factors 5. Psychological and psychotherapeutic interventions 6. Couple and family relationships 7. Research methodology, measurement and statistics 8. Cultural and social features of ALS 9. Professional issues, including training and supervision 10. Implications of research findings for health-related policy

Amyotrophic Lateral Sclerosis

Author : Francesco Pagnini
Publisher : Oxford University Press
ISBN 13 : 0191075132
Total Pages : 301 pages
Book Rating : 4.1/5 (91 download)

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Book Synopsis Amyotrophic Lateral Sclerosis by : Francesco Pagnini

Download or read book Amyotrophic Lateral Sclerosis written by Francesco Pagnini and published by Oxford University Press. This book was released on 2018-02-09 with total page 301 pages. Available in PDF, EPUB and Kindle. Book excerpt: Amyotrophic Lateral Sclerosis (ALS) is a devastating neurodegenerative disorder with a progressive and fatal course, with no known medical therapies that can reverse the disease or halt its progression. Palliative care is the mainstay of disease management, aimed at maximizing Quality Of Life (QOL) for the patient and caregiver. Clinicians caring for patients with ALS need to understand complex psychological issues in the patient and caregiver, including depression, anxiety, hopelessness, and wish for hastened death (physician-assisted suicide). They also need to confront the psychological implications of rapidly advancing genetic research, the impact of cognitive and behavioural dysfunction in a sizable minority of ALS patients, and caregiver burnout. Healthcare providers can optimize care by better understanding not only these factors, but by learning how to facilitate their management with problem-solving, coping techniques, and with psychologically-based approaches such as mindfulness and other non-pharmacological approaches aimed at maximizing QOL. Amyotrophic Lateral Sclerosis: Understanding and Optimizing Quality of Life and Psychological Well-Being provides a detailed review and evaluation of ALS, presented in a comprehensive and integrated fashion. The book achieves this through detailed and up-to-date information about the current state of knowledge in this field. It also offers new insights regarding future directions for research. This book will provide clinicians with a comprehensive description of the psychological aspects of ALS and their management, and incorporates chapters written by recognized scholars in their respective fields.

Amyotrophic Lateral Sclerosis

Author : V. Cosi
Publisher : Springer Science & Business Media
ISBN 13 : 1468453025
Total Pages : 341 pages
Book Rating : 4.4/5 (684 download)

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Book Synopsis Amyotrophic Lateral Sclerosis by : V. Cosi

Download or read book Amyotrophic Lateral Sclerosis written by V. Cosi and published by Springer Science & Business Media. This book was released on 2013-03-09 with total page 341 pages. Available in PDF, EPUB and Kindle. Book excerpt: An International Conference on "Therapeutic. Psychological and Research Aspects of Amyotrophic Lateral Sclerosis" was held in Varese. Italy from the 27th to the 31st March 1985. Health care professionals. scientists. patients and their families from twenty countries around the world participated in this meeting. The objectives of the Varese conference were the following: a. To provide a forum for the proponents of the various paths of research into ALS. b. To correlate the useful therapies employed regionally. for the purpose of developing a common guide for patients, families, and supporting professionals. c. To encourage self-examination by the health care professionals into the psychological barriers imposed by a diagnosis of terminal illness for which there is no known cause or cure. Not surprisingly, there were no announcements of "breakthroughs" or "miracle cures", which are nonetheless hoped for in the confrontation of a disease such as ALS. It is fair to say, however, that Varese provided the context for a thorough review of what is known about ALS and we hope that the papers will renew some of the enthusiasm which has characterized this conference. The book contains six sections: Basic Research Aspects, Diagnostic Tools, Clinical Management, Therapeutic Trials, Psychological Aspects and the Epidemiology of ALS. Certain aspects, such as pathological studies and animal models, have not been covered; these subjects were partially treated during the informal sessions. Nevertheless, the large number of papers bears evidence to the growing interest in ALS and to the success of the Varese meeting.

