Patient Data Protection Changing Healthb

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Patient Data Protection Changing Healthb

Author : Griet Verhenneman
Publisher : Intersentia
ISBN 13 : 9781839701245
Total Pages : 405 pages
Book Rating : 4.7/5 (12 download)

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Book Synopsis Patient Data Protection Changing Healthb by : Griet Verhenneman

Download or read book Patient Data Protection Changing Healthb written by Griet Verhenneman and published by Intersentia. This book was released on 2021-03-31 with total page 405 pages. Available in PDF, EPUB and Kindle. Book excerpt: Healthcare is changing. It is moving to a paperless environment, a team-based, interdisciplinary and patient-centred profession. Value-driven strategies, evidence-based medicine, data-driven technology, decision support and automated decision-making are adopted in modern healthcare models. Health-related data are subject to eagerness characterising our data-driven economy.00Amidst these changes, is the patient and his or her right to data protection, privacy and autonomy.00The question arises how to match phenomena that characterise the predominant ethos in modern healthcare systems, such as e-health and personalised medicine, with patient autonomy and data protection laws. That matching exercise is essential. The successful adoption of ICT in healthcare depends, at least partly, on how the public?s concerns about data protection and confidentiality are addressed.00Three backbone principles of European data protection law, in particular, are considered bottlenecks for the implementation of modern healthcare systems: informed consent, anonymisation and purpose limitation. The book assesses the adequacy of these principles and considers them in the context of technological and societal evolutions. A must-read for every professional active in the field of data protection law, health law, policy development or IT-driven innovation.

Data Protection and Privacy in Healthcare

Author : Ahmed Elngar
Publisher : CRC Press
ISBN 13 : 1000349314
Total Pages : 269 pages
Book Rating : 4.0/5 (3 download)

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Book Synopsis Data Protection and Privacy in Healthcare by : Ahmed Elngar

Download or read book Data Protection and Privacy in Healthcare written by Ahmed Elngar and published by CRC Press. This book was released on 2021-03-09 with total page 269 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Healthcare industry is one of the largest and rapidly developing industries. Over the last few years, healthcare management is changing from disease centered to patient centered. While on one side the analysis of healthcare data plays an important role in healthcare management, but on the other side the privacy of a patient’s record must be of equal concern. This book uses a research-oriented approach and focuses on privacy-based healthcare tools and technologies. It offers details on privacy laws with real-life case studies and examples, and addresses privacy issues in newer technologies such as Cloud, Big Data, and IoT. It discusses the e-health system and preserving its privacy, and the use of wearable technologies for patient monitoring, data streaming and sharing, and use of data analysis to provide various health services. This book is written for research scholars, academicians working in healthcare and data privacy domains, as well as researchers involved with healthcare law, and those working at facilities in security and privacy domains. Students and industry professionals, as well as medical practitioners might also find this book of interest.

Privacy and Healthcare Data

Author : Christina Munns
Publisher : Taylor & Francis
ISBN 13 : 1317075722
Total Pages : 364 pages
Book Rating : 4.3/5 (17 download)

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Book Synopsis Privacy and Healthcare Data by : Christina Munns

Download or read book Privacy and Healthcare Data written by Christina Munns and published by Taylor & Francis. This book was released on 2017-05-15 with total page 364 pages. Available in PDF, EPUB and Kindle. Book excerpt: In order for the information society to realise its full potential, personal data has to be disclosed, used and often shared. This book explores the disclosure and sharing of data within the area of healthcare. Including an overview of how health information is currently managed, the authors argue that with changes in modern society, the idea of personal relationships with a local GP who solely holds and controls your health records is becoming rapidly outdated. The authors aim to encourage and empower patients to make informed choices about sharing their health data. They do this by developing a three-stage theoretical model for change to the roles of the NHS and the individual. The study generates debate to stimulate and inspire new models and policy, and to provoke new visions for the sharing of healthcare data. Such discussion is framed through an exploration of the changing concept of 'privacy' and 'patient control' in healthcare information management. The volume draws on best practices from Europe and the USA and combines these to form a suggested vision for the UK as an early adopter of change. The volume will be essential reading for academics in the field of privacy and data protection, as well as healthcare and informatics professionals across different jurisdictions.

