Navigating Life with Amyotrophic Lateral Sclerosis

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Author :
Publisher : Oxford University Press
ISBN 13 : 0190241632
Total Pages : 232 pages
Book Rating : 4.1/5 (92 download)

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Book Synopsis Navigating Life with Amyotrophic Lateral Sclerosis by : Mark B. Bromberg

Download or read book Navigating Life with Amyotrophic Lateral Sclerosis written by Mark B. Bromberg and published by Oxford University Press. This book was released on 2017-04-03 with total page 232 pages. Available in PDF, EPUB and Kindle. Book excerpt: Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS, a disease that affects approximately 5,600 Americans every year, with as many as 30,000 people managing the disease at any given time. ALS is a difficult disease for the patient and is also challenging for the caregiver and family as there are many questions, issues relating to care, and problems to manage. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Navigating Life with Amyotrophic Lateral Sclerosis is unique because it covers two perspectives: one author is a neurologist with 30 years of experience treating ALS patients, and the other author experienced first-hand the issues in providing care for a parent with ALS. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease.

Navigating Life with Parkinson Disease

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Author :
Publisher : Oxford University Press
ISBN 13 : 019931120X
Total Pages : 320 pages
Book Rating : 4.1/5 (993 download)

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Book Synopsis Navigating Life with Parkinson Disease by : Sotirios Parashos

Download or read book Navigating Life with Parkinson Disease written by Sotirios Parashos and published by Oxford University Press. This book was released on 2012-11-20 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: Here is a marvelous guide for anyone affected by Parkinson's disease--patients, caregivers, family members, and friends. Containing the most up-to-date information on the disease, one of the most common neurological disorders, it discusses the available treatments and provides practical advice on how to manage the disease in the long term. Emphasizing life-style adjustments that will provide a better quality of life and moderate the burden for patients and their loved ones, the book answers many questions and clarifies misunderstandings regarding the disease. Written by two experts on Parkinson's disease and a freelance journalist, the book is approachable and easily understandable. Question and answer sections are provided, while "hot topics" are highlighted for easy visibility. The authors have also included true patient stories that will both inspire and instruct, and they have addressed several topics often not mentioned in physician-directed disease management, such as how to talk to family and friends about one's life with Parkinson's.

Navigating Life with Multiple Sclerosis

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Author :
Publisher : Brain and Life Books
ISBN 13 : 0199381739
Total Pages : 209 pages
Book Rating : 4.1/5 (993 download)

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Book Synopsis Navigating Life with Multiple Sclerosis by : Kathleen Costello

Download or read book Navigating Life with Multiple Sclerosis written by Kathleen Costello and published by Brain and Life Books. This book was released on 2015 with total page 209 pages. Available in PDF, EPUB and Kindle. Book excerpt: Navigating Life with Multiple Sclerosis will serve as a practical guide for meeting the challenges of this life-long disease. MS may cause a myriad of symptoms and varies greatly from person to person. The authors demystify MS and offer practical solutions and guidance based upon their extensive combined clinical and research experience. The book tackles many of the common symptoms experienced by the person with MS and looks into the future to explore where research is headed. If you are newly diagnosed or have been living with MS for years, this book is an invaluable guide.

Navigating Life with a Brain Tumor

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Author :
Publisher : Oxford University Press
ISBN 13 : 0199897794
Total Pages : 230 pages
Book Rating : 4.1/5 (998 download)

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Book Synopsis Navigating Life with a Brain Tumor by : Lynne P. Taylor

Download or read book Navigating Life with a Brain Tumor written by Lynne P. Taylor and published by Oxford University Press. This book was released on 2012-12-06 with total page 230 pages. Available in PDF, EPUB and Kindle. Book excerpt: Navigating Life with a Brain Tumor is a guide for anyone affected by brain tumors and their associated conditions-patients, family members, friends, and caregivers. Providing readily accessible information and real-world encouragement to people living with primary and metastatic brain tumors and their caregivers, this book discusses the basics of brain tumors, types of tumors, management of different tumors, related symptoms, treatments and side effects, the role of medical team members, and coping strategies from initial diagnosis throughout the course of the illness. At the same time, it also offers practical suggestions on symptom management and lifestyle modification, as well as real-life anecdotes and advice from both patients and family members and friends who are experiencing this diagnosis.

