Mallory's 65 Roses

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Author :
Publisher :
ISBN 13 : 9780970035301
Total Pages : 24 pages
Book Rating : 4.0/5 (353 download)

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Book Synopsis Mallory's 65 Roses by : Diane Shader Smith

Download or read book Mallory's 65 Roses written by Diane Shader Smith and published by . This book was released on 1997-01-01 with total page 24 pages. Available in PDF, EPUB and Kindle. Book excerpt: Mallory explains how she and her family cope with her cystic fibrosis, a disease of the lungs, that is sometimes more easily pronounced as "65 roses."

Salt in My Soul

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Author :
Publisher : Random House
ISBN 13 : 1984855433
Total Pages : 336 pages
Book Rating : 4.9/5 (848 download)

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Book Synopsis Salt in My Soul by : Mallory Smith

Download or read book Salt in My Soul written by Mallory Smith and published by Random House. This book was released on 2019-03-12 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: The diaries of a remarkable young woman who was determined to live a meaningful and happy life despite her struggle with cystic fibrosis and a rare superbug—from age fifteen to her death at the age of twenty-five—the inspiration for the original streaming documentary Salt in My Soul “An exquisitely nuanced chronicle of a terrified but hopeful young woman whose life was beginning and ending, all at once.”—Los Angeles Times Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately raged against her illness. Despite the daily challenges of endless medical treatments and a deep understanding that she’d never lead a normal life, Mallory was determined to “Live Happy,” a mantra she followed until her death. Mallory worked hard to make the most out of the limited time she had, graduating Phi Beta Kappa from Stanford University, becoming a cystic fibrosis advocate well known in the CF community, and embarking on a career as a professional writer. Along the way, she cultivated countless intimate friendships and ultimately found love. For more than ten years, Mallory recorded her thoughts and observations about struggles and feelings too personal to share during her life, leaving instructions for her mother to publish her work posthumously. She hoped that her writing would offer insight to those living with, or loving someone with, chronic illness. What emerges is a powerful and inspiring portrait of a brave young woman and blossoming writer who did not allow herself to be defined by disease. Her words offer comfort and hope to readers, even as she herself was facing death. Salt in My Soul is a beautifully crafted, intimate, and poignant tribute to a short life well lived—and a call for all of us to embrace our own lives as fully as possible.

Taking Cystic Fibrosis to School

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Author :
Publisher : Jayjo Books
ISBN 13 : 9781891383090
Total Pages : 0 pages
Book Rating : 4.3/5 (83 download)

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Book Synopsis Taking Cystic Fibrosis to School by : Cynthia S. Henry

Download or read book Taking Cystic Fibrosis to School written by Cynthia S. Henry and published by Jayjo Books. This book was released on 2000 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Illustrations and simple text help children learn what cystic fibrosis is and how it is dealt with.

Into the Silence

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Publisher : Vintage
ISBN 13 : 0307700569
Total Pages : 592 pages
Book Rating : 4.3/5 (77 download)

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Book Synopsis Into the Silence by : Wade Davis

Download or read book Into the Silence written by Wade Davis and published by Vintage. This book was released on 2011-10-18 with total page 592 pages. Available in PDF, EPUB and Kindle. Book excerpt: The definitive story of the British adventurers who survived the trenches of World War I and went on to risk their lives climbing Mount Everest. On June 6, 1924, two men set out from a camp perched at 23,000 feet on an ice ledge just below the lip of Everest’s North Col. George Mallory, thirty-seven, was Britain’s finest climber. Sandy Irvine was a twenty-two-year-old Oxford scholar with little previous mountaineering experience. Neither of them returned. Drawing on more than a decade of prodigious research, bestselling author and explorer Wade Davis vividly re-creates the heroic efforts of Mallory and his fellow climbers, setting their significant achievements in sweeping historical context: from Britain’s nineteen-century imperial ambitions to the war that shaped Mallory’s generation. Theirs was a country broken, and the Everest expeditions emerged as a powerful symbol of national redemption and hope. In Davis’s rich exploration, he creates a timeless portrait of these remarkable men and their extraordinary times.

