Predicting Caregiver and Family Quality of Life for Caregivers of Children with Autism Spectrum Disorder (ASD)

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ISBN 13 :
Total Pages : 0 pages
Book Rating : 4.:/5 (12 download)

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Book Synopsis Predicting Caregiver and Family Quality of Life for Caregivers of Children with Autism Spectrum Disorder (ASD) by : Kerry Ryan Thompson

Download or read book Predicting Caregiver and Family Quality of Life for Caregivers of Children with Autism Spectrum Disorder (ASD) written by Kerry Ryan Thompson and published by . This book was released on 2017 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Autism Spectrum Disorder (ASD) is a neurodevelopmental disorder that is expressed quite differently from person to person due to the spectrum of symptoms an individual may experience. Developmentally, children who have ASD manage issues with communication and restricted or repetitive behaviors that impact their activities of daily living and/or overall functioning (American Psychiatric Association, 2013). The ongoing care and assistance for children with ASD from their caregivers is vital to help them achieve and maintain optimal quality of life. Given the pervasive needs of children with ASD, caregivers have a unique role in providing for their child, as compared to caregivers of children without disabilities. The present study explored the caregiver in a family with a child with ASD. Applying a family systems perspective, Bishop's (2005a, 2005b) Disability Centrality Model constructs (i.e. role impact, relationship satisfaction, mastery) were used to explain caregiver and family quality of life. In addition, family quality of life was measured in such a way to incorporate Bishop's idea of centrality, or the importance an individual places on certain areas of life. A three-step statistical analysis was completed in order to better measure this conceptualization. This study included 204 caregivers who met the criteria for the study (i.e., caregiver of a child with ASD under the age of 18; self-reported reading level of 6th grade or above). Hayes' regression based path-analytic framework, PROCESS v2.16 was used to determine the explained variance of caregiver and family quality of life. In addition, correlational and moderation analyses were tested. Results suggested that the caregiver's perceived quality of life is positively correlated with the caregiver's perceived family quality of life. In addition, results indicated that the proposed path analyses explained 52.3% of the variance in caregiver quality of life, 44.4% variance for the weighted family quality of life model, and between 23.1-45.2% variance in the five-individual family quality of life-satisfaction domains (i.e, family interaction, parenting, emotional well-being, physical/material well-being, disability-related support). Finally, to better understand the impact of importance on quality of life, a three-step statistical analysis found that importance was significant when used as a weighted measurement of family quality of life that took the importance and satisfaction in consideration in their relation to one another; however, importance was not significant as a moderator between the relationship of caregiver relationship satisfaction and family quality of life. The findings in this study expand the current literature on caregivers of children with ASD, caregiver quality of life, and family quality of life. In addition, this study demonstrated the viability of strengths-based models of caregiver and family quality of life using Disability Centrality Model constructs through a family systems perspective for a sample of caregivers of children with ASD. Future implications for rehabilitation research and practice are discussed.

Determinants of Quality of Life in Caregivers of Children with Autism and Autism Concerns

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ISBN 13 :
Total Pages : 76 pages
Book Rating : 4.:/5 (18 download)

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Book Synopsis Determinants of Quality of Life in Caregivers of Children with Autism and Autism Concerns by : Colleen M. Harker