Lou Gehrig Disease, Als Or Amyotrophic Lateral Sclerosis Explained. Als Symptoms, Signs, Stages, Types, Diagnosis, Treatment, Caregiver Tips, Aids And

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Author :
Publisher : Imb Publishing
ISBN 13 : 9781909151604
Total Pages : 154 pages
Book Rating : 4.1/5 (516 download)

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Book Synopsis Lou Gehrig Disease, Als Or Amyotrophic Lateral Sclerosis Explained. Als Symptoms, Signs, Stages, Types, Diagnosis, Treatment, Caregiver Tips, Aids And by : Robert Rymore

Download or read book Lou Gehrig Disease, Als Or Amyotrophic Lateral Sclerosis Explained. Als Symptoms, Signs, Stages, Types, Diagnosis, Treatment, Caregiver Tips, Aids And written by Robert Rymore and published by Imb Publishing. This book was released on 2013-08-01 with total page 154 pages. Available in PDF, EPUB and Kindle. Book excerpt: The author, Robert Rymore, had a good friend who was diagnosed with Lou Gehrig Disease. He wanted to be able to help her and decided to buy some books about the disease. To his disappointment there was a lack of good informative books available on the subject. He decided to investigate the subject thoroughly and write a book about it to be able to help others. He decided he would start talking to professionals - doctors, physical therapists, speech therapists and occupational therapists - to learn more. He quickly realized the information he was getting would be extremely valuable for other people with ALS and their loved ones. This book has been a labor of love, one born of necessity and certainly one that aims to help those with ALS, their families, and their friends. ALS symptoms, signs, stages, types, diagnosis, treatment, caregiver tips, aids and what to expect is all covered. Including chapters about financial considerations, famous people with Lou Gehrig Disease and resources. The book is written in an easy to read and understandable style and contains tips for caregivers.

Amyotrophic Lateral Sclerosis

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Author :
Publisher : Contemporary Neurology
ISBN 13 :
Total Pages : 520 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Amyotrophic Lateral Sclerosis by : Hiroshi Mitsumoto

Download or read book Amyotrophic Lateral Sclerosis written by Hiroshi Mitsumoto and published by Contemporary Neurology. This book was released on 1998 with total page 520 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume provides comprehensive background for understanding amyotrophic lateral sclerosis (ALS) and a critical review of research. It points out the distinguishing characteristics of the disease and testing procedures for reliable diagnosis.

Navigating Life with Epilepsy

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Author :
Publisher : Oxford University Press
ISBN 13 : 0199358966
Total Pages : 256 pages
Book Rating : 4.1/5 (993 download)

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Book Synopsis Navigating Life with Epilepsy by : David C. Spencer

Download or read book Navigating Life with Epilepsy written by David C. Spencer and published by Oxford University Press. This book was released on 2016-09-01 with total page 256 pages. Available in PDF, EPUB and Kindle. Book excerpt: Roughly 3 million people in the United States have already been diagnosed with epilepsy and another 200,000 new cases are diagnosed each year. Worldwide, approximately 1 percent of the global population is diagnosed with epilepsy at some point in their lives. With the diagnosis come questions, concerns, and uncertainties from both the person diagnosed and their family. So, where to go? Navigating Life with Epilepsy provides accessible, comprehensive, and up-to-date information about epilepsy shared from the two decades of experience of epileptologist David Spencer, MD, FAAN. This book guides the reader through the initial diagnosis, offers explanations on current approaches to diagnostic testing, medications, treatment options, and life management for the patient, their family, and their caregiver. Patient's stories are peppered throughout to illustrate that you are not alone: like you, they must navigate the myriad psychosocial challenges associated with epilepsy, including everyday concerns like driving, work, and relationships. Navigating Life with Epilepsy is a perfect resource for both patients with epilepsy and the family members and friends who care for them.