Breath from Salt

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Publisher : BenBella Books
ISBN 13 : 1948836629
Total Pages : 744 pages
Book Rating : 4.9/5 (488 download)

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Book Synopsis Breath from Salt by : Bijal P. Trivedi

Download or read book Breath from Salt written by Bijal P. Trivedi and published by BenBella Books. This book was released on 2020-09-08 with total page 744 pages. Available in PDF, EPUB and Kindle. Book excerpt: Recommended by Bill Gates and included in GatesNotes "Elaborating on the science as well as the business behind the fight against cystic fibrosis, Trivedi captures the emotions of the families, doctors, and scientists involved in the clinical trials and their 'weeping with joy' as new drugs are approved, and shows how cystic fibrosis, once a 'death sentence,' became, for many, a manageable condition. This is a rewarding and challenging work." —Publishers Weekly Cystic fibrosis was once a mysterious disease that killed infants and children. Now it could be the key to healing millions with genetic diseases of every type—from Alzheimer's and Parkinson's to diabetes and sickle cell anemia. In 1974, Joey O'Donnell was born with strange symptoms. His insatiable appetite, incessant vomiting, and a relentless cough—which shook his tiny, fragile body and made it difficult to draw breath—confounded doctors and caused his parents agonizing, sleepless nights. After six sickly months, his salty skin provided the critical clue: he was one of thousands of Americans with cystic fibrosis, an inherited lung disorder that would most likely kill him before his first birthday. The gene and mutation responsible for CF were found in 1989—discoveries that promised to lead to a cure for kids like Joey. But treatments unexpectedly failed and CF was deemed incurable. It was only after the Cystic Fibrosis Foundation, a grassroots organization founded by parents, formed an unprecedented partnership with a fledgling biotech company that transformative leaps in drug development were harnessed to produce groundbreaking new treatments: pills that could fix the crippled protein at the root of this deadly disease. From science writer Bijal P. Trivedi, Breath from Salt chronicles the riveting saga of cystic fibrosis, from its ancient origins to its identification in the dank autopsy room of a hospital basement, and from the CF gene's celebrated status as one of the first human disease genes ever discovered to the groundbreaking targeted genetic therapies that now promise to cure it. Told from the perspectives of the patients, families, physicians, scientists, and philanthropists fighting on the front lines, Breath from Salt is a remarkable story of unlikely scientific and medical firsts, of setbacks and successes, and of people who refused to give up hope—and a fascinating peek into the future of genetics and medicine.

Undressing Infidelity

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Author :
Publisher : Adams Media Corporation
ISBN 13 : 9781593374815
Total Pages : 272 pages
Book Rating : 4.3/5 (748 download)

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Book Synopsis Undressing Infidelity by : Diane Shader Smith

Download or read book Undressing Infidelity written by Diane Shader Smith and published by Adams Media Corporation. This book was released on 2005 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: Offers an inside look at the lives of married women involved in extramarital affairs.

Mallory's Super Sleepover

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Author :
Publisher : Darby Creek ™
ISBN 13 : 1467727407
Total Pages : 119 pages
Book Rating : 4.4/5 (677 download)

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Book Synopsis Mallory's Super Sleepover by : Laurie Friedman

Download or read book Mallory's Super Sleepover written by Laurie Friedman and published by Darby Creek ™. This book was released on 2013-08-01 with total page 119 pages. Available in PDF, EPUB and Kindle. Book excerpt: Mallory is turning 10, and she's planning a super sleepover! To celebrate her tenth birthday, Mallory wants to have the most super sleepover celebration ever! Mallory plans out everything to the last detail. As long as she promises not to let the fun get out of control, her parents agree to letting her friends sleep over. But Mallory’s best friend, Mary Ann, has her own ideas about what a super sleepover party should include. Before Mallory can put a stop to things, uninvited guests show up, a water balloon fight gets out of hand, and a good friend has her feelings hurt. How did a super sleepover turn into such a super mess?