Download or read book Determinants of Quality of Life in Caregivers of Children with Autism and Autism Concerns written by Colleen M. Harker and published by . This book was released on 2018 with total page 76 pages. Available in PDF, EPUB and Kindle. Book excerpt: Given the unique demands of raising a child with autism spectrum disorder (ASD), it is necessary to understand the impact on the quality of life (QoL) of their caregivers. Though QoL is considered an important outcome in health services research (Moons et al., 2006; Oliveira, Carvalho, & Esteves 2016), there is a lack of knowledge about QoL in caregivers of children with ASD or caregivers of children for whom there are ASD concerns, but no formal diagnosis. The objectives of the current study were to (1) Examine how having a young child with ASD or ASD concerns affects caregiver QoL, relative to children with other developmental concerns and typical development; (2) Examine profiles across QoL domains within each caregiver group to determine which QoL domains were most impacted relative to other domains; (3) Examine to what extent three levels of determinants contribute to caregiver QoL: family demographic (child age, family income, caregiver employment status, number of children in the home), psychological (parenting stress), and health care (family-centered care); and 4) (Exploratory) Examine the extent to which family centered care moderates the relation between parenting stress and QoL. The sample was drawn from a larger NIH study examining screening and referral practices for children with ASD in primary care provider (PCP) practices and early intervention (EI) agencies in Washington State. The sample was comprised of three groups: caregivers of children with ASD or ASD concerns (ASD/ASD Concerns; n = 42), caregivers of children with other developmental concerns (Other Concerns; n = 34), and caregivers of children with typical development (No Concerns; n = 112). Caregivers completed a measure of family demographics, parenting stress, family-centered care, and QoL at their time of entry in the study. Results indicated that caregivers in the ASD/ASD Concerns group reported significantly lower Psychological and Social QoL than caregivers in the Other Concerns group and the No Concerns group, and significantly lower Environmental QoL and Physical QoL than caregivers in the No Concerns group (Objective 1). For caregivers in the ASD/ASD Concerns group, Social QoL was significantly lower than Environmental and Physical QoL and Psychological QoL was significantly lower than Environmental QoL (Objective 2). Income, parenting stress, and family-centered care were significant predictors for all four QoL domains, while the number of children residing in the home was a significant predictor for Physical QoL only. There was also a significant group by stress interaction for Environmental QoL, such that there was a stronger negative relationship between parenting stress and Environmental QoL for caregivers in the ASD/ASD Concerns group compared to caregivers in the No Concerns group (Objective 3). Family-centered care did not moderate the relationship between parenting stress and QoL as predicted (Objective 4). Overall, these findings suggest that future research is needed to determine how to provide additional support to all caregivers, particularly low-income families and caregivers who are experiencing high levels of parenting stress and low levels of family-centered care.

Sleep and Quality of Life Among Family Caregivers with Children who Have Autism Spectrum Disorders

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ISBN 13 :
Total Pages : 162 pages
Book Rating : 4.:/5 (94 download)

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Book Synopsis Sleep and Quality of Life Among Family Caregivers with Children who Have Autism Spectrum Disorders by : Maureen Russell

Download or read book Sleep and Quality of Life Among Family Caregivers with Children who Have Autism Spectrum Disorders written by Maureen Russell and published by . This book was released on 2014 with total page 162 pages. Available in PDF, EPUB and Kindle. Book excerpt: Autism spectrum disorder (ASD) holds potential for significantly impacting the primary caregiver and family, as well as the child with ASD. In particular, sleep problems occur frequently among children with ASD, and their poor sleep may negatively affect that of their caregivers. Health-related quality of life (HRQoL) and Family Quality of Life (FQoL) are salient indices of caregiver and family well-being. This pilot study explored associations between family caregiver sleep problems and caregiver sense of coherence (SOC) or coping on HRQoL and FQoL. Additionally, this study examined relationships between child sleep and behavior problems on caregiver sleep and well-being. Sixty-two family caregivers of children with ASD (M =7.61, range: 6-11 years old) participated in this survey study. Participants provided demographic information and completed measures of HRQoL, FQoL, caregiver sleep, SOC, parental stress, child sleep, and child behavior. Caregivers with longer sleep duration reported better mental health and better FQol. Caregivers who reported insomnia symptoms, non-restorative sleep, and insufficient sleep were more likely to report poorer mental health than caregivers who did not report these sleep disorder symptoms. A stronger caregiver SOC was associated with lower caregiver stress, better mental health, and better FQoL. Significant relationships were found between shorter caregiver sleep duration or sleep disorder symptoms (i.e., difficulty staying asleep, early morning awakening, insufficient sleep) and greater child sleep problems. Moreover, short sleep duration or insufficient sleep among caregivers was significantly associated with greater parenting stress. Notably, biological parents with Restless Legs Syndrome (RLS) had children with more restless sleep and higher rates of some behavior problems. There are a number of potential connections between sleep problems of children with ASD and sleep problems of their caregivers that are likely rooted in genetic, environmental, socio-economic, and behavioral factors. Interventions for sleep problems must address the context of the family and consider that sleep problems may be common to the caregiver and the child. The results of this study support findings from many prior studies and point to salient variables for future research and interventions to promote healthy caregiver sleep.