Someone I Love Has ALS

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Author :
Publisher : People Tested Publications
ISBN 13 : 9780996867801
Total Pages : 136 pages
Book Rating : 4.8/5 (678 download)

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Book Synopsis Someone I Love Has ALS by : Jodi O'Donnell-Ames

Download or read book Someone I Love Has ALS written by Jodi O'Donnell-Ames and published by People Tested Publications. This book was released on 2015-09-09 with total page 136 pages. Available in PDF, EPUB and Kindle. Book excerpt: Kevin and Jodi O'Donnell, were a young New Jersey couple busy raising a toddler and making plans for their future when they received life-altering news in 1995 that changed everything as they knew it. Kevin was only 30 years old when he was told that his health problems were the result of a rare, terminal disease called ALS (Amyotrophic Lateral Sclerosis), or Lou Gehrig's disease. Kevin and Jodi had not heard of ALS until then and had no idea how those three letters would challenge everything they thought to be certain. After more than 20 years of working with ALS families, Jodi realized that more information and better resources could be available to help families who are coming to grips with the challenges of the disease and the caregiving responsibilities that are involved. In the Introduction to "Someone I Love Has ALS: A Family Caregiver's Guide," Jodi recounts the journey she took as a caregiver, advocate and writer and embraces and shares the lessons learned throughout the pages of this wonderful guide, "This guide was created by a variety of caregivers and professionals who have years of experience with various aspects of ALS. It was written by volunteers and experts who care about ALS and your journey. It is the resource that I wish we had received along with the shocking diagnosis." Although Kevin died of ALS in 2001 at the age 35, the disease never won the battle. ALS only strengthened Kevin and Jodi's love for God and each other and it created an even bigger purpose and plan: the creation of Hope Loves Company(r), the only non-profit whose mission is to support the children and grandchildren caregivers of PALS (people with ALS).

Navigating Life with Amyotrophic Lateral Sclerosis

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Author :
Publisher : Oxford University Press
ISBN 13 : 0190241624
Total Pages : 281 pages
Book Rating : 4.1/5 (92 download)

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Book Synopsis Navigating Life with Amyotrophic Lateral Sclerosis by : Mark B. Bromberg

Download or read book Navigating Life with Amyotrophic Lateral Sclerosis written by Mark B. Bromberg and published by Oxford University Press. This book was released on 2017 with total page 281 pages. Available in PDF, EPUB and Kindle. Book excerpt: Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS, a disease that affects approximately 5,600 Americans every year, with as many as 30,000 people managing the disease at any given time. ALS is a difficult disease for the patient and is also challenging for the caregiver and family as there are many questions, issues relating to care, and problems to manage. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Navigating Life with Amyotrophic Lateral Sclerosis is unique because it covers two perspectives: one author is a neurologist with 30 years of experience treating ALS patients, and the other author experienced first-hand the issues in providing care for a parent with ALS. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease.

The Deanna Protocol

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Author :
Publisher :
ISBN 13 : 9781941102107
Total Pages : pages
Book Rating : 4.1/5 (21 download)

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Book Synopsis The Deanna Protocol by : Vincent Tedone

Download or read book The Deanna Protocol written by Vincent Tedone and published by . This book was released on 2015-07-10 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: The authors are in a life and death struggle against a terrible disease, Amyotrophic Lateral Sclerosis, which is referred to as ALS or Lou Gehrig's disease. If you or a loved one have been diagnosed with ALS, then you need to read this book. The Deanna Protocol® program was discovered by Dr. Tedone, Deanna's father, only after failing, again and again, with everything that he tried. The massage, non-exhausting exercise and core supplements, which are inexpensive and available without prescription from many suppliers. The program works for many ALS patients. It is not a cure, however, it provides a better quality of life and has been shown in ALS mice to extend life and improve motor skills. The rate of progression of ALS symptoms reported in ALSFRS scores, is markedly reduced in those adhering to the Deanna Protocol® program. There a few side effects reported, and those are manageable for most, if the program is phased in, gradually, over time.