Protecting Data Privacy in Health Services Research

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309071879
Total Pages : 208 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis Protecting Data Privacy in Health Services Research by : Institute of Medicine

Download or read book Protecting Data Privacy in Health Services Research written by Institute of Medicine and published by National Academies Press. This book was released on 2001-01-13 with total page 208 pages. Available in PDF, EPUB and Kindle. Book excerpt: The need for quality improvement and for cost saving are driving both individual choices and health system dynamics. The health services research that we need to support informed choices depends on access to data, but at the same time, individual privacy and patient-health care provider confidentiality must be protected.

Registries for Evaluating Patient Outcomes

Author : Agency for Healthcare Research and Quality/AHRQ
Publisher : Government Printing Office
ISBN 13 : 1587634333
Total Pages : 396 pages
Book Rating : 4.5/5 (876 download)

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Book Synopsis Registries for Evaluating Patient Outcomes by : Agency for Healthcare Research and Quality/AHRQ

Download or read book Registries for Evaluating Patient Outcomes written by Agency for Healthcare Research and Quality/AHRQ and published by Government Printing Office. This book was released on 2014-04-01 with total page 396 pages. Available in PDF, EPUB and Kindle. Book excerpt: This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.

Beyond the HIPAA Privacy Rule

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309124999
Total Pages : 334 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Beyond the HIPAA Privacy Rule by : Institute of Medicine

Download or read book Beyond the HIPAA Privacy Rule written by Institute of Medicine and published by National Academies Press. This book was released on 2009-03-24 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.

European Data Protection: In Good Health?

Author : Serge Gutwirth
Publisher : Springer Science & Business Media
ISBN 13 : 9400729022
Total Pages : 368 pages
Book Rating : 4.4/5 (7 download)

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Book Synopsis European Data Protection: In Good Health? by : Serge Gutwirth

Download or read book European Data Protection: In Good Health? written by Serge Gutwirth and published by Springer Science & Business Media. This book was released on 2012-02-23 with total page 368 pages. Available in PDF, EPUB and Kindle. Book excerpt: Although Europe has a significant legal data protection framework, built up around EU Directive 95/46/EC and the Charter of Fundamental Rights, the question of whether data protection and its legal framework are ‘in good health’ is increasingly being posed. Advanced technologies raise fundamental issues regarding key concepts of data protection. Falling storage prices, increasing chips performance, the fact that technology is becoming increasingly embedded and ubiquitous, the convergence of technologies and other technological developments are broadening the scope and possibilities of applications rapidly. Society however, is also changing, affecting the privacy and data protection landscape. The ‘demand’ for free services, security, convenience, governance, etc, changes the mindsets of all the stakeholders involved. Privacy is being proclaimed dead or at least worthy of dying by the captains of industry; governments and policy makers are having to manoeuvre between competing and incompatible aims; and citizens and customers are considered to be indifferent. In the year in which the plans for the revision of the Data Protection Directive will be revealed, the current volume brings together a number of chapters highlighting issues, describing and discussing practices, and offering conceptual analysis of core concepts within the domain of privacy and data protection. The book’s first part focuses on surveillance, profiling and prediction; the second on regulation, enforcement, and security; and the third on some of the fundamental concepts in the area of privacy and data protection. Reading the various chapters it appears that the ‘patient’ needs to be cured of quite some weak spots, illnesses and malformations. European data protection is at a turning point and the new challenges are not only accentuating the existing flaws and the anticipated difficulties, but also, more positively, the merits and the need for strong and accurate data protection practices and rules in Europe, and elsewhere.

Medical Data Privacy Handbook

Author : Aris Gkoulalas-Divanis
Publisher : Springer
ISBN 13 : 3319236334
Total Pages : 832 pages
Book Rating : 4.3/5 (192 download)

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Book Synopsis Medical Data Privacy Handbook by : Aris Gkoulalas-Divanis

Download or read book Medical Data Privacy Handbook written by Aris Gkoulalas-Divanis and published by Springer. This book was released on 2015-11-26 with total page 832 pages. Available in PDF, EPUB and Kindle. Book excerpt: This handbook covers Electronic Medical Record (EMR) systems, which enable the storage, management, and sharing of massive amounts of demographic, diagnosis, medication, and genomic information. It presents privacy-preserving methods for medical data, ranging from laboratory test results to doctors’ comments. The reuse of EMR data can greatly benefit medical science and practice, but must be performed in a privacy-preserving way according to data sharing policies and regulations. Written by world-renowned leaders in this field, each chapter offers a survey of a research direction or a solution to problems in established and emerging research areas. The authors explore scenarios and techniques for facilitating the anonymization of different types of medical data, as well as various data mining tasks. Other chapters present methods for emerging data privacy applications and medical text de-identification, including detailed surveys of deployed systems. A part of the book is devoted to legislative and policy issues, reporting on the US and EU privacy legislation and the cost of privacy breaches in the healthcare domain. This reference is intended for professionals, researchers and advanced-level students interested in safeguarding medical data.