Amyotrophic Lateral Sclerosis

Author : V. Cosi
Publisher : Springer
ISBN 13 : 9780306425462
Total Pages : 0 pages
Book Rating : 4.4/5 (254 download)

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Book Synopsis Amyotrophic Lateral Sclerosis by : V. Cosi

Download or read book Amyotrophic Lateral Sclerosis written by V. Cosi and published by Springer. This book was released on 1987-03-01 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: An International Conference on "Therapeutic. Psychological and Research Aspects of Amyotrophic Lateral Sclerosis" was held in Varese. Italy from the 27th to the 31st March 1985. Health care professionals. scientists. patients and their families from twenty countries around the world participated in this meeting. The objectives of the Varese conference were the following: a. To provide a forum for the proponents of the various paths of research into ALS. b. To correlate the useful therapies employed regionally. for the purpose of developing a common guide for patients, families, and supporting professionals. c. To encourage self-examination by the health care professionals into the psychological barriers imposed by a diagnosis of terminal illness for which there is no known cause or cure. Not surprisingly, there were no announcements of "breakthroughs" or "miracle cures", which are nonetheless hoped for in the confrontation of a disease such as ALS. It is fair to say, however, that Varese provided the context for a thorough review of what is known about ALS and we hope that the papers will renew some of the enthusiasm which has characterized this conference. The book contains six sections: Basic Research Aspects, Diagnostic Tools, Clinical Management, Therapeutic Trials, Psychological Aspects and the Epidemiology of ALS. Certain aspects, such as pathological studies and animal models, have not been covered; these subjects were partially treated during the informal sessions. Nevertheless, the large number of papers bears evidence to the growing interest in ALS and to the success of the Varese meeting.

Muscular Dystrophy and Other Neuromuscular Diseases

Author : Leon I. Charash
Publisher : Routledge
ISBN 13 : 1317765648
Total Pages : 272 pages
Book Rating : 4.3/5 (177 download)

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Book Synopsis Muscular Dystrophy and Other Neuromuscular Diseases by : Leon I. Charash

Download or read book Muscular Dystrophy and Other Neuromuscular Diseases written by Leon I. Charash and published by Routledge. This book was released on 2014-09-19 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: Here is a thoughtful new book for professionals who assist persons afflicted with neuromuscular disorders to help them and their families adapt to lifestyle changes accompanying the onset of these disorders. Health care professionals provide strategies to maintain the psychosocial well-being of children and adults with neuromuscular disorders which, in addition to physical damage, also assault the sense of self and challenge the individual’s ability to move and communicate. Chapters describe the psychosocial aspects of a variety of neuromuscular diseases such as Duchenne and myotonic muscular dystrophy, multiple sclerosis, amyotrophic lateral sclerosis, Friedeich’s ataxia, and Charcot-Marie-Tooth disease. The distinctive characteristics of each disease are examined with special attention given to the natural history, treatment, management, and psychosocial issues of the specific disorder. Beyond the clinical and research importance of Muscular Dystrophy and Other Neuromuscular Diseases, it also addresses the anxiety, doubts, and questions felt by patients with chronic progressive disabilities and their families. This helpful guide is unique in the way it features the interaction of professionals in the social services, psychology, religion, and various medical specialties in the care and treatment of these patients. Professionals in all of these disciplines, as well as the patients and families afflicted by these disorders, will benefit from this valuable resource.

Palliative Care in Amyotrophic Lateral Sclerosis

Author : David Oliver
Publisher : OUP Oxford
ISBN 13 : 0191509507
Total Pages : 353 pages
Book Rating : 4.1/5 (915 download)

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Book Synopsis Palliative Care in Amyotrophic Lateral Sclerosis by : David Oliver

Download or read book Palliative Care in Amyotrophic Lateral Sclerosis written by David Oliver and published by OUP Oxford. This book was released on 2014-03-20 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: Amytrophic Lateral Sclerosis (ALS or motor neurone disease) is a progressive neurodegenerative disease that can cause profound suffering for both the patient and their family. Whilst new treatments for ALS are being developed, these are not curative and offer only the potential to slow its progression. Palliative care must therefore be integral to the clinical approach to the disease. Palliative Care in Amyotrophic Lateral Sclerosis: From diagnosis to bereavement reflects the wide scope of this care; it must cover not just the terminal phase, but support the patient and their family from the onset of the disease. Both the multidisciplinary palliative care team and the neurology team are essential in providing a high standard of care and allowing quality of life (both patient and carer) to be maintained. Clear guidelines are provided to address care throughout the disease process. Control of symptoms is covered alongside the psychosocial care of patients and their families. Case studies are used to emphasise the complexity of the care needs and involvement of the patient and family, culminating in discussion of bereavement. Different models of care are explored, and this new edition utilizes the increase in both the evidence-base and available literature on the subject. New topics discussed include complementary therapies, personal and family experiences of ALS, new genetics research, and updated guidelines for patient care, to ensure this new edition remains the essential guide to palliative care in ALS.