ALS Saved My Life... Until It Didn't

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Author :
Publisher :
ISBN 13 : 9780692066690
Total Pages : 278 pages
Book Rating : 4.0/5 (666 download)

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Book Synopsis ALS Saved My Life... Until It Didn't by : Dr. Jenni Kleinman Berebitsky

Download or read book ALS Saved My Life... Until It Didn't written by Dr. Jenni Kleinman Berebitsky and published by . This book was released on 2018-03-18 with total page 278 pages. Available in PDF, EPUB and Kindle. Book excerpt: The author shares her insights and perspectives on living with ALS, or Lou Gehrig's disease, sharing both her thoughts on life and happiness as well as practical ideas for daily living with this progressive neuromuscular disease.

Navigating Life with Migraine and Other Headaches

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Author :
Publisher : Oxford University Press
ISBN 13 : 0190640766
Total Pages : 217 pages
Book Rating : 4.1/5 (96 download)

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Book Synopsis Navigating Life with Migraine and Other Headaches by : William B. Young

Download or read book Navigating Life with Migraine and Other Headaches written by William B. Young and published by Oxford University Press. This book was released on 2018 with total page 217 pages. Available in PDF, EPUB and Kindle. Book excerpt: The book is geared toward the patient and their families and is written in a style that is easily understood; Provide advice on how to select a doctor and what information to provide to the doctor; Provides specific examples of all types of headaches and a real feeling for the condition; Takes a systematic approach to alternative treatments and provides evidence to support how these treatments can help alleviate headache symptoms. Table of Contents Section 1: Managing Your Headaches 1- Introduction: Why Is Headache So Important? 2- Pain, Disability, and Stigma in Persons with Headache 3- The History of Headache 4- Headaches Requiring Urgent Medical Attention 5- Managing Headaches, an Overview Section 2: Primary Headache Disorders 6- Migraine: Causes and Triggers 7- Treating Migraine with Medication 8- Alternative and Behavioral Treatments for Migraine 9- Migraine in Kids 10- Managing the Conditions That Often Coexist with Migraine 11- Tension-Type Headache 12- Cluster Headache 13- Unusual Primary Headaches Section 3: Secondary Headaches and Neuralgias 14- Sinus Headache and Nasal Disease 15- Disorders of the Neck 16- Post-Traumatic Headache 17- Atypical Facial Pain 18- Trigeminal Neuralgia Glossary Appendix - Resources for Patients with Headache Disorders Index.

ALS

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Author :
Publisher : Createspace Independent Publishing Platform
ISBN 13 : 9781534988668
Total Pages : 0 pages
Book Rating : 4.9/5 (886 download)

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Book Synopsis ALS by : Eliot H. Dunsky

Download or read book ALS written by Eliot H. Dunsky and published by Createspace Independent Publishing Platform. This book was released on 2016-11-04 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Eliot H. Dunsky, MD, is a retired physician who since his diagnosis in 2009 has been living with ALS, the complex, progressively debilitating disorder commonly known as Lou Gehrig's disease. Determined to maintain the best quality of life possible-for as long as possible-he extensively researched the condition and its management. As he immersed himself, talking to ALS patients and exploring emerging assistive technologies and aids, he realized that misunderstanding of this complicated disease was rife, preventing many from making the most of the precious years left. The result is this compilation of not only his personal experiences as his own condition advanced but also current research and links to additional specialized resources. Its aim is to help other patients learn to live with their diagnosis and navigate the day-to-day struggles associated with it. Appropriate symptom management can help fend off the devastating effects of the disease for a longer period of time. ALS: An Orientation offers a practical guide for patients and their families on maximizing quality of life through strategic care and, importantly, coping with the emotional toll the disease can take. A terminal diagnosis simply means savoring to the fullest the life that is still possible.

Palliative Care in Amyotrophic Lateral Sclerosis

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Author :
Publisher : Oxford University Press, USA
ISBN 13 : 0199686025
Total Pages : 337 pages
Book Rating : 4.1/5 (996 download)

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Book Synopsis Palliative Care in Amyotrophic Lateral Sclerosis by : David Oliver

Download or read book Palliative Care in Amyotrophic Lateral Sclerosis written by David Oliver and published by Oxford University Press, USA. This book was released on 2014 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume provides an evidence-based guide to the care of people with ALS/MND, including the control of symptoms, the psychosocial care of patients and their families, and care in bereavement.

