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Patient Education For People With Parkinsons Disease And Their Carers
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Book Synopsis Patient Education for People with Parkinson's Disease and their Carers by : Marcia Smith Pasqualini
Download or read book Patient Education for People with Parkinson's Disease and their Carers written by Marcia Smith Pasqualini and published by John Wiley & Sons. This book was released on 2006-10-02 with total page 290 pages. Available in PDF, EPUB and Kindle. Book excerpt: This manual provides the information and materials needed to conduct an eight-session patient education programme for people with Parkinson’s disease and their carers, complementing medical treatment. This programme was developed within an interdisciplinary European consortium, comprising research and clinical centres in Germany, Spain, Finland, Italy, The Netherlands, Estonia and the United Kingdom. In addition to dealing with the motor symptoms of Parkinson’s disease, many people also struggle with the psychological and social effects. In fact, people at every stage of the disease can be faced with problems such as depression, anxiety, stressful social interactions, and difficulties communicating, all of which can disrupt their lives. This programme draws upon basic psychological principles and presents specific strategies that people can use to manage these difficulties. The ultimate goal of the programme is to empower people with Parkinson’s disease and their carers to improve their own quality of life. Although the programme is standardised, flexibility is built into the programme to facilitate its use in different cultures, and with different types of patient and carer groups. Patient Education for People with Parkinson’s Disease and Their Carers: A Manaual is essential reading for all health care professionals and trained volunteers working with people with Parkinson’s disease and their carers.
Book Synopsis The Complete Guide for People With Parkinson’s Disease and Their Loved Ones by : Lianna Marie
Download or read book The Complete Guide for People With Parkinson’s Disease and Their Loved Ones written by Lianna Marie and published by Purdue University Press. This book was released on 2020-10-15 with total page 183 pages. Available in PDF, EPUB and Kindle. Book excerpt: A diagnosis of Parkinson’s disease is as disorienting as it is devastating. The Complete Guide for People With Parkinson’s Disease and Their Loved Ones helps make sense of what comes next and what can be done, not just for those suffering from the disease but for their family and friends as well. A trained nurse and primary caregiver for her mother, who was diagnosed with Parkinson’s disease in 1991, Lianna Marie draws upon over twenty years of education, research, and direct experience. Written in straightforward and easily accessible language, this essential guide aims to help patients better understand their role in their treatment so that they may continue to lead happy and hopeful lives. Topics covered include nutrition and exercise, alternative and complementary therapies, medication and treatment, and what caregivers can do to help. Written by an international expert on Parkinson’s who has confronted the disease firsthand, The Complete Guide serves as the go-to book for comprehensive, easy-to-understand information for all Parkinson’s patients and their loved ones.
Book Synopsis Parkinson's Disease by : William J. Weiner
Download or read book Parkinson's Disease written by William J. Weiner and published by JHU Press. This book was released on 2006-11-13 with total page 291 pages. Available in PDF, EPUB and Kindle. Book excerpt: Recent innovations, including deep brain stimulation and new medications, have significantly improved the lives of people with Parkinson’s disease. Nevertheless, medical, emotional, and physical challenges remain. The second edition of this accessible and comprehensive guide provides crucial information for managing this complex condition, including details on the use of medications, diet, exercise, complementary therapies, and surgery. The second edition includes new information about: • The genetic and hereditary pattern of the disease • Medications and uses of established medications • Other approaches to treating the symptoms of Parkinson’s • Juvenile-onset Parkinson’s disease • Normal pressure hydrocephalus • The effects of fluctuating hormones on disease symptoms • Fetal cell transplants and porcine cell transplants • The nutritional supplement Co-Enzyme Q10
Book Synopsis Atypical Parkinsonian Disorders by : Irene Litvan
Download or read book Atypical Parkinsonian Disorders written by Irene Litvan and published by Springer Science & Business Media. This book was released on 2007-10-27 with total page 512 pages. Available in PDF, EPUB and Kindle. Book excerpt: A comprehensive review of what is known not only about the cause and treatment of atypical parksonian disorders, but also the issues that clinicians, researchers, patients, and caregivers face in dealing with them. The authors cover the basic science (history, epidemiology, genetics, pathology, nosology, computer modeling, and animal models), detailed clinical and laboratory assessments, and available diagnostic tools, including neuropsychiatric, neurologic, neuropsychologic, speech, electrophysiologic, and imaging evaluations. Current and future therapeutic approaches are also detailed, along with extensive discussions about future research directions.
