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My Life As A Sickle Cell Warrior
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Book Synopsis My Life as a Sickle Cell Warrior by : Patricia Maley
Download or read book My Life as a Sickle Cell Warrior written by Patricia Maley and published by Xlibris Corporation. This book was released on 2016-08-19 with total page 143 pages. Available in PDF, EPUB and Kindle. Book excerpt: Walk a mile in the shoes of a sickle-cell warrior, one who hoped to fulfill her calling in this world. To blend in like all the normal people in the world. Almost everything she did was through survival mode; at work, at home, in school and all in all within the community. You will notice how this blood borne disease knocks her down and even makes her vulnerable numerous times as she has a brush with death. But only courage, determination and encouragement have helped her accomplish so much successfully.
Book Synopsis Living the Sickled Life by : Bryan Ballard
Download or read book Living the Sickled Life written by Bryan Ballard and published by . This book was released on 2022-06-19 with total page 176 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle Cell is a inherited blood disease that causes problems throughout ones life. These problems could be minor or even life threatening. This particular warrior puts on an unimaginable fight with Sickle Cell. Including ups and downs throughout his life that even doctor's are shocked he is still here to tell his story on how he is... "Living the Sickled Life"
Download or read book Still Standing written by Toyin ADESOLA and published by . This book was released on 2020-09-22 with total page 188 pages. Available in PDF, EPUB and Kindle. Book excerpt: Osteo what?" I thought. I was not to know that it would take me into the dark abyss of anxiety, depression, hopelessness and even bitterness. Indeed, I was in a place where I had come to learn the meaning of the word "longsuffering" ...Sometimes it looks like life has dealt you a bad hand, but what you make of it is crucial in living life to the fullest. There is no gainsaying that the road won't be easy, however when life gives you lemons, dont just make lemonade, but make smoothies, ice cream and cakes out of them. There is a strength that comes with every battle. YOU CAN DO IT.In reading this book, I hope you are inspired to look beyond your circumstances. Once you see beyond them, they will serve as stepping stones to God's purpose for your life, has planned for you.
Book Synopsis Diary of a Little Warrior by : Sakiyyah Burwell-Darden
Download or read book Diary of a Little Warrior written by Sakiyyah Burwell-Darden and published by . This book was released on 2020-08-03 with total page 32 pages. Available in PDF, EPUB and Kindle. Book excerpt: Diary of a Little Warrior takes the readers on a journey of life living with sickle cell disease (SCD) from the perspective of a young sickle cell warrior. The young warrior provides details of what she deals with daily. As the young warrior shares her story, she is hopeful and optimistic through it all. The purpose of the book is to help educate people about sickle cell disease, raise awareness, and to empower other SCD warriors.
Book Synopsis The Real-Life Stories Of Sickle Cell - A Global Collaboration by : Agnes Nsofwa
Download or read book The Real-Life Stories Of Sickle Cell - A Global Collaboration written by Agnes Nsofwa and published by . This book was released on 2023-09-30 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: It's deemed the world's most common genetic disorder, but why is sickle cell disease still not fully understood in communities where it's very prevalent. The Real-Life Stories of Sickle Cell - A Global Collaboration presents stories from different parts of the world to enlighten us about the effects of this condition. Stories from sickle cell warriors, caregivers, healthcare professionals, and advocates capture these people's understanding and awareness of Sickle Cell Disease. You will read stories of hope, resilience, frustration, and sadness as we strive to bring these stories to the world. Although being the most common disorder, what this project taught us was that even people living with sickle cell disease do not get adequate treatment in most parts of the world. Sickle cell warriors are still stigmatised in different parts of the world. That sickle cell warriors would rather hide from peers or employers that they are affected, fearing the treatment they may receive. We have learned of warriors bearly getting adequate treatment because it's simply not available in their area. These stories will give you that understanding of how much we still need to do as a sickle cell community, to double our efforts to support people impacted from different parts of the world, especially developing countries.
Book Synopsis Strength of a Warrior by : Moses Ochieng
Download or read book Strength of a Warrior written by Moses Ochieng and published by . This book was released on 2021 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "In Strength of a Warrior, the author sheds light not only on the nature of the disease in general, but also offers great vision into how knowledge sharing and mindset change can lead to a substantial reduction in Sickle Cell diseas 'warriors' face each day, as they go through their crises like a soldier who understands the ultimate price at war and yet still finds the courage to take up arms. This book is a significant contribution to all the warriors out there as the author shares real-life experiences with fellow warriors to inspire hope, strength and courage; as well as to impart sound knowledge to every reader regarding Sickle Cell Disease management and prevention"--Page [4] of cover.