Managing Cancer and Living Meaningfully

Author : Gary Rodin
Publisher : Oxford University Press
ISBN 13 : 0190236442
Total Pages : 265 pages
Book Rating : 4.1/5 (92 download)

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Book Synopsis Managing Cancer and Living Meaningfully by : Gary Rodin

Download or read book Managing Cancer and Living Meaningfully written by Gary Rodin and published by Oxford University Press. This book was released on 2021-04-27 with total page 265 pages. Available in PDF, EPUB and Kindle. Book excerpt: Managing Cancer and Living Meaningfully provides valuable insight into the experience of patients and families living with advanced cancer and describes a novel psychotherapeutic approach to help them live meaningfully, while also facing the threat of mortality. Managing Cancer and Living Meaningfully, also known by the acronym CALM, is a brief supportive-expressive intervention that can be delivered by a wide range of trained healthcare providers as part of cancer care or early palliative care. The authors provide an overview of the clinical experience and research that led to the development of CALM, a clear description of the intervention, and a manualized guide to aid in its delivery. Situated in the context of early palliative care, this text is destined to be become essential reading for healthcare professionals engaged in providing psychological support to patients and their families who face the practical and profound problems of advanced disease.

ALSAQ User Manual

Author : Crispin Jenkinson
Publisher :
ISBN 13 : 9781874551454
Total Pages : 112 pages
Book Rating : 4.5/5 (514 download)

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Book Synopsis ALSAQ User Manual by : Crispin Jenkinson

Download or read book ALSAQ User Manual written by Crispin Jenkinson and published by . This book was released on 2001-01-01 with total page 112 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Handbook of Psychotherapy in Cancer Care

Author : Maggie Watson
Publisher : John Wiley & Sons
ISBN 13 : 1119990513
Total Pages : 412 pages
Book Rating : 4.1/5 (199 download)

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Book Synopsis Handbook of Psychotherapy in Cancer Care by : Maggie Watson

Download or read book Handbook of Psychotherapy in Cancer Care written by Maggie Watson and published by John Wiley & Sons. This book was released on 2011-05-03 with total page 412 pages. Available in PDF, EPUB and Kindle. Book excerpt: This new book by international experts in psycho-oncology has arisen from the teaching academies offered by the International Psycho-oncology Society. It distills the wisdom and experience from the training manuals dedicated to individual psychological therapies and combines them into an accessible handbook for clinicians in cancer care today. The editors have brought together leading researchers and therapists, who provide accounts of the prominent models of psychotherapy currently being used in cancer care, the key themes they address and the essential techniques needed to apply each approach successfully. Helpful clinical illustrations are woven throughout the book to make overt the strategies found in each model. Provides practical guidance about how to deliver a range of individual, group, couple and family interventions that have proven utility in cancer care. Describes comprehensively each model of psychotherapy as taught by experts delivering the International Psycho-Oncology Society’s Educational Academy on cancer care for patients and their families. Features practical suggestions on therapy delivery from the world’s leading proponents of each therapy. Serves as a valuable tool to assist teaching and to facilitate research into psychological interventions in oncology, palliative care and bereavement. Functions as a readily accessible resource for clinicians struggling to support someone effectively, through its provision of insight into the common challenges and traps that arise when providing patients with emotional support. This practical handbook will help not only psychiatrists, psychologists and social workers but also physicians, surgeons, general practitioners and nurses interested in better understanding and supporting the patients and families they care for.

Neurobiology of Mental Illness

Author : Dennis S. Charney
Publisher : Oxford University Press, USA
ISBN 13 : 0199934959
Total Pages : 1259 pages
Book Rating : 4.1/5 (999 download)

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Book Synopsis Neurobiology of Mental Illness by : Dennis S. Charney