Malory

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Publisher : Harper Collins
ISBN 13 : 0060935294
Total Pages : 639 pages
Book Rating : 4.0/5 (69 download)

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Book Synopsis Malory by : Christina Hardyment

Download or read book Malory written by Christina Hardyment and published by Harper Collins. This book was released on 2007-06-26 with total page 639 pages. Available in PDF, EPUB and Kindle. Book excerpt: Virtually all modern versions of the legend of King Arthur and his Knights of the Round Table are derived from a single book: Sir Thomas Malory's Morte d'Arthur (1469), one of the world's most renowned literary works. Yet the author, a fifteenth-century knight, has remained an enigma for centuries. Existing historical records imply that Malory was a criminal—accused of rape, ambush, rustling, and attacks on abbeys—and was imprisoned for most of his life. Using evidence from new historical research and deductions from the only known manuscript copy of Malory's celebrated work, Christina Hardyment brilliantly resolves the contradictions about an extraordinary man and a life marked equally by great achievement and devastating disgrace. Malory is the fascinating chronicle of a loyal soldier enmeshed in the tangled politics of the Wars of the Roses. It is the story of a connoisseur of literature and exemplary writer who created a masterpiece meant to inspire princes and knights to high endeavors and noble acts.

Diary of a CF Kid

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Author :
Publisher : Independently Published
ISBN 13 :
Total Pages : 225 pages
Book Rating : 4.7/5 (288 download)

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Book Synopsis Diary of a CF Kid by : Tim Sweeney

Download or read book Diary of a CF Kid written by Tim Sweeney and published by Independently Published. This book was released on 2021-04-19 with total page 225 pages. Available in PDF, EPUB and Kindle. Book excerpt: Are you a CF kid? You're not alone! When Tim Sweeney was (much) younger, he wished he had a book like this to help him navigate the ups and downs of having cystic fibrosis. Tim was born with cystic fibrosis at a time when there wasn't a lot known about it. Throughout Tim's life, he has faced challenge after challenge and never gave up. As a result, Tim has learned all of the tools he uses to be a CF Warrior everyday. Tools such as exercise, good eating habits, compliance with breathing treatments and medications, and having the right mindset. Just like a superhero, Tim relies on his family, friends, and doctors to help, but he also relies on himself. In Diary of a CF Kid, Tim teaches the life lessons he's learned, such as trust, self-esteem, integrity, courage, and many others, to help be a CF Warrior who is winning daily battles. Tim's mission in life is to live with health and happiness. Living with CF has many challenges and it helps to be inspired by someone who has seen every stage of CF including 3 life saving surgeries (and even managed to run a marathon less than year after his double lung transplant). Tim has been a personal trainer for over 20 years with a wife and 3 boys. Let's face it, a lot of kids find reading too boring and not as exciting as an iPad. Diary of a CF Kid is told in the entertaining Diary of a Wimpy Kid style with funny sketches and stories that will make you laugh, engage, be inspired, and learn. Tim's diary also brings to life important topics for a CF kid. Each diary entry focuses on a new value with examples that include historical figures such as Helen Keller, the Wright Brothers, Gandhi, Nelson Mandela, and many others. Tim also uses his own experiences to teach valuable lessons that have made a huge impact on his life. Learning from such real life heroes will inspire CF kids to live a life with health and happiness. This book is for a CF Kid. It is also for the parents of a CF kid who want to know how their kid experiences the world. How do CF kids perceive CF? What are the fears and hopes of a CF kid? What are some of the values that are important for a CF kid to practice daily? Perfect as a bedtime story, neatly divided into small sections, Diary of a CF Kid is a one of kind book for CF Kids.

Having Cystic Fibrosis Is A Lot Like Being A Superhero

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Author :
Publisher :
ISBN 13 :
Total Pages : 28 pages
Book Rating : 4.6/5 (631 download)

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Book Synopsis Having Cystic Fibrosis Is A Lot Like Being A Superhero by : Kelsey M Finn

Download or read book Having Cystic Fibrosis Is A Lot Like Being A Superhero written by Kelsey M Finn and published by . This book was released on 2020-07-02 with total page 28 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book tells the story of Jack, a boy who has a genetic condition called Cystic Fibrosis, and his Cystic Fibrosis Superpowers. Cystic Fibrosis affects approximately 1 in every 2,500 people of European ancestry, and also affects people of other ancestries, but less frequently. This book is intended to serve as a way to communicate with children about Cystic Fibrosis, to embrace and foster acceptance of the human condition, and help children understand what Cystic Fibrosis means for themselves or someone they know who is affected by Cystic Fibrosis.