Principles of Behavioral and Cognitive Neurology

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Author :
Publisher : Oxford University Press
ISBN 13 : 0195134753
Total Pages : 577 pages
Book Rating : 4.1/5 (951 download)

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Book Synopsis Principles of Behavioral and Cognitive Neurology by : M.-Marsel Mesulam

Download or read book Principles of Behavioral and Cognitive Neurology written by M.-Marsel Mesulam and published by Oxford University Press. This book was released on 2000-01-27 with total page 577 pages. Available in PDF, EPUB and Kindle. Book excerpt: This thoroughly revised new edition of a classic book provides a clinically inspired but scientifically guided approach to the biological foundations of human mental function in health and disease. It includes authoritative coverage of all the major areas related to behavioral neurology, neuropsychology, and neuropsychiatry. Each chapter, written by a world-renowned expert in the relevant area, provides an introductory background as well as an up-to-date review of the most recent developments. Clinical relevance is emphasized but is placed in the context of cognitive neuroscience, basic neuroscience, and functional imaging. Major cognitive domains such as frontal lobe function, attention and neglect, memory, language, prosody, complex visual processing, and object identification are reviewed in detail. A comprehensive chapter on behavioral neuroanatomy provides a background for brain-behavior interactions in the cerebral cortex, limbic system, basal ganglia, thalamus, and cerebullum. Chapters on temperolimbic epilepsy, major psychiatric syndromes, and dementia provide in-depth analyses of these neurobehavioral entities and their neurobiological coordinates. Changes for this second edition include the reflection throughout the book of the new and flourishing alliance of behavioral neurology, neuropsychology, and neuropsychiatry with cognitive science;major revision of all chapters; new authorship of those on language and memory; and the inclusion of entirely new chapters on psychiatric syndromes and the dementias. Both as a textbook and a reference work, the second edition of Principles of Behavioral and Cognitive Neurology represents an invaluable resource for behavioral neurologists, neuropsychologists, neuropsychiatrists, cognitive and basic neuroscientists, geriatricians, physiatrists, and their students and trainees.

But She Still Can Love: A Child's Understanding of ALS

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Author :
Publisher :
ISBN 13 : 9780578896571
Total Pages : 28 pages
Book Rating : 4.8/5 (965 download)

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Book Synopsis But She Still Can Love: A Child's Understanding of ALS by : Amalia Flecksteiner

Download or read book But She Still Can Love: A Child's Understanding of ALS written by Amalia Flecksteiner and published by . This book was released on 2021-04-08 with total page 28 pages. Available in PDF, EPUB and Kindle. Book excerpt: ALS, or amyotrophic lateral sclerosis, is a progressive neurodegenerative disease that currently has no cure. ALS is a disease that typically involves a gradual onset, with initial symptoms that can be quite varied in different people. One person may struggle with lifting a coffee cup or grasping a pen, while others may begin slurring or losing their speech - ALS affects everyone differently. Regardless, ALS is a disease that always takes - takes someone's ability to help themselves, takes someone's ability to express themselves, and ultimately takes someone from the ones who love them most.Mom was taken from us by this disease too soon. She was a nurse of over 30 years, always taking care of others, to end up being taken care of herself. Though we ultimately lost Mom to ALS, we gained a purpose to bring awareness and support to others who may have or had the same experience with their loved one. Whether it's Mom, Dad, Grandma, Grandpa, or another loved one affected by this disease that always takes, always remember - but they still can love.For more ALS information and resources, visit als.org. A large portion of the proceeds from this book will benefit the ALS Association of Georgia Chapter's 'Walk to Defeat ALS' in honor of Mom, Marina Pascarelli.

Eyes to the Wind

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Author :
Publisher : Simon and Schuster
ISBN 13 : 1982111550
Total Pages : 304 pages
Book Rating : 4.9/5 (821 download)

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Book Synopsis Eyes to the Wind by : Ady Barkan

Download or read book Eyes to the Wind written by Ady Barkan and published by Simon and Schuster. This book was released on 2022-01-18 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this inspirational and moving memoir, activist Barkan explores his life with ALS and how his diagnosis gave him a profound new understanding of his commitment to social justice for all.