Download or read book Neurobiology of Mental Illness written by Dennis S. Charney and published by Oxford University Press, USA. This book was released on 2013-07-04 with total page 1259 pages. Available in PDF, EPUB and Kindle. Book excerpt: Our understanding of the neurobiological basis of psychiatric disease has accelerated in the past five years. The fourth edition of Neurobiology of Mental Illness has been completely revamped given these advances and discoveries on the neurobiologic foundations of psychiatry. Like its predecessors the book begins with an overview of the basic science. The emerging technologies in Section 2 have been extensively redone to match the progress in the field including new chapters on the applications of stem cells, optogenetics, and image guided stimulation to our understanding and treatment of psychiatric disorders. Sections' 3 through 8 pertain to the major psychiatric syndromes-the psychoses, mood disorders, anxiety disorders, substance use disorders, dementias, and disorders of childhood-onset. Each of these sections includes our knowledge of their etiology, pathophysiology, and treatment. The final section discusses special topic areas including the neurobiology of sleep, resilience, social attachment, aggression, personality disorders and eating disorders. In all, there are 32 new chapters in this volume including unique insights on DSM-5, the Research Domain Criteria (RDoC) from NIMH, and a perspective on the continuing challenges of diagnosis given what we know of the brain and the mechanisms pertaining to mental illness. This book provides information from numerous levels of analysis including molecular biology and genetics, cellular physiology, neuroanatomy, neuropharmacology, epidemiology, and behavior. In doing so it translates information from the basic laboratory to the clinical laboratory and finally to clinical treatment. No other book distills the basic science and underpinnings of mental disorders and explains the clinical significance to the scope and breadth of this classic text. The result is an excellent and cutting-edge resource for psychiatric residents, psychiatric researchers and doctoral students in neurochemistry and the neurosciences.

Motor Neuron Disease in Adults

Author : Mark B. Bromberg
Publisher : Contemporary Neurology
ISBN 13 : 019978311X
Total Pages : 369 pages
Book Rating : 4.1/5 (997 download)

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Book Synopsis Motor Neuron Disease in Adults by : Mark B. Bromberg

Download or read book Motor Neuron Disease in Adults written by Mark B. Bromberg and published by Contemporary Neurology. This book was released on 2014-10-28 with total page 369 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'Motor Neuron Disease in Adults' reviews new information from 1998 as it applies to all aspects of motor neuron disease. Articles included use evidence-based methods to ensure that the new information is solid and advances the topic. The book can be used by anyone who provides any type of care to ALS patients.

Telemedicine and Telehealth

Author : Adam William Darkins
Publisher : Springer Publishing Company
ISBN 13 : 9780826113023
Total Pages : 336 pages
Book Rating : 4.1/5 (13 download)

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Book Synopsis Telemedicine and Telehealth by : Adam William Darkins

Download or read book Telemedicine and Telehealth written by Adam William Darkins and published by Springer Publishing Company. This book was released on 2000-03 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: Telemedicine and telehealth are changing the face of health care delivery and becoming a multi-billion dollar industry. Dr. Darkins and Dr. Cary share their knowledge and provide practical insights and advice on making telemedicine programs into successful clinical services and a productive business. The book gives background knowledge and useful tips on starting up and managing programs in an array of settings. Most importantly, the book is based on the recognition that patients are customers of health care and telemedicine companies developing new products vital to delivering care to rural or inaccessible clients is vital to health care's future.

Palliative Care in Neurology

Author : Raymond Voltz
Publisher : Frontiers Media SA
ISBN 13 : 288963471X
Total Pages : 153 pages
Book Rating : 4.8/5 (896 download)

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Book Synopsis Palliative Care in Neurology by : Raymond Voltz

Download or read book Palliative Care in Neurology written by Raymond Voltz and published by Frontiers Media SA. This book was released on 2020-03-10 with total page 153 pages. Available in PDF, EPUB and Kindle. Book excerpt: Over the last 50 years palliative care has usually been associated with cancer patients but more recently there has been increased discussion of the role of palliative care for neurological patients. In the past years, neurology has moved from being a purely diagnostic area to a very therapeutically active one. A further step needs to be taken to modify the therapeutic activity from “cure” to “care” depending on the patient’s disease trajectory. Palliative care has been associated with care at the end of life, whereas it may be appropriate earlier in the disease progression, and will extend after death in the support of bereaved families. The care of patients with neurological disease, and their families, will encompass the psychological, spiritual and existential issues and neurologists, and the teams in which they work, should develop skills to consider all aspects of care, in order to maximize the quality of life of all involved, and enable patients to die peacefully.