Book Synopsis My Life with Sickle Cell by : Daphne Wright
Download or read book My Life with Sickle Cell written by Daphne Wright and published by Xlibris. This book was released on 2008-09 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Sickle Cell Disease and My Life Struggles by : Carolyn Johnson
Download or read book Sickle Cell Disease and My Life Struggles written by Carolyn Johnson and published by . This book was released on 2015-07-07 with total page 78 pages. Available in PDF, EPUB and Kindle. Book excerpt: My heart felt like it was about to explode from the pain. As the nurse quickly left the room, I then became more irate. I began beating the walls and crying "Please, please, someone help me!" At this time, someone came and closed the door to my room and by doing that made me more irate. I began to scream so loud I thought I would spit my vocals out.
Book Synopsis Surviving Sickle Cell by : Kalysia Johnson
Download or read book Surviving Sickle Cell written by Kalysia Johnson and published by AuthorHouse. This book was released on 2020-10-14 with total page 126 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle Cell Anemia is a horrible disease to an outsider looking in. However, to me, it is no different than any other life-threatening disease! The only difference is Sickle Cell Anemia does not get the much-needed recognition it truly deserves. People know little or nothing about the disease because it is not seen as important like other well-known diseases are. I personally have an issue with that problem because I have Sickle Cell Anemia, and I have always been a lifelong advocate for it! Sickle Cell Anemia has affected me as well as many of my family members. There are countless other people in the world who also suffer from Sickle Cell Anemia. I decided to write my personal story because living with this disease has been quite a challenging journey for me, from my childhood until my middle-aged years. I have had both some good days and some bad ones, but God has kept me. So, I won’t complain! I feel as if I’ve been on an emotional roller coaster that has taken me on some highs and lows. It seems like I have been on this ride a million times over, and it simply will not stop. Despite experiencing some periodic turbulence, I have still managed to have some great times on this roller coaster ride! Therefore, I can honestly say, “It’s okay! I’m going to ride this ‘til the wheels fall off.” Plus, I know God will never, ever give me or anyone else more than we can handle! I have also learned how to weather the storms over the years. Early on, I lived my life worried every day because I was told that I was going to die at the age of 17. Accordingly, I lived with that expectation until I surpassed that deadline. Ever since then, I have been living my life without the constant fear of dying at such a tender age. Life is precious, and I live each day to the fullest! Sickle Cell Anemia is only a part of me; it is not the total sum of who I am!
Book Synopsis I Am a Living Testimony by : Bolaniran Deji-Adeyale
Download or read book I Am a Living Testimony written by Bolaniran Deji-Adeyale and published by . This book was released on 2021-02-12 with total page 122 pages. Available in PDF, EPUB and Kindle. Book excerpt: When asked what my reason for telling this story is, I said I only want to inspire and encourage other people facing the samechallenge, make them live life to the fullest with the people they love. Encourage them to love, laugh, play and share like they were as fit as a fiddle. There's a good that has come out of my experience with sickle-cell anaemia, and that's the privilege to counsel and be a muse of hope to children with the disorder. Nothing beats the joy of earning their parents' trust in this regard. Trust me.So, I thought "why not write my experience, so I can reach a larger audience, and spread this hope?" Why not reach other Sickle Cell Warriors with this one message: the doctor's report doesn't define you. Rather, embracing God's word for your life is, of all things, most important. I am a living witness to this! We are overcomers...we are warriors.... weare survivors!"For I know the plans I have for you, declares the LORD plans to prosper you and not to harm you, plans to give you hope and a future" (Jeremiah29:11).Furthermore, sickle cell patients are not abnormal people, the illness is not a curse and it is wrong to believe that investing in a child with the disorder is a waste of financial resources. With access to quality care, the symptoms can be controlled and disease complications managed such that sickle cell patients can live normally, even to old age. It is this positive message that I am so happy to share with my fellow survivors and the world: that they, too, can be all they want to be in life.Finally, this book is driven by a deep sense of gratitude for life and is a call of hope to all Sickle Cell Warriors to takethe life they have been given and make the most of it. For as long as there is breath in man, there is a bigger picturealready painted that in which there are no limitations to what can be achieved in between the doctor's visits and frightening episodes that leave you wishing you could do more.Of course, the challenges exist. And, for people like us, our life is rife with them, but everything works out an awesome victory for us, by God himself. Come to think of it? Without these obstacles, we'll never discover our incredible ability tobeat them, and come out dancing still? If God is by your side, you will beat any challenge.