The impact of child-related variables and caregiver-related variables in affecting the quality of life of caregivers of children with autism spectrum disorder (ASD)

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ISBN 13 :
Total Pages : 0 pages
Book Rating : 4.:/5 (14 download)

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Book Synopsis The impact of child-related variables and caregiver-related variables in affecting the quality of life of caregivers of children with autism spectrum disorder (ASD) by : Fabienne Bain

Download or read book The impact of child-related variables and caregiver-related variables in affecting the quality of life of caregivers of children with autism spectrum disorder (ASD) written by Fabienne Bain and published by . This book was released on 2015 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Resources and Quality of Life in Caregivers of Children with Autism Spectrum Disorder

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ISBN 13 :
Total Pages : 0 pages
Book Rating : 4.:/5 (134 download)

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Book Synopsis Resources and Quality of Life in Caregivers of Children with Autism Spectrum Disorder by : Tiana C Cypher

Download or read book Resources and Quality of Life in Caregivers of Children with Autism Spectrum Disorder written by Tiana C Cypher and published by . This book was released on 2022 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Participants were 23 caregivers of children between the ages of four to twenty-two years old who are diagnosed with autism spectrum disorder and attend the Autism Society of North Carolina (ASNC) Social Recreation program in Winterville, Wilmington, and Newport. The present study evaluated the quality of life in parents of children with autism spectrum disorder, as well as the utilization and availability of resources for their child and the family. Data was collected using an online Qualtrics survey sent out to families by email. The survey consisted of questions regarding demographics, questions from the Questionnaire for Each Treatment regarding the treatments their child with autism receives, and questions from the Family Quality of Life Scale by the Beach Center on Disability. Overall results revealed that parenting is the most satisfying domain of quality of life, and disability related support was the least satisfactory for the parents. Results suggest that families with disability need to identify and enroll their children in early intervention programs and recreation program that help with children's development. The government and school programs should also strive to offer educative sessions for parents and families with children with autism to enhance their contribution outside of school hours.

The Relationship Between Stress and Self-efficacy in Primary Caregivers of Children Diagnosed with Autism

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ISBN 13 :
Total Pages : 304 pages
Book Rating : 4.:/5 (13 download)

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Book Synopsis The Relationship Between Stress and Self-efficacy in Primary Caregivers of Children Diagnosed with Autism by : Danielle R. Fields

Download or read book The Relationship Between Stress and Self-efficacy in Primary Caregivers of Children Diagnosed with Autism written by Danielle R. Fields and published by . This book was released on 2021 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: Parents of children diagnosed with autism spectrum disorder have historically experienced stress levels that exceed those of other parents. This study sought to identify the relationships that existed between the independent variables of Family Quality of Life (FQOL), child independence, and caregiver resilience and the dependent variable of caregiver stress, as well as the extent to which those independent variables could predict stress. The study then analyzed the relationship that existed between caregiver stress and caregiver self-efficacy. Research revealed that while significant relationships existed between caregiver stress and the independent variables of FQOL, child independence, and caregiver resilience, the independent variables could not predict stress. The study also found that the relationship between caregiver stress and self-efficacy was not significant.