Medical Records Confidentiality in a Changing Health Care Environment

Author : United States. Congress. Senate. Committee on Health, Education, Labor, and Pensions
Publisher :
ISBN 13 :
Total Pages : 140 pages
Book Rating : 4.F/5 ( download)

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Book Synopsis Medical Records Confidentiality in a Changing Health Care Environment by : United States. Congress. Senate. Committee on Health, Education, Labor, and Pensions

Download or read book Medical Records Confidentiality in a Changing Health Care Environment written by United States. Congress. Senate. Committee on Health, Education, Labor, and Pensions and published by . This book was released on 1999 with total page 140 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Clinical Data as the Basic Staple of Health Learning

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309120608
Total Pages : 338 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Clinical Data as the Basic Staple of Health Learning by : Institute of Medicine

Download or read book Clinical Data as the Basic Staple of Health Learning written by Institute of Medicine and published by National Academies Press. This book was released on 2011-01-14 with total page 338 pages. Available in PDF, EPUB and Kindle. Book excerpt: Successful development of clinical data as an engine for knowledge generation has the potential to transform health and health care in America. As part of its Learning Health System Series, the Roundtable on Value & Science-Driven Health Care hosted a workshop to discuss expanding the access to and use of clinical data as a foundation for care improvement.

Health Data Processing

Author : Marius Fieschi
Publisher : Elsevier
ISBN 13 : 0081027583
Total Pages : 340 pages
Book Rating : 4.0/5 (81 download)

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Book Synopsis Health Data Processing by : Marius Fieschi

Download or read book Health Data Processing written by Marius Fieschi and published by Elsevier. This book was released on 2018-07-13 with total page 340 pages. Available in PDF, EPUB and Kindle. Book excerpt: Health Data Processing: Systemic Approaches focuses on the design of health information systems and touches on the main themes of medical informatics and public health. The book is written for health professionals in practice or training, and is especially useful for decision-makers or future decision-makers in the field of health information systems. Users will find sections on the question of reusing data for other purposes, protection of individual liberties that this data and technologies make more acute, and the irruption of large masses of genetic data and its related problems. This book develops the methodological and conceptual aspects related to these issues. Proposes a methodology for the development of health information systems for the better use of digital technologies Illustrates a systemic, transversal, conceptual vision that supports the complex reality of the healthcare world, where the interoperability of agents (professionals and software) is central Discusses the reuse of resources of data for knowledge improvement, health security and public health

Medical Records and the Law

Author : William H. Roach Jr.
Publisher : Jones & Bartlett Publishers
ISBN 13 : 1449663524
Total Pages : 613 pages
Book Rating : 4.4/5 (496 download)

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Book Synopsis Medical Records and the Law by : William H. Roach Jr.

Download or read book Medical Records and the Law written by William H. Roach Jr. and published by Jones & Bartlett Publishers. This book was released on 2006-04-18 with total page 613 pages. Available in PDF, EPUB and Kindle. Book excerpt: Published in conjunction with the American Health Information Management Association (AHIMA), Medical Records and the Law is the ideal text for programs in HIM as well as a valuable reference for health and legal professionals. The Fourth Edition features an expanded discussion of state laws affecting the use and disclosure of health information and the substantial changes brought about by HIPAA and the growth of electronic health record systems. It also discusses the highly complex interplay of federal and state laws as well as the challenging area of how patient information may be used in connection with medical research involving human subjects.