Book Synopsis Everything You Need to Know About Caregiving for Parkinson’s Disease by : Lianna Marie
Download or read book Everything You Need to Know About Caregiving for Parkinson’s Disease written by Lianna Marie and published by Purdue University Press. This book was released on 2020-10-15 with total page 151 pages. Available in PDF, EPUB and Kindle. Book excerpt: Caregiving for those who suffer from Parkinson’s disease comes with many challenges, from how to deal with guilt and loneliness to avoiding burnout and figuring out what to expect from an unpredictable disease. When giving care, too often caregivers neglect their own well-being. Everything You Need to Know About Caregiving for Parkinson’s Disease is not just about caring for your loved one, but also about taking care of yourself. Lianna Marie served as her mother's caregiver for more than twenty years after she was diagnosed with Parkinson’s disease. Drawing on firsthand experience, her training as a nurse, and the many stories of others she has helped and counseled over the years, Marie shares her wisdom and advice—practical and emotional. Written accessibly and without jargon, Everything You Need to Know provides an essential resource full of useful information for all caregivers of those with Parkinson’s disease.
Book Synopsis Caring for the Parkinson Patient by : J. Thomas Hutton
Download or read book Caring for the Parkinson Patient written by J. Thomas Hutton and published by . This book was released on 1999 with total page 262 pages. Available in PDF, EPUB and Kindle. Book excerpt: New treatments and advances in therapy for the ravages of Parkinson's disease are constantly being researched and perfected for patients, yet those afflicted still must endure tremors, poor balance, speech problems, and lessened psychological well-being. Patients and families need the most up-to-date information available to improve quality of care and life. This new, second edition of Caring for the Parkinson Patient covers a variety of topics, providing information and helpful suggestions for patients, families, and caregivers to aid them as they grapple with this chronic, debilitating neurological disorder. Sixteen accessible and information-packed essays by noted contributors address diagnosis and treatment, new research, communication, physical/ occupational therapy, nursing care, problems faced by the caregiver, emotional changes, "neurorehab," prevention of falls, sleep problems, surgery, community supports, the family, sexuality, and safe home environments. With a wealth of information, practical advice, and encouragement, Caring for the Parkinson Patient is an indispensable resource guide for all those touched by Parkinson's disease.
Book Synopsis Navigating Life with Parkinson's Disease by : Sotirios A. Parashos MD
Download or read book Navigating Life with Parkinson's Disease written by Sotirios A. Parashos MD and published by Oxford University Press. This book was released on 2020-06-16 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: Navigating Life with Parkinson's Disease is a guide for anyone affected by Parkinson's, providing useful information to those with Parkinson's and their caregivers, family, and friends. This extensively revised second edition contains up-to-date information on recent research and the latest adaptive equipment available to those living with Parkinson's disease. Discussing available treatments and providing practical advice, this book emphasizes lifestyle adjustments that provide a better quality of life for patients and their loved ones. The material is organized so that chapters can be read sequentially or individually, and the index and glossary facilitate the use of the book as a quick reference. Q&A sections, thoughts from people living with Parkinson's and Ask the Experts boxes address often-overlooked topics in physician-directed disease management, such as how to talk to family and friends about one's life with Parkinson's. Promoting a patient-centered approach, Navigating Life with Parkinson Disease empowers patients and their families to manage their health care.