Book Synopsis The Many Faces and Lives of Sickle Cell - A Global Collaboration by : Agnes Nsofwa
Download or read book The Many Faces and Lives of Sickle Cell - A Global Collaboration written by Agnes Nsofwa and published by . This book was released on 2022-06-19 with total page 300 pages. Available in PDF, EPUB and Kindle. Book excerpt: Captivating Stories of Survival, Bravery, and Resilience from around the World
Download or read book Travel Bravely written by Adejoke Ejiofor and published by . This book was released on 2021-06-19 with total page 152 pages. Available in PDF, EPUB and Kindle. Book excerpt: When Adejoke Ejiofor and her husband learned their firstborn child had sickle cell anemia, they thought there must be a mistake. Only one of them had ever tested positive for the sickle cell trait--or so they thought. Thus began their family's yearslong journey on the road to their son's better health. In searing and heartfelt detail, Ejiofor's memoir Travel Bravely traverses all the bad-tasting medications, painful treatments, and agonizing symptoms of sickle cell disease that made her son a true sickle cell warrior. Despite this test of faith, Ejiofor remained endlessly optimistic, trusting God for a breakthrough. Determined to find a cure for her son, she pursued multiple bone marrow transplants and even sought out in-vitro fertilization (IVF) and preimplantation genetic testing to increase their chances of success. Travel Bravely is the story of how one family searched to the ends of the earth to reach their victory. No matter what path you're on or what cure you're racing toward, Ejiofor's encouraging words will arm you with the bravery you need to face your journey with the strength of a warrior.
Download or read book Alexia's World written by Alexia Tennent and published by Tennflex Wellness. This book was released on 2019-11-10 with total page 44 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alexia's World is about a little girl living with sickle cell disease. She is passionate and full of life. While she is aware of her limitations, she places no limits on herself. She is funny, creative, energetic, bold, authentic, kind and compassionate. Her mom, who also has the disease, is her hero and best friend. Together they form a formidable team. They focus on wellness to control the symptoms of the disease. Alexia and her mom also help other children living with the disease to thrive despite the disease. The book chronicles her journey living with sickle cell disease. She speaks about the ups and downs of her life, including the struggles her family faces navigating the healthcare system and the joy of finding what has helped to improve her health-related quality of life. Alexia now lives relatively symptom free.
Book Synopsis The Monster Within Me by : Juanita McClain
Download or read book The Monster Within Me written by Juanita McClain and published by Xlibris Corporation. This book was released on 2018-02-28 with total page 23 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Monster Within Me is about a child who is born with a genetic blood disorder called sickle cell disease. She fears the disease because of the pain and other effects it causes her. And even though this monster will always live inside of her, she doesnt let it stop her from living a fulfilling life.
Book Synopsis Living with Sickle Cell Disease by : Judy Gray Johnson
Download or read book Living with Sickle Cell Disease written by Judy Gray Johnson and published by . This book was released on 2012-05-01 with total page 146 pages. Available in PDF, EPUB and Kindle. Book excerpt: Judy Gray was four when the pain first struck. As mysterious as it was excruciating, Judy's anguish confounded the local doctor, who advised her mother to apply liniment. It was not until Judy was a teenager that another doctor informed her aunt of the real cause of Judy's agony - something called sickle cell anemia. The social mores of that time, however, dictated that adults discussed nothing of substance with children. So Judy learned little about her ailment other than it could cause her to die. A frightened Judy simply put sickle cell disease out of her mind and suffered in silence as she went on with her life. Readers will follow Judy's journey through college, a teaching career, a short-lived marriage, and the raising of a daughter while enduring severe pain episodes. All the while, exhaustion was her constant companion. Living with Sickle Cell Disease: The Struggle to Survive is a story of Judy Gray Johnson's perseverance in the face of living with a little-understood chronic illness.
Book Synopsis First (& Last Time?!) Mum by : Esi Acey Eghan
Download or read book First (& Last Time?!) Mum written by Esi Acey Eghan and published by . This book was released on 2022-08-26 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "I didn't realise it would be 'a life for a life' looking back now. I thought it would be amazing. Life changing in a good way. I'd even go so far as saying that I thought it would be the making of me as a woman. Or at least be the 'adaptation' of me, in the best possible way." Come along and join Esi on her journey battling sickle cell anemia and then going on to develop a life-debilitating complication, avascular necrosis, post-pregnancy with a child with complex abnormalities. This young lady is a true warrior and even turns tragedy to triumph as she proudly reveals her very own homemade remedy, which she swears by, to help alleviate the pain and stress brought on by her condition. Well worth the read, a conversation starter around sickle cell anemia and the serious complications it does and can bring.
Book Synopsis A Life with Sickle Cell Anaemia by : Oluwatosin Adeyemo
Download or read book A Life with Sickle Cell Anaemia written by Oluwatosin Adeyemo and published by . This book was released on 2020-09-20 with total page 140 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book gives a detailed information about sickle cell disorder, the chronological history of it, some sickle cell experiences of the author corroborated with scientific information such as pubertal delay, pica, priapism, chronic leg ulcer, epistaxis and poems expressing the sickle cell experiences of sickle cell crises and complications.It is an investment by the author in the lives of its readers which will outlive him, such that many generations can learn from.At a time like this, this book is intended to create public awareness about sickle cell disorder, help sickle cell warriors to understand more about it and provide important information to family members and caregivers of sickle cell warriors and encourage more research into sickle cell disorder.My desire is that someday an affordable and easily accessible permanent cure for sickle cell disorder will be discovered.