Medical Records Confidentiality in a Changing Health Care Environment

Author : James M. Jeffords
Publisher : DIANE Publishing
ISBN 13 : 0756702917
Total Pages : 121 pages
Book Rating : 4.7/5 (567 download)

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Book Synopsis Medical Records Confidentiality in a Changing Health Care Environment by : James M. Jeffords

Download or read book Medical Records Confidentiality in a Changing Health Care Environment written by James M. Jeffords and published by DIANE Publishing. This book was released on 2000-10 with total page 121 pages. Available in PDF, EPUB and Kindle. Book excerpt: Examines issues relating to medical records confidentiality in a changing health care environment. Witnesses: John Bentivoglio, Counsel for Health Care Fraud, Justice Dept.; Lynne Hunt, Chief, Financial Crimes Section, FBI; Ronald Weich, ACLU; Robyn Shapiro, Center for the Study of Bioethics, Med. College of WI, for the ABA; LaDonna Shedor, Healthcare Leadership Council; Paul Appelbaum, Amer. Psychiatric Assoc.; and John Curd, Genentech, Inc. Also, Chris Koyanagi, Consumer Coalition for Health Privacy; Robert Pyles, Amer. Psychoanalytic Assoc.; Kathryn Sebelius, Nat. Assoc. of Insur. Commiss.; and the Wash. Bus. Group on Health.

Digital Health and Patient Data

Author : Disa Lee Choun
Publisher : CRC Press
ISBN 13 : 1000620719
Total Pages : 152 pages
Book Rating : 4.0/5 (6 download)

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Book Synopsis Digital Health and Patient Data by : Disa Lee Choun

Download or read book Digital Health and Patient Data written by Disa Lee Choun and published by CRC Press. This book was released on 2022-08-03 with total page 152 pages. Available in PDF, EPUB and Kindle. Book excerpt: Patients with unmet needs will continue to increase as no viable nor adequate treatment exists. Meanwhile, healthcare systems are struggling to cope with the rise of patients with chronic diseases, the ageing population and the increasing cost of drugs. What if there is a faster and less expensive way to provide better care for patients using the right digital solutions and transforming the growing volumes of health data into insights? The increase of digital health has grown exponentially in the last few years. Why is there a slow uptake of these new digital solutions in the healthcare and pharmaceutical industries? One of the key reasons is that patients are often left out of the innovation process. Their data are used without their knowledge, solutions designed for them are developed without their input and healthcare professionals refuse their expertise. This book explores what it means to empower patients in a digital world and how this empowerment will bridge the gap between science, technology and patients. All these components need to co-exist to bring value not only to the patients themselves but to improve the healthcare ecosystem. Patients have taken matters into their own hands. Some are equipped with the latest wearables and applications, engaged in improving their health using data, empowered to make informed decisions and ultimately are experts in their disease(s). They are the e-patients. The other side of the spectrum are patients with minimal digital literacy but equally willing to donate their data for the purpose of research. Finding the right balance when using digital health solutions becomes as critical as the need to develop a disease-specific solution. For the first time, the authors look at healthcare and technologies through the lens of patients and physicians via surveys and interviews in order to understand their perspective on digital health, analyse the benefits for them, explore how they can actively engage in the innovation process, and identify the threats and opportunities the large volumes of data create by digitizing healthcare. Are patients truly ready to know everything about their health? What is the value of their data? How can other stakeholders join the patient empowerment movement? This unique perspective will help us re-design the future of healthcare - an industry in desperate need for a change.

How Healthcare Data Privacy Is Almost Dead ... and What Can Be Done to Revive It!

Author : John J. Trinckes, Jr.
Publisher : CRC Press
ISBN 13 : 1351982753
Total Pages : 253 pages
Book Rating : 4.3/5 (519 download)

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Book Synopsis How Healthcare Data Privacy Is Almost Dead ... and What Can Be Done to Revive It! by : John J. Trinckes, Jr.

Download or read book How Healthcare Data Privacy Is Almost Dead ... and What Can Be Done to Revive It! written by John J. Trinckes, Jr. and published by CRC Press. This book was released on 2017-01-27 with total page 253 pages. Available in PDF, EPUB and Kindle. Book excerpt: The healthcare industry is under privacy attack. The book discusses the issues from the healthcare organization and individual perspectives. Someone hacking into a medical device and changing it is life-threatening. Personal information is available on the black market. And there are increased medical costs, erroneous medical record data that could lead to wrong diagnoses, insurance companies or the government data-mining healthcare information to formulate a medical ‘FICO’ score that could lead to increased insurance costs or restrictions of insurance. Experts discuss these issues and provide solutions and recommendations so that we can change course before a Healthcare Armageddon occurs.