Book Synopsis Navigating Life with Parkinson Disease by : Sotirios Parashos
Download or read book Navigating Life with Parkinson Disease written by Sotirios Parashos and published by Oxford University Press. This book was released on 2012-11-20 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: Here is a marvelous guide for anyone affected by Parkinson's disease--patients, caregivers, family members, and friends. Containing the most up-to-date information on the disease, one of the most common neurological disorders, it discusses the available treatments and provides practical advice on how to manage the disease in the long term. Emphasizing life-style adjustments that will provide a better quality of life and moderate the burden for patients and their loved ones, the book answers many questions and clarifies misunderstandings regarding the disease. Written by two experts on Parkinson's disease and a freelance journalist, the book is approachable and easily understandable. Question and answer sections are provided, while "hot topics" are highlighted for easy visibility. The authors have also included true patient stories that will both inspire and instruct, and they have addressed several topics often not mentioned in physician-directed disease management, such as how to talk to family and friends about one's life with Parkinson's.
Book Synopsis Parkinson's Disease and Quality of Life by : Lucien Cote
Download or read book Parkinson's Disease and Quality of Life written by Lucien Cote and published by Routledge. This book was released on 2014-01-21 with total page 210 pages. Available in PDF, EPUB and Kindle. Book excerpt: Learn to handle the problems that Parkinson's patients face Through Parkinson's Disease and Quality of Life, you will discover common problem areas seen in patients with Parkinson's disease. This book explores problems that interfere with functional independence of patients and gives examples of occupational therapy intervention and treatment techniques. Parkinson's Disease and Quality of Life boldly deals with many seldom talked about real-life issues facing people with Parkinson's disease, including continued sexual intimacy and urinary incontinence. Although these issues may not be curable, this book provides you with effective treatments through data and case studies. Parkinson's Disease and Quality of Life offers caregivers a step-by-step plan to get organized. It includes a plan to put together a workbook of all relevant information, as well as tips on how to safeguard every room for a Parkinson's disease patient. This book helps remind you that the families of the patient must not be forgotten and that they can get the help they need through support groups, community resources, and from professional staffing such as nurses and aides. Parkinson's Disease and Quality of Life will assist you in helping your patients by: using music therapy to help calm patients realizing the legal impact of Parkinson's disease by discussing living wills, health care proxies, durable power of attorney, and revocable and irrevocable trusts with your clients discovering that cognitive changes, dementia, and depression can complicate the treatment of the disease and be more disabling than the loss of motor function exploring the nursing home as a viable options for clients as well as their families Parkinson's Disease and Quality of Life also brings to light the important subject of knowing the patients insurance policies and working out contingency plans, like living wills, before they are needed. This book gives you much-needed information on accessing benefits for Parkinson's patients, including medicare, social security, Veteran's benefits, and much more. Parkinson's Disease and Quality of Life is full of methods and ideas to improve the lives of the Parkinson's patient as well as their families.
Book Synopsis Self-management support to handle everyday life with Parkinson´s disease by : Carina Hellqvist
Download or read book Self-management support to handle everyday life with Parkinson´s disease written by Carina Hellqvist and published by Linköping University Electronic Press. This book was released on 2020-04-27 with total page 108 pages. Available in PDF, EPUB and Kindle. Book excerpt: Background: Being diagnosed with Parkinson´s disease (PD) is a life-altering experience. The long-term condition requires continuous adjustments to the everyday life not only of the person affected, but also for care partners. There is still insufficient knowledge on how best to support this process of acceptance and adjustment to encourage self-management. Aims: The aim of this thesis is to enhance the knowledge and understanding of self-management for persons with PD (PwPD) and their care partners. Furthermore, to investigate whether the self-management intervention Swedish National Parkinson School can be used as a tool to support self-management, and how nurses specialised in the care of persons with Parkinson´s disease can tailor their support to encourage self-management in everyday life. Method and design: Both qualitative and quantitative