Multiple Dimensions Of Caregiving And Disability

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Multiple Dimensions of Caregiving and Disability

Author : Ronda C. Talley
Publisher : Springer Science & Business Media
ISBN 13 : 1461433843
Total Pages : 231 pages
Book Rating : 4.4/5 (614 download)

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Book Synopsis Multiple Dimensions of Caregiving and Disability by : Ronda C. Talley

Download or read book Multiple Dimensions of Caregiving and Disability written by Ronda C. Talley and published by Springer Science & Business Media. This book was released on 2012-06-27 with total page 231 pages. Available in PDF, EPUB and Kindle. Book excerpt: Caring for people with disabilities often becomes an all-encompassing responsibility for one or more family members. To manage the multifaceted demands, caregivers must possess strong multitasking skills, including the ability to assist with daily life tasks; provide emotional support; help with financial affairs; mediate and advocate with health care providers. Maintaining balance within their own lives can become incredibly challenging for caregivers. More often than not, providing care for family members or loved ones occurs at the expense of the caregivers’ well-being. And for caregivers who themselves have disabilities, it further complicates matters. Multiple Dimensions of Caregiving and Disability addresses concerns that have been long familiar to the caregiver population and examines the current state of family care for individuals with disabilities. With a lifespan perspective, this concise reference reviews the literature on specific problems of caregivers and explores which care strategies are effective, promising, or lacking in available resources and support interventions. Contributors also explore the more fluid and subjective aspects of caregiving, such as feelings, spirituality, and family roles. Suggestions for future policy improvements, particularly within the public health sector, are discussed as well. Topics covered include: • Family dynamics and caregiving for people with disabilities. • Parent caregiving of children with disabilities. • Race, ethnicity, socioeconomic status, and caregiving. • Educational, training, and support programs for caregivers. • Emerging technologies to aid caregivers. • Developing partnerships between caregivers and health care providers. Multiple Dimensions of Caregiving and Disability is a must-have resource for researchers, scientist-practitioners, policy makers, and graduate students across such disciplines as clinical psychology, nursing, social work, public health, medicine, and social and education policy.

Families Caring for an Aging America

Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309448093
Total Pages : 367 pages
Book Rating : 4.3/5 (94 download)

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Book Synopsis Families Caring for an Aging America by : National Academies of Sciences, Engineering, and Medicine

Download or read book Families Caring for an Aging America written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-08 with total page 367 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

Patient Safety and Quality

Author : Ronda Hughes
Publisher : Department of Health and Human Services
ISBN 13 :
Total Pages : 592 pages
Book Rating : 4.:/5 (318 download)

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Book Synopsis Patient Safety and Quality by : Ronda Hughes

Download or read book Patient Safety and Quality written by Ronda Hughes and published by Department of Health and Human Services. This book was released on 2008 with total page 592 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/

Support for Caregiving Families

Author : George H. S. Singer
Publisher : Brookes Publishing Company
ISBN 13 :
Total Pages : 374 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Support for Caregiving Families by : George H. S. Singer

Download or read book Support for Caregiving Families written by George H. S. Singer and published by Brookes Publishing Company. This book was released on 1989 with total page 374 pages. Available in PDF, EPUB and Kindle. Book excerpt:

The Future of Disability in America

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309104726
Total Pages : 619 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis The Future of Disability in America by : Institute of Medicine

Download or read book The Future of Disability in America written by Institute of Medicine and published by National Academies Press. This book was released on 2007-10-24 with total page 619 pages. Available in PDF, EPUB and Kindle. Book excerpt: The future of disability in America will depend on how well the U.S. prepares for and manages the demographic, fiscal, and technological developments that will unfold during the next two to three decades. Building upon two prior studies from the Institute of Medicine (the 1991 Institute of Medicine's report Disability in America and the 1997 report Enabling America), The Future of Disability in America examines both progress and concerns about continuing barriers that limit the independence, productivity, and participation in community life of people with disabilities. This book offers a comprehensive look at a wide range of issues, including the prevalence of disability across the lifespan; disability trends the role of assistive technology; barriers posed by health care and other facilities with inaccessible buildings, equipment, and information formats; the needs of young people moving from pediatric to adult health care and of adults experiencing premature aging and secondary health problems; selected issues in health care financing (e.g., risk adjusting payments to health plans, coverage of assistive technology); and the organizing and financing of disability-related research. The Future of Disability in America is an assessment of both principles and scientific evidence for disability policies and services. This book's recommendations propose steps to eliminate barriers and strengthen the evidence base for future public and private actions to reduce the impact of disability on individuals, families, and society.