Protective Factors Against Distress for Caregivers of a Child with Autism Spectrum Disorder

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ISBN 13 :
Total Pages : pages
Book Rating : 4.:/5 (1 download)

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Book Synopsis Protective Factors Against Distress for Caregivers of a Child with Autism Spectrum Disorder by : Rebecca Ann Lindsey

Download or read book Protective Factors Against Distress for Caregivers of a Child with Autism Spectrum Disorder written by Rebecca Ann Lindsey and published by . This book was released on 2017 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:

Caregiver Adaptation Among Black and White Families of Individuals with Autism Spectrum Disorder and the Comparison of the Two Racial Groups

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ISBN 13 :
Total Pages : 142 pages
Book Rating : 4.:/5 (126 download)

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Book Synopsis Caregiver Adaptation Among Black and White Families of Individuals with Autism Spectrum Disorder and the Comparison of the Two Racial Groups by : Yue Yu

Download or read book Caregiver Adaptation Among Black and White Families of Individuals with Autism Spectrum Disorder and the Comparison of the Two Racial Groups written by Yue Yu and published by . This book was released on 2020 with total page 142 pages. Available in PDF, EPUB and Kindle. Book excerpt: To date, only two studies, both using the same sample at two different time points, have quantitatively examined outcomes in Black caregivers of individuals with autism spectrum disorder (ASD). This study examined family adaptational outcomes in Black and White caregivers of individuals with ASD using the double ABCX model of family adaptation to examine the impacts of stressors, the A in the model (e.g., autism symptom severity, general life demands), resources/supports, the B in the model (e.g., social support), and individual coping/stress appraisal styles, the C in the model (e.g., cognitive appraisal, religious coping) on caregiver positive and negative adaptation outcomes, the X in the model, (e.g., caregiver strain, benefit finding, family quality of life). Black and White caregivers were compared on adaptation outcomes at the family, dyadic, and individual level, including both positively valenced (e.g., benefit finding) and negatively valenced outcomes (e.g., depression, caregiver strain). Participants were Black (N = 24) and White (N = 32) primary caregivers of individuals with ASD. Racial differences were found for both the general and racial-specific factors in the ABCX model. White and Black caregivers reported moderate and equal levels of caregiver strain. However, Black caregivers reported greater levels of anxiety and depression and lower levels of life satisfaction. When adjusting for potential ABC covariates, racial differences in outcomes were no longer significant. That is, racial differences in outcomes could be explained by differences in the proximal elements represented by the ABC variables of the model (e.g., passive-avoidance coping, religious coping). Black caregivers reported higher levels of pile-up of demands, formal social support, threat appraisal, passive-avoidance coping, and positive and negative religious coping than White caregivers. Different factors were related to caregiver strain in the two racial groups. Conscientiousness was a protective factor against caregiver strain for Black caregivers, whereas greater use of passive-avoidance coping and threat appraisal, higher levels of neuroticism and barriers to care, and lower levels of satisfaction with services, parenting self-efficacy, and formal social support were explanatory factors for increased caregiver strain among White caregivers. These results are helpful in informing interventions and support the cultural adaptation of care as provided to Black caregivers of individuals with ASD.

Stress, Coping, and Quality of Life Among Parental Caregivers of Children with Autism Spectrum Disorder

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ISBN 13 :
Total Pages : 138 pages
Book Rating : 4.:/5 (112 download)

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Book Synopsis Stress, Coping, and Quality of Life Among Parental Caregivers of Children with Autism Spectrum Disorder by : Dawn M. Turnage

Download or read book Stress, Coping, and Quality of Life Among Parental Caregivers of Children with Autism Spectrum Disorder written by Dawn M. Turnage and published by . This book was released on 2019 with total page 138 pages. Available in PDF, EPUB and Kindle. Book excerpt: Keywords: Stress, Coping, Autism Spectrum Disorder, Caregiver

Stress Reduction for Caregivers

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Publisher : Routledge
ISBN 13 : 1317771869
Total Pages : 154 pages
Book Rating : 4.3/5 (177 download)

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Book Synopsis Stress Reduction for Caregivers by : Jody Olshevski

Download or read book Stress Reduction for Caregivers written by Jody Olshevski and published by Routledge. This book was released on 2013-11-12 with total page 154 pages. Available in PDF, EPUB and Kindle. Book excerpt: First published in 1999. Routledge is an imprint of Taylor & Francis, an informa company.