designs and methods were used in the three studies included in this thesis. Participants included a total of 209 persons. Of these, 127 were persons with PD and 75 were care partners. Participants with PD were largely in the middle stages of the disease. The time since diagnosis ranged from less than one year to over 20 years, and most participants had lived with the disease for around five years. Participants were cared for at five separate outpatient clinics, both geriatric and neurological, in three county and two university hospitals across Sweden. Data collection included observations, interviews, self-reported questionnaires and audio-recordings of the National Parkinson School in clinical care. The overall results of this thesis were obtained using a qualitative approach, where the results of the three studies were analysed using qualitative thematic analysis as described by Braun and Clarke (2006). Results: In combining the results of the separate studies through thematic analysis three distinct but interrelated themes were evident. These described the processes and efforts of persons to accept, manage and adjust to everyday life with PD. The theme “A changed reality” involves participants´ descriptions of how life changed after the diagnosis of PD. For many this was a shock, and both the person affected and their care partners experienced a variety of emotions such as anger, denial and hopelessness. It changed their personal identities, their perception of themselves as individuals and as a couple. They worried about what the future would hold, and the uncertainty was hard to accept and handle. One strategy for processing and beginning to acknowledge the new situation involved speaking openly about the diagnosis. The second theme “Finding a new path”, involves a description of how, after accepting or at least acknowledging, their new reality, participants started to find ways of managing the impact of PD on everyday life, incorporating it into their current life and identity. Many felt new knowledge was needed and turned to books and websites on PD. An intervention which was appreciated in terms of providing tools for self-observation and self-knowledge was the Swedish National Parkinson School. Participants later used these techniques to communicate and observe symptoms and healthcare needs. Being an active participant in life and performing activities such as physical exercise or other activities they enjoyed were also used as a strategy to feel satisfaction in life. Participants frequently worked out self-care and compensatory strategies to handle everyday tasks. Another strategy they found comforting and helpful involved retaining a positive mind-set and believing that a good future lay ahead. In the third category “The companions”, the participants described self-management in everyday life as a task they performed together. Management of PD was considered the shared responsibility of the person affected and the care partner, but was also influenced by others such as family members and close friends. The Swedish National Parkinson School provided knowledge as a form of common ground for the person affected and the care partner. During the Swedish National Parkinson School, the social interaction involved in exchanging experiences and feeling support from others in the same situation was considered helpful and was much appreciated. Conclusions: Management of PD in everyday life involves both the person affected and the care partner. After the initial emotional reactions, alongside feelings of lost identity and an altered life, persons started to look to the future and were ready to find ways of handling the changed conditions of their everyday lives. Persons with PD and their care partners were now willing to learn more about PD and to find tools and strategies to help them manage its impact on their everyday lives. During this phase, they appreciated the support of the Swedish National Parkinson School intervention. In the intervention, they would meet others in the same situation to find support and exchange experiences. They also turn to healthcare for support in the process of self-management in everyday life. Nurses working specifically to support PwPD and their CP will need to tailor support taking into account the disease trajectory as well as the psychological processes involved in accepting and adjusting to PD to best fit the unique needs and wishes of every person with PD and their care partner.
Book Synopsis Occupational Therapy for People with Parkinson's Disease by : Ana Aragon
Download or read book Occupational Therapy for People with Parkinson's Disease written by Ana Aragon and published by . This book was released on 2010 with total page 76 pages. Available in PDF, EPUB and Kindle. Book excerpt: These practice guidelines draw upon the widest relevant knowledge and evidence available to describe and inform contemporary best practice occupational therapy for people with Parkinson's disease. They include practical examples of interventions to allow occupational therapists to apply new treatments to their practice.