Making Healthcare Safe

Author : Lucian L. Leape
Publisher : Springer Nature
ISBN 13 : 3030711234
Total Pages : 450 pages
Book Rating : 4.0/5 (37 download)

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Book Synopsis Making Healthcare Safe by : Lucian L. Leape

Download or read book Making Healthcare Safe written by Lucian L. Leape and published by Springer Nature. This book was released on 2021-05-28 with total page 450 pages. Available in PDF, EPUB and Kindle. Book excerpt: This unique and engaging open access title provides a compelling and ground-breaking account of the patient safety movement in the United States, told from the perspective of one of its most prominent leaders, and arguably the movement’s founder, Lucian L. Leape, MD. Covering the growth of the field from the late 1980s to 2015, Dr. Leape details the developments, actors, organizations, research, and policy-making activities that marked the evolution and major advances of patient safety in this time span. In addition, and perhaps most importantly, this book not only comprehensively details how and why human and systems errors too often occur in the process of providing health care, it also promotes an in-depth understanding of the principles and practices of patient safety, including how they were influenced by today’s modern safety sciences and systems theory and design. Indeed, the book emphasizes how the growing awareness of systems-design thinking and the self-education and commitment to improving patient safety, by not only Dr. Leape but a wide range of other clinicians and health executives from both the private and public sectors, all converged to drive forward the patient safety movement in the US. Making Healthcare Safe is divided into four parts: I. In the Beginning describes the research and theory that defined patient safety and the early initiatives to enhance it. II. Institutional Responses tells the stories of the efforts of the major organizations that began to apply the new concepts and make patient safety a reality. Most of these stories have not been previously told, so this account becomes their histories as well. III. Getting to Work provides in-depth analyses of four key issues that cut across disciplinary lines impacting patient safety which required special attention. IV. Creating a Culture of Safety looks to the future, marshalling the best thinking about what it will take to achieve the safe care we all deserve. Captivatingly written with an “insider’s” tone and a major contribution to the clinical literature, this title will be of immense value to health care professionals, to students in a range of academic disciplines, to medical trainees, to health administrators, to policymakers and even to lay readers with an interest in patient safety and in the critical quest to create safe care.

For the Record

Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309056977
Total Pages : 287 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis For the Record by : National Research Council

Download or read book For the Record written by National Research Council and published by National Academies Press. This book was released on 1997-07-09 with total page 287 pages. Available in PDF, EPUB and Kindle. Book excerpt: When you visit the doctor, information about you may be recorded in an office computer. Your tests may be sent to a laboratory or consulting physician. Relevant information may be transmitted to your health insurer or pharmacy. Your data may be collected by the state government or by an organization that accredits health care or studies medical costs. By making information more readily available to those who need it, greater use of computerized health information can help improve the quality of health care and reduce its costs. Yet health care organizations must find ways to ensure that electronic health information is not improperly divulged. Patient privacy has been an issue since the oath of Hippocrates first called on physicians to "keep silence" on patient matters, and with highly sensitive dataâ€"genetic information, HIV test results, psychiatric recordsâ€"entering patient records, concerns over privacy and security are growing. For the Record responds to the health care industry's need for greater guidance in protecting health information that increasingly flows through the national information infrastructureâ€"from patient to provider, payer, analyst, employer, government agency, medical product manufacturer, and beyond. This book makes practical detailed recommendations for technical and organizational solutions and national-level initiatives. For the Record describes two major types of privacy and security concerns that stem from the availability of health information in electronic form: the increased potential for inappropriate release of information held by individual organizations (whether by those with access to computerized records or those who break into them) and systemic concerns derived from open and widespread sharing of data among various parties. The committee reports on the technological and organizational aspects of security management, including basic principles of security; the effectiveness of technologies for user authentication, access control, and encryption; obstacles and incentives in the adoption of new technologies; and mechanisms for training, monitoring, and enforcement. For the Record reviews the growing interest in electronic medical records; the increasing value of health information to providers, payers, researchers, and administrators; and the current legal and regulatory environment for protecting health data. This information is of immediate interest to policymakers, health policy researchers, patient advocates, professionals in health data management, and other stakeholders.