Individual Quality of Life

Author : Charles Richard Boddington Joyce
Publisher : Taylor & Francis
ISBN 13 : 9789057024252
Total Pages : 258 pages
Book Rating : 4.0/5 (242 download)

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Book Synopsis Individual Quality of Life by : Charles Richard Boddington Joyce

Download or read book Individual Quality of Life written by Charles Richard Boddington Joyce and published by Taylor & Francis. This book was released on 1999 with total page 258 pages. Available in PDF, EPUB and Kindle. Book excerpt: The rubric "Quality of Life" first came to the explicit attention of the medical profession a little over thirty years ago. Despite the undoubted fact that each one of us has his or her own Quality of Life, be it good or bad, there is still no general agreement about its definition, or the manner in which it should be evaluated. Although much has been written about quality of life, this work has been largely concerned with population-based studies, especially in health policy & health economics. The importance of individual quality of life has been neglected, in part because of a failure to define quality of life itself with sufficient care, in part perhaps because of a belief that it is impossible to develop a meaningful method of measuring individual variables. It is a fundamental belief of the editors of this book that the primary focus of quality of life is & must continue to be the individual, who alone can define it & assess its changing personal significances. The individual perspective is of vital importance not only to patients but to their doctors too, & is more & more frequently proposed as the most meaningful measure of outcome in clinical research, especially in non-remitting or chronic conditions. Workers who wish to consider wider aspects of influences on the illnesses suffered by individuals & the health care that they receive will find much to stimulate them in the methods of documentation proposed in this book. Those mainly concerned with population samples rather than individuals may also find the sensitive methods of investigation proposed here not only to be applicable to their own areas of interest, but also rewarding in perhaps unexpected ways.

Frontotemporal Dementia Syndromes

Author : John R. Hodges
Publisher :
ISBN 13 :
Total Pages : 374 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Frontotemporal Dementia Syndromes by : John R. Hodges

Download or read book Frontotemporal Dementia Syndromes written by John R. Hodges and published by . This book was released on 2007-11-08 with total page 374 pages. Available in PDF, EPUB and Kindle. Book excerpt: This 2007 book provides a much needed review of frontotemporal dementia and related syndromes.

Evidence-based Nursing Care Guidelines

Author : Betty J. Ackley
Publisher : Elsevier Health Sciences
ISBN 13 : 032304624X
Total Pages : 1011 pages
Book Rating : 4.3/5 (23 download)

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Book Synopsis Evidence-based Nursing Care Guidelines by : Betty J. Ackley

Download or read book Evidence-based Nursing Care Guidelines written by Betty J. Ackley and published by Elsevier Health Sciences. This book was released on 2008-01-01 with total page 1011 pages. Available in PDF, EPUB and Kindle. Book excerpt: From an internationally respected team of clinical and research experts comes this groundbreaking book that synthesizes the body of nursing research for 192 common medical-surgical interventions. Ideal for both nursing students and practicing nurses, this collection of research-based guidelines helps you evaluate and apply the latest evidence to clinical practice.

Amyotrophic Lateral Sclerosis

Author : Francesco Pagnini
Publisher : Oxford University Press
ISBN 13 : 0191075140
Total Pages : 295 pages
Book Rating : 4.1/5 (91 download)

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Book Synopsis Amyotrophic Lateral Sclerosis by : Francesco Pagnini

Download or read book Amyotrophic Lateral Sclerosis written by Francesco Pagnini and published by Oxford University Press. This book was released on 2018-02-16 with total page 295 pages. Available in PDF, EPUB and Kindle. Book excerpt: Amyotrophic Lateral Sclerosis (ALS) is a devastating neurodegenerative disorder with a progressive and fatal course, with no known medical therapies that can reverse the disease or halt its progression. Palliative care is the mainstay of disease management, aimed at maximizing Quality Of Life (QOL) for the patient and caregiver. Clinicians caring for patients with ALS need to understand complex psychological issues in the patient and caregiver, including depression, anxiety, hopelessness, and wish for hastened death (physician-assisted suicide). They also need to confront the psychological implications of rapidly advancing genetic research, the impact of cognitive and behavioural dysfunction in a sizable minority of ALS patients, and caregiver burnout. Healthcare providers can optimize care by better understanding not only these factors, but by learning how to facilitate their management with problem-solving, coping techniques, and with psychologically-based approaches such as mindfulness and other non-pharmacological approaches aimed at maximizing QOL. Amyotrophic Lateral Sclerosis: Understanding and Optimizing Quality of Life and Psychological Well-Being provides a detailed review and evaluation of ALS, presented in a comprehensive and integrated fashion. The book achieves this through detailed and up-to-date information about the current state of knowledge in this field. It also offers new insights regarding future directions for research. This book will provide clinicians with a comprehensive description of the psychological aspects of ALS and their management, and incorporates chapters written by recognized scholars in their respective fields.