Book Synopsis An Essay on the Shaking Palsy by : James Parkinson
Download or read book An Essay on the Shaking Palsy written by James Parkinson and published by . This book was released on 1817 with total page 86 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Diagnosis Parkinson's Disease...Now What? by : Rory M Graham
Download or read book Diagnosis Parkinson's Disease...Now What? written by Rory M Graham and published by Independently Published. This book was released on 2023-10-17 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book was written for the person with Parkinson's Disease and their caregivers. The goal of this book is to introduce the realities of living with Parkinson's Disease and to bring comfort and familiarity to its many facets. Topics covered: Nutrition, Exercise, Therapies, Medications, Technology, Mental Health, Emotional Support, Sleep Management and more. Through sound education, better decisions can be made by both the patient and the caregiver. This book provides you with new ways to cope and navigate the symptoms and challenges that you will encounter on your way to a fulfilling life. This book will help you find those next steps. I was a caregiver for my wife who had Parkinson's Disease for 23 years, so I know how difficult this disease can be for the patient and the caregiver. Parkinson's is a different experience for everyone, but I wrote this book with the hope of providing you with a guide to ease your journey
Book Synopsis Parkinson's Disease Management through ICT by : Joan Cabestany
Download or read book Parkinson's Disease Management through ICT written by Joan Cabestany and published by CRC Press. This book was released on 2022-09-01 with total page 166 pages. Available in PDF, EPUB and Kindle. Book excerpt: Parkinson's Disease (PD) is a neurodegenerative disorder that manifests with motor and non-motor symptoms. PD treatment is symptomatic and tries to alleviate the associated symptoms through an adjustment of the medication. As the disease is evolving and this evolution is patient specific, it could be very difficult to properly manage the disease.The current available technology (electronics, communication, computing, etc.), correctly combined with wearables, can be of great use for obtaining and processing useful information for both clinicians and patients allowing them to become actively involved in their condition.Parkinson's Disease Management through ICT: The REMPARK Approach presents the work done, main results and conclusions of the REMPARK project (2011 – 2015) funded by the European Union under contract FP7-ICT-2011-7-287677. REMPARK system was proposed and developed as a real Personal Health Device for the Remote and Autonomous Management of Parkinson’s Disease, composed of different levels of interaction with the patient, clinician and carers, and integrating a set of interconnected sub-systems: sensor, auditory cueing, Smartphone and server. The sensor subsystem, using embedded algorithmics, is able to detect the motor symptoms associated with PD in real time. This information, sent through the Smartphone to the REMPARK server, is used for an efficient management of the disease.
Book Synopsis Palliative Care in Neurology by : Raymond Voltz
Download or read book Palliative Care in Neurology written by Raymond Voltz and published by Frontiers Media SA. This book was released on 2020-03-10 with total page 153 pages. Available in PDF, EPUB and Kindle. Book excerpt: Over the last 50 years palliative care has usually been associated with cancer patients but more recently there has been increased discussion of the role of palliative care for neurological patients. In the past years, neurology has moved from being a purely diagnostic area to a very therapeutically active one. A further step needs to be taken to modify the therapeutic activity from “cure” to “care” depending on the patient’s disease trajectory. Palliative care has been associated with care at the end of life, whereas it may be appropriate earlier in the disease progression, and will extend after death in the support of bereaved families. The care of patients with neurological disease, and their families, will encompass the psychological, spiritual and existential issues and neurologists, and the teams in which they work, should develop skills to consider all aspects of care, in order to maximize the quality of life of all involved, and enable patients to die peacefully.
Author :National Collaborating Centre for Chronic Conditions (Great Britain) Publisher :Royal College of Physicians ISBN 13 :1860162835 Total Pages :243 pages Book Rating :4.8/5 (61 download)
Book Synopsis Parkinson's Disease by : National Collaborating Centre for Chronic Conditions (Great Britain)
Download or read book Parkinson's Disease written by National Collaborating Centre for Chronic Conditions (Great Britain) and published by Royal College of Physicians. This book was released on 2006 with total page 243 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Ending Parkinson's Disease by : Ray Dorsey
Download or read book Ending Parkinson's Disease written by Ray Dorsey and published by PublicAffairs. This book was released on 2020-03-17 with total page 271 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this "must-read" guide (Lonnie Ali), four leading doctors and advocates offer a bold action plan to prevent, care for, and treat Parkinson's disease-one of the great health challenges of our time. Brain diseases are now the world's leading source of disability. The fastest growing of these is Parkinson's: the number of impacted patients has doubled to more than six million over the last twenty-five years and is projected to double again by 2040. Harmful pesticides that increase the risk of Parkinson's continue to proliferate, many people remain undiagnosed and untreated, research funding stagnates, and the most effective treatment is now a half century old. In Ending Parkinson's Disease, four top experts provide a plan to help prevent Parkinson's, improve care and treatment, and end the silence associated with this devastating disease.