Quality of Life in Families of Children with Autism Spectrum Disorder

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ISBN 13 :
Total Pages : 180 pages
Book Rating : 4.:/5 (112 download)

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Book Synopsis Quality of Life in Families of Children with Autism Spectrum Disorder by : Emily Claire Gardiner

Download or read book Quality of Life in Families of Children with Autism Spectrum Disorder written by Emily Claire Gardiner and published by . This book was released on 2014 with total page 180 pages. Available in PDF, EPUB and Kindle. Book excerpt: Having a family member with a neurodevelopmental disorder (NDD) has significant implications for family functioning. Overall, research findings demonstrate that families of children with NDDs are less satisfied with their quality of life (QOL), across domains, than families of typically developing children, and that families of children with Autism Spectrum Disorder (ASD) are even less so. Although families of children with ASD are significantly at-risk, most research has included families of children with varied conditions, and has not examined predictors of family quality of life (FQOL) within specific NDD populations. This research gap, along with rising ASD awareness and prevalence, provides a strong rationale for devoting attention to this group specifically, and addressing the limitations that exist within this work. This research utilized a mixed-methods design to examine QOL among 84 families of children and adolescents (aged 6-18 years) with ASD living in British Columbia, and addressed three aims. First, the role of child characteristics, including adaptive functioning and behaviour problems, was examined in relation to FQOL. Adaptive functioning, and specifically daily living skills, emerged as a significant predictor of FQOL satisfaction, after accounting for behavioural and demographic characteristics, including child age, gender, perceived disability severity, and behavioural problems, as well as family income. Furthermore, there were significant differences across each domain of FQOL when groups were separated by daily living skill functioning level ('low,' 'moderately low,' and 'adequate'). Second, the relation between endorsed family resilience processes, based on Walsh's (2006, 2012) model, and FQOL satisfaction was examined. This revealed that greater endorsement of the 'family connectedness' and 'family communication and problem solving' processes significantly predicted FQOL when child and family demographic characteristics were accounted for. Finally, a subset (n = 15) of caregivers, representing both high and low levels of FQOL satisfaction, participated in a qualitative interview, during which they shared their perceptions of FQOL, both generally and in relation to specific topics, elaborated on service delivery experiences, and reflected on sources of family resilience. The findings are discussed in light of previous research, and the associated practice implications, as well as opportunities for future research, are highlighted.

Quality of Life of School-aged Children with Autism Spectrum Disorder

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ISBN 13 :
Total Pages : 0 pages
Book Rating : 4.:/5 (141 download)

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Book Synopsis Quality of Life of School-aged Children with Autism Spectrum Disorder by : Mandy Fulton

Download or read book Quality of Life of School-aged Children with Autism Spectrum Disorder written by Mandy Fulton and published by . This book was released on 2019 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Quality of life among children is a multidimensional construct that encompasses social, emotional, school, and physical well-being, and is influenced by both individual and contextual factors (Kuhlthau et al., 2013; WHO, 1995). The current study evaluated the quality of life of school-aged children with autism spectrum disorder(ASD) as perceived by their parent. To address limitations of previous work, global and domain-specific quality of life, variation across domains, and variation in ratings by the child’s age and gender were explored. Consistent with a bioecological framework, both individual (i.e., ASD symptom severity, maladaptive behaviours, adaptive skills, and grit) and contextual (i.e., parent mental health, sibling type, school type, reciprocal friendship, and leisure) factors were assessed in predicting quality of life. In addition to direct relationships, potential indirect relationships between specific individual and contextual factors and higher quality of life were examined. Data were collected online, internationally, from 152 parents of children ages 8 to 11 years old with ASD. Global and domain-specific quality of life were found to be lower compared to published normative data. Physical quality of life was higher than social, school, and emotional quality of life and school quality of life was higher than social quality of life. Neither the child’s age nor gender was significantly associated with quality of life. Symptoms of ASD, maladaptive behaviours, and adaptive skills predicted social quality of life; maladaptive behaviours and adaptive skills predicted emotional quality of life; maladaptive behaviours, adaptive skills, and grit predicted school quality of life; and maladaptive behaviours and adaptive skills predicted physical quality of life. No support was found for indirect relationships. Implications for understanding and improving quality of life among school-aged children with ASD are discussed.