Terry's Journey to Cf Land: Navigating the Adventures of Cystic Fibrosis

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Author :
Publisher : Clovercroft Publishing
ISBN 13 : 9781950892778
Total Pages : 32 pages
Book Rating : 4.8/5 (927 download)

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Book Synopsis Terry's Journey to Cf Land: Navigating the Adventures of Cystic Fibrosis by : Terry Gene Wright

Download or read book Terry's Journey to Cf Land: Navigating the Adventures of Cystic Fibrosis written by Terry Gene Wright and published by Clovercroft Publishing. This book was released on 2020-10-20 with total page 32 pages. Available in PDF, EPUB and Kindle. Book excerpt: TERRY'S JOURNEY TO CF LAND: Navigating the Adventures of Cystic Fibrosis is a children's story coloring book that follows and depicts the surreal journey of Terry Wright, a 58-year old African American male Cystic Fibrosis (CF) patient (born August 1962) who is not diagnosed until the age of 54, although he has been hospitalized, seen by an array of healthcare practitioners, and unknowingly dealing with the devastating consequences of CF throughout his entire life.

Salt in My Soul

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Author :
Publisher : Random House Trade Paperbacks
ISBN 13 : 1984855441
Total Pages : 338 pages
Book Rating : 4.9/5 (848 download)

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Book Synopsis Salt in My Soul by : Mallory Smith

Download or read book Salt in My Soul written by Mallory Smith and published by Random House Trade Paperbacks. This book was released on 2020-01-28 with total page 338 pages. Available in PDF, EPUB and Kindle. Book excerpt: The diaries of a remarkable young woman who was determined to live a meaningful and happy life despite her struggle with cystic fibrosis and a rare superbug—from age fifteen to her death at the age of twenty-five—the inspiration for the original streaming documentary Salt in My Soul “An exquisitely nuanced chronicle of a terrified but hopeful young woman whose life was beginning and ending, all at once.”—Los Angeles Times Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately raged against her illness. Despite the daily challenges of endless medical treatments and a deep understanding that she’d never lead a normal life, Mallory was determined to “Live Happy,” a mantra she followed until her death. Mallory worked hard to make the most out of the limited time she had, graduating Phi Beta Kappa from Stanford University, becoming a cystic fibrosis advocate well known in the CF community, and embarking on a career as a professional writer. Along the way, she cultivated countless intimate friendships and ultimately found love. For more than ten years, Mallory recorded her thoughts and observations about struggles and feelings too personal to share during her life, leaving instructions for her mother to publish her work posthumously. She hoped that her writing would offer insight to those living with, or loving someone with, chronic illness. What emerges is a powerful and inspiring portrait of a brave young woman and blossoming writer who did not allow herself to be defined by disease. Her words offer comfort and hope to readers, even as she herself was facing death. Salt in My Soul is a beautifully crafted, intimate, and poignant tribute to a short life well lived—and a call for all of us to embrace our own lives as fully as possible.

Challenges Surrounding the Education of Children with Chronic Diseases

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Author :
Publisher : IGI Global
ISBN 13 : 146669453X
Total Pages : 329 pages
Book Rating : 4.4/5 (666 download)

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Book Synopsis Challenges Surrounding the Education of Children with Chronic Diseases by : Gordon, Maria

Download or read book Challenges Surrounding the Education of Children with Chronic Diseases written by Gordon, Maria and published by IGI Global. This book was released on 2015-10-02 with total page 329 pages. Available in PDF, EPUB and Kindle. Book excerpt: While governing bodies have mandated that all students have the right to an education, with disabled students treated to the same rights and opportunities as non-disabled students, policymakers do not always agree on what all-inclusive education should look like. Challenges Surrounding the Education of Children with Chronic Diseases explores the needs that children with certain conditions—such as diabetes, cancer, juvenile idiopathic arthritis, and inflammatory bowel disease—might have in the classroom. Featuring coverage on a wide range of topics relating to pre-service teacher training, school administrators’ policies, and the experiences of children with chronic health conditions, this book is an essential reference source for teachers, educators, school administrators, policymakers, and anyone else concerned with inclusive educational rights for all students.