Family Support and Family Caregiving across Disabilities

Author : George H.S. Singer
Publisher : Routledge
ISBN 13 : 1317979133
Total Pages : 215 pages
Book Rating : 4.3/5 (179 download)

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Book Synopsis Family Support and Family Caregiving across Disabilities by : George H.S. Singer

Download or read book Family Support and Family Caregiving across Disabilities written by George H.S. Singer and published by Routledge. This book was released on 2014-06-11 with total page 215 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family members provide the majority of care for individuals with disabilities in the United States. Recognition is growing that family caregiving deserves and may require societal support, and evidence-based practices have been established for reducing stress associated with caregiving. Despite the substantial research literature on family support that has developed, researchers, advocates and professionals have often worked in separate categorical domains such as family support for caregiving for the frail elderly, for individuals with mental illness, or for people with development disabilities. Family Support and Family Caregiving across Disabilities addresses this significant limitation through cross-categorical and lifespan analyses of family support and family caregiving from the perspectives of theory and conceptual frameworks, empirical research, and frameworks and recommendations for improvements in public policy. The book also examines children with disabilities, children with autism, adults with schizophrenia, and individuals with cancer across the life cycle. This book was published as a two-part special issue in the Journal of Family Social Work.

Using Secondary Datasets to Understand Persons with Developmental Disabilities and their Families

Author :
Publisher : Academic Press
ISBN 13 : 0124078915
Total Pages : 388 pages
Book Rating : 4.1/5 (24 download)

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Book Synopsis Using Secondary Datasets to Understand Persons with Developmental Disabilities and their Families by :

Download or read book Using Secondary Datasets to Understand Persons with Developmental Disabilities and their Families written by and published by Academic Press. This book was released on 2013-10-15 with total page 388 pages. Available in PDF, EPUB and Kindle. Book excerpt: International Review of Research in Developmental Disabilities is an ongoing scholarly look at research into the causes, effects, classification systems, syndromes, etc. of developmental disabilities. Contributors come from wide-ranging perspectives, including genetics, psychology, education, and other health and behavioral sciences. Provides the most recent scholarly research in the study of developmental disabilities A vast range of perspectives is offered, and many topics are covered An excellent resource for academic researchers

Women Leaders in School Psychology

Author : Carol S. Lidz
Publisher : Springer Nature
ISBN 13 : 3030435431
Total Pages : 497 pages
Book Rating : 4.0/5 (34 download)

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Book Synopsis Women Leaders in School Psychology by : Carol S. Lidz

Download or read book Women Leaders in School Psychology written by Carol S. Lidz and published by Springer Nature. This book was released on 2020-08-24 with total page 497 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book offers the autobiographical reflections of prominent women school psychologists who are at or near completion of their careers. It demonstrates the varied and diverse journeys of these women in their own words. The volume examines the ways in which leading women in the field have evolved from primarily frontline service providers to full contributors at all levels of the profession. Chapters offer insights into school psychology movers and shakers and explores how many found a home in academia, where they became trainers of the next generation. In addition, chapters examine the opportunities and restraints that these women leaders confronted across the years. The book celebrates the success of these women and encourages both women and men to pursue roles in the profession. Women Leaders in School Psychology is an informative read for graduate students and scientist-practitioners as well as researchers, professors and other professionals in child and school psychology, educational policy and politics, family studies, social work, public health, clinical and developmental psychology and all related psychology, mental health, and education disciplines.

The Caregiver and the Child with Disabilities

Author : Emmanuel Ceccaldi
Publisher : Independently Published
ISBN 13 :
Total Pages : 0 pages
Book Rating : 4.8/5 (768 download)

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Book Synopsis The Caregiver and the Child with Disabilities by : Emmanuel Ceccaldi