Burden of Care and Health-related Quality of Life Among Caregivers of Children with Autism Spectrum Disorder

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ISBN 13 :
Total Pages : pages
Book Rating : 4.:/5 (635 download)

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Book Synopsis Burden of Care and Health-related Quality of Life Among Caregivers of Children with Autism Spectrum Disorder by : Rahul Khanna

Download or read book Burden of Care and Health-related Quality of Life Among Caregivers of Children with Autism Spectrum Disorder written by Rahul Khanna and published by . This book was released on 2010 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:

Caregiver Burden and Health-related Quality of Life in Receiving a Diagnosis of an Autism Spectrum Disorder

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ISBN 13 :
Total Pages : 270 pages
Book Rating : 4.:/5 (17 download)

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Book Synopsis Caregiver Burden and Health-related Quality of Life in Receiving a Diagnosis of an Autism Spectrum Disorder by : Melissa Louise Stuart

Download or read book Caregiver Burden and Health-related Quality of Life in Receiving a Diagnosis of an Autism Spectrum Disorder written by Melissa Louise Stuart and published by . This book was released on 2007 with total page 270 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Family Quality of Life in Caregivers of Individuals with Moderate to Severe Autism Spectrum Disorder (ASD) in Singapore

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ISBN 13 :
Total Pages : 162 pages
Book Rating : 4.:/5 (11 download)

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Book Synopsis Family Quality of Life in Caregivers of Individuals with Moderate to Severe Autism Spectrum Disorder (ASD) in Singapore by : Tiffany Peiqi Wang

Download or read book Family Quality of Life in Caregivers of Individuals with Moderate to Severe Autism Spectrum Disorder (ASD) in Singapore written by Tiffany Peiqi Wang and published by . This book was released on 2017 with total page 162 pages. Available in PDF, EPUB and Kindle. Book excerpt:

The effects of caregiver support and quality of life for parents of children with autism spectrum disorder

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ISBN 13 :
Total Pages : 0 pages
Book Rating : 4.:/5 (14 download)

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Book Synopsis The effects of caregiver support and quality of life for parents of children with autism spectrum disorder by : Armash Derzakarian

Download or read book The effects of caregiver support and quality of life for parents of children with autism spectrum disorder written by Armash Derzakarian and published by . This book was released on 2016 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Families Raising a Child with Autism Spectrum Disorder

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ISBN 13 :
Total Pages : 282 pages
Book Rating : 4.:/5 (15 download)

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Book Synopsis Families Raising a Child with Autism Spectrum Disorder by : Liezl Schlebusch

Download or read book Families Raising a Child with Autism Spectrum Disorder written by Liezl Schlebusch and published by . This book was released on 2015 with total page 282 pages. Available in PDF, EPUB and Kindle. Book excerpt: Using a family quality of life approach in early childhood intervention recognises that the impact of disability spreads beyond the child and that it places demands on various domains of family life. It is recommended that service providers recognise the responsibility to serve the family as a whole and that an enhanced family quality of life can be an appropriate outcome for services to families of young children with disabilities. To be able to enhance family quality of life, it is important to understand how family dynamics and family beliefs influence family quality of life. The purpose of this study was to determine the relationship between regular family routines and family quality of life in families raising a child with Autism Spectrum Disorder (ASD); and secondly, to investigate whether this relationship is mediated by the cognitive appraisal of the impact of ASD on the family. A sample of 180 families of young children with ASD who are receiving disability-related services in one South African province completed a survey of three family measures. Structural equation modeling examined the mediating effect of cognitive appraisal on the relationship between the regularity of family routines and family quality of life. The results suggest that: (a) there is a positive relationship between the regularity of family routines and family quality of life, and (b) that the cognitive appraisal of the impact of ASD on the family acts as a partial mediator on this relationship. The findings support the importance of creating and maintaining regular family routines in relation to families’ quality of life, and highlight the role of the how families’ appraise the impact of ASD on the family.