The General Educator's Guide to Special Education

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Author :
Publisher : Corwin Press
ISBN 13 : 1412971373
Total Pages : 257 pages
Book Rating : 4.4/5 (129 download)

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Book Synopsis The General Educator's Guide to Special Education by : Jody L. Maanum

Download or read book The General Educator's Guide to Special Education written by Jody L. Maanum and published by Corwin Press. This book was released on 2009-03-26 with total page 257 pages. Available in PDF, EPUB and Kindle. Book excerpt: Provides information on disability categories, the referral and placement process, teaching strategies, and behavioral adaptations to the curriculum.

Diary of a Dying Girl

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Publisher : Random House Books for Young Readers
ISBN 13 : 0593647475
Total Pages : 393 pages
Book Rating : 4.5/5 (936 download)

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Book Synopsis Diary of a Dying Girl by : Mallory Smith

Download or read book Diary of a Dying Girl written by Mallory Smith and published by Random House Books for Young Readers. This book was released on 2024-05-07 with total page 393 pages. Available in PDF, EPUB and Kindle. Book excerpt: This collection of one girl's real, unflinching diary entries about slowly dying of a terminal illness is an unparalleled exploration of the human spirit and what it means to truly live. Many of the feelings I write about are too difficult to share while I'm alive, so I'm keeping everything in my journal password-protected until the end. Mallory Smith was no ordinary girl, and this is no ordinary story. At age three, Mallory was diagnosed with cystic fibrosis--a disease that attacks the internal organs and would eventually kill her. Despite living on borrowed time, Mallory pursued her passions: volleyball; writing; the environment; her boyfriend, family, and friends. Most importantly, every day she chose to embody the mantra "live happy." Mallory also had her struggles--everything from love and sex to living with illness and just being a human on this planet. And she chronicled every bit of it, writing thousands of diary entries before her death in her twenties. This is the poignant, true story of a young woman who refused to be defined by chronic illness. Her light and her life are shared here in her own words to encourage everyone to live life to the fullest, as she did, even as she was dying.

Children with Complex Medical Issues in Schools

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Author :
Publisher : Springer Publishing Company
ISBN 13 : 0826124720
Total Pages : 546 pages
Book Rating : 4.8/5 (261 download)

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Book Synopsis Children with Complex Medical Issues in Schools by : Christine L. Castillo

Download or read book Children with Complex Medical Issues in Schools written by Christine L. Castillo and published by Springer Publishing Company. This book was released on 2008-04-14 with total page 546 pages. Available in PDF, EPUB and Kindle. Book excerpt: Print+CourseSmart

Handbook of Pediatric Psychology in School Settings

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Author :
Publisher : Routledge
ISBN 13 : 1135645701
Total Pages : 840 pages
Book Rating : 4.1/5 (356 download)

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Book Synopsis Handbook of Pediatric Psychology in School Settings by : Ronald T. Brown

Download or read book Handbook of Pediatric Psychology in School Settings written by Ronald T. Brown and published by Routledge. This book was released on 2003-09-12 with total page 840 pages. Available in PDF, EPUB and Kindle. Book excerpt: In recent years the escalating costs of health care have caused managed care programs to shift the delivery of pediatric psychological services away from specialized medical centers and into primary care and school settings. One result has been a radical expansion of school psychology into issues of clinical intervention, health promotion, and the assessment of psychotropic medications. School psychologists are now expected to either deliver or (more likely) to provide consultation regarding a wide variety of pediatric psychological services. Because this is a recent phenomenon, very few school-based psychologists or allied health practitioners (school counselors and social workers) have received training in pediatric psychology. The mission of this book is to provide them with a comprehensive and authoritative guide to their newly acquired responsibilities in such areas as psychotherapy, psychopharmacology, health promotion, and prevention of disease. This book is appropriate for anyone concerned with issues of pediatric psychology in school settings: school psychologists, pediatric psychologists, clinical child psychologists, as well as pediatricians and child psychiatrists.