Download or read book The Caregiver and the Child with Disabilities written by Emmanuel Ceccaldi and published by Independently Published. This book was released on 2024-01-20 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "The Caregiver and the Child with Disabilities" is a book that provides a comprehensive overview of caregiving and the profession of a caregiver for children with disabilities. Drawing from ten years of experience in the field, the author shares their knowledge, insights, and lessons learned from this enriching experience. The book begins with a captivating introduction to the author and their journey as a caregiver working with these children. It then lays out the objectives of the book, which aim to raise awareness, inform, and share knowledge about the care and profession of caregiving specifically dedicated to these exceptional children. Each chapter offers an in-depth perspective on a key aspect of caregiving. Different categories of disabilities are presented, including physical, sensory, cognitive, and others. The specific characteristics and needs of each type of disability are explained in detail, enabling readers to better understand the challenges these children face and adapt care accordingly. The book also explores the responsibilities and daily tasks of the caregiver in caring for children, highlighting the importance of empathy, patience, and adapted communication. It underscores the process of assessing the needs of children with disabilities and developing individualized care plans in collaboration with the medical team, therapists, and families. Another essential aspect addressed is interdisciplinary collaboration, ensuring a comprehensive and cohesive approach to care. The various healthcare professionals and therapists involved in caring for children are introduced, emphasizing their complementary roles and the importance of their collaboration. The book also delves into communication techniques adapted to children with disabilities, such as sign language, pictograms, and assisted communication tools. It emphasizes social inclusion and interaction with peers and the environment, as well as awareness of the emotions and difficulties faced by these exceptional children. Special attention is given to the emotional well-being of the children and approaches to fostering positive relationships with their surroundings. The involvement of families in the care and education of children is presented as essential, with appropriate support to help them cope with challenges and promote their autonomy. The book also highlights recent advancements in the field of caring for children with disabilities while underscoring future challenges and opportunities for improving the profession. The author concludes by calling for better recognition and appreciation of the role of caregivers in this crucial domain. "The Child with Disabilities" is an essential guide for healthcare professionals, students, families, and anyone looking to deepen their understanding of caring for children with disabilities. It offers valuable information, practical advice, and inspiring perspectives, inviting readers to embrace diversity and support these exceptional children in their growth and social inclusion.

Landscapes of Care

Author : Andrew Power
Publisher : Routledge
ISBN 13 : 1317108094
Total Pages : 396 pages
Book Rating : 4.3/5 (171 download)

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Book Synopsis Landscapes of Care by : Andrew Power

Download or read book Landscapes of Care written by Andrew Power and published by Routledge. This book was released on 2016-04-15 with total page 396 pages. Available in PDF, EPUB and Kindle. Book excerpt: Given the increasing shift of care from state residential services to community-based support, this book examines the complex geographies of family caregiving for young adults with intellectual disabilities. It traces how family ’carers’ are directly and indirectly affected by a broad array of law and policy, including family policy, disability legislation, and health and community care restructuring policy. Each of these has material and institutional effects and is premised on the discourses, ideologies, and interactions in the state over time. Focusing on the welfare models of England, the US and Ireland, this book compares the welfare ideologies in each country and examines how the specific historical, cultural, and political contexts give rise to different landscapes of care and disability. Further, the book explores the unique lifeworlds of family carers of young adults with intellectual disability within the broader landscape of care in which they are situated.

A Dyadic Approach to Adjustment to Disability

Author : Megan J. Baumunk
Publisher :
ISBN 13 :
Total Pages : 0 pages
Book Rating : 4.:/5 (145 download)

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Book Synopsis A Dyadic Approach to Adjustment to Disability by : Megan J. Baumunk

Download or read book A Dyadic Approach to Adjustment to Disability written by Megan J. Baumunk and published by . This book was released on 2024 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The progression of chronic illness and disability, like multiple sclerosis (MS) and Parkinson's disease (PD), can lead to the need for a caregiver. A spouse often fills the role, and the caregiving stressors can lead to caregiver burden. There is a cyclical nature to burden and adjustment to disability and the shared experiences inevitably alters the nature of the spousal relationship. In practice and research, the spouses have been viewed and explored independently, with each individual being seen as having separate concerns and experiences, rather than the cyclical and interdependent experience. The present study examined the relationship between caregiver burden and love styles in an attempt to better understand meaning in the caregiving role, changes in love styles, and the lived experiences shared between spouses. Participants included 89 individuals with MS or PD and spousal caregivers. Online surveys consisting of several self-reported measurements were used collect data from eligible participants through the National Multiple Sclerosis Society and several Parkinson's disease associations. The results suggest a relationship between caregiver burden and love styles. There were significant perceived changes in love styles from the first year of marriage to the first year of symptom onset, the first year of caregiving, and current love styles. There were also significant perceived changes between the first year of symptom onset and the first year of caregiving. The findings provide insight into understanding the role of love styles and caregiver burden in the complex changes couples experience during adjustment to disability. Caregiver depression and anxiety has a significant relationship with caregiver burden and should be considered by Rehabilitation Counselors working with spouses. Additional research and longitudinal studies are required to better understand the relationships and changes in love styles; however, Rehabilitation Counselors can utilize the value-based trends to work with couples in a more holistic way.

Life Planning for Adults with Developmental Disabilities

Author : Judith Greenbaum
Publisher : New Harbinger Publications
ISBN 13 : 1572244518
Total Pages : 214 pages
Book Rating : 4.5/5 (722 download)

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Book Synopsis Life Planning for Adults with Developmental Disabilities by : Judith Greenbaum

Download or read book Life Planning for Adults with Developmental Disabilities written by Judith Greenbaum and published by New Harbinger Publications. This book was released on 2007 with total page 214 pages. Available in PDF, EPUB and Kindle. Book excerpt: A Comprehensive Guide for Parents and Caregivers As any parent or caregiver of an individual with developmental disabilities can tell you, planning for the future of an adult with intellectual disabilities, Cerebral Palsy, severe autism, or another such condition requires hard work and good advice. While complete independence and self-reliance is out of reach for many adults with developmental disabilities, a productive, stable, and enjoyable life is certainly possible. But government and private support for parents and disabled individualsis scattered and difficult to negotiate. This book is a comprehensive guide to resources you can use to help an adult child or other individual with developmental disabilities for whom you care. The book begins by assessing the quality of life of the adult with a disability. It offers a wealth of suggestions for making that person's life even better. The book then focuses on long-term planning for the individual with a disability and helps answer the question, Who will take care of my child after I'm gone? Learn effective ways to: Assess a disabled individual's strengths and need for support services Develop a plan to for building a busy and productive life Locate good housing and employment opportunities Gather a supportive team of caregivers Advocate for a disabled individual with community agencies

Cancer Caregiving in the United States

Author : Ronda C. Talley
Publisher : Springer Science & Business Media
ISBN 13 : 1461431549
Total Pages : 332 pages
Book Rating : 4.4/5 (614 download)

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Book Synopsis Cancer Caregiving in the United States by : Ronda C. Talley

Download or read book Cancer Caregiving in the United States written by Ronda C. Talley and published by Springer Science & Business Media. This book was released on 2012-04-24 with total page 332 pages. Available in PDF, EPUB and Kindle. Book excerpt: Despite advances in detection and treatment, cancer remains a source of pain and distress to patients and of complex challenges to the loved ones caring for them. The trend toward shorter hospital stays in particular has increased the physical, psychological, and financial burden on caregivers, often leading to adverse effects on patients. Cancer Caregiving in the United States illuminates these complex concerns with authoritative detail. This wide-ranging volume provides a comprehensive survey of cancer-related issues, including those affecting the care triad (patients-family members- professionals) and quality of care as well as the numerous physical, emotional, and financial challenges that caregivers may need to confront. Sources of caregiver difficulty at each stage of the disease, from diagnosis to end of life, are explored. Each chapter analyzes its topic in terms of practice, research, education, and policy, providing a wealth of literature reviews, assessment and care models, interventions, and recommendations for future study and practice. Coverage includes: Caregiving issues for cancer patients with long-term, short-term, and intermittent needs. Family caregivers as members of the treatment team. The impact of health disparities on caregivers. Cancer care policy and advocacy. End-of-life issues for cancer caregivers. Legal, financial, and ethical issues. Cancer Caregiving in the United States is a core reference for researchers, professionals/scientist-practitioners, and graduate students in such caregiving fields as clinical psychology, social work, nursing, public health and medicine, social policy, and educational policy.

Multidisciplinary Coordinated Caregiving

Author : Ronda C. Talley
Publisher : Springer Science & Business Media
ISBN 13 : 1461489733
Total Pages : 279 pages
Book Rating : 4.4/5 (614 download)

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Book Synopsis Multidisciplinary Coordinated Caregiving by : Ronda C. Talley

Download or read book Multidisciplinary Coordinated Caregiving written by Ronda C. Talley and published by Springer Science & Business Media. This book was released on 2013-11-19 with total page 279 pages. Available in PDF, EPUB and Kindle. Book excerpt: Effective, meaningful caregiving requires a well-coordinated and informed effort guided by various highly skilled specialists across several interrelated professions, including psychologists, social workers, and occupational therapists. Multidisciplinary Coordinated Caregiving addresses the information needs of these interrelated professionals, contributing to the direct care of individuals and serving as an essential resource for those who ultimately create collaborative approaches to contemporary caregiving plans. In addition, the volume provides a wealth of evidence-based research findings to facilitate ongoing dialogue about multidisciplinary and interdisciplinary perspectives on and interventions for the complex challenge of caregiving in America. Key areas of coverage include: The status of professional caregiving in the United States. Nursing perspectives on the state of family caregiving. Psychological aspects of caregiving. A human development, lifespan perspective on caregiving during late life. Public health contributions to caregiving. Multidisciplinary Coordinated Caregiving offers a wealth of insights for those researchers, practitioners, and graduate students who seek to optimize the care of individuals across such fields as psychology, social work, public health, geriatrics and gerontology, and medicine as well as public and educational policy making.

Caregiving Across the Lifespan

Author : Ronda C. Talley
Publisher : Springer Science & Business Media
ISBN 13 : 1461455537
Total Pages : 308 pages
Book Rating : 4.4/5 (614 download)

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Book Synopsis Caregiving Across the Lifespan by : Ronda C. Talley

Download or read book Caregiving Across the Lifespan written by Ronda C. Talley and published by Springer Science & Business Media. This book was released on 2012-12-22 with total page 308 pages. Available in PDF, EPUB and Kindle. Book excerpt: Most scholars do not consider the long-term nature of caregiving, but rather focus on a specific developmental period (e.g., old age) or a specific disability (e.g., cancer). Yet the most important lessons about caregiving may occur at any age, regardless of disabilities or other limitations. Caregiving is a lifelong process. It begins in a mother’s womb, continues throughout the lifespan, and ends after death. Caregiving Across the Lifespan emphasizes caregiving as a process that occurs throughout one’s life. It discusses infant care, the developmental needs of children and adolescents, the many caregiving issues in adulthood and mid-life, and finally end-of-life care and bereavement. Key coverage includes: Examining caregiving issues across a developmental perspective. Caregiving from infancy through early childhood through end of life. Mid-life and multigenerational bonds and responsibilities. Caregiver identity in older adults. Family caregiving at the end of life. This must-have volume offers a wealth of insights and ideas for researchers, practitioners, and graduate students across the caregiving fields, including psychology, social work, public health, geriatrics and gerontology, and medicine as well as public and education policy makers.

The Surgeon General's Call to Action to Improve the Health and Wellness of Persons with Disabilities

Author : United States. Public Health Service. Office of the Surgeon General
Publisher :
ISBN 13 :
Total Pages : 46 pages
Book Rating : 4.:/5 (613 download)

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Book Synopsis The Surgeon General's Call to Action to Improve the Health and Wellness of Persons with Disabilities by : United States. Public Health Service. Office of the Surgeon General

Download or read book The Surgeon General's Call to Action to Improve the Health and Wellness of Persons with Disabilities written by United States. Public Health Service. Office of the Surgeon General and published by . This book was released on 2005 with total page 46 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Rural Caregiving in the United States

Author : Ronda C. Talley
Publisher : Springer Science & Business Media
ISBN 13 : 1461403022
Total Pages : 287 pages
Book Rating : 4.4/5 (614 download)

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Book Synopsis Rural Caregiving in the United States by : Ronda C. Talley

Download or read book Rural Caregiving in the United States written by Ronda C. Talley and published by Springer Science & Business Media. This book was released on 2011-09-15 with total page 287 pages. Available in PDF, EPUB and Kindle. Book excerpt: Caregivers living in rural areas face daunting obstacles. In addition to the isolation and anxiety that many caregivers across the country experience, rural caregivers must also cope with limited access to uncoordinated resources and severe shortages of trained professionals. Although many research, policy, and practice upgrades have been made in response to caregivers’ general concerns, the specific problems facing the rural caregiver have been less frequently addressed. Focusing on what is known as well as what is needed – and zeroing in on major subgroups within this diverse population – Rural Caregiving in the United States replaces misconceptions of the nonurban experience with real-life issues, findings, and solutions. For example, this pioneering volume: Covers a broad range of issues unique to rural caregiving, including research, education/training, policy, and practice. Identifies specific needs related to education, training, and support for rural caregivers. Examines both the positive and negative effects of rural living on caregivers as well as patients. Discusses the importance of in-home care in lieu of scarcer forms of for-profit care (e.g., hospitals). Addresses not only discrepancies between rural and urban health care systems but racial and ethnic disparities within rural health care. Explores the advantages of using information technology to address rural health care limitations. Rural Caregiving in the United States offers uniquely knowledgeable perspectives to researchers, practitioners, and graduate students in the caregiving fields, including psychology, social work, nursing, gerontology and geriatrics, medicine, public health, public policy, and